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I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,166 People

    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill 51-55 Jul 18

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    When I Became My Disease...

    I have MS.  I was diagnosed at 27.  I had many years including my teens where I had symptoms.  At 20 I bought my first business.  My passion was floral design. My specialty was weddings.  I have done wedding design and coordination for 13 years now. ...
    jenisue jenisue 31-35, F 7 Responses Jan 5, 2008

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    My Story-in A Nutshell

    Well, I'm 26 and was just officially diagnosed with MS on June 9th. However, I've suspected I had it for about 4 years now. All doctors and specialists I've seen just treated me like an overweight, depressed, hypochondriac. Telling me my symptoms stemmed from depression, weight...
    TattooedMissez TattooedMissez 26-30, F 19 Responses Aug 17, 2011

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    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

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    Relapsing Remitting Ms - Maybe Progressive

    I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never gone to work before... but since this appears to be as good as it gets, I resumed my life. My last brain lesion was the size of a golfball...
    Wiccad Wiccad 41-45, M 7 Responses Jun 1, 2007

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    Year 8

    And I'm still not used to it. Every year comes with a new frustrating symptom that I must adapt to and figure out how to live a normal life with it and make it as unnoticable as possible.  From the spasms and tremors to the loss of strenght and control, I have to hold...
    Nunyabuziness Nunyabuziness 26-30, M 18 Responses Oct 7, 2010

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    I was diagnosed at the end of last year.

    Since then my symptoms have rapidly got worse and I can barely leave the house for any amount of time. I'm supposed to be starting 3rd year at University in two weeks. Don't know how I'm going to cope.
    MichaelTWilson MichaelTWilson 18-21, M 1 Response Aug 11

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    Well it finally happened.

    I went off the rails. I SERIOUSLY cannot cope with what my life has become. My husband had a cold a few weeks ago (would it really hurt to cover your mouth when you cough???) and of course I caught it. It was particularly nasty. Snot, snot, and more snot. Racking coughs so bad I...
    mrsbuzzkill mrsbuzzkill 51-55 1 Response May 11

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    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted 26-30 2 Responses Mar 24

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    I had a really bad reaction to my Copaxone

    medication and it was really scary. Has anyone else experienced this?
    winstonlove05 winstonlove05 26-30, F 4 Responses May 8

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    Living With MS

    I have been living with MS for around 27 years but i have never really spoken about it or discussed with anyone. I have told friends and family that i have it and a few others but there is a difference between telling someone that you have MS and explaining your feelings and...
    ClimberJeff ClimberJeff 51-55, M 3 Responses Nov 13, 2013

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    Diagnosed With Ms In 2002

    I was diagnosed when I was just 31. I was having weakness in my legs and arms and thought it was just a pinched nerve of sorts. I would just be walking and I would have to stop because I felt I was going to fall. I found out my diagnosis in such a weird way. Started out with...
    Tamzang13 Tamzang13 41-45, F 5 Responses Jan 13, 2013

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    I can't say for sure

    that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do you guys think? They did 2 MRIs one of my brain and one of my spinal column, they found in my brain some leasions and...
    Beatles22 Beatles22 26-30, F 1 Response 6 days ago

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    Scary Isn't It?

    It was about November 2004. I had just started a new and exciting job when I woke up one morning to find I had pins and needles in both feet. It was very unpleasant but nothing too amazing - I just assumed I had been lying in bed funny. I went to work but that feeling stayed...
    deleted deleted 26-30 Jan 21, 2013

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    A Journey of 30 Years, With MS As a Teacher...

    Hello All, I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support group in CO.  I'm also a retired clinical and transpersonal hypnotherapist.  Like you, through many ups and downs, I've learned a lot about...
    Shabda1 Shabda1 56-60, F 11 Responses Mar 9, 2007

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    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri 22-25, F 23 Responses Jun 20, 2012

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    I was diagnosed 2 years ago at 30.

