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I Have Myasthenia Gravis

A Myasthenia Gravis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myasthenia Gravis. You're not alone. 142 People

    My Mg Was Missed For Years

    I am 46 years old and was diagnosed with MG last June, after going to doctor after doctor for more than 5 years. In 2001, I was involved in a motorcycle accident and could never recover my muscle strength, in fact, I got weaker and weaker at each PT session....3 years!!!Finally...
    MGSnowflake66 MGSnowflake66 46-50, F 2 Responses May 22, 2012

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    Depressed

    I was diagnosed with Mg 19 years ago. At that time I was on mestinon and had a thymectomy. I did go into remission for sseveral years. However I ignored my body and stopped seeing my nuerologist while I was feeling good. I never should have done that. This past year I have had...
    pattam85 pattam85 41-45 11 Responses Sep 24, 2012

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    Old

    I'm 65 and was diagnosed last year. Any older mg patients out there?
    pfcassidy pfcassidy 66-70, F 2 Responses Oct 29, 2013

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      I am new to this

    but am happy to see that so many people share their experiences with having myasthenia gravis. I am a mother of six children. It's been about six years since I have been diagnosed. I have been through two pregnancies with having MG and both went fairly well.
    ckbereal ckbereal 36-40, F 1 Response Nov 28, 2013

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    My Myasthenia Gravis Story

    I am a 35 yr old women who for at least 6 yrs been complaining about double vision,weakness in my legs, arms, and throat, breathing issues etc. Over time i got worse, being unable to take care of my children one being diabled due to a medical mistake other being only 6 and the...
    melandr6 melandr6 31-35, F Apr 24, 2012

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    I Have Myasthenia Gravis

    i got this when i was 19years old after i had my second child i was getting dizzy spells double vision  it it got worse its hard to talk about it really so ill do this again soon ok                      
    caethan caethan 31-35, F 4 Responses Jul 10, 2009

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    Living With Myasthenia Gravis

    I was diagnosed with M G in June of 1995.  I'v had my Thymus Gland removed, I've had the Plasma Pheresis and pleny of other tests.  I've been taking Prednisone ever since. I have my good days and not so good days.  Lately i've been week, fatigued and almost unable...
    blew blew 36-40, F 8 Responses Oct 30, 2009

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    Myastenia Gravis And Genetic Predisposition

    Hi All, I am new to your wonderful forum and I am at my wits ends. I am afraid and I am not getting ANY answers except running into a brick wall, what makes it worse, I a RN, I still can't get information. Please any and all comments, information, suggestions are welcome and I...
    Karen1991 Karen1991 36-40 2 Responses Mar 5, 2013

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    My Remission Story

    I was diagnosed with MG in 2000 and opted to have a thymectomy. After my surgery, I noticed after about a year, my symptoms lessened, but did not go away. I continued to take mestinon for years. Then, in 2010, I became pregnant with my daughter. My symptoms completely...
    mingsor mingsor 36-40, F 1 Response Sep 24, 2013

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    Misunderstood Girl

    I started experiencing the symptoms of MG when I was 13. The slurred speech was the first thing that hit me. For a while it was only that, but it was enough to freak me out. After a while my eyes started drooping, I had doubled vision and I could suddenly drop my glass of water...
    LizzyDeviya LizzyDeviya 18-21, F 18 Responses Oct 23, 2012

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    The Making Of Ed

    Many things have shaped my life as I'm sure that everyone can say. However, nothing has been such an influence on my life as the disease, Myasthenia Gravis that I have. Following is what has shaped my life. I had a good childhood, nothing devastating. I always played sports...
    emoenjr emoenjr 46-50, M 14 Responses Jan 11, 2013

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    I See How All People

    are always being much proud of attaching Latin descriptions for their lives and what they are/have. Nothing bad. Only that when all your life you all focus on your conditions instead of your health - you only deepen them and even further ruin your health. You must focus on...
    Thought1 Thought1 22-25 5 Responses Aug 16, 2009

