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I Have Myelofibrosis

A Myelofibrosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelofibrosis. You're not alone. 19 People

    Katejephson

    I was diagnosed just over a year ago. For the first 10 months, apart from a large spleen, everything was okay. Last October I was admitted to hospital with varices in the oesophagus, one of which was bleeding significantly. That was tied off and I now have regular checks. It has...
    katejephson katejephson 61-65 1 Response Jan 19, 2012

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    Myelofibrosis Experiences

      Hi everyone, I just joined this support group. I was diagnsed with myelofibrosis 28 years ago and at that time the hematology docs decided to just watch my blood counts to see if there were any major changes. There were not, so they told me I had nothing to worry about...
    dcllmasters dcllmasters 66-70 7 Responses Oct 9, 2010

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    Myelofibrosis Patients

    Hi All,My name is Skye Rodriguez and I work for a company called Elliott Benson research and we are hosting a paid focus group paying $150 to all Myelofibrosis patients that maybe interested in sharing their personal experience with us. This will only be an hour of your time and...
    Skye18 Skye18 22-25 1 Response Apr 13, 2012

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    Diagnosed 2/27/2012 - One Month Ago!

    I just found out one month ago that I have Myelofibrosis. I am a 41yr old female living in NH. Thankfully I don't live far (just over 1hr) from Mass General Hospital in Boston where my Specialist is. I am getting prepared to get a second opinion... perhaps at the Mayo Clinic...
    albauman albauman 41-45, F 4 Responses Mar 27, 2012

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    Related Experiences

    Okay,so saw fatal attraction,and let me put out some stuff,as a bpd sufferer myself,I will never do,and it is very unlikely most average bpd people might. 1.I love animals...
    aquabunny aquabunny 22-25, F 5 hrs ago

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    Everywhere my fake Mother goes, it is mandatory for me to follow her, or else I'd be beaten cussed at, and physically forced out of the house. I am 29 years old and she destroyed...
    ONESTARRYSTARRYNIGHT ONESTARRYSTARRYNIGHT 26-30, F 2 hrs ago

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    The only thing I have to do is not listen. It's as simple as that. Don't talk to him, don't listen to what he has to say, it's all lies. But I'm dumb. And weak. And I told Azriel...
    PinkMellow PinkMellow 18-21, F 1 Response 9 hrs ago

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    My father is the one that i lost when i was sixteen. My father was visiting me in hospital for a stomach operation that i was about to have, strangely enough dad was having...
    Alanuin Alanuin 26-30, F 9 hrs ago

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    I just merely have acquaintances. I never had a true friend and if I were to count one then I guess it was with that one girl in high school. It sucks to know that a friendship I...
    Xemplefied Xemplefied 26-30, M 8 hrs ago

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    Anyone around that's vaguely arty/creative? Or maybe there are some actual tattoo artists kicking around on here? I have a tattoo on my inner forearm I'm desperate to add to (along...
    SlushyAseSparkles SlushyAseSparkles 22-25, F 3 hrs ago

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    It was already halfway through summer session in the dream and I was feeling very relieved to have my first set of classes done with. Not much happened in the dream. My friends and...
    PinkMellow PinkMellow 18-21, F 1 hr ago

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    You no I really put my heart an soul into hearting an expirence or posting one or Responding to it they have to have a wow factor an they have tobe medium long knone of these one...
    peoplesmart peoplesmart 31-35, M 1 hr ago

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    I have 12 hour shifts all this weekend, back to back. I work on a ferry that takes passengers to and from the isle of wight. The job isn't hard really, everythings pretty...
    Skin0Man1 Skin0Man1 18-21, M 7 hrs ago

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    I had a wonderful Grammy who had Alzheimer's. She was my second mom, and the best there ever was. Alzheimer's is a nasty disease, I remember about a month before she passed I sent...
    DancesWithUnicorns DancesWithUnicorns 22-25, F 7 hrs ago

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    I was diagnosed with depression and anxiety. I don't really talk to anyone about it or how it affects me. My family's attitude toward this type of thing is "well what do you have...
    Vaultgirl42 Vaultgirl42 26-30, F 4 hrs ago

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    So we have been friends for about a year now. I met him in a multiplayer game. Lately we've wanted to deepen our relationship, so we were trying to setup Skype and/or TeamSpeak...
    Supercat8835 Supercat8835 13-15, M 2 hrs ago

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    "NOTHING EVER GOES RIGHT FOR ME!!" . Yes, it would seem so, but everything happens for a reason. There's no such thing as luck. I've had some very rough times in my past, but I've...
    ArtLover01 ArtLover01 66-70, F 1 Response 2 hrs ago

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    i there is something wrong with me, i used to only have panic attacks when something scared me.. its getting worst everday, a few days my mom wanted me to boil hot dogs, but i...
    SpideyAlyx SpideyAlyx 13-15, M 2 hrs ago

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    I saw a small school near my apartment. It was a nursing school. A young man and woman were talking in front and they seemed to have good friendship. A college doesn't have to be...
    katsuobushi katsuobushi 36-40, M 1 Response 57 mins ago

