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I Have Moyamoya Disease

Moyamoya Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Moyamoya Disease. You're not alone. 8 People

    My Daughter

    I don't actually have Moyamoya disease, however, I am a Mom to an 18 year old girl who does.  My daughter suffered from a major stroke in July, and is recovering beautifully.  I had no idea she had this disease, how could I really?  It's not like you take your baby...
    BearsRule BearsRule 36-40, F 5 Responses Jan 20, 2010

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    I Have Moyamoya...

    On Sunday, November 1, 2009 I woke up with a slightly heavy left arm and slightly clumsy fingers. I could still use and move them, but it just took a little extra effort. I had no pain, but something just wasn't right. After being up a few hours I decided to go take a...
    momma2miracles momma2miracles 36-40, F 13 Responses Jun 14, 2010

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    Moyamoya Was My Christmas Present

    December 24, 2010 is a day I shall never forget.  While out doing my last minute Christmas shopping I found myself unable to talk.  I could not talk to the store clerk I started to have to write things down.  Instead of going to the emergency room immediately.  I sent a...
    needitsold needitsold 36-40 2 Responses Mar 11, 2011

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    Related Experiences

    I have a family history of cataracts, glaucoma and blindness on my maternal side. I just went to the eye doctor this past Saturday and I've been referred to a eye specialist for a...
    lemurgirl09 lemurgirl09 26-30, F 2 days ago

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    I was diagnosed with celiac when I was 4 and it's been 11 years. I've never had a pop tart or donut or Oreo. I want to know what they taste like. I'm highly allergic, so I would...
    Madscheers512 Madscheers512 13-15 1 Response Jan 6

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    Everyday is worse than the last. Ever second worse with each breath. No one is here, I am completely alone. My mother is in love with being intoxicated with alcohol and her...
    xmoonxchildx xmoonxchildx 13-15, F 1 Response Jan 9

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    An actual experience I had: A friend of mine who recently returned home from the army confided in me that he had PTSD. I helped him through some tough days, teaching him better...
    MsBree01 MsBree01 22-25, F 2 Responses Dec 29, 2014

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    Hi there. I think I have this disease. I am 16 years old. I know you all are like 30s-40s but I am unusual apparently lol. I have had these symptoms since I was 11. I get hives or...
    cailynrenee cailynrenee 16-17, F 1 Response Jan 13

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    A cure for Parkinson's Disease? Every once in a while I get excited about some research that is being done as it relates to Parkinson's Disease. I'm not stupid, I know how these...
    LifeinWoodinville LifeinWoodinville 41-45, M 6 Responses Jan 5

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    I decided to put a whole bunch of my weight gaining life into this one experience. It's really long, but if you want to read it, do so :) My scales are sadly broken. The last...
    FlabPack FlabPack 26-30, M 2 Responses Jan 4

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    I've been sick since I was 11 years old ....I would tell my mom I had hot flashes.....I was also very depressed at age 12..lost interest in school grade dropped like a sinking boat...
    sparkle2015 sparkle2015 18-21, F 5 days ago

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    I was diagnosed with Grover's disease about 3 years ago. I tried many things but eventually found a solution that worked for me. I asked my dermatologist to prescribe UV light...
    nocompromise nocompromise 41-45, M Jan 4

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    about 3 years ago i was diagnosed with tspk... i went to the eye doctor thinking i had pink eye really bad, but knew it was something else. my eyes were completely bloodshot (i...
    Nebraskagirl21 Nebraskagirl21 22-25, F Jan 8

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    Yesterday my 9 month old baby was diagnosed with hirschsprungs disease. His pullthrough is booked for thursday
    jenmitton jenmitton 22-25 1 day ago

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    Unintentionally. I just want to sit on the edge of a building. I've pretty much isolated myself from others. I don't want to hurt anyone anymore. I'm a disease.
    nostalgickittens nostalgickittens 16-17, F Dec 29, 2014

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    Your skin is what people see first, so be sure to make a great impression by taking care of it. The advice in this article will help you take better care of your skin and make...
    waypuma73 waypuma73 31-35, M 1 Response Jan 1

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    Its so crazy, 2 days ago I was "normal , " now I'm in a freaking herpes support group with other people "like me" smh happy birthday (no offence to anyone, I'm still in shock) I'm...
    Sharudy Sharudy 18-21, F 5 Responses Jan 2

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    Alright I know I shouldn't do this but I'll google "would you date someone with herpes" and the responses are awful. When I search something like "would you date someone with...
    extraordinarygirlll extraordinarygirlll 18-21, F 4 Responses Jan 2

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    "Well, ****" is what I thought when my doctor called today telling me that i had contracted herpes. Its kinda hard to articulate my emotions right now. I'm only 15, go to prep...
    gloom130 gloom130 13-15, M Jan 3

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    I think I may have caught some kind of weird disease from my dog, an Irish Setter. I woke up in this morning, and while still lying in bed, I felt my throat muscles beginning to...
    suzzieQue suzzieQue 18-21, F 6 Responses Jan 4

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    I made the stupid mistake of sleeping with a guy I knew was a manwhore. He was such a smooth talker and convinced me it was safe not to use a condom. About a month later I was in...
    Mandyrox1989 Mandyrox1989 22-25, F 4 Responses Jan 4

