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I Have Monilethrix

A Monilethrix anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Monilethrix. You're not alone. 10 People

    I Have Monolethrix

    Hey - I know there are more of us out there. I am a guy, 36, and I shave my head, but I have a 3 year old neice who is affected who can not. What should she do? Wig? Has to be difficult for girls. I have a twin sister who was slightly affected on the back of her neck, but it has...
    NDomek NDomek 36-40, M 3 Responses Dec 28, 2009

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    Living With Monilethrix

    I am 24.. soon to be 25. I have monilethrix as well. My moms side of the family does. We all vary in degrees of how bad it is. Due to surgeries i've had and major stress, it has gotten worse. It's a bummer to be in the beauty industry and knowing one day, the hair on my head...
    fingerblinger fingerblinger 22-25, F Sep 17, 2012

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    My Life With Monilethrix

    I'm a 13 year old boy and have monilethrix. My dad has it, but you can't really tell because he shaves his head. My sister has it and she wears a wig. I used to get teased a lot about it, but it's quieted down since I was younger. I still get asked about my hair frequently when I...
    Depoymail Depoymail 13-15 1 Response Jan 3, 2012

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    Monilethrix

    Howdy. I'm 20 and am the only person in my family suffering from Monilethrix. I've been inspired by my disorder to become a geneticist or genetic counselor, so I'm currently studying at University in hopes of earning a BS in Biology. I'll go on to grad school from there. As a...
    CaitlynAlyssa CaitlynAlyssa 18-21, F 1 Response Mar 25, 2013

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    I see that others have posted about this,

    but not much seems current. I am a 34 year old female. My father was the first to express the gene. My brother and I have what I consider "moderate" expression (since I can't find a good scientific source). My son has a severe expression. He's 3, and will probably never...
    kimber0423 kimber0423 31-35, F Apr 1

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    Related Experiences

    I literally am reading all these stories and my heart aches. I have been in two mental hospitals and been batteling depression for six years. I have cutt every place there is skin...
    Gonzales96 Gonzales96 18-21, F 3 Responses 10 hrs ago

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    My mother is a narcissist. My dad is her faithful enabler. They have been married for 52 years and to this day he does what she says. My mother was never home growing up. When...
    pistacchia pistacchia 46-50, F 4 hrs ago

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    My mother trashes my integrity every time she can. This last time is the point of no return for me... I have been a good daughter my entire life. I have been successful and...
    pistacchia pistacchia 46-50, F 1 hr ago

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    My mom was a single parent to me and I'm an only child. She worked her *** off providing for me.. So I spent most of my time growing up with babysitters and family members. She did...
    sunshiineee sunshiineee 22-25, F 2 Responses 6 hrs ago

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    I am so incredibly heartbroken:( I have just learned that my uncle & Cousin's family dog, Skyler passed away yesterday. This dog was like my very own. He was loved by so many...
    MKM18 MKM18 18-21, F 3 Responses 5 hrs ago

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    i have no problem with interacial any thing but sometimes its not that simple ....like people say love is color blind..maybe love is...but people are not......and it depends on who...
    amie26 amie26 31-35, F 5 Responses 4 hrs ago

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    I have problems with anxiety ever since I know about myself, and I'm currently having an identity crisis that's really severe. I've been to one psychotherapy already, it did help...
    Vrime Vrime 22-25, M 1 Response 49 mins ago

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    I'm one who has no problem with interracial relationships. Most of my romantic relationships with women have been with non whites. I dated mainly Hispanic women in high school...
    CrazyWaterSpring CrazyWaterSpring 51-55, M 1 Response 11 hrs ago

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    Okay so last Friday I was at My boyfriend's house and we were in his room waiting for his parents to finish up dinner. his younger brother had his girlfriend over as well. Me and...
    maromis maromis 16-17, F 2 Responses 10 hrs ago

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    I notice alot of women say I have a cute baby face and would love to shrink me, put me n a baby carriage and have me as their baby. Winder why they say this!
    SmileyWileyGuy81 SmileyWileyGuy81 31-35, M 6 Responses 11 hrs ago

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    Hi, I am new here and just needed to talk with people who would understand what I'm feeling! I love my husband, he is my true soulmate and greatest love, I never ever want to be...
    Coco181225 Coco181225 26-30, F 2 Responses 8 hrs ago

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    I have only one child; my precious daughter. Her name is Katie.. As she ages, I'm becoming increasingly stressed out. Sometimes I feel like it's hard for me to lead by example...
    majesticmaddy majesticmaddy 70+, F 1 Response 8 hrs ago

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    I learned Pi. I hate math, but I really regret not learning some Pi when I was in school. I would have written it at the bottom of every test, and probably gotten the 2 percent I...
    prettyprude prettyprude 31-35, F 1 Response 7 hrs ago

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    I have a Scottish accent which I have been told I sexy!
    HandsomePrince1 HandsomePrince1 16-17, M 1 hr ago

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    Most of them about killing. When I was a child I wanted to kill my family.. for absolutely no reason. I'd plot it.. then laugh... then feel miserable. Well it does not limit to my...
    jayshade jayshade 18-21, F 3 Responses 1 hr ago

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    I have a Instagram ( Johnnystha ) but hardly I post anything cause it's really boring .
    Johnnystha Johnnystha 26-30, M 12 hrs ago

