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I Have Moyamoya Disease

Moyamoya Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Moyamoya Disease. You're not alone. 8 People

    Moyamoya Was My Christmas Present

    December 24, 2010 is a day I shall never forget.  While out doing my last minute Christmas shopping I found myself unable to talk.  I could not talk to the store clerk I started to have to write things down.  Instead of going to the emergency room immediately.  I sent a...
    needitsold needitsold 36-40 2 Responses Mar 11, 2011

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    My Daughter

    I don't actually have Moyamoya disease, however, I am a Mom to an 18 year old girl who does.  My daughter suffered from a major stroke in July, and is recovering beautifully.  I had no idea she had this disease, how could I really?  It's not like you take your baby...
    BearsRule BearsRule 36-40, F 5 Responses Jan 20, 2010

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    I Have Moyamoya...

    On Sunday, November 1, 2009 I woke up with a slightly heavy left arm and slightly clumsy fingers. I could still use and move them, but it just took a little extra effort. I had no pain, but something just wasn't right. After being up a few hours I decided to go take a...
    momma2miracles momma2miracles 36-40, F 13 Responses Jun 14, 2010

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    Related Experiences

    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 Response 1 day ago

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    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 day ago

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    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 day ago

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    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 day ago

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    I don't have Crohn's disease. But I am truly sorry that any of you have to go through it. My boyfriend has had it since a child. However he has been in remission for most of the...
    Sunshinemms Sunshinemms 22-25, F 1 Response 2 days ago

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    I've had Lyme Disease for a long time, but was only diagnosed two years ago. I also have EDS, which symptoms are a lot like Lyme. I am 23, on disability, in pain 24/7 and have so...
    alwaysfaithful13 alwaysfaithful13 22-25, F 2 days ago

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    I am a computer engineer. I know danger of messing with big computers. Careless insertion of a few unnecessary letters in a programming code can halt a customer's operation for...
    katsuobushi katsuobushi 36-40, M 1 Response 2 days ago

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    I have end stage kidney failure. I only had one good kidney when I was born. The other was smaller and failed first. The thing is I am on dialysis for the rest of my life. Do I...
    comfi comfi 51-55, M 3 days ago

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    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 4 days ago

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    I have this disease which causes me to feel weak and without energy most of the time. I've always been kind of small for my age but I am also skinny and not very strong physically...
    laurenholliday laurenholliday 13-15, F 1 Response 5 days ago

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    Everyday I feel terrible because anxiety and fears are preventing me to enjoy my life to the fullest. 2 years ago my life changes because of this anxiety that I don't know how did...
    Nckoanglo Nckoanglo 18-21, M 5 days ago

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    My son had two malrotations before they found he had Hirschsprungs Disease. The first was at birth and the second was probably around 4-5 months old. We thought we were going to...
    tilaterese tilaterese 26-30, F 6 days ago

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    I was born with ischemic heart disease
    MrsButterfly90 MrsButterfly90 22-25, F a week ago

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    OMG other people .. that have ischemic heart disease I didn't think this was possible
    MrsButterfly90 MrsButterfly90 22-25, F a week ago

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    I've started experiencing regular chest pains but my diet is good and I do get moderate exercise every week.At the doctors office, my vital signs were normal though, with somewhat...
    shaandar shaandar 31-35, F 1 Response Jul 23

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    About a month ago, so to say from one day of another I came down with MG. At first I noted that I couldn't swallow very well. I also had a lot of salavia en my mouth. My wife...
    01Ledor 01Ledor 66-70, M Jul 23

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    Glandular fever is horrific. I have had it for a year. In this year I could barely stay awake and it nearly cost me my degree. As a result of having had previous autoimmune...
    cathymcg123 cathymcg123 18-21, F Jul 21

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    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F Jul 21

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    I have severe social anxiety, degenerative disc disease, spinal stenosis, nerve inpengment. I am losing my ability to walk. I don't trust people. what's worst, I'm engaged to a...
    PrincessMouse86 PrincessMouse86 26-30, F Jul 20

