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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    Related Experiences

    I have Asperger's syndrome and so I'm quite socially awkward. People just never take me seriously or think I'm a freak. I'm almost 17 now and I'm really worried that I will never...
    vivi9298 vivi9298 16-17, F 6 Responses Oct 6

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    12 months ago I got very serious pancreatitis caused by a vary rare hereditary condition that I have since found out I have called familial chylomicronemia syndrome or (FCS). (FCS...
    frog2000 frog2000 26-30, F Sep 27

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    ...and I like it. What a crazy thing to happen right as I'm falling asleep, and sometimes it's SO LOUD! Sometimes it's my name, of all things. If anyone reads this and doesn't know...
    incorporealist incorporealist 36-40, M 1 Response Oct 9

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    Asperger’s Syndrome From another planet to earth, I look around at all the people that pile on earth’s grounds. Questioning their social norms, studying their eye contact...
    kelseytoby1337 kelseytoby1337 16-17 4 Responses Oct 11

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    although they say I have lots of defects with language and speaking, i have been told its because of asperger's syndrome i am really good in maths physics and other subjects that...
    daniel147 daniel147 13-15, M 1 Response 1 day ago

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    Apparently I have high functioning asbergers but low functioning autism..??? Confused!
    CheeseBomb500 CheeseBomb500 16-17, M 1 Response Sep 26

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    My sister has recently started to have severe vomiting that last up to 3-4 days, for two months. It correlates with her period. This time it was so bad she had to go to the ER...
    MissNinaBee MissNinaBee 31-35, F Sep 26

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    The worse thing is the paralysis and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been...
    istajam istajam 36-40, F 2 Responses Sep 30

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    To be exact, this is the story. Doctors say I have symptoms of many but the closest one they could come up with is this because of me being born with no outer ears. Big neck. I...
    BigRalphie74 BigRalphie74 36-40, M 1 Response Oct 3

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    i have never heard of this disease
    mstud17 mstud17 22-25, F 1 Response Oct 4

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    And thanks to screw up all around, I've been without my medicine for the last several days, and have no idea when my refill will arrive. So, I'm feeling really antisocial right...
    OggggO OggggO 26-30, M 2 Responses Oct 6

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    I'm so over it! Getting constant cramps every day and sometimes it hurts so much I have to sit down and nearly cry. Tried going on the pill and it made the pain worse. I hardly...
    wannaplay122 wannaplay122 18-21, F 2 Responses Oct 9

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    I was diagnosed at 14 with PCOS and when the nurse told me, I just broke down and cried.. I semi expected to get it but I didn't want my fears to be true, my mum had it and a...
    BennetWitch BennetWitch 18-21, F 1 Response Oct 11

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    I haven't had a period in 14 months and it hurts so bad :(
    XxForeverBlueXx XxForeverBlueXx 18-21, F 6 days ago

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    I have RLS. I cannot just "stop moving". My legs twitch sometimes and sometimes, it just feels like I NEED to move. It's the most uncomfortable feeling I've ever had and it's...
    britteller britteller 18-21, F 1 Response 8 hrs ago

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    hello need urgent help on cauda equina i have l4 l5 disc central disc protusion from last two years but recently i have a lot of tingling in my testicle area and from last two...
    karansapra karansapra 31-35, M Oct 8

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    My Struggle I have an extended form of Gluten and Casein intolerance. Corn, wheat, dairy, barley, flax, oats, quinoa, eggs, grapes, and tomatoes all trigger allergic reactions in...
    Tucker66 Tucker66 16-17 Oct 14

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    I have a genetic collagen disorder, otherwise known as EDS. Not only do I have the hypermobility and classic types which cause fragile and stretchy body tissues, poor wound healing...
    KKookieMonster KKookieMonster 18-21, F 3 days ago

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    I will warn this is a very lengthy post. Most will not read this, some will stop midway, but the few who read it is the reason for posting this. This is about how my school...
    Darknessisgrowing Darknessisgrowing 18-21, M 2 Responses 6 hrs ago

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    I take good care of my toenails, yet they have the tendency to ingrow so very easily. I spent a lot of time on my feet at my last two jobs and that really contributed to it. DR...
    MollyPetal MollyPetal 41-45, T a week ago

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    Missing out on so much school baffled my parents. They did not know what was making me so sick until my diagnosis. Battling the pain and exhaustion has been difficult due to the...
    chlo3ann3 chlo3ann3 13-15, F 2 Responses Oct 8