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    Have you ever meet a person who was incarcerated for 12 year then he want to date you ? What would be you're response ?
    xomariposaxo xomariposaxo 26-30, F 3 Responses 12 hrs ago

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    20 Facts about me 1. God, Family, School/Career, Finding my true love are the order of my priorities in life 2. Blue and green are my favorite colors 3. I love sweets especially...
    JustOrdinaryGirl JustOrdinaryGirl 18-21, F 1 Response 11 hrs ago

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    Tonight a woman attempted to assault me. She felt as if it was appropriate probably because she feels empowered by women's rights campaigning. Unfortunately, she is miseducated on...
    Aguynamedbill Aguynamedbill 31-35, M 11 hrs ago

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    Went to bed at 11:00, woke up at 2:00 then woke up at 3:00am and haven't been to bed since so I'm doing my homework that's due later today😑
    fallout07 fallout07 18-21, F 3 Responses 9 hrs ago

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    I am by label Christian but I have crazy ideas that even I think are crazy but I believe that they are possible. I wish I knew how to explain them without sounding like an idiot.
    ThomasKR ThomasKR 16-17, M 9 hrs ago

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    I'm so angry. My mom has this new boyfriend and he comes over often snd they were in the Livingroom and me and my sister were in the kitchen doing out homework at the table. We had...
    TheRouge TheRouge 16-17, F 1 Response 9 hrs ago

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    I have 50 (46 now) x 15mins to complete in the corner, knickers put over head, a gold star is given for each one accomplished, I'm not told to go in the corner but request...
    MstDynamic MstDynamic 41-45, M 7 hrs ago

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    I have been told that my butt is cute. It always gets spanked because it is so spankable. They are nice melons!
    SexuBio SexuBio 18-21, M 6 hrs ago

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    As discussed if chris is the blond headed pig......I have not met her either. ..Therefore documented as a stalking bully...
    chrisandmargaret chrisandmargaret 46-50, F 6 hrs ago

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    I have an extremely high sex drive and it's difficult sometimes when my partner just isn't in the mood.
    flosserette flosserette 18-21, F 2 Responses 5 hrs ago

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    Hi everyone !! At one time Ep saved me by offering me a support system when I had no one to open up too . I've been through a lot and changed a lot . I'm hoping to share more...
    bbtwelve bbtwelve 46-50, F 1 Response 3 hrs ago

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    I haven't seen the dearest person to my heart in 3 years and I'm afraid I will never hear his voice again.
    qlara qlara 18-21, F 2 Responses 3 hrs ago

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    I have dark brown eyes they look black but in a picture my boyfriend took my eyes looked really bright brown :) I love bright brown eyes
    Kayl1995 Kayl1995 18-21, F 3 hrs ago

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    I have a birthmark in the shape of a face screaming. It has two eyes a nose and gaping mouth The only odd thing about it is I can feel my loved one's physical pain. has anybody...
    WolfManSherwood WolfManSherwood 26-30, M 1 Response 2 hrs ago

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    I was trying to find the right words to describe the lyrics that I posted earlier which is Pictures of You by The Cure . I found the perfect meaning about the lyrics that someone...
    Fmsa Fmsa 18-21, F 2 hrs ago

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    I'm really tired having this diagnose I have to go to school and it's really complicated. I'm really depressed :C
    Ramakichi Ramakichi 18-21, F 2 Responses 2 hrs ago

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    so im not the most popular person in the world, and i only have a few (very very few) friends. well my best friend(or ex bff?) and myself are fightin gand not getting along. its...
    MaddiJade16 MaddiJade16 13-15, F 1 Response 2 hrs ago

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    I was just told by a new coworker that I look Russian. LoL first time I have ever heard that. Makes me wonder though hahaha
    SomniumProeliator SomniumProeliator 22-25, F 4 Responses 2 hrs ago

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    I have two iPhone 5s. Yes it's strange but one is for work and one is for personal.
    Hotmix3325 Hotmix3325 26-30, M 1 hr ago

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    I have lost my puppy. I only had him for a year but I feels like longer. I just can't deal I don't see how someone can hit a dog and not even stop to see if he's ok. Husky kins...
    forders forders 13-15, F 3 Responses 1 hr ago

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    I need people the way alcoholics need alcohol It's taken me a long time to come to that understanding, but it's the truth. The BPD side of me craves validation and attention with...
    AnxietyReactor AnxietyReactor 36-40, M 3 Responses Aug 17

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    For years I have struggled with painful spasms from my neck to my hips, with unexplained pains in my legs. My orthopedists insisted that I just had scoliosis, and sent me to PT and...
    Medi2017 Medi2017 18-21, F Aug 17

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    Writing about my thoughts and troubles on EP has been really helpful as has been the support from the members as well. I've also been lucky to have a friend, who I've known since...
    HPage HPage 46-50, M 2 Responses Aug 17

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    Some of my experience are written with me closing my eyes and thinking about it. I'd don't write them in exact detail and description, but I sit and savor, then write. Especially...
    Sunshine0615 Sunshine0615 36-40, F 1 Response Aug 17

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    So. For those of you who haven't noticed yet. This is Twitter. Goodnight
    ItsAlexYay ItsAlexYay 13-15, T Aug 17

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    I attended a business I.T course, and in it I had to write a little presentation on your favourite entrepreneur. At the time, in class, I had a coke cola bottle, so decided to...
    Daveokay Daveokay 22-25, M Aug 17

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