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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    Related Experiences

    Ok so this is important for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to...
    Invisibleninja12 Invisibleninja12 18-21, F 1 Response Jan 14

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    I'm a 21 year old female with possible hypermobility syndrome/EDS Type 3 or fibromyalgia. My mum has hypermobile joints but hasn't been diagnosed with HMS/EDS but has been...
    Kari9349 Kari9349 18-21, F Jan 1

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    A new information website has been developed for stiff-person syndrome to educate, empower, and advocate. www.thetinman.org
    TheTinManOrg TheTinManOrg 51-55 Jan 2

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    My partner was diagnosed with Stiff Person Syndrome in July 2014. Due to my own ignorance about the illness and my own selfish needs of refusing to accept her sudden disability, i...
    GeekyGirl82 GeekyGirl82 31-35, F Jan 12

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    Hello there! I'm currently making some researches about Maladaptive Daydreaming Disorder. A disorder in which the person uses daydreaming as a defense mechanisme to escape from...
    RichardAndon RichardAndon 22-25, M 6 Responses Jan 20

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    Can someone please tell me they're symptoms of polycistic ovarian syndrome x
    iwantababy111 iwantababy111 16-17, F Jan 21

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    I hate that I am incompetent. Alright, so basically, my mom expects me to be able to do all kinds of things without being taught, because she thinks they're obvious. Well, they...
    sethdots sethdots 18-21, T 1 Response Dec 29, 2014

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    I have it. My favorite symptom is that people with it prefer nonfiction over fiction which I do.
    bobherry bobherry 16-17, M 1 Response Jan 6

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    Having more problems with my right bicept, I guess I'll talk to my doctor about it, Still under stress from an unsuccessful consult about my neck injury, Doctors seem to judge me...
    JEM404 JEM404 41-45, M Jan 17

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    I had my diagnosis at 19, I have several other medical problems which have resulted in very limited mobility. I have good bouts where I can move much more easily but I have 'flare...
    noonespecial44 noonespecial44 26-30, F Jan 19

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    Post diagnosis things went sour, my carefully constructed world started collapsing around me. Everything I had done to cope with a condition I didn't realise I had became...
    Teab Teab 41-45, M Jan 20

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    When you have this it's easy to become absolutely obsessed with things, and that's not easy to deal with, even when I became devastated after finishing a book series that there are...
    Dakurti99 Dakurti99 13-15, M 3 days ago

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    how do people react when you tell them you have aspergers? I am always so nervous to tell people!
    kristykaz121 kristykaz121 18-21, F 8 Responses 1 day ago

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    Ugh. It's nearly midnight and my legs are still twitching and jumping. I've taken the meds, done all my stretches, taken aspirin, rolled on the foam roller. I'm so sleepy. It...
    Deedle623 Deedle623 51-55, F 3 Responses 11 hrs ago

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    It's all a question of precision .. F84.5 but that was then .... So we notice detail .. I walk into a room and notice a paper clip on the floor .. What is he doing ???? Hunter...
    TheRebelFaction TheRebelFaction 51-55, M 1 Response Dec 29, 2014

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    Got in trouble at school so many times because of it. Its ruining my life to be honest.
    idfwuu idfwuu 13-15, M 4 Responses Jan 1

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    How do you guys manage CFS? Seems like I can't live a normal life like I used to.
    awesomesauce2 awesomesauce2 22-25, M 4 Responses Jan 8

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    This is an oddly specific group
    Gabbi97 Gabbi97 18-21, F 2 Responses Jan 12

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    Which explains why everybody hates me. :D
    Symbiopsychotaxiplasm Symbiopsychotaxiplasm 26-30, F 4 Responses Jan 16

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    Found a very good read! Check it out http://www.drmyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure#Explanation_of_the_Fatigue_Problems_in_CFS_Patients
    awesomesauce2 awesomesauce2 22-25, M Jan 18

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    Asperger's symdrome is something thats gives me a lot and takes a lot too, I can recite 100 digits of pi easily, dolve a rubix cube in 1 min 13 seconds, and tell you anything about...
    Kringle95 Kringle95 18-21, F 2 Responses Jan 20