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    Well actually, I have been having this dream about a girl, she has an English accent, she resembles a friend of mine, but ive never met this woman in my dreams. I dont even know...
    DoctorDeath93 DoctorDeath93 22-25, M 1 Response 29 mins ago

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    my skin never feels clean to me and i always feel absolutely disgusting. i spend about half an hour looking at the mirror at least a couple times a day, just trying to get the dirt...
    gemmed gemmed 13-15, F 9 hrs ago

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    To me the thought of having sex with another human being is as disturbing as having sex with dog, or a child. It seems wrong. I'm not supposed to. Bad. Bad!! No! These things...
    PinkMellow PinkMellow 18-21, F 2 Responses 9 hrs ago

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    I have never eaten healthy. It's always been just random stuff I liked. (I'm terribly picky with food.) If I eat a bag of chips and some ice cream, out they go. I know I'm...
    CyanideY CyanideY 70+, F 1 Response 8 hrs ago

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    I have a special person in my life that I actually met here on EP. After countless conversations we then had an amazing getaway together. I very much enjoyed our time together and...
    hadyourchance hadyourchance 36-40, F 8 hrs ago

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    I would love to kiss my best friend, but she doesn't have the same feelings about me, even though we are both Bi.
    Alanuin Alanuin 26-30, F 8 hrs ago

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    Ihave had PE my whole life. So three years ago I got the nuss bar put in. But my PE caused scoliosis. so one year after I got the nuss bar put in, I had to get a spinal fusion with...
    lundell94 lundell94 18-21, M 8 hrs ago

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    to be honest i really dont know if i can love anymore i just dont feel like before perhaps my heart is way too scared i am not coward just telling you people who are reading it...
    Mdesires Mdesires 18-21, M 8 hrs ago

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    I was just whining, I am sorry. I was wrong. Thank you for being there for me mother. I can see it was me now. I believe my spirit is being tested, this is the storm I was talking...
    MayaKing MayaKing 31-35, F 7 hrs ago

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    Anyone have to share a room with the most messiest and clumsiest person? :/
    DoorMattress DoorMattress 13-15, M 2 Responses 5 hrs ago

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    You left in the middle of the night? Without so much as an explanation? Not even a good-bye? What ever will I........say! Is that a quarter I see on the ground? Cool! What was I...
    diggler diggler 41-45, M 2 Responses 5 hrs ago

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    A lot of times! For the last two years I have been living in Germany. Spas here are nude and mixed when attending a sauna or a steambath. Even poolareas and sauana gardens are...
    niceskip niceskip 46-50, M 5 hrs ago

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    For those celebrating Memorial Day this weekend don't forget to pay remembrance to those that have fought and died so that we can be here to celebrate it.
    Bumblelion Bumblelion 31-35, M 1 Response 4 hrs ago

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    I'm not saying that I'm bad at school, but I am saying i need to keep my 3.5 GPA so if I fail my exams, I won't have to retake my freshman classes again.
    myahLynn03 myahLynn03 13-15, F 2 Responses 4 hrs ago

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    I have low confidence.There was a time when i was the brightest kid in my school class but since going to next levels didn't work out the way i hoped for.I am not that bright...
    darknight00 darknight00 26-30, M 1 Response 3 hrs ago

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    Well I've never ate my full sister, although she was being a pain in the *** and annoying me, then randomly bit my arm. I was so annoyed i bit her back but I got shouted at because...
    ItsJustRebecca ItsJustRebecca 13-15, F 3 hrs ago

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    I brush them but they always messy and curled (bye bye curling iron). Plus they grow too fast. I have to cut them like every 2 months. I love them naturally though. Let them grow...
    indahnesia indahnesia 18-21, F 3 hrs ago

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    I met this guy online. we almost connected instantly. we started sharing our experiences and talking all the time. to a point where said he was in love with me. a few months past...
    braveheart30 braveheart30 22-25, F 3 hrs ago

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    This experience reminds me of a dream I used to have when I was a bit younger. I wanted a cafe/bookshop/reading room type establishment, piles of all sorts of books, maybe an...
    SlushyAseSparkles SlushyAseSparkles 22-25, F 3 hrs ago

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    Finals stresses me out except I have a final on my favorite subject and that doesn't really stresses me out. I get finals on science and it doesn't stress me.
    F00dbarevaporating F00dbarevaporating 16-17, F 2 Responses 3 hrs ago

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    this week must be "contact me for no reason week"...I got messaged last night by a random family member and he went on about jobs and flagging...I have not even talked to this dude...
    jbm1984 jbm1984 31-35, F 1 Response 3 hrs ago

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    I was dating a guy that I thought I loved and loved me back my senior year in high school. He started out very nice and polite at first and even fooled my family in the beginning...
    Kkzand Kkzand 18-21, F 1 Response 3 hrs ago

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    I have to sadly say mcdonalds breakfast burritos are probably the best breakfast burritos ever
    jbm1984 jbm1984 31-35, F 1 Response