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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,262 People

    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted 26-30 2 Responses Mar 24, 2014

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    I was diagnosed in 2007.

    I was a long distance runner before my diagnosis and kept it up for years but now I can barely walk and am afraid I will have to go on disability soon. As strong as I try to be I'm scared as hell.
    robbyt3545 robbyt3545 31-35, M 2 Responses Feb 4

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    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 9 Responses Nov 28, 2013

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

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    I guess just upset my doctor has me work 30

    week my work is going let me go. I just do not know when. I am so tired even working 6 hrs/ day instead of 8. Ms sucks the life out of you. I do not know what is going to happen I think they are trying get me to quit.
    wolfeeegirl wolfeeegirl 41-45, F Jul 1

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    Scary Isn't It?

    It was about November 2004. I had just started a new and exciting job when I woke up one morning to find I had pins and needles in both feet. It was very unpleasant but nothing too amazing - I just assumed I had been lying in bed funny. I went to work but that feeling stayed...
    deleted deleted 26-30 Jan 21, 2013

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    dx 2003 disability retirement 2009.

    wife left 2013 alone, and wish I would just die, ******* ms is Aweful.... I'd rather have cancer, go thru hell, with the chance to beat it or die and get it the **** over with... ms is a never ending slow miserable mind ****... sit back and watch function after function slowly...
    jr5646 jr5646 41-45, M 2 Responses Feb 23

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    I just wish SOMEONE understood me.

    I'm tired of feeling like this. Sometimes I literally feel like my brain is messed up. And no, I'm not crazy.
    beautifullie88 beautifullie88 26-30, F Aug 4

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    I am trying not to dark out.

    The unknown is the scariest part of all of this. And already my symptoms feel so limiting. I want so much more for my life than what MS has to offer. I was just starting to come around to the idea of, "I want to get married" and now I only see that as selfish. I can't put...
    blueturnedgold blueturnedgold 31-35, F 3 Responses May 31

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    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

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    Happybri123 Happybri123 18-21, F 2 Responses Mar 19

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    Hi All, What were/are your symptoms?

    I'm going through a range of tests now. Neurologist was tight lipped as she wanted to rule other stuff out. I will have blood work done to see if it's autoimmune (I've actually had a test that ruled this out a couple of years back). My reflexes are brisk, have white lesions...
    Lucylilly711 Lucylilly711 31-35, F 1 Response Jun 20

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    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile 41-45, F 1 Response Dec 14, 2014

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    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 26-30, F 3 Responses Feb 6, 2013

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    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 51-55 2 Responses Feb 26, 2013

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    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

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    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill 51-55 5 Responses Apr 17, 2013

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    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 36-40, F 1 Response Feb 3, 2014

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    I am in the chair getting my 32nd infusion

    as I write this. I was diagnosed 3 years ago. I was diagnosed at the same age as my mother was when she was diagnosed. I still work full-time and raise my two little ones. Everyone tells me how strong I am. I don't feel strong. I just do what I need to do. What else can one do...
    painterchick painterchick 36-40, F 1 Response Jul 1

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    How do you treat ms? I have not been diagnosed,

    but my grandma does and I am worried I might.
    Happybri123 Happybri123 18-21, F 1 Response Mar 22

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    I was diagnosed with ms in August of 1999,

    so August of this year will be sixteen years of having this disease and it has not been easy, I have my good days and bad days. I have learned a lot of things in life since I have ms, one thing is that people can be quick to make judgements, I usually get you look good and you...
    deleted deleted 26-30 1 Response Jun 9

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    My Story-in A Nutshell

    Well, I'm 26 and was just officially diagnosed with MS on June 9th. However, I've suspected I had it for about 4 years now. All doctors and specialists I've seen just treated me like an overweight, depressed, hypochondriac. Telling me my symptoms stemmed from depression, weight...
    TattooedMissez TattooedMissez 26-30, F 17 Responses Aug 17, 2011

