I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,294 People

    I was diagnosed in 2007.

    I was a long distance runner before my diagnosis and kept it up for years but now I can barely walk and am afraid I will have to go on disability soon. As strong as I try to be I'm scared as hell.
    robbyt3545 robbyt3545
    31-35, M
    2 Responses Feb 4, 2015

    I have Multiple Sclerosis.

    it has really messed my body up. Weakness in my legs and super sensitivity on my left side (which is dominant) that causes pain. I also have extra sensitivity in my groin (penis, testicles, upper thigh) area. This causes significant feeling, leading to early...
    DaveShaved DaveShaved
    51-55, M
    Jan 12, 2015

    It was 2013 and I was 26 years old

    when I was diagnosed. I am now 28. It started out with numbness in my extremities and went to cordination difficulties and weakness ending up in paralysis. I went for help 3 times during this episode... 3rd time i was completely paralyzed and was still sent home with the...
    deleted deleted
    26-30
    2 Responses Jan 29, 2015

    I was diagnosed with m.

    s in 1999 hardest 2 things I had to learn to deal with were 1. Understanding that people without m.s cannot relate to the condition AT ALL!. its not their fault how could they possibly understand a hidden illness or understand that the symptoms that they can see are the tip of...
    ledgie1975 ledgie1975
    41-45, M
    1 Response Jun 20, 2015

    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted
    26-30
    1 Response Mar 24, 2014

    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill
    51-55
    Jul 18, 2014

    When I Became My Disease...

    I have MS.  I was diagnosed at 27.  I had many years including my teens where I had symptoms.  At 20 I bought my first business.  My passion was floral design. My specialty was weddings.  I have done wedding design and coordination for 13 years now. ...
    jenisue jenisue
    31-35, F
    6 Responses Jan 5, 2008

    In 2012 I went on the trip of a lifetime to

    Canada on a working holiday. When I came home, I was depressed and watched an awful lot of TV. So when my left eye became sore, and my vision became blurry I ignored it. Until I woke up completely blind. I was diagnosed with optic neuritis. I was told that it would get better on...
    bjoffo bjoffo
    22-25, F
    1 Response Nov 16, 2015
    Happybri123 Happybri123
    18-21, F
    2 Responses Mar 19, 2015

    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri
    22-25, F
    19 Responses Jun 20, 2012

    I am a 47 year old male.

    I was dx with MS in 2013. I am and was the bread winner of my family of 4. In the last 2 years my MS has gotten worse my gait is terrible and my cognitive skills have worsened. I worked in the medical field for 14 years. My co-workers, clients and doctor think I need to get on...
    ceisinger ceisinger
    46-50, M
    1 Response Feb 2, 2015

    I am trying not to dark out.

    The unknown is the scariest part of all of this. And already my symptoms feel so limiting. I want so much more for my life than what MS has to offer. I was just starting to come around to the idea of, "I want to get married" and now I only see that as selfish. I can't put...
    blueturnedgold blueturnedgold
    31-35, F
    3 Responses May 31, 2015
    msfancypants msfancypants
    46-50, F
    6 Responses Aug 9, 2012

    My Story-in A Nutshell

    Well, I'm 26 and was just officially diagnosed with MS on June 9th. However, I've suspected I had it for about 4 years now. All doctors and specialists I've seen just treated me like an overweight, depressed, hypochondriac. Telling me my symptoms stemmed from depression, weight...
    TattooedMissez TattooedMissez
    26-30, F
    16 Responses Aug 17, 2011

    My Life With Ms

    I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed up one day introducing itself to me through fatigue, slow walking and seizures.  The seizures seemed to have the...
    butterflydiva butterflydiva
    36-40
    4 Responses Aug 2, 2010

    So hard to start a relationship with someone

    with me having MS. Each year I have been going downhill Has anyone heard of a uphill?
    Agilezs Agilezs
    61-65, F
    2 Responses Sep 3, 2015

    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill
    51-55
    2 Responses Feb 26, 2013

    I decided to write an update

    since my last entery was a long while ago. I am not taking any MS drugs. However I do take suppliments daily (NAC,B-12, Multi Vitamin, etc.) As well as LDN, an oil every night. I had the CCSVI surgery about 2 years ago. So much that I lost in the first place has been given back...
    Shyness03 Shyness03
    18-21, F
    1 Response Apr 1, 2015

    any tysabri infusion junkies out there?

