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I Have Monilethrix

A Monilethrix anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Monilethrix. You're not alone. 12 People

    My Life With Monilethrix

    I'm a 13 year old boy and have monilethrix. My dad has it, but you can't really tell because he shaves his head. My sister has it and she wears a wig. I used to get teased a lot about it, but it's quieted down since I was younger. I still get asked about my hair frequently when I...
    Depoymail Depoymail 13-15 1 Response Jan 3, 2012

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    I Have Monolethrix

    Hey - I know there are more of us out there. I am a guy, 36, and I shave my head, but I have a 3 year old neice who is affected who can not. What should she do? Wig? Has to be difficult for girls. I have a twin sister who was slightly affected on the back of her neck, but it has...
    NDomek NDomek 36-40, M 3 Responses Dec 28, 2009

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    Monilethrix

    Howdy. I'm 20 and am the only person in my family suffering from Monilethrix. I've been inspired by my disorder to become a geneticist or genetic counselor, so I'm currently studying at University in hopes of earning a BS in Biology. I'll go on to grad school from there. As a...
    CaitlynAlyssa CaitlynAlyssa 22-25, F 1 Response Mar 25, 2013

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    Living With Monilethrix

    I am 24.. soon to be 25. I have monilethrix as well. My moms side of the family does. We all vary in degrees of how bad it is. Due to surgeries i've had and major stress, it has gotten worse. It's a bummer to be in the beauty industry and knowing one day, the hair on my head...
    fingerblinger fingerblinger 22-25, F 1 Response Sep 17, 2012

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    I see that others have posted about this,

    but not much seems current. I am a 34 year old female. My father was the first to express the gene. My brother and I have what I consider "moderate" expression (since I can't find a good scientific source). My son has a severe expression. He's 3, and will probably never...
    kimber0423 kimber0423 36-40, F Apr 1, 2014

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    Related Experiences

    sorry if i end up rambling - but i have been holding things in for quite a while and need to vent.... keep in mind that i only knew a small portion of the problems before we were...
    naiveUSMCvet naiveUSMCvet 46-50, M 1 Response 51 mins ago

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    I came back to EP with the thought of not relapsing again into the things I thought I left behind me. Somehow I would rather not share this story but I also feel like I need to be...
    Kimmy159 Kimmy159 22-25, F 1 hr ago

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    Authorship of The Bible The Bible is unique inasmuch as it maintains consistency, harmony, and continuity from cover to cover. It has one message from Genesis to Revelation...
    churinga churinga 70+, M 1 Response 2 hrs ago

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    With all do respect to people of any affliction physical or mental, sometimes a chat group is really just a chat group. EP is not a hallowed hall where only like minds can gather...
    NaturallyKurious NaturallyKurious 26-30, M 2 hrs ago

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    1. To Graduate in High School 2. To get 4 years of college to study laws. 3. If not, I can be a Teacher, a Pediatrician, or a Nun. 4.To pass the Bar Exams 5. To be Great lawyer. 6...
    CharlenneDelaCruz CharlenneDelaCruz 16-17, F 3 hrs ago

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    Sadly I ran out of my daily anxiety medication and won't be able to have it refilled until Tuesday. I haven't taken it since yesterday morning and I'm already getting chest pains...
    Hipstercatlover Hipstercatlover 16-17, F 3 Responses 4 hrs ago

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    I have been thinking "I'm in love" but really all these years (20+) it turns out that I've only had "LO"s". How could I mistake the anxiety associated with unrequited love and the...
    ClazzyGalXO ClazzyGalXO 31-35, F 1 Response 4 hrs ago

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    I only learned about this term a few months ago. Honestly it felt good to have it named, as its been the largest single determining influence overall in my life as I look back...
    zenn7 zenn7 56-60, M 5 hrs ago

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    I met this girl on here in August...we're pretty much best friendsand. it's so amazing to to have her in my life and i can't imagine going on without ger by my side every day...
    DaveEatsToast DaveEatsToast 16-17, M 5 hrs ago

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    I have Cerebral Palsy and I can't walk, but I crawl and I had to pee so I got off my bed so I could crawl to the restroom and tell my step mom because my dad's not home and I...
    HELLONWHEELZZ HELLONWHEELZZ 18-21, F 5 hrs ago

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    My long distance girlfriend is coming to visit in a few weeks. She'll be here Friday night through Sunday evening. We met at a youth group convention and haven't seen each other...
    marchdan marchdan 16-17, M 6 hrs ago

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    have always felt I want to have no arms I want them cut off how can I find some one to do this for me so I have no arms I want my arms taken of
    hopetodie hopetodie 51-55, M 6 hrs ago

