Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Mycobacterium Avium Complex Infection

A Mycobacterium Avium Complex Infection anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mycobacterium Avium Complex Infection. You're not alone. 36 People

    Now What??

    I've just been diagnosed with Mycobacterium Avium Complex. I think Lady Windemere syndrome sounds a lot more glamorous! My pulmonologist is warning me that treating this with 3 different antibiotics is full of dangers. Like, kidney failure and loss of color vision. Somewhere...
    Laytblmr Laytblmr 66-70 3 Responses Sep 20, 2011

    Your Response

    Cancel

    Does This Run In Families?

    I was diagnosed with MAI in 2000 (when I was 51) after spots were seen on my lung on a routine chest x-ray. I had no symptoms at all.  I had a PET scan and then a lung biopsy.  I The pulmonologist put me on the Zithromax, Ethambutol and Rifampin for six months.  The...
    harue harue 61-65 1 Response Jun 23, 2011

    Your Response

    Cancel

    Mycobacterium

    I have Mac and I have just been given 2 kinds of antibiotics I am a little concerned about the side effects, anyone got any advice.
    shellyoung shellyoung 46-50 Apr 28, 2012

    Your Response

    Cancel

    What Can I Expect?

    I have been diagnosed with Mycobacterium Avium Complex. However , I haven't started on the three drugs prescribed by my doctor. They are:zitromax, ethambutol,and rifampin. What has anyone experience withthis treatment? Side effects? Cure rate?
    fastesteddie fastesteddie 66-70, M 11 Responses Apr 25, 2010

    Your Response

    Cancel

    Mac

    I am brand new to this website.  I hope I am using it right.I was diagnosed with Mycobacterium Avium Complex about 5 months ago.  After much more testing, I started taking antibiotics 3 months ago.  At first I was doing ok with this regimen, but, for the past 6 weeks, I have...
    KayPW KayPW 61-65 3 Responses Oct 16, 2011

    Your Response

    Cancel

    Hello Mac, It's Me...kate

    Last August I spent one of the best weeks of my life in Mexico, celebrating my younger brother's wedding. On the day we were to return home I had a fever that I just couldn't seem to shake. Two days later, August 30th I entered the hospital with a temperature of 105.5 and that...
    meka0201 meka0201 26-30, F 5 Responses Apr 29, 2012

    Your Response

    Cancel

    Bacteria In Showerheds

    Thomas LaPorta and Susan Jacoby are the inventors of The Just Routine Showerhead Clean device and system. While watching the morning Today Show a segment came on stating that “Showerheads Can Harbor Bacteria”. Susan being very conscious of her health and a clean home...
    tlaporta3 tlaporta3 46-50 Aug 6, 2010

    Your Response

    Cancel

    Related Experiences

    I've been on E P for many years. I've been on similar kinds of sites over the years. I've participated in chat rooms on the net over the years. I interact with women in gyms in...
    thebustierthebetter thebustierthebetter 46-50, M 2 hrs ago

    Your Response

    Cancel
    I Have Random Thoughts My top 10. Opinions are mine and mine alone. Don't like them. Go away. 1. Without coffee I think I would be in a coma or dead. 2. A nice tattoo or nice...
    mslvr01 mslvr01 46-50, M 6 hrs ago

    Your Response

    Cancel
    I've always had a high pain tolerance. I've been dealing with migraines, unstable kneecaps, and back problems my whole life. So I'm not sure when the plantar fasciitis pain...
    irlnagi irlnagi 22-25, T 7 hrs ago

    Your Response

    Cancel
    I would like to have a friend who have sweaty hands like me because she can understand how I feel and I do not have to feel embarrassed about my hands and can be myself around them...
    ternat567 ternat567 22-25, F 8 hrs ago

    Your Response

    Cancel
    I love people watching. Generally it tends to happen when I'm eating out on my own and wifi/3G is bad. But I've always been fascinated by the way people carry themselves. You can...
    AthenaJones AthenaJones 36-40, F 7 Responses 8 hrs ago

    Your Response

    Cancel
    Hello everyone. I don't have Dermatophagia but I think my 14 year old daughter might. It all started when she was about in 5th grade. She used to chew the scabs on her legs. So...
    UltraSonicPanda UltraSonicPanda 31-35, F 12 hrs ago

    Your Response

    Cancel
    First let me express my deepest gratitude for this site, and this group. I'm a 23 year old female from the depths of one of the most religious and conservative places in the US. I...
    poliscinerd25 poliscinerd25 22-25, F 15 hrs ago

    Your Response

    Cancel
    My ex-friends sucked. There were the little things. Just typical teenaged small problems that would roll off my back. I'd be the third-wheel whenever I was in a group with them...
    sabertigersab sabertigersab 18-21, F 15 hrs ago

    Your Response

    Cancel
    I have bad anxiety I'm always thinking my illness is going to make me stop breathing and them I start to get a bad feeling and it really bothers me
    newhope123 newhope123 31-35, M 16 hrs ago

    Your Response

    Cancel
    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    chavacc11 chavacc11 26-30, F 18 hrs ago

    Your Response

    Cancel
    I miss being a dad. cuddle time with my sweet daughter. Going to her softball games helping coach in between games. Searching tide pools for critters. Taking hikes together.And all...
    blankshot blankshot 41-45, M 1 day ago

    Your Response

    Cancel
    I had all four of my wisdom teeth removed not too long ago, and let me tell you, the process of having all of them extracted at once was probably the easier part of the whole...
    pebbles7 pebbles7 36-40, F 2 Responses 2 days ago

