I Have Mycobacterium Avium Complex Infection

A Mycobacterium Avium Complex Infection anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mycobacterium Avium Complex Infection. You're not alone. 39 People

    Does This Run In Families?

    I was diagnosed with MAI in 2000 (when I was 51) after spots were seen on my lung on a routine chest x-ray. I had no symptoms at all.  I had a PET scan and then a lung biopsy.  I The pulmonologist put me on the Zithromax, Ethambutol and Rifampin for six months.  The...
    harue harue
    2 Responses Jun 23, 2011

    Hello, I have cystic fibrosis,

    bipolar disorder, asthma, diabetes, only one working kidney, and now MAC. I was diagnosed in May with this infection and I was started on treatment (Clarithromycin, Ethambutol, and Rifantin) three weeks ago. Prior to treatment, I had excruciating pain from time to time from the...
    tracy3379 tracy3379
    36-40, F
    Aug 10, 2015

    Hello Mac, It's Me...kate

    Last August I spent one of the best weeks of my life in Mexico, celebrating my younger brother's wedding. On the day we were to return home I had a fever that I just couldn't seem to shake. Two days later, August 30th I entered the hospital with a temperature of 105.5 and that...
    meka0201 meka0201
    26-30, F
    5 Responses Apr 29, 2012

    Now What??

    I've just been diagnosed with Mycobacterium Avium Complex. I think Lady Windemere syndrome sounds a lot more glamorous! My pulmonologist is warning me that treating this with 3 different antibiotics is full of dangers. Like, kidney failure and loss of color vision. Somewhere...
    Laytblmr Laytblmr
    3 Responses Sep 20, 2011

    Bacteria In Showerheds

    Thomas LaPorta and Susan Jacoby are the inventors of The Just Routine Showerhead Clean device and system. While watching the morning Today Show a segment came on stating that “Showerheads Can Harbor Bacteria”. Susan being very conscious of her health and a clean home...
    tlaporta3 tlaporta3
    Aug 6, 2010

    What Can I Expect?

    I have been diagnosed with Mycobacterium Avium Complex. However , I haven't started on the three drugs prescribed by my doctor. They are:zitromax, ethambutol,and rifampin. What has anyone experience withthis treatment? Side effects? Cure rate?
    fastesteddie fastesteddie
    70+, M
    13 Responses Apr 25, 2010


    I am brand new to this website.  I hope I am using it right.I was diagnosed with Mycobacterium Avium Complex about 5 months ago.  After much more testing, I started taking antibiotics 3 months ago.  At first I was doing ok with this regimen, but, for the past 6 weeks, I have...
    KayPW KayPW
    4 Responses Oct 16, 2011


    I have Mac and I have just been given 2 kinds of antibiotics I am a little concerned about the side effects, anyone got any advice.
    shellyoung shellyoung
    Apr 28, 2012
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