I Have Myoclonus

Myoclonus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myoclonus. You're not alone. 34 People

    I Started This Weird Journey At Age 48

    I have Essential Myoclonus. It's not a death sentence but it is annoying to frightening and embarrassing. Fortunately, it has stayed the same/improved over the 7 years I've had it. I'm here because I woke up at 4am today with the jerks. WHY????? I've had a good streak since post...
    tonobono tonobono
    56-60, F
    Nov 19, 2013

    Myoclonus - Time Will Tell

    My experience with myoclonus started over two years ago with my body flinching more than usual when I was trying to fall asleep during an extremely stressful time in my life. About six weeks later, after another day of high stress, it decided to rear its ugly head again, but this...
    greg99999 greg99999
    41-45, M
    3 Responses Nov 24, 2012

    I Have Myoclonus

    Hello! I got sick about 9 years ago, I'm 27 now, and I was in my first year of college. I have had myoclonus for a few years now. I became sick at first with joint pain, which health services told me was chondromalacia patella. I did some exersizes and tried to walk it off. It...
    Gothbubbles Gothbubbles
    6 Responses Dec 10, 2008

    Two Supplements That Seem To Have Stopped My Myoclonus!!!!

    After two years of myoclonus on my left side, I have found two supplements that seem to have completely stopped my myoclonus!!! After reading a book about 100 ways to prevent Alzheimer's, I decided to go down to GNC for the first time. The supplements were ones that I've come...
    greg99999 greg99999
    41-45, M
    3 Responses Dec 15, 2012

    Myoclonic Mystery

    I don't have it. My husband does. I'm his advocate and #1 researcher. My husband is a 26 year old school teacher previously in decent health until about 6 months ago. Our story begins with terrible facial pain on the left side and in the area where his wisdom tooth used to be...
    ambyellen ambyellen
    2 Responses Feb 11, 2013

    My Myoclonus...

    I am not sure how to begin my story... First I am 33 years old and have been battling Myoclonus since I was 24. In the spring of 1998 I got very sick and had a lot of the symptoms of Lyme disease but was never diagnosed with it. Even though I did find a dead tick on my...
    GoneCrazyBBL GoneCrazyBBL
    31-35, F
    10 Responses Oct 1, 2008

    I have Essential Myoclonus

    and was diagnosed in college. It's been about 19 years and I just want you encourage others in the same situation that you are not alone. When I was first diagnosed, my neurologist literally said to me, "Let me see if I can find you in a book." Most people had never even...
    pktljames pktljames
    41-45, F
    1 Response Jul 23, 2015

    i am just looking for some body with the same

    condition thats it! for ask many things, is anybody is here to me with the same problem plese contact me
    vennezzuela vennezzuela
    26-30, M
    Jan 8, 2016

    I was diagnosed with myoclonus 2 years ago.

    We had a restaurant and were working 18 hours a day, not sleeping properly and weirdly, not eating! It was really scary I got carted off 3 times in an ambulance, spent 3 weeks in a normal hospital and 2 weeks in a psychiatric one. I was physically restrained and had everything...
    Jellyt0t Jellyt0t
    41-45, F
    Dec 26, 2014

    Me And My Myoclonus

    Hi,my name is Julie and i am 35 years old. I have suffered Myoclonus since December 2003 when i was 29. I am asthmatic and i took a bad attack and had to go to hospital. My brother called a taxi but when he seen i was getting worse he called an ambulance. He was told to get in...
    BloodVamp BloodVamp
    31-35, F
    2 Responses Feb 26, 2010

    Myoclonus Nightmare

    i started with problems in 1998 at the age of 19 I am now 31 from England.  I started with flu like symptoms and then wham I started one night just to shake all over i was fine after for one day  and then i started every night for 10 nights jumping.  My legs...
    eleroo eleroo
    31-35, F
    6 Responses Feb 26, 2010

    My mind goes blank and I do this weird shudder

    for a second, this happens constantly. been asked various times if I'm okay and people get a bit startled when they see me do it.
    SammiSakura SammiSakura
    16-17, F
    Apr 7, 2015

    I Have Myoclonus!

    The ******* started over a year ago.  First a few times when I went to sleep.  It has gradually gotten worse.  In the course of finding out why I was *******, I had to find another doctor who I could afford.  I lost my job and am now on unemployment.  Luckily, they suggested...
    squaredance squaredance
    2 Responses Sep 15, 2011

    Me And Myoclonus

    Well I was diagnosed last summer after being seen by a Neurologist.  Was sent there by my family doctor who thought I might have M.S. My medical records said I had a type of M.D. so finding out was quite the journey!  I have jerks every day, sometimes at night I kick my hubby...
    indianagirl91 indianagirl91
    2 Responses Jul 12, 2011

    Myoclonus At 17

    When I was seventeen I was hospitalized for extreme manic depression and schizo-affective disorder. The morning of the hospitalization I had taken my usual dose of Risperidone which was 8mgs at the time. (higher than the target dose but they thought it was helping which it...
    cengelke cengelke
    18-21, F
    4 Responses Dec 2, 2010

    I Have What They Call Hereditary Myoclonus

    Today, I was wondering if there was a support group for people that suffer with Myoclonus and I found this site. I was diagnoised with Myoclonus over 10 years ago. At 5 years old they thought I had Epilepsy and had my first EEG. That was ruled out. Before I was finally diagnoised...
    madhatterchoy madhatterchoy
    56-60, F
    2 Responses Jun 4, 2013
More Stories