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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,182 People

    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 36-40, F 1 Response Feb 3

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    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994 18-21, F 2 Responses Oct 29

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    I was diagnosed at the end of last year.

    Since then my symptoms have rapidly got worse and I can barely leave the house for any amount of time. I'm supposed to be starting 3rd year at University in two weeks. Don't know how I'm going to cope.
    MichaelTWilson MichaelTWilson 18-21, M 1 Response Aug 11

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    Some days are good; some are bad.

    I took my injection last night and I am in pain today. I have moments of anger; moments of tears; emotional roller coaster. I want to be normal. And I don't want to have anxiety attacks anymore. I have MS, it doesn't have me. I just have to remember that from time to time...
    sarbear423 sarbear423 26-30, F 5 Responses Jun 16

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    Year 8

    And I'm still not used to it. Every year comes with a new frustrating symptom that I must adapt to and figure out how to live a normal life with it and make it as unnoticable as possible.  From the spasms and tremors to the loss of strenght and control, I have to hold...
    Nunyabuziness Nunyabuziness 26-30, M 18 Responses Oct 7, 2010

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    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill 51-55 5 Responses Apr 17, 2013

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    I was diagnosed 2 years ago at 30.

    I went from healthy everyday to sick everyday. I'm not on medication bc my doc wouldn't change my DMD from Betaseron. I'm alone and house bound due to a nystigmatism. My legs quit working 9 months ago. I could go on about how bad my life sucks. But I just wrote it all out and my...
    starnicolite starnicolite 31-35, F 2 Responses Jul 19

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    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted 26-30 2 Responses Mar 24

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    Hi there, I am 52 and have a little boy

    who is 10 and a husband. I am feeling very low at the moment. I used to be very physical, skiing, dancing, the gym. I am sitting here with a broken ankle because I have painfully fallen 5 times in the last 18 months, with that same ankle collapsing each time. I am sad...
    felinemoonbeast felinemoonbeast 46-50 1 Response Aug 9

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    cra2yk1d cra2yk1d 13-15, F Nov 14

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    My Story-in A Nutshell

    Well, I'm 26 and was just officially diagnosed with MS on June 9th. However, I've suspected I had it for about 4 years now. All doctors and specialists I've seen just treated me like an overweight, depressed, hypochondriac. Telling me my symptoms stemmed from depression, weight...
    TattooedMissez TattooedMissez 26-30, F 17 Responses Aug 17, 2011

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    I was diagnosed when I was 22

    and have since been through some intense challenegs I never thought I would be able to overcome. Because of this, I have created a Facebook group which I hope to help support others, and also do lots of fundraising too. If you were also diagnosed at a young age, message me and I...
    CHRISLATER CHRISLATER 26-30, M Aug 10

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    In general I am very positive about my MS

    (diagnosed almost 6 years ago), but not today. Dealing with the worst period of my life which is saying a lot since my period symptoms got way worse with MS and even worse the last two months since having a miscarriage and thus a complete hormone shift. Now on day three of PRE...
    danc3rz danc3rz 31-35, F 2 Responses Oct 12

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    I also as of today have a 4 month old son.

    😀❤️My neurologist wants me back on the meds, but I can't breastfeed if I do. My Doc says the first 6 months are the best nutrients and what not I can give him. Any moms out there? What are your opinions on this
    PandorasDream PandorasDream 36-40, F 1 Response Jul 14

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    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

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    Relapsing Remitting Ms - Maybe Progressive

    I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never gone to work before... but since this appears to be as good as it gets, I resumed my life. My last brain lesion was the size of a golfball...
    Wiccad Wiccad 41-45, M 7 Responses Jun 1, 2007

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    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 6 Responses Nov 28, 2013

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    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri 22-25, F 22 Responses Jun 20, 2012

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    Well it finally happened.

    I went off the rails. I SERIOUSLY cannot cope with what my life has become. My husband had a cold a few weeks ago (would it really hurt to cover your mouth when you cough???) and of course I caught it. It was particularly nasty. Snot, snot, and more snot. Racking coughs so bad I...
    mrsbuzzkill mrsbuzzkill 51-55 1 Response May 11

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    Remember when EP first started

    and it was about MS? Then, they decided to spread the love and make it about experiences... about anything. It's a wonderful idea, but there are times when I wish the site had stayed more 'pure.' The snowflake disease... is a pain in the BUTT! I never knew much about MS til I...
    DarkwingGoslyn DarkwingGoslyn 31-35 1 Response Jun 27

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    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile 36-40, F 1 Response Dec 14

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    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC 51-55, F 5 Responses Oct 30, 2007

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    Awakening

    Well I have MS. Same story as the rest of you I expect. Symptoms - doctors- wrong diagnosis - lots of nasty tests - diagnosis. Lots of questions. I don't know how the rest of you feel but I feel like a spectator sitting up here in my brain and the body is just doing its own...
    kittybeemine kittybeemine 41-45, F 1 Response Nov 28, 2012

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    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

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    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia 41-45, F 1 Response Oct 21

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    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 22-25, F 3 Responses Feb 6, 2013

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    Is This Really Happening?

