I Have Muenke Syndrome

A Muenke Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muenke Syndrome. You're not alone.

    So here we are, Ep is about to close. It's been nice talking to some of you, finding out there was someone else with the same issues. I wish you all the best :)
    vanetuli vanetuli
    18-21, F
    Apr 21
    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    Looking for other survivors of S.S. for support, as I work thru this Big Bowl of ****. Am going thru integration therapy and deal with chronic PTSD as a result of the years of...
    Rhonda87 Rhonda87
    51-55, F
    1 Response Apr 6
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    Hey.. I am pretty sure I have MPD.. I have all the symptoms and voices in my head telling me stuff and commenting on things I do. I am here for anyone who wants to talk about it.
    wolftherianGrace wolftherianGrace
    13-15, F
    Apr 4
    But not by my husband. Apparently my former boyfriend didn't like the fact that was not going to have sex until I was married. Oh well, there was someone better waiting around the...
    deleted deleted
    26-30
    3 Responses Apr 4
    I recently (this last year) gotten extremely sick and starting slipping at work. I was put on unpaid FMLA and can not draw unemployment and now our world in crumbling, I am 56...
    JiminCO JiminCO
    56-60, M
    1 Response Apr 4
    My daughter-in-law cannot stand me and I'm not crazy about her either. My son fell for her like a ton of bricks and even brought her from another country and her child from a...
    MCressy MCressy
    56-60, F
    Apr 4
    I am Alice. I fell down the rabbit hole and into a different world, a world that I could instantly recognise. And more importantly a world that recognised me as me. As who I am...
    Iamsasha Iamsasha
    18-21, F
    2 Responses Apr 4
    I have been involved in many interracial relationships since I was a teenager. I am a black woman and I love dating white men. I married my college sweetheart. We spent 15...
    blacksinglefemaleinusa blacksinglefemaleinusa
    36-40, F
    4 Responses Apr 4
    The time of taking a "pause" for EP grows steadily closer. It has been not only a place to post about our experiences but also a place to form friendships and lasting relationships...
    lasergraph lasergraph
    61-65, M
    3 Responses Apr 4
    So, I don't usually think that dreams have any meaning or weight to them, but lately I have been dreaming of loved ones that have passed away. Last week I dreamed that my...
    capitangarfio1975 capitangarfio1975
    36-40, M
    1 Response Apr 4
    2/2 I struggle a lot in math class. I am at an elementary school math level, i think and i am in the 9th grade. I struggled with history, science, English, etc but mainly Math and...
    deleted deleted
    26-30
    1 Response Apr 4
    I am really glad to have been able to not only talk to this person online for a year. But to grow closer to him while skyping, texting, calling, and playing video games. There were...
    TheBellaBubbles TheBellaBubbles
    18-21, F
    1 Response Apr 4
    Things have changed. I never thought I would ever in my life want to be with someone long term. But I now realize at some point in my future, I want to get married. Which is crazy...
    nielle24 nielle24
    22-25, F
    Apr 4
    Hello all! ( especially too my friends I already know here) I would like to stay in touch with you as well as new people feel free to add me and say hello. you can reach me...
    locked125 locked125
    26-30, M
    1 Response Apr 4
    I have a dual personality, from outside I seem like an upbeat and fun person, but people who I call friends don't know about the inner troubled self. I find it hard to keep both...
    lonelylifeindia lonelylifeindia
    26-30, M
    Apr 4
    I have been with my boyfriend for a year and a half, and he has been in prison for 7 months. We met after he did what he did, and I stood by his side through all of it. It is a...
    Littlefish1125 Littlefish1125
    26-30, F
    1 Response Apr 4
    I have posted about this alternative before, but I invite you to check it out. www.teen-concerns.blogspot.com
    Humanist321 Humanist321
    70+, M
    Apr 4
    I can't relate to what was stated above. I think I haven't experienced it at all, just yet. I usually fall asleep thinking such things. And what I often think every night is that I...
    Nyengenhe Nyengenhe
    16-17, F
    Apr 4
    I'm male but I got beat up by a girl. I didn't want to hit her cause I knew I'd knock her out. We were 13 at the time. She had been in many fights before and had never lost, and...
    Tegrais134 Tegrais134
    16-17, M
    Apr 4
    u know if u are suffring this,you have done anything for this. i know and i've done that too. this is nothing d*rty but truth. giving pleasure myself is best cure for get good...
    genjiipiexx genjiipiexx
    31-35, F
    1 Response Apr 4
    Id love to have one never had a little sister ep is ending id love one befor ep ends 804 901 2035 im a loving big brother
    teengirls teengirls
    22-25, M
    Apr 4
    I've made an appointment with a GP tomorrow morning and I'm going to ask her to give me some Ativan or anything that I can use to keep my panic attacks at bay. I've tried...
