Post

I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,135 People

    Hi all, I want to update my post.

    .. In May this year I wrote a part of my experience... :) here.. EP Link I did my MRI in December this year, 11 December, with 16 months of high, high doses D3. Result: no new lesions, no active lesions, so no relapses. It's my first MRI with such a short answer. Every day I...
    dulceemira dulceemira 26-30, F 2 Responses Dec 28, 2013

    Your Response

    Cancel

    When I Became My Disease...

    I have MS.  I was diagnosed at 27.  I had many years including my teens where I had symptoms.  At 20 I bought my first business.  My passion was floral design. My specialty was weddings.  I have done wedding design and coordination for 13 years now. ...
    jenisue jenisue 31-35, F 6 Responses Jan 5, 2008

    Your Response

    Cancel

    Hi new here! Has anyone self diagnosed

    themselves with MS and been right? I go in for an MRI in a couple of weeks and am super anxious as I fall into every category of the most likely person to have MS. I have been super athletic my whole life and push my body to the limits and know what I am capable of. Right now I...
    njoy13 njoy13 31-35, F 6 Responses Feb 25

    Your Response

    Cancel

    I was diagnosed with MS about a year

    after I was also diagnosed with Fibromyalgia. The symptoms of both are difficult at times and lately the fatigue had really begun to mess with me. I was a very active person before my diagnosis, but it is difficult to not succumb to the pain and exhaustion.
    writtenonmyheart writtenonmyheart 22-25, F 3 Responses Jan 10

    Your Response

    Cancel

    My Mum Has Ms

    I was about 7 when she was "sent away".She seemed alright at first, she was just going in hospitals - I mostly didn't understand what was going on at that age.Now she is in a Nursing Home - she can barley remember what happened several hours ago, cannot see very well or control...
    ElectricDuck ElectricDuck 18-21, M 2 Responses Oct 23, 2011

    Your Response

    Cancel

    Support Network.....

    Hello.... and thank you for stopping by ! Is anybody interested in having an M.S. Support and networking group ?Please message me if you are interested.
    msfancypants msfancypants 46-50, F 5 Responses Nov 25, 2013

    Your Response

    Cancel

    Dear Parents....

    Depression. It’s seen as weak and being a excuse that you can overcome. But to us with MS it’s a combination of chemical imbalance. It’s not seen as being weak or anything like that. The signs aren’t the same as normal depression and are often ignored. This type of...
    NaughtyGabi NaughtyGabi 18-21, F 5 Responses Dec 28, 2012

    Your Response

    Cancel

    I hope this is okay. I am being tested

    for MS this week (merry christmas..), and frankly i am pretty scared.. My symptoms started 5 months ago, and went away for a while so i thought i had a bug, then 3 months ago BAM! and it hasn't stopped since. Dizziness, blurred vision, exhaustion, muscle twitches and limb...
    AshleyDeHaven AshleyDeHaven 22-25, F 4 Responses Dec 20, 2013

    Your Response

    Cancel

    I was diagnosed when my 4th child was 9 months

    old. I remember reading EVERY book I could find. They were ALL horrible!!! I wasn't that bad at the time, and I thought "I should write a MS HAPPY BOOK." I did clinical trials for years. Got Gilenya APPROVED by being a guinea pig but my insurance WOULDN'T APPROVE IT because "I...
    Karmacaughtme Karmacaughtme 36-40, F 6 Responses Jan 10

    Your Response

    Cancel

    Is This Really Happening?

