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I Have Myasthenia Gravis

A Myasthenia Gravis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myasthenia Gravis. You're not alone. 131 People

    I Have Myasthenia Gravis - i got this when i was 19years old after i had my second child i was getting dizzy spells double vision  it it got worse its hard to talk about it...
    caethan caethan 31-35, F 4 Responses Jul 10, 2009

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    A Long Fours Years, But Now Im Blessed! - It all started when I was 14, and lets just say thats when i had gotten into the "bad girl" phase. I noticed one day that I could not get...
    pregokrys18 pregokrys18 18-21, F 3 Responses Jun 24, 2012

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    I See How All People - are always being much proud of attaching Latin descriptions for their lives and what they are/have. Nothing bad. Only that when all your life you all...
    Thought1 Thought1 22-25 5 Responses Aug 16, 2009

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    Diagnosed At A Young Age - When I was in the fifth grade I caught the seasonal flu. I just couldn’t seem to shake it. After about three weeks the Flu symptoms went away (all...
    Heyhaihai Heyhaihai 18-21, F 6 Responses Oct 14, 2009

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    Making An MG Blog. - Just started, so don't judge, but if you need info, or you know, need to talk or anything, check it out at http://mgteen.blog.com/. Lots of love
    LizzyDeviya LizzyDeviya 18-21, F 1 Response Mar 11, 2013

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    Blessed - I was diagnosed with MG over a year ago.  At first the physicians couldn't figure out what was wrong with me.  It took them over a month to figure out what was...
    MGPATIENT MGPATIENT 31-35 4 Responses Aug 27, 2009

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    My Little Girl!!!!!! - Hello I would be shocked to hear all this stories, but I have a 3 year old daughter who was diagnosed with MG when she was 1 1/2 years old. I didn't knew...
    PaolaR20 PaolaR20 18-21, F 2 Responses Aug 7, 2013

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    In Remission, But Still Scared... - I was diagnosed with MG after several trips to the emergency room, not having any insurance or a regular dr I really didnt know what to do. I...
    Kaycie513 Kaycie513 36-40 2 Responses Apr 25, 2012

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    Confused - I am a 41 year old wife and mother of three beautiful boys. I have a twin sister and have been unwell most one way or another without diagnosis. At birth my parent we...
    Tannai Tannai 41-45, F 2 Responses Feb 3, 2013

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    Misunderstood Girl - I started experiencing the symptoms of MG when I was 13. The slurred speech was the first thing that hit me. For a while it was only that, but it was enough to...
    LizzyDeviya LizzyDeviya 18-21, F 18 Responses Oct 23, 2012

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    Learning - I got diganosed with myasthenia gravis in June. Before getting diagnosed with this disease i was a normal girl. In high school i marched in the marching band, sang in...
    lljones417 lljones417 18-21, F 1 Response Nov 20, 2013

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    I was diagnosed with MG in 2001. I also had a non-cancerous tumor on my Thymus gland, that was reaching up into my throat, cutting off my airway. After yanking that Thymus gland...
    MsJesster MsJesster 36-40, F 1 Response Mar 29

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    A Nurse With Myasthenia - I am 27 years old and I've lived with Myasthenia Gravis for 8 years now. I was diagnosed at 19, the summer after my first year of college. They said I was...
    bk6827 bk6827 26-30 4 Responses Aug 8, 2012

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    12 Dr.s Same Wrong Illness - Ever sence i was little my eyes got blurry sometimes. Every time i went to the eye dr. they said i was making it up to my mom (she believed me). Then...
    addygirl addygirl 18-21, F 3 Responses Dec 8, 2010

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    Suffered Terribly For 7 Years - I started noticing something was wrong when I was about to turn 16 years old. I had always played sports and I couldn't run anymore. Then noticed I...
    tkeeton90 tkeeton90 41-45, F 4 Responses Jun 29, 2013

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    I Beat Mg! - I overcame Myasthenia Gravis! I want to share ideas with other Myasthenics and their friends on how they may improve their condition based on my personal experience...
    FranG FranG 66-70, F 3 Responses Sep 24, 2009

