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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    Related Experiences

    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

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    So about three weeks ago I got this odd pain that went from my neck into my left scapula area. I went to the chiropractor and had an adjustment. Felt somewhat better for just a...
    ornursetab ornursetab 41-45, F Sep 21

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    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 4 Responses Sep 14

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    Asperger's Syndrome has caused me many problems regarding social behavior (what i should, and shouldn't do). I screwed up today, and am really upset about it. Hopefully you guys...
    TyphlosionWolf TyphlosionWolf 18-21, M 1 Response Sep 20

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    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response Sep 17

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    12 months ago I got very serious pancreatitis caused by a vary rare hereditary condition that I have since found out I have called familial chylomicronemia syndrome or (FCS). (FCS...
    frog2000 frog2000 26-30, F 4 days ago

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    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

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    I don't have episodes as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222 16-17, F Sep 9

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    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response Sep 11

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    People judge me a lot when they find out that I have Asperger's.
    AveryWeinstein AveryWeinstein 16-17, F Sep 21

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    I think I have Zollinger because it now takes me a LOT of Rabeprazole to suppress GERD symptoms
    RegHandford RegHandford 66-70, M 1 Response Sep 22

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    Apparently I have high functioning asbergers but low functioning autism..??? Confused!
    CheeseBomb500 CheeseBomb500 16-17, M 1 Response 5 days ago

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    The worse thing is the paralysis and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been...
    istajam istajam 36-40, F 2 Responses 1 day ago

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    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
    Platinumryan Platinumryan 16-17 Sep 4

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    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

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    One of my more persistent tics is groping. If i notice, feel(like in a hug or brushing against me), or remember what they feel like, i have to grab a woman's breasts. I don't think...
    thetalkingmushroom thetalkingmushroom 18-21, M Sep 11

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    I have pcos and I'm SO upset about it. I'm 20 years old & I ready wanna have kids cause I'm scared it will take me forever to get pregnant anyways! I'm not overweight but I'm so...
    lovebarbiex0 lovebarbiex0 18-21, F 1 Response Sep 22

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    My sister has recently started to have severe vomiting that last up to 3-4 days, for two months. It correlates with her period. This time it was so bad she had to go to the ER...
    MissNinaBee MissNinaBee 31-35, F 5 days ago

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    Uncoordinated Somehow, I'm reluctant to get hit with a ball, bat, shoe, kid, or some out of the blue object when I walk into a school gym. Now every time I walk anywhere near...
    kelseytoby1337 kelseytoby1337 16-17 2 Responses Sep 2

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    Another terrible night. Why does it take nearly an hour for the requip and clonzepam to kick in? I will take them earlier, tonight, but they make me loopy. I tried pickle juice...
    Deedle623 Deedle623 51-55, F 3 Responses Sep 6

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    So, not many people know of this and I think it might be a good idea to raise some awerness. Albright is a generic defect or mutation that basically makes my bones weak. I get 1...
    shadow2233 shadow2233 18-21, M 2 Responses Sep 15

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    Its really annoying with the stupid spasms and twitches, and sometimes i can say bad stuff and it gets me in a lot of trouble :(
    RazorToMySkin RazorToMySkin 16-17, M 1 Response Sep 17

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    And today has been the most miserable day. I've never had it throughout the day before only at night, but the three hour drive back home I felt it the whole time. Trying a new...
    amcgarity amcgarity 22-25 Sep 21

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    The most frustrating thing is knowing that you know others don't. Followed by knowing they understand what you don't. Somedays I tire of faking emotion to be kind. I just wish...
    silkyavi silkyavi 31-35, M 1 Response Sep 22

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    My mother was diagnosed with Guillian Barre Syndrome this past Aug. Since then she has lost all function from the neck down, including her mouth. She has been on a ventilator and...
    anthonykoryn anthonykoryn 36-40, F 10 hrs ago

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    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
    Pandasaurusrex Pandasaurusrex 18-21 1 Response Sep 2

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    I call my self an oddity. There are so many strange things about me i keep most of them hidden. Like my Pica. I told my mom once but we are mexican (she doesn't belive in Pica...
    mashuthanna mashuthanna 22-25, F 1 Response Sep 9

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    My story starts with an accident I was involved in. About a month and a half ago I was in a car accident for work. I was pulling out of the gas station near the off ramp of the...
    bluefireball4949 bluefireball4949 31-35, M 1 Response Sep 11

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    a few years ago a friend of mine used to use me as her practice dummy for her nail tech course, i didnt really like it at first but then she gave me 2cm french acrylic nails and...
    Curio95 Curio95 18-21, M 2 Responses Sep 16

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    Okay, I'm a dude. A gay dude. And I do hair. Haha. But I'm so masculine acting that people can't even tell I'm gay. Not purposely... That's just me. However... I really wanna...
    floatingcannonball floatingcannonball 26-30, M 2 Responses Sep 18

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    I love painting my toe nails and finger nails both. I love a bright red color for my nails. It will match my attire I am wearing that day, if I happen to go out.
    nudistwifeandmother nudistwifeandmother 41-45, F Sep 19

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    I just now found out that this was an actual problem with an actual name....and I am relieved that I'm not the only one. I try hard to hide it and get super self conscious about my...
    lerapp lerapp 22-25, F 1 Response Sep 7

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    In about to paint my nails. I love nail polish so much and I paint my nails all the time(: But I have very little patience so they usually don't dry and get screwed up and I need...
    biebbrauhll biebbrauhll 13-15, F 5 Responses Sep 8

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    Today I had a great experience. I went to a local nail spa and had a pedicure. My toe nails look fantastic. I got dressed on a long skirt, lace panties, a coral colored bra, and...
    RandiHill RandiHill 51-55, M 2 Responses Sep 9

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    I have a huge stash of nail polish, I love painting my nails, and I think that if my nails are not painted everything else is ugly.
    DildoSlut DildoSlut 22-25, F 1 Response Sep 22

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    my favorite nail polish.what is your favorite nail polish?
    1golenaz 1golenaz 18-21, F Sep 9

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    which colour nails should i wear next?edit: my new nails
    Curio95 Curio95 18-21, M 1 Response Sep 17

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    For the past three years, I've kept my toe nails painted pretty regularly. Today I did something a bit more bold. I left one of my finger nails painted from the weekend. I left...
    JosetteLaRoc JosetteLaRoc 36-40 1 Response Sep 22

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    i just love painting my nails, especially a nice red or hot pink nail polish, so girly.
    girlyAndrea1987 girlyAndrea1987 26-30, M 1 Response 4 days ago

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    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M 1 Response Sep 11

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    ive recently bought a home gel nail kit but my nails always come out lumpy and dont stay on for more than a week. has anyone have the same problem or have any tips for better...
    Curio95 Curio95 18-21, M Sep 23

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    My twin brother has Down syndrome, along with many other problems, he can't talk clear, only we can understand what he's saying, I've heard people call him ugly, fat.. Short...
    Bflyboo14 Bflyboo14 13-15, F 2 Responses a week ago

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