Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

    Your Response

    Cancel

    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

    Your Response

    Cancel

    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

    Your Response

    Cancel

    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

    Your Response

    Cancel

    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

    Your Response

    Cancel

    Related Experiences

    I'm so glad I found this. Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and...
    jsxburt jsxburt 46-50, F 6 days ago

    Your Response

    Cancel
    Hey All, I'm a 28 year old female with what I think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I...
    starjj starjj 26-30, F 1 Response Dec 7

    Your Response

    Cancel
    I was diagnosed with HAS a few days ago - The initial cause was that I am experiencing eye issues and saw an ophthalmologist who then referred me to a neurologist who made the...
    barbarasayshi barbarasayshi 41-45, F 1 Response Dec 13

    Your Response

    Cancel
    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
    perennialsorrows perennialsorrows 31-35, F 4 Responses Nov 27

    Your Response

    Cancel
    I can't meet people's gazes. I have single minded focus on certain things. I am clumsy (found a way to help that.) I usually end a conversation just because I can't continue it, I...
    Ditum Ditum 18-21, M Nov 28

    Your Response

    Cancel
    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
    xxkerry1990xx xxkerry1990xx 22-25, F 1 Response Dec 2

    Your Response

    Cancel
    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

    Your Response

    Cancel
    I was finally diagnosed as being on the spectrum on November 2nd, 2014. The test used was the Gilliam Asperger's Disorder Scale and it was a three hour test done over three visits...
    lyricalongings lyricalongings 31-35, F 1 Response Dec 7

    Your Response

    Cancel
    The doctor finally told me I have it a year ago but so far no one believes it. Looking to meet others who would like to talk about it.
    keravon keravon 51-55, M 1 Response Dec 8

    Your Response

    Cancel
    I've tried to use it to my advantage. I'm gifted with writing and I believe Aspergers along with an abusive home environment help to give me that as well as other skills. Being...
    KnaisGuy KnaisGuy 22-25, M 3 Responses Dec 8

    Your Response

    Cancel
    This **** is no joke. The pain is pretty severe. I plan on having surgery, but I have to wait till after Christmas.
    Xplictt Xplictt 22-25, M Dec 11

    Your Response

    Cancel
    I've struggled all my life socially. I never made a single friend until I turned 14. I was always "that weird, quiet girl." People were cruel to me and I could never figure out why...
    SecretGaygent SecretGaygent 22-25, F 5 Responses Dec 14

    Your Response

    Cancel
    I have had CFS for about 12 years and am sick of people either not believing that I have it or giving me "helpful" advice (such as: oh, just push yourself a little more each day...
    TealGirl TealGirl 31-35, F 1 Response 18 hrs ago

    Your Response

    Cancel
    My daughter has BCS. She's 6yrs old now. She was diagnosed when she was 18 months old. Her body was shunting itself when I was pregnant with her. She's currently on Coumadin. She...
    annagracesmom annagracesmom 41-45, F Nov 30

    Your Response

    Cancel
    Has anyone else read the Michael Vey series of books. Kind of Awesome that TS has a champion. :)
    jeepers92 jeepers92 41-45, M Dec 10

    Your Response

    Cancel
    I could write a whole blog about what the side effects are of me, but the main thing is i find myself to be insecure at times because i find it sometimes difficult communicating...
    agdnn agdnn 26-30, M 2 Responses 4 days ago

    Your Response

    Cancel
    The last time I was in hospital I remember a man being seen by a physician, the man was covered in blood. He had an entire roll of loo paper resting under his nose that was blood...
    heyitsabike heyitsabike 31-35, F 1 Response 4 days ago

    Your Response

    Cancel
    I got diagnosed when I was 3 and I have it in both eyes. Just a few months before that I had a brain tumor. I can not begin to image what kind of stress this put my parents under...
    macyl macyl 18-21, F Nov 30

    Your Response

    Cancel
    It was actually 3 days ago. I figured it was close to december, so I wanted to do my toenails all festive. My girlfriend was to get home in 1 hour, (traffic was bad) and she does...
    Maxx360 Maxx360 18-21, M 1 Response Dec 1

    Your Response

    Cancel
    I have Hypermobility Ehlers Danlos Syndrome (EDS). I also have Postural Orthostatic Tachycardia Syndrome/dysautonomia (POTS). Ehlers Danlos syndrome is a connective tissue...
    jahoz jahoz 41-45 Dec 14

    Your Response

    Cancel
    When I was 26 year old I found out I got Klinefelter Syndrome Infertility – the condition may be diagnosed when fertility problems Reduced testicle size – in all males with...
    topball2015 topball2015 41-45, M 2 days ago

