I Have Mullerian Agenesis

A Mullerian Agenesis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mullerian Agenesis. You're not alone. 91 People

    Dealing With MA For 16 Years

    I was diagnosed with MA when I was 18 years old, after I did not get a period. They found that I did not have a uterus (only remnant uterine tissue), cervix, or vagina. I was obviously crushed with the news. My parents were also crushed, feeling it was their fault that I was...
    efnpixie efnpixie
    36-40, F
    3 Responses Jul 14, 2013

    Umms Idk ... Freak????

    Umm I just found out today that I had this I'm 15 years old and I'm not sure how I'm feeling umm I'm really happy I'm not the only one cause when my doctor first started talking to me about not having female stuff I thought I was alone and I felt like a freak ive read acouple of...
    rebekahjade rebekahjade
    18-21, F
    1 Response Apr 1, 2013

    I Have This Deadly Disease. So What. Fight It.be Strong

    Hi .. I am suffering from MA. Now I am 22 years old.I got to know bout this deadly disease when i was 14. My mother took me to a gynaecologist. My doc broke out the news to my parents then itself but they dint inform me about it. I have been worried bout  not getting a period...
    meghna1 meghna1
    8 Responses Jun 29, 2011

    Thankfully...Not Alone

    I started realizing there could be something wrong with me when I was in my early teens because I had never had a period and I use to worry that I would never be able to conceive. My mom reassured me there was nothing to worry about because she had only started her cycle at 22...
    fabny fabny
    26-30, F
    2 Responses Feb 6, 2013

    My Ma Experience.

    Im 21 and all this started when i was 15 and still didnt have a period. Doctors kept telling me to come back next year because i was probably a late bloomer. Finally i turned 19 and they decided to run some test. I had a chromosome test to make sure i was a genetic female...
    VirginWithoutACause VirginWithoutACause
    18-21, F
    2 Responses Jul 1, 2012

    Scared Of Mullerian Agenesis

    I just got diagnosed with Mullerian Agenesis. I'm 18. I have a twin sister who had no problems like mine. I don't know if I should just get the reconstructive surgery or try other methods. I'm scared of this disease. I feel like an absolute freak and I don't know what to tell my...
    bg17701 bg17701
    1 Response May 8, 2011

    Good To Know Am Not Alone

    unlike most people i found out i had MA at age 19.i always thought my menses would soon come and it never bothered me because i was always "nervous" about periods.my mum took me to a clinic and tests were done.i was referred to two other clinics and the diagnosis finally came. i...
    FaithArtistgirl FaithArtistgirl
    18-21, F
    1 Response Jun 27, 2012

    We Are The Selected!!!!

    I am also an MA girl. I can recall my days of cries and worries. The day my younger sister attained, the days when everybody around me used to buy pads, the days when my friends used to talk about getting married,the days when i attended their marriage...i know you all would have...
    graceofgod88 graceofgod88
    3 Responses Mar 6, 2013

    Finally Not Alone

    hi everyone :) i am a new member to this website and really thankful that i can read stories of people who have same condition as mine. i read all the stories in this group and most of them are from 2010/2011 but i am really hoping that you all are still "here" i am a 18 soon to...
    dh30 dh30
    18-21, F
    1 Response Jan 20, 2013

    I'm Ok With It Now.

    I was diagnosed when i was 18, and saw so many different doctors and they couldn't tell me why i did not get my period. Finally after an ultrasound they sent me to a specialist to break the bad news. I opted for surgery soon after i found out. The most painful part is the...
    jadelove11 jadelove11
    5 Responses Mar 30, 2011

    I Have Mullerian Agenesis Too

    Hello to all my M.A. "sisters" out there ~  I'm 32 and this past year has been a huge wake up call for me.  I was first diagnosed with MA at age 15.  My growing up years and relationship with my Mom was very unhealthy....needless to say, I'm just getting to the...
    kittycatkari kittycatkari
    31-35, F
    Jun 2, 2010


    i have typed story ....mistake....i come .... return... later....ur welcome...i thank u all 4 sharing... back soon......i lost story.....i'm having a bad day,,,, share story soon...
    2004mn565 2004mn565
    46-50, F
    Nov 30, 2012

    A Concerned Boyfriend

    hi, i do realize i am outta of place and probably have no business here but i just wanted prople to talk to about this condition. i know little to nothing about it and i feel like i am doing my girlfriend who has the condition a horrible in justice. and just the other day i was...
    MagicBag3622 MagicBag3622
    18-21, M
    1 Response Oct 3, 2013

    22 And Still Coping.

    I was diagnosed with M.A when I was 16. When I found out, I was flabbergasted. I couldn't understand. I thought I was a freak. I was afraid to tell anyone. Not because i was ashamed, I just didn't want to have to explain it. Like I still with to the doctors when I go in for pain...
    PanDuh22 PanDuh22
    5 Responses Oct 17, 2011

