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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    Related Experiences

    Hey I have Jarcho-levin Syndrome and have a trache and mickey I had this disease all my life I wasn't supposed to live the dr's gave me 24 hrs to live anyways ........I have...
    Zannyband16 Zannyband16 16-17, F 3 hrs ago

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    Hello: My daughter has Parkes Weber Syndrome. I'm wondering if anyone in this group is from Ontario?
    Momofgirl Momofgirl 41-45, F Feb 5

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    One year ago is when I started getting sick. It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on...
    kateyrose98 kateyrose98 16-17, F Feb 9

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    Dear CFS: **** you! I hate not being able to think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the...
    LookingForIt987 LookingForIt987 41-45, M 2 Responses Feb 11

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    Hi, I'm 21. I slipped a disc in December 2014. I had CES symptoms for 2 weeks before having my disc removed as I was on a cruise ship. I guess I'm lucky as I can walk normally with...
    sdavis313 sdavis313 18-21, F 1 Response Feb 15

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    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

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    I can't say 100% that I have this (just 98%) I wish I knew how to get better because I also have pseudotumor cerebri and the two are going in circles with each other right now...
    lu7998 lu7998 31-35, F Feb 16

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    Hi I'm 24 years old and currently being diagnosed with pts. 5 months ago I had my first symptom which came out of no where and was severe! I have had sooo many tests as you would...
    megzeee megzeee 22-25, F 1 Response Feb 18

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    As an Aspie, I get very tired having to socialize and talk to people. I'm often accused of being aloof, standoffish, or downright rude. It's not my intention to be mean or...
    Sorgun Sorgun 26-30, M 3 Responses Feb 21

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    I was born weighing two pounds and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree 18-21, M 1 Response Feb 25

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    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses Feb 25

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    I don't know if because of the other medications I HAVE to take or what but I use Restasis every day twice a day like the frickin commercial says. I also take Fish Oil and...
    steverick steverick 56-60, M 1 Response 2 days ago

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    It's so tough to get exercise. I want to exercise so much...but I can't because it hurts and my joints pop every time i do:(
    Enpfor12 Enpfor12 18-21, F Feb 10

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    i am aspie and i am proud of it. it makes me who i am and ucan all say like it makes some things i know i was diagnosed last year with this and high functioning augism and this is...
    prodemonz prodemonz 13-15, M 3 Responses Feb 24

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    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 1 Response 5 days ago

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    My sister does, and I'm that sibling. I have asperger's syndrome, a form of high-functioning autism. When I was younger I would get angry at the littlest things. I remember...
    ftmFreddy ftmFreddy 18-21, T 1 Response Feb 9

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    I am 26 and have been struggling with pica for 20 years. When I was a kid (6 years old) I started to eat the stuffing out of couches. It started off as a little here and there but...
    keepitlikeasecret keepitlikeasecret 26-30, F 18 hrs ago

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    As a reformed biter, I understand the effects of this habit. Not only is it unhealthy but I always felt badly about myself being that my nails looked less than attractive. Not very...
    Collette0725 Collette0725 31-35, F Feb 15

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    Just did my nails :) I did pink with hearts on my finger nails & black with sparkles on my toenails ;) i hope my bf likes them when he gets back from work :) he told me once out of...
    Iloveastronomy Iloveastronomy 18-21, F 2 Responses Feb 18

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    Sparkles, dresses, makeup. Aliens words. Nail polish being one of them. I would never believe I would actually wear nail polish, I am. I see my friends with their oranges, greens...
    lostfollower lostfollower 16-17, F 2 Responses Feb 8

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    I polish my nails whenever I can. I sometimes polish my nails the same color as my shirt. My toes I polish that and keep on the same color for a week. For some reason my toe nail...
    lorrena19 lorrena19 18-21, F 1 Response Feb 19

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    I wear all types of nails polishes but I can't stand the ones with heart shapes inside them. If you know what I'm talking about. It looks glittish but it's not it's glitter inside...
    lorrena19 lorrena19 18-21, F Feb 23

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    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
    Life1sinteresting Life1sinteresting 18-21, M 1 Response 4 days ago

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    Don't give up; there is hope. I'm 19 and when I was 16, I got my first symptoms of rumination syndrome. Like a lot of others, I thought it was a 24 hour sick bug but it just...
    alexxblanch alexxblanch 18-21, F 1 day ago

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    It's a fun way for me to pass time. I like trying new colors, although my favorite color is blue. I probably use blue the most. I also like to paint some of my girl friend's nails...
    jerseyjade jerseyjade 16-17, F Feb 7

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    I like experimenting with colour. My fave colours for painting my nails are pink and purple. I like to wear different colours on different nails tho and some paint the tips a...
    stargirl58 stargirl58 26-30, F 1 Response Feb 16

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    Last summer I had bought a cute pink nail polish that looked so nice with my white sandals. While shopping with my wife I was standing in the check out line a young girl about 9 or...
    Elizabethanne253 Elizabethanne253 61-65, T 9 Responses Feb 19

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    Broke my nail the other day. It was one of the most painful things I've ever experienced. Who knew pulling up jeans could break your nail and make you bleed so much? Seriously tho...
    Rosieeeee Rosieeeee 18-21, F 2 Responses Feb 21

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    Quite a few, actually. Let's see: Velo Cardio Facial Syndrome Asperger's syndrome Depression Obsessive Compulsive Disorder That's me.
    ftmFreddy ftmFreddy 18-21, T 5 Responses Feb 9

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    The ever present question, are we being manipulated? If you say, well yeah, duh. Then you ask yourself the next question, who is manipulating us? Welcome to the mind of all tin...
    everydayisagoodone everydayisagoodone 31-35 2 Responses Feb 13

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    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 2 Responses 6 days ago

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    just wondering about others experiences with POTS syndrome. I have lost all strength in my legs and im in a nursing home. Therapist says ill be in a wheelchair for a month. was in...
    Jzimo Jzimo 22-25, M 4 days ago

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    Pretty much self explanatory. Additional info for the clueless: http://www.urbandictionary.com/define.php?term=White+Knight+Syndrome
    aberrations aberrations 22-25, M 4 days ago

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    i first found out i have turner syndrome when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults...
    Atale Atale 18-21, F 1 day ago

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    Wow so I'm not crazy. I am 43 and a lifetime nailbiter but about 10 mths ago I started chewing on my index fingers. I have gotten where I only chew my left one but I have chewed...
    deadbutterfly1114 deadbutterfly1114 41-45, F 1 Response Feb 10

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    I finally painted my nails RED!!! (Excuse my tired face lol) and my current fav lotion is the Winter Candy Apply by Bath and Body Works. Goodnight everyone! :)
    sailorsgf0314 sailorsgf0314 18-21, F 1 Response Feb 10

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    Recently I have told the people at work that I enjoy painting my nails (and dressing up sometimes) and showed 2 of them. They didn't mind at all - so I just let the other 2 people...
    Mirinesse Mirinesse 41-45, M 6 Responses Feb 20

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