    Your Response

    Cancel
    Well Ive never gone to a salon but I like having someone else doing my nails and having a facepack etc. I'm quite interested in the creative aspect of nails -nail art etc, although...
    stargirl58 stargirl58 26-30, F 3 Responses Dec 10

    Your Response

    Cancel
    Grow hair faster Whether you’re in the midst of trying to recover your strands from a misguided cut or simply want longer locks, you may have a hard time patiently waiting for...
    dantodawn dantodawn 51-55, T 2 Responses Dec 11

    Your Response

    Cancel
    I am well acquainted with how disruptive motherhood can be to a woman's personal and professional autonomy. I will not be waxing poetic about it either (today of all days). I too...
    Tannasheart Tannasheart 46-50, F 3 Responses Dec 18

    Your Response

    Cancel
    Decided it was time to switch things up a bit. I normally get my natural nails manicured, but today i decided to get an acrylic nail tip. I have to get used to the nail extensions...
    SpanishRose10 SpanishRose10 31-35, F 3 Responses Dec 11

    Your Response

    Cancel
    I love painting my nails. I frequently go to work with bright red toe nails under my drab boy clothes. I've found a Revlon colour called Ethereal which I can wear on my fingers...
    Monicatg Monicatg 51-55, T Nov 30

    Your Response

    Cancel
    I love painting my nails. I frequently go to work with bright red toe nails under my drab boy clothes. I've found a Revlon colour called Ethereal which I can wear on my fingers...
    Monicatg Monicatg 51-55, T 2 Responses Nov 30

    Your Response

    Cancel
    I love getting my nails done, especially after I started doing nails art for myself and friends!
    ira01 ira01 26-30, F 2 Responses Dec 15

    Your Response

    Cancel
    I am painting my nails right now. They are this beautiful sparkly red (the color is called Ruby Jewels by milani) and some of them are this kinda gold color. I love them! :) What...
    sailorsgf0314 sailorsgf0314 18-21, F Dec 18

    Your Response

    Cancel
    I was diagnosed with Duane Syndrome in my right eye when I was just a baby, when my Dad noticed I couldn't move my eye. From a very early age I remember being in the hospital...
    baaraah baaraah 18-21, F Dec 5

    Your Response

    Cancel
    I found out I had Duane Syndrome in both of my eyes when I was around 6 years old but it only started to seriously impact my life when I was 12. From what I remember my vision used...
    Ashleyc97 Ashleyc97 16-17, M Dec 12

    Your Response

    Cancel
    Hi there. Since I was born I have been diagnosed with marfan syndrome. Little did I know, being an infant, I was on the verge of having many issues in life. They may not have been...
    ChrisSFTY ChrisSFTY 18-21, M Dec 15

    Your Response

    Cancel
    i think Asperger Syndrome is very similar to Obssesive Compulsive Personality Disorder...
    Hanahbee Hanahbee 31-35, F 2 Responses Dec 16

    Your Response

    Cancel
    Err...some nails. Sometimes. I never cut them, they always break off before they get to a good length. My job is so hard on them, even a few coats of super durable polish wont help...
    Starrkya Starrkya 18-21, F Dec 18

    Your Response

    Cancel
    Yea, just as it says, I have Aspergers Syndrome. It's tough at times. Yea, I have a great understanding of logic but the fact I don't understand emotions. Nor do I understand and...
    Tnert357 Tnert357 13-15, M 3 Responses 5 days ago

    Your Response

    Cancel
    Hello my name is johnny.......i was born with goldenhar syndrome.......i was born in mexico city where doctors their said that theirs nothing they can do.....so my lovely mother...
    johnnycash4814 johnnycash4814 26-30, M 1 Response 5 days ago

    Your Response

    Cancel
    I painted my nails today. I applied two coats of ORLY "Swizzle Stick" which is a kind of bright, hot pink, and on top of that, one coat of L.A. Colors "Infrared" to tone it down...
    KatieTreat KatieTreat 51-55, T 1 Response 2 days ago

    Your Response

    Cancel
    I have a huge nail polish collection. I could sit there for hours just decorating my nails. :)
    evieas123 evieas123 18-21, F 3 Responses 1 day ago

    Your Response

    Cancel
    I bite my nails when I get nervous or hungry. It's not too bad but they aren't too good either
    Imaliar2 Imaliar2 16-17, F Dec 5

    Your Response

    Cancel
    Can someone help me? How do you get gel nail polish off of your skin after you've finished curing everything?
    UnderworldNymph UnderworldNymph 16-17, F Dec 7

    Your Response

    Cancel