    I went from healthy everyday to sick everyday. I'm not on medication bc my doc wouldn't change my DMD from Betaseron. I'm alone and house bound due to a nystigmatism. My legs quit working 9 months ago. I could go on about how bad my life sucks. But I just wrote it all out and my...
    starnicolite starnicolite 31-35, F 1 Response Jul 19

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    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC 51-55, F 5 Responses Oct 30, 2007

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    Is This Really Happening?

    That about sums up how I feel about this whole thing. I try not to think about it. It's easier to get through the day if I don't. I'm clearly in denial and it's been almost 3 months since the diagnosis of MS was given to me. I'm 30, full of life, competitive, hard-working and up...
    ComnSense30 ComnSense30 26-30, M 3 Responses Jan 17, 2013

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    I also as of today have a 4 month old son.

    😀❤️My neurologist wants me back on the meds, but I can't breastfeed if I do. My Doc says the first 6 months are the best nutrients and what not I can give him. Any moms out there? What are your opinions on this
    PandorasDream PandorasDream 36-40, F 1 Response Jul 14

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    I had a sudden urge to post my experience of MS

    with anyone who would read. I have only been on this journey since January, but boy has it been a long one. I am only 20 years old, and so I was terrified when receiving my diagnosis.. But Not anymore! :) I won't bore you with all the details of my diagnosis (but would be...
    youngwildfreedom youngwildfreedom 18-21, F 6 Responses Jul 6

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    I think I might have it I was looking more into

    it yesterday because something scary happened. It is really hot and humid where I'm at and I was out in it for an hour and my left arm with completely numb. Normally when it happens its fingers that go numb not my entire arm. And I have had a few incidents where my hands start...
    birdsofprey93 birdsofprey93 31-35, F 1 Response Aug 6

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    https://medium.com/cured-disease-naturally/11d2ebe47162
    EsotericLove EsotericLove 22-25, F 1 Response Feb 18

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    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse 61-65, M 11 Responses Sep 16, 2013

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    Ha! Ha! The joke's on me!

    (Again) This past Friday I had my monthly tysabri infusion scheduled for 10:30 am. It's a two hour drive, and with early morning coffee on the road, by the time we got to the clinic my husband knew I had to go pee desperately. He offered to check me in while I used the...
    mrsbuzzkill mrsbuzzkill 51-55 Apr 27

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    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 6 Responses Nov 28, 2013

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    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 51-55 2 Responses Feb 26, 2013

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    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 36-40, F 1 Response Feb 3

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    I had two brain MRIS within 2 years

    and both came back clear for MS but found out I have retention cysts in my sinuses. I am so confused. Do I push a spinal MRI or LP? I had optic neuritis in 2009. Right now constant symptoms are extreme fatigue, dizziness every time I get up or do simple things like vacuuming...
    njoy13 njoy13 31-35, F 3 Responses Mar 28

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    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

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    I was diagnosed about 5 years ago

    after going blind in one eye. I had optic neuritis, doesn't alway mean you have M.S. but a lot of people with M.S. get diagnosed that way. I was lucky enough to get into a drug study right away, so I had free meds and MRIs for 3 years. I'm on a good medication so I've been...
    Beth403 Beth403 41-45, F 2 Responses Feb 15

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    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon 61-65, F 2 Responses Jan 2, 2013

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    My Life With Ms

    I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed up one day introducing itself to me through fatigue, slow walking and seizures.  The seizures seemed to have the...
    butterflydiva butterflydiva 36-40 5 Responses Aug 2, 2010

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    watson8700 watson8700 66-70, M Jul 30

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    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill 51-55 5 Responses Apr 17, 2013

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    msfancypants msfancypants 46-50, F 6 Responses Aug 9, 2012

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    Good morning everyone,

    I am new here and I was reading a bit about some of you and your experience's. I must say you are all very supportive and I am happy to say that I am pleased that I have started looking at support groups and found all of you...
    j5myers j5myers 26-30, F 1 Response Jul 19

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    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006

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    Hi new here! Has anyone self diagnosed

    themselves with MS and been right? I go in for an MRI in a couple of weeks and am super anxious as I fall into every category of the most likely person to have MS. I have been super athletic my whole life and push my body to the limits and know what I am capable of. Right now I...
    njoy13 njoy13 31-35, F 5 Responses Feb 25

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    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

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    So I have my first neurology appointment today.

