Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Monilethrix

A Monilethrix anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Monilethrix. You're not alone. 10 People

    I Have Monolethrix

    Hey - I know there are more of us out there. I am a guy, 36, and I shave my head, but I have a 3 year old neice who is affected who can not. What should she do? Wig? Has to be difficult for girls. I have a twin sister who was slightly affected on the back of her neck, but it has...
    NDomek NDomek 36-40, M 3 Responses Dec 28, 2009

    Your Response

    Cancel

    Living With Monilethrix

    I am 24.. soon to be 25. I have monilethrix as well. My moms side of the family does. We all vary in degrees of how bad it is. Due to surgeries i've had and major stress, it has gotten worse. It's a bummer to be in the beauty industry and knowing one day, the hair on my head...
    fingerblinger fingerblinger 22-25, F Sep 17, 2012

    Your Response

    Cancel

    I see that others have posted about this,

    but not much seems current. I am a 34 year old female. My father was the first to express the gene. My brother and I have what I consider "moderate" expression (since I can't find a good scientific source). My son has a severe expression. He's 3, and will probably never...
    kimber0423 kimber0423 31-35, F Apr 1

    Your Response

    Cancel

    Monilethrix

    Howdy. I'm 20 and am the only person in my family suffering from Monilethrix. I've been inspired by my disorder to become a geneticist or genetic counselor, so I'm currently studying at University in hopes of earning a BS in Biology. I'll go on to grad school from there. As a...
    CaitlynAlyssa CaitlynAlyssa 22-25, F 1 Response Mar 25, 2013

    Your Response

    Cancel

    My Life With Monilethrix

    I'm a 13 year old boy and have monilethrix. My dad has it, but you can't really tell because he shaves his head. My sister has it and she wears a wig. I used to get teased a lot about it, but it's quieted down since I was younger. I still get asked about my hair frequently when I...
    Depoymail Depoymail 13-15 1 Response Jan 3, 2012

    Your Response

    Cancel

    Related Experiences

    Just this weekend I was out with colleagues at a very busy pub and as usual found it very difficult to follow the conversation. I have always struggled when in noisy environments...
    ProfessorDrew ProfessorDrew 51-55, M 3 hrs ago

    Your Response

    Cancel
    My childhood was a depressive phase. Not so much when we were where we live but when we went to our relatives' place during vacations. My mom's sisters are very conservative and...
    unsettledkp unsettledkp 18-21 11 hrs ago

    Your Response

    Cancel
    2, both female. I've had 2 different cyberstalkers in my internet lifetime. They were both female and both under the age of 25. Stalking is a very serious thing. Cyberstalkers are...
    DarkwingGoslyn DarkwingGoslyn 31-35 6 hrs ago

    Your Response

    Cancel
    Well where to start? I guess it's always better to just put it out there....I was recent tly told I have liver disease and they think it's acute and that means it showed up without...
    Squeekarose Squeekarose 31-35, F 1 Response 6 hrs ago

    Your Response

    Cancel
    It's about time I tell you guys about some of my problems to know me better. I have a specific crustacean food allergy. I can eat deep fried shellfish with crisp crust, but not...
    TetraZL TetraZL 13-15, F 5 hrs ago

    Your Response

    Cancel
    I keep my circle small due to many reasons , but mostly because I had a real life stalker in my town who almost killed me . I don't ever mean to hurt anyone....I'm just private...
    Sjenka Sjenka 36-40, F 4 Responses 5 hrs ago

    Your Response

    Cancel
    Every so often I stop and think how lucky I am to have met some really cool, unique and truly amazing people.  This is for several of them.  If you read through this list...
    pineychick pineychick 31-35, F 1 Response 1 hr ago

    Your Response

    Cancel
    So this is a dream that i had about a week back. It felt so real and the content is kinda weird haha. So here goes: It was climbing period in school. Basically, a school period...
    Shimmerz479 Shimmerz479 13-15, F 12 hrs ago

