I Have Myasthenia Gravis

A Myasthenia Gravis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myasthenia Gravis. You're not alone. 162 People


    I got diganosed with myasthenia gravis in June. Before getting diagnosed with this disease i was a normal girl. In high school i marched in the marching band, sang in chorus, ran cross country, danced, and was in the school musicals. But as i went to college my first yr was...
    lljones417 lljones417
    22-25, F
    4 Responses Nov 20, 2013

    I think. Thirty years I have been living my

    life believing I have an autoimmune disease called scleroderma. Along with hypothyroidism, which also has been with me for 30 years. I can understand the similarities. I also feel that my hypothyroidism has never been adequately managed on thyroxine, and this would explain...
    lethalea lethalea
    51-55, F
    1 Response Aug 30, 2015

    I Have Myesthenia Gravis And Fibromyalgia

    I was diagnosed with fibromyalgia 2 1/2 years ago. I tried every Rx and natural stuff to get in under control but had no luck with that..then 2 years ago i had trouble swallowing. i had every test they could do to see what was wrong. All the specialists could say was that my...
    cgh49 cgh49
    61-65, F
    2 Responses Sep 7, 2012

    I am 24 and I was first diagnosed with MG

    when I was 10. I experienced almost every symptom possible, except for breathing difficulties. A year after I was diagnosed I had a thymectomy and soon after that (I don't remember how soon exactly) I went into complete remission. I have been in remission since then, but I would...
    Mirana90 Mirana90
    26-30, F
    3 Responses May 18, 2014

    They Were Wrong For Years!!!!!!

    well for the last 6 years i have had multiple mri's, blood work, ekg's, emg's and lumbar puncure! they had told me i had a thyroid problem, bells paulsy, and MS! i had 4 doctors tell me i had MS! well they were wrong! i got sent to UofM and within 2 visits they knew i had...
    ashleylargent072510 ashleylargent072510
    22-25, F
    3 Responses Mar 17, 2012

    Since Birth

    Hi I'm haley and I've had this since I was born , I wasn't dagnosed tills when I was around 9 months old and my twin sister died. After her death a neurologist names dr.Fernandez heard about me and talked to my parents. I am now 3 months away from being 15 and in the ninth grade...
    Haleyroberson Haleyroberson
    1 Response Nov 21, 2012

    It has almost been two years

    since I have been diagnosed with myasthenia I have learn so much about it and from it. It is one frustrating disease. I try not to let it bother me it is very hard tho. I have been thru alot. Lots of hospitalization, issues getting meds and lots of weird side affects. Me and the...
    lljones417 lljones417
    22-25, F
    2 Responses Mar 12, 2015

    Dealing With My MG.

    Im on time realeased mestotin and i have all the fun symptoms. I started with occular now have general was in remission for a good bit. Has anyone had any weight issues or has it affected their Kidneys at all. My Doc put me on immmuran but i just puke violantly when i take it...
    Mathewsc3 Mathewsc3
    46-50, M
    3 Responses Apr 1, 2013


    I was diagnosed with MG over a year ago.  At first the physicians couldn't figure out what was wrong with me.  It took them over a month to figure out what was wrong, I was in the hospital for a week, all my test results were coming back normal.  We couldn't...
    4 Responses Aug 27, 2009

    Hey have just recently been diagnosed with MG .

    I'm 24 and from the Caribbean. I probably had it for years had so many symptoms and every doctor led me to believe i had allergies of some sort.Recently i started getting intense symptoms right before that time of the month and we decided to go to different doctors when finally i...
    tallyskitts tallyskitts
    Oct 2, 2014

    I was diagnosed Feb 2014.

    I'm 53 yrs old. I have been married 34 yrs to a wonderful man. The mother of 5 grown children and grandmother of 10 grandchildren. I have had epilepsy since I was 10 yrs old. It's been under control for sometime. So much of this is hindsight since I didn't think much about it at...
    GRSears GRSears
    56-60, F
    1 Response Jun 26, 2014

    I was diagnosed with MG 11 years ago.