    That about sums up how I feel about this whole thing. I try not to think about it. It's easier to get through the day if I don't. I'm clearly in denial and it's been almost 3 months since the diagnosis of MS was given to me. I'm 30, full of life, competitive, hard-working and up...
    ComnSense30 ComnSense30 26-30, M 3 Responses Jan 17, 2013

    Your Response

    Cancel

    Living with this disease

    since 2002. I'm starting to feel useless, frustrated and not understood by the people that should matter. Oh yeah and ALWAYS (surprise) TIRED!!!! I know I need some sort of help, when I left a message for my MS specialist the head nurse calls back and said that my Dr. Can't do...
    Tamzang13 Tamzang13 41-45, F 4 Responses Jan 21

    Your Response

    Cancel

    I was diagnosed about 5 years ago

    after going blind in one eye. I had optic neuritis, doesn't alway mean you have M.S. but a lot of people with M.S. get diagnosed that way. I was lucky enough to get into a drug study right away, so I had free meds and MRIs for 3 years. I'm on a good medication so I've been...
    Beth403 Beth403 41-45, F 1 Response Feb 15

    Your Response

    Cancel

    Multiple Sclerosis.....

    Hello Friends,Hope all is well within your world. Let me know how you are coping !
    msfancypants msfancypants 46-50, F 2 Responses Nov 25, 2013

    Your Response

    Cancel

    My Husband Has Multiple Sclerosis And My Heart Is Breaking

    When I first met my husband I knew of the condition multiple sclerosis; I knew the treatment methods, the steroid trips to the hospitals, I knew the diets and the preventative measures to help battle this ongoing incurable and debilitating disease. What I did NOT know was how...
    MrsTeri MrsTeri 22-25, F 23 Responses Jun 20, 2012

    Your Response

    Cancel

    "That's the thing about pain; it's meant to be

    felt" My legs hurt so bad. I barely have energy. I feel like I hold my loved ones back. I feel like I'm held back. It's not fair. I hate being in so much pain. Why though? Why were my days assigned a destiny as so. They say "always have hope." I say, how can I hope when I...
    sarbear423 sarbear423 22-25, F 3 Responses Mar 10

    Your Response

    Cancel

    I Don't Know Who This Person (me) Is.

    I started seeking help about 5 or six years ago.  I was diagnosed everything from irritable bowl syndrom to a simple you're crazy there is nothing wrong with you.  i gave up for about 2 years and then Jan 3, 2011 i noticed foot droop  - that was new and the unrelentless...
    fieldsmurry fieldsmurry 41-45 3 Responses Jan 11, 2012

    Your Response

    Cancel

    Symptoms Ignored...

    In my last post I detailed how I was diagnosed with Multiple Sclerosis. During my hospital stay and the weeks after, I had a lot of time to think about symptoms I may have had in the past. Now that I know what's wrong with me, I see that the symptoms started long ago. Being...
    ChicaBee503 ChicaBee503 22-25, F 3 Responses Feb 6, 2013

    Your Response

    Cancel
    msfancypants msfancypants 46-50, F Nov 25, 2013

    Your Response

    Cancel

    I was told by a rn to check outDr.

    Wahls. a diet that can turn ms around. Expensive diet and strong will power and dedication is a must. Just wanted to know my fellow MSers thoughts on this.
    peachaubs peachaubs 26-30 3 Responses Jan 26

    Your Response

    Cancel

    I'm not completely sure I have multiple

    sclerosis, I have some symptoms but the test results were inconclusive. My neurologist is sending me to an MS specialist. I'm starting to get scared here :( the thing is my memory is really getting worse and I know that's a symptom of MS. I have a lot of pain and I lose my...
    JossiDaedog JossiDaedog 36-40, F 3 Responses Jan 9

    Your Response

    Cancel

    My Life With Ms

    I was diagnosed with MS in April 09.  This month changed my life forever.  MS just showed up one day.  It's still hanging around.  MS showed up one day introducing itself to me through fatigue, slow walking and seizures.  The seizures seemed to have the...
    butterflydiva butterflydiva 36-40 5 Responses Aug 2, 2010

    Your Response

    Cancel

    MS Has Me

    It always rankles me to read that "You have MS, it doesn't have you." That is total bullshit. It has me. It has changed my life's arc. I try my best to adapt, but some things like exhaustion can't be compensated for. MS makes the rules, and we've got to play by them. And the...
    RandomUniverse RandomUniverse 61-65, M 10 Responses Sep 16, 2013

    Your Response

    Cancel

    Depression Alone!

