I Have Muckle-wells Syndrome

A Muckle-Wells Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muckle-Wells Syndrome. You're not alone.

    I can't tell if I'm having one of those rare periods/moments in life where my own feelings are so heightened/strong that I can't keep myself from practically being "bi polar" with...
    kk1874 kk1874
    31-35, F
    Apr 21
    Hey guys I'm in a huge rut at the moment and I feel like complete crap. I've fallen in love with a girl I met online on a depression support app. She's from the US and I'm from the...
    DeanMart1n DeanMart1n
    18-21, M
    3 Responses Apr 21
    So here we are, Ep is about to close. It's been nice talking to some of you, finding out there was someone else with the same issues. I wish you all the best :)
    vanetuli vanetuli
    18-21, F
    Apr 21
    i have wanted to be pregnant since before i can remember i was diagnosed polycystic ovarian syndrome at age 11 and it suck because i have been trying for years and every one around...
    Kpee1997 Kpee1997
    18-21, F
    1 Response Apr 20
    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    A description of today's episode: I went home from work vomiting today. This time I was actually driving and puking at one point on my way home. Thanks to 'Murica for plastic...
    Doomflower Doomflower
    31-35, F
    3 Responses Apr 16
    Mama why: The tears in my eyes are falling down My face as you read this you'll cry too because it's true in my life I had try to understand mom Why you hurt me inside Why you...
    LucidxxShivery LucidxxShivery
    26-30, F
    2 Responses Apr 15
    How walking your dog can change your life One of the best activities you can do if you are a pet owner living in an apartment complex, is to take your dog out for a “pack walk...
    karunakat78 karunakat78
    36-40, F
    Apr 14
    Hello I'm Michelle but call me kris.I am from the USA.I suffer from bipolar as well as anxiety.
    deleted deleted
    26-30
    2 Responses Apr 14
    I've been through a blender, you could say. Age 2, I'm diagnosed with a genetic eye condition that eats away at my vision. Age 6, I'm diagnosed with mild Asperger's Syndrome. Age...
    AsYetNameless AsYetNameless
    13-15, T
    6 Responses Apr 14
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    i really like children, their mindset and the way they see the world is something that i find to be pretty damn fascinating, simply because it's something ONLY children have, i...
    NitorTnT NitorTnT
    26-30, M
    1 Response Apr 13
    My brother-in-law and sister introduced the show to me and my stepdad and oh my god! Supernatural has a competition!! Every time my stepdad isnt watching the arrow on Netflix, I'm...
    odessa94 odessa94
    18-21, T
    Apr 12
    I'm pretty sure being aspie has.it has its ups and downs.It messes up relationships so badly for me.
    deleted deleted
    26-30
    3 Responses Apr 11
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    So... I make straight A's, never get in trouble, win school awards and awards in general. I'm on a scholarship team and I'm eligible for many other ones... I do all the house work...
    deleted deleted
    26-30
    1 Response Apr 9
    I'm so hurt that I can't even read all the experiences because my tears are in the way
    deleted deleted
    26-30
    2 Responses Apr 8
    Eros' [?] That bruise you left on my chest is the best proof that you too frothed of loneliness... [?] The sea is like love: you get in and you never know whether you'll come out...
    ScissorhandsFingeredMe ScissorhandsFingeredMe
    16-17, F
    Apr 8
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    Looking for other survivors of S.S. for support, as I work thru this Big Bowl of ****. Am going thru integration therapy and deal with chronic PTSD as a result of the years of...
    Rhonda87 Rhonda87
    51-55, F
    1 Response Apr 6
    Ran across this site while looking for some information & feel like it would be worth it to at least put 1 post out there & say hi. Basically, I am 38 single mom of a teenager but...
    meowkittys2002 meowkittys2002
    36-40, F
    7 Responses Apr 6
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
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