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I Have Myelofibrosis

A Myelofibrosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelofibrosis. You're not alone. 18 People

    Myelofibrosis Patients

    Hi All,My name is Skye Rodriguez and I work for a company called Elliott Benson research and we are hosting a paid focus group paying $150 to all Myelofibrosis patients that maybe interested in sharing their personal experience with us. This will only be an hour of your time and...
    Skye18 Skye18 22-25 1 Response Apr 13, 2012

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    Katejephson

    I was diagnosed just over a year ago. For the first 10 months, apart from a large spleen, everything was okay. Last October I was admitted to hospital with varices in the oesophagus, one of which was bleeding significantly. That was tied off and I now have regular checks. It has...
    katejephson katejephson 61-65 1 Response Jan 19, 2012

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    Myelofibrosis Experiences

      Hi everyone, I just joined this support group. I was diagnsed with myelofibrosis 28 years ago and at that time the hematology docs decided to just watch my blood counts to see if there were any major changes. There were not, so they told me I had nothing to worry about...
    dcllmasters dcllmasters 66-70 7 Responses Oct 9, 2010

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    Diagnosed 2/27/2012 - One Month Ago!

    I just found out one month ago that I have Myelofibrosis. I am a 41yr old female living in NH. Thankfully I don't live far (just over 1hr) from Mass General Hospital in Boston where my Specialist is. I am getting prepared to get a second opinion... perhaps at the Mayo Clinic...
    albauman albauman 41-45, F 4 Responses Mar 27, 2012

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    Related Experiences

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    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
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    For over the last year I have been involved with an old friend who is married. We are having an affair, at least we were. A month ago his wife discovered his affair and he decided...
    michaelsotherwoman michaelsotherwoman 36-40, F 1 Response 15 hrs ago

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    I love my boyfriend, and recently, I had an experience with him that I've never had before. He makes me feel things I've never felt, and I wish everyone in the world could...
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    I have always been told that my voice is calming and relaxes people. I was a preschool teacher for a couple years and was told that makes sense because I have the perfect voice for...
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    I don't know how I did it but I somehow managed to not write any stories over the summer. It was hard to fight the urge because I'm a bit of writer and when ideas come I just want...
    Dreamer32 Dreamer32 26-30, F 9 hrs ago

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    Dear Replacement, There are a few things I think you should know, as you are now the object of his affection. Don’t let it surprise you, how quickly you fall for him, and don...
    kmart52492 kmart52492 18-21, F 1 Response 9 hrs ago

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    When did I become so weak and powerless. I used to be a fighter. I had so much passion and motivation; now accepting defeat is all I do. Who is this sorry pathetic girl who has...
    Shygirl917 Shygirl917 18-21, F 1 Response 9 hrs ago

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    I dreamt of being a mom as far back as I can remember. My dad had decided I was going to college and I was going, but I wanted to be a mom too.I can remember that I wanted twins. A...
    akindheart akindheart 56-60, F 6 Responses 8 hrs ago

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    I have had exzima since I was in middle school and now in college I still have flares regular. Lately, I have been getting all these open wounds on my left arm and they would scab...
    Haliejean12 Haliejean12 18-21, F 7 hrs ago

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    About five days ago I went to the doctor thinking I was getting an UTI. Doc prescribed me pills....all good....for about two days. It started to hurt soooo bad down there so I went...
    lostandconfused689 lostandconfused689 22-25, F 5 hrs ago

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    I friend zone everyone. And I make it clear even before any person I may know might ask something more than friendship. I never want anyone to misunderstand my friendliness with me...
    FunnyandNerdy FunnyandNerdy 16-17, F 4 hrs ago

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    I wish I had a sex drive. I have somehow recovered from depersonalization/ derealization disorder and feel really good, except I still don't seem to have a sex drive. I want to...
    reenab29 reenab29 18-21, F 2 hrs ago

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    I loved someone that just wasn't worth the time or energy. At first he seemed to genuinely care about me, but as time passed-I find that he cares only for himself. I put my trust...
    stardusthope stardusthope 36-40, F 2 hrs ago

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    I just threw in this group for people that have done so much with there life, they are burn out or bored with it. My goal is to use this experience we have to help others.
    starfoxACEFOX starfoxACEFOX 26-30, M 22 hrs ago

