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I Have Monilethrix

A Monilethrix anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Monilethrix. You're not alone. 10 People

    Living With Monilethrix

    I am 24.. soon to be 25. I have monilethrix as well. My moms side of the family does. We all vary in degrees of how bad it is. Due to surgeries i've had and major stress, it has gotten worse. It's a bummer to be in the beauty industry and knowing one day, the hair on my head...
    fingerblinger fingerblinger 22-25, F Sep 17, 2012

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    My Life With Monilethrix

    I'm a 13 year old boy and have monilethrix. My dad has it, but you can't really tell because he shaves his head. My sister has it and she wears a wig. I used to get teased a lot about it, but it's quieted down since I was younger. I still get asked about my hair frequently when I...
    Depoymail Depoymail 13-15 1 Response Jan 3, 2012

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    Monilethrix

    Howdy. I'm 20 and am the only person in my family suffering from Monilethrix. I've been inspired by my disorder to become a geneticist or genetic counselor, so I'm currently studying at University in hopes of earning a BS in Biology. I'll go on to grad school from there. As a...
    CaitlynAlyssa CaitlynAlyssa 18-21, F 1 Response Mar 25, 2013

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    I Have Monolethrix

    Hey - I know there are more of us out there. I am a guy, 36, and I shave my head, but I have a 3 year old neice who is affected who can not. What should she do? Wig? Has to be difficult for girls. I have a twin sister who was slightly affected on the back of her neck, but it has...
    NDomek NDomek 36-40, M 3 Responses Dec 28, 2009

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    I see that others have posted about this,

    but not much seems current. I am a 34 year old female. My father was the first to express the gene. My brother and I have what I consider "moderate" expression (since I can't find a good scientific source). My son has a severe expression. He's 3, and will probably never...
    kimber0423 kimber0423 31-35, F Apr 1

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    Related Experiences

    ...and I'm still recovering. I used to wonder about my father... how little things could send him into a rage. How his words and actions always mismatched the perceived offense...
    DubstepEnderFox DubstepEnderFox 26-30, F 2 hrs ago

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    sometimes I feel lame whenever I talk to or hang out with my friends. Yes I drink, but only with a group of people, so I'm only a social drinker. yet other than that, I don't smoke...
    alxvii alxvii 18-21, F 3 Responses 2 hrs ago

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    Let me start with I have a problem. I'm only 19 and I have always been drawn to older women that have a strong personality. I went to job corps and Miss Maria was my 3rd shift...
    patriotslover21 patriotslover21 26-30, F 1 hr ago

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    I haven't really written anything on EP in about 4 days. Just posted a few little blurb-y things. It's frustrating when I have ideas for something I want to write but am missing...
    Friability Friability 18-21 1 Response 50 mins ago

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    Twice in the recent past, as my relationship with my male BFF has continued to develop, I have had disturbing dreams about him. Both of the dreams were similar in that my BFF's...
    lc1967 lc1967 46-50, F 56 mins ago

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    This was a couple days ago~ This was around 9 PM I went to the restroom to brush my teeth I was looking at the wall and I notice something strange about my shadow? I moved so to...
    RainbowWolf13 RainbowWolf13 13-15, F 2 Responses 4 hrs ago

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    So I'm just up thinking and writing away everything I'm feeling. I'm gonna have to get up and a few hours because I'm going to the mountains. I can't wait.
    Itsnotareligion Itsnotareligion 22-25, F 2 Responses 3 hrs ago

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    I suppose I could call it insomnia. It has been both productive and destructive in my life. I can remember as a child having great difficulty sleeping. When I discovered books I...
    TunnelofTrees TunnelofTrees 36-40, M 3 hrs ago

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    This past summer I encountered NOT ONE mosquito. What does this mean? Our area, the Canadian Niagara region, has a Carolinian climate, hot and very humid in summer. While it is...
    paulie138 paulie138 66-70, M 2 hrs ago

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    I just accidently sucked all the co2 out of a whipcream can and i still have half a pie left, everythings closed....the struggle is real...
    AntonioV AntonioV 46-50, M 2 Responses 2 hrs ago

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    Look within you. The questions are all there. But look without and encounter a world that needs no answers. If you choose to question it you will be led astray, not by the natural...
    paulie138 paulie138 66-70, M 2 hrs ago

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    My so-called "Random Thoughts" really are random. Most of them appear to me in the middle of the night. They might occur after I've smoked a nice fat joint, or be inspired by what...
    paulie138 paulie138 66-70, M 2 hrs ago

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    iwant that someone to talk to again. someone that’ll listen & not judge cause I get more than enough of that already. nothing is ever rainbows & butterflies. a modern fairy tale...
    alrightco alrightco 22-25, F 1 Response 1 hr ago

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    So just yesterday my boyfriend left for army basic training, for 7 weeks, and has just arrived to base camp which is where we had to say good bye in text till the next time we get...
    tayrichx tayrichx 18-21, F Oct 28

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    My mom left when I was 12, and ever since then she has made my life a living hell. She intentionally tries to make sure I am not happy living with my dad. She tries to create drama...
    Siciliansdoitbetter Siciliansdoitbetter 16-17, F 3 Responses Oct 28

