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I Have Myelofibrosis

A Myelofibrosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelofibrosis. You're not alone. 19 People

    Katejephson

    I was diagnosed just over a year ago. For the first 10 months, apart from a large spleen, everything was okay. Last October I was admitted to hospital with varices in the oesophagus, one of which was bleeding significantly. That was tied off and I now have regular checks. It has...
    katejephson katejephson 61-65 1 Response Jan 19, 2012

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    Diagnosed 2/27/2012 - One Month Ago!

    I just found out one month ago that I have Myelofibrosis. I am a 41yr old female living in NH. Thankfully I don't live far (just over 1hr) from Mass General Hospital in Boston where my Specialist is. I am getting prepared to get a second opinion... perhaps at the Mayo Clinic...
    albauman albauman 41-45, F 4 Responses Mar 27, 2012

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    Myelofibrosis Experiences

      Hi everyone, I just joined this support group. I was diagnsed with myelofibrosis 28 years ago and at that time the hematology docs decided to just watch my blood counts to see if there were any major changes. There were not, so they told me I had nothing to worry about...
    dcllmasters dcllmasters 66-70 7 Responses Oct 9, 2010

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    Myelofibrosis Patients

    Hi All,My name is Skye Rodriguez and I work for a company called Elliott Benson research and we are hosting a paid focus group paying $150 to all Myelofibrosis patients that maybe interested in sharing their personal experience with us. This will only be an hour of your time and...
    Skye18 Skye18 22-25 1 Response Apr 13, 2012

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    Related Experiences

    As a person who is absolutely proud of being able to deal with difficult or unpleasant people with grace, I have hit the wall with dealing with my mother in law. Here is a woman...
    Xiramat Xiramat 26-30, F 16 hrs ago

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    I am a female btw. I never got my license. I have my learners permit, but I have never taken the test to get my actual drivers license. I am engaged to someone I have been with...
    Vehema Vehema 26-30, F 2 Responses 7 hrs ago

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    I have met many people in my life. I liked some of them, but did not like others. I have always been nice to people, and when I have met people I have liked, I have tried to stay...
    s4019t s4019t 26-30, M 4 hrs ago

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    We really messed up on the pregnancy.... I was totally illiterate on the woman body and the conceive part when I was bachelor and after getting engaged, we started getting physical...
    Ravidesai Ravidesai 41-45, M 6 hrs ago

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    At one point of time YOU did have some faith in God, because you wouldn't had said you "lost" faith in Him. Whatever your going through, don't let it cloud or darken your love and...
    Salute2MyFlaws Salute2MyFlaws 18-21, F 6 hrs ago

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    I've had 3 people who I have genuinely called my best friends. Each one has hurt me and each one worse than the last... Recently I moved to NYC, it wasn't a place I had planned on...
    luvzmusic89 luvzmusic89 22-25, F 2 Responses 3 hrs ago

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    So its this boy I have been talking to for quite sometime. At first we were texting constantly now we text each other now and than. Sometimes we don't even respond to each other...
    blex1 blex1 18-21, F 1 hr ago

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    Alright, since I already posted about how we met, I won't say it again. If you care, go find it. ^_^ Anyhoo, I would post this on "I have a crush" but I feel like people wouldn't...
    ChanelLove12 ChanelLove12 16-17, F 32 mins ago

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    There are many religions across the globe. Some are very open and accepting to other beliefs and some look down on almost everything. I wonder why people believe one and not...
    ValhallaAwaits ValhallaAwaits 18-21, M 22 hrs ago

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    I miss my daddy :( It's been like 6-7 years now but I still feel like I did the very first moment I found out . I remember arguing with him because his English is not that good...
    missnikki23 missnikki23 22-25, F 3 Responses 17 hrs ago

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    I have pcos and I'm SO upset about it. I'm 20 years old & I ready wanna have kids cause I'm scared it will take me forever to get pregnant anyways! I'm not overweight but I'm so...
    lovebarbiex0 lovebarbiex0 18-21, F 1 Response 14 hrs ago

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    Dear my future baby boy, I've seen you in my dream the other day. The last time I have dreamt about you was few months back- the last scene in ny dream- was me being brought into...
    BakerQueen14 BakerQueen14 22-25, F 11 hrs ago

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    Well here it goes, I need some advice on this. 2 years ago I was introduced to a man who I met through my job. I took a liking to him (even though I was in a relationship at the...
    sarahdragonfly sarahdragonfly 26-30, F 1 Response 9 hrs ago

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    EQUAL RIGHTS . . . I have seen many posts on equality of the sexes. Personally, I judge all people on their merits but it got me thinking . . . Guys have,in the past...
    shaggynz shaggynz 41-45, M 3 Responses 9 hrs ago

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    I have my lip, my ears are gauged to 1/2" my tongue, septum, eyebrow, I used to have my bridge, and I have a dermal on my left bum cheek
    Allofthemeanpeople Allofthemeanpeople 16-17, F 7 hrs ago

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    you know why I don't like reading so much and this reading culture? First I think the writer is not smarter than me, I don't have to be told what to do to start thinking or doing...
    DiegoSMarinho DiegoSMarinho 16-17, M 7 hrs ago

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    I decided to say my story about my Depersonalization Disorder. I began to be really depressed when i moved away from my family and really good friends. I got into this horrible...
    AV12 AV12 16-17, F 1 Response 2 hrs ago

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    I have the urge to clean my room as soon as I get home. Not normal cleaning. Like, vacuuming even when I know my floor is clean and dusting. I also have an obsession with touching...
    brookledsome brookledsome 13-15, F 1 Response 2 hrs ago

