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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    Related Experiences

    I'm 33yrs old, I was born with bi-lateral sprengels. Born to a family which didn't have much $, and having a deformity that's rare I went undiagnosed until a year ago. As a child...
    TrisCat TrisCat 31-35, F 1 Response 19 hrs ago

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    I've never really liked wearing nail polish. My nails are well groomed and look nice.
    AMK1985 AMK1985 31-35, F 1 Response 2 days ago

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    I came across this site reading everyone's stories feeling amazed about how I am not alone. I feel a little disappointed because everyone's stories are mostly or similarly the same...
    whyme96 whyme96 18-21, F 1 Response 2 days ago

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    This is in regards to a friend of mine who suffers from carpel tunnel. In addition to this...it also seems like the muscle, tendon, etc. in his arm is calcifying making it feel...
    jlg813 jlg813 26-30, F 1 Response 2 days ago

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    Today, I was diagnosed with Duane Syndrome. After 17 long years of wandering what's wrong with me, and why my eyes are so different from other peoples', I finally have closure. I...
    katiebug7 katiebug7 16-17, F 3 days ago

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    Good evening! I have been diagnosed with Marfan Syndrome when I was three months old by an ophthalmologist in a hospital in Poland. I am now 6'2", after two cardiac surgeries and...
    sakrona sakrona 18-21, F 3 Responses 3 days ago

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    Just found out my 11 year old son has Asperger's syndrome. I have suspected for a while, and the reason it went undiagnosed for so long is because he is so academically gifted. In...
    SoShellyBye SoShellyBye 41-45, F 2 Responses 3 days ago

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    i had my surgeries today. i'm quite proud of myself since i managed all 4 injections with only 2 swear words - which is half the number i anticipated using. The surgeon spent a...
    LoneSouls LoneSouls 31-35, F 1 Response 3 days ago

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    I don't know for sure, but I know it's not normal. How can you be so tired from nothing? And this condition is what makes me depressed. Like I can be perfectly normal and then...
    fcksociety fcksociety 22-25, F 3 days ago

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    It's hard to really do anything.. When your a minor and have no family support... What's the point
    Norial Norial 13-15, F 1 Response 3 days ago

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    While four-year-old Alfie loves ­dinosaurs, fire engines and cars, Logan prefers sparkly dresses, wands and Frozen’s Princess Elsa.But what makes their differences all...
    janecool janecool 16-17, M 4 Responses 3 days ago

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    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
    blitzkrieg7 blitzkrieg7 22-25, F 4 Responses 3 days ago

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    I feel so coward and uncomfortable when my nails aren't painted btw real men paint there nails screw gender norms
    queenjoey queenjoey 18-21, M 1 Response 4 days ago

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    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T 6 days ago

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    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
    topcap2017 topcap2017 41-45, M 1 Response 6 days ago

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    There's the oldest There's the youngest There's the only boy And then there's me...
    DreamRiver DreamRiver 70+, F 4 Responses a week ago

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    Another bout has struck me down, looks like another few days of severe rest. Lucky me(!)
    ProjectExperienceNameUser ProjectExperienceNameUser 26-30, M a week ago

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    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F a week ago

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    I get a pedicure monthly, with the same lady who does my waxing. As a joke I had my nails painted a bright blue one time but the responses were positive so I keep it up now. Being...
    donontario donontario 61-65, M 2 Responses Feb 3

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    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses Feb 3

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    Any way to stop feeling fatigued? Anyone had any luck gaining energy back?
    WhiskeyT WhiskeyT 22-25, F 2 Responses Feb 2

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    My nail broke ( ; _ ; ) rip
    RachelDare RachelDare 13-15, F 1 Response Feb 1

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    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response Feb 1

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    can a guy wear nail polish and no not black or dark colours i mean regular colour or bright colors
    PurpleMonkey34 PurpleMonkey34 22-25, M 2 Responses Jan 31

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    I have the pais syndrome an intersex condition. I am a FTM/Libragender and I have bottom dysphoria and I am happy though that I'm intersex, though worried too.
    Yviroc Yviroc 22-25, T Jan 31

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    I was trying to paint my nails and mum asked me to do all this housework and now... ( ; _ ; )
    RachelDare RachelDare 13-15, F 4 Responses Jan 31

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    Does anyone else experience a great feeling of anxiety and impending constant doom from this? Like something is terribly wrong...does anyone else feel this horrific panic deep in...
    myreality1 myreality1 36-40, M Jan 30

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    I had a story block on this site..Really all i said was i like pretty Nails,,They look nice,,,hmmm,,,But it was blocked out,,Don,t get it,,
    deleted deleted 26-30 Jan 30

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    My husband and I have been trying to get pregnant for the past year. Nothing. I have two beautiful twin daughters. Natural conception, first pregnancy. I finally went to see a...
    Butterflykiss707 Butterflykiss707 22-25, F Jan 30

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    New low: as some of my friends may know, I was violently abused, raped and borderline tortured my my stepmother and stepsister following my fathers passing, and I left when I was...
    Nihl Nihl 18-21, M 1 Response Jan 26

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    i painted my nails for the first time to school feeling more and more girly :)
    katey11 katey11 18-21, F Jan 26

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    My 10yo son has a missing right pec muscle, but no other symptoms of Poland. He's very sporty and it has made no difference to what he can do, in fact he has developed a huge...
    TKDmum TKDmum 41-45, F Jan 26

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    My name is Kristen Phelan and I'm a casting director working with Watercooler Casting. We are currently in development of a new TV project that is looking to document and bring...
    thekp129 thekp129 41-45, F Jan 25

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    HI nail polish enthusiasts :DThis is one of the more complicated nail polish jobs I have ever done.There are over ten different colours used and a shimmery iridescent coat and...
    NyxInvictus NyxInvictus 41-45 1 Response Jan 25

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    I've been biting my nails since I was a kid, and for those other nail biters out there, you know how hard it is to stop. I've stopped on and off, even once for a bet. Sometimes it...
    VVmommy VVmommy 26-30, F 1 Response Jan 25

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    I was born with it. This disorder has really changed my life. All my symptoms of it: ----I tend to be socially anxious at times, not know what to say, I am not very good at...
    RainbowBlaze RainbowBlaze