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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,203 People

    RazorbladeKisses81 RazorbladeKisses81 31-35, F 2 Responses Oct 6, 2014

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    My Story-in A Nutshell

    Well, I'm 26 and was just officially diagnosed with MS on June 9th. However, I've suspected I had it for about 4 years now. All doctors and specialists I've seen just treated me like an overweight, depressed, hypochondriac. Telling me my symptoms stemmed from depression, weight...
    TattooedMissez TattooedMissez 22-25, F 17 Responses Aug 17, 2011

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    I have Multiple Sclerosis.

    it has really messed my body up. Weakness in my legs and super sensitivity on my left side (which is dominant) that causes pain. I also have extra sensitivity in my groin (penis, testicles, upper thigh) area. This causes significant feeling, leading to early...
    DaveShaved DaveShaved 46-50, M Jan 12

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    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 6 Responses Nov 28, 2013

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    dx 2003 disability retirement 2009.

    wife left 2013 alone, and wish I would just die, ******* ms is Aweful.... I'd rather have cancer, go thru hell, with the chance to beat it or die and get it the **** over with... ms is a never ending slow miserable mind ****... sit back and watch function after function slowly...
    jr5646 jr5646 36-40, M 1 Response Feb 23

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    Awakening

    Well I have MS. Same story as the rest of you I expect. Symptoms - doctors- wrong diagnosis - lots of nasty tests - diagnosis. Lots of questions. I don't know how the rest of you feel but I feel like a spectator sitting up here in my brain and the body is just doing its own...
    kittybeemine kittybeemine 36-40, F 1 Response Nov 28, 2012

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    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill 46-50 Jul 18, 2014

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    I am writing this to show you

    that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support system. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization and IV steroids. Soon...
    Avonexveteran Avonexveteran 56-60, M Sep 30, 2014

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    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted 22-25 4 Responses Jul 1, 2014

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 26-30, M 3 Responses Nov 14, 2013

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 1 Response Oct 21, 2014

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    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted 22-25 2 Responses Mar 24, 2014

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    As I approach my 6 year anniversary of being

    diagnosed with MS, I thought I would share last year's reflections: "This weekend is my 5 year anniversary of being diagnosed with Multiple Sclerosis (MS). This year I am focusing my thoughts on the fact that I recently celebrated 3 years since my last MS relapse. That is more...
    danc3rz danc3rz 31-35, F 2 Responses Oct 17, 2014

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    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 22-25, M 26 Responses Mar 12, 2010

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    In general I am very positive about my MS

    (diagnosed almost 6 years ago), but not today. Dealing with the worst period of my life which is saying a lot since my period symptoms got way worse with MS and even worse the last two months since having a miscarriage and thus a complete hormone shift. Now on day three of PRE...
    danc3rz danc3rz 31-35, F 2 Responses Oct 12, 2014

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    A Journey of 30 Years, With MS As a Teacher...

    Hello All, I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support group in CO.  I'm also a retired clinical and transpersonal hypnotherapist.  Like you, through many ups and downs, I've learned a lot about...
    Shabda1 Shabda1 51-55, F 11 Responses Mar 9, 2007

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    I ******* hate this disease.

    Anyone here who's opinion is different?
    DaveShaved DaveShaved 46-50, M 1 Response Jan 16

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    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 46-50 2 Responses Feb 26, 2013

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    Is This Really Happening?

    That about sums up how I feel about this whole thing. I try not to think about it. It's easier to get through the day if I don't. I'm clearly in denial and it's been almost 3 months since the diagnosis of MS was given to me. I'm 30, full of life, competitive, hard-working and up...
    ComnSense30 ComnSense30 22-25, M 4 Responses Jan 17, 2013

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    I was diagnosed at the end of last year.