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    hi im hanna 17 yrs.old and having difficulty in sleeping because of the things that makes me anxious like ive read an article about dementia and then i feel exactly the symptoms...
    hannie16 hannie16 16-17, F Jan 5

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    Hi everyone, it's nice to be able to vent and talk about this ongoing struggle that I gave everyday with PCOS. I was diagnosed when I was 15 years old, I am now 20. During the past...
    vnicole vnicole 18-21, F 1 Response Jan 6

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    I find the true cause of reaction called Morgellons. Morgellons is not a disease it is like a allergy a reaction defensive of our body . After 230 days from that I still fight with...
    camiga camiga 51-55, M Jan 6

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    I wrote another post awhile ago, but I wanted to take time to remember another friend I used to have. I lost touch with that whole circle 10 years ago, so I never heard any...
    SnowCrow SnowCrow 31-35, M Jan 6

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    Hi I am a 26 year old male just got diagnosed with GP, don't actually know what level I am on at the moment so as u have assumed my pain is severe and shows its head anytime it...
    AoKBawal AoKBawal 36-40, M Jan 6

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    I was just diagnose with pcos a few weeks ago. it has been tough. the pain at times has been unbearable.i haven't had the hair loss but have been developing hair on other parts...
    biancaSgary biancaSgary 22-25, F 2 Responses Jan 6

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    Looking to fill a void is like diving to the depths of the ocean in search of air... It's a disease. Defined as hope...
    HotMessExpress101 HotMessExpress101 31-35, F 3 Responses Jan 6

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    Uncle Adam There are a lot of alcoholics in my family, including my father, now sober. But the first in our family to be recognised for this disease was my uncle, Adam. He was...
    PersonalGenesis PersonalGenesis 22-25, F Jan 7

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    I just found out I have Alopecia Areata and to say I'm discouraged is an understatement. I've been getting steroid shots, but in the process I've just been getting more and more...
    megdubb megdubb 18-21, F 1 Response Jan 7

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    I visited the ENT doctor for my chief complain of right ear irritation but it turned out that the doctor noticed my neck! yes it is becoming bigger as I noticed it too however I...
    simplygm simplygm 26-30, F 1 Response Jan 7

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    I cannot begin to express how much I hate living with pcos. I've come to hate my body because of this stupid ******* disease. Not to mention the meds make me incredibly nauseous...
    heyscubby heyscubby 18-21, F 2 Responses Jan 8

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    I've been type 1 diabetic since I was 9. I was the only child diabetic on both sides of my family. We thought I'd just gotten the flu or maybe some other virus. I dropped 10 lbs in...
    SheSaidx SheSaidx 22-25, F Jan 9

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    I was dx in sept 2014. I am finally not active. I am on MTX, imuran, prednisone, gabapentin, lisinopril, flexerol, tramadol, aspirin, ca, vit d, folic acid I think I hitosy of them...
    roxyvolcom77 roxyvolcom77 31-35, F Jan 9

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    I woke up this morning with the random thought of my grandmothers death and that she doesn't have much time. Apparently the thought was not so random. My mother told me my...
    Destinyyy Destinyyy 16-17, F 1 Response Jan 12

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    I feel sometimes like I only exist to live to expectations and to be pushed around and hurt.. So why live? -.- I mean I don't want to die of a disease I just sometimes want to get...
    PsychologyNerd PsychologyNerd 13-15, F 4 Responses Jan 13

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    What you do, always comes with a consequence. Good or bad. ------------------------------- So here's a 100% true story, that is currently going on in my life. I won't say names...
    HannahMarieX HannahMarieX 18-21 Jan 13

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    Well, it just became official. With a blood test proving I am insulin resistant, my Ob/GYN diagnosed me with PCOS. I had suspected it all along: the severe irregularity, constant...
    bronzedout bronzedout 18-21, F 3 Responses Jan 14

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    Don't get me wrong, l believe Jesus existed, although, like us all l have no proof either way. But, l just can't get my head around the notion that 'to be saved', l must accept...
    MistyMoon1 MistyMoon1 41-45, F 3 Responses Jan 15

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    It's funny knowing something isn't the way you are supposed to think but you can't help it. I look at my left leg and know that the lower part of it isn't meant to be there. it...
    sinistero sinistero 31-35, M Jan 15

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    I ******* hate this disease. Anyone here who's opinion is difficult?
    DaveShaved DaveShaved 46-50, M Jan 16

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    I was finally diagnosed properly fifteen years ago after years of trying to deal with individual symptoms. In some ways it was a relief, but I also had to accept that I had a...
    padraig17325 padraig17325 51-55, M Jan 16

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    I'd already had one surgery on my lower back, a discectomy. Years later I got degenerative disc disease. My disc was going going gone. I had two choices: have the back fused...
    steverick steverick 56-60, M 1 Response Jan 16

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    Is there anyone who have thyroid problem? Doctors say that I have thyroid. They have asked me for blood tests and CT scan so he may examine me better. Is there any other person...
    faisal6309 faisal6309 22-25, M 2 Responses Jan 17

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    After I quit smoking began to show irritation on my skin and sores interesting. This happened about a year and a half after that date. I initially blamed nicotine. It was not her...
    camiga camiga 51-55, M Jan 17

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    I Was diagnosed in 4/2014 after becoming symptomatic in NOVEMBER, 2013. Symptoms included blisters on my arms, tightness in my arms and legs, inability to close fists, then...
    18heater45 18heater45 66-70, M