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I Have Monilethrix

A Monilethrix anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Monilethrix. You're not alone. 10 People

    I Have Monolethrix

    Hey - I know there are more of us out there. I am a guy, 36, and I shave my head, but I have a 3 year old neice who is affected who can not. What should she do? Wig? Has to be difficult for girls. I have a twin sister who was slightly affected on the back of her neck, but it has...
    NDomek NDomek 36-40, M 3 Responses Dec 28, 2009

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    Living With Monilethrix

    I am 24.. soon to be 25. I have monilethrix as well. My moms side of the family does. We all vary in degrees of how bad it is. Due to surgeries i've had and major stress, it has gotten worse. It's a bummer to be in the beauty industry and knowing one day, the hair on my head...
    fingerblinger fingerblinger 22-25, F Sep 17, 2012

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    Monilethrix

    Howdy. I'm 20 and am the only person in my family suffering from Monilethrix. I've been inspired by my disorder to become a geneticist or genetic counselor, so I'm currently studying at University in hopes of earning a BS in Biology. I'll go on to grad school from there. As a...
    CaitlynAlyssa CaitlynAlyssa 18-21, F 1 Response Mar 25, 2013

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    I see that others have posted about this,

    but not much seems current. I am a 34 year old female. My father was the first to express the gene. My brother and I have what I consider "moderate" expression (since I can't find a good scientific source). My son has a severe expression. He's 3, and will probably never...
    kimber0423 kimber0423 31-35, F Apr 1

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    My Life With Monilethrix

    I'm a 13 year old boy and have monilethrix. My dad has it, but you can't really tell because he shaves his head. My sister has it and she wears a wig. I used to get teased a lot about it, but it's quieted down since I was younger. I still get asked about my hair frequently when I...
    Depoymail Depoymail 13-15 1 Response Jan 3, 2012

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    Related Experiences

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    September 2010: Sometime this month, without knowledge, I conceived my second child. I was living in Dodge City, KS with my ex fiancé and his son. We were constantly fighting and...
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    I don't quite know where to begin. I am feeling that there is absolutely no point in being so close to anybody anymore. It just hurts too much when they are gone. I have lost...
    SteelPearl SteelPearl 46-50, F 1 Response 10 hrs ago

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    Me too., i have terrible memories of school .. I feel i missed a lot of my education dealing with bullies n meanies that i couldnt comcentrate on my studied. I was made to feel...
    Janeysunshine Janeysunshine 36-40, F 2 Responses 6 hrs ago

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    Well my boyfriend does! He falls asleep most nights we are together on the couch and I come and 'collect' him when I wake up at crazy o'clock and he isn't there. I have asked him...
    Starz3060 Starz3060 26-30, F 2 Responses 1 hr ago

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    I am Lisa new here. I don't know how to describe myself. I am a sentimental but optimistic girl. I feel so lone and helpless when I was told that I had affected with herpes.I have...
    herpesltr herpesltr 31-35 1 Response 13 hrs ago

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    Welp so it looks like I'm the first post here. *takes a deep breath* okay, so my mom who is now 37 years old is a drug addict, more specifically meth, speed, heroine and whatever...
    Cryingsmile Cryingsmile 16-17, T 2 Responses 12 hrs ago

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    After 21 years of marriage, my wife wanted me to take another woman out to dinner and a movie. She said, “I love you, but I know this other woman loves you and would love to...
    sapphire601 sapphire601 31-35, F 10 hrs ago

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    I don't enjoy the career path I chose. I'm not that good at it either. I'm 32 and have no clue what to do with myself. 3 years ago I started college. My plan was to get an...
    Roxvox Roxvox 31-35, F 2 Responses 3 hrs ago

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    I havent been diagnosed yet but Im pretty sure I have it. Doctors say I have disorder. It sucks. I started feeling this way almost at the end of my first year in college. I had a...
    flight12 flight12 18-21, M 2 Responses 2 hrs ago

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    It is a friend with benefits rather than multiple like the title suggests. I have never done it before. Probably wouldn't do it again. But now I feel trapped and I think he does...
    starflower1 starflower1 26-30, F 2 Responses 13 hrs ago

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    Okay this is something sorta crazy I know. Back when I was 13 I was raped on my way home from school and I didn't tell anyone and it broke me and ripped me apart still today I...
    Finniees Finniees 16-17, F 11 hrs ago

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    I am repulsed by them. I have encountered many and our personalities don't mesh. I try to tolerate them but sometimes I feel we speak in different language and live in a different...
    Susana1985 Susana1985 26-30, F 1 Response 10 hrs ago