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    I have very strict mom (my dad died already) but I'm very PROUD and THANKFUL to GOD because we have a mommy like her ❤ If I would given a chance to pick a mommy again I would...
    TheRealYhan TheRealYhan 16-17, F 1 Response 21 hrs ago

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    The component that it might not do the job for many people is that they probably have minimal sensitivity to hypnosis.Hypnosis is a wonderfully all-natural state wherein somebody's...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response 20 hrs ago

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    So, the inevitable ‘Push and Pull’ stage of our twin flame relationship has begun. I can go from comfortable and elated to irritated and angry within the flick of a coin. I...
    Oobsley Oobsley 26-30, F 17 hrs ago

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    I was 12 years old and I didn't have any protection. For the longest, I regretted not going through with it, but I saved myself for my high school sweetheart that I met when I was...
    reelman4372 reelman4372 31-35, M 15 hrs ago

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    I want to have one so bad. It is a right of passage and a necessity in the area where I live, where public transportation is almost impossible to find. But in high school I didn't...
    Thatonegirl53 Thatonegirl53 18-21, F 1 Response 15 hrs ago

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    Interesting enough, I have received 6 emails from different people and a few of them have been so ridiculous and just plain amused me! It was very easy to tell they were fake, but...
    BeachBum1970 BeachBum1970 41-45, M 14 hrs ago

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    Is there a possibility for me to have ADHD if my dad and brother haves it? I have started to remind my brother, I can't focus on things and it's hard for me to calm. I can't sit...
    dropdeadwilma dropdeadwilma 18-21, F 1 Response 12 hrs ago

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    dietcoke4 dietcoke4 31-35, F 3 Responses 11 hrs ago

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    I have had a eating disorder for 3 years now and it's been over a year and a half since I've kept a meal down, can't help but wonder what's happening to my body and what's going to...
    mariya843 mariya843 16-17, F 10 hrs ago

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    legendgirl legendgirl 18-21, F 10 hrs ago

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    Why do they make the sick people walk all the way to the back of the store to get a prescription but the healthy people buy cigarettes at the front of the store? They say flattery...
    fishsweeper fishsweeper 51-55, F 1 Response 8 hrs ago

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    I have social anxiety all of my life. I never really dated anyone. I met my husband who i live now with in the year `99 by some friend. We became friends and later i married him...
    angel8i angel8i 31-35, F 8 hrs ago

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    There's some people that even they don't have beautiful face or nice body, they are still attractive. There's some people also that have beautiful face and nice body but they don't...
    onionheart16 onionheart16 26-30, F 2 Responses 5 hrs ago

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    Too many people say they have depression. But really they are just sad or lonely. If they had it a Dr. would prescribe them a treatment (like I am on. I have to take an...
    Ravenbrook Ravenbrook 18-21, M 4 hrs ago

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    I feel odd about the title of such, as I don't relate to the term "disorder", but I would call it more of a fragmented personality? Idk all of my aspects of what makes me who I am...
    Jaideiris Jaideiris 22-25, F 2 Responses 4 hrs ago

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    4NeonFun 4NeonFun 16-17, F 2 Responses 2 hrs ago

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    piprimate piprimate 26-30, F 2 Responses 2 hrs ago

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    I have crippling anxiety at times. It will interfere with my sleep, and when I do sleep, I have terrible horrific nightmares. Just last night I was having horrible anxiety about my...
    sweetie8403 sweetie8403 26-30, F 2 Responses 2 hrs ago

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    Chances. Connor. Tall, geeky, christian, smart, funny, blue eyes, handsome, yeah I had the pleasure of meeting him. 4 months ago we met, nothing amazing said hi, talked a bit...
    thatgirleveryday thatgirleveryday 18-21, F 1 hr ago

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    One of the secrets to happiness is to be content with what you have been blessed with. There will always be someone with more. I am happy for my friends with blessed lives. I...
    kwarner kwarner 31-35, M 2 Responses 1 hr ago

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    A women goes to the doctor for a check up. One question the doctor asks it "Have you been physically active?" The woman says yes. The doctor then asks "Have you been using any form...
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