I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,292 People

    Some days r fine But some days r just like what

    the hell!!! It's like it likes to play tricks on yu!!! I hate it(•.•)
    jinna69 jinna69
    36-40, F
    10 Responses Dec 3, 2014

    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz
    31-35, F
    1 Response Nov 22, 2014
    cra2yk1d cra2yk1d
    16-17, F
    Nov 14, 2014

    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111
    41-45, M
    3 Responses Nov 6, 2014

    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994
    22-25, F
    2 Responses Oct 29, 2014

    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia
    41-45, F
    2 Responses Oct 21, 2014
    RazorbladeKisses81 RazorbladeKisses81
    36-40, F
    1 Response Oct 21, 2014

    As I approach my 6 year anniversary of being

    diagnosed with MS, I thought I would share last year's reflections: "This weekend is my 5 year anniversary of being diagnosed with Multiple Sclerosis (MS). This year I am focusing my thoughts on the fact that I recently celebrated 3 years since my last MS relapse. That is more...
    danc3rz danc3rz
    31-35, F
    2 Responses Oct 17, 2014

    Well it's been a lil over a week

    since the flare-up started and now, I've been able to see with both eyes instead of one for about 4 days. Everything is still fuzzy and strained but i can see!! Woo!! The vertigo went away yesterday and man I tell ya, I don't miss that. That's the worst one, I think. I had...
    RazorbladeKisses81 RazorbladeKisses81
    36-40, F
    Oct 16, 2014

    In general I am very positive about my MS

    (diagnosed almost 6 years ago), but not today. Dealing with the worst period of my life which is saying a lot since my period symptoms got way worse with MS and even worse the last two months since having a miscarriage and thus a complete hormone shift. Now on day three of PRE...
    danc3rz danc3rz
    31-35, F
    2 Responses Oct 12, 2014
    RazorbladeKisses81 RazorbladeKisses81
    36-40, F
    1 Response Oct 6, 2014

    I am writing this to show you

    that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support system. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization and IV steroids. Soon...
    Avonexveteran Avonexveteran
    61-65, M
    Sep 30, 2014

    I can't say for sure

    that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do you guys think? They did 2 MRIs one of my brain and one of my spinal column, they found in my brain some leasions and...
    Beatles22 Beatles22
    31-35, F
    2 Responses Sep 8, 2014

    I was diagnosed at the end of last year.

    Since then my symptoms have rapidly got worse and I can barely leave the house for any amount of time. I'm supposed to be starting 3rd year at University in two weeks. Don't know how I'm going to cope.
    MichaelTWilson MichaelTWilson
    22-25, M
    1 Response Aug 11, 2014

    I was diagnosed when I was 22

    and have since been through some intense challenegs I never thought I would be able to overcome. Because of this, I have created a Facebook group which I hope to help support others, and also do lots of fundraising too. If you were also diagnosed at a young age, message me and I...
    CHRISLATER CHRISLATER
    31-35, M
    Aug 10, 2014

    Hi there, I am 52 and have a little boy

    who is 10 and a husband. I am feeling very low at the moment. I used to be very physical, skiing, dancing, the gym. I am sitting here with a broken ankle because I have painfully fallen 5 times in the last 18 months, with that same ankle collapsing each time. I am sad...
    felinemoonbeast felinemoonbeast
    46-50
    2 Responses Aug 9, 2014

    I think I might have it I was looking more into

    it yesterday because something scary happened. It is really hot and humid where I'm at and I was out in it for an hour and my left arm with completely numb. Normally when it happens its fingers that go numb not my entire arm. And I have had a few incidents where my hands start...
    birdsofprey93 birdsofprey93
    36-40, F
    1 Response Aug 6, 2014
    watson8700 watson8700
    66-70, M
    Jul 30, 2014

    Good morning everyone,

    I am new here and I was reading a bit about some of you and your experience's. I must say you are all very supportive and I am happy to say that I am pleased that I have started looking at support groups and found all of you...
    j5myers j5myers
    31-35, F
    2 Responses Jul 19, 2014

    I was diagnosed 2 years ago at 30.