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    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted 26-30 4 Responses Jul 1, 2014

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    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse 61-65, M 12 Responses Sep 16, 2013

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    I don't have MS but I have a very similar

    condition that works similar but secondary to MS (the affects too) it is called 'Superficial Siderosis of the Central Nervous System' and is caused by an internal bleed releasing iron into the CNS this breaking everything down as it progresses. :(
    Paul2v Paul2v 26-30, M Aug 6

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    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon 61-65, F 3 Responses Jan 2, 2013

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    I have Multiple Sclerosis.

    it has really messed my body up. Weakness in my legs and super sensitivity on my left side (which is dominant) that causes pain. I also have extra sensitivity in my groin (penis, testicles, upper thigh) area. This causes significant feeling, leading to early...
    DaveShaved DaveShaved 46-50, M Jan 12

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    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994 18-21, F 2 Responses Oct 29, 2014

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    Depression Alone!

    I have 3 kids 14, 12 & 8. They are the only one's keeping me still breathing every day! I do have a partner we have been with one another for 10yrs now. I love him but, I don't think well I actually got that vibe that that he does'nt care:'( . He takes me to the hospital with...
    lonely5603 lonely5603 31-35 4 Responses Nov 17, 2012

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    cra2yk1d cra2yk1d 13-15, F Nov 14, 2014

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    I ******* hate this disease.

    Anyone here who's opinion is different?
    DaveShaved DaveShaved 46-50, M 1 Response Jan 16

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    So does anyone here have other "issues" besides

    MS. I have: Migraines Idiopathic thrombocytopenic purpura Diabetes
    DaveShaved DaveShaved 46-50, M Feb 8

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    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz 31-35, F 1 Response Nov 22, 2014

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    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill 51-55 Jul 18, 2014

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    Relapsing Remitting Ms - Maybe Progressive

    I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never gone to work before... but since this appears to be as good as it gets, I resumed my life. My last brain lesion was the size of a golfball...
    Wiccad Wiccad 41-45, M 7 Responses Jun 1, 2007

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    I’m 26 years old and I was diagnosed with MS

    about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever...
    isa88 isa88 26-30, F 2 Responses Feb 3

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    I decided to write an update

    since my last entery was a long while ago. I am not taking any MS drugs. However I do take suppliments daily (NAC,B-12, Multi Vitamin, etc.) As well as LDN, an oil every night. I had the CCSVI surgery about 2 years ago. So much that I lost in the first place has been given back...
    Shyness03 Shyness03 16-17, F 1 Response Apr 1

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    It was 2013 and I was 26 years old

    when I was diagnosed. I am now 28. It started out with numbness in my extremities and went to cordination difficulties and weakness ending up in paralysis. I went for help 3 times during this episode... 3rd time i was completely paralyzed and was still sent home with the...
    JennaMB86 JennaMB86 26-30, F 3 Responses Jan 29

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    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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    My whole life is falling apart

    before my own eyes...well when there working.
    fuckms fuckms 36-40, M 1 Response Jun 16

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    I am a 47 year old male.

    I was dx with MS in 2013. I am and was the bread winner of my family of 4. In the last 2 years my MS has gotten worse my gait is terrible and my cognitive skills have worsened. I worked in the medical field for 14 years. My co-workers, clients and doctor think I need to get on...
    ceisinger ceisinger 46-50, M 1 Response Feb 2

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    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri 22-25, F 20 Responses Jun 20, 2012

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    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111 36-40, M 3 Responses Nov 6, 2014

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    I do not know if I have MS.

    My mother had it and passed away in 2008 from complications related to the illness. I've been having strange symptoms and curious to hear others. Recently, for the past few days my left arm tingles and goes numb. The left side of my face goes numb every on and off but mostly...
    dynamic71 dynamic71 41-45, M 6 Responses Apr 11

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    msfancypants msfancypants 46-50, F 6 Responses Aug 9, 2012

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    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006