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I Have Muenke Syndrome

A Muenke Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muenke Syndrome. You're not alone.

    I have had fibro since as far back as I can remember! I was physically, emotionally, and sexually abused! I have had three children! Three home births! And now two of those...
    Griffinbadgirl Griffinbadgirl 41-45 56 mins ago

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    I had to visit my psychiatrist last Thursday and not that I have anything against the man but he always brings back bad memories. I almost died and he helped save me but it's just...
    AndrewGot AndrewGot 18-21, M 2 hrs ago

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    I cannot even explain how i feel. My partner just got diagnosed with chlamydia because he showed symptoms when he started sleeping with me and he told me he have contracted it from...
    noforever29 noforever29 26-30, F 2 hrs ago

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    i love how i can spend days poring over my behaviour trying to figure out what it is that i am doing that disappoints my Dom. Finally getting frustrated, i cave in and ask Him to...
    LoneSouls LoneSouls 31-35, F 3 hrs ago

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    I kissed my best guy friend (Who I have a crush on) on the cheek well more like on his jaw, I actually felt his skin. I have never kissed him ever so I don't know how I actually...
    CaptainDragoness CaptainDragoness 16-17, F 4 hrs ago

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    National Native American Heritage Month Is November. Now I wounder why is it that we were here FIRST, yet a month to get others to understand out heritage is ignored. All February...
    ImAGreywlf ImAGreywlf 56-60, M 4 hrs ago

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    My following statement may bring joy to some, and disappointment to others. I am a 66 year old male, who has been a member of EP since June, 2013. I am deeply saddened by how EP...
    BendairDundat BendairDundat 66-70, M 5 hrs ago

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    I get this feeling as if i have a hand/claw/grip etc on my side and one on my left shoulder. Not causing any harm. It's just pulling me back. So i physically move forward with it...
    Lockholder Lockholder 22-25, M 5 hrs ago

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    so last night i had a dream i remember it clear as day and think about it very often. But i don't understand much of it. i've had it once before. here it goes. i was in a room a...
    Lockholder Lockholder 22-25, M 5 hrs ago

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    I have gender identity disorder. I constantly struggle with the fact that my body isn't male. Perhaps it is a mental disorder to feel that way, especially so intensely, given the...
    Fluffystuff Fluffystuff 18-21 1 Response 7 hrs ago

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    My EP Family. I'll just write down the names I know. The others know who they are. MindStruggle- my mirror mind. We have so much in common. When It comes to deep thinking of...
    LeahLovee LeahLovee 70+, F 1 Response 7 hrs ago

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    I put pressure on myself to fall in love. I can't. Don't get me wrong, I have fallen in love before. Just once. I was in love with him for 2 years but nothing happened between us...
    ScissorhandsFingeredMe ScissorhandsFingeredMe 16-17, F 7 hrs ago

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    I really can't say that I have been wronged anytime recently. I simply always have a strange feeling if I share too much. I must learn to set and keep my own boundaries for my own...
    bluuzman bluuzman 56-60, M 1 Response 8 hrs ago

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    so. I don't know if I would classify this as paranormal but strange enough. I should start by saying I do have an iPhone and was charging it. I was just laying in bed with it...
    LiloRen LiloRen 22-25, F 1 Response 8 hrs ago

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    I personally have trust issues with men in my life because of past expiriences. I don't think they can be trusted even though I try not to judge with each new person I meet unless...
    Deathgodsimple Deathgodsimple 16-17, F 11 hrs ago

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    Losing My Virginity To An Air Force *******. I have started and deleted this story seven times now, I don't know why it's so hard for me to clearly express my emotions about this...
    PandaaMee PandaaMee 22-25, F 3 Responses 11 hrs ago

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    I have a secret to share with u. I like isolation a lot cause I was used to bein alone ever since I was a little girl. When I was adopted my mom was ALMOST NEVER home so it was me...
    CreepypastaFan2016 CreepypastaFan2016 16-17, F 12 hrs ago