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    I have an extremely vivid imagination. Which in my opinion, is the best thing a human could ever have. But sometimes, I get too separated from reality that I have no clue what's...
    KellySweetzz KellySweetzz 13-15, F 2 hrs ago

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    Truth...is the thing that just what it is, nothing and nobody could destroy it....But What we call truth is different from what it actually tells us..And their differences is in...
    Amirmohammad Amirmohammad 13-15, M 1 Response 22 hrs ago

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    I am very angry at my sister. She always puts me down. Before the board exam results came, we are busy praying for her to passed the board exam. She was very nice back then. Very...
    kiendy123 kiendy123 18-21, F 20 hrs ago

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    Frasquita and Mercédès amuse on their own by reading their fortunes from the cards; Carmen joins them and finds the playing cards are foretelling her Dying, and José's. The...
    Jenipe Jenipe 31-35, M 1 Response 16 hrs ago

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    I wonder if women with small breasts have the same envy towards women with big natural breasts.Like a man with a small unit has envy towards a man with a big unit.I think it be...
    bignatbreastluver bignatbreastluver 46-50, M 2 Responses 14 hrs ago

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    I have a Master's of Arts in English from Georgetown University. Shortly after I graduated I got married and ended up staying home to raise our children so I haven't had much use...
    FiestyJacqueline FiestyJacqueline 31-35, F 1 Response 11 hrs ago

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    Once the tour we had been taken to your Mermaid Hotel which is a stunning pleasant Hotel and we designed numerous friends.The Mermaid Hotel and Club is found by the dark golden...
    Wendolynce106 Wendolynce106 31-35, M 1 Response 10 hrs ago

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    I always was bothered when people asked me about my mother when I was growing up. I also always was uncomfortable when people said things like, "She's your mother. You love her...
    Micaysopinion Micaysopinion 18-21, F 10 hrs ago

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    I haven't slept like right in two weeks, but missing a little sleep for the most precious gift one could ever have is a small price to pay if you ask me. I love my baby girl so...
    lildiva89 lildiva89 22-25, F 9 hrs ago

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    We have tons of fun I haven't seen her in like a year tho she's back in Branson
    livelovehopefree livelovehopefree 13-15, F 9 hrs ago

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    I feel like I'm walking on eggshells. She can go between happy/sad/angry in seconds. And the angry part of her is resurfacing more and more often, to the point that she is rarely...
    indigostory indigostory 13-15, F 3 Responses 8 hrs ago

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    i got my learners and i am 32 years old, i am lefty , from the caribbean ,well my boyfriend show me 3 lessons before i got my learners friday gone (19/09/2014) i did my first...
    blusoldierwoman blusoldierwoman 26-30, F 7 hrs ago

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    Many of them are little one elephants. The elephants are fed at the orphanage and bathed from the close by river 2 times every day, which is able to be an unforgettable experience...
    Jeffrybup Jeffrybup 31-35, M 1 Response 6 hrs ago

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    I have some pretty bad car anxiety. I'm 18 and started driving at 16 but since my fiance and I have been together I just don't drive much anymore. Anywho, when I was 13 I was in a...
    WynonnaMarye WynonnaMarye 18-21, F 4 Responses 6 hrs ago

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    I have two reborn daughters, once a newborn Elizabeth and the other is 3months Lexi, i have no traffic reason for having reborns, im simply in a long distance relationship with a...
    ceceprix ceceprix 18-21, F 5 hrs ago

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    I have friends but it hurts me every day inside seeing people and their friendships. I've not connected with another human being on the level of other people. They usually think I...
    MysteriousBadWolf MysteriousBadWolf 13-15, F 1 Response 5 hrs ago

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    people are reading my mind and i'm not even unwell.... i have no privacy.. its kind of hard to deal with.... on top of that i am having lots of offensive thoughts that i really...
    specialbranch specialbranch 41-45, M 4 hrs ago

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    Okay so my old house was a two storey house that was at a end of a drive way and from the road it look only like a one storey, it was kinda in the bush and one of the two rooms...
    LLAMAAAA LLAMAAAA 13-15, F 1 Response 4 hrs ago

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    I hate it when people don't understand what OCD is but think they do!! When people are like, "oh yea I'm OCD about this and I have a friend who's OCD about that" like first of all...
    nsz45 nsz45 13-15, F 2 Responses 3 hrs ago

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    My life goes up and down, up and down constantly. I'm all over the place, never quite sure what I'm feeling at any given point. I've never been diagnosed, but my mom has bipolar...
    casuallyscreaming casuallyscreaming 16-17, F 3 hrs ago

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    My dad for instance should not have had kids. Even my aunt said "Jimmy should have never kids."
    breastsuckle breastsuckle 51-55, M 1 Response 3 hrs ago

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    Please tell me I'm more than a stupid tv show... I was saying goodnight to my mom a few minutes ago and trying to talk to her about tomorrow morning, and she basically just...
    Sweetgirl120 Sweetgirl120 18-21, F 2 Responses 3 hrs ago

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    So I have a cold, I can't sleep and I have this very nasty headache. Am I gonna die? Call a damn priest
    BeatTheBest BeatTheBest 18-21, M 3 Responses 2 hrs ago

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    For those of you who read my last story..... I have been having a relationship with my nephew(32).....Trust me it's true... And I have proof. I'm pregnant. He doesn't know yet and...
    juicy12smith juicy12smith 18-21, F 1 Response 2 hrs ago

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    I've been trying to get pregnant for well over 2 years, and it breaks my heart when I hear someone else is pregnant. Some of them barely take care of the kids they have already...
    crochetedgirl crochetedgirl 22-25, F 1 hr ago

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