    I have 3 kids 14, 12 & 8. They are the only one's keeping me still breathing every day! I do have a partner we have been with one another for 10yrs now. I love him but, I don't think well I actually got that vibe that that he does'nt care:'( . He takes me to the hospital with...
    lonely5603 lonely5603 31-35 4 Responses Nov 17, 2012

    Your Response

    Cancel

    Anxiety

    I have really bad anxiety due to my MS. And I feel like it's getting worse. I feel like the only thing to keep me calm is to be alone; or asleep. It's rather lonely. 😔
    sarbear423 sarbear423 22-25, F 2 Responses Nov 27, 2013

    Your Response

    Cancel

    My Left Arm Stopped Working And I Starrted Walking Like A Drunk

    I was at my laptop. And I reached for a smoke or something. My arm just shot out straight and I couldn't curl it back up again. I held it back to its former position and tried again with the same results. I was just so surprised that I couldnt control my arm. After a while this...
    Beausejour Beausejour 31-35, M 3 Responses Nov 14, 2013

    Your Response

    Cancel

    so tired of the constant pain,

    balance and coordination issues, keep waiting for this last relapse to finish its thing and go away but it has been 3 months and i don't see it easing up yet,and to add to this since i look fine i still get comments from people that ask how long do you think you can milk this for...
    deleted deleted 26-30 3 Responses Feb 18

    Your Response

    Cancel

    Living With MS

    I have been living with MS for around 27 years but i have never really spoken about it or discussed with anyone. I have told friends and family that i have it and a few others but there is a difference between telling someone that you have MS and explaining your feelings and...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 13, 2013

    Your Response

    Cancel

    Diagnosed With Ms In 2002

    I was diagnosed when I was just 31. I was having weakness in my legs and arms and thought it was just a pinched nerve of sorts. I would just be walking and I would have to stop because I felt I was going to fall. I found out my diagnosis in such a weird way. Started out with...
    Tamzang13 Tamzang13 41-45, F 3 Responses Jan 13, 2013

    Your Response

    Cancel

    How Ridiculous !!

    I cannot walk forward the connection is missing !! I can walk backwards, sideways, but not forward or up and down stairs !!! Finished 5 days if IV solumedrol last night . Haven't slept due to steroid insomnia. My walking continues to get worse. I'm positive a wheelchair would...
    ibelong2some1 ibelong2some1 41-45, F 2 Responses Nov 24, 2013

    Your Response

    Cancel

    Letting Her Go

    For the first 28 years of our married life my wife and i did everything together but my ability to do the simple things like dealing with airports, shopping and site seeing is now a complicated event. Things like airports have to be prepared, sometimes months in advance...
    ClimberJeff ClimberJeff 51-55, M 1 Response Nov 17, 2013

    Your Response

    Cancel

    You Are All So Brave!

    I was diagnosed this past Feb (2010) and was conclusive from just my MRI, symptoms and the fact it was reoccuring. I am not completely without symptoms but I have rehabilitated myslf to a level where I pass neurological tests for the most part and nobody would know to watch me...
    seanhardman seanhardman 31-35 7 Responses Sep 8, 2010

    Your Response

    Cancel

    I Have Multiple Sclerosis

    I was diagnosed in 2000 with Multiple Sclerosis (MS) and have been doing well overall. I woke up yesterday with a bit of tingling in my legs so I foresee a trip to the doctor, possibly the hospital in a day or two. I hate having this disease because it is so unpredictable and...
    peavers peavers 36-40, F 8 Responses Nov 19, 2013

