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I Have Myelofibrosis

A Myelofibrosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelofibrosis. You're not alone. 19 People

    Myelofibrosis Experiences

      Hi everyone, I just joined this support group. I was diagnsed with myelofibrosis 28 years ago and at that time the hematology docs decided to just watch my blood counts to see if there were any major changes. There were not, so they told me I had nothing to worry about...
    dcllmasters dcllmasters 66-70 7 Responses Oct 9, 2010

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    Katejephson

    I was diagnosed just over a year ago. For the first 10 months, apart from a large spleen, everything was okay. Last October I was admitted to hospital with varices in the oesophagus, one of which was bleeding significantly. That was tied off and I now have regular checks. It has...
    katejephson katejephson 61-65 1 Response Jan 19, 2012

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    Myelofibrosis Patients

    Hi All,My name is Skye Rodriguez and I work for a company called Elliott Benson research and we are hosting a paid focus group paying $150 to all Myelofibrosis patients that maybe interested in sharing their personal experience with us. This will only be an hour of your time and...
    Skye18 Skye18 22-25 1 Response Apr 13, 2012

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    Diagnosed 2/27/2012 - One Month Ago!

    I just found out one month ago that I have Myelofibrosis. I am a 41yr old female living in NH. Thankfully I don't live far (just over 1hr) from Mass General Hospital in Boston where my Specialist is. I am getting prepared to get a second opinion... perhaps at the Mayo Clinic...
    albauman albauman 41-45, F 4 Responses Mar 27, 2012

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    Related Experiences

    Please help. I'm currently experiencing dark thoughts, dark thoughts about just running away. I love all my Children but they have no respect for anything I have ever done for...
    RockingLikeAFetus RockingLikeAFetus 31-35, F 1 Response 8 hrs ago

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    My third anniversary on EP was in August 2014. I am a bit behind. You know how life keeps you busy. So it is time for me to share what I have learned in this past year. I hope you...
    PoetryNEmotion PoetryNEmotion 51-55, F 4 Responses 2 hrs ago

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    I have liked this girl for 4 and a half years now. Actually it's much passed "like". I've had so many chances to make a move on her, but I was to cowardly to do so. I was too...
    yoomyman yoomyman 18-21, M 11 hrs ago

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    It borders on a year now, that I have had nightmares almost every night. My mind has been plagued by insecurity... And with it, came the nightmares. I wish I had the typical...
    Lullacus Lullacus 22-25, F 1 Response 9 hrs ago

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    Has anyone ever faced discrimination for having a tattoo? I have one down the side of my forearm, just some dainty writing (lyrics). Anyway, I had a job interview one hot day a few...
    Enna87 Enna87 26-30, F 3 Responses 7 hrs ago

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    to be honest i don't know how my life got this far off track. one minute im happily married the next i going thru a divorce and living with this "gift" that she gave me.... forever...
    livingpositively livingpositively 22-25, M 3 Responses 7 hrs ago

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    so, be and my mother have decided to do Black Friday for the first time... and well, K Mart opens up at 6:30 AM - and they have a sale : buy one pair of shoes/boots and get the...
    sugarcakes143 sugarcakes143 18-21, F 4 Responses 6 hrs ago

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    It's been a few months since joining The Experience Project, thank you to all who have visited and those who have kindly left comments & hearts. To be honest I lost the link and...
    Darklydancing Darklydancing 56-60, F 1 hr ago

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    You tell me everything I have put you through.. But you don't acknowledge what you have put me through. This isn't a blame game but we act like it is one.. We are not right for...
    Nocturnallover Nocturnallover 18-21, F 23 mins ago

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    At first he happen to be caught in her glance, she had not noticed him her eyes were only focused on a friend as they whispered. Then slowly his existence started to grow, her eyes...
    Moonlight94 Moonlight94 18-21, F 12 hrs ago

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    Apparently I have an accent or speak odd to people. Apparently I don't pronounce my words correctly... I guess sometimes they don't come out correctly. Like haven't = 'aven't or he...
    InvaderGashloog InvaderGashloog 70+, F 7 Responses 12 hrs ago

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    I hate my aunt tomorow she is going to maried but i have to go eventhough at monday i"m going to have last semster test i mean what the hell her wedding going to take 2 days in a...
    reginacs reginacs 16-17, F 1 Response 10 hrs ago

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    A few : -I don't know how to forgive, even if I say I forgive someone. I always have this passive aggressive behavior towards you if you've got on my bad side -I would NEVER cheat...
    akaShaun akaShaun 16-17, M 1 Response 7 hrs ago

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    You have to be a pretty good friend to stand my tests. However, I attempt to make incompatible people at least feel better or find a better life. Admittedly, I have done a lot of...
    FunnyLookingCorpse FunnyLookingCorpse 18-21 1 Response 4 hrs ago

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    Have you ever noticed that front doors usually don't have a handle on the outside, but in TV series regular guests often walk in without using a key?
    Uncertain153 Uncertain153 26-30, M 3 hrs ago

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    Numerous times, actually. One of the first times was about 4 years ago when I arranged to have a Mary Kay consultant give me a lesson on which products to use, which shades, and...
    debbienc debbienc 61-65, T 1 Response 3 hrs ago

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    Holidays are just big jokes. It's like any other day of the year. Many families are so fake. I can understand if some have issues and rather be somewhere else. But i'm talking...
    Justadarkhole Justadarkhole 22-25, M 1 Response 2 hrs ago

