I Have Multiple Sclerosis

Personal stories and news for people with Multiple Sclerosis. In affiliation with ThisIsMS.com 1,292 People

    A few days after my 29th birthday I went in

    for a Dr's appt. to check on my eye. I told her about the pain I was experiencing and after about 30 minutes of some basic tests like Pupil Reaction, and checking my Reflexes with that little hammer. She got really concerned about my symptoms, so concerned that she called one...
    AlkalineProdigy AlkalineProdigy
    31-35, M
    Feb 22, 2016

    Has anyone with MS had their vision randomly go

    black for a few seconds? As if someone flicked a light switch off and then back on.
    Idontwanttosendyouapic Idontwanttosendyouapic
    18-21, F
    2 Responses Jan 2, 2016

    any tysabri infusion junkies out there?

    so far not so good for me and Im hoping someone can relate or maybe she'd some light on what I'm going through...!?
    Vnel Vnel
    26-30, F
    Dec 21, 2015

    In 2012 I went on the trip of a lifetime to

    Canada on a working holiday. When I came home, I was depressed and watched an awful lot of TV. So when my left eye became sore, and my vision became blurry I ignored it. Until I woke up completely blind. I was diagnosed with optic neuritis. I was told that it would get better on...
    bjoffo bjoffo
    22-25, F
    1 Response Nov 16, 2015

    The doctors recently diagnosed me with MS.

    How do you manage this. Any tips will be helpful. Today I have started my rounds of Steroids.
    Regina1931 Regina1931
    Oct 29, 2015

    Does anyone take copaxone

    or glatopa? How long does it a 20mg injection to be fully absorbed and when can I inject into the same area again? I'm thin so my options are a bit limited.
    7MattW 7MattW
    31-35, M
    1 Response Oct 5, 2015

    I have recently been diagnosed

    but it's taken over a year to be diagnosed. My hands have been numb for 6 months, I'm having a hard time at work with my hands not working right. I am thinking about finding a new job because mine is very stressful, anyone have any suggestions about work from home? I need...
    Jaclyn80 Jaclyn80
    36-40, F
    1 Response Sep 21, 2015

    So hard to start a relationship with someone

    with me having MS. Each year I have been going downhill Has anyone heard of a uphill?
    Agilezs Agilezs
    61-65, F
    2 Responses Sep 3, 2015

    I don't have MS but I have a very similar

    condition that works similar but secondary to MS (the affects too) it is called 'Superficial Siderosis of the Central Nervous System' and is caused by an internal bleed releasing iron into the CNS this breaking everything down as it progresses. :(
    Paul2v Paul2v
    31-35, M
    1 Response Aug 6, 2015

    I just wish SOMEONE understood me.

    I'm tired of feeling like this. Sometimes I literally feel like my brain is messed up. And no, I'm not crazy.
    beautifullie88 beautifullie88
    26-30, F
    1 Response Aug 4, 2015

    I guess just upset my doctor has me work 30

    week my work is going let me go. I just do not know when. I am so tired even working 6 hrs/ day instead of 8. Ms sucks the life out of you. I do not know what is going to happen I think they are trying get me to quit.
    deleted deleted
    1 Response Jul 1, 2015

    My doctor wrote paper work to my work statiting

    due to my MS I can only work 30 hrs week. My work already told me that they do not have any part time work. I think they going to let me go. I know that if happen God will provide away. I just get really bad headaches and get so tired. I go back tomorrow with paperwork.
    deleted deleted
    Jun 29, 2015

    I was diagnosed with m.

    s in 1999 hardest 2 things I had to learn to deal with were 1. Understanding that people without m.s cannot relate to the condition AT ALL!. its not their fault how could they possibly understand a hidden illness or understand that the symptoms that they can see are the tip of...
    ledgie1975 ledgie1975
    41-45, M
    1 Response Jun 20, 2015

    My whole life is falling apart

    before my own eyes...well when there working.
    fuckms fuckms
    36-40, M
    1 Response Jun 16, 2015

    I was diagnosed with ms in August of 1999,

    so August of this year will be sixteen years of having this disease and it has not been easy, I have my good days and bad days. I have learned a lot of things in life since I have ms, one thing is that people can be quick to make judgements, I usually get you look good and you...
    deleted deleted
    1 Response Jun 9, 2015

    I am trying not to dark out.