    Your Response

    Cancel
    so again I'm at the Dr office I can't take it anymore I have to know if I was infected with HSV2 I might have been exposed about 4 months ago and ever since then I been having BV...
    luna1088 luna1088 26-30, F 1 Response 2 days ago

    Your Response

    Cancel
    I have definitely been trying to get through a rough patch. Just when I think everything is back to normal, boom...something else. First I thought I was coming down with a yeast...
    thenewme85 thenewme85 26-30, F 1 Response 2 days ago

    Your Response

    Cancel
    Read this somewhere 23 Emotions people feel, but can’t explain Sonder: The realization that each passerby has a life as vivid and complex as your own. Opia: The ambiguous...
    RedHwaiting RedHwaiting 18-21, F 2 Responses 3 days ago

    Your Response

    Cancel
    I did a few months ago with my gf in a public pool. We also made out and done other fun stuff. It was great and lasted for like 2 hours. Luckily nobody else shown up to the pool...
    Padresfan Padresfan 16-17, M 3 days ago

    Your Response

    Cancel
    My son had two malrotations before they found he had Hirschsprungs Disease. The first was at birth and the second was probably around 4-5 months old. We thought we were going to...
    tilaterese tilaterese 26-30, F 4 days ago

    Your Response

    Cancel
    As I said I convinced my friend to go to the doctor with me. She is huge and I feel like she seems unhappy about it so I wanted to give her the opportunity to speak up and make...
    Yummser Yummser 18-21, F 4 days ago

    Your Response

    Cancel
    When you find out that you were missed diagnose. I thought I was living with herpes for a year. I never got an officially blood test until this year. When I thought I was having...
    JanelBell JanelBell 18-21, F 1 Response 5 days ago

    Your Response

    Cancel
    There's a ton of depth and complexity layered into the game. Nevrax promises a completely dynamic world; in fact, the game will evolve differently on each server depending on the...
    masonrychan masonrychan 22-25, M 1 Response 5 days ago

    Your Response

    Cancel
    My daughter is 2 and is very behind in her speech because of multiple ear infections as a baby...and every since she has been about 15 months she has said man on wall...my husband...
    Babygirl1572 Babygirl1572 22-25, F 5 Responses 6 days ago

    Your Response

    Cancel
    I always get chased, abused and beaten, or I have to get away from something terrifying. I recently had a dream that I was in a very big complex jail cell. I gotbout but then there...
    WhisperingGrass WhisperingGrass 18-21, F a week ago

    Your Response

    Cancel
    my younger brother is a heroin addict. He's been in jail a few time and long enough to get it out of his sudden. He had stolen everything from our patents, and fight with our...
    Shouse88 Shouse88 26-30, F a week ago

    Your Response

    Cancel
    Glandular fever is horrific. I have had it for a year. In this year I could barely stay awake and it nearly cost me my degree. As a result of having had previous autoimmune...
    cathymcg123 cathymcg123 18-21, F a week ago

    Your Response

    Cancel
    This is why I have been hiding my legs for months. It's painful, but I'm more concerned that the infection is ugly and I can't shave my legs. Pitiful really. I'm on strong anti...
    DG2008 DG2008 31-35 Jul 21

    Your Response

    Cancel
    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F Jul 21

    Your Response

    Cancel
    okay so i lost my very patient cat last week because she got an infection during pregnancy. after 4 days, dad gave me a kitten. the kitten was very playful and this day she went...
    faye08 faye08 18-21, F 3 Responses Jul 21

    Your Response

    Cancel
    I have been suffering with HS for 22 years. I used to be told it was sugar boils (which don't exist) and then told it was poly cystic ovarian syndrome. It took being in a coma from...
    3jsmommy 3jsmommy 31-35, F 2 Responses Jul 20

    Your Response

    Cancel
    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

    Your Response

    Cancel
    I am 23 and just found out I had MSK. The hospital stumbled upon it during a CT scan. I have history of kidney stones kidney infection and recurrent UTI's. At first I just kind of...
    cwall811 cwall811 22-25, F Jul 17

    Your Response

    Cancel
    I laughed about this for the rest of the day. In the hospital I work in, when a patient has an infectious disease or a MRSA infection their door is marked with a yellow sheet with...
    Abayoumi Abayoumi 26-30, F Jul 17

    Your Response

    Cancel
    Back in June I got really sick and wound up in the er. Assuming it was kidney infection they performed an ultrasound. That is when they found a large cyst on my right ovary. Fast...
    shorewife84 shorewife84 26-30, F Jul 16

    Your Response

    Cancel
    I'd like to fill my apartment complex's pool with the collective blood of all the tenants and swim in it all night long, beneath the stars. It's south Florida, so hopefully it will...
    HeyThereHeather HeyThereHeather 26-30, F 1 Response Jul 15

    Your Response

    Cancel
    I am about to be seventeen in August and I still haven't had my surgery. Most patient's with this problem get there final operation done by the time they are ten or eleven years...
    TruthIsTheBest TruthIsTheBest 16-17 1 Response Jul 14

    Your Response

    Cancel
    Healthy/ good / energetic life= less stress, better moods, more fun, better well being. 1. BODY a. Fresh air/ better breathing- be around nature's greens, do ancient indian...
    Bllahblah Bllahblah 22-25, M 1 Response Jul 14

    Your Response

    Cancel