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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    Related Experiences

    I learned only a few years ago that I have Asperger's Syndrome and am clumsy as well as frequently speak very wierdly sometimes, and am socially awkward. I am also narrow minded in...
    Fenrirfenn Fenrirfenn 18-21, M 4 Responses Jul 3

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    I have Russell silver syndrome. It has given me health problems,I am way under the average weight for a normal 15yr old, I am 4'9 and will no longer grow.
    EvaJL EvaJL 13-15, F Jul 13

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    I've noticed that this topic is followed by quite a few parents of children with RSS, as well as young persons who are looking for others who can relate to them, so I thought I...
    jahein137 jahein137 18-21, F 3 Responses Jun 23

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    I am going to a geneticist on Thursday to be studied and diagnosed. All of my joints bend further than necessary. The worst pain of my life is when my SI joint and my C-1 and C-2...
    Soultryst Soultryst 26-30, F 1 Response Jun 23

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    OK! I don't believe then this not more out here for women with Ovarian Remnant Syndrome. I was told 12 yrs ago I have ORS and have had 5 surgeries to take the remnants out. I still...
    Julieban Julieban 46-50, F 1 Response Jun 25

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    23+ years ago I was diagnosed with MS, even though I never had a positive test. No blood test, MRI, spinal tap,etc was ever positive for MS. My symptoms were never an exact match...
    bonsaigirl bonsaigirl 56-60, F Jun 29

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    **** I get when I tell someone I have aspergers "But you’re nothing like ____!"
Sometimes I’ll tell someone I have aspergers and they’ll just happen to have a friend or...
    nikkianni nikkianni 13-15, F 4 Responses Jun 29

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    I feel like my universe is just so out of alignment.....everything i have known for so long is just not there anymore :0(
    itswonder4all itswonder4all 41-45, F 2 Responses Jun 30

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    Hello im Amiee i'm 17 going on 18 on July 20th you may have remembered my mothers post Cheryl about my condition. I am still having the hip pain in both my hips. I had the MRI of...
    KiraAyita KiraAyita 16-17, F Jun 30

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    It has been seven weeks since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day...
    ksrooney ksrooney 56-60, F Jul 1

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    I was diagnosed with TTS when I was 24, but my symptoms really started when I was about 21. I am currently 29. It always felt like I was walking barefoot on gravel, no matter what...
    happymegwv happymegwv 26-30, F Jul 8

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    It's the reason 95% of everyone I have ever known has eventually pushed me away. I'm not trying to sound like a pity party but that's been my real world experience. I'm lonely...
    KusanagiShiro KusanagiShiro 26-30, M 4 Responses Jul 10

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    I have EDS and chronic joint pain. I also have Tendonitis. I wonder if my Tendonitis has anything to do with my EDS.
    elenanicole elenanicole 16-17, F Jul 11

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    I was diagnosed with Asperger's when I was 16, because the school nurse recommended that I get tested for AS. My teachers thought I was [pause] different. When somebody says you...
    RazorKenny RazorKenny 26-30, M 1 Response Jul 13

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    I think I have Asperger's. I have been diagnosed with many disorders over the years, depression, anxiety, ocd, ptsd, and we have touched on Asperger's, but never has it been a...
    13thgen 13thgen 36-40, M 2 Responses 6 days ago

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    I was just diagnosed today :( I'm scared!
    prettybum prettybum 18-21, F 5 Responses Jun 23

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    I just got my diagnosis not sure what to do now
    prettybum prettybum 18-21, F 5 Responses Jun 24

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    Something I am having increasing difficulty with at the moment is that nobody knows exactly how difficult things are for me. This includes myself. I don't know how easy...
    Teab Teab 41-45, M 1 Response Jun 29

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    My autism ruined most of my life. I wish I could relive as an autistic anthro fox
    Miserablechildhood Miserablechildhood 13-15, M 4 Responses Jun 29

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    I was just diagnosed this week. Now what?
    VBLOVE1106 VBLOVE1106 22-25, F 4 Responses Jul 5

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    my parents didn't tell me until i was eleven years old, so i found it a big shock. i spent my whole life thinking i was your usual normal-person-without-any-major-challenges...
    hans13 hans13 51-55, F Jul 5