    The unknown is the scariest part of all of this. And already my symptoms feel so limiting. I want so much more for my life than what MS has to offer. I was just starting to come around to the idea of, "I want to get married" and now I only see that as selfish. I can't put...
    blueturnedgold blueturnedgold
    31-35, F
    3 Responses May 31, 2015

    I do not know if I have MS.

    My mother had it and passed away in 2008 from complications related to the illness. I've been having strange symptoms and curious to hear others. Recently, for the past few days my left arm tingles and goes numb. The left side of my face goes numb every on and off but mostly...
    dynamic71 dynamic71
    46-50, M
    6 Responses Apr 11, 2015

    I decided to write an update

    since my last entery was a long while ago. I am not taking any MS drugs. However I do take suppliments daily (NAC,B-12, Multi Vitamin, etc.) As well as LDN, an oil every night. I had the CCSVI surgery about 2 years ago. So much that I lost in the first place has been given back...
    Shyness03 Shyness03
    18-21, F
    1 Response Apr 1, 2015

    How do you treat ms? I have not been diagnosed,

    but my grandma does and I am worried I might.
    Happybri123 Happybri123
    22-25, F
    1 Response Mar 22, 2015
    Happybri123 Happybri123
    22-25, F
    2 Responses Mar 19, 2015

    dx 2003 disability retirement 2009.

    wife left 2013 alone, and wish I would just die, ******* ms is Aweful.... I'd rather have cancer, go thru hell, with the chance to beat it or die and get it the **** over with... ms is a never ending slow miserable mind ****... sit back and watch function after function slowly...
    jr5646 jr5646
    41-45, M
    2 Responses Feb 23, 2015

    So does anyone here have other "issues" besides

    MS. I have: Migraines Idiopathic thrombocytopenic purpura Diabetes
    DaveShaved DaveShaved
    51-55, M
    Feb 8, 2015

    I was diagnosed in 2007.

    I was a long distance runner before my diagnosis and kept it up for years but now I can barely walk and am afraid I will have to go on disability soon. As strong as I try to be I'm scared as hell.
    robbyt3545 robbyt3545
    31-35, M
    2 Responses Feb 4, 2015

    I’m 26 years old and I was diagnosed with MS

    about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever...
    isa88 isa88
    26-30, F
    2 Responses Feb 3, 2015

    I am a 47 year old male.

    I was dx with MS in 2013. I am and was the bread winner of my family of 4. In the last 2 years my MS has gotten worse my gait is terrible and my cognitive skills have worsened. I worked in the medical field for 14 years. My co-workers, clients and doctor think I need to get on...
    ceisinger ceisinger
    46-50, M
    1 Response Feb 2, 2015

    It was 2013 and I was 26 years old

    when I was diagnosed. I am now 28. It started out with numbness in my extremities and went to cordination difficulties and weakness ending up in paralysis. I went for help 3 times during this episode... 3rd time i was completely paralyzed and was still sent home with the...
    deleted deleted
    2 Responses Jan 29, 2015

    I have Multiple Sclerosis

    and I'm better off than most, blessedly
    AsgardRain AsgardRain
    41-45, F
    1 Response Jan 19, 2015

    I ******* hate this disease.

    Anyone here who's opinion is different?
    DaveShaved DaveShaved
    51-55, M
    2 Responses Jan 16, 2015

    I have Multiple Sclerosis.

    it has really messed my body up. Weakness in my legs and super sensitivity on my left side (which is dominant) that causes pain. I also have extra sensitivity in my groin (penis, testicles, upper thigh) area. This causes significant feeling, leading to early...
    DaveShaved DaveShaved
    51-55, M
    Jan 12, 2015

    I have had Ms since the year of 2007.