    Since then my symptoms have rapidly got worse and I can barely leave the house for any amount of time. I'm supposed to be starting 3rd year at University in two weeks. Don't know how I'm going to cope.
    MichaelTWilson MichaelTWilson 18-21, M 1 Response Aug 11, 2014

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    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 22-25, F 14 Responses Mar 13, 2007

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    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile 36-40, F 1 Response Dec 14, 2014

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    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill 46-50 5 Responses Apr 17, 2013

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    Some days r fine But some days r just like what

    the hell!!! It's like it likes to play tricks on yu!!! I hate it(•.•)
    jinna69 jinna69 31-35, F 11 Responses Dec 3, 2014

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    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 18-21, F 3 Responses Feb 6, 2013

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    I think I might have it I was looking more into

    it yesterday because something scary happened. It is really hot and humid where I'm at and I was out in it for an hour and my left arm with completely numb. Normally when it happens its fingers that go numb not my entire arm. And I have had a few incidents where my hands start...
    birdsofprey93 birdsofprey93 31-35, F 1 Response Aug 6, 2014

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    Well it's been a lil over a week

    since the flare-up started and now, I've been able to see with both eyes instead of one for about 4 days. Everything is still fuzzy and strained but i can see!! Woo!! The vertigo went away yesterday and man I tell ya, I don't miss that. That's the worst one, I think. I had...
    RazorbladeKisses81 RazorbladeKisses81 31-35, F 1 Response Oct 16, 2014

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    Diagnosed With Ms In 2002

    I was diagnosed when I was just 31. I was having weakness in my legs and arms and thought it was just a pinched nerve of sorts. I would just be walking and I would have to stop because I felt I was going to fall. I found out my diagnosis in such a weird way. Started out with...
    Tamzang13 Tamzang13 36-40, F 5 Responses Jan 13, 2013

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    My Life With Ms

    I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed up one day introducing itself to me through fatigue, slow walking and seizures.  The seizures seemed to have the...
    butterflydiva butterflydiva 31-35 5 Responses Aug 2, 2010

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    So does anyone here have other "issues" besides

    MS. I have: Migraines Idiopathic thrombocytopenic purpura Diabetes
    DaveShaved DaveShaved 46-50, M Feb 8

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    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC 46-50, F 5 Responses Oct 30, 2007

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    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994 18-21, F 2 Responses Oct 29, 2014

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    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111 36-40, M 3 Responses Nov 6, 2014

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    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 36-40, F 1 Response Feb 3, 2014

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    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz 31-35, F 1 Response Nov 22, 2014

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    I was diagnosed 2 years ago at 30.

    I went from healthy everyday to sick everyday. I'm not on medication bc my doc wouldn't change my DMD from Betaseron. I'm alone and house bound due to a nystigmatism. My legs quit working 9 months ago. I could go on about how bad my life sucks. But I just wrote it all out and my...
    starnicolite starnicolite 31-35, F 2 Responses Jul 19, 2014

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    I have Multiple Sclerosis

    and I'm better off than most, blessedly
    AsgardRain AsgardRain 41-45, F 1 Response Jan 19

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    Scary Isn't It?

    It was about November 2004. I had just started a new and exciting job when I woke up one morning to find I had pins and needles in both feet. It was very unpleasant but nothing too amazing - I just assumed I had been lying in bed funny. I went to work but that feeling stayed...
    deleted deleted 22-25 Jan 21, 2013

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    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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    I was diagnosed in 2007.

    I was a long distance runner before my diagnosis and kept it up for years but now I can barely walk and am afraid I will have to go on disability soon. As strong as I try to be I'm scared as hell.
    robbyt3545 robbyt3545 31-35, M 1 Response Feb 4

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    I am a 47 year old male.

    I was dx with MS in 2013. I am and was the bread winner of my family of 4. In the last 2 years my MS has gotten worse my gait is terrible and my cognitive skills have worsened. I worked in the medical field for 14 years. My co-workers, clients and doctor think I need to get on...
    ceisinger ceisinger 46-50, M 1 Response Feb 2

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    watson8700 watson8700 66-70, M Jul 30, 2014

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    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon 56-60, F 3 Responses Jan 2, 2013

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    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia 41-45, F 2 Responses Oct 21, 2014

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    I was diagnosed when I was 22

    and have since been through some intense challenegs I never thought I would be able to overcome. Because of this, I have created a Facebook group which I hope to help support others, and also do lots of fundraising too. If you were also diagnosed at a young age, message me and I...
    CHRISLATER CHRISLATER 26-30, M Aug 10, 2014

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    Good morning everyone,

    I am new here and I was reading a bit about some of you and your experience's. I must say you are all very supportive and I am happy to say that I am pleased that I have started looking at support groups and found all of you...
    j5myers j5myers 31-35, F 2 Responses Jul 19, 2014

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    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 36-40, F 26 Responses Apr 3, 2006