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    Since Birth

    Hi I'm haley and I've had this since I was born , I wasn't dagnosed tills when I was around 9 months old and my twin sister died. After her death a neurologist names dr.Fernandez heard about me and talked to my parents. I am now 3 months away from being 15 and in the ninth grade...
    Haleyroberson Haleyroberson 13-15 1 Response Nov 21, 2012

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    12 Dr.s Same Wrong Illness

    Ever sence i was little my eyes got blurry sometimes. Every time i went to the eye dr. they said i was making it up to my mom (she believed me). Then when i was in 6th grade i started having trouble running. So i went to PT. Then 3 months later they said i was better. I then...
    addygirl addygirl 18-21, F 3 Responses Dec 8, 2010

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    A Nurse With Myasthenia

    I am 27 years old and I've lived with Myasthenia Gravis for 8 years now. I was diagnosed at 19, the summer after my first year of college. They said I was a "text book case" and had all of the "classic symptoms." However, at the time I had no idea what that meant or what that...
    bk6827 bk6827 26-30 4 Responses Aug 8, 2012

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    My Rare Case Of Myasthenia

    I am a 21 year old female who was diagnosed with myasthenia about a year ago. It first started with shortness of breath and lead to muscle weakness and throat weakness. I am seronegative, and negative for EMG. The only thing my neuro has diagnosed me with is the fact that when he...
    adebaji adebaji 18-21 4 Responses Nov 23, 2011

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    I was diagnosed Feb 2014.

    I'm 53 yrs old. I have been married 34 yrs to a wonderful man. The mother of 5 grown children and grandmother of 10 grandchildren. I have had epilepsy since I was 10 yrs old. It's been under control for sometime. So much of this is hindsight since I didn't think much about it at...
    GRSears GRSears 51-55, F 1 Response Jun 26

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    Blessed

    I was diagnosed with MG over a year ago.  At first the physicians couldn't figure out what was wrong with me.  It took them over a month to figure out what was wrong, I was in the hospital for a week, all my test results were coming back normal.  We couldn't...
    MGPATIENT MGPATIENT 31-35 4 Responses Aug 27, 2009

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    Suffered Terribly For 7 Years

    I started noticing something was wrong when I was about to turn 16 years old. I had always played sports and I couldn't run anymore. Then noticed I wasn't able to walk up steps very well. That was nothing compared to what was about to come next. It progressed to me barely being...
    tkeeton90 tkeeton90 41-45, F 5 Responses Jun 29, 2013

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    Instant Karma~and Fascinating Shoes.

    I'm a snarky forty two year old mom of 3 who is happily married 20 years now. My diagnosis was a couple of days ago. As a singer, vocal teacher,  freelance writer and long time radio personality, I began having difficulty with my voice eight months ago, and, thinking...
    renadam12 renadam12 41-45 11 Responses Oct 29, 2010

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    In Remission, But Still Scared...

    I was diagnosed with MG after several trips to the emergency room, not having any insurance or a regular dr I really didnt know what to do. I went to walk-in care once but they sent me directly to the emergency room due to the fact one half of my face was drooping and I had...
    Kaycie513 Kaycie513 36-40 2 Responses Apr 25, 2012

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    A Long Fours Years, But Now Im Blessed!

    It all started when I was 14, and lets just say thats when i had gotten into the "bad girl" phase. I noticed one day that I could not get off the ground, my legs just wouldn't work at all. So I sat there a few minutes about why this was happening and tryed to get up again and...
    pregokrys18 pregokrys18 18-21, F 3 Responses Jun 24, 2012

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    Daughter Trying To Understand Mother's Pain

    My mother was diagnosed with MG about 2 years ago. For many years she had dropping eyes, but none of the doctors knew why. Once she found out she had to stop working b/c her energy was just down hill. She started taking mestotin 3 times a day and now she at 6 times a day. She...
    steph914 steph914 22-25, F 1 Response Aug 19, 2013

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    My Little Girl!!!!!!

    Hello I would be shocked to hear all this stories, but I have a 3 year old daughter who was diagnosed with MG when she was 1 1/2 years old. I didn't knew what to do because I was a singled mom. My daughter was always crying and specially when it was medication time. She started...
    PaolaR20 PaolaR20 18-21, F 2 Responses Aug 7, 2013

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    Dealing With My MG.