    I went from healthy everyday to sick everyday. I'm not on medication bc my doc wouldn't change my DMD from Betaseron. I'm alone and house bound due to a nystigmatism. My legs quit working 9 months ago. I could go on about how bad my life sucks. But I just wrote it all out and my...
    starnicolite starnicolite
    36-40, F
    1 Response Jul 19, 2014

    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill
    51-55
    Jul 18, 2014

    I also as of today have a 4 month old son.

    😀❤️My neurologist wants me back on the meds, but I can't breastfeed if I do. My Doc says the first 6 months are the best nutrients and what not I can give him. Any moms out there? What are your opinions on this
    PandorasDream PandorasDream
    36-40, F
    1 Response Jul 14, 2014

    I had a sudden urge to post my experience of MS

    with anyone who would read. I have only been on this journey since January, but boy has it been a long one. I am only 20 years old, and so I was terrified when receiving my diagnosis.. But Not anymore! :) I won't bore you with all the details of my diagnosis (but would be...
    youngwildfreedom youngwildfreedom
    22-25, F
    4 Responses Jul 6, 2014

    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted
    26-30
    4 Responses Jul 1, 2014

    Some days are good; some are bad.

    I took my injection last night and I am in pain today. I have moments of anger; moments of tears; emotional roller coaster. I want to be normal. And I don't want to have anxiety attacks anymore. I have MS, it doesn't have me. I just have to remember that from time to time...
    sarbear423 sarbear423
    26-30, F
    4 Responses Jun 16, 2014

    Well it finally happened.

    I went off the rails. I SERIOUSLY cannot cope with what my life has become. My husband had a cold a few weeks ago (would it really hurt to cover your mouth when you cough???) and of course I caught it. It was particularly nasty. Snot, snot, and more snot. Racking coughs so bad I...
    mrsbuzzkill mrsbuzzkill
    51-55
    1 Response May 11, 2014

    I had a really bad reaction to my Copaxone

    medication and it was really scary. Has anyone else experienced this?
    winstonlove05 winstonlove05
    26-30, F
    3 Responses May 8, 2014

    Ha! Ha! The joke's on me!

    (Again) This past Friday I had my monthly tysabri infusion scheduled for 10:30 am. It's a two hour drive, and with early morning coffee on the road, by the time we got to the clinic my husband knew I had to go pee desperately. He offered to check me in while I used the...
    mrsbuzzkill mrsbuzzkill
    51-55
    Apr 27, 2014

    I've know for 4yrs, but I've always expected

    that something was wrong. I'm scared and lost. I beleve in God, but st the the same time I shy away from the lord because my faith is a question now. Suffering from CRS ( always) and tseems sometimes to much is on my plate. will barely remember half of what I say or what anyone...
    Sapphira1 Sapphira1
    31-35
    3 Responses Apr 24, 2014

    I had two brain MRIS within 2 years

    and both came back clear for MS but found out I have retention cysts in my sinuses. I am so confused. Do I push a spinal MRI or LP? I had optic neuritis in 2009. Right now constant symptoms are extreme fatigue, dizziness every time I get up or do simple things like vacuuming...
    njoy13 njoy13
    36-40, F
    4 Responses Mar 28, 2014

    I take low dose naltrexone

    for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm no longer so totally fatigued. I can walk my dogs. And I still work 40 hours a week.
    deleted deleted
    26-30
    1 Response Mar 24, 2014

    "That's the thing about pain; it's meant to be

    felt" My legs hurt so bad. I barely have energy. I feel like I hold my loved ones back. I feel like I'm held back. It's not fair. I hate being in so much pain. Why though? Why were my days assigned a destiny as so. They say "always have hope." I say, how can I hope when I...
    sarbear423 sarbear423
    26-30, F
    5 Responses Mar 10, 2014

    I've been diagnosed with multiple sclerosis

    Since 2010, It's mild relapsing remitting. I find myself having a hard time with the exhaustion and the pain, and migraines and numbness. I've slipped into a bit of depression at the fact I rarely feel okay. It's frustrating and I'm tired of being sick and tired.
    Sjae2009 Sjae2009
    31-35, F
    5 Responses Mar 5, 2014

    Hi new here! Has anyone self diagnosed

    themselves with MS and been right? I go in for an MRI in a couple of weeks and am super anxious as I fall into every category of the most likely person to have MS. I have been super athletic my whole life and push my body to the limits and know what I am capable of. Right now I...
    njoy13 njoy13
    36-40, F
    5 Responses Feb 25, 2014

    Does this happen to anyone else?