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    A week ago I had my appendix out with and appendectomy. Last Thursday, I was told I have cancer in my appendix. I was also told that it is a very very rare cancer. Of all colon...
    emoenjr emoenjr 46-50, M 1 Response Jul 19

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    Hi.. I was recently diagnosed with hashimoto's a few months ago. My mom just got diagnosed and so did my 12 year old sister. I have been battling depression, bipolar, anxiety...
    twiztid187 twiztid187 22-25, F Jul 18

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    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

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    Granulomatosis with polyangiitis (GPA) or formerly known as Wegener's Granulomatosis. It started...ooooooooohhhh I really duno. probably SOMEWHERE between or after December 2014...
    Juls4 Juls4 18-21, F Jul 18

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    I laughed about this for the rest of the day. In the hospital I work in, when a patient has an infectious disease or a MRSA infection their door is marked with a yellow sheet with...
    Abayoumi Abayoumi 26-30, F Jul 17

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    Ranjan Das, CEO and MD of SAP-Indian subcontinent died after a massive cardiac arrest in Mumbai recently. One of the youngest CEOs, he was only 42. What killed Ranjan Das? He was...
    bvaghela bvaghela 26-30, M 1 Response Jul 17

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    Well, ****. I had a solid 4 posts ready to be written (plus a lot of the other usual 2-sentence nonsensical stuff)... It seems I can't write in public places. Performance anxiety...
    ambivalentFriability ambivalentFriability 18-21 Jul 16

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    I am eighteen and still a virgin. Yes, in case you're wondering, I am waiting for the right person to give it to. I don't mean that I will wait for marriage (I don't really follow...
    sunatdawn214 sunatdawn214 18-21, F 8 Responses Jul 15

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    I'm still getting bumps and I've had this disease for twenty years. I've found that time in the sun and swimming are helpful. It's always going to be hard but try not to let it...
    StillSexy StillSexy 36-40, F 1 Response Jul 15

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    I am about to be seventeen in August and I still haven't had my surgery. Most patient's with this problem get there final operation done by the time they are ten or eleven years...
    TruthIsTheBest TruthIsTheBest 16-17 1 Response Jul 14

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    I am 1 in a million! Well 1.8 actually, A few years ago I was diagnosed with a rare disease called pigmented villonodular synovitis (PVNS). It affected my right knee. It's an...
    Birabian Birabian 26-30, F 1 Response Jul 14

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    For those of you who have just been diagnosed, or are still having a hard time dealing with this disease, I just want to take a moment to say "You CAN get through this!" When I...
    lil0miss0sunshine lil0miss0sunshine 22-25, F 2 Responses Jul 14

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    I have a autoimmune chronic illness called Crohn's Disease. It's been really hard for me to adjust, because I was diagnosed this year. It feels like a part of me is gone replaced...
    deleted deleted 26-30 1 Response Jul 13

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    I can't help but to feel angry at times because of the fact my daughters father who I was with for two years gave me this ****** up disease and not only that he's treating me as if...
    AhJp15 AhJp15 22-25, F 1 Response Jul 13

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    His Last Gift My orange kitty, whom I will call K here, died after having had him for 11 years last year on June 9th. It's only now that I hope to be able to write about him...
    bitabyss bitabyss 46-50, M 3 Responses Jul 12

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    I can deal with the dietary restraints, but haven't quite figured out the social part...I have been to a few parties and restaurants, and when I ask the question about how...
    fun4us2b fun4us2b 51-55, M 2 Responses Jul 11

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    How HIV Children Are Injured And Kill By The Actions Of The City Of Salinas, Ca. The Salinas Valley is one of the largest agricultural centers in the USA and the city of...
    marcthegiantkiller marcthegiantkiller 56-60, M Jul 11

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    In 1989 I was a home designer-builder. After working in home construction for over twenty years I woke one morning and something went wrong. When I got out of bed and stood up my...
    boldtimer boldtimer 66-70, M 1 Response Jul 11

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