Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Myostatin-related Muscle Hypertrophy

A Myostatin-related Muscle Hypertrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myostatin-related Muscle Hypertrophy. You're not alone. 22 People

    I Think My 1 Month Old Son Does.

    Hello,  so I am not 100% sure about this but figured you would be able to help me.  My Hubby and I think our new, 1month old baby boy might have this condition.  He, will be 1 month on 6/10, and is allready able to lift his head and hold it up fairly well all on...
    edeale edeale 31-35 4 Responses Jun 5, 2010

    Your Response

    Cancel

    Help For My Son

     My son is 9 yrs old and is Very strong. He has very definded muscles and even though he is 61 lbs can carry me - 153lbs around. He thinks it is cool to pick me up in front of everyone. However, the Drs. are concerned about his BMI it is 15. No matter what we get him to eat...
    lvmygsd lvmygsd 31-35 4 Responses Apr 29, 2009

    Your Response

    Cancel

    Our Daughter Has Be Diagnosed

    Our 15 month old daughter has been diagnosed as having MRMH.  She has approx. 70% more muscle mass that a normal child her age but has not reached the charts for weight yet as she is only 16lbs.  We would love to speak with other families with this diagnosis and for...
    kentkarilindsay kentkarilindsay 31-35 3 Responses Dec 10, 2010

    Your Response

    Cancel

    My nephew is 9 years old

    and he is really strong. He can do chin ups climb anything and you can see all of his muscles. He never wants to sleep. He is really really fast. He was like this from when he was a little baby . i used to carry him then he would go down and pull him self up almost like a sit up...
    minihami minihami 13-15, F 2 Responses Mar 2

    Your Response

    Cancel

    Undiagnosed

    I believe my 9 month old may have this condition. Similar to other posts, he was practically born with head control and met all of his milestones extremely early. He was standing by 5 months and full fledged walking by 7. He was putting all his weight on his legs when assisted...
    briannajane briannajane 22-25, F Jul 23, 2012

    Your Response

    Cancel

    My Defiency

    my name cant mention because i will be bodybuilding perrty soon i was wondering an i need help with this i have had this since birth just never noticed it at all i have been lifting weights since i was eleven always had alot of energy fast strong as a ox to but i have pain like...
    daddypride daddypride 22-25 Sep 17, 2012

    Your Response

    Cancel

    Definitely Got This

    Its the only way I can explain my size. I am 16 years old and outsize just about every guy I meet at 6'2 and 280lbs - the best part is I only lift a couple of times a week sometimes not at all. Ive always been massive and strong for my age and its great being this big without...
    teewilch teewilch 18-21, M 5 Responses Nov 1, 2013

    Your Response

    Cancel

    Wondering If I Have Myostatin Related Muscle Hypertrophy

    hi, i experienced this too, and even now i still am.  when i was young i was very strong and it showed through my muscles too.  my biceps were pretty big whenever i flexed.  my parents wasn't sure if it was a common thing in children my age back then and they...
    paddler11 paddler11 18-21 2 Responses Jan 25, 2010

    Your Response

    Cancel

    Myostatin Definacy

    hi iam 15 years old and have been lifting weights for 6 months and im stronger and faster then people that have been lifting for years and strength comes so easy to me no matter what i do and muscle i cant do a pushup with out feeling my chest just grew an inch, even before i...
    footballcavan footballcavan 13-15, M 2 Responses Dec 30, 2012

    Your Response

    Cancel

    Super Strength Is Our Family Trait

    I would like to find out if there is a genetic test/study in the UK for 'super' strength?When I saw a documentary re the baby in Germany, I was gobsmacked! Myself, my daughters and their children were all born with strength beyond their peers. Its something we have always joked...
    sibcat sibcat 56-60, F Jul 29, 2012

    Your Response

    Cancel

    Im Glad Im Not Alone....

    From birth I was VERY muscular. I had a 4 pack (which is now a 8 pack and is continuing to grow), to add  I do not work out on a daily basis. My biceps are also much larger than the average 16 year old male. All my life I have had compliments on my muscle mass and I have...
    iambeowolf iambeowolf 16-17, M 2 Responses May 5, 2010

    Your Response

    Cancel

    Wondering If I Have Myostatin??

    this is amazing, i watched the show on the 3 yr old boy w more muscle mass at such a young age.  I am 29 yrs old and have had more muscle mass my whole life. since a young girl, i have always been muscular with no explanation. i have always been asked if i work out and i...
    nicole999 nicole999 26-30, F 5 Responses Mar 7, 2010

    Your Response

    Cancel

    My 7 Year Old Son Has This Condition

    I'm not worried about my son being super strong and very muscular. I just love his defined little muscles! He stands out from other kids his age and always has. I'm really proud. He was 9lbs at birth, walked unaided at 8 months, and was always ahead of his peers physically. He is...
    fastmama fastmama 41-45 1 Response Jun 26, 2013

    Your Response

    Cancel

    I have grown up with this deficiency.

