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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,206 People

    My Story-in A Nutshell

    Well, I'm 26 and was just officially diagnosed with MS on June 9th. However, I've suspected I had it for about 4 years now. All doctors and specialists I've seen just treated me like an overweight, depressed, hypochondriac. Telling me my symptoms stemmed from depression, weight...
    TattooedMissez TattooedMissez 26-30, F 17 Responses Aug 17, 2011

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    I think I might have it I was looking more into

    it yesterday because something scary happened. It is really hot and humid where I'm at and I was out in it for an hour and my left arm with completely numb. Normally when it happens its fingers that go numb not my entire arm. And I have had a few incidents where my hands start...
    birdsofprey93 birdsofprey93 31-35, F 1 Response Aug 6, 2014

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    Some days r fine But some days r just like what

    the hell!!! It's like it likes to play tricks on yu!!! I hate it(•.•)
    jinna69 jinna69 31-35, F 11 Responses Dec 3, 2014

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    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 36-40, F 1 Response Feb 3, 2014

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    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111 36-40, M 3 Responses Nov 6, 2014

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    I have Multiple Sclerosis

    and I'm better off than most, blessedly
    AsgardRain AsgardRain 41-45, F 1 Response Jan 19

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    cra2yk1d cra2yk1d 13-15, F Nov 14, 2014

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    Awakening

    Well I have MS. Same story as the rest of you I expect. Symptoms - doctors- wrong diagnosis - lots of nasty tests - diagnosis. Lots of questions. I don't know how the rest of you feel but I feel like a spectator sitting up here in my brain and the body is just doing its own...
    kittybeemine kittybeemine 41-45, F 1 Response Nov 28, 2012

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    I can't say for sure

    that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do you guys think? They did 2 MRIs one of my brain and one of my spinal column, they found in my brain some leasions and...
    Beatles22 Beatles22 26-30, F 2 Responses Sep 8, 2014

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    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994 18-21, F 2 Responses Oct 29, 2014

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    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC 51-55, F 5 Responses Oct 30, 2007

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    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse 61-65, M 13 Responses Sep 16, 2013

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    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

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    Is This Really Happening?

    That about sums up how I feel about this whole thing. I try not to think about it. It's easier to get through the day if I don't. I'm clearly in denial and it's been almost 3 months since the diagnosis of MS was given to me. I'm 30, full of life, competitive, hard-working and up...
    ComnSense30 ComnSense30 26-30, M 4 Responses Jan 17, 2013

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    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted 26-30 2 Responses Mar 24, 2014

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    I have Multiple Sclerosis.

    it has really messed my body up. Weakness in my legs and super sensitivity on my left side (which is dominant) that causes pain. I also have extra sensitivity in my groin (penis, testicles, upper thigh) area. This causes significant feeling, leading to early...
    DaveShaved DaveShaved 46-50, M Jan 12

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    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill 51-55 Jul 18, 2014

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    So does anyone here have other "issues" besides

    MS. I have: Migraines Idiopathic thrombocytopenic purpura Diabetes
    DaveShaved DaveShaved 46-50, M Feb 8

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    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile 36-40, F 1 Response Dec 14, 2014

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 1 Response Oct 21, 2014

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    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill 51-55 5 Responses Apr 17, 2013

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    I’m 26 years old and I was diagnosed with MS

    about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever...
    isa88 isa88 26-30, F 1 Response Feb 3

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    Year 8

    And I'm still not used to it. Every year comes with a new frustrating symptom that I must adapt to and figure out how to live a normal life with it and make it as unnoticable as possible.  From the spasms and tremors to the loss of strenght and control, I have to hold...
    Nunyabuziness Nunyabuziness 26-30, M 18 Responses Oct 7, 2010

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    Well it's been a lil over a week

    since the flare-up started and now, I've been able to see with both eyes instead of one for about 4 days. Everything is still fuzzy and strained but i can see!! Woo!! The vertigo went away yesterday and man I tell ya, I don't miss that. That's the worst one, I think. I had...
    RazorbladeKisses81 RazorbladeKisses81 31-35, F 1 Response Oct 16, 2014

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    dx 2003 disability retirement 2009.

    wife left 2013 alone, and wish I would just die, ******* ms is Aweful.... I'd rather have cancer, go thru hell, with the chance to beat it or die and get it the **** over with... ms is a never ending slow miserable mind ****... sit back and watch function after function slowly...
    jr5646 jr5646 41-45, M 1 Response Feb 23

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    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri 22-25, F 22 Responses Jun 20, 2012

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    RazorbladeKisses81 RazorbladeKisses81 31-35, F 2 Responses Oct 6, 2014

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

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    msfancypants msfancypants 41-45, F 7 Responses Aug 9, 2012

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    I was diagnosed in 2007.

    I was a long distance runner before my diagnosis and kept it up for years but now I can barely walk and am afraid I will have to go on disability soon. As strong as I try to be I'm scared as hell.
    robbyt3545 robbyt3545 31-35, M 1 Response Feb 4

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    watson8700 watson8700 66-70, M Jul 30, 2014

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    A Journey of 30 Years, With MS As a Teacher...

    Hello All, I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support group in CO.  I'm also a retired clinical and transpersonal hypnotherapist.  Like you, through many ups and downs, I've learned a lot about...
    Shabda1 Shabda1 56-60, F 11 Responses Mar 9, 2007

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    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia 41-45, F 2 Responses Oct 21, 2014

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    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006

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    My Life With Ms

    I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed up one day introducing itself to me through fatigue, slow walking and seizures.  The seizures seemed to have the...
    butterflydiva butterflydiva 36-40 5 Responses Aug 2, 2010

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    When I Became My Disease...

    I have MS.  I was diagnosed at 27.  I had many years including my teens where I had symptoms.  At 20 I bought my first business.  My passion was floral design. My specialty was weddings.  I have done wedding design and coordination for 13 years now. ...
    jenisue jenisue 31-35, F 7 Responses Jan 5, 2008

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    It was 2013 and I was 26 years old

    when I was diagnosed. I am now 28. It started out with numbness in my extremities and went to cordination difficulties and weakness ending up in paralysis. I went for help 3 times during this episode... 3rd time i was completely paralyzed and was still sent home with the...
    JennaMB86 JennaMB86 26-30, F 3 Responses Jan 29

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    I ******* hate this disease.

    Anyone here who's opinion is different?
    DaveShaved DaveShaved 46-50, M 1 Response Jan 16

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    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

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    I was diagnosed when I was 22

    and have since been through some intense challenegs I never thought I would be able to overcome. Because of this, I have created a Facebook group which I hope to help support others, and also do lots of fundraising too. If you were also diagnosed at a young age, message me and I...
    CHRISLATER CHRISLATER 26-30, M Aug 10, 2014

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    I am writing this to show you

    that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support system. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization and IV steroids. Soon...
    Avonexveteran Avonexveteran 56-60, M Sep 30, 2014

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    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 22-25, F 3 Responses Feb 6, 2013

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    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 6 Responses Nov 28, 2013

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    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 51-55 2 Responses Feb 26, 2013

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    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz 31-35, F 1 Response Nov 22, 2014

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    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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