    BlueJinx BlueJinx
    26-30, F
    Apr 4
    Don't you think we NEED to have a drunken party??πŸ˜•To say goodbyeeeeeeeeeeeee to Eeeee Peeeeee???πŸ˜…I'm up for it - but I'm sure I'll be joining any virtual party from my chair...
    BSTisapain BSTisapain
    46-50, F
    1 Response Apr 4
    why am I posting stuff for. sometime I think I leaf it out. school was great today. to bad I don't have parents. cause it's parents day at school tomorrow. it's sad for me.
    kasydragon kasydragon
    22-25, F
    1 Response Apr 4
    I'd like one but i have a lot of issues and it's like sometimes there's no girl out there who would want me because of those issues I have It's not a priority for me to be in a...
    Dtrax8181 Dtrax8181
    26-30, M
    Apr 4
    Jealousy is one hell of a thing. My cousin and I haven't spoke to each other for YEARS and we used to be the tightly knitted ones. One evening, she texted me telling me she got...
    lunamcmxcix lunamcmxcix
    16-17, F
    5 Responses Apr 4
    It has taken 37 ssri none worked I began cymbalta 6 months ago depression very low pain barely noticeable but I have a choice to use a C2 fur break through pain I have been...
    Vocevaiver123 Vocevaiver123
    46-50, F
    Apr 4
    I have an imaginary lover, but is strange the fact he is a giant teddy-bear (in real, i own him). I like to sleep on him and cuddle with him, to see movies with him and to have sex...
    beatwis beatwis
    18-21, F
    Apr 4
    I'm reading all of your comments at the crack of dawn because deep down I am feeling so depressed and down because of this. I'm a second-semester freshmen and I feel really lonely...
    Helloimjoy Helloimjoy
    18-21, F
    1 Response Apr 4
    Why is so much cymbalta hate and I have had none these side effects is there anyone who like myself who finally began sleeping as I once did and feel less to no pain only use C2's...
    Vocevaiver123 Vocevaiver123
    46-50, F
    Apr 4
    So, my Bulimia used to be about control....a way to stop my emotions. If I was upset or hurt I would B/P so I could somewhat stop feeling. I have started keeping track of what I...
    angelpumpkin36 angelpumpkin36
    36-40, F
    1 Response Apr 4
    New Home for the ILIASM Community Folks dealing with sexless marriages have -- for years -- sought and offered support at the Experience Project in the experience β€œI Live In A...
    ILIASMAllie ILIASMAllie
    46-50, F
    Apr 4
    54. I think I am generally insecure about my looks. I always think that no man will want to be seen in public with me, show me to his friends because I'm not that 10/10 Russian...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 4
    Do you think the following blurb (from the About section on Experience Again) could possibly be written by someone who has been working on EP?? "A feeling of desolation...
    BSTisapain BSTisapain
    46-50, F
    2 Responses Apr 4
    52. Sometimes I worry about my sanity. I give my attention and focus to a man quite quickly- though, never my heart. I have only met him 2-3 times. But we talk and speak almost...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 4
    If you have Facebook for Iphone/Ipod look someone up then go on the search again then scroll down to posts "name here" likes. You can see everything, also replace posts with photos...
    Paleandpolluted86 Paleandpolluted86
    26-30, F
    Apr 4
    Sometimes I wish Seth Rogen could knock me up so we could have a baby together and then he could play fetch with it like a dog. ...is this only a "Me" wish?? Or is this every girl...
    ERMAHGERD1 ERMAHGERD1
    26-30, F
    1 Response Apr 4
    I was on a spaceship in outer space with all of my classmates and we were sitting in a small theater area with a stage. The band MCR was playing just for us specially. I made an...
    MidnightMeraki MidnightMeraki
    16-17, F
    Apr 4
    #1. Starting today I'm gonna write one down every night till ep shuts. So let's get started. Out of all the people in the world I'll probably be one among a very few to...
    Abi936 Abi936
    22-25, M
    5 Responses Apr 4
    It happened when I had a private class with a pre-school student. He is just 5 yo. Now, I do stupid and senseless actions/ reactions sometimes and boy... how I did it bad today. So...
    ChannelingTruth ChannelingTruth
    26-30, F
    2 Responses Apr 4
    hi guys not long till EP freeze's hope u found off places to go I have. two off them I've join. one is appliestome com . can't remember the other one name. but my user name is the...
    slivereyes slivereyes
    36-40, F
    1 Response Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    https://youtu.be/i56AkejYpdE I know I shouldn't but I Love my dark side because I believe in justice so for all the people who was bullied a kid into suicide, or slaughter animals...
    Kornisone Kornisone
    26-30, F
    3 Responses Apr 4
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