    Accepting Who I Am Am Moving On With Life As Normal

    Am 28 years old,am from kenya,I discovered that i had M.A after visiting so many doctors and still couldnt get periods,i have decided to accept the situation and move on,am glad to know i have other sisters out there who i can share with what am going through,am happy to be part...
    patmagkenya patmagkenya
    26-30, F
    Aug 30, 2012

    Hello:) im 16 and i just found out

    that I have this condition 2 months ago. My mom cried about it a lot and she was blaming herself about it. I told her that it was not her fault. I told her that i just have to accept this because everything has a reason right? Im still young and maybe in time i'll find out thw...
    antc22 antc22
    18-21, F
    2 Responses Jul 3, 2014

    I Just Found Out That I Have Mullerian Agenesis.

    I'm 19 and have been wondering for a while now why I haven't started my period, and why I'm in so much pain every month if I don't have a period. I knew something was wrong the first time I tried to have intercourse with my boyfriend, It just didn't work, and it was so...
    sketchymuse sketchymuse
    2 Responses Nov 16, 2010


    I am now 24 years old. I still have not accepted that I will never bare children. I am a Mormon and I want to marry another Mormon but this creates the biggest wall. I was surprised that I have met, talk to and dated many men who want their “own” children. There seem to be...
    realscaredmormongirl realscaredmormongirl
    26-30, F
    Jun 14, 2013

    nice to see you guys,

    feeling better after knowing im nt alone,totally frustated these days,now im glad to share my feelings on MA which was kept secret these many days,is any one frm india???? i always think abt handling dis situation is better in other countries then in india
    lovelyprincessadc lovelyprincessadc
    18-21, F
    Jul 8, 2014

    diagnosed a little later

    than most, at 23 i've just been given the news. after all the tests and everything that goes with it at 16 i was told by my doctor everything was fine and to wait it out, finally plucked up the courage to see it all through again late last year and it turns out most of my...
    mollygunn mollygunn
    22-25, F
    3 Responses Sep 30, 2014

    First Time Sharing My Story

    I found out that I had Mullerian Agenesis when I was 13. it was more traumatizing for my mom then it was for me at the time. after countless dr appointments and tests i was told to try the dilating method which i did with no success for about a year. so at this point i was...
    deenyc deenyc
    5 Responses Aug 12, 2013

    I Found Out I First Had Mullerian Agenises When I First Had Sex.

    I found out i had a problem when i first had sex, as the penis wouldnt go all the way in it would stop half way. It wasnt possible for the penis to go in anymore, this really effected me as a teen and i wanted to find out what was really wrong with me. I found out i was born...
    mallow1 mallow1
    Nov 25, 2012

    I Am Complete

    when i was 16 and dont have periods, gone through ultrasound, doctor says everything is ok she is underweak.. after 2 years again done ultrasound and found that i have very small uterus, doctor suggests some tests and ask questions like do you have hairs on chest, i remember he...
    pharmacystudent2014 pharmacystudent2014
    2 Responses Jan 11, 2012

    just wanna ask wat is the procedure

    for dilators for creatin vagina i dnt want to have a surgery or vaginoplasty i dnt hv an vagina uretus nd a cervix
    asinghania asinghania
    18-21, F
    2 Responses Dec 23, 2015

    How I Found Out And What It Means To Me...

    I have grown up in the LDS Church and I have always wanted kids. My favorite toys as a kid were dolls. When I was six I had a two year old niece that I would carry around with me, awkwardly I might add she became my baby doll. I am the baby in my family but lucky for me I have...
    realscaredmormongirl realscaredmormongirl
    26-30, F
    Jun 14, 2013

    Confused,crished :s

    As everybody's stories start out as well I was also 16 when I found out I had MA it crushed me and plus it didn't help after all the test results were and the doctor told me I had it she had no bedside manor. I love kids, hell I have loved kids since I was one and to find out I...
    countryprincess89 countryprincess89
    22-25, F
    1 Response May 23, 2012

    Hallo ladies,its so encouraging to learn am not

    alone in this and that i have sisters out there who understands what i go through...anyone else from Kenya,Africa?
    patmagkenya patmagkenya
    26-30, F
    Aug 1, 2014

    Life Goes On...

    Hey Ladies, It is so nice to find this group. I always feel like there is no one who can truly understand what I am going through, even though I have a lot of support and love. I was diagnosed like many of you in my senior year of highschool after endless appointments with...
    IslandGirl32 IslandGirl32
    3 Responses Apr 17, 2012

    Any Kenyan Girls?

