Post

I Have Muenke Syndrome

A Muenke Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muenke Syndrome. You're not alone.

    I don't think I have pica syndrome or if it's just a nutrition deficiency but when I get a bath or something I sometimes have a chew on the sponge or something because I like the...
    lucymichelle lucymichelle 13-15, F 1 Response Sep 1

    Your Response

    Cancel
    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
    Pandasaurusrex Pandasaurusrex 18-21 Sep 2

    Your Response

    Cancel
    I might have to be homeschooled. My quality of life is gone as of now.
    december789 december789 16-17, F 1 hr ago

    Your Response

    Cancel
    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M Sep 11

    Your Response

    Cancel
    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response Aug 22

    Your Response

    Cancel
    My name is Kate. I live in Oscar, Louisiana. I started experiencing symptoms in November of 2012 while pitching in a softball game. It all started with right shoulder pain. I was...
    Katedebetaz Katedebetaz 13-15, F 2 Responses Aug 24

    Your Response

    Cancel
    Wow!!! For as long as I can remember I have had cravings for weird non-eatable objects. I remember exactly when it started, I was about three my Mom and Dad had this ugly, green...
    RedVinekiss RedVinekiss 31-35, F Sep 3

    Your Response

    Cancel
    I am not sure if I am diagnosed or not. My dr said I have tietze but he never did any real test on me. But the problems I am having are the same as with tietze, so that's who he...
    zerudahima zerudahima 22-25, F 2 Responses Sep 4

    Your Response

    Cancel
    Does anyone spike a fever when they have episodes?
    december789 december789 16-17, F Sep 5

    Your Response

    Cancel
    I call my self an oddity. There are so many strange things about me i keep most of them hidden. Like my Pica. I told my mom once but we are mexican (she doesn't belive in Pica...
    mashuthanna mashuthanna 22-25, F Sep 9

    Your Response

    Cancel
    For many years I have "craved" really-hot radishes. I buy up to 6 bunches per week, and somewhat panic when I run out before shopping day. I only stopped for a short time...
    Omma41 Omma41 70+, F Sep 10

    Your Response

    Cancel
    I HATE being so logical, but logically it's necessary and appropriate for people to think logically. See my problem? I don't love. Relationships make zero sense to me, I don't have...
    pianochick5254 pianochick5254 18-21, F a week ago

    Your Response

    Cancel
    Can anyone describe their chest pain with pots?
    cassidybute cassidybute 18-21, F 2 Responses Aug 22

    Your Response

    Cancel
    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

    Your Response

    Cancel
    I want to make a POTS group that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F Sep 10

    Your Response

    Cancel
    Just got compression stockings. Not feeling this at all, they're super tight
    december789 december789 16-17, F 1 Response Sep 12

    Your Response

    Cancel
    I've had it since I was 12. It's keeping me from performing everyday duties. Please pray for me.
    gratefulme gratefulme 22-25, F 5 days ago

    Your Response

    Cancel
    Horrible day. Getting put on the 504 plan for school. These are the days when I wanna give up because I'll never be normal
    december789 december789 16-17, F 2 Responses 3 days ago

    Your Response

    Cancel
    My first hint that something wasn't right was walking back to our cruise ship with my daughter. I was having a hard time walking and thought maybe it was sciatica. I barely made...
    NixEgirl NixEgirl 56-60 1 Response Sep 7

    Your Response

    Cancel
    I have pcos and I'm SO upset about it. I'm 20 years old & I ready wanna have kids cause I'm scared it will take me forever to get pregnant anyways! I'm not overweight but I'm so...
    lovebarbiex0 lovebarbiex0 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    I think I have Zollinger because it now takes me a LOT of Rabeprazole to suppress GERD symptoms
    RegHandford RegHandford 66-70, M 1 Response 3 hrs ago

    Your Response

    Cancel
    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses Sep 14

    Your Response

    Cancel
    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response Aug 24

    Your Response

    Cancel
    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

    Your Response

    Cancel
    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

    Your Response

    Cancel
    Hello my name is Mark Miller. I was diagnosed with Klinefelters Syndrome when I was 4 years old. My parents knew something was wrong when I could not speak words until I was 7...
    Mark7Miller Mark7Miller 18-21, M 1 Response Sep 3

    Your Response

    Cancel
    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

    Your Response

    Cancel
    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

    Your Response

    Cancel
    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response 4 days ago

    Your Response

    Cancel
    Asperger's Syndrome has caused me many problems regarding social behavior (what i should, and shouldn't do). I screwed up today, and am really upset about it. Hopefully you guys...
    TyphlosionWolf TyphlosionWolf 18-21, M 1 day ago

    Your Response

    Cancel
    So about three weeks ago I got this odd pain that went from my neck into my left scapula area. I went to the chiropractor and had an adjustment. Felt somewhat better for just a...
    ornursetab ornursetab 41-45, F 1 day ago

    Your Response

    Cancel
    After my first bad concussion I became much more susceptible to them. Post concussion syndrome is terrible.
    Kingshelman Kingshelman 31-35, M 2 Responses Aug 25

    Your Response

    Cancel
    I wish I could talk to my Aspie husband about the issues I have with our relationship, but as soon as I say anything, he gets so defensive and turns it back on me or becomes...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses Sep 9

    Your Response

    Cancel
    I love looking younger .. I'll be 43 in oct and it's helps with old man syndrome lol
    Justted Justted 41-45, M 4 days ago

    Your Response

    Cancel
    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    Deedle623 Deedle623 51-55, F 1 Response Aug 25

    Your Response

    Cancel
    Please help! Could someone clarify whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a...
    NattieC NattieC 22-25, F Aug 25

    Your Response

    Cancel
    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 Aug 30

    Your Response

    Cancel
    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

    Your Response

    Cancel
    My mom and I have WPW. She was diagnosed when she was in her 50's. She talked about having a racing heart with each of her pregnancies. After she was diagnosed with WPW, one of...
    milesdeb milesdeb 61-65 Sep 3

    Your Response

    Cancel
    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
    Platinumryan Platinumryan 16-17 Sep 4

    Your Response

    Cancel
    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

    Your Response

    Cancel
    After being diagnosed and being put on a bunch of new medications, I gained 30 lbs in a matter of months. I was even eating healthier and trying to work out as much as I could...
    Samm86 Samm86 18-21, F 1 Response Sep 5

    Your Response

    Cancel
    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

    Your Response

    Cancel
    That's what I thought when I read about Asperger's . I knew I had dyslexia. But I had difficulties that people with dyslexia don't have . So I thought co morbid . I wondered about...
    interlink2 interlink2 46-50, M Sep 7

    Your Response

    Cancel
    Okay so I've always had this thing where light makes me sneeze. If I've been inside all day long, say at work or home, and then I leave the house, the moment the sunlight hits my...
    HVVENEZIA HVVENEZIA 22-25, M 1 Response Sep 7

    Your Response

    Cancel
    DSPS probably began for me in my teenage years. I didn't know what it was and had no name for it. Like many other people's experience with DSPS, it was assumed that I was lazy or...
    softgreenhourglass softgreenhourglass 36-40, M 1 Response Sep 9

    Your Response

    Cancel