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    I don't know why but ever since i was little i have peeled my skin and its only gotten worse over the years. I want help with it but i don't know if anyone can help me. Right now i...
    Caitlinsmith1636 Caitlinsmith1636 18-21, F 3 Responses 9 hrs ago

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    A couple of nights ago, I woke up from a deep sleep and had a weird epiphany about myself. I've always really enjoyed taking and being in pictures, but as of late, I've really...
    ohjoyousone ohjoyousone 26-30, F 6 hrs ago

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    I just want to have some fun. the rules are simple: 1. keep this clean. 2. respect others religious beliefs. 3. have fun. this is a learning argument. keep it light!! if you feel...
    DracovNasser DracovNasser 18-21, M 1 Response 6 hrs ago

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    I've been cooking up a storm -- since I no longer have jet lag. I've been cooking a lot of steak, and that is quite unusual because I'm not a big beef-eater. I made fajitas with...
    aepteewS aepteewS 41-45, F 2 Responses 5 hrs ago

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    And I'm bipolar with ADHD and Psychosis. I take meds and I feel pretty good but I notice that my mood swings now are circumstantial. I find it difficult to cope with life. My...
    Roxvox Roxvox 31-35, F 1 Response 2 hrs ago

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    I've been injured since April 2, 2014. I smash my left index finger. Got let go the same day. I became jobless and things started to go down hill. Several doctors check only my...
    rukifuiai rukifuiai 22-25, F 4 Responses 2 hrs ago

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    Recently on EP , I have met a girl who is the best person I have ever known , I can tell her anything , she helps me overcome soo much and I am so grateful that I met her , I know...
    Theworldismyhell Theworldismyhell 18-21, F 30 mins ago

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    (Pic) Ya i have bad days, but they could be worse. I feel sorry for Mr. Stickman. He really has been out through a lot all these years.
    QuiltedBathwater QuiltedBathwater 18-21, M 1 Response 13 hrs ago

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    I was raped by my brother of 8-9 years my age; who was beaten and raped by my half brother of 10-11 years my age who was raped by his mother and beaten by our father. Fun family...
    LightYagami LightYagami 18-21, M 13 hrs ago

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    I am new to this site. misdiagnosed at 2 then again at 8 and finally diagnosed correctly with BM. MDA camp every summer but i still feel pretty alone. still struggling with the...
    sydneyalexis97 sydneyalexis97 16-17, F 13 hrs ago

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    Yep lol it is my weakness I have when it comes to attractive guys
    Unsettledteen Unsettledteen 18-21, F 1 Response 13 hrs ago

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    It's such a crazy things that I have to wait someone after I know he'll not come back 😒
    solida solida 18-21, F 11 hrs ago

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    People like myself need to be encouraged to put her own needs first and to find a relationship that reciprocates. I have been way, way too selfless. A traumatic pattern of being a...
    Ajushi Ajushi 31-35, M 11 hrs ago

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    So as u all know I'm jadah doll. And so many of u say I'm fake when others say amazingly nice things so thank you but I'm not who u think I am Al the people who think I'm fake...
    GIRLYGIRL894 GIRLYGIRL894 18-21, F 9 Responses 11 hrs ago

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    I had my heart broken by this person i was in a not official relationship with for about six months. We were and still are very close. What happened was that i started to get a bit...
    Rei124 Rei124 13-15, F 11 hrs ago

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    For the past week I've been running on 2 hours of sleep every night. I've tried absolutely everything. Nothing works. By the time I fall asleep it 4 am. I have to be up by 7 for...
    dirtbiker1254 dirtbiker1254 22-25, F 1 Response 10 hrs ago

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    Its not a major problem. Im not sure if some people will qualify it as a problem. But i consider it a problem. When ever i cuddle up with something i have a habit of nuzzling it...
    BDSMFan1 BDSMFan1 22-25, M 1 Response 10 hrs ago

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    Ennevi Ennevi 18-21, F 2 Responses 10 hrs ago

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    Why should I have a right to judge someone else's relationship based on their race?
    GemmaWeasley GemmaWeasley 13-15, F 3 Responses 10 hrs ago

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    Yes, I do have a name - Mz. *****. I am not your babe, baby or your honey, sexy, sweetie, sweetheart, darling. Call me babe, and you are blocked. It's quite simple really.
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    ashley486 ashley486 13-15, F 5 hrs ago

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    I just wanted to say to whoever this might be relevant to: I'm sorry I haven't been in in so long! I'm not purposely ignoring anyone, but I'm just really busy right now, and my...
    cloud49 cloud49 13-15, F 5 hrs ago

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    I'm afraid of tight spaces I'm afraid to fly I fear rejection I'm afraid of being alone I have a lot more that i can't think of.
    QuiltedBathwater QuiltedBathwater 18-21, M 5 hrs ago

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