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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,211 People

    I have Multiple Sclerosis

    and I'm better off than most, blessedly
    AsgardRain AsgardRain 41-45, F 1 Response Jan 19

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    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 2 Responses Oct 6, 2014

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    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006

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    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC 51-55, F 5 Responses Oct 30, 2007

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

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    Diagnosed With Ms In 2002

    I was diagnosed when I was just 31. I was having weakness in my legs and arms and thought it was just a pinched nerve of sorts. I would just be walking and I would have to stop because I felt I was going to fall. I found out my diagnosis in such a weird way. Started out with...
    Tamzang13 Tamzang13 41-45, F 5 Responses Jan 13, 2013

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    Scary Isn't It?

    It was about November 2004. I had just started a new and exciting job when I woke up one morning to find I had pins and needles in both feet. It was very unpleasant but nothing too amazing - I just assumed I had been lying in bed funny. I went to work but that feeling stayed...
    deleted deleted 26-30 Jan 21, 2013

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    msfancypants msfancypants 46-50, F 7 Responses Aug 9, 2012

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    I ******* hate this disease.

    Anyone here who's opinion is different?
    DaveShaved DaveShaved 46-50, M 1 Response Jan 16

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    I have Multiple Sclerosis.

    it has really messed my body up. Weakness in my legs and super sensitivity on my left side (which is dominant) that causes pain. I also have extra sensitivity in my groin (penis, testicles, upper thigh) area. This causes significant feeling, leading to early...
    DaveShaved DaveShaved 46-50, M Jan 12

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    So does anyone here have other "issues" besides

    MS. I have: Migraines Idiopathic thrombocytopenic purpura Diabetes
    DaveShaved DaveShaved 46-50, M Feb 8

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    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111 36-40, M 3 Responses Nov 6, 2014

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    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri 22-25, F 22 Responses Jun 20, 2012

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    Relapsing Remitting Ms - Maybe Progressive

    I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never gone to work before... but since this appears to be as good as it gets, I resumed my life. My last brain lesion was the size of a golfball...
    Wiccad Wiccad 41-45, M 7 Responses Jun 1, 2007

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    I was diagnosed when I was 22

    and have since been through some intense challenegs I never thought I would be able to overcome. Because of this, I have created a Facebook group which I hope to help support others, and also do lots of fundraising too. If you were also diagnosed at a young age, message me and I...
    CHRISLATER CHRISLATER 26-30, M Aug 10, 2014

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    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse 61-65, M 13 Responses Sep 16, 2013

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    As I approach my 6 year anniversary of being

    diagnosed with MS, I thought I would share last year's reflections: "This weekend is my 5 year anniversary of being diagnosed with Multiple Sclerosis (MS). This year I am focusing my thoughts on the fact that I recently celebrated 3 years since my last MS relapse. That is more...
    danc3rz danc3rz 31-35, F 2 Responses Oct 17, 2014

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    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

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    I can't say for sure

    that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do you guys think? They did 2 MRIs one of my brain and one of my spinal column, they found in my brain some leasions and...
    Beatles22 Beatles22 26-30, F 2 Responses Sep 8, 2014

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    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted 26-30 4 Responses Jul 1, 2014

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    When I Became My Disease...

    I have MS.  I was diagnosed at 27.  I had many years including my teens where I had symptoms.  At 20 I bought my first business.  My passion was floral design. My specialty was weddings.  I have done wedding design and coordination for 13 years now. ...
    jenisue jenisue 31-35, F 7 Responses Jan 5, 2008

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 1 Response Oct 21, 2014

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    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia 41-45, F 2 Responses Oct 21, 2014

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    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon 61-65, F 3 Responses Jan 2, 2013

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    Happybri123 Happybri123 18-21, F 1 Response Mar 19

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    Year 8

    And I'm still not used to it. Every year comes with a new frustrating symptom that I must adapt to and figure out how to live a normal life with it and make it as unnoticable as possible.  From the spasms and tremors to the loss of strenght and control, I have to hold...
    Nunyabuziness Nunyabuziness 26-30, M 18 Responses Oct 7, 2010

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    cra2yk1d cra2yk1d 13-15, F Nov 14, 2014

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    How do you treat ms? I have not been diagnosed,

    but my grandma does and I am worried I might.
    Happybri123 Happybri123 18-21, F Mar 22

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    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile 36-40, F 1 Response Dec 14, 2014

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    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 22-25, F 3 Responses Feb 6, 2013

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    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted 26-30 2 Responses Mar 24, 2014

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    In general I am very positive about my MS

    (diagnosed almost 6 years ago), but not today. Dealing with the worst period of my life which is saying a lot since my period symptoms got way worse with MS and even worse the last two months since having a miscarriage and thus a complete hormone shift. Now on day three of PRE...
    danc3rz danc3rz 31-35, F 2 Responses Oct 12, 2014

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    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 8 Responses Nov 28, 2013

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    dx 2003 disability retirement 2009.

    wife left 2013 alone, and wish I would just die, ******* ms is Aweful.... I'd rather have cancer, go thru hell, with the chance to beat it or die and get it the **** over with... ms is a never ending slow miserable mind ****... sit back and watch function after function slowly...
    jr5646 jr5646 41-45, M 1 Response Feb 23

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    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 36-40, F 1 Response Feb 3, 2014

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    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994 18-21, F 2 Responses Oct 29, 2014

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    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill 51-55 Jul 18, 2014

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    I am writing this to show you

    that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support system. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization and IV steroids. Soon...
    Avonexveteran Avonexveteran 56-60, M Sep 30, 2014

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    I was diagnosed in 2007.

    I was a long distance runner before my diagnosis and kept it up for years but now I can barely walk and am afraid I will have to go on disability soon. As strong as I try to be I'm scared as hell.
    robbyt3545 robbyt3545 31-35, M 1 Response Feb 4

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    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 51-55 2 Responses Feb 26, 2013

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    My Life With Ms

    I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed up one day introducing itself to me through fatigue, slow walking and seizures.  The seizures seemed to have the...
    butterflydiva butterflydiva 36-40 5 Responses Aug 2, 2010

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    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz 31-35, F 1 Response Nov 22, 2014

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    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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    I’m 26 years old and I was diagnosed with MS

    about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever...
    isa88 isa88 26-30, F 1 Response Feb 3

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    I am a 47 year old male.

    I was dx with MS in 2013. I am and was the bread winner of my family of 4. In the last 2 years my MS has gotten worse my gait is terrible and my cognitive skills have worsened. I worked in the medical field for 14 years. My co-workers, clients and doctor think I need to get on...
    ceisinger ceisinger 46-50, M 1 Response Feb 2

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