    I am used to being the weird looking guy, and coming to grips with the fact that I fight an uphill battle trying to control my weight. If I work out too much, I get bigger ...bigger I don't need. But I want to volunteer a knowledge base: I am a physician now. I have...
    bigsully0511 bigsully0511 31-35 2 Responses Jul 28

    Your Response

    Cancel

    Do I Have Myostatin-related Muscle Hypertrophy?

    I watched a show about a three year old who had this and wondered if i did too. My mom said she didn't remember me walking early or anything, but I have also had big muscles. I was always strongest in gymastics, and whenever i got flu shots the nurses would ask what sports i did...
    snoaws snoaws 13-15 Sep 29, 2010

    Your Response

    Cancel

    My Son "superman"

    My son's name is Jack and he is now six. He can run, jump, climb, throw, faster and harder than any child I have ever seen thats his age.. I am taking him to the Dr tomorrow because he is just so active and I need to come up with ways to wear him out before bed.. This guy keeps...
    chop2000 chop2000 26-30, F 1 Response Feb 6, 2012

    Your Response

    Cancel

    Related Experiences

    I wanted to share this. Envita Publishes Important Chronic Lyme Disease Treatment Study SCOTTSDALE, AZ--(Marketwired - December 16, 2014) - A revealing new study on chronic Lyme...
    mynameisjeff28 mynameisjeff28 26-30, M 1 day ago

    Your Response

    Cancel
    Another horrible night filled with discomfort. I took my muscle relaxants, and usually they work. but... not tonight. and another 2 hours before I can go take a shower and run hot...
    MeowOnMe MeowOnMe 18-21, F 4 Responses 14 hrs ago

    Your Response

    Cancel
    I'm nervous because herpes is related to nerves and I get stressed easily. One more week and I will of had this for a month. I haven't had an outbreak yet but I'm about to start...
    CaliArs CaliArs 18-21, F 25 mins ago

    Your Response

    Cancel
    The Best Approach for Body Building Many people believe body building is all about growing your muscles to incredible sizes. The easy truth is that body building is all about...
    mark318n0uo3 mark318n0uo3 31-35, M 1 Response 5 days ago

    Your Response

    Cancel
    Most people think that body building is about growing your muscles to incredible sizes. The easy facts are the fact that body building is really all about strengthening muscle...
    lee231w4mi2 lee231w4mi2 31-35, M 1 Response 4 days ago

    Your Response

    Cancel
    The Best Approach for Body Building Most people believe that body building is about growing your muscles to incredible sizes. The easy the fact is the fact that body building is...
    piny711o8nd4 piny711o8nd4 31-35, M 1 Response 3 days ago

    Your Response

    Cancel
    There is far more to body building than aiming to produce your own body into a replica of Arnold Schwarzenegger circa 1980 or so. Many people believe body building is about growing...
    dav490c5qi4 dav490c5qi4 31-35, M 1 Response 3 days ago

    Your Response

    Cancel
    I was told by doctors in early high school that I had some sort of muscle disease. After a couple years of biopsies and endless tests one doctor finally determined it was...
    JohnnyMarvin JohnnyMarvin 26-30, M Dec 8

    Your Response

    Cancel
    It started out as red eyes, muscle weakness in the legs then a emergency blood transfusion, then told i have chronic kidney disease stage 3, then told im otherwise healthy but...
    shoshoneone shoshoneone 26-30, F 1 Response 2 days ago

    Your Response

    Cancel
    My doctor diagnosed me with very high anxiety & stress. I also have panic attacks often. Not only does it effect me mentally - but it also effects me physically. I'm sleep...
    MeowOnMe MeowOnMe 18-21, F 9 Responses Nov 24

    Your Response

    Cancel
    I have a deep sadness within my heart. I know those that are connection with their heart can understand and feel what I have written, but sadly I cannot, and ye understand this. I...
    JavierHunting JavierHunting 18-21, M 4 Responses Nov 30

    Your Response

    Cancel
    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

    Your Response

    Cancel
    Okay, on my way to see my neurologist for my follow up. I got my injections a little over a month ago, and I can't get another one for another 2 or so months. But I'm telling him...
    MeowOnMe MeowOnMe 18-21, F 1 Response Dec 8