    I’m going to see the neurologist who treats my mother and has treated my brother. I don’t expect to have the MRI today, but I expect him to talk to me and maybe do some neurological tests in his office. I want to get the MRI as soon as possible so that I can know for sure if...
    K3022 K3022 31-35, F 6 Responses Jul 3

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    "That's the thing about pain; it's meant to be

    felt" My legs hurt so bad. I barely have energy. I feel like I hold my loved ones back. I feel like I'm held back. It's not fair. I hate being in so much pain. Why though? Why were my days assigned a destiny as so. They say "always have hope." I say, how can I hope when I...
    sarbear423 sarbear423 26-30, F 5 Responses Mar 10

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    I've been diagnosed with multiple sclerosis

    Since 2010, It's mild relapsing remitting. I find myself having a hard time with the exhaustion and the pain, and migraines and numbness. I've slipped into a bit of depression at the fact I rarely feel okay. It's frustrating and I'm tired of being sick and tired.
    Sjae2009 Sjae2009 26-30, F 4 Responses Mar 5

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    Some days are good; some are bad.

    I took my injection last night and I am in pain today. I have moments of anger; moments of tears; emotional roller coaster. I want to be normal. And I don't want to have anxiety attacks anymore. I have MS, it doesn't have me. I just have to remember that from time to time...
    sarbear423 sarbear423 26-30, F 4 Responses Jun 16

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    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    andimann andimann 41-45, F 3 Responses Jul 1

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    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 22-25, F 3 Responses Feb 6, 2013

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    Hi there, I am 52 and have a little boy

    who is 10 and a husband. I am feeling very low at the moment. I used to be very physical, skiing, dancing, the gym. I am sitting here with a broken ankle because I have painfully fallen 5 times in the last 18 months, with that same ankle collapsing each time. I am sad...
    felinemoonbeast felinemoonbeast 46-50 Aug 9

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    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

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    So my MRI appointment is scheduled

    for Friday at 1pm. One more step before I find out if this is MS or if it’s something else. C is coming with me. I asked her to look at the scans come up and tell me if she sees anything that looks like lesions. She doesn’t want to. I am really anxious to find out. Wish me...
    K3022 K3022 31-35, F 2 Responses Jul 8

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    I've know for 4yrs, but I've always expected

    that something was wrong. I'm scared and lost. I beleve in God, but st the the same time I shy away from the lord because my faith is a question now. Suffering from CRS ( always) and tseems sometimes to much is on my plate. will barely remember half of what I say or what anyone...
    Sapphira1 Sapphira1 31-35 3 Responses Apr 24

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    so tired of the constant pain,

    balance and coordination issues, keep waiting for this last relapse to finish its thing and go away but it has been 3 months and i don't see it easing up yet,and to add to this since i look fine i still get comments from people that ask how long do you think you can milk this for...
    deleted deleted 26-30 2 Responses Feb 18

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    Remember when EP first started

    and it was about MS? Then, they decided to spread the love and make it about experiences... about anything. It's a wonderful idea, but there are times when I wish the site had stayed more 'pure.' The snowflake disease... is a pain in the BUTT! I never knew much about MS til I...
    DarkwingGoslyn DarkwingGoslyn 31-35 1 Response Jun 27

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    Does this happen to anyone else?

    .... Sometimes I will be talking, and mid sentence, I will just stop.... It's like my brain just shuts down. I just stare straight forward with no thoughts. When I come to: I forgot what I was trying to say. (This obviously happens only when I am "flared up")
    powerNpain powerNpain 26-30, M 1 Response Feb 25

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