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    The CDC is owned by the big pharmaceutical companies. They have no clue about Ebola. But they want you to get a flu shot. The Patriot Act is the worst thing to happen to our...
    mslvr01 mslvr01 46-50, M 2 hrs ago

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    I'm so sick of living like this. Not having clean clothes and all my clothes are too big because my mum can't afford money for proper food. She spends it on drink. She said...
    JustThatNobody JustThatNobody 13-15, F 23 mins ago

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    Sad predicament I know, but when I look back, I can see that the happiest times in my life have always been when I was between being in love. I felt like "Yay! I'm finally over...
    aag311 aag311 41-45, M 1 Response 13 hrs ago

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    I have horrible anxiety. It's with me all day every day, never goes away. Mind is racing, chest is pounding, I can't concentrate most of the time. It sucks. I usually just act like...
    barbee0 barbee0 13-15, F 6 Responses 12 hrs ago

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    Yes I do it makes me upset with myself i have been able to cope with it but sometimes I burst into a firecracker and I just feel terrible. :(
    yeahis18 yeahis18 18-21, F 12 hrs ago

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    I'm a cutter, and burner. When I'm alone with my feelings I have to let them go by just one cut or one small burn. That's my secret, can you keep it?
    LenaBena1430 LenaBena1430 16-17, F 1 Response 11 hrs ago

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    Facebook/Twitter/Instagram: People who write daily novels on their statuses. Same story every day. Usually somewhere along the lines of counting their daily blessings or how much...
    bombchu bombchu 22-25, F 10 hrs ago

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    Just imagine a situation where you have a crush on your music teacher for more than a year and then suddenly he gets married when you are just getting over it. What happens...
    sindarin19 sindarin19 16-17, F 1 Response 6 hrs ago

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    ^.^ Yupp i do not have a problem at all
    Hopeisinme Hopeisinme 18-21, F 2 Responses 6 hrs ago

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    If I hear any song twice I can sing it myself on the identical pitch and even breathing technique as the original. Most people can't notice a difference. I honestly can sing on...
    Istaysecret Istaysecret 13-15, F 5 hrs ago

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    I think it would be fun to bring back some old words that have become obsolete. Any obsolete words you would like to endorse? Mine: Crapulous - To feel ill because of excessive...
    KCN33 KCN33 31-35, F 1 Response 5 hrs ago

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    Anyone take anything for anxiety? What works for you? I'm a overly sensitive person and have panic attacks sometimes, and get stressed very easily.
    fletcherx fletcherx 26-30, M 8 Responses 4 hrs ago

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    Almost one year since my divorce from my verbally abusive ex husband has been final. I am so much happier. I feel more like my old self every day. He was so mean to me. Always...
    jameshasmyheart jameshasmyheart 41-45, F 1 Response 4 hrs ago

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    A really good friend of mine passed away in the last week. He got sober about the same time as me about a couple of months after I stopped drinking so did he. I met him on his...
    nunos nunos 51-55, M 2 Responses 4 hrs ago

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    I had trichotillomania since I was 12 years old. I would pull my hair out everyday. Recently I have to shave my head due to the pulling. I want to stop but my brain does not want...
    browntaurus browntaurus 26-30, F 2 Responses 3 hrs ago

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    Yes I'm still a virgin and I'm glad Iam :) cos nowadays there aren't to many ppl that still have there virginity
    Foreveralone89 Foreveralone89 22-25, M 3 hrs ago

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    being in lifestyle I have experienced so many things, but one thing I still want is with two women being a mother and a daughter.
    txsnowcat txsnowcat 46-50, M 3 hrs ago

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    i love piercings and tattoos, i have 2 piercings down below, I`m thinking of getting another 1, anybody else got any or thinking of getting sum?
    ukguy75 ukguy75 36-40, M 1 Response 3 hrs ago

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    Forget yesterday, it has already forgotten you. Don't sweat tomorrow, you haven't even met. Instead open your eyes and your heart to a truly precious gift.. TODAY
    throwawaychild throwawaychild 46-50, M 1 hr ago

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    My father had a girlfriend they lived in their own houses my father died and we found he had changed his will a few days before he died leaving half his house to us his children...
    hawthornefairy123 hawthornefairy123 56-60, F 1 Response 43 mins ago

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    You want weapons? We're in a library. Books are the best weapon in the world. This room's the greatest arsenal we could have. Arm yourself!
    SuperWomanFly SuperWomanFly 22-25, F 36 mins ago

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    What are rights? Everyone loves to spew out that they have rights from their slobber soaked crumb ridden mouths. Like George Carlin said, you don't have rights. You have privileges...
    ValhallaAwaits ValhallaAwaits 18-21, M 2 Responses Oct 27

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    First Indirect Rejection When I was in 5th grade I had a crush on this guy in my class. I was and still am the nerdy quiet crazy girl who's always reading manga or doodling anime...
    Toriko Toriko 13-15, F 1 Response Oct 27

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    My confession is that I have cut before and am not proud of it. It happened so fast, just an impulse to feel something.
    ForTheFallen ForTheFallen 22-25, M 2 Responses Oct 27

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    I have and still do wear diapers from time to time for recreation although they make me feel a bit safer on long car trips. So I have urinated in them and they turn me on. I'm not...
    ForTheFallen ForTheFallen 22-25, M 2 Responses Oct 27