    Your Response

    Cancel
    Okay, saw my doctor. I actually get my next injection next month! He is raising the dosage a lot higher since the first one didn't work at all. He also prescribed me a muscle...
    MeowOnMe MeowOnMe 18-21, F 2 Responses Dec 8

    Your Response

    Cancel
    UPDATE: I used the medication (muscle relaxant) for the first time last night. Oh man, it worked wonders! I had no neck spasms, no pain, no tremors, at all. I was able to sleep in...
    MeowOnMe MeowOnMe 18-21, F 1 Response Dec 9

    Your Response

    Cancel
    I am right now so inspired to repost this with revisions on this late night as I sip my wine...this may look a bit dirty in the morning...lol.. Damn I want you... At your mercy...
    MFeisty MFeisty 41-45, F 8 Responses Nov 19

    Your Response

    Cancel
    There are a few of them actually, though all more or less related and equally ridiculous. I wish I had the ability to let mass and energy appear and disappear. That way I could...
    deleted deleted 26-30 1 Response Nov 19

    Your Response

    Cancel
    I've probably said this to 20 people on here. But its worth repeating: The source of all unhappiness is having expectation. Expectations exist solely in your mind. They are a...
    hmmhmmhmm hmmhmmhmm 26-30 2 Responses Nov 19

    Your Response

    Cancel
    Hi im fighting with anxiety for cuople years i changed pretty much. tho i live in usa without my parents im working at a restaurant and its bothers me at work i feel shaky...
    ddennis650 ddennis650 22-25, M Nov 19

    Your Response

    Cancel
    Hi all, I've just created a new forum dedicated to dealing with issues related to acid reflux. I've got some handy recipes up and will definitely have more to follow. It's a...
    ChrisHasReflux ChrisHasReflux 36-40, M Nov 20

    Your Response

    Cancel
    A few years ago I was participating in a marathon event and at the half way mark I was super tired and felt just like I was running through treacle. As I am keen on fitness I...
    jjthornton jjthornton 41-45, M Nov 21

    Your Response

    Cancel
    Well I don't yet, but I'm dying it over thanksgiving break with two of my friends. On the one hand I feel like I'm gonna get made fun of because I'm a guy, but on the other hand I...
    SarahPaulsonsSon SarahPaulsonsSon 13-15, M Nov 22

    Your Response

    Cancel
    I have a Demyelinating Disease. MS is also one of these diseases but mine is a new type. I have lesions scattered through out my brain and on the underside of my Corpus Collosum...
    BCulp38 BCulp38 41-45, F 1 Response Nov 23

    Your Response

    Cancel
    Welcome to the family- The people that you (& I are really close to & trust can be considered family. I never believed that you have to be blood related to be family. I have always...
    theswordinthestone theswordinthestone 41-45, M Nov 23

    Your Response

    Cancel
    My family consists of two close friends from school and a teacher who has gotten me through a lot of stuff. I'm not blood related to them what so ever, but they mean everything to...
    tRueInSAnItY tRueInSAnItY 16-17, F Nov 23

    Your Response

    Cancel
    Whenever I feel free of them, they come back. Today, I felt incredibly good to start with, which is quite rare. Usually I'm operating at around 90% physically and mentally at best...
    Reallifeperson Reallifeperson 22-25, M 1 Response Nov 27

    Your Response

    Cancel
    So yesterday at work i was closing down the meat counter, it was about 25 past nine. Next thing i know, i banged my knee off of the metal box underneath the counter. I expected...
    CaitlinBuchan97 CaitlinBuchan97 16-17, F 6 Responses Nov 29

    Your Response

    Cancel
    It took the doctors almost 3 years to diagnose me. At first, they thought it was anxiety or depression. I was thrown around from hospital to hospital for about 2 1/2 years until a...
    Kristoe103095 Kristoe103095 18-21, F Nov 29

    Your Response

    Cancel
    I usually have two kinds of dreams, if I go by general features. The first kind are weird, illogical ones with crazy plots that involve stuff that I was thinking about that day...
    pretender2687 pretender2687 26-30, M 1 Response Nov 30

    Your Response

    Cancel
    What if you lost your ability to Love ? What if the ability to enjoy everything was taken away from one day to the next ? This is a glimpse into my life suffering from a mental...
    jeromeleegriffin jeromeleegriffin 41-45, M Nov 30

    Your Response

    Cancel
    My mother had schozophrenia and lost custody of me when I was six, and I never saw her again. She died of cancer when she was in her 50s; I was in my 30s. I never knew who my...
    soledad75 soledad75 41-45, F 1 Response Nov 30

    Your Response

    Cancel