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    NO ONE CARES ABOUT ME !! I WISH MY YOUNGER BROTHER WAS NEVER BORN THEN I WOULD NEVER BE SAD AND CRYING RIGHT NOW😭😭😫😭😭😭😫😢
    bela5562 bela5562 13-15, F 2 Responses Jul 6

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    Ugh. Joint pain is so bad when it rains. I just want to wrap up in a huge heating pad.
    ImBatmanNow ImBatmanNow 51-55, M 1 Response Jul 7

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    Sometimes I wonder what my family thinks with me having Asperger's or how long they've been keeping it from me. When I found out in February, my mom confessed to knowing I had it...
    kelseytoby kelseytoby 16-17 3 Responses Jul 8

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    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M Jun 29

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    I was at my sisters, we have always been closse. We were shopping at the mall and she decided to have nails done so we found a nail shop and she told the lady what she wanted and...
    pmgurl pmgurl 51-55 1 day ago

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    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M 1 Response Jun 29

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    I used to think I was adopted. I have 5 siblings, and they each have several thick photo albums from when they were kids. I have maybe two photos from when I was a kid, but no baby...
    Solfeggio Solfeggio 36-40, F 1 Response Jun 24

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    I have Oral Allergy Syndrome
    n0ceur n0ceur 18-21, F Jul 7

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    I have Oral Allergy Syndrome. For those who aren't aware of what it is; it basically means that I can't eat raw fruits or vegetables, or else I'll succumb to an itchy mouth/throat...
    n0ceur n0ceur 18-21, F Jul 7

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    I want to point out that I'm not saying or posting this for attention. I genuinely feel ugly. I am very fat, I have short hair and honestly people just don't find that attractive...
    JudeLeDude JudeLeDude 22-25, M 1 Response 3 hrs ago

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    I just realized that I still have pica. I thought I was over it a long time ago, back in 5th grade. I thought I was done with the grass, the dirt, the sticks, the hair-sucking...
    Boo37 Boo37 13-15, F 1 Response Jun 30

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    Hi, im Hollie im 14 and I've had Duane syndrome since I was born. Because of my Duane syndrome it means I can't move my left eye at all to the left. This really annoys me because...
    HMace HMace 13-15, F 1 Response Jun 30

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    I stopped bitting my nails 2 years ago its a stress habit i used to do it like all the time in school watching a scary movie before a test ... But seeing my friends with long...
    karenkh karenkh 18-21, F 2 Responses Jun 25

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    Hello! I'm Kristina, I'm 18 years old. In February this year I was diagnosed Swyer syndrome. Although I'm trying to get used to require me to help people who know I'm going through...
    kika96 kika96 18-21, F 1 Response Jul 8

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    For about a year I've been considering divorcing my wife of nearly 8 years. Our relationship has never been great. We are great friends, but horrible lovers/spouses. We do things...
    randomtiger45 randomtiger45 31-35, M 1 Response Jul 1

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    My daughter is a little over one year old. ( I don't like talking in months)She has Down Syndrome. I don't treat her differently from my other kids. Her needs are a little...
    Kryzta Kryzta 26-30, F 1 Response Jul 8

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    My husband has Asperger's Syndrome. I am having a difficult time with our marriage. We have been married two years. He is a good provider and has good traits, such as being...
    Solfeggio Solfeggio 36-40, F 4 Responses Jul 11

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    Today my wife went out a nd I thought I should try some nail varnish on my toes. So I went to my wife's chest of draws where she keeps all her nail varnish. I had to choose a...
    babyannie57 babyannie57 56-60, M 1 Response Jun 29

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    I have psoriasis on my hands, and it is beginning to spread to my nails. It isn't painful on my nails (but bloody hell does it hurt when it flares up on my skin.) It just looks...
    lattemaker lattemaker 22-25, F 1 Response Jul 1

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    Nail art all the way!! It's so fun and artistic!! I love it,and I work on natural nail,not doing gel.
    4biandu 4biandu 26-30, F 1 Response Jul 4

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    not sure it counts as painted nails but I love wearing glue on nails mostly French tip but others as well
    jamie172 jamie172 46-50, T 2 Responses Jul 6

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