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I Have Myelofibrosis

A Myelofibrosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelofibrosis. You're not alone. 18 People

    Myelofibrosis Experiences

      Hi everyone, I just joined this support group. I was diagnsed with myelofibrosis 28 years ago and at that time the hematology docs decided to just watch my blood counts to see if there were any major changes. There were not, so they told me I had nothing to worry about...
    dcllmasters dcllmasters 66-70 7 Responses Oct 9, 2010

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    Myelofibrosis Patients

    Hi All,My name is Skye Rodriguez and I work for a company called Elliott Benson research and we are hosting a paid focus group paying $150 to all Myelofibrosis patients that maybe interested in sharing their personal experience with us. This will only be an hour of your time and...
    Skye18 Skye18 22-25 1 Response Apr 13, 2012

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    Diagnosed 2/27/2012 - One Month Ago!

    I just found out one month ago that I have Myelofibrosis. I am a 41yr old female living in NH. Thankfully I don't live far (just over 1hr) from Mass General Hospital in Boston where my Specialist is. I am getting prepared to get a second opinion... perhaps at the Mayo Clinic...
    albauman albauman 41-45, F 4 Responses Mar 27, 2012

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    Katejephson

    I was diagnosed just over a year ago. For the first 10 months, apart from a large spleen, everything was okay. Last October I was admitted to hospital with varices in the oesophagus, one of which was bleeding significantly. That was tied off and I now have regular checks. It has...
    katejephson katejephson 61-65 1 Response Jan 19, 2012

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    Related Experiences

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
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    I had a brother, who was my father, who was my uncle. He was murdered. Slaughtered even, his corpse looted & desecrated to this day. I'm sure you've heard of him. How can the...
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    Hello. I was diagnosed with A.D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I...
    jenyeaz jenyeaz 22-25, F Jul 21

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    Is this normal? Does anyone else have this?
    Shizuka000 Shizuka000 13-15, F 3 Responses Jul 21

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    Last night I dreamt of an alien invasion. Lots of bright yellow spherical UFOs. My feelings in the dream were very intense. I have had dreams before where I woke up next to my now...
    tlee5001 tlee5001 22-25, F 2 Responses Jul 21

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    We were so in love, but we agreed the timing wasn't right and the distance would be difficult. We still stay in touch. He said he's dating someone now, but he also gave me reason...
    SacredEarth SacredEarth 18-21, F 3 Responses Jul 21

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    My boyfriend's half brother is 24. I'm 15. I have a crush on him. Like, a major crush. Ugh. I wish he would notice me when my boyfriend doesn't.
    stillYDGN stillYDGN 13-15, F 1 Response Jul 21

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    I was born with two spirit animals who are always by my side, from what I know its not normal for someone to have two spirit animals. I am able to find other people's spirit...
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    What if everywhere was like... Canada. What if hurler finished the job. Can you imagine how many things would not have happened??? 9/11. Afghanistan, operation enduring Freedom...
    JaysGrief JaysGrief 16-17, M Jul 21

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    LivefortheWeekend LivefortheWeekend 46-50, M 2 Responses Jul 21

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    Sometimes I just wanna forget all and be again the hard rock careless for emotions but only fun.Please myself and make my will,be in control,have the power.I suposse I should be...
    4biandu 4biandu 26-30, F Jul 21

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    I'm am not typing this again so you'll have to read all my photos
    tlee5001 tlee5001 22-25, F Jul 21

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    When I was little (maybe 7) I use to have this reacquiring dream that I was running from zombies in a an lds church. (I was raised lds) I have done research on the meaning and it...
    tlee5001 tlee5001 22-25, F 1 Response Jul 21

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    I notice that when someone is online they rarely ask directly or as its known beat around the bush to get around to a question they actually want to ask.. why is this ? Perhaps...
    GinIyoku GinIyoku 26-30 Jul 21

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    Since we don't know you skumbag...your considered an official stalker. ..don't be too sure what I can do...your just a desperate brick. You have to play a brick to catch a brick
    Debjusnotes50 Debjusnotes50 46-50, F 1 Response Jul 21