    .... Sometimes I will be talking, and mid sentence, I will just stop.... It's like my brain just shuts down. I just stare straight forward with no thoughts. When I come to: I forgot what I was trying to say. (This obviously happens only when I am "flared up")
    powerNpain powerNpain
    31-35, M
    1 Response Feb 25, 2014

    so tired of the constant pain,

    balance and coordination issues, keep waiting for this last relapse to finish its thing and go away but it has been 3 months and i don't see it easing up yet,and to add to this since i look fine i still get comments from people that ask how long do you think you can milk this for...
    deleted deleted
    26-30
    1 Response Feb 18, 2014

    https://medium.com/cured-disease-naturally/11d2ebe47162
    deleted deleted
    26-30
    1 Response Feb 18, 2014

    I was diagnosed about 5 years ago

    after going blind in one eye. I had optic neuritis, doesn't alway mean you have M.S. but a lot of people with M.S. get diagnosed that way. I was lucky enough to get into a drug study right away, so I had free meds and MRIs for 3 years. I'm on a good medication so I've been...
    Beth403 Beth403
    46-50, F
    2 Responses Feb 15, 2014

    Good day ! My husband has MS.

    It was benign MS, after 10 yrs MS attacked his both eyes and became blurred almost loss of vision. Then after several treatments w/ steroids hoping for his eyesight to come back, unfortunately it didn't work. Right-after that, numbness of his arms happened and his both legs is...
    Andrea0328 Andrea0328
    36-40, F
    1 Response Feb 3, 2014

    I was told by a rn to check outDr.

    Wahls. a diet that can turn ms around. Expensive diet and strong will power and dedication is a must. Just wanted to know my fellow MSers thoughts on this.
    peachaubs peachaubs
    26-30
    3 Responses Jan 26, 2014

    Living with this disease

    since 2002. I'm starting to feel useless, frustrated and not understood by the people that should matter. Oh yeah and ALWAYS (surprise) TIRED!!!! I know I need some sort of help, when I left a message for my MS specialist the head nurse calls back and said that my Dr. Can't do...
    Tamzang13 Tamzang13
    41-45, F
    3 Responses Jan 21, 2014

    I was diagnosed with MS about a year

    after I was also diagnosed with Fibromyalgia. The symptoms of both are difficult at times and lately the fatigue had really begun to mess with me. I was a very active person before my diagnosis, but it is difficult to not succumb to the pain and exhaustion.
    writtenonmyheart writtenonmyheart
    26-30, F
    2 Responses Jan 10, 2014

    I was diagnosed when my 4th child was 9 months

    old. I remember reading EVERY book I could find. They were ALL horrible!!! I wasn't that bad at the time, and I thought "I should write a MS HAPPY BOOK." I did clinical trials for years. Got Gilenya APPROVED by being a guinea pig but my insurance WOULDN'T APPROVE IT because "I...
    Karmacaughtme Karmacaughtme
    41-45, F
    5 Responses Jan 10, 2014

    I'm not completely sure I have multiple

    sclerosis, I have some symptoms but the test results were inconclusive. My neurologist is sending me to an MS specialist. I'm starting to get scared here :( the thing is my memory is really getting worse and I know that's a symptom of MS. I have a lot of pain and I lose my...
    JossiDaedog JossiDaedog
    41-45, F
    2 Responses Jan 9, 2014

    Hi all, I want to update my post.

    .. In May this year I wrote a part of my experience... :) here.. EP Link I did my MRI in December this year, 11 December, with 16 months of high, high doses D3. Result: no new lesions, no active lesions, so no relapses. It's my first MRI with such a short answer. Every day I...
    dulceemira dulceemira
    31-35, F
    2 Responses Dec 28, 2013

    I hope this is okay. I am being tested

    for MS this week (merry christmas..), and frankly i am pretty scared.. My symptoms started 5 months ago, and went away for a while so i thought i had a bug, then 3 months ago BAM! and it hasn't stopped since. Dizziness, blurred vision, exhaustion, muscle twitches and limb...
    AshleyDeHaven AshleyDeHaven
    26-30, F
    3 Responses Dec 20, 2013

    I took my medication last night.

