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I Have Muenke Syndrome

A Muenke Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muenke Syndrome. You're not alone.

    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 2 hrs ago

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    I'm currently 28 healthy-ish ( just had a physical and all was well :) ) and was diagnosed at age 10. Every night I would go to sleep I would wake up vomiting I would aspirate my...
    nighthawkra nighthawkra 26-30, M 2 hrs ago

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    I just turned 19 and I’ve never been kissed, barely flirted with a guy, and I’ve never had a guy actually show interest in me. I don’t know what’s wrong. I mean I could...
    Neasa Neasa 18-21, F 2 Responses 3 hrs ago

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    Over the past year or two, I've been finding it more and more difficult to distinguish between when I'm dreaming and when I'm conscious. My dreams feel more vivid than real life...
    Surreal657 Surreal657 22-25, F 1 Response 9 hrs ago

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    I used to have so much self respect.. Now I have very little.. I've done stupid things that have thrown my integrity on the line to try and win someone back into my life
    Catho Catho 18-21, F 9 hrs ago

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    I just found out I got it today, and I cried, I haven't told my mom yet, but she has an idea. I called her crying and she came an picked me up, she knows I slept with someone...
    CleosMoon CleosMoon 22-25 1 Response 11 hrs ago

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    I can't seem to go in a public bathroom if someone is in there. This ruins my school days and field trips where I've had to hold it in until I get a free moment at school. My...
    GhettoMemeing GhettoMemeing 13-15, F 1 Response 19 hrs ago

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    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Kjmiller1197 Kjmiller1197 18-21 2 Responses 1 day ago

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M 2 days ago

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F 4 days ago

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    Does anybody have a GOOD experience with their Aspergers partner? For a while I thought I might've been attracted to somebody with the disorder, but everything on here sounds so...
    anonyponymous anonyponymous 18-21, F 2 Responses 5 days ago

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    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    renee2018 renee2018 13-15, F 6 days ago

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    I have aspergers, mood disorder and depression when life is hard I feel that nobody cares I exist and I eat and write on here and play Rachel plattens fight song or look at my...
    FattyWithAttitude FattyWithAttitude 13-15, F a week ago

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    I'm proud to have it. My councillor told me I '10x the women any bully will ever be' and I know that's a good thing. I'm a minority, one of a small percentage effected by this...
    Randompi Randompi 13-15, F a week ago

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    Has anyone ever been to POTS Treatment Center in Dallas, TX? We have been saving up for me to go there and I was wondering if it helps at all.
    TavynKeylee TavynKeylee 13-15 Aug 18

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    I recently found out I have ORS and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original...
    Deena76 Deena76 36-40, F Aug 18

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    hey there I am going though the 3rd stroke in 3 years now loss of vision in left eye. right eye going slowly. don't really know what to do I am taking a vitamin cocktail...
    bclogger75 bclogger75 36-40, M Aug 17

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    I have had CRPS for 5 years. I am a flight attendant and had a passenger fall on me. I first noticed weakness in my legs and a shooting pain down my legs and severe low back pain...
    dedelocken dedelocken 51-55, F Aug 17

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    I might have AS. Any tips on how to manage it so as to avoid hurting people around me more (my spouse and family)?
    LolaHaze9 LolaHaze9 22-25, F Aug 17

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    My mother is making me take a social skills class. I don't think I need it, but at least I'll meet some fellow aspies.
    beautifulmaggie beautifulmaggie 16-17, F 1 Response Aug 17

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    I really need your help, I know you all are strangers but please... I think I have aspergers, the things I do in my daily life isn't "normal" to others. first off hi, I'm Andrew...
    AndrewJackson199923 AndrewJackson199923 16-17, M 3 Responses Aug 16

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    Syndrome from The Incredibles is what happens when you don't outgrow your emo phase.
    mattinsula mattinsula 16-17, M 1 Response Aug 16

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    I do I have asperger syndrome
    Pedro1202 Pedro1202 18-21, M Aug 15

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    Hi I don't personally have fibromyalgia, but I am with a US company for all natural products that help various medical conditions, products for pain/inflammation for instance, let...
    carolgem carolgem 46-50, F 1 Response Aug 15

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    Can someone tell me what cvs is and explain what happens when you u have it
    CelticDragon561 CelticDragon561 51-55, M 1 Response Aug 15

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    Cvs cyclic vomiting syndrome is something I have and it sucks so much! Is there a way to add this is the category??
    deleted deleted 26-30 1 Response Aug 14

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    Within the last year, I have been diagnosed with PS. Unlike some of the stories I've glimpsed on here, it primarily is my dominant right hand. My hand was always small and...
    HypoplasticHand HypoplasticHand 18-21, F 1 Response Aug 14

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    I have only known I have had pots for about 7 months now. I will be a sophomore in high school. I really wanted to letter in volleyball but I don't see that happening. :( I have...
    99lynn 99lynn 13-15, F 2 Responses Aug 14

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    After 15 months FINALLY I have an answer. My symptoms were severe leg edema that turned into pitting edema swollen arms swollen hands and fingers with the curvature of my fingers...
    wandawoof2015 wandawoof2015 51-55, F 2 Responses Aug 13

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    My 1 year old son was diagnosed last month with Williams Syndrome. It is a genetic disorder caused by a deletion of 26 genes on the long arm of chromosome 7. We found out after he...
    cthuluwhovian cthuluwhovian 22-25, F Aug 13

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    looking for anyone that has sapho. sure need someone who understands this
    Kimslack1 Kimslack1 46-50, F Aug 12

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    Researchers at Brigham and Women's Hospital are seeking healthy, non-smoking women between 18 and 42 years of age for a research study investigating the metabolism of an FDA...
    abaybay23 abaybay23 22-25, F 1 Response Aug 12

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    Hi I'm not new, have been on here for a while but am just writing a little about our experience and fears thus far. Our son is just about 3 and was diagnosed with vanishing testes...
    Mamarnb Mamarnb 36-40, F Aug 11

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    I contracted GBS in Jan 2013. Was in ICU and rehab. It has been a tough journey. I have recovered tremendously, but not fully. Experiencing alot of muscle contrations which I...
    fierozasmith fierozasmith 41-45, F Aug 11

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    Why doesn't insurance companies cover any procedures that have to do with tmj? Tmj is extremely painful. This needs to change!!
    stephanie504 stephanie504 31-35, F Aug 10

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    I was diagnosed with HES about three months ago. Started on 40 mg a day of prednisone and started feeling much better after about a week. Stayed on 40 mg for a month then dropped...
    kpsue kpsue 56-60, F Aug 10

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    I was diagnosed with DeQuarvains Syndrome mths ago after a terrible 18 mths of pain a mth after my toddlers birth. I had an apt to schedule surgery and my Dr canceled worried it...
    slyfirefly slyfirefly 26-30, F Aug 10

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    New here and want someone to chat with
    deleted deleted 26-30 Aug 9

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    Yup, what a tragedy. The world seems to fall dawn when they tell you, you suffer such rare condition/syndrome. What really matter is to stay calm, listen carefully all what they...
    4biandu 4biandu 31-35, F 2 Responses Aug 9

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    Me and my mom don't like each other. She tells me all the time that I give her the most problems out of all her kids... And she's probably right. I'm the middle child of three kids...
    simplycece simplycece 18-21, F Aug 9

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    I just wanted to get this off my chest. Yesterday evening my mom and I got into a huge fight. She pulled my hair (really easy to do since its in braids) slammed me to the ground...
    whiteoleander8 whiteoleander8 13-15, F