I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye
    16-17
    May 20, 2013

    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame
    18-21
    2 Responses Jun 4, 2009

    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee
    31-35
    May 16, 2011

    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal
    46-50
    1 Response Jan 4, 2011

    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich
    36-40
    1 Response May 22, 2010
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