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    i am looking for a girl i can call my own someone i can give my all too but i just haven't found the one. I'm 18 college freshman/ part time model I'm not bad looking i haven't...
    LEX1888 LEX1888 18-21, F 13 hrs ago

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    Other people would have absolutely no problem with casual encounters with someone they know. But not me. For example, this morning, I bumped into a colleague at the grocery. I...
    mareliberum mareliberum 26-30 2 Responses 16 hrs ago

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    I didn't even know this was a thing up until like a few mins ago but reading everyones posts about it, I'm absolutely sure I have it to. the people I want most in my life, for...
    dathglas dathglas 13-15, M 1 Response 16 hrs ago

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    The way you feel is unique. No one has ever lived a life flawlessly identical to yours. You have a right to the way you feel
    skywalker9 skywalker9 18-21 16 hrs ago

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    I just realized something. If you are focusing on your desires a lot when falling asleep, especially sexual desires or something involving a lot of stimulating your sense of...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 2 Responses 16 hrs ago

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    My name is Tiffani and I am looking for another person with KSS for my brother, Keith. He is 42 now and was diagnosed at 24. He started showing signs in his late teens, first by...
    Tiffanimorgan Tiffanimorgan 18-21, F 2 days ago

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    I'm 33yrs old, I was born with bi-lateral sprengels. Born to a family which didn't have much $, and having a deformity that's rare I went undiagnosed until a year ago. As a child...
    TrisCat TrisCat 31-35, F 1 Response 3 days ago

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    I came across this site reading everyone's stories feeling amazed about how I am not alone. I feel a little disappointed because everyone's stories are mostly or similarly the same...
    whyme96 whyme96 18-21, F 1 Response 5 days ago

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    Today, I was diagnosed with Duane Syndrome. After 17 long years of wandering what's wrong with me, and why my eyes are so different from other peoples', I finally have closure. I...
    katiebug7 katiebug7 16-17, F 6 days ago

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    Good evening! I have been diagnosed with Marfan Syndrome when I was three months old by an ophthalmologist in a hospital in Poland. I am now 6'2", after two cardiac surgeries and...
    sakrona sakrona 18-21, F 4 Responses 6 days ago

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    Just found out my 11 year old son has Asperger's syndrome. I have suspected for a while, and the reason it went undiagnosed for so long is because he is so academically gifted. In...
    SoShellyBye SoShellyBye 41-45, F 2 Responses 6 days ago

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    It's hard to really do anything.. When your a minor and have no family support... What's the point
    Norial Norial 13-15, F 1 Response 6 days ago

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    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
    blitzkrieg7 blitzkrieg7 22-25, F 4 Responses 6 days ago

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    Hi I am 17 and i was diagnosed January 2015 with POTS but we were almost certain for several months before. I am a junior in high school and I try not to let my condition keep me...
    mermaidmixi mermaidmixi 18-21, F Feb 5

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    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T Feb 5

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    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
    topcap2017 topcap2017 41-45, M 1 Response Feb 5

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    So I have a question. For me, when I am about to faint, I become really incoherent. I forget what I am talking about, I say off the wall things, and I can barely walk straight. It...
    imstrongerthanyouthink imstrongerthanyouthink 18-21, F 1 Response Feb 4

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    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F Feb 4

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    i have several mental illnesses. i have been hospitalized many times and in rehabs. i take medication every day. i hate stigma and discrimination. it is wrong. i have...
    coffeeonice coffeeonice 31-35, F 1 Response Feb 3

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    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses Feb 3

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    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response Feb 1

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    Homeschooled my entire life I suck at Math Still don't have a driver's license (and haven't practice-driven since last summer) I missed out on pretty much everything cool in the 9...
    FluttershyLabeouf FluttershyLabeouf 18-21, M 1 Response Feb 1

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    I have the pais syndrome an intersex condition. I am a FTM/Libragender and I have bottom dysphoria and I am happy though that I'm intersex, though worried too.
    Yviroc Yviroc 22-25, T Jan 31

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