I Have Myalgic Encephalomyelitis

A Myalgic Encephalomyelitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myalgic Encephalomyelitis. You're not alone. 13 People

    I Have M.E

    Hi I have ME and its ruining my life. Im now in a wheelchair as it hurts too much to walk far and I get so exhausted from the littlest things. Im a single parent with a 7 year old and 17 year old and its so difficult for them to understand. Its affecting them as I no longer drive...
    Nat70 Nat70
    41-45, F
    1 Response Jan 24, 2013

    The nature of the disease,

    or at least the type I suffer from, is relapsing-remitting (very similar indeed to MS). Right now I am worried that I am slipping towards relapse after a relatively good period since Christmas. Prior to Christmas I had had a severe spell which lasted some months, so I really...
    ProfessorYaffle ProfessorYaffle
    46-50, F
    Mar 9, 2016

    Hey, First off, I would love to say that

    before this I was active, loved being able to wake up refreshed and wide eyed and bushy tailed. It all started in 2010 - I would be very tired all the time, fast forward 3 years 2013 I was sent in for a sleep apnea test - Not one thing wrong. I managed to lose a stone in...
    FitnessFreakTash FitnessFreakTash
    18-21, F
    May 13, 2014

    12 Years Now And Still No Answers,scared With Small Children, No Family, Please Help.

    I dont know what is wrong. It came on suddenly like a feeling of death. Like I was having a stroke but I was only 22. Since then its been scary and lifes been difficult. I have the strangest symptoms like blue feet, lips and fingers, I tingle all over and feel off balance. I see...
    audragem audragem
    1 Response Dec 11, 2012


    Stepping Stones Come, take my hand, the road is long. We must travel by stepping stones. No, your not alone. I’ve been there. Don’t fear the darkness. I’ll be with you. We must take one step at a time. But remember, we may have to stop awhile. It’s a long way to the...
    Bonnie2400 Bonnie2400
    36-40, F
    Aug 5, 2012

    Im Just A Normal Teenager Living With A Chronic Illness.

    Hello :) I'm 16 years old, and I became severely ill with myalgic encephalomyelitis over a year ago when I was 15. I was staying at a friends as my mum and step dad were away, I woke up one morning with a cough, just a normal cough so obviously thought nothing of it. As we was...
    Jan 20, 2013

    M.e Lives With You.

    Hi everyone .I first became sick with M.E, 20 years ago ,having a wisdom tooth taken out seem to be the start of it ,unsure why but thats how my battle began .I do have a cousin also battling with M.E, so genetics could be playing a part , Its as you know a hard illness to get...
    janiz janiz
    46-50, F
    Aug 21, 2012

    Choosing To Live With Severe ME

    Each day is about the same, but filled with blessings. I no longer fight having this dreadful illness, because acceptance does not expend valuable energy. I use to be a nurse. I've had to find a new life confined to bed because I only feel somewhat close to homeostasis...
    SeaDiamonds SeaDiamonds
    51-55, F
    2 Responses Oct 9, 2012

    Myalgic Encephalomyelitis Is NOT Fibro Nor Cfs?

    Myalgic Encephalomyelitis Is NOT Fibro Nor Cfs? By: Fibromom Written on February 6th, 2013 I'm here to learn. I've had SUPPOSED debilitating fibro, that came on suddenly, since 2000. Recently, I've been learning about M.E. and apparently the two are NOT THE SAME. (See...
    fibromom fibromom
    56-60, F
    Feb 6, 2013
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