    Your Response

    Cancel

    My Long Ms Journey

    I consider myself to be one of the "luckier" MS ones. For the most part my MS has been what they used to call benign MS. For me that meant I got away with hiding my MS and being the Queen of Denial. Looking back I, along with my friends and family, can remember all sorts of...
    JfromOC JfromOC 51-55, F 5 Responses Oct 30, 2007

    Your Response

    Cancel

    I've been diagnosed with multiple sclerosis

    Since 2010, It's mild relapsing remitting. I find myself having a hard time with the exhaustion and the pain, and migraines and numbness. I've slipped into a bit of depression at the fact I rarely feel okay. It's frustrating and I'm tired of being sick and tired.
    Sjae2009 Sjae2009 26-30, F 2 Responses Mar 5

    Your Response

    Cancel

    Heavy...

     Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I...
    Nunyabuziness Nunyabuziness 26-30, M 26 Responses Mar 12, 2010

    Your Response

    Cancel

    Hi! I have several friends with MS in the US

    and Spain (were I am originally from). In my job I interact with many people facing MS and other autoimmune illnesses and find it inspiring and personally motivating, regardless of my health status. My passion is understanding the challenges associated with tough health...
    pdapenacherry pdapenacherry 26-30, F 1 Response Dec 4, 2013

    Your Response

    Cancel

    The Spinal Tap

    I was still shaking from the spinal tap. The medical term is “lumbar puncture.” Any combination of words that contains “spinal” and “puncture” was going to terrify me. It did. From working in a law firm that handled personal injury cases, I...
    ZenGrrrl ZenGrrrl 41-45, F 26 Responses Apr 3, 2006

    Your Response

    Cancel

    A Lack Of Understanding Of MS!!!

    My son got married on Tuesday and we had to go to the marriage office before hand. I parked outside the door in a disabled space as my ability to walk is not too great. I knew that i would be standing off and on all day so i took a walking stick with me. As i got out of my car...
    ClimberJeff ClimberJeff 51-55, M 4 Responses Nov 14, 2013

    Your Response

    Cancel

    A Journey of 30 Years, With MS As a Teacher...

    Hello All, I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support group in CO.  I'm also a retired clinical and transpersonal hypnotherapist.  Like you, through many ups and downs, I've learned a lot about...
    Shabda1 Shabda1 56-60, F 11 Responses Mar 9, 2007

    Your Response

    Cancel

    Does this happen to anyone else?

    .... Sometimes I will be talking, and mid sentence, I will just stop.... It's like my brain just shuts down. I just stare straight forward with no thoughts. When I come to: I forgot what I was trying to say. (This obviously happens only when I am "flared up")
    powerNpain powerNpain 26-30, M 1 Response Feb 25

    Your Response

    Cancel

    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03 16-17, F 6 Responses Nov 28, 2013

    Your Response

    Cancel

    I Have Multiple Sclerosis

    Hi there. My name is James. I was diagnosed with MS 3 years ago after I had a bout of optic neuritis. My MRI's have shown a few lesions. There is no denying I clinically have MS; but there is one weird aspect to it that i dont understand. I have had no other symptoms since, and...
    beatconnection beatconnection 36-40, M 8 Responses Dec 2, 2013

    Your Response

    Cancel

    Diseases With No Cures

    Labeled with Disease with no cures My productive, active life was stolen from me! No one ask, if I wanted my choices in life, taken away? I stand on the sidelines and watch others lives pass me by. My heart wants to scream OUT, I didn't ask to walk this road. I love...
    Livinginpeace Livinginpeace 41-45, F 5 Responses Jun 7, 2008

    Your Response

    Cancel

    I had two brain MRIS within 2 years

    and both came back clear for MS but found out I have retention cysts in my sinuses. I am so confused. Do I push a spinal MRI or LP? I had optic neuritis in 2009. Right now constant symptoms are extreme fatigue, dizziness every time I get up or do simple things like vacuuming...
    njoy13 njoy13 31-35, F 1 Response Mar 28