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    looking to chat. always nice to have more chat buddies. sirjuicealot
    kalosjuice kalosjuice 26-30, M 1 Response Oct 28

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    Well this year has been quite the ride , I been to jail , lost my job, went to rehab, May or may not have a girlfriend idk? Going threw a custody battle , fighting the union for...
    spanishjay spanishjay 26-30, M Oct 28

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    I dream alot about this town off the highway. by the scary water. there is a casino and water park. It has a downtown in the valley with thin streets and stores very close together...
    Lungmyster Lungmyster 41-45, F Oct 28

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    Have any of you ever had an alter start to remove other alters, or kill them to make themselves more prominent? To try to make it just the two of you? So they have more control...
    TheDylanWorld TheDylanWorld 13-15, M 6 Responses Oct 28

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    It's been slowly happening over the last two years but in the last few months it's been dramatic there are a few people hanging on but I guess that's because they've never spent a...
    lilygeorge12 lilygeorge12 22-25, F 1 Response Oct 28

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    I am 15 and I have a job interview for a spot at a recording studio I'm so excited because all of their equipment and instruments is high grade stuff so I really want this job so...
    mrmarshall1 mrmarshall1 13-15, M 2 Responses Oct 28

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    some part of b really abnormally wants to believe in a non realistic second bottom of this story. b observes herself in her suspended minutes. This spark of hope gives her...
    redribbonbook redribbonbook 46-50 Oct 28

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    I know he likes her and she likes him. But they haven't been on a date since she is frustrated with how he is so clueless. I don't think they are suited for another; she is very...
    Maihowl Maihowl 22-25, F 1 Response Oct 28

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    So I've been NC with my NM and GC brother and his family. We live in the same city, relatively close to each other. Yesterday the other brother who I've been LC said in the future...
    zeeva70 zeeva70 41-45, F 2 Responses Oct 28

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    The first time I met you, it was a simple "Hi" followed by an exchange of names. It took a few days for me to really appreciate how handsome and sexy you really are. Your clear...
    Bloo Bloo 22-25, F 1 Response Oct 28

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    I'm 27 and I've been pulling since I was about 12. After years of not telling people, even though they noticed my lashes and brows were missing, I tried to tell my mum and she made...
    0justme0 0justme0 26-30, F 2 Responses Oct 28

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    It's better to have loved and lost... Why can't we love and win?
    baconrind baconrind 26-30, M 4 Responses Oct 28

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    I can't even count how many times I have watched Diary of a Wimpy Kid movies, and I never get bored!
    tinypoop tinypoop 16-17, F Oct 28

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    In recent years people have said I look younger than my 50+ years. However when I was younger it was always the opposite way as a teenager people thought I was up to 10 years older...
    nunos nunos 51-55, M 2 Responses Oct 28

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    Pme girls that have any problems and just wanna talk pme
    Pushupbra Pushupbra 31-35, F Oct 28

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    I have suspected dyspraxia. Growing up I was never really much good at sports, I struggled to tie my shoelaces, I had problems with my speech, I struggled in social situations and...
    Scaroth Scaroth 22-25, M Oct 28

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    My mother (72 years old) has been in the 3 different hospitals for the past 5 weeks. She has severe abdominal pain and cannot keep anything down not even an ice chip. She throws up...
    adepon adepon 41-45, F Oct 28

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    Always have, and always will. After a scarecrow competition we entered recently, we brought Doris (our scarecrow) back to the office and the number of places she has found...
    Mick672 Mick672 41-45, M 3 Responses Oct 28

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    I still have flashbacks. it haunts me
    tarjawhore tarjawhore 22-25, M 2 Responses Oct 28

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    It's my parents. I wish I was dead. Then I wouldn't have to bear this pain and burden anymore. No one understands
    QueenBetcy QueenBetcy 13-15, F 2 Responses Oct 28

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    Isn't it wonderful when the government gets hold of running something it just doesn't work. ON EVERY LEVEL. We have drive-ins where I live for fast food. Sonics, and you pull...
    lasergraph lasergraph 61-65, M 2 Responses Oct 28

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    Yep it's true, I have a nice butt. And my *** loves attention lol. It hasn't always been like this tho. Growing up I had no ***, I was pretty much straight up n down, the 'skinny...
    BambiPie BambiPie 22-25, F 2 Responses Oct 28

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    Virginity is bullshit. It's just sex for the first time. Like reading Harry Potter for the first time. You don't loose anything. I hate it so much when people say "I took their...
    Colourfi Colourfi 13-15, F 1 Response Oct 28

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    I met this guy back in February. Have been talking to him ever since. Of course we only met once. He keeps telling me we will go out again. But haven't yet. I really like him. I...
    jfeeney jfeeney 31-35, F 2 Responses Oct 28

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    To be honest, I shouldn't have been driving at all that night. I went to an independence day party in 2002 at our town's reservoir lake behind my friend's house. I drank way too...
    iamokaynow iamokaynow 31-35, M Oct 28

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