    Your Response

    Cancel
    You know I do find it funny when I come to this group to read stories. I find it funny because people my age who have no friends are rarely actually alone like me. The majority...
    ForgottenMale ForgottenMale 26-30, M 12 hrs ago

    Your Response

    Cancel
    I love my "dent" my friends and I always joke about it however i wish I could wear bras that fit me properly. I'm a C/D cup but I have to wear B and even then it doesn't fit right...
    Nicoleq Nicoleq 18-21 11 hrs ago

    Your Response

    Cancel
    After really thinking through everything, about all of the moves I've made throughout the country, and where I am currently, I have pretty much next to no friends (in person). And...
    obscureriddle obscureriddle 22-25, F 4 hrs ago

    Your Response

    Cancel
    I'd rather have both; which I have. I probably have too many acquaintances, honestly...but I consider only a small amount of them as my real, true, close, best friends.
    losingNemo losingNemo 13-15, F 57 mins ago

    Your Response

    Cancel
    I have to tell you the reason why I am the way I am. I am the way I am (crazy) because I have something wrong with my brain. And yes, I actually do belong in a mental hospital...
    AleaAndLexi AleaAndLexi 13-15, F 13 hrs ago

    Your Response

    Cancel
    I hate it when people argue with me, and then end the argument by blocking me. Like. You blocking me without trying to finish the argument just takes all the fun out of it. like...
    MeowOnMe MeowOnMe 18-21, F 6 Responses 12 hrs ago

    Your Response

    Cancel
    My jealousy issue is driving the best relationship i have in my life to the brink of an end. I just cannot trust. I've tried. I've been trying my hardest to change and try...
    SolitarySol SolitarySol 31-35, F 1 Response 11 hrs ago

    Your Response

    Cancel
    I have gained in the belly and now my *** is getting there too. I have weman grab me as in walking and live it.
    impregnator69 impregnator69 31-35, M 8 hrs ago

    Your Response

    Cancel
    Yea, just as it says, I have Aspergers Syndrome. It's tough at times. Yea, I have a great understanding of logic but the fact I don't understand emotions. Nor do I understand and...
    Tnert357 Tnert357 18-21, M 2 Responses 4 hrs ago

    Your Response

    Cancel
    I wish I have sense like spidey sense when someone have secret crush on me and take advantage of it (chuckle).
    562alex 562alex 18-21, M 2 hrs ago

    Your Response

    Cancel
    I did have one in the tip of my tongue but I took it out to have these done 😜
    Louiseelmorexo Louiseelmorexo 18-21, F 2 hrs ago

    Your Response

    Cancel
    Nor do I want to be but have I come face my reaction- Idk, I guess I will just have to see, but if it's like the alien off of alien, I'm high tailing it outta there, but my butt...
    orchids2blu orchids2blu 36-40, F 1 Response 1 hr ago

    Your Response

    Cancel
    I am doing a lot of things that I'm not proud of but they are in the past now that doesn't mean I won't do something else I like a good challenge I love to have fun I think that's...
    jeepwrangler1 jeepwrangler1 46-50, M 1 Response 1 hr ago

    Your Response

    Cancel
    I'm tired of everyone making a big deal out of abortion. If a woman decides to get rid of her own fetus then it's her life and not effecting you at all. It's her fetus , life and...
    ThePrettyOnee ThePrettyOnee 13-15, F 47 mins ago

    Your Response

    Cancel
    Well just mainly my two best friends, we always have a good time together, make each other laugh, I can always count on them. We have been best friends since middle school and...
    andreaespe andreaespe 18-21, F 35 mins ago

    Your Response

    Cancel
    When I was on vacation with my family there was a guys soccer team at our hotel with players from all over the world. After meeting them and spending a night club hopping I got...
    leex123 leex123 22-25, F 4 Responses 13 hrs ago

    Your Response

    Cancel
    God tried to communicate with me. Sometimes when I talk to someone, I have this feeling, like if an angel is talking to me to try to make me realize that I'm in the wrong way to...
    TheBelovedMan TheBelovedMan 22-25, M 13 hrs ago