    I try to stay happy everyday but sometimes it is very hard. Every time you get the house spotless, it seems as though you have to start all over again. The kids are really smart my 9 year old boy even more so. He has never known me before I was sick. He watches me...
    StayHappySmile StayHappySmile
    41-45, F
    1 Response Dec 14, 2014

    Some days r fine But some days r just like what

    the hell!!! It's like it likes to play tricks on yu!!! I hate it(•.•)
    jinna69 jinna69
    36-40, F
    10 Responses Dec 3, 2014

    6 years since my diagnosis of

    relapsing/remitting and over 4 years since my last relapse!!! :) 😄
    danc3rz danc3rz
    31-35, F
    1 Response Nov 22, 2014
    cra2yk1d cra2yk1d
    16-17, F
    Nov 14, 2014

    I had my first attack

    when I was 11 years old. My second when I was 16. It was misdiagnosed when I was 11 as MRI's did not yet exist. Ill be 39 next week and have not had an attack in 23 years. I do have symptoms that have stuck with me but none nearly as severe as when I was 16. That attack had me...
    Jayded111 Jayded111
    41-45, M
    3 Responses Nov 6, 2014

    A mind that is not narrow

    but shallow, the power of being objective, innocent until proven guilty, self-esteem. All these are abilities a person has to develop in his life. Me, I didn’t have a choice. Happenings in my life have obliged me to change, to settle priorities, to open my eyes and start...
    biancabirsan1994 biancabirsan1994
    22-25, F
    2 Responses Oct 29, 2014

    I was dx n 2009 with r.

    r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks & it did'nt help much. 4 the last 4 years i've beeb doing Chemotherapy 1 x a month 7 getting Botox n my knees every 3 mos...
    sparradia sparradia
    41-45, F
    2 Responses Oct 21, 2014
    RazorbladeKisses81 RazorbladeKisses81
    36-40, F
    1 Response Oct 21, 2014

    As I approach my 6 year anniversary of being

    diagnosed with MS, I thought I would share last year's reflections: "This weekend is my 5 year anniversary of being diagnosed with Multiple Sclerosis (MS). This year I am focusing my thoughts on the fact that I recently celebrated 3 years since my last MS relapse. That is more...
    danc3rz danc3rz
    31-35, F
    2 Responses Oct 17, 2014

    Well it's been a lil over a week

    since the flare-up started and now, I've been able to see with both eyes instead of one for about 4 days. Everything is still fuzzy and strained but i can see!! Woo!! The vertigo went away yesterday and man I tell ya, I don't miss that. That's the worst one, I think. I had...
    RazorbladeKisses81 RazorbladeKisses81
    36-40, F
    Oct 16, 2014

    In general I am very positive about my MS

    (diagnosed almost 6 years ago), but not today. Dealing with the worst period of my life which is saying a lot since my period symptoms got way worse with MS and even worse the last two months since having a miscarriage and thus a complete hormone shift. Now on day three of PRE...
    danc3rz danc3rz
    31-35, F
    2 Responses Oct 12, 2014
    RazorbladeKisses81 RazorbladeKisses81
    36-40, F
    1 Response Oct 6, 2014

    I am writing this to show you

    that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support system. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization and IV steroids. Soon...
    Avonexveteran Avonexveteran
    61-65, M
    Sep 30, 2014

    I can't say for sure

    that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do you guys think? They did 2 MRIs one of my brain and one of my spinal column, they found in my brain some leasions and...
    Beatles22 Beatles22
    31-35, F
    2 Responses Sep 8, 2014

    I was diagnosed at the end of last year.

    Since then my symptoms have rapidly got worse and I can barely leave the house for any amount of time. I'm supposed to be starting 3rd year at University in two weeks. Don't know how I'm going to cope.
    MichaelTWilson MichaelTWilson
    22-25, M
    1 Response Aug 11, 2014

    I was diagnosed when I was 22

    and have since been through some intense challenegs I never thought I would be able to overcome. Because of this, I have created a Facebook group which I hope to help support others, and also do lots of fundraising too. If you were also diagnosed at a young age, message me and I...
    31-35, M
    Aug 10, 2014

    Hi there, I am 52 and have a little boy

    who is 10 and a husband. I am feeling very low at the moment. I used to be very physical, skiing, dancing, the gym. I am sitting here with a broken ankle because I have painfully fallen 5 times in the last 18 months, with that same ankle collapsing each time. I am sad...
    felinemoonbeast felinemoonbeast
    2 Responses Aug 9, 2014

    I think I might have it I was looking more into

    it yesterday because something scary happened. It is really hot and humid where I'm at and I was out in it for an hour and my left arm with completely numb. Normally when it happens its fingers that go numb not my entire arm. And I have had a few incidents where my hands start...
    birdsofprey93 birdsofprey93
    36-40, F
    1 Response Aug 6, 2014
    watson8700 watson8700
    70+, M
    Jul 30, 2014

    Good morning everyone,

    I am new here and I was reading a bit about some of you and your experience's. I must say you are all very supportive and I am happy to say that I am pleased that I have started looking at support groups and found all of you...
    j5myers j5myers
    31-35, F
    2 Responses Jul 19, 2014

    I was diagnosed 2 years ago at 30.

