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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,134 People

    My Long Ms Journey - I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with...
    JfromOC JfromOC 51-55, F 5 Responses Oct 30, 2007

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    Support Group... -
    msfancypants msfancypants 46-50, F Nov 25, 2013

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    I look back on my years on my celebrity death match with my ms. My opponent is always the same, our struggle usually ending in a draw. I may have lost this bit here, but this seems...
    mrsbuzzkill mrsbuzzkill 51-55 7 Responses Dec 6, 2013

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    I had two brain MRIS within 2 years and both came back clear for MS but found out I have retention cysts in my sinuses. I am so confused. Do I push a spinal MRI or LP? I had optic...
    njoy13 njoy13 31-35, F Mar 28

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    Depression Alone! - I have 3 kids 14, 12 & 8. They are the only one's keeping me still breathing every day! I do have a partner we have been with one another for 10yrs now. I love...
    lonely5603 lonely5603 31-35 4 Responses Nov 17, 2012

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    Dear Parents.... - Depression. It’s seen as weak and being a excuse that you can overcome. But to us with MS it’s a combination of chemical imbalance. It’s not seen as being...
    NaughtyGabi NaughtyGabi 18-21, F 5 Responses Dec 28, 2012

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    MS Has Me - It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some...
    RandomUniverse RandomUniverse 61-65, M 10 Responses Sep 16, 2013

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    I'm Never Giving Up On Life. - November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease...
    Shyness03 Shyness03 16-17, F 6 Responses Nov 28, 2013

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    A Lack Of Understanding Of MS!!! - My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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    Does this happen to anyone else?.... Sometimes I will be talking, and mid sentence, I will just stop.... It's like my brain just shuts down. I just stare straight forward with no...
    powerNpain powerNpain 26-30, M 1 Response Feb 25

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    Relapsing Remitting Ms - Maybe Progressive - I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never...
    Wiccad Wiccad 41-45, M 6 Responses Jun 1, 2007

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    My Mum Has Ms - I was about 7 when she was "sent away".She seemed alright at first, she was just going in hospitals - I mostly didn't understand what was going on at that age.Now...
    ElectricDuck ElectricDuck 18-21, M 2 Responses Oct 23, 2011

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk - I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

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    Living with this disease since 2002. I'm starting to feel useless, frustrated and not understood by the people that should matter. Oh yeah and ALWAYS (surprise) TIRED!!!! I know I...
    Tamzang13 Tamzang13 41-45, F 4 Responses Jan 21

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    A Journey of 30 Years, With MS As a Teacher... - Hello All, I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support...
    Shabda1 Shabda1 56-60, F 11 Responses Mar 9, 2007

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    Awakening - Well I have MS. Same story as the rest of you I expect. Symptoms - doctors- wrong diagnosis - lots of nasty tests - diagnosis. Lots of questions. I don't know how the...
    kittybeemine kittybeemine 41-45, F 1 Response Nov 28, 2012

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    I'm not completely sure I have multiple sclerosis, I have some symptoms but the test results were inconclusive. My neurologist is sending me to an MS specialist. I'm starting to...
    JossiDaedog JossiDaedog 36-40, F 3 Responses Jan 9

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    What The Hell Is Wrong With Me. - My life had always been crazy..so by the time I noticed,it was too late. I was loosing my memory, I was acting crazy, everything about me had...
    yehteil yehteil 41-45, F 6 Responses Oct 21, 2011

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    Heavy... -  Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

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    MS - I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

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    How Ridiculous !! - I cannot walk forward the connection is missing !! I can walk backwards, sideways, but not forward or up and down stairs !!! Finished 5 days if IV solumedrol...
    ibelong2some1 ibelong2some1 41-45, F 2 Responses Nov 24, 2013

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    Hi all, I want to update my post... In May this year I wrote a part of my experience... :) here.. EP Link I did my MRI in December this year, 11 December, with 16 months of...
    dulceemira dulceemira 26-30, F 2 Responses Dec 28, 2013

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    Support Network..... - Hello.... and thank you for stopping by ! Is anybody interested in having an M.S. Support and networking group ?Please message me if you are interested.
    msfancypants msfancypants 46-50, F 5 Responses Nov 25, 2013

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    "That's the thing about pain; it's meant to be felt" My legs hurt so bad. I barely have energy. I feel like I hold my loved ones back. I feel like I'm held back. It's not fair. I...
    sarbear423 sarbear423 22-25, F 3 Responses Mar 10

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    The Spinal Tap - I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and &ldquo...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006

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    Emotional Incontinence - "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly...
    mrsbuzzkill mrsbuzzkill 51-55 1 Response Feb 26, 2013

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    I Don't Know Who This Person (me) Is. - I started seeking help about 5 or six years ago.  I was diagnosed everything from irritable bowl syndrom to a simple you're crazy there is...
    fieldsmurry fieldsmurry 41-45 3 Responses Jan 11, 2012

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    My MS Still Active - I just got my MRI scan results and it doesn't look good, I have new active white dots and they are more than last year scan. I have been told by my doctor to...
    sofyablank sofyablank 26-30, F 3 Responses Nov 17, 2013

