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I Have Myelofibrosis

A Myelofibrosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelofibrosis. You're not alone. 19 People

    Myelofibrosis Patients

    Hi All,My name is Skye Rodriguez and I work for a company called Elliott Benson research and we are hosting a paid focus group paying $150 to all Myelofibrosis patients that maybe interested in sharing their personal experience with us. This will only be an hour of your time and...
    Skye18 Skye18 22-25 1 Response Apr 13, 2012

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    Myelofibrosis Experiences

      Hi everyone, I just joined this support group. I was diagnsed with myelofibrosis 28 years ago and at that time the hematology docs decided to just watch my blood counts to see if there were any major changes. There were not, so they told me I had nothing to worry about...
    dcllmasters dcllmasters 66-70 7 Responses Oct 9, 2010

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    Diagnosed 2/27/2012 - One Month Ago!

    I just found out one month ago that I have Myelofibrosis. I am a 41yr old female living in NH. Thankfully I don't live far (just over 1hr) from Mass General Hospital in Boston where my Specialist is. I am getting prepared to get a second opinion... perhaps at the Mayo Clinic...
    albauman albauman 41-45, F 4 Responses Mar 27, 2012

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    Katejephson

    I was diagnosed just over a year ago. For the first 10 months, apart from a large spleen, everything was okay. Last October I was admitted to hospital with varices in the oesophagus, one of which was bleeding significantly. That was tied off and I now have regular checks. It has...
    katejephson katejephson 61-65 1 Response Jan 19, 2012

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    Related Experiences

    Its Over Now We have never said goodbye. No fight. no tears. We both decided to keep distance. His last words about our relation was five days ago "Remember what we've discussed...
    Missberry73 Missberry73 41-45, F 2 hrs ago

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    I work with this girl (lets call her Kat) now Kat and i only work once a week together but txt each other almost every single day, sometimes til 4:30am in the morning, and when we...
    bluelove2424 bluelove2424 22-25, F 1 hr ago

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    Well pens or not I certainly do have a tiny penis that's for sure feel free to humiliate it is ridiculously small
    frankyboy frankyboy 22-25, M 3 hrs ago

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    Why is it that you are there for your friends but they are nowhere during your emergency? I referee my two friends and the ex-hubby/boyfriend that made it a love triangle...on my...
    teadiva teadiva 31-35, F 1 Response 2 hrs ago

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    I lost my mum to lung cancer the very same day that my first child was born. After throwing myself wholly into being a mother and wife, I have never grieved for her. My son was...
    mommabear13 mommabear13 26-30, F 1 Response 2 hrs ago

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    Another night. I had one successful night where I got lots of sleep and my batteries haven't discharged yet! So I've fallen down the EP rabbit hole. Wow, there's a lot of strange...
    omgwut omgwut 41-45, M 2 hrs ago

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    I have general anxiety just lately in my life. It's basically the least of my worries right now.
    dja811213 dja811213 31-35, M 2 hrs ago

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    I had this dream; it was a dream which I could picture clearly. It got me thinking of it as there was color in it or not. For it was of a round barn in the ocean which holds whales...
    Bowman44 Bowman44 46-50, M 1 hr ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    natacc11 natacc11 26-30, F 1 hr ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    natacc11 natacc11 26-30, F 1 hr ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    natacc11 natacc11 26-30, F 1 hr ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    natacc11 natacc11 26-30, F 1 Response 1 hr ago

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    i have a kikster account ..... menna_muhamed4
    menna44 menna44 16-17, F 49 mins ago

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    I used to belive that you would come around and realize what a huge mistake you made when you ditched me for the girl who looked just like me. I used to ake. I used to think that...
    Ennah Ennah 18-21, F 48 mins ago

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    People say they want a better world, but I know that's just a big, fat lie. No one really wants a better world. They're happy being miserable. If the world was a nice place to live...
    Peridot22 Peridot22 22-25, F 31 mins ago

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    I did it again but I might have made some progress this time. There is this really cute girl named Jada in my classes and she is one of my best friends. She tells me I am the only...
    ZGC15 ZGC15 18-21, M Apr 4

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    Ever since I was sexually assaulted by two former classmates of mine, my life has never been the same. My family disowned me because my mom's side of the family thought it was my...
    AttachmentIssues AttachmentIssues 16-17, F 1 Response Apr 4