    I was 14 back then. My experience with it is not so bad actually, just droopy eyelids for a couple of days when we first discovered it and another similar episode one year later. I was prescribed cortisone (Medrol) during "crisis" and took it for 3 weeks both times (and gained...
    VieChaya VieChaya
    26-30, F
    1 Response May 22, 2015

      I am new to this

    but am happy to see that so many people share their experiences with having myasthenia gravis. I am a mother of six children. It's been about six years since I have been diagnosed. I have been through two pregnancies with having MG and both went fairly well.
    ckbereal ckbereal
    41-45, F
    1 Response Nov 28, 2013

    My Myasthenia Gravis Story

    I am a 35 yr old women who for at least 6 yrs been complaining about double vision,weakness in my legs, arms, and throat, breathing issues etc. Over time i got worse, being unable to take care of my children one being diabled due to a medical mistake other being only 6 and the...
    melandr6 melandr6
    31-35, F
    1 Response Apr 24, 2012

    I developed Myasthenia Gravis

    as a side effect of Penicillamine, which was prescribed for RA. (I was 8-9 at the time and this was 30 years ago.) No one knew what was going on. I had droopy eyelids, slurred speech, difficulty swallowing, and was chronically fatigued (which would worsen over the course of the...
    bionicmama bionicmama
    41-45, F
    Oct 6, 2014

    Misunderstood Girl

    I started experiencing the symptoms of MG when I was 13. The slurred speech was the first thing that hit me. For a while it was only that, but it was enough to freak me out. After a while my eyes started drooping, I had doubled vision and I could suddenly drop my glass of water...
    LizzyDeviya LizzyDeviya
    18-21, F
    17 Responses Oct 23, 2012

    My Remission Story

    I was diagnosed with MG in 2000 and opted to have a thymectomy. After my surgery, I noticed after about a year, my symptoms lessened, but did not go away. I continued to take mestinon for years. Then, in 2010, I became pregnant with my daughter. My symptoms completely...
    mingsor mingsor
    41-45, F
    1 Response Sep 24, 2013

    Making An MG Blog.

    Just started, so don't judge, but if you need info, or you know, need to talk or anything, check it out at http://mgteen.blog.com/. Lots of love
    LizzyDeviya LizzyDeviya
    18-21, F
    1 Response Mar 11, 2013

    Hi, I am a 27 year old lady.

    I'm a medical doctor and was diagnosed with MG about a month ago. I was living a perfectly normal life, though I used to get intense fatigue every now and again. I had started swimming regularly, when one night I just became suddenly weak in my legs. I thought I was just tired...
    tunta15 tunta15
    26-30, F
    Feb 6, 2015

    12 Dr.s Same Wrong Illness

    Ever sence i was little my eyes got blurry sometimes. Every time i went to the eye dr. they said i was making it up to my mom (she believed me). Then when i was in 6th grade i started having trouble running. So i went to PT. Then 3 months later they said i was better. I then...
    addygirl addygirl
    18-21, F
    3 Responses Dec 8, 2010

    I got diagnosed with Myasthenia Gravis last

    April and am still physically and emotionally trying to get myself together.
    MandyR34 MandyR34
    22-25, F
    Jan 30, 2016

    I support those who support us

    and want to spread the word about Myasthenia gravis..I have a youtube channel that documents my experiences and spread the word on this disease...check me out just look up Dee W or Myasthenia Gravis My story and i should pop up.
    deelovely90 deelovely90
    26-30, F
    2 Responses Jun 20, 2015

    I am 25yrs olds. I was diagnosed with

    myasthenia gravis when I was 10 years old and have been struggling for years now. In the beginning I was able to keep up my active life style. I was a star athlete and even ran cross country and played softball and basketball till junior yea of high school. With no warning i...
    tdupers tdupers
    26-30, F
    2 Responses Jun 16, 2015

    My doctor has clinically give me this diagnosis

    and started me in Mestinon. I have not had eye lip drooping problems, lots of other symptoms though. Does anyone else experience muscle twitches? I hope to get a definite it diagnosis to simply move in with it. I have 5 kids and work and this has sooooo slowed things down.
    nosweatswife nosweatswife
    36-40, F
    3 Responses Apr 17, 2015

    I Have Myasthenia Gravis

    i got this when i was 19years old after i had my second child i was getting dizzy spells double vision  it it got worse its hard to talk about it really so ill do this again soon ok                      
    caethan caethan
    31-35, F
    4 Responses Jul 10, 2009

    Myasthenia Gravis Wont Slow Me Down!

