I Have Myasthenia Gravis

My diagnosis was kinda funny. I was taken to the emergency room because my speech was becoming very slurred. They ruled out stroke. They gave me a shot for something and my face went numb so they put me on steroids to counter what they...

Hi All,

I am new to your wonderful forum and I am at my wits ends. I am afraid and I am not getting ANY answers except running into a brick wall, what makes it worse, I a RN, I still can't get information. Please any and all comments...

It all started when I was 14, and lets just say thats when i had gotten into the "bad girl" phase. I noticed one day that I could not get off the ground, my legs just wouldn't work at all. So I sat there a few minutes about why this was...

SOME DIETETICAL SUGGESTIONS IN MYASTHENIA GRAVIS (MG)
BY ZOLTAN LELKES

MEMBER OF THE HUNGARIAN MYASTHENIA GRAVIS GROUP
BUDAPEST, HUNGARY

I would like to express thanks for your attention, and I would like to say something of my...

My niece was diagnosed with MG about 6 or 7 years ago in her early 30s. She had her thymus gland removed and seemed to have completely recovered from MG. Just weeks ago she was diagnosed with a hyper thyroid and along with losing lots...

I am a 41 year old wife and mother of three beautiful boys. I have a twin sister and have been unwell most one way or another without diagnosis. At birth my parent we told I received eye injury at birth and was told I had a lazy...

I started experiencing the symptoms of MG when I was 13. The slurred speech was the first thing that hit me. For a while it was only that, but it was enough to freak me out. After a while my eyes started drooping, I had doubled vision...

Ever sence i was little my eyes got blurry sometimes. Every time i went to the eye dr. they said i was making it up to my mom (she believed me). Then when i was in 6th grade i started having trouble running. So i went to PT. Then 3...

Im on time realeased mestotin and i have all the fun symptoms. I started with occular now have general was in remission for a good bit. Has anyone had any weight issues or has it affected their Kidneys at all. My Doc put me on immmuran...

I was diagnosed with fibromyalgia 2 1/2 years ago. I tried every Rx and natural stuff to get in under control but had no luck with that..then 2 years ago i had trouble swallowing. i had every test they could do to see what was wrong...

I am 27 years old and I've lived with Myasthenia Gravis for 8 years now. I was diagnosed at 19, the summer after my first year of college. They said I was a "text book case" and had all of the "classic symptoms." However, at the time I...

I was diagnosed with M G in June of 1995.  I'v had my Thymus Gland removed, I've had the Plasma Pheresis and pleny of other tests.  I've been taking Prednisone ever since.
I have my good days and not so good days. ...

Just started, so don't judge, but if you need info, or you know, need to talk or anything, check it out at http://mgteen.blog.com/.

Lots of love

I overcame Myasthenia Gravis! I want to share ideas with other Myasthenics and their friends on how they may improve their condition based on my personal experience and holistic approach. Please see my MG Blog at http...

Hi I'm haley and I've had this since I was born , I wasn't dagnosed tills when I was around 9 months old and my twin sister died. After her death a neurologist names dr.Fernandez heard about me and talked to my parents. I am now 3...

Many things have shaped my life as I'm sure that everyone can say. However, nothing has been such an influence on my life as the disease, Myasthenia Gravis that I have.

Following is what has shaped my life.

I had a good childhood...

I'm a snarky forty two year old mom of 3 who is happily married 20 years now. My diagnosis was a couple of days ago. As a singer, vocal teacher,  freelance writer and long time radio personality, I began having difficulty...

I was diagnosed with Mg 19 years ago. At that time I was on mestinon and had a thymectomy. I did go into remission for sseveral years. However I ignored my body and stopped seeing my nuerologist while I was feeling good. I never should...