    I went from healthy everyday to sick everyday. I'm not on medication bc my doc wouldn't change my DMD from Betaseron. I'm alone and house bound due to a nystigmatism. My legs quit working 9 months ago. I could go on about how bad my life sucks. But I just wrote it all out and my...
    starnicolite starnicolite
    36-40, F
    1 Response Jul 19, 2014

    The Human Chain I entered the Neuro Dept,

    checked in, then do what I always do- go to then restroom. On my way back to the waiting room I passed a lady in a wheelchair kind of waving to get someone's attention. I noticed and stopped, asking her if she needed the rest room. She should her head yes. So I wheel my walker...
    mrsbuzzkill mrsbuzzkill
    Jul 18, 2014

    I also as of today have a 4 month old son.

    😀❤️My neurologist wants me back on the meds, but I can't breastfeed if I do. My Doc says the first 6 months are the best nutrients and what not I can give him. Any moms out there? What are your opinions on this
    PandorasDream PandorasDream
    36-40, F
    1 Response Jul 14, 2014

    I had a sudden urge to post my experience of MS

    with anyone who would read. I have only been on this journey since January, but boy has it been a long one. I am only 20 years old, and so I was terrified when receiving my diagnosis.. But Not anymore! :) I won't bore you with all the details of my diagnosis (but would be...
    youngwildfreedom youngwildfreedom
    22-25, F
    4 Responses Jul 6, 2014

    It's very difficult having a condition

    where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely not a fun disease to have. First of all it is very difficult to diagnose. Then, they have to find the right medication that works for you. I...
    deleted deleted
    4 Responses Jul 1, 2014

    Some days are good; some are bad.

    I took my injection last night and I am in pain today. I have moments of anger; moments of tears; emotional roller coaster. I want to be normal. And I don't want to have anxiety attacks anymore. I have MS, it doesn't have me. I just have to remember that from time to time...
    sarbear423 sarbear423
    26-30, F
    4 Responses Jun 16, 2014

    Well it finally happened.

    I went off the rails. I SERIOUSLY cannot cope with what my life has become. My husband had a cold a few weeks ago (would it really hurt to cover your mouth when you cough???) and of course I caught it. It was particularly nasty. Snot, snot, and more snot. Racking coughs so bad I...
    mrsbuzzkill mrsbuzzkill
    1 Response May 11, 2014

    I had a really bad reaction to my Copaxone

    medication and it was really scary. Has anyone else experienced this?
    winstonlove05 winstonlove05
    26-30, F
    3 Responses May 8, 2014

    Ha! Ha! The joke's on me!

    (Again) This past Friday I had my monthly tysabri infusion scheduled for 10:30 am. It's a two hour drive, and with early morning coffee on the road, by the time we got to the clinic my husband knew I had to go pee desperately. He offered to check me in while I used the...
    mrsbuzzkill mrsbuzzkill
    Apr 27, 2014

    I've know for 4yrs, but I've always expected

    that something was wrong. I'm scared and lost. I beleve in God, but st the the same time I shy away from the lord because my faith is a question now. Suffering from CRS ( always) and tseems sometimes to much is on my plate. will barely remember half of what I say or what anyone...
    Sapphira1 Sapphira1
    3 Responses Apr 24, 2014

    I had two brain MRIS within 2 years

    and both came back clear for MS but found out I have retention cysts in my sinuses. I am so confused. Do I push a spinal MRI or LP? I had optic neuritis in 2009. Right now constant symptoms are extreme fatigue, dizziness every time I get up or do simple things like vacuuming...
    njoy13 njoy13
    36-40, F
    4 Responses Mar 28, 2014
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