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    have always felt I want to have no arms I want them cut off how can I find some one to do this for me
    hopetodie hopetodie 51-55, M 6 hrs ago

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    I have a parent who complains about everything. They don't even have to hint or say it...I get it okay. You're starting to regret having me and my siblings...with two other people...
    Cloe89 Cloe89 22-25, F 6 hrs ago

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    People standing in the middle of the path blocking everyone from getting past TV adverts... Aarrgghh Someone reading my newspaper before I have had a chance to read it People...
    wonderofwonders1 wonderofwonders1 41-45, F 2 Responses 6 hrs ago

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    I have done this once, and would a second time too.
    Straightcdingmale Straightcdingmale 46-50, M 1 Response 6 hrs ago

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    Wow! What an understatement. My home life as a child was unbearable. I want you to understand right away. I am not looking for sympathy. I have to deal with all of this...
    aplacetohide aplacetohide 31-35, F 6 hrs ago

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    Being strong doesn't mean that you never break! Being strong means that even if you break into a million pieces, you still have the courage to pick those pieces up, put them back...
    crazydayzagain crazydayzagain 22-25, F 6 hrs ago

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    So ahh... This is weird, but I did the math... If every person who likes-loves me romantically gave me $20 a week, I would have over 19 thousand a year. Weird.... That's never...
    ArriannaKatsumi ArriannaKatsumi 18-21, F 1 Response 7 hrs ago

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    Anybody feel like having phone fun? I am in the United States but I have a way to make international calls
    blindbtmboy blindbtmboy 16-17, M 1 Response 7 hrs ago

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    I have nothing to say. Believe me you dont want to get me started.
    Drreefer Drreefer 22-25 7 hrs ago

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    I dreamt of my ex guy friend. Again. Two weeks in a row. First , I dreamt of him with all my classmates, he first ignored me but then after I while he whispered and complimented...
    AmiraElVampira AmiraElVampira 13-15, F 7 hrs ago

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    I have so many regrets, that haunted me from 6 years before. I regret what i've done in the past 6-8years before. I was too immature and naive, there was nobody to guide me about...
    rainyrainsky rainyrainsky 26-30, F 8 hrs ago

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    I am lucky to have a friend in Sil who makes me smile. Whose words help me forget the bad just in a while Though she lives far, far away in a distant land She really has something...
    uniqueguy91 uniqueguy91 22-25, M 1 Response 8 hrs ago

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    Hm, I'm just thinking how by the age 40 I probably won't have kids let alone a husband. At the very least, I want a family of some sort, or support. Friendships mean nothing when...
    surfaceme surfaceme 70+ 8 hrs ago

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    It's from PTSD. I sometimes sleep during the day, sometimes the night. I sometimes sleep on and off during the day, sometimes on and off during the night. I sometimes am awake all...
    loveismyfriend loveismyfriend 36-40, F 2 Responses 9 hrs ago

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    Have a great lay... Go somewhere nice and feel good ..
    Mystic2202 Mystic2202 22-25, F 1 Response 9 hrs ago

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    i have to say that i have never been so happy and the reason for that is almost 5 months ago i found my other have my sweet amazing jess i love her more and more each day even with...
    jamieb1212 jamieb1212 18-21, M 1 Response 9 hrs ago

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    I miss my late wife! Being without her fills me with sadness! It's so difficult trying to get used to living without her! If it wasn't for all the support I get from my family and...
    Heartheocean Heartheocean 61-65, M 2 Responses 9 hrs ago

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    I was walking out of ToysRus with my mom and I looked to the right and in the grass next to the parking lot I saw a cage so I walked over to it and saw a weasel in it, it had a...
    CaptainDragoness CaptainDragoness 16-17, F 1 Response 9 hrs ago

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    a man will cheat for two reasons only,1 he feels like doing it and 2, there is always someone out there who facilitates a cheating man. no one is born monogamous but no one is born...
    deejaygirl deejaygirl 26-30, F 3 Responses 10 hrs ago

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    (Day Forty one) - Blizzards peak...
    Swordofthesamurai Swordofthesamurai 22-25, M 10 hrs ago

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    So I've been dating this guy for a bit over a month because he has a video of me giving head job to some guy and we'll after all this time dating we have had sex few times and at...
    Dweetcandy Dweetcandy 13-15, F 2 Responses 10 hrs ago

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    It's been awhile since I've posted anything. Things are going good on my end. Got my funding for my diapers from the Government, Had the wife's favorite cousin and her husband...
    levy1 levy1 26-30, M 3 Responses 10 hrs ago

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    she is my first love i have met others before and after her but never got attached to any one same way I did with my first. we broken up like two month ago but the problem is i see...
    comlpicatedguy comlpicatedguy 18-21, M 1 Response 11 hrs ago

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