    Iam a teen and living with MG. It was summer break and i thought i was coming down with a sinus infection. I went to the doctors and they prescribed me medication which never seemed to help. Other symptoms started to come and i was in and out of emergency. My eye started to droop...
    Shoptilludrop123 Shoptilludrop123
    3 Responses Jun 1, 2012

    I was diagnosed with MG in 2001.

    I also had a non-cancerous tumor on my Thymus gland, that was reaching up into my throat, cutting off my airway. After yanking that Thymus gland out, I slowly began to feel better. I have learned to listen carefully to my body--my droopy eye means "Rest, silly". I have sucked...
    MsJesster MsJesster
    36-40, F
    1 Response Mar 29, 2014


    I'm 65 and was diagnosed last year. Any older mg patients out there?
    pfcassidy pfcassidy
    66-70, F
    5 Responses Oct 29, 2013

    Mg Is Back Again Along With Hyperthyroid

    My niece was diagnosed with MG about 6 or 7 years ago in her early 30s. She had her thymus gland removed and seemed to have completely recovered from MG. Just weeks ago she was diagnosed with a hyper thyroid and along with losing lots of weight her symptoms of MG are coming back...
    Frustratedaunt Frustratedaunt
    2 Responses Nov 5, 2012

    Myastenia Gravis And Genetic Predisposition

    Hi All, I am new to your wonderful forum and I am at my wits ends. I am afraid and I am not getting ANY answers except running into a brick wall, what makes it worse, I a RN, I still can't get information. Please any and all comments, information, suggestions are welcome and I...
    Karen1991 Karen1991
    2 Responses Mar 5, 2013


    I was diagnosed with Mg 19 years ago. At that time I was on mestinon and had a thymectomy. I did go into remission for sseveral years. However I ignored my body and stopped seeing my nuerologist while I was feeling good. I never should have done that. This past year I have had...
    pattam85 pattam85
    12 Responses Sep 24, 2012

    The Making Of Ed

    Many things have shaped my life as I'm sure that everyone can say. However, nothing has been such an influence on my life as the disease, Myasthenia Gravis that I have. Following is what has shaped my life. I had a good childhood, nothing devastating. I always played sports...
    emoenjr emoenjr
    46-50, M
    11 Responses Jan 11, 2013

    Living With Myasthenia Gravis

    I was diagnosed with M G in June of 1995.  I'v had my Thymus Gland removed, I've had the Plasma Pheresis and pleny of other tests.  I've been taking Prednisone ever since. I have my good days and not so good days.  Lately i've been week, fatigued and almost unable...
    blew blew
    36-40, F
    9 Responses Oct 30, 2009

    In Remission, But Still Scared...

    I was diagnosed with MG after several trips to the emergency room, not having any insurance or a regular dr I really didnt know what to do. I went to walk-in care once but they sent me directly to the emergency room due to the fact one half of my face was drooping and I had...
    Kaycie513 Kaycie513
    2 Responses Apr 25, 2012


    I am a 41 year old wife and mother of three beautiful boys. I have a twin sister and have been unwell most one way or another without diagnosis. At birth my parent we told I received eye injury at birth and was told I had a lazy eye -10 years ago the right side of my face...
    Tannai Tannai
    41-45, F
    3 Responses Feb 3, 2013

    About a month ago, so to say from one day of

    another I came down with MG. At first I noted that I couldn't swallow very well. I also had a lot of salavia en my mouth. My wife rushed me to the hospital, where I was diagnosed with MG. My was the "bulbar" version. That is weaknes in the throat, swallowing, chewing, and neck...
    01Ledor 01Ledor
    70+, M
    Jul 23, 2015

    A Long Fours Years, But Now Im Blessed!