    Am happy to be part of this group and to realize that am not alone in this....any kenyan girl?
    patmagkenya patmagkenya
    26-30, F
    1 Response Aug 21, 2013

    24 Year Old With Mullerian Agenesis

    I was diagnosed when I was 16 and it has been a nightmare ever since. I use dilators to make a vagina, but it has really become a burden/painful and I was thinking about getting surgery to correct it. I basically live in fear of sex. No one should have to worry about sex, but I...
    Angelryan Angelryan
    22-25, F
    5 Responses May 16, 2010

    10 Years On And It Has Hit Me Now...

    Hi, I am 25 years old and I found out I have Mullerian Agenesis when I was 16. At first I thought it was cool to be different from others and growing up I was always convinced I wasnt a "kid" person anyway so it didnt bother me that much. However at 25 its a different story. I...
    aob309 aob309
    26-30, F
    2 Responses May 5, 2012

    Confuse And Insecure

    i am 19 years old..........currently studying in college.............i actually went to a doctor at the age of 16 because i did not get my period while all my other peers already had theirs.......................first i tought it was kind of cool to be unique...........i kind of...
    kazehime kazehime
    2 Responses Sep 9, 2011

    The Common Feeling And What Gives Us Strength

    I guess most of us know the common feeling and questions which from personal experience include; seeing our world crumble before our eyes, feeling like an incomplete woman, asking if at all we really are women, wondering if any man will take us as we are, wondering if there is...
    FaithArtistgirl FaithArtistgirl
    18-21, F
    2 Responses Jun 28, 2012


    I have been having this condition since 15. I have come to have correct diagnosis when I am 30.It has been frustrating for me.There is a surgeon who says can be able to do a vaginoplasty for me. I just dont know who out there has had this procedure at 30 and how successful has it...
    rapher rapher
    2 Responses Jun 21, 2012

    Confused And Insecure

    I was diagnosed at age 14, which is young I realize (but my mom got her period at 12 and so did my grandmother, and I already had C-cup breasts and pubic hair). I'm 16 now and I got dilators last year. I want to start using them, so I can finally feel normal. But evertime I go to...
    amisay amisay
    16-17, F
    1 Response Aug 29, 2012

    Neither A Disease Or A Nightmare.

    It's a birthdefect and reality. I am now 18 years old and was diagnosed the summer before I turned 17. The summer before my Senior year. I remember as a girl I told myself that I thought I was going to be "That Girl" who got knocked up in Highschool. Well, I made it through...
    LittleBear06 LittleBear06
    4 Responses Feb 21, 2011


    Hi my name is Kristen and i am 26 and i suffer from Mullerian Agenesis and i was diagonised with this at the age of 16. The worst thing in my life i worry bout is that i cant have my own kids. It hurts me everyday cause there are so many girls that i know that are having kids...
    kristen18237 kristen18237
    1 Response Jan 19, 2011

    23 Year Old Grad Student

    My personal views and opinions about my MA aren't meant to upset or disregard anyone else's experiences but I have never really been upset about my diagnosis...and sometimes I wonder if I'm just in denial. Like many of you stories I have read, I went to the doctor when I was 16...
    cc88 cc88
    22-25, F
    2 Responses Nov 5, 2011

    heyy ppl I m really very very sad As i knw i

    hv mullerian agenesis I cant get pregnant ever :( Nd cant get married ever :( Who wil marry me after knowing that i cant give him that happiness of becomin father which any other women can easily give I feel very depressed wen this thought comes in my mind that i hv to live...
    asinghania asinghania
    18-21, F
    5 Responses Jan 21, 2015

    3 Years Later

    I was 14 when my mom and I started seeing various physicians in search of the answer as to why I had not started my period but was going through normal puberty in every other way. I was 15 when we found the answer - müllerian agenesis. I was almost relieved, it had passed...
    mh999 mh999
    1 Response Jul 3, 2013

    Hey M.A Sisters! hope

    that you are well .want to encourage you all to be strong and to never feel 'abnormal 'because for sure we are not,we are so much normal like other women out there...so lets enjoy life and try to be happy....trust me i know its not easy..
    patmagkenya patmagkenya
    26-30, F
    2 Responses Jan 9, 2014

    A Senior Lady's Story

    Hello to you all. I hope you don’t mind if I talk to you for a while --you see I didn’t know you were there and I have had no one to talk to in 50 years ! You are all so young and I cried when I read your stories-it was as though my younger self was talking to me. I am 64...
    auntygoose auntygoose
    61-65, F
    7 Responses Jun 7, 2011

    My Wife Has Mrkh - We Have Been Married 8 Years

    I am Happy... most of the time I have been celibate & FAITHFUL for the last 7 years - having tried for a year to have sex Ask me anything I will try to help and answer truthfully
    shreem75 shreem75
    36-40, M
    2 Responses Nov 16, 2012

    Life's Way Of Making Me A Stronger Person...

    Hello Everyone. I have been reading most of your stories and am happy you all have managed to accept your condition and carry on with life. Having been to see the gynee a few times and having no period at all, i was finally diagnosed at the age of 21. Many questions ran through...
    Smith161 Smith161
    26-30, F
    1 Response Aug 16, 2013
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