I Have Multiple Hamartoma Syndrome

Multiple Hamartoma Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Multiple Hamartoma Syndrome. You're not alone.

    Long and Complicated But We Found It When I Was 29

    When I was a child I had a few of the signs.  My head was extremely large--so much so that my doctor feared hydrocephalus and mom took me to Memphis, TN a 100 drive from here for a ct-scan.  This was 1978 when they were fairly knew so it was a drive to get to...
    AndreainArkansas AndreainArkansas
    31-35
    1 Response Aug 22, 2009

    Long and Complicated But We Found It When I Was 29

    When I was a child I had a few of the signs.  My head was extremely large--so much so that my doctor feared hydrocephalus and mom took me to Memphis, TN a 100 drive from here for a ct-scan.  This was 1978 when they were fairly knew so it was a drive to get to...
    AndreainArkansas AndreainArkansas
    31-35
    Aug 22, 2009
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