    That about sums up how I feel about this whole thing. I try not to think about it. It's easier to get through the day if I don't. I'm clearly in denial and it's been almost 3 months since the diagnosis of MS was given to me. I'm 30, full of life, competitive, hard-working and up...
    ComnSense30 ComnSense30 26-30, M 4 Responses Jan 17, 2013

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    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz 31-35, F 1 Response Nov 22

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 2 Responses Oct 6

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    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill 51-55 Jul 18

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    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted 26-30 4 Responses Jul 1

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

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    When I Became My Disease...

    I have MS.  I was diagnosed at 27.  I had many years including my teens where I had symptoms.  At 20 I bought my first business.  My passion was floral design. My specialty was weddings.  I have done wedding design and coordination for 13 years now. ...
    jenisue jenisue 31-35, F 7 Responses Jan 5, 2008

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 1 Response Oct 21

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    I can't say for sure

    that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do you guys think? They did 2 MRIs one of my brain and one of my spinal column, they found in my brain some leasions and...
    Beatles22 Beatles22 26-30, F 1 Response Sep 8

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    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse 61-65, M 12 Responses Sep 16, 2013

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    Diagnosed With Ms In 2002

    I was diagnosed when I was just 31. I was having weakness in my legs and arms and thought it was just a pinched nerve of sorts. I would just be walking and I would have to stop because I felt I was going to fall. I found out my diagnosis in such a weird way. Started out with...
    Tamzang13 Tamzang13 41-45, F 5 Responses Jan 13, 2013

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    Scary Isn't It?

    It was about November 2004. I had just started a new and exciting job when I woke up one morning to find I had pins and needles in both feet. It was very unpleasant but nothing too amazing - I just assumed I had been lying in bed funny. I went to work but that feeling stayed...
    deleted deleted 26-30 Jan 21, 2013

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    So I have my first neurology appointment today.

    I’m going to see the neurologist who treats my mother and has treated my brother. I don’t expect to have the MRI today, but I expect him to talk to me and maybe do some neurological tests in his office. I want to get the MRI as soon as possible so that I can know for sure if...
    K3022 K3022 31-35, F 6 Responses Jul 3

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    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon 61-65, F 3 Responses Jan 2, 2013

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    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 51-55 2 Responses Feb 26, 2013

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    Some days r fine But some days r just like what

    the hell!!! It's like it likes to play tricks on yu!!! I hate it(•.•)
    jinna69 jinna69 31-35, F 7 Responses Dec 3

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    As I approach my 6 year anniversary of being

    diagnosed with MS, I thought I would share last year's reflections: "This weekend is my 5 year anniversary of being diagnosed with Multiple Sclerosis (MS). This year I am focusing my thoughts on the fact that I recently celebrated 3 years since my last MS relapse. That is more...
    danc3rz danc3rz 31-35, F 2 Responses Oct 17

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    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006

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    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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    Depression Alone!

    I have 3 kids 14, 12 & 8. They are the only one's keeping me still breathing every day! I do have a partner we have been with one another for 10yrs now. I love him but, I don't think well I actually got that vibe that that he does'nt care:'( . He takes me to the hospital with...
    lonely5603 lonely5603 31-35 4 Responses Nov 17, 2012

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    watson8700 watson8700 66-70, M Jul 30

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    I am writing this to show you

    that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support system. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization and IV steroids. Soon...
    Avonexveteran Avonexveteran 56-60, M Sep 30

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    I had a sudden urge to post my experience of MS

    with anyone who would read. I have only been on this journey since January, but boy has it been a long one. I am only 20 years old, and so I was terrified when receiving my diagnosis.. But Not anymore! :) I won't bore you with all the details of my diagnosis (but would be...
    youngwildfreedom youngwildfreedom 18-21, F 4 Responses Jul 6

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    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111 36-40, M 3 Responses Nov 6

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    Good morning everyone,

    I am new here and I was reading a bit about some of you and your experience's. I must say you are all very supportive and I am happy to say that I am pleased that I have started looking at support groups and found all of you...
    j5myers j5myers 31-35, F 2 Responses Jul 19

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