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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    Related Experiences

    So I made an account for this website to share my story about having polycyclic ovary syndrome. I was only diagnosed two days ago but after talking to my doctor and reading...
    JudgementFreeMe JudgementFreeMe 22-25, F 9 hrs ago

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    I was wondering if there was anyone out there that could help me out. I have been going to the doctor for more than a year trying to get a diagnosis. Many doctors, many tests...
    LoveMinPins LoveMinPins 51-55, F 1 Response 10 hrs ago

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    For about two and a half years now, since the start of 2013 or earlier. It really deterred me from any activity on my feet when it wasn't necessary. (I use to be able to take 4...
    YukiSohma YukiSohma 18-21, M 15 hrs ago

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    If you can't understand that, then don't talk to me. I do not like to be criticised and compared to others because I am unable to socialise properly. It is not my fault and I didn...
    thedimone thedimone 13-15, F 19 hrs ago

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    Ladies, you will save this fourth. By doing your nails this way. Just got the 4th of July nails.
    jjoe01 jjoe01 41-45, M 2 Responses 2 days ago

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    Because someone asked me to post a pic of my nails. The color is called "charmed, I'm sure." ;) hahaha
    laurenwilliams18 laurenwilliams18 18-21, F 10 Responses 3 days ago

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    I paint my nails orange the most :P
    Nya25 Nya25 22-25, F 3 days ago

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    my nails grow so fast,within 2 days the crack :(
    miimii0069 miimii0069 26-30, F 1 Response 3 days ago

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    Could be me. Need to schedule an appointment and get assessed.
    Western9 Western9 36-40, M 4 days ago

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    I don't mind Aspergers. It has benefited my intelligence greatly, and I have a small group of friends who understand that I may not be the most entertaining or talkative person in...
    XenonVirus XenonVirus 13-15, M 4 days ago

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    Lol my nails so good but they are fake nails cuz my real nails are AWFUL lol But luckily people create fake nails
    Alexlovesmusic Alexlovesmusic 13-15, F 1 Response 5 days ago

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    Hate the empty nest. Use to have sons friends Ina bs out...so quite here. On a good note ...grocery bill has gone way down.
    sharipie sharipie 51-55, F 2 Responses 5 days ago

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    Want to know me better? Autism is funny. And terrifying. (Just like EP really) Just now, as I sat reading a short passage of keywords about autism titled 'Am I OKay' I did my...
    jacquelinejones jacquelinejones 46-50 3 Responses 6 days ago

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F a week ago

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    and am glad there are others out there that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this...
    katiebabydoll13 katiebabydoll13 26-30, F a week ago

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    I love painting or have other women paint my toes and finger nails painted. I love the color red on my toe and finger nails. Red is so sexy and I am a very sexy woman.
    femalemusiclover femalemusiclover 46-50, F 2 Responses Jun 26

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    I sooooo badly want to go into a nail salon and get my nails done, but I'm too scared alone and I don't have any friends that'll go with me either, ugh, I need to get them done bad...
    JulieCakes JulieCakes 16-17, M 1 Response Jun 26

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    Got my nails and toes done 💅😍😛
    StraightKillaaaa StraightKillaaaa 18-21, F Jun 26

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    Looking for advice on a nail colour for my toes.. Am either thinking blue, purple or pink. Getting them done for the first time in a few days :)
    JustinBiebz JustinBiebz 18-21, M 5 Responses Jun 24

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    I was diagnosed with Raynards in 1987 and then with CREST Syndrome in 1989. It was a scary time for me as my doctor called my whole family in and told them I has 3 to 4 years to...
    1990ppaul 1990ppaul 51-55 Jun 23

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    i just love red nail polish
    deleted deleted 26-30 1 Response Jun 23

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    Nail biting..i know that it is seriously ridiculous...but it has became part of my life..i just can't resist my self from biting my nails. this is the reason that i have extremely...
    Ahaanaa Ahaanaa 13-15, F 1 Response Jun 23

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    My new polished nails the tips are pink sparkled
    Farmmaid Farmmaid 41-45, F 4 Responses Jun 22

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    Daimyan is 9 and our journey began at his birth. He would like to ask everyone for support on a new support group on facebook. Search LUNAR to find it. Thank you
    LunarDayDay LunarDayDay 36-40, M Jun 22

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F Jun 22

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    What do people think about a guy wearing acrylic nails
    Radzzski Radzzski 22-25, M Jun 22

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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    it's so sexy on a woman's toe/finger nails!
    SW59 SW59 22-25, M Jun 21

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    I am a boy but i love painting my nails I just like the feminine feel of them and especially how smooth they are. The coolest thing is getting my nails done in bright colors and...
    jackgrey789 jackgrey789 22-25, T 2 Responses Jun 21

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    I paint my nails orange the most
    Nya25 Nya25 22-25, F 1 Response Jun 21

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    I paint my nails orange the most.
    Nya25 Nya25 22-25, F 1 Response Jun 20

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    They are fake nails cuz my nails are so ugly lol. I love them I am getting more today :D
    Alexlovesmusic Alexlovesmusic 13-15, F 1 Response Jun 19

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    Asperger's Syndrome in high school was tough. I didn't have a lot of friends and I was alone a lot but still hung out with a few peers. I remember being in the vocal club and band...
    AspieGirl97 AspieGirl97 18-21, F 4 Responses Jun 18

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    Hi I am Penny and have CVS. I've had it now for 2 plus years and am having a hard time dealing with it. It is so difficult to deal with right now, my life is on hold. Does it...
    PHowland PHowland 51-55, F Jun 18

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    hi, i am kiran and i have poland syndrome pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest...
    kirankoundinya kirankoundinya 22-25, M Jun 17

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    I want to share a poem that makes me feel terrible for actually feeling the exact same way. My father claims to be sick. What kind of sickness prevents you from having a phone...
    MisterZanded MisterZanded 22-25, T Jun 17