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    The Making Of Ed - Many things have shaped my life as I'm sure that everyone can say. However, nothing has been such an influence on my life as the disease, Myasthenia Gravis that...
    emoenjr emoenjr 46-50, M 14 Responses Jan 11, 2013

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    Living With Myasthenia Gravis - I was diagnosed with M G in June of 1995.  I'v had my Thymus Gland removed, I've had the Plasma Pheresis and pleny of other tests.  I've...
    blew blew 36-40, F 8 Responses Oct 30, 2009

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    My Rare Case Of Myasthenia - I am a 21 year old female who was diagnosed with myasthenia about a year ago. It first started with shortness of breath and lead to muscle weakness and...
    adebaji adebaji 18-21 3 Responses Nov 23, 2011

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    Mg Is Back Again Along With Hyperthyroid - My niece was diagnosed with MG about 6 or 7 years ago in her early 30s. She had her thymus gland removed and seemed to have completely...
    Frustratedaunt Frustratedaunt 61-65 2 Responses Nov 5, 2012

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    Old - I'm 65 and was diagnosed last year. Any older mg patients out there?
    pfcassidy pfcassidy 66-70, F 2 Responses Oct 29, 2013

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    Depressed - I was diagnosed with Mg 19 years ago. At that time I was on mestinon and had a thymectomy. I did go into remission for sseveral years. However I ignored my body and...
    pattam85 pattam85 41-45 11 Responses Sep 24, 2012

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    My Mg Was Missed For Years - I am 46 years old and was diagnosed with MG last June, after going to doctor after doctor for more than 5 years. In 2001, I was involved in a...
    MGSnowflake66 MGSnowflake66 46-50, F 2 Responses May 22, 2012

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      I am new to this but am happy to see that so many people share their experiences with having myasthenia gravis. I am a mother of six children. It's been about six years...
    ckbereal ckbereal 36-40, F Nov 28, 2013

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    Myasthenia Gravis Wont Slow Me Down! - Iam a teen and living with MG. It was summer break and i thought i was coming down with a sinus infection. I went to the doctors and they...
    Shoptilludrop123 Shoptilludrop123 16-17 3 Responses Jun 1, 2012

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    Daughter Trying To Understand Mother's Pain - My mother was diagnosed with MG about 2 years ago. For many years she had dropping eyes, but none of the doctors knew why. Once she...
    steph914 steph914 22-25, F 1 Response Aug 19, 2013

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    I Have Myesthenia Gravis And Fibromyalgia - I was diagnosed with fibromyalgia 2 1/2 years ago. I tried every Rx and natural stuff to get in under control but had no luck with that...
    cgh49 cgh49 61-65, F 1 Response Sep 7, 2012

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    Instant Karma~and Fascinating Shoes. - I'm a snarky forty two year old mom of 3 who is happily married 20 years now. My diagnosis was a couple of days ago. As a singer...
    renadam12 renadam12 41-45 11 Responses Oct 29, 2010

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    Dealing With My MG. - Im on time realeased mestotin and i have all the fun symptoms. I started with occular now have general was in remission for a good bit. Has anyone had any...
    Mathewsc3 Mathewsc3 41-45, M 2 Responses Apr 1, 2013

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    Myastenia Gravis And Genetic Predisposition - Hi All, I am new to your wonderful forum and I am at my wits ends. I am afraid and I am not getting ANY answers except running into...
    Karen1991 Karen1991 36-40 2 Responses Mar 5, 2013

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    My Myasthenia Gravis Story - I am a 35 yr old women who for at least 6 yrs been complaining about double vision,weakness in my legs, arms, and throat, breathing issues etc. Over...
    melandr6 melandr6 31-35, F Apr 24, 2012

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    How I Could Run The Marathon Despite Having Mg - SOME DIETETICAL SUGGESTIONS IN MYASTHENIA GRAVIS (MG) BY ZOLTAN LELKES MEMBER OF THE HUNGARIAN MYASTHENIA GRAVIS GROUP BUDAPEST...
    LZOLI LZOLI 41-45, M Jul 21, 2012

