I Have Mycobacterium Avium Complex Infection

A Mycobacterium Avium Complex Infection anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mycobacterium Avium Complex Infection. You're not alone. 12 People

    I Have Mycobacterium Avium Complex Diagnosed 3 Years Ago

    My mycobacterial disease was diagnosed 3 years ago but I am sure I had it for years before diagnosis. I have suffered with pneumonias all of my adult life. I am still on Rifampin, Ethambutol and Azithromycin twice a day. Today I am not feeling very well. This illness is not...
    rmcb0 rmcb0
    66-70
    Apr 16, 2013

    Recently Diagnosed

    Hello Folks I was recently diagnosed with MAC (non HIV) after suffering multiple and increasingly serious, pneumonias over the past few years. I am 58 years old and have been in otherwise good health. I am beginning to explore alternatives to find out how I can strengthen my...
    Jcub Jcub
    61-65
    2 Responses Sep 21, 2013

    Mac Infection

    I have also experienced extreme fatigue since 2007 . Drs said exercise. With the fatigue and nausea it is difficult to function. I am a single mom and have lots to do and no energy
    deb4717 deb4717
    56-60, F
    Jun 3, 2013

    Picked Up Bug In Vietnam, Never Got It To Leave

    I brought back an exotic bug from Vietnam in the late 60's. Soon, I was having pneumonia every winter. Not until the late 1990's did anyone put a name to it--it was variously called the thin women's disease, or Lady Windemere's syndrome. One doctor said it came from drinking...
    shepherdscribe shepherdscribe
    66-70
    Jun 16, 2013

    Diagnosed With Mac

    Diagnosed in March 2013 . Symptoms were nausea diarrhea and coughing. Coughing up mucus. Went for brochoscopy in April 2013 after ct scan showed 2spots in one lung the size of a 2 dollar coin. Got very sick a few days after bronchoscopy with a rotten egg smell coming from my...
    deb4717 deb4717
    56-60, F
    Jun 5, 2013

    Diagnose With

    Has anyone been cured without reinfection
    deb4717 deb4717
    56-60, F
    Jun 3, 2013

    27 Years Old And Health--Then Came MAC

    I am a rare case. I will be up front, too. I contracted MAC in the worst of all areas--let's just say the doc thought the mass on my right testicle was cancer. It was not cancer. It was not TB (as they also thought). I had the surgery (awful). But the story gets worse...
    novick878 novick878
    31-35, M
    Oct 28, 2013

    I Have Mac

    So far the 3 antibiotics I have been put on have not made me worse. Still have fatigue nausea and sweats. Dr.confirmed that mac can come back . I have a susceptibility to it and its everywhere. So for 17 more months I will have to take the 3 antibiotics once a day.what are some...
    deb4717 deb4717
    56-60, F
    2 Responses Jun 10, 2013

    Mac Infection

    Diagnosed March 2013.ct scan showed 2spots the size of a $2 coin. Started meds April 17 2013. Rifampin azithromycn and ethambutol. Been doing some research and can't seem to find anyone who has been cured without reinfection
    deb4717 deb4717
    56-60, F
    1 Response Jun 3, 2013

    I was diagnosed with MAC about 2 years ago

    after suffering fever, flu-like symptoms with body aches, constant unproductive coughing, nausea, diarrhea and weight loss. My pulmonologist did a CT scan and saw the mass in my lung to be MAC. He did a bronchoscopy in same day surgery and sent out a biopsy for testing and...
    momma406 momma406
    70+, F
    Jan 31, 2014
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