    so far not so good for me and Im hoping someone can relate or maybe she'd some light on what I'm going through...!?
    Vnel Vnel
    22-25, F
    Dec 21, 2015

    A few days after my 29th birthday I went in

    for a Dr's appt. to check on my eye. I told her about the pain I was experiencing and after about 30 minutes of some basic tests like Pupil Reaction, and checking my Reflexes with that little hammer. She got really concerned about my symptoms, so concerned that she called one...
    AlkalineProdigy AlkalineProdigy
    26-30, M
    Feb 22

    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03
    18-21, F
    7 Responses Nov 28, 2013

    Living With MS

    I have been living with MS for around 27 years but i have never really spoken about it or discussed with anyone. I have told friends and family that i have it and a few others but there is a difference between telling someone that you have MS and explaining your feelings and...
    ClimberJeff ClimberJeff
    56-60, M
    2 Responses Nov 13, 2013

    The doctors recently diagnosed me with MS.

    How do you manage this. Any tips will be helpful. Today I have started my rounds of Steroids.
    Regina1931 Regina1931
    18-21
    Oct 29, 2015

    Has anyone with MS had their vision randomly go

    black for a few seconds? As if someone flicked a light switch off and then back on.
    Idontwanttosendyouapic Idontwanttosendyouapic
    18-21, F
    2 Responses Jan 2

    I had a sudden urge to post my experience of MS

    with anyone who would read. I have only been on this journey since January, but boy has it been a long one. I am only 20 years old, and so I was terrified when receiving my diagnosis.. But Not anymore! :) I won't bore you with all the details of my diagnosis (but would be...
    youngwildfreedom youngwildfreedom
    22-25, F
    4 Responses Jul 6, 2014

    A Journey of 30 Years, With MS As a Teacher...

    Hello All, I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support group in CO.  I'm also a retired clinical and transpersonal hypnotherapist.  Like you, through many ups and downs, I've learned a lot about...
    Shabda1 Shabda1
    56-60, F
    11 Responses Mar 9, 2007

    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse
    61-65, M
    12 Responses Sep 16, 2013

    I was diagnosed with ms in August of 1999,

    so August of this year will be sixteen years of having this disease and it has not been easy, I have my good days and bad days. I have learned a lot of things in life since I have ms, one thing is that people can be quick to make judgements, I usually get you look good and you...
    deleted deleted
    26-30
    1 Response Jun 9, 2015

    Does anyone take copaxone

    or glatopa? How long does it a 20mg injection to be fully absorbed and when can I inject into the same area again? I'm thin so my options are a bit limited.
    7MattW 7MattW
    31-35, M
    1 Response Oct 5, 2015

    I just wish SOMEONE understood me.

    I'm tired of feeling like this. Sometimes I literally feel like my brain is messed up. And no, I'm not crazy.
    beautifullie88 beautifullie88
    26-30, F
    1 Response Aug 4, 2015

    Depression Alone!

    I have 3 kids 14, 12 & 8. They are the only one's keeping me still breathing every day! I do have a partner we have been with one another for 10yrs now. I love him but, I don't think well I actually got that vibe that that he does'nt care:'( . He takes me to the hospital with...
    lonely5603 lonely5603
    31-35
    4 Responses Nov 17, 2012

    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff
    56-60, M
    4 Responses Nov 14, 2013

    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia
    41-45, F
    2 Responses Oct 21, 2014

    I don't have MS but I have a very similar

    condition that works similar but secondary to MS (the affects too) it is called 'Superficial Siderosis of the Central Nervous System' and is caused by an internal bleed releasing iron into the CNS this breaking everything down as it progresses. :(
    Paul2v Paul2v
    26-30, M
    1 Response Aug 6, 2015

    My doctor wrote paper work to my work statiting

    due to my MS I can only work 30 hrs week. My work already told me that they do not have any part time work. I think they going to let me go. I know that if happen God will provide away. I just get really bad headaches and get so tired. I go back tomorrow with paperwork.
    deleted deleted
    26-30
    Jun 29, 2015