    Im on time realeased mestotin and i have all the fun symptoms. I started with occular now have general was in remission for a good bit. Has anyone had any weight issues or has it affected their Kidneys at all. My Doc put me on immmuran but i just puke violantly when i take it...
    Mathewsc3 Mathewsc3 41-45, M 3 Responses Apr 1, 2013

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    I was diagnosed with MG in 2001.

    I also had a non-cancerous tumor on my Thymus gland, that was reaching up into my throat, cutting off my airway. After yanking that Thymus gland out, I slowly began to feel better. I have learned to listen carefully to my body--my droopy eye means "Rest, silly". I have sucked...
    MsJesster MsJesster 36-40, F 1 Response Mar 29

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    Myasthenia Gravis Wont Slow Me Down!

    Iam a teen and living with MG. It was summer break and i thought i was coming down with a sinus infection. I went to the doctors and they prescribed me medication which never seemed to help. Other symptoms started to come and i was in and out of emergency. My eye started to droop...
    Shoptilludrop123 Shoptilludrop123 16-17 3 Responses Jun 1, 2012

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    Diagnosed At A Young Age

    When I was in the fifth grade I caught the seasonal flu. I just couldn’t seem to shake it. After about three weeks the Flu symptoms went away (all except for the fatigue). When i finally went back to school at lunch I choked on a hot dog at lunch. From then on I had to...
    Heyhaihai Heyhaihai 18-21, F 6 Responses Oct 14, 2009

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    I Have Myesthenia Gravis And Fibromyalgia

    I was diagnosed with fibromyalgia 2 1/2 years ago. I tried every Rx and natural stuff to get in under control but had no luck with that..then 2 years ago i had trouble swallowing. i had every test they could do to see what was wrong. All the specialists could say was that my...
    cgh49 cgh49 61-65, F 1 Response Sep 7, 2012

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    Mg Is Back Again Along With Hyperthyroid

    My niece was diagnosed with MG about 6 or 7 years ago in her early 30s. She had her thymus gland removed and seemed to have completely recovered from MG. Just weeks ago she was diagnosed with a hyper thyroid and along with losing lots of weight her symptoms of MG are coming back...
    Frustratedaunt Frustratedaunt 61-65 2 Responses Nov 5, 2012

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    Making An MG Blog.

    Just started, so don't judge, but if you need info, or you know, need to talk or anything, check it out at http://mgteen.blog.com/. Lots of love
    LizzyDeviya LizzyDeviya 18-21, F 1 Response Mar 11, 2013

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    They Were Wrong For Years!!!!!!

    well for the last 6 years i have had multiple mri's, blood work, ekg's, emg's and lumbar puncure! they had told me i had a thyroid problem, bells paulsy, and MS! i had 4 doctors tell me i had MS! well they were wrong! i got sent to UofM and within 2 visits they knew i had...
    ashleylargent072510 ashleylargent072510 22-25, F 3 Responses Mar 17, 2012

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    Confused

    I am a 41 year old wife and mother of three beautiful boys. I have a twin sister and have been unwell most one way or another without diagnosis. At birth my parent we told I received eye injury at birth and was told I had a lazy eye -10 years ago the right side of my face...
    Tannai Tannai 41-45, F 2 Responses Feb 3, 2013

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    Learning

    I got diganosed with myasthenia gravis in June. Before getting diagnosed with this disease i was a normal girl. In high school i marched in the marching band, sang in chorus, ran cross country, danced, and was in the school musicals. But as i went to college my first yr was...
    lljones417 lljones417 18-21, F 2 Responses Nov 20, 2013

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    I Beat Mg!

