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I Have Muckle-wells Syndrome

A Muckle-Wells Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muckle-Wells Syndrome. You're not alone.

    I have Asperger's Syndrome which is a high functioning form of autism. I got diagnosed at 7, but my parents told me I was BORN with it. I guess I was born abnormal after all. I...
    maialove maialove 22-25, F 2 Responses 23 hrs ago

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    I found this image about this anime "Parasite" or "Parasyte", I think it's called both ways, I just end watching the anime and I remember thinking about the parasites like Asperger...
    SusAssasins SusAssasins 16-17, F Apr 26

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M 3 days ago

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    I had a stroke March 2nd. I was in the hospital from March 2-March 25. Then I was in a rehab facility till April 19th. I started feeling this burning ,stabbing pain in my right...
    moonstar312 moonstar312 36-40, F 1 Response Apr 26

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    In the past 64 years since I contracted polio, nothing has been discovered to cure the later effects of polio, but Gabapentin for nerve pain (300 mg.) really helps me sleep at...
    julesgarden julesgarden 61-65 Apr 29

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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F Apr 30

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response May 1

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 8 Responses May 11

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    I don't understand eye contact or facial expression I remember Making friends with someone once we talked for a while and eventually the topic somehow went into disability's, When...
    Autumnflowers Autumnflowers 18-21, F 8 Responses May 13

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    I often use my imagination in a way to create or recreate the reality to better understand some situations or to comfort my insecurities when needed. Sometimes I find myself into...
    RichardAndon RichardAndon 22-25, M May 16

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    Nowadays I blend in with society pretty well, but in kinder garden my symptoms were showing a lot and I got humiliated over and over by the sixth graders telling me "you should do...
    ortwin ortwin 16-17, M 1 Response May 17

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    It's the mild variant which just means people don't realize that I actually have a problem and thus hate me. It causes a lot of problems including with social interaction, and...
    omutsukimi omutsukimi 18-21, M 3 Responses 6 days ago

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    Hi this is my first time on here, just cane on to get some peoples real experiences. I'm sick of reading threw endless pages of things I don't understand with all the long words...
    pinklady2989 pinklady2989 22-25, F 1 day ago

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    I had a terrible experience the day before i had emergency surgery...i woke up one morning not being able to get out of bed because of the pain so i called an ambulance was taken...
    jszymecki1234 jszymecki1234 31-35, F 11 hrs ago

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    Well, I'm actually diagnosed....
    AudioTravylerRavenwolf AudioTravylerRavenwolf 13-15, F 1 Response Apr 27

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F May 1

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    When I was a kid I never felt the same as any of my peers. They were always too loud, too rude, or too confusing for me to want to interact with. Most would bully me for my...
    Wandering2 Wandering2 18-21, F 1 Response May 4

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    my Dr is trying to eliminate stuff before he diagnosis me with cfs. he recently did a mono test and drug test (which was my psychiatrist idea). I wonder what he'll try next...
    kareenmarie kareenmarie 36-40, F 1 Response May 4

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    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
    teeteebaby teeteebaby 31-35, F May 12

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    I started with pain in right shoulder blade on April 2, 2015 and diagnosed on May 15, 2015 with PTS. The pain is severe on the right arm, elbow, forearm, hand and fingers...
    hankvankat hankvankat 56-60, M 1 Response a week ago

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    I'm a bit hesitant to add this to my experiences as I don't know for sure if I suffer from it, but due to my habit of checking the internet whenever something is not right...
    RealLifePerson RealLifePerson 26-30, M 1 Response 4 days ago

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    If the world was perfect, everyone would have Aromatase Excess Syndrome. It is a genetic disorder that feminizes all men and it is always passed onto the child. However, there are...
    ResidentGoddessAstraea ResidentGoddessAstraea 18-21 3 Responses May 6

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    Ok so I read my palms for fun but basically I have really weird palms ...because if u can see my head and heart lines are connected...I just have one line instead of 2... I looked...
    ERMAHGERD1 ERMAHGERD1 22-25, F 1 Response May 10

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    I constantly have dreams that I have wings on my back and I fly all over the place. When I wake up I feep like I have phantom limb syndrome because I can still feel them even...
    QuanMarquis QuanMarquis 22-25, M 1 Response May 17

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    (I actually don't "have" it anymore, as I'd be well-over dead.) I had serotonin syndrome from 2011-2013. I confused it with mania, and I had never had a seizure before, so I didn...
    grindhound grindhound 22-25, T May 12

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    I'm 13 and have known that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are...
    Incorrect13 Incorrect13 13-15, F 1 Response 6 days ago

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    Colby like the cheese ๐Ÿ˜ Wells like the Fargo๐Ÿ’ฐ #milkinbank
    Cwells65 Cwells65 18-21, M Apr 26

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    I've been diagnosed with SMA syndrome for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When...
    jfletcher jfletcher 22-25, F Apr 26

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    I am in love with the man who sexually abused me for 3 years. it started when I was 13. I got extremely close to him. I looked up to him and I could tell him anything. He was my...
    jessical95 jessical95 18-21, F 1 Response Apr 28

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    I invite everyone that has Poland Syndrome to visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response May 1

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    Hi! I'm 17 years old, and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often...
    musiclover48 musiclover48 16-17, F 1 Response May 1

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    That is one thing I really don't like about the A.D.D. I have. It makes typing Stories here on E.P. more time-consuming than it really needs to be. I mean, I may start out every...
    Jugemu Jugemu 31-35, M 2 Responses May 7

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    I have Crest Syndrome, i'm only 20 years old, I've known about it for about 2 years now. I'm currently 14 weeks and 5 days pregnant. Just curious to know how everyone deals with...
    taylaelise taylaelise 18-21, F May 7

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    I am so glad I stumbled on this category of posts, because reading of other people's similar experiences is somehow helpful to me, although I'm sorry for all of your troubles. I...
    2323Anonymous 2323Anonymous 51-55, F May 11

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    Hi everyone, my name is Lindee and I am now 24-years-old going on my 6th year of having POTS syndrome. Aside from the dizzy spells, fatigue, anxiety, brain fog, confusion and...
    shultm1 shultm1 22-25, F May 15

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    โŒ‚ Home Debbie Avatar Debbie โš™ Forgive my spelling errors (was very hard to write) Also forgive how long winded this is, but fellow FM sufferers can relate to how...
    debbie913 debbie913 31-35, F 1 Response Apr 26

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    It started off with a "cold" I caught from my 14 years daughter. I had gone to the hospital and they treated it like the flu. After fainting once in the shower and laying around...
    jenniejennjen jenniejennjen 36-40, F 1 Response Apr 28

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    I've had a dozen or so minor concussions...you know when you take a shot that makes everything fuzzy, gives you vertigo, and makes you disoriented for a couple of days...but the...
    CainMarko CainMarko 26-30, M Apr 28

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