    Year 8

    And I'm still not used to it. Every year comes with a new frustrating symptom that I must adapt to and figure out how to live a normal life with it and make it as unnoticable as possible.  From the spasms and tremors to the loss of strenght and control, I have to hold...
    Nunyabuziness Nunyabuziness
    31-35, M
    18 Responses Oct 7, 2010

    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon
    61-65, F
    3 Responses Jan 2, 2013

    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328
    36-40, F
    1 Response Feb 3, 2014

    I’m 26 years old and I was diagnosed with MS

    about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever...
    isa88 isa88
    26-30, F
    2 Responses Feb 3, 2015

    I do not know if I have MS.

    My mother had it and passed away in 2008 from complications related to the illness. I've been having strange symptoms and curious to hear others. Recently, for the past few days my left arm tingles and goes numb. The left side of my face goes numb every on and off but mostly...
    dynamic71 dynamic71
    41-45, M
    6 Responses Apr 11, 2015

    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000
    26-30, F
    14 Responses Mar 13, 2007

    I have recently been diagnosed

    but it's taken over a year to be diagnosed. My hands have been numb for 6 months, I'm having a hard time at work with my hands not working right. I am thinking about finding a new job because mine is very stressful, anyone have any suggestions about work from home? I need...
    Jaclyn80 Jaclyn80
    36-40, F
    1 Response Sep 21, 2015

    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted
    26-30
    4 Responses Jul 1, 2014

    Relapsing Remitting Ms - Maybe Progressive

    I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never gone to work before... but since this appears to be as good as it gets, I resumed my life. My last brain lesion was the size of a golfball...
    Wiccad Wiccad
    41-45, M
    7 Responses Jun 1, 2007

    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile
    41-45, F
    1 Response Dec 14, 2014

    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness
    31-35, M
    26 Responses Mar 12, 2010

    My whole life is falling apart

    before my own eyes...well when there working.
    fuckms fuckms
    36-40, M
    1 Response Jun 16, 2015

    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill
    51-55
    5 Responses Apr 17, 2013

    dx 2003 disability retirement 2009.

    wife left 2013 alone, and wish I would just die, ******* ms is Aweful.... I'd rather have cancer, go thru hell, with the chance to beat it or die and get it the **** over with... ms is a never ending slow miserable mind ****... sit back and watch function after function slowly...
    jr5646 jr5646
    41-45, M
    2 Responses Feb 23, 2015

    I ******* hate this disease.

    Anyone here who's opinion is different?
    DaveShaved DaveShaved
    51-55, M
    2 Responses Jan 16, 2015

    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503
    26-30, F
    3 Responses Feb 6, 2013

    I have Multiple Sclerosis

    and I'm better off than most, blessedly
    AsgardRain AsgardRain
    41-45, F
    1 Response Jan 19, 2015

    Scary Isn't It?

    It was about November 2004. I had just started a new and exciting job when I woke up one morning to find I had pins and needles in both feet. It was very unpleasant but nothing too amazing - I just assumed I had been lying in bed funny. I went to work but that feeling stayed...
    deleted deleted
    26-30
    Jan 21, 2013

    So does anyone here have other "issues" besides

    MS. I have: Migraines Idiopathic thrombocytopenic purpura Diabetes
    DaveShaved DaveShaved
    51-55, M
    Feb 8, 2015

    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl
    41-45, F
    26 Responses Apr 3, 2006

    How do you treat ms? I have not been diagnosed,

    but my grandma does and I am worried I might.
    Happybri123 Happybri123
    18-21, F
    1 Response Mar 22, 2015

    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC
    51-55, F
    5 Responses Oct 30, 2007

    I guess just upset my doctor has me work 30

    week my work is going let me go. I just do not know when. I am so tired even working 6 hrs/ day instead of 8. Ms sucks the life out of you. I do not know what is going to happen I think they are trying get me to quit.
    deleted deleted
    26-30
    1 Response Jul 1, 2015

    Some days r fine But some days r just like what

    the hell!!! It's like it likes to play tricks on yu!!! I hate it(•.•)
    jinna69 jinna69
    36-40, F
    10 Responses Dec 3, 2014
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