    Your Response

    Cancel

    Awakening

    Well I have MS. Same story as the rest of you I expect. Symptoms - doctors- wrong diagnosis - lots of nasty tests - diagnosis. Lots of questions. I don't know how the rest of you feel but I feel like a spectator sitting up here in my brain and the body is just doing its own...
    kittybeemine kittybeemine 41-45, F 1 Response Nov 28, 2012

    Your Response

    Cancel

    Emotional Incontinence

    "Emotional Incontinence" how's that for a name? If you suddenly erupt into a flood of tears for no apparent reason, you know what I mean. If you suddenly erupt into a flood of tears in excess of what should just be a minor sadness, you know what I mean. I to this day cannot...
    mrsbuzzkill mrsbuzzkill 51-55 1 Response Feb 26, 2013

    Your Response

    Cancel

    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    Secretme52 Secretme52 61-65, F 1 Response Mar 24

    Your Response

    Cancel

    I took my medication last night.

    I have been taking Avonex since I was 17. I am 25 now; after 8 years, my body is still not used to it. 😕 Before I was on my medication i was so happy. Now, I have anxiety like no other. Sometimes I'll be so happy and then be so anxious and than be fine again. You would think...
    sarbear423 sarbear423 22-25, F 5 Responses Dec 18, 2013

    Your Response

    Cancel

    I have a very physically demanding job.

    Having MS is really starting to tear me up. Just wondering if anyone has good advice regarding fatigue... I feel like I haven't slept in weeks. Thanks! ~n8
    powerNpain powerNpain 26-30, M 3 Responses Dec 6, 2013

    Your Response

    Cancel

    My MS Still Active

    I just got my MRI scan results and it doesn't look good, I have new active white dots and they are more than last year scan. I have been told by my doctor to start treatment and change my life style immediately, I told him I cant start any meds yet because I am trying to get...
    sofyablank sofyablank 26-30, F 3 Responses Nov 17, 2013

    Your Response

    Cancel

    What The Hell Is Wrong With Me.

    My life had always been crazy..so by the time I noticed,it was too late. I was loosing my memory, I was acting crazy, everything about me had changed,including how I looked. My legs were getting, for lack of a better word, weird looking, less muscle,thin, shakey...What the hell...
    yehteil yehteil 41-45, F 6 Responses Oct 21, 2011

    Your Response

    Cancel

    65 Years Old And Just Diagnosed With Ms Two Months Ago

    I have had MANY physical complaints for over 20 years. Doctors always minimized the symptoms. Most said it was just anxiety. I went to emergency room for a tightening and pain in my chest with burning sensation going from sternum to my sides. Had difficulty breathing. MS hug? I...
    bellabon bellabon 61-65, F 1 Response Jan 2, 2013

    Your Response

    Cancel

    Heads You Win, Tales I Lose

    When I was first diagnosed with ms, medically there was baclofen, steroids and not much else. No ABC drugs, nothing on the table for me to choose from as to where to go from here. The first neurologist was a real ****. He basically said whatever you have now is all you will have...
    mrsbuzzkill mrsbuzzkill 51-55 4 Responses Apr 17, 2013

    Your Response

    Cancel

    Relapsing Remitting Ms - Maybe Progressive

    I have the kind where after my last attack I didn't get back to my previous baseline.  How I feel right now, I would have never gone to work before... but since this appears to be as good as it gets, I resumed my life. My last brain lesion was the size of a golfball...
    Wiccad Wiccad 41-45, M 6 Responses Jun 1, 2007

    Your Response

    Cancel

    MS

    I found out shortly after I had turned 21 that I had Multiple Sclerosis. I was forced to quit my job and quit school. I pretty much had to re arrange my life.  The doctors told me that I had had it before the age of 19 but this was the first time that it had shown itself. I...
    gigglemonster2000 gigglemonster2000 26-30, F 14 Responses Mar 13, 2007

    Your Response

    Cancel

    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328 31-35, F 2 Responses Feb 3

    Your Response

    Cancel