    Your Response

    Cancel
    30 years old with not one friend. Never had any friends. Always was laughed at in school, called ugly, etc. Now I'm 30, married with 4 kids and my kids are my only entertainment. I...
    flawedperfectly01 flawedperfectly01 26-30, F 1 Response 12 hrs ago

    Your Response

    Cancel
    All my life i've been trying to gain weight. Now that i finally did, i feel sad and depress about myself. Im 5'5" 110 pounds. I used to be 100 pounds. Everyone is saying that i...
    Unknown150 Unknown150 18-21, F 1 Response 12 hrs ago

    Your Response

    Cancel
    I hate to admit it but it's true. I get really emotional at times and I don't know why. If some one says something mean or makes me really upset and fusterated I get so angry and...
    Emiry Emiry 18-21, F 11 hrs ago

    Your Response

    Cancel
    I have four good friends but other than that I don't really know a lot of people being that I'm in the middle of no where and there is no school.
    Zoekosmopoulos Zoekosmopoulos 18-21, F 1 Response 11 hrs ago

    Your Response

    Cancel
    I was out hunting alone and I was crossing a river when I fell and I fractured my foot so I crawled out and me and my family have this thing where if there is something wrong 3...
    Zoekosmopoulos Zoekosmopoulos 18-21, F 2 Responses 11 hrs ago

    Your Response

    Cancel
    To stay in touch!!! In real life and EP. I've been going through all my old messages and it's just so pathetic how many people I've dropped for no reason! I usually cherish...
    insidious2014 insidious2014 18-21, M 11 hrs ago

    Your Response

    Cancel
    i love a girl with a few tattoos. i have some too. ask me and i may tell you about them ;)
    drachenReiter drachenReiter 31-35, F 3 Responses 10 hrs ago

    Your Response

    Cancel
    I sometimes wonder what role love will play in my life and if I will be alone. But yes I am 17 and I haven't had a real "boyfriend" or my first kiss yet.
    Zoekosmopoulos Zoekosmopoulos 18-21, F 2 Responses 10 hrs ago

    Your Response

    Cancel
    Okay so my dreams are getting weirder and weirder so much so that I can't even bring myself to write them on here because I'd be considered a sick sick disgusting person. I haven't...
    hecknope hecknope 16-17, F 3 Responses 10 hrs ago

    Your Response

    Cancel
    I have no tan lines I don't like them so that's why I dont lol
    1losthope 1losthope 18-21, F 4 Responses 10 hrs ago

    Your Response

    Cancel
    Siraj, time : 3:01 Pm, Oman. My birth Certificate says i have completed 23 years on earth but to my knowledge i lived only 14 days when i was with her. Those days were nothing...
    heartless2 heartless2 22-25, M 8 hrs ago

    Your Response

    Cancel
    At our family Christmas get together yesterday I was wearing boots that made me taller than my uncle (uncle by marriage.) He leaned to hug for the tenth or so time and said, you...
    kimberlyfaith kimberlyfaith 31-35, F 2 Responses 8 hrs ago

    Your Response

    Cancel
    I miss her very badly this morning. Perhaps it's because I know we will be at the same place today, I haven't heard from seen or talked to her since thanksgiving. It's been 3 1/2...
    imjustaguy38 imjustaguy38 36-40, M 7 hrs ago

    Your Response

    Cancel
    I have never tried an illegal drug once. Not one time. I feel that my body should be free from illegal drugs to be at it's healthiest. That is just my personal thoughts on the...
    smartreader3 smartreader3 46-50, M 7 hrs ago

    Your Response

    Cancel
    What do you feel when you have a nightmare where you see yourself sleeping (from first person view) but you cant move or do anything, and the only thing that is not the same as...
    infotau infotau 18-21, M 1 Response 6 hrs ago

    Your Response

    Cancel
    Updating on my MM discovering that his wife has been having an affair too. He confronted her about it and she did admit to having an affair with their neighbor. She still loves...
    KathyJ304 KathyJ304 26-30, F 6 hrs ago