I Have Mononeuritis Multiplex

A Mononeuritis Multiplex anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mononeuritis Multiplex. You're not alone. 8 People

    Hi! I'm Julie-nice to meet you!

    I have Mononeuritis Multiplex from vasculitis from Systemic Lupus. I have cranial nerve entrapments (TN, recurring bells palsy & temporal arteritis), and carpal tunnel on right, tarsal in both feet, ulnar right arm, radial left and pareanal entrapment right leg/foot. Also...
    jujubeee714 jujubeee714
    56-60, F
    3 Responses Feb 19, 2014

    My Mn Story by Julie

    My MN started as tingling in my arms and my face. Then i noticed my right side having problems feeling it felt numb. My face also had tingling. I started having pain shoot through my arms and legs. I feel alone everyone looks at me like i made up this diagnosis, i am having a...
    JAnnY3676 JAnnY3676
    3 Responses Sep 20, 2012

    Mononeuritis Experience From Sweden

     Hello I had MN  a couple of years back. My problems was facial palsy (Bells Palsy), Could not close my left eye, pain in left foot (under the foot) and a weak left hand. What really did it for me was high doses of antibodies. I had a lot of stereoids without results...
    Fredrik59 Fredrik59
    Jul 26, 2009

    Mononeuritis Multiplex

    I've got mononeuritis multiplex resulting from necrotizing vasculitis. I have peripheral neuropathy and probably plantar fasciitis that podiatrists can't help.  I'm maxed out on 3200 mg. of neurontin per day and am stll miserable.  My feet rule my day.  I can't...
    Augie42 Augie42
    3 Responses Jul 4, 2009

    I have MNM. It started 4 years ago.

    I woke up one morning and my right hand was severely buckled under. After wearing a brace for about 6 months it had finally loosened itself up and eventually I was brace free and "back to normal". Then 2013 it struck my right foot appearing to be "Foot Drop". After countless...
    BeachBumChef BeachBumChef
    56-60, M
    Jul 22, 2014
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