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    I have a friend who I've been close with for three years. We're great friends we get along and we always have a good laugh. He's the kinda guy that always tells jokes and is always...
    mysteryN mysteryN 16-17, M Apr 4

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    I don't think I really want to either. I have a open mind and I am interested in the paranormal and mythical stuff, but I'm iffy when it comes to aliens. I guess I believe there...
    TheEnduringSunrise TheEnduringSunrise 18-21, F 1 Response Apr 4

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    my bf has pushed away from me completely... sometimes he shows me love but most of the time i cant even get him to sit in the house with me, could he be entertaining someone else...
    sheenbean23 sheenbean23 18-21, F 8 Responses Apr 4

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    My altero egos name is Tiffany. I named her Tiffany because of a quiz to find out what your alter egos name is, silly right? Anyways i thought it fit her.Now let me explain why...
    escapingmyworld escapingmyworld 36-40, F 1 Response Apr 4

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    I've always had a hard time expressing myself and when others who are close to me say that they love me or what-not, I just feel really awkward. I have that one friend who will say...
    delusi0nal delusi0nal 18-21, F Apr 4

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    well i tell my dream i had..... i came home from ofc in a white car....i was about to park my car when i saw 2 more white cars....near my house....and saw they dumped a dead body...
    mikeee3135 mikeee3135 22-25, M Apr 4

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    I have to say goodbye to my girlfriend. I do love her but i know it cant work out. I know that theres someone out there better for her, and i know that she doesnt know that. Its so...
    ForeverJashinist ForeverJashinist 18-21, M 1 Response Apr 4

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    When I developed Social Anxiety during middle school I became extremely isolated, socially and physically. I stopped going to school and stopped talking to people, even my family...
    KnightOfJustice KnightOfJustice 18-21, M 1 Response Apr 4

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    I am always over thinking, just me THINKER ! THINKER ! THINKER So my thoughts waddled to this .... are some people just destined to forever fall inlove with people they couldnt...
    deleted deleted 26-30 7 Responses Apr 4

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    Psychotherapist and translator. In fact, I am at the beginning in my life and career. I have dreamed of being a psychotherapist since I was about 13 or 14, and now I have my own...
    naranja naranja 26-30, F 1 Response Apr 4

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    Before you guys judge me and say that snakes aren't pets just because they don't lick you and snuggle up with you; I'd save it if I were you beacuse I've heard it before...
    beasleyleah beasleyleah 16-17, F 2 Responses Apr 4

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    4 a.m, I have falled asleep and been waken up by all the weird dreams about my mother for at least more than 1 hour, I never thought that this time I would go away from her for too...
    Violet302 Violet302 31-35, F Apr 4

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    It feels so amazing to have a friend who truly there for you in times of hardships.
    Aireena Aireena 18-21, F 1 Response Apr 4

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    So many people told me "you have a nice rack" I just look at them like they're stupid. C that can still fit into a b is not a nice freaking rack. I truly honest want a 38dd. 38dd...
    lorrena19 lorrena19 18-21, F 5 Responses Apr 4

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    I am a 51 yr old woman who is/was very active, goong to the gym 5 days a week and always on the go! I haven't been diagnosed yet but from all of the Dr. Googling I have been doing...
    Louhouse1 Louhouse1 51-55, F Apr 4

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    I've never been good at making friends. I've never understood people. I have more 'friends' now than I ever have, mostly co-workers, but what I've learned is that everyone is two...
    a68taurus a68taurus 46-50, F 3 Responses Apr 4

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    I have a boyfriend it's been a year. :) but he is 16 and I am 22 but we didn't have sex I am going to wait. He is out of the closet I am not my parents are Spanish and it's a...
    StayingStrong21 StayingStrong21 22-25, M 1 Response Apr 4

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    So I'm not sure why, but I officially get hit on more by guys than I do girls. I find it paradoxical at best. I am a straight male. I have nothing against gay people, and in fact...
    CloseButNoGuitar CloseButNoGuitar 26-30, M Apr 4

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    Dum' Bi'chJust gonn' state some facts. Ain't got time to waste on irrelevant jabronis.So now you delete the question and post thisCall me that one more gadaym time.If I ever have...
    TheDarlingChampion TheDarlingChampion 22-25 Apr 4

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    I am a very gifted communicator. How ever I have social anxiety. Not as bad as I used to because I have worked on it. But most importantly I have social sham and social grace...
    louisthe17th louisthe17th 46-50, M 1 Response Apr 4

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