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    Hi new here! Has anyone self diagnosed themselves with MS and been right? I go in for an MRI in a couple of weeks and am super anxious as I fall into every category of the most...
    njoy13 njoy13 31-35, F 6 Responses Feb 25

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    I was diagnosed when my 4th child was 9 months old. I remember reading EVERY book I could find. They were ALL horrible!!! I wasn't that bad at the time, and I thought "I should...
    Karmacaughtme Karmacaughtme 36-40, F 6 Responses Jan 10

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    Multiple Sclerosis..... - Hello Friends,Hope all is well within your world. Let me know how you are coping !
    msfancypants msfancypants 46-50, F 2 Responses Nov 25, 2013

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    My Husband Has Multiple Sclerosis And My Heart Is Breaking - When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips...
    MrsTeri MrsTeri 22-25, F 23 Responses Jun 20, 2012

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    Diagnosed With Ms In 2002 - I was diagnosed when I was just 31. I was having weakness in my legs and arms and thought it was just a pinched nerve of sorts. I would just be walking...
    Tamzang13 Tamzang13 41-45, F 3 Responses Jan 13, 2013

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    I take low dose naltrexone for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm...
    Secretme52 Secretme52 61-65, F 1 Response Mar 24

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    Symptoms Ignored... - In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about...
    ChicaBee503 ChicaBee503 22-25, F 3 Responses Feb 6, 2013

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    I was diagnosed about 5 years ago after going blind in one eye. I had optic neuritis, doesn't alway mean you have M.S. but a lot of people with M.S. get diagnosed that way. I was...
    Beth403 Beth403 41-45, F 1 Response Feb 15

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    Living With MS - I have been living with MS for around 27 years but i have never really spoken about it or discussed with anyone. I have told friends and family that i have it and...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 13, 2013

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    I was diagnosed with MS about a year after I was also diagnosed with Fibromyalgia. The symptoms of both are difficult at times and lately the fatigue had really begun to mess with...
    writtenonmyheart writtenonmyheart 22-25, F 3 Responses Jan 10

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    I hope this is okay. I am being tested for MS this week (merry christmas..), and frankly i am pretty scared.. My symptoms started 5 months ago, and went away for a while so i...
    AshleyDeHaven AshleyDeHaven 22-25, F 4 Responses Dec 20, 2013

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    Good day ! My husband has MS. It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping...
    Andrea0328 Andrea0328 31-35, F 2 Responses Feb 3

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    Diseases With No Cures - Labeled with Disease with no cures My productive, active life was stolen from me! No one ask, if I wanted my choices in life, taken away? I stand on...
    Livinginpeace Livinginpeace 41-45, F 5 Responses Jun 7, 2008

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    so tired of the constant pain,balance and coordination issues, keep waiting for this last relapse to finish its thing and go away but it has been 3 months and i don't see it easing...
    deleted deleted 26-30 3 Responses Feb 18

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    I Have Multiple Sclerosis - Hi there. My name is James. I was diagnosed with MS 3 years ago after I had a bout of optic neuritis. My MRI's have shown a few lesions. There is no...
    beatconnection beatconnection 36-40, M 8 Responses Dec 2, 2013

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    I've been diagnosed with multiple sclerosis Since 2010, It's mild relapsing remitting. I find myself having a hard time with the exhaustion and the pain, and migraines and...
    Sjae2009 Sjae2009 26-30, F 2 Responses Mar 5

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    My Life With Ms - I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed...
    butterflydiva butterflydiva 36-40 5 Responses Aug 2, 2010

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    I Have Multiple Sclerosis - I was diagnosed in 2000 with Multiple Sclerosis (MS) and have been doing well overall. I woke up yesterday with a bit of tingling in my legs so I...
    peavers peavers 36-40, F 8 Responses Nov 19, 2013

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    Is This Really Happening? - That about sums up how I feel about this whole thing. I try not to think about it. It's easier to get through the day if I don't. I'm clearly in denial...
    ComnSense30 ComnSense30 26-30, M 3 Responses Jan 17, 2013

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    I have a very physically demanding job. Having MS is really starting to tear me up. Just wondering if anyone has good advice regarding fatigue... I feel like I haven't slept in...
    powerNpain powerNpain 26-30, M 3 Responses Dec 6, 2013

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    I was told by a rn to check outDr.Wahls. a diet that can turn ms around. Expensive diet and strong will power and dedication is a must. Just wanted to know my fellow MSers thoughts...
    peachaubs peachaubs 26-30 3 Responses Jan 26

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    Letting Her Go - For the first 28 years of our married life my wife and i did everything together but my ability to do the simple things like dealing with airports, shopping and...
    ClimberJeff ClimberJeff 51-55, M 1 Response Nov 17, 2013

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    You Are All So Brave! - I was diagnosed this past Feb (2010) and was conclusive from just my MRI, symptoms and the fact it was reoccuring. I am not completely without symptoms but...
    seanhardman seanhardman 31-35 7 Responses Sep 8, 2010

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    Heads You Win, Tales I Lose - When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from...
    mrsbuzzkill mrsbuzzkill 51-55 4 Responses Apr 17, 2013