Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

    Your Response

    Cancel

    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

    Your Response

    Cancel

    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

    Your Response

    Cancel

    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

    Your Response

    Cancel

    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

    Your Response

    Cancel

    Related Experiences

    I'm currently in the process of analyzing some videos for my psychology class. The videos are the videos of dysfunctional families with young children that keep screaming for...
    RichardAndon RichardAndon 22-25, M 1 Response Apr 11

    Your Response

    Cancel
    So, I went to see my doctor today and he suggested that I might have Asperger's syndrome. I don't really know much about it, so was hoping someone on here could enlighten me...
    Ambernonymous Ambernonymous 18-21, F 1 Response Apr 17

    Your Response

    Cancel
    I found this image about this anime "Parasite" or "Parasyte", I think it's called both ways, I just end watching the anime and I remember thinking about the parasites like Asperger...
    SusAssasins SusAssasins 16-17, F Apr 26

    Your Response

    Cancel
    I have aspergers and I thought meeting other people who have it would help me cope but it hasn't . It's like I can't even relate to those people who have it because were too alike...
    JoshRobin JoshRobin 18-21, M 2 Responses Apr 5

    Your Response

    Cancel
    Yes, another malady. Actually I've had it since age 20 when I injured my elbow pitching. I loved to pitch and was asked to walk on to the UW Madison team back in 1975. I'll...
    steverick steverick 56-60, M Apr 7

    Your Response

    Cancel
    I am starting to branch out. To be honest, it doesn't have to be over night, but very gradual. I used to think remaining silent and unnoticed would be better for me, but then you...
    LeaderOfThePack LeaderOfThePack 13-15, M 2 Responses Apr 13

    Your Response

    Cancel
    I have this but I have periods of denial which mess me up mentally because admitting to having such a disabling disease is so difficult. I go to college because my parents forced...
    fallenstar23 fallenstar23 22-25, F 1 Response Apr 16

    Your Response

    Cancel
    Ever since I have been diagnosed with Aspergers my parents have always said no i dont. However, they really dont know the half of it. I know i have it mild but i still have it and...
    internationalkoala internationalkoala 18-21, F 7 Responses Apr 17

    Your Response

    Cancel
    I had a stroke March 2nd. I was in the hospital from March 2-March 25. Then I was in a rehab facility till April 19th. I started feeling this burning ,stabbing pain in my right...
    moonstar312 moonstar312 36-40, F 1 Response Apr 26

    Your Response

    Cancel
    In the past 64 years since I contracted polio, nothing has been discovered to cure the later effects of polio, but Gabapentin for nerve pain (300 mg.) really helps me sleep at...
    julesgarden julesgarden 61-65 5 days ago

    Your Response

    Cancel
    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F 4 days ago

    Your Response

    Cancel
    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response 3 days ago

    Your Response

    Cancel
    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M 1 day ago

    Your Response

    Cancel
    my life has always been hard since the day i was born.
    dacosta4949 dacosta4949 22-25, M 3 Responses Apr 13

    Your Response

    Cancel
    Well, I'm actually diagnosed....
    SAffRONisGODxSATAN SAffRONisGODxSATAN 13-15, F a week ago

    Your Response

    Cancel
    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F 3 days ago

    Your Response

    Cancel
    I've bitten my nails for as long as I can remember. As a child I bit my fingernails and toenails (gross, I know). I stopped biting my toenails probably around the age of 8, maybe 9...
    wxitch wxitch 16-17, F 6 days ago

    Your Response

    Cancel
    It started off with a "cold" I caught from my 14 years daughter. I had gone to the hospital and they treated it like the flu. After fainting once in the shower and laying around...
    jenniejennjen jenniejennjen 36-40, F 2 Responses 6 days ago

    Your Response

    Cancel
    I prefer short nails I also gotten my nails done and I hated using a MetroCard to remove them. Soaking them would of took ages. Now I just polish my nails and design them...
    lorrena19 lorrena19 18-21, F 1 Response Apr 9

    Your Response

    Cancel
    I don't know if it's just me, but whenever I don't paint my nails, I feel bare. Like I'm half naked without nail polish. I am obsessed with painting my nails and keeping them...
    sillychey97 sillychey97 16-17, F 2 Responses Apr 13

    Your Response

    Cancel
    I have all of my nails clipped and cleaned except my left hand middle finger nail. It's a bin long and I sharpen it to a point. I guess it's just me lol :)
    brosky144 brosky144 18-21, M Apr 20

    Your Response

    Cancel
    She went to attack my skin again. She does it pretty often I guess. She last did it about early yesterday and the day before. I admit I do let her sometimes, because if I resist...
    1lonelydaisy 1lonelydaisy 41-45 Apr 24

    Your Response

    Cancel
    I invite you all to come over to my Poland Syndrome Suppport (USA) Facebook page, this is a closed group and we are very open and willing to lend advise.
    Gene47 Gene47 46-50, M 3 days ago

    Your Response

    Cancel
    I invite you all to come over to my Facebook group page, Poland Syndrome Support (USA).
    Gene47 Gene47 46-50, M 3 days ago

    Your Response

    Cancel
    my nails love it on. I hate it without nail polish. I am hating life
    Thedepressedgirlatthewindow Thedepressedgirlatthewindow 16-17, F 3 days ago

    Your Response

    Cancel
    I'm only 24 and I'm having severe back pain. Has anyone with Larsen Syndrome had back pain that was diagnosed and treated? What can I do? From what I can tell my problem might...
    Coiraingeal Coiraingeal 22-25, F Apr 16

    Your Response

    Cancel
    Hi I'm Chelsea. I was diagnosed with Duane Syndrome (Type 1) at a very early age as the first few weeks I was born were scary for my mom because she's told me about my left eye...
    lovelymoon11 lovelymoon11 18-21, F Apr 18

    Your Response

    Cancel
    i wasnt going to write a story about this.... but i will just to share y story with people and hopefully i can maybe try to help people who have it too...
    Slothislife Slothislife 18-21, M 12 Responses Apr 21

    Your Response

    Cancel
    I have Alice In Wonderland Syndrome, I didn't know I had it until a few years ago. when I was a kid things would get big and sometimes everything just speeded up everything around...
    KValentine17 KValentine17 22-25, M 1 Response Apr 23

    Your Response

    Cancel
    I've been diagnosed with SMA syndrome for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When...
    jfletcher jfletcher 22-25, F Apr 26

    Your Response

    Cancel
    I am in love with the man who sexually abused me for 3 years. it started when I was 13. I got extremely close to him. I looked up to him and I could tell him anything. He was my...
    jessical95 jessical95 18-21, F 6 days ago

    Your Response

    Cancel
    I invite everyone that has Poland Syndrome to visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response 3 days ago

    Your Response

    Cancel
    Hi! I'm 17 years old, and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often...
    musiclover48 musiclover48 16-17, F 1 Response 3 days ago

    Your Response

    Cancel
    everytime I think my nails are growing ... I bite them off. help.
    kamrideley kamrideley 26-30, F Apr 13

    Your Response

    Cancel
    Okay so i use to have this picture which shows you marks on my forearm from HUMAN NAILS!! My stupid (now distant) friend did this. What did I do? I just took her PEN off her...
    ThisIsLife13 ThisIsLife13 13-15, F 1 Response Apr 13

    Your Response

    Cancel
    I must've gotten this bad habit from my dad. I do it when I'm bored, scared, nervous or stressed. the only time my nails grow out is when I am truly happy in life.
    ashb3r ashb3r 22-25, F 1 Response Apr 16

    Your Response

    Cancel