    It all started when I was 14, and lets just say thats when i had gotten into the "bad girl" phase. I noticed one day that I could not get off the ground, my legs just wouldn't work at all. So I sat there a few minutes about why this was happening and tryed to get up again and...
    pregokrys18 pregokrys18
    18-21, F
    3 Responses Jun 24, 2012

    I Beat Mg!

    I overcame Myasthenia Gravis! I want to share ideas with other Myasthenics and their friends on how they may improve their condition based on my personal experience and holistic approach. Please see my MG Blog at http://overcomingmyastheniagravis.blogspot.com and sign-up as a...
    FranG FranG
    66-70, F
    3 Responses Sep 24, 2009

    My Mg Was Missed For Years

    I am 46 years old and was diagnosed with MG last June, after going to doctor after doctor for more than 5 years. In 2001, I was involved in a motorcycle accident and could never recover my muscle strength, in fact, I got weaker and weaker at each PT session....3 years!!!Finally...
    MGSnowflake66 MGSnowflake66
    46-50, F
    2 Responses May 22, 2012

    Instant Karma~and Fascinating Shoes.

    I'm a snarky forty two year old mom of 3 who is happily married 20 years now. My diagnosis was a couple of days ago. As a singer, vocal teacher,  freelance writer and long time radio personality, I began having difficulty with my voice eight months ago, and, thinking...
    renadam12 renadam12
    11 Responses Oct 29, 2010

    A Nurse With Myasthenia

    I am 27 years old and I've lived with Myasthenia Gravis for 8 years now. I was diagnosed at 19, the summer after my first year of college. They said I was a "text book case" and had all of the "classic symptoms." However, at the time I had no idea what that meant or what that...
    bk6827 bk6827
    6 Responses Aug 8, 2012

    Suffered Terribly For 7 Years

    I started noticing something was wrong when I was about to turn 16 years old. I had always played sports and I couldn't run anymore. Then noticed I wasn't able to walk up steps very well. That was nothing compared to what was about to come next. It progressed to me barely being...
    tkeeton90 tkeeton90
    41-45, F
    5 Responses Jun 29, 2013

    How I Could Run The Marathon Despite Having Mg

    SOME DIETETICAL SUGGESTIONS IN MYASTHENIA GRAVIS (MG) BY ZOLTAN LELKES MEMBER OF THE HUNGARIAN MYASTHENIA GRAVIS GROUP BUDAPEST, HUNGARY I would like to express thanks for your attention, and I would like to say something of my life experience with MG and how to cope with it...
    41-45, M
    Jul 21, 2012

    My Little Girl!!!!!!

    Hello I would be shocked to hear all this stories, but I have a 3 year old daughter who was diagnosed with MG when she was 1 1/2 years old. I didn't knew what to do because I was a singled mom. My daughter was always crying and specially when it was medication time. She started...
    PaolaR20 PaolaR20
    22-25, F
    2 Responses Aug 7, 2013

    My Rare Case Of Myasthenia

    I am a 21 year old female who was diagnosed with myasthenia about a year ago. It first started with shortness of breath and lead to muscle weakness and throat weakness. I am seronegative, and negative for EMG. The only thing my neuro has diagnosed me with is the fact that when he...
    adebaji adebaji
    5 Responses Nov 23, 2011

    Daughter Trying To Understand Mother's Pain

    My mother was diagnosed with MG about 2 years ago. For many years she had dropping eyes, but none of the doctors knew why. Once she found out she had to stop working b/c her energy was just down hill. She started taking mestotin 3 times a day and now she at 6 times a day. She...
    steph914 steph914
    26-30, F
    1 Response Aug 19, 2013

    Diagnosed At A Young Age

    When I was in the fifth grade I caught the seasonal flu. I just couldn’t seem to shake it. After about three weeks the Flu symptoms went away (all except for the fatigue). When i finally went back to school at lunch I choked on a hot dog at lunch. From then on I had to...
    Heyhaihai Heyhaihai
    18-21, F
    7 Responses Oct 14, 2009
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