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I Have Monilethrix

A Monilethrix anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Monilethrix. You're not alone. 10 People

    Monilethrix

    Howdy. I'm 20 and am the only person in my family suffering from Monilethrix. I've been inspired by my disorder to become a geneticist or genetic counselor, so I'm currently studying at University in hopes of earning a BS in Biology. I'll go on to grad school from there. As a...
    CaitlynAlyssa CaitlynAlyssa 18-21, F 1 Response Mar 25, 2013

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    Living With Monilethrix

    I am 24.. soon to be 25. I have monilethrix as well. My moms side of the family does. We all vary in degrees of how bad it is. Due to surgeries i've had and major stress, it has gotten worse. It's a bummer to be in the beauty industry and knowing one day, the hair on my head...
    fingerblinger fingerblinger 22-25, F Sep 17, 2012

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    My Life With Monilethrix

    I'm a 13 year old boy and have monilethrix. My dad has it, but you can't really tell because he shaves his head. My sister has it and she wears a wig. I used to get teased a lot about it, but it's quieted down since I was younger. I still get asked about my hair frequently when I...
    Depoymail Depoymail 13-15 1 Response Jan 3, 2012

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    I Have Monolethrix

    Hey - I know there are more of us out there. I am a guy, 36, and I shave my head, but I have a 3 year old neice who is affected who can not. What should she do? Wig? Has to be difficult for girls. I have a twin sister who was slightly affected on the back of her neck, but it has...
    NDomek NDomek 36-40, M 3 Responses Dec 28, 2009

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    I see that others have posted about this,

    but not much seems current. I am a 34 year old female. My father was the first to express the gene. My brother and I have what I consider "moderate" expression (since I can't find a good scientific source). My son has a severe expression. He's 3, and will probably never...
    kimber0423 kimber0423 31-35, F Apr 1

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    Related Experiences

    Hey friends! I cannot thank you enough for all the amazing posts and comments you all have left me. You all gave me the support and confidence I needed and more! So I have good...
    Lovelaurenx3 Lovelaurenx3 18-21, F 5 Responses 6 hrs ago

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    People brag about having trust issues but that's how I can tell who does or does not have them because those of us who really have trust issues are at war with it. We don't like it...
    SheIsBroken SheIsBroken 18-21, F 2 Responses 4 hrs ago

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    People brag about having trust issues but that's how I can tell who does or does not have them because those of us who really have trust issues are at war with it. We don't like it...
    SheIsBroken SheIsBroken 18-21, F 1 Response 4 hrs ago

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    Charming, attentive, interested, witty, flirtatious - these are all traits. He knows exactly how to make a woman feel special, different from the rest, and like his one and only...
    stiltcourt stiltcourt 41-45, F 1 Response 1 hr ago

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    I used to have a love. He came to me when I least expected it and blindsided me. Somehow, he got past all my defenses and went straight for that secret place in my heart I'd...
    abrokenlittlegirl abrokenlittlegirl 46-50, F 2 Responses 4 hrs ago

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    I too would like to have nice breasts and bust line. I am man that has breasts. Since I have natural breasts I would like for them to be nice ones. I am currently a B cup. I think...
    Adam59 Adam59 56-60, M 2 hrs ago

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    I have a kiwi accent from having grown up in New Zealand. My mother is German though so I can speak German without my kiwi accent though. I am in China at the moment for 5 months...
    VelvetBoat VelvetBoat 18-21, F 1 Response 1 hr ago

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    My family and I were in China on a missions trip in my dream. During this trip, my husband, my three year old daughter Angelica and I went to the local market. At first, all...
    WarriorPrincess862 WarriorPrincess862 36-40, F 1 Response 6 hrs ago

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    I love her more than i have ever loved anyone but she doesn't feel the same way. It really hurts
    TheWickedJester TheWickedJester 26-30, M 2 Responses 6 hrs ago

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    Life provides a little bit of Everything, a little more of Almost Anything, and much too much of Nothing. So, have a little taste of Everything, drink heartily of Almost Anything...
    paulie138 paulie138 66-70, M 1 Response 6 hrs ago

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    In case you haven't checked it out before, this a great site that I've found for OCD. http://beyondocd.org
    Daenerys7 Daenerys7 41-45, F 6 hrs ago

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    I have the biggest, filthiest crush on my coworker at the moment. 'I'd lie' by Taylor swift is my anthem right now.
    ladycaroline ladycaroline 26-30, F 2 Responses 5 hrs ago

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    I do have a k-ik account but rarely use it
    1losthope 1losthope 18-21, F 3 Responses 4 hrs ago

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    Short version: I was groomed for abuse by my father, who is a con artist and not a part of my life anymore. He kidnapped my sibling and I when we were little and we were missing...
    iamowl iamowl 31-35, F 4 hrs ago

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    I am not 18. I'm 17. I'm sorry for lying to you, I wanted to talk to men online, though I should come clean. I am still have sexual consent by the law, but still.
    NatashaRose NatashaRose 18-21, F 1 Response 4 hrs ago

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    I want to find here a man who is older than me, sexy, intelligent, witty, handsome and who wants to have online relationship even though he is married.
    ScarlettMelanie84 ScarlettMelanie84 31-35, F 2 Responses 4 hrs ago