    I overcame Myasthenia Gravis! I want to share ideas with other Myasthenics and their friends on how they may improve their condition based on my personal experience and holistic approach. Please see my MG Blog at http://overcomingmyastheniagravis.blogspot.com and sign-up as a...
    FranG FranG 66-70, F 3 Responses Sep 24, 2009

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    I am 24 and I was first diagnosed with MG

    when I was 10. I experienced almost every symptom possible, except for breathing difficulties. A year after I was diagnosed I had a thymectomy and soon after that (I don't remember how soon exactly) I went into complete remission. I have been in remission since then, but I would...
    Mirana90 Mirana90 22-25, F 2 Responses May 18

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    How I Could Run The Marathon Despite Having Mg

    SOME DIETETICAL SUGGESTIONS IN MYASTHENIA GRAVIS (MG) BY ZOLTAN LELKES MEMBER OF THE HUNGARIAN MYASTHENIA GRAVIS GROUP BUDAPEST, HUNGARY I would like to express thanks for your attention, and I would like to say something of my life experience with MG and how to cope with it...
    LZOLI LZOLI 41-45, M Jul 21, 2012

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    Related Experiences

    My head and thoughts are no longer of my own. I cannot tell you the month day or time. I do however know the year is 2014 and august 7 rapidly approaches whatever today's date...
    simpleandsweet36 simpleandsweet36 36-40, F 1 Response 6 hrs ago

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    I have had morphea since 1965 at the age of 14. Back then it was extremely rare to find a doctor who even knew what morphea was. My morphea started as a round spot on my wrist...
    Muffygirl Muffygirl 61-65, F 1 Response 4 hrs ago

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    Too many mistakes override in my life. Social services. My dad. Trying to cover up bad emotions. But I have achieved something. I have self harmed in a month. I am slowly stopping...
    CuteLittleScrewUp CuteLittleScrewUp 16-17, F 3 Responses 1 hr ago

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    People are drawn to me, they call upon me, they often ask me for advice which I have no qualifications to give. I am very careful not to give advice, but to give factual accounts...
    Human0xymoron Human0xymoron 41-45, F 28 mins ago

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    People have ****** me over to much ill make it short and sweet for yall because if I told you why I have trust issues and how many people have hurt me then wed be here for a long...
    BornDifferent BornDifferent 18-21, F 1 Response 5 hrs ago

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    I never was one to have close friends; people I would draw close to would always end up leaving or things would go terribly wrong with the fact that my mother would prevent me from...
    walker13sl walker13sl 22-25, F 1 Response 3 hrs ago

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    I want to make out or have sex with someone at a car dealership. I fantasize about kissing my partner while leaning up against one of the vehicles on the lot. Honestly, I don't...
    Dreamer19845 Dreamer19845 26-30, M 3 hrs ago

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    Have you ever hated anyone who made your life a living hell? A sick and twisted psychopath, who gets off at seeing you in pain. I have had an experience with such a person, it...
    BleedingPrimrose BleedingPrimrose 18-21, F 2 Responses 5 hrs ago

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    Ugh, I'm so socially awkward due to my anxiety and it bugs me. I can't manage to sleepover anywhere. I always end up coming back home. I have to keep my phone charged and on me 24...
    TheSongPlaysWithin TheSongPlaysWithin 16-17, F 1 Response 6 hrs ago

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    my message to another EP member: once you accept death (like I have) you make yourself a work of art. seriously, look at me. would I act the way I do if I hadn't pondered suicide a...
    mierdamundo mierdamundo 31-35 1 Response 5 hrs ago

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    I have been dreaming about my ex boyfriend lately, but I honestly don't think of him anymore. I know it means something but I don't want to talk to him anymore.
    Jelliii Jelliii 22-25, F 1 Response 4 hrs ago

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    How can someone ever love me if I don't like myself sometimes. I have my good days and my bad days. Honestly today feels like one of those bad days. Sometimes though I come to the...
    Savone52798 Savone52798 16-17, F 3 Responses 4 hrs ago

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    I'm 21 and I didn't get diagnosed till last year in May. It pretty much explained everything I was going through, the panic attacks, the endless worrying, the nausea and the...
    chrisxderp chrisxderp 18-21, F 4 hrs ago

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    Choose the red sucker cos it's prettier? or the green sucker cos it's tastier? I've always had trouble making decisions. It's not always easy, and sometimes you have to chose. Last...
    DarkwingGoslyn DarkwingGoslyn 31-35 3 hrs ago

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