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    I don't believe that it is the end of the world, or even that it is near to being the end of the world. However, the past few nights I have had dreams concerning big world events...
    PurpleGlassPalace PurpleGlassPalace 26-30 Jul 21

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    thesimpletruth77 thesimpletruth77 36-40, F 1 Response Jul 21

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    Last night, i dreamt i was on the Fifa World Cup between Netherlands and France. France won but they were withdrawn the trophy and didn't won because they were filming all the time...
    MintPanda MintPanda 13-15, M Jul 21

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    AquariusLife AquariusLife 26-30, F 3 Responses Jul 21

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    I'm starting to think several of my alters have integrated, but I have no idea how to know. It's like I know it is them based on how it felt when I was co-conscious with them, but...
    BrokenOneX BrokenOneX 31-35 1 Response Jul 21

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    I have a snapchat :Kinthicupcake if you like funny stuff blogs or just to talk add me
    IjUstDoNtCare12 IjUstDoNtCare12 13-15, F Jul 21

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    I love a her and she loves me too But i can't have her because she already have a boyfriend. And she's scared that our friendship might be ruin if we follow our feelings
    Harukami Harukami 16-17, F Jul 21

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    All the times I appear alone. ..we have to do that in order to get debra...she's another skumbag like you She was cammed in all day when Ann Marie was here saturday... Who's the...
    gether5050 gether5050 46-50, F Jul 21

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    I personally believe a woman's purpose is to have babies, if possible. Also, I believe the purpose of a woman is to have sex with her husband for fun and games.
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    I have a family bed with my infant twin sons. This is great for breastfeeding, playing, sleeping, and bonding together. I believe in families having a family bed. This is best...
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    hunterrrama hunterrrama 22-25, M 2 Responses Jul 21

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    Iv got 9 tattoos and I find there like an addiction the more I have the more I want I think I might have to stop after my next one lol
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    We are simply not interested in researching and becoming knowledgeable of anything. We expect it all to be done for us,I'm talking about everything from our own personal health...
    tom67890 tom67890 46-50, M 1 Response Jul 21

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    eddiefanboy eddiefanboy 16-17, M 1 Response Jul 21

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    I will do ANY dare you have just message me through Personal Message.
    JoshKilbride JoshKilbride 13-15, M 1 Response Jul 21

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    I'm falling in love with 2 girls. I know i cant have both and I'm not sure if i can even have one. My life now is talking to my imaginary supervisor and thinking all day long. Its...
    7ero 7ero 13-15, M 1 Response Jul 21

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    I have a feeling I might regret this but hey, you only live once , Right? My snapchat user name is cha0s_kn1ght. All dicks will get blocked lol Let's see what kind of interesting...
    JandAlove JandAlove 22-25 1 Response Jul 21

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    LoveSniffingMensUnderwear LoveSniffingMensUnderwear 18-21, M 1 Response Jul 21

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    *Visit Ireland, Germany, Brazil, Japan and Holland, *Have a column in an Investment publication, *Get Breast augmentation, *Immigrate, *Own my own Home and Business, *Laze on...
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    AlwaysPersevere71 AlwaysPersevere71 41-45, M 3 Responses Jul 21

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    Jennyred Jennyred 13-15, F 6 Responses Jul 21

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    Oh yes, no doubt I have. Me and my grandma was driving home one night, we went around a turn and out in a field there was a VERY low flying black thing with 3 large lights in the...
    trippyprincess trippyprincess 13-15, F 2 Responses Jul 21

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    I'm confuse . Can someone who ever had / have ednos tell me the symptoms?
    CamillaMillys CamillaMillys 16-17, F Jul 21

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    I have had FM since I was 15, now it is so bad and with the chronic fatigue all I do is sleep or cry. I am on so much medication and it still doesn't help. My husband is so...
    squirllykid squirllykid 46-50, F 4 Responses Jul 21

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    Sometimes I can't wait I just have to get off at work sometimes
    Byates23 Byates23 18-21, M Jul 21

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