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    I always wondered what was wrong with me, since I was quite young. I wondered why I was so different from all of the other kids my age and why everyone thought I was strange. I...
    CreativeSpark CreativeSpark 18-21, F Oct 13

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    It is a burden, I was picked on frequently at school and I found it difficult to make friends(besides those who also suffer from disabilities). I find this a barrier to finding...
    T3chmupp3t T3chmupp3t 18-21, M 1 Response Oct 15

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    Every doctors and psychologist says it even my teacher but I know it's bullshit cuz I go out like every week and I always talk to random people. I can sit on the train station and...
    breastmilklover99 breastmilklover99 70+, M 1 Response a week ago

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    It's hell. I can't sleep for hours
    xxalicerosexx xxalicerosexx 16-17, F 1 Response 6 days ago

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    My medicine finally arrived today. About damn time, I was a wreck…
    OggggO OggggO 26-30, M 1 Response 2 days ago

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    The thing that bothers me the most is that I get so obsessed with one topic or one person that it is impossible for me to talk about anything else. My friends say they are fine...
    vivi9298 vivi9298 16-17, F 2 Responses 1 day ago

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    I've been biting my nails since I can remember. Not even my thumb nails are a cm long, and most of my other nails are less than half a cm long. I used to want to stop, but I've...
    ShiveringGaze27 ShiveringGaze27 18-21, F 1 Response Oct 8

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    Although I was raised in the burbs, I've spent most of my adult life living in urban areas. I have always found weird humor in the irony of my living conditions. From the...
    Modiwolfshit Modiwolfshit 41-45, M 2 Responses Oct 2

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    I'm so scared my husband will leave me to have children. He wants children, loves them, idolises them. I think kids are cute but I'm much rather enjoying seeing, learning and...
    CorruptedAngel CorruptedAngel 22-25, F Oct 4

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    I am Janice, a 77 year old female and had GBS 25 years ago. I was at UMMC then rehab for 2 months. Over the years I felt better but had some residual stuff, but about 8 months ago...
    jlcaputi jlcaputi 70+, F 1 Response Oct 3

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    I started painting my nails mono color however I have wanted to try French Nails for some time now. Today I went out with a good friend and we got our nails done together. She got...
    paula3198 paula3198 46-50, F 1 Response Oct 12

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    i would love to find a nail salon in my town that will give me a manicure including painting my nails with red or pink nail polish.
    GirlyAndrea1987 GirlyAndrea1987 26-30, M 2 Responses Oct 15

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    October 8 2014 was my last normal day . October 9th I started to feel tingling and numbness in my hands and feet. I felt weakness in my knees and fumbled things with my hands. So...
    aimeelou22 aimeelou22 36-40 2 days ago

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    My girlfriend has been painting my nails since an accident that I had back a couple of months ago. She has had my nails every shade she has… but black has been my favorite and I...
    bluefireball4949 bluefireball4949 31-35, M 1 Response Oct 15

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    Oh, you fancy, huh? Oh, you fancy, huh? Oh, you fancy, huh? Oh, you fancy, huh? Nail done, hair done, everything did Nail done, hair done, everything did Oh, you fancy, huh? Oh...
    LoneLegend LoneLegend 13-15, M 1 Response 4 days ago

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    i just love painting my nails, especially a nice red or hot pink nail polish, so girly.
    GirlyAndrea1987 GirlyAndrea1987 26-30, M 1 Response Sep 27

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    I like painting cute designs on my nails. I wish I had more stuff to do my nails with... sometimes I wanna be girly, other times I'm like, 'nah'.
    YuriXWolfram86 YuriXWolfram86 18-21, F Oct 11

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    I'm a straight guy, I am thinking of getting myself some nice long leopard print nails! I never had false nails, but I am so curious what it would be like. I am a bit hesitant...
    girlyman77 girlyman77 31-35, M 4 days ago

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    My twin brother has Down syndrome, along with many other problems, he can't talk clear, only we can understand what he's saying, I've heard people call him ugly, fat.. Short...
    Bflyboo14 Bflyboo14 13-15, F 2 Responses Sep 24

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    When I was 12 years old I started having extreme headaches. My mom took me to the neurologist and they said I would grow out of them and didn't take my pain seriously. Later, it...
    WynonnaMarye WynonnaMarye 18-21, F Sep 25

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    My mother was diagnosed with Guillian Barre Syndrome this past Aug. Since then she has lost all function from the neck down, including her mouth. She has been on a ventilator and...
    anthonykoryn anthonykoryn 36-40, F Oct 1

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