    I have been taking Avonex since I was 17. I am 25 now; after 8 years, my body is still not used to it. 😕 Before I was on my medication i was so happy. Now, I have anxiety like no other. Sometimes I'll be so happy and then be so anxious and than be fine again. You would think...
    sarbear423 sarbear423
    26-30, F
    6 Responses Dec 18, 2013

    I have a very physically demanding job.

    Having MS is really starting to tear me up. Just wondering if anyone has good advice regarding fatigue... I feel like I haven't slept in weeks. Thanks! ~n8
    powerNpain powerNpain
    31-35, M
    2 Responses Dec 6, 2013

    I look back on my years on my celebrity death

    match with my ms. My opponent is always the same, our struggle usually ending in a draw. I may have lost this bit here, but this seems better, so there ms just leave me alone for a bit and let me get something done around here. And sometimes it would. I would feel like I dodged...
    mrsbuzzkill mrsbuzzkill
    51-55
    5 Responses Dec 6, 2013

    Hi! I have several friends with MS in the US

    and Spain (were I am originally from). In my job I interact with many people facing MS and other autoimmune illnesses and find it inspiring and personally motivating, regardless of my health status. My passion is understanding the challenges associated with tough health...
    pdapenacherry pdapenacherry
    31-35, F
    1 Response Dec 4, 2013

    I Have Multiple Sclerosis

    Hi there. My name is James. I was diagnosed with MS 3 years ago after I had a bout of optic neuritis. My MRI's have shown a few lesions. There is no denying I clinically have MS; but there is one weird aspect to it that i dont understand. I have had no other symptoms since, and...
    beatconnection beatconnection
    41-45, M
    8 Responses Dec 2, 2013

    I'm Never Giving Up On Life.

    November 17th, 2012, I was diagnosed with MS. At the time I was 15. My reaction was hardly a reaction at all. I haven't really heard of the disease, and knew nothing about it. The first two months I was in denial. I'm too young to have this. They made a mistake. Then reality...
    Shyness03 Shyness03
    18-21, F
    7 Responses Nov 28, 2013

    Anxiety

    I have really bad anxiety due to my MS. And I feel like it's getting worse. I feel like the only thing to keep me calm is to be alone; or asleep. It's rather lonely. 😔
    sarbear423 sarbear423
    26-30, F
    3 Responses Nov 27, 2013

    Support Network.....

    Hello.... and thank you for stopping by ! Is anybody interested in having an M.S. Support and networking group ?Please message me if you are interested.
    msfancypants msfancypants
    46-50, F
    9 Responses Nov 25, 2013
    msfancypants msfancypants
    46-50, F
    Nov 25, 2013

    Multiple Sclerosis.....

    Hello Friends,Hope all is well within your world. Let me know how you are coping !
    msfancypants msfancypants
    46-50, F
    2 Responses Nov 25, 2013

    How Ridiculous !!

    I cannot walk forward the connection is missing !! I can walk backwards, sideways, but not forward or up and down stairs !!! Finished 5 days if IV solumedrol last night . Haven't slept due to steroid insomnia. My walking continues to get worse. I'm positive a wheelchair would...
    ibelong2some1 ibelong2some1
    41-45, F
    2 Responses Nov 24, 2013

    I Have Multiple Sclerosis

    I was diagnosed in 2000 with Multiple Sclerosis (MS) and have been doing well overall. I woke up yesterday with a bit of tingling in my legs so I foresee a trip to the doctor, possibly the hospital in a day or two. I hate having this disease because it is so unpredictable and...
    peavers peavers
    36-40, F
    7 Responses Nov 19, 2013

    Letting Her Go

    For the first 28 years of our married life my wife and i did everything together but my ability to do the simple things like dealing with airports, shopping and site seeing is now a complicated event. Things like airports have to be prepared, sometimes months in advance...
    ClimberJeff ClimberJeff
    56-60, M
    2 Responses Nov 17, 2013

    My MS Still Active

    I just got my MRI scan results and it doesn't look good, I have new active white dots and they are more than last year scan. I have been told by my doctor to start treatment and change my life style immediately, I told him I cant start any meds yet because I am trying to get...
    sofyablank sofyablank
    26-30, F
    4 Responses Nov 17, 2013
More Stories