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    I always wanted to meet someone with aspergers like me wish I knew someone near :(
    kittyanthony kittyanthony 22-25, M 3 Responses Jan 20

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    I have Asperger's Syndrome and am depressive as well, I would love new friends
    deanratzloff deanratzloff 13-15 1 Response 5 days ago

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    What is your favourite colour to paint your nails?
    Germanic Germanic 18-21, T 13 Responses 9 hrs ago

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    Hi Everyone, I just wanted to share my story with everyone! My story is a lot similar to a lot of yours out there. But I just found out that I have Swyer Syndrome. It was one of...
    kaylababy95 kaylababy95 18-21, F 1 Response Jan 13

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    Some Products Bring Back a Flood of Memories!!!I was 13 and the tv add for Lee Press On Nails facinated me. I thought they were a brilliant invention and I wanted the pink ones and...
    LadyGypsy LadyGypsy 36-40, F Jan 1

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    Hello, Im a 15 year old boy and live in Finland, since i havent told anyone ever about my duane's syndrome type 1 i tought it would be a good idea to share my story here. I was...
    thundercoolmint thundercoolmint 13-15, M Jan 11

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    I do my own nails to distract me from my troubles. Some people say I'm really good at doing nails and that i should start doing peoples nails for money. I feel like there would be...
    Knightt15 Knightt15 18-21, F Dec 29, 2014

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    The first time i remember doing something O.C.D was when i was about 6 or 7 and i still have this issue i would pkay with my nails 24/7 i felt like air was getting under them so i...
    Dakotaraexox Dakotaraexox 13-15, F Jan 7

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    I didn't like long nails when I was young so I would always bite them off. Over the years it became an bad habit. I would always bite them when I was bored or nervous. Even my...
    Cutiepeachpie Cutiepeachpie 18-21, F Dec 29, 2014

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    I was lighting one of my candles and felt the heat on my nail but didn't move my finger because i was determinded to light that bad boy and my finger caught on fire lol im fine but...
    PurpleLove18 PurpleLove18 16-17, F Jan 5

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    Hate unclipped nails and just nails growing to they are white. Hate it!
    1lonelydaisy 1lonelydaisy 41-45 Jan 20

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    It's coming up to 2 years since it was suggested that I have Turner Syndrome... and one thing that I'm really struggling with is gender identity. Obviously, I have all the girly...
    LoneSouls LoneSouls 26-30, F Dec 31, 2014

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    My little boy (4years old) was diagnosed with Jacobs syndrome yesterday. Anyone else out there with experience of this chromosome disorder?
    rqs1983 rqs1983 31-35, F Jan 5

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    i am 26 and i have pica...am addicted to the smell of sand,cement,chalk,car fumes and dirt.i always enjoy sweeping dusty areas because of the smell.I've been doing it since...
    Efyamansa Efyamansa 26-30, F Jan 8

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    Hi there! My son is 3 months old and he has wpw syndrome. Since he was born he had SVPT two times in 2months...and when the doctors changed the therapy to Amiodarone he is stable...
    snegulka123 snegulka123 26-30, F 1 Response Jan 9

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    I respect the sanctity of marriage. honor the vows and the ever after.It never occurred to me that my marriage will go to the drain. We had great sex. I thought it was the core of...
    4BlackForest 4BlackForest 36-40, F 2 Responses Jan 14

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    Hi, my name is Sally. I am 45 years old and all through childhood was simply told I just had an eye condition. The doctors never knew how to diagnose it or what to call it so it is...
    ssimpson69 ssimpson69 41-45, F 4 days ago

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    Well, I'm trying but I'm having so much anxiety for it. The good news is that my nails havent been so long since years.
    Mikaela1920 Mikaela1920 16-17 Dec 29, 2014

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    Had my nails done to suit the Christmas vibe! :)
    nocturnalanon99 nocturnalanon99 13-15, F Dec 30, 2014

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