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    hey! my name is karan i am from hyderabad i got a seat in punjub for my graduation so i left for punjab it was the 1st tym i was away from my family everything was new there and i...
    realysweetguy realysweetguy 22-25, M 4 hrs ago

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    I love the thought of keeping my wife impregnated and filling her with my fertile seed watching out baby grow. I would to have large family
    impregnator69 impregnator69 31-35, M 3 hrs ago

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    Goodmorning everybody , I hope you guys have an amazing day!!(: God bless you all!
    nadiarenee nadiarenee 16-17, F 1 Response 2 hrs ago

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    I got in trouble at school this morning. Me & my friend got sent to the Principals office for swearing in class. He said he's going to write home to our parents & we have to...
    smackedagain smackedagain 13-15, F 5 Responses 1 hr ago

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    I think there are many reasons why I've never been in a relationship... Mainly because I'm always afraid of how it's going to turn out, or how much I will change once I'm in one...
    tayylah tayylah 18-21, F 1 hr ago

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    So, I have this friend, he's my best friend, and I like to believe that he is someone I can trust. Every time I tell him something personal, that I've even hesitated to tell him...
    Skuggington Skuggington 13-15, M 1 hr ago

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    After living through a few of life's dramas you would think that we all figure out that the truth always comes out. When it does come out someone always gets hurt. I myself have...
    lake1107 lake1107 31-35, F 1 Response 53 mins ago

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    I have been to NZ, Hong Kong, China, Germany, Italy, France, Dubai, Russia, Denmark, Sweden, Fiji, Canary Islands, England, Thailand, Estonia, Australia, Ireland, Austria...
    VelvetBoat VelvetBoat 18-21, F 2 Responses 51 mins ago

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    I'm from Australia and have an Australian accent
    mattywheels25 mattywheels25 26-30, M 1 Response Oct 24

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    In high school I had been doing extra work for my chemistry class and along the way I started to see my teacher in a different light. And I knew that if I ever said anything...
    cookii cookii 18-21, F 3 Responses Oct 24

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    I believe NO girl is STRAIGHT. LESBIonest; If you are a girl & you have never been sexually attracted to a female, then something is wrong with you. Every girl has to have at least...
    Itsnickijae Itsnickijae 18-21, F 8 Responses Oct 24

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    Wish I didn't have to be trying to do math on how many hours of sleep I will actually get if I go to bed now wake up at 1:30 fall asleep maybe 2:30 or 3 and be up by 7? Hate it...
    patri1 patri1 36-40, F 3 Responses Oct 24

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    My girl makes me feel so happy yet so sad. We've been going on 6 months daiting and I know I haven't been the greatest person. I've lied to her a couple times of small things so...
    slickchickeli slickchickeli 26-30, F 1 Response Oct 24

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    I saw a post today that said to remember to thank those people who made a difference in your life. I of course remembered my friends, family and even a couple strangers. But then...
    Maihowl Maihowl 22-25, F 1 Response Oct 24

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    This is in regards to EP user badcaseofthebefores If you have the time and the inclination Please read one of 'her' posts called 'I am a Meat Eater'.... Then read my response. Now...
    blackinc blackinc 36-40, M 3 Responses Oct 24

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    I have. I was ashamed at the times but now that I look back, I'm glad I did because it brought upon a feeling I don't want to feel again.
    clamthatjams clamthatjams 22-25, F 2 Responses Oct 24

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    EP has really screwed up my sleeping, because several nights in a row I have stayed up until ungodly hours waiting to talk to person, I thought was special. However I am wondering...
    RebekahWriter13 RebekahWriter13 31-35, F 4 Responses Oct 24

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    I have IBS (Irritable Bowel Syndrome). I've always had a very sensitive digestive system, but it became really bad in 2010-2011. It was triggered because I had severe depression...
    spacepixie spacepixie 26-30, F 2 Responses Oct 24

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    I actually have three, or four with my grandmother's dog. They are a Staffordshire Bull Terrier, Cocker Spaniel, Bichon Frisé and Cavachon. It gets a bit mad at times.
    Scaroth Scaroth 22-25, M Oct 24

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    Everybody has been on both sides of bullying. The bully and the victim, everybody, except maybe Gandhi. Throughout my career as a student in middle and high school, what I have...
    francake16 francake16 16-17, F 1 Response Oct 24

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    Every night, I have problems sleeping. I spent most of the night tossing and turning, when I finally feel like I can go to sleep usually about 7 am, my phone starts ringing so I...
    Mr504 Mr504 36-40, M 1 Response Oct 24

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    Nudity isn't necessarily erotic; Children prove this to us everyday. In American society, however, we have been taught to believe that if someone is nude, we have to think of them...
    Ginkofishin Ginkofishin 18-21, F 3 Responses Oct 24

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    I have an accent, New Zealand accent, it's so weird
    mattys1 mattys1 18-21, M 1 Response Oct 24

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    When I look back into my childhood, I could say that I was a happy-go-lucky child. I was one of those kids who played outside in clutters, with bikes, toys, and imagination. I didn...
    JumpingTomatoes JumpingTomatoes 16-17 Oct 24

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    i have a crush who works on another location but we have the same company. lets call her vina. shes the kind of girl who almost got my ideal one. shes simple, smart, caring, sweet...
    KeeyCharming KeeyCharming 22-25, F 1 Response Oct 24