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    My Remission Story - I was diagnosed with MG in 2000 and opted to have a thymectomy. After my surgery, I noticed after about a year, my symptoms lessened, but did not go away. I...
    mingsor mingsor 36-40, F 1 Response Sep 24, 2013

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    Since Birth - Hi I'm haley and I've had this since I was born , I wasn't dagnosed tills when I was around 9 months old and my twin sister died. After her death a neurologist names...
    Haleyroberson Haleyroberson 13-15 1 Response Nov 21, 2012

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    They Were Wrong For Years!!!!!! - well for the last 6 years i have had multiple mri's, blood work, ekg's, emg's and lumbar puncure! they had told me i had a thyroid problem, bells...
    ashleylargent072510 ashleylargent072510 22-25, F 3 Responses Mar 17, 2012

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    Related Experiences

    I am finally being diagnosed with myasthenia gravis. After years of being told that I am "fine" and there is "nothing wrong with you". So frustrating!!
    natashafe natashafe 46-50, F 1 Response Apr 6

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    No hate. I really want to get pregnant and be a mother. I feel like even though I am young, I am ready for the responsibility of being a parent. I have wanted a baby for a long...
    justanotherpixie justanotherpixie 16-17, F 3 Responses 5 hrs ago

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    I found this support group through google. I have been suffering with keloids on both of my ears since I was nine years old. I have had a total of 7 surgeries all to which the...
    Marquinta Marquinta 22-25, F 5 hrs ago

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    I haven't been diagnosed with Hemi but I'm pretty sure I have it. I'm a 17 year old girl and I do pay attention to my body a lot. About a year a go I really started to notice how...
    thaliatjan thaliatjan 16-17, F 5 hrs ago

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    It's my birthday tomorrow.. Is it to much to ask for someone that you love to spend time with you? I don't want gifts. I want quality time with the people I love. My entire life...
    hawksgirl hawksgirl 41-45, F 4 Responses 3 hrs ago

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    in like all kinds. My aunt and uncle hate me and I have to stay with them lots of times. They hate when I bother them and make them work and they let it feel me. I just have to...
    SabrinaInTears SabrinaInTears 13-15, F 1 hr ago

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    h e got in touch through facebook, he hadn't changed much and we arranged to meet for a drink. didn't plan anything but he told me he wanted to have me again so I went back to his...
    kirstyisback kirstyisback 36-40, F 2 Responses 1 hr ago

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    I always had vivid dreams but after my son was born they have become extremely vivid and when I wake up I remember them. I had serious, serious nightmares last night I woke up and...
    funsnowgal funsnowgal 22-25, F 1 Response 1 hr ago

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    Lately, I have been having memory losses. I don't remember a thing that I did this past Saturday other than doing a research project in the morning and leaving the library. The...
    bkf2 bkf2 22-25, M 51 mins ago

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    I've been telling it for a while now, but this is me. There are over 70 parts including what I love, what I hate, what I've been through, and all the creative bits of writing...
    LaurenJFisher LaurenJFisher 22-25 6 hrs ago

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    I have a crush.. My friend likes the same person as me.. Should I tell her?
    itzlexx itzlexx 16-17, F 2 Responses 6 hrs ago

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    I have a crush on one of my really good friends Matthew. Hes kind of a manwhore though and he can be an *** sometimes. But i feel like the times when he's nice or does stupid...
    Kittenfire Kittenfire 16-17, F 2 Responses 5 hrs ago

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    I did not want to admit this to myself.. Unfortunately, it's true. It's just awkward since I can't imagine us together ever, I also see him every day, and we have different tastes...
    Professionalgriefer Professionalgriefer 18-21, F 1 Response 5 hrs ago

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    i have never though of myself as beautiful. as people make fun of me for being tall and having a healthy skinny figure. :/
    nicolepie nicolepie 22-25, F 8 Responses 4 hrs ago

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    I hardly have any friends that do drugs plus I'm a Mormon (not really)? I think the main reason I do drugs is to battle my anxiety
    molestay molestay 13-15, F 4 hrs ago

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    I love kids so much. I honestly can't wait to have children of my own :)
    HeyItsMirandaa HeyItsMirandaa 18-21, F 2 Responses 4 hrs ago

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