I Have Mycobacterium Avium Complex Infection

A Mycobacterium Avium Complex Infection anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mycobacterium Avium Complex Infection. You're not alone. 39 People

    Hello, I have cystic fibrosis,

    bipolar disorder, asthma, diabetes, only one working kidney, and now MAC. I was diagnosed in May with this infection and I was started on treatment (Clarithromycin, Ethambutol, and Rifantin) three weeks ago. Prior to treatment, I had excruciating pain from time to time from the...
    tracy3379 tracy3379
    36-40, F
    Aug 10, 2015


    I am brand new to this website.  I hope I am using it right.I was diagnosed with Mycobacterium Avium Complex about 5 months ago.  After much more testing, I started taking antibiotics 3 months ago.  At first I was doing ok with this regimen, but, for the past 6 weeks, I have...
    KayPW KayPW
    4 Responses Oct 16, 2011

    Bacteria In Showerheds

    Thomas LaPorta and Susan Jacoby are the inventors of The Just Routine Showerhead Clean device and system. While watching the morning Today Show a segment came on stating that “Showerheads Can Harbor Bacteria”. Susan being very conscious of her health and a clean home...
    tlaporta3 tlaporta3
    Aug 6, 2010

    What Can I Expect?

    I have been diagnosed with Mycobacterium Avium Complex. However , I haven't started on the three drugs prescribed by my doctor. They are:zitromax, ethambutol,and rifampin. What has anyone experience withthis treatment? Side effects? Cure rate?
    fastesteddie fastesteddie
    70+, M
    13 Responses Apr 25, 2010

    Now What??

    I've just been diagnosed with Mycobacterium Avium Complex. I think Lady Windemere syndrome sounds a lot more glamorous! My pulmonologist is warning me that treating this with 3 different antibiotics is full of dangers. Like, kidney failure and loss of color vision. Somewhere...
    Laytblmr Laytblmr
    3 Responses Sep 20, 2011


    I have Mac and I have just been given 2 kinds of antibiotics I am a little concerned about the side effects, anyone got any advice.
    shellyoung shellyoung
    Apr 28, 2012

    Hello Mac, It's Me...kate

    Last August I spent one of the best weeks of my life in Mexico, celebrating my younger brother's wedding. On the day we were to return home I had a fever that I just couldn't seem to shake. Two days later, August 30th I entered the hospital with a temperature of 105.5 and that...
    meka0201 meka0201
    26-30, F
    5 Responses Apr 29, 2012

    Does This Run In Families?

    I was diagnosed with MAI in 2000 (when I was 51) after spots were seen on my lung on a routine chest x-ray. I had no symptoms at all.  I had a PET scan and then a lung biopsy.  I The pulmonologist put me on the Zithromax, Ethambutol and Rifampin for six months.  The...
    harue harue
    2 Responses Jun 23, 2011
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