I Have Mycobacterium Avium Complex Infection

A Mycobacterium Avium Complex Infection anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mycobacterium Avium Complex Infection. You're not alone. 12 People

    27 Years Old And Health--Then Came MAC

    I am a rare case. I will be up front, too. I contracted MAC in the worst of all areas--let's just say the doc thought the mass on my right testicle was cancer. It was not cancer. It was not TB (as they also thought). I had the surgery (awful). But the story gets worse...
    novick878 novick878
    31-35, M
    Oct 28, 2013

    Diagnose With

    Has anyone been cured without reinfection
    deb4717 deb4717
    56-60, F
    Jun 3, 2013

    Mac Infection

    Diagnosed March 2013.ct scan showed 2spots the size of a $2 coin. Started meds April 17 2013. Rifampin azithromycn and ethambutol. Been doing some research and can't seem to find anyone who has been cured without reinfection
    deb4717 deb4717
    56-60, F
    1 Response Jun 3, 2013

    Picked Up Bug In Vietnam, Never Got It To Leave

    I brought back an exotic bug from Vietnam in the late 60's. Soon, I was having pneumonia every winter. Not until the late 1990's did anyone put a name to it--it was variously called the thin women's disease, or Lady Windemere's syndrome. One doctor said it came from drinking...
    shepherdscribe shepherdscribe
    66-70
    Jun 16, 2013

    Mac Infection

    I have also experienced extreme fatigue since 2007 . Drs said exercise. With the fatigue and nausea it is difficult to function. I am a single mom and have lots to do and no energy
    deb4717 deb4717
    56-60, F
    Jun 3, 2013

    I Have Mycobacterium Avium Complex Diagnosed 3 Years Ago

    My mycobacterial disease was diagnosed 3 years ago but I am sure I had it for years before diagnosis. I have suffered with pneumonias all of my adult life. I am still on Rifampin, Ethambutol and Azithromycin twice a day. Today I am not feeling very well. This illness is not...
    rmcb0 rmcb0
    66-70
    Apr 16, 2013

    I Have Mac

    So far the 3 antibiotics I have been put on have not made me worse. Still have fatigue nausea and sweats. Dr.confirmed that mac can come back . I have a susceptibility to it and its everywhere. So for 17 more months I will have to take the 3 antibiotics once a day.what are some...
    deb4717 deb4717
    56-60, F
    2 Responses Jun 10, 2013

    Recently Diagnosed

    Hello Folks I was recently diagnosed with MAC (non HIV) after suffering multiple and increasingly serious, pneumonias over the past few years. I am 58 years old and have been in otherwise good health. I am beginning to explore alternatives to find out how I can strengthen my...
    Jcub Jcub
    61-65
    2 Responses Sep 21, 2013

    I was diagnosed with MAC about 2 years ago

    after suffering fever, flu-like symptoms with body aches, constant unproductive coughing, nausea, diarrhea and weight loss. My pulmonologist did a CT scan and saw the mass in my lung to be MAC. He did a bronchoscopy in same day surgery and sent out a biopsy for testing and...
    momma406 momma406
    70+, F
    Jan 31, 2014

    Diagnosed With Mac

    Diagnosed in March 2013 . Symptoms were nausea diarrhea and coughing. Coughing up mucus. Went for brochoscopy in April 2013 after ct scan showed 2spots in one lung the size of a 2 dollar coin. Got very sick a few days after bronchoscopy with a rotten egg smell coming from my...
    deb4717 deb4717
    56-60, F
    Jun 5, 2013
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