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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    Related Experiences

    I have Asperger's Syndrome which is a high functioning form of autism. I got diagnosed at 7, but my parents told me I was BORN with it. I guess I was born abnormal after all. I...
    maialove maialove 22-25, F 2 Responses 3 days ago

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M 6 days ago

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    In the past 64 years since I contracted polio, nothing has been discovered to cure the later effects of polio, but Gabapentin for nerve pain (300 mg.) really helps me sleep at...
    julesgarden julesgarden 61-65 Apr 29

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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F Apr 30

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response May 1

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 8 Responses May 11

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    I don't understand eye contact or facial expression I remember Making friends with someone once we talked for a while and eventually the topic somehow went into disability's, When...
    Autumnflowers Autumnflowers 18-21, F 8 Responses May 13

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    I often use my imagination in a way to create or recreate the reality to better understand some situations or to comfort my insecurities when needed. Sometimes I find myself into...
    RichardAndon RichardAndon 22-25, M May 16

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    Nowadays I blend in with society pretty well, but in kinder garden my symptoms were showing a lot and I got humiliated over and over by the sixth graders telling me "you should do...
    ortwin ortwin 16-17, M 1 Response May 17

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    It's the mild variant which just means people don't realize that I actually have a problem and thus hate me. It causes a lot of problems including with social interaction, and...
    omutsukimi omutsukimi 18-21, M 3 Responses May 19

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    Hi this is my first time on here, just cane on to get some peoples real experiences. I'm sick of reading threw endless pages of things I don't understand with all the long words...
    pinklady2989 pinklady2989 22-25, F 4 days ago

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    I had a terrible experience the day before i had emergency surgery...i woke up one morning not being able to get out of bed because of the pain so i called an ambulance was taken...
    jszymecki1234 jszymecki1234 31-35, F 3 days ago

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    Hi I wanted to post that I am with a company in the US for all natural products for various medical conditions, one product that helps inflammatory issues, another product that...
    carolgem carolgem 46-50, F 2 days ago

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    Hi wanted to share my facebook page www.facebook.com/healthyproductswithcarol where I try to keep up often with testimonials from past users to show how our products have helped...
    carolgem carolgem 46-50, F 1 day ago

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    Live near NYC, does anyone know a hospital that specializes in PTS? Two rotator cuff surgeries on left shoulder, 15 months of PT and now have PTS. In pain frequently and wake up...
    satsmo satsmo 46-50, M 9 hrs ago

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F May 1

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    When I was a kid I never felt the same as any of my peers. They were always too loud, too rude, or too confusing for me to want to interact with. Most would bully me for my...
    Wandering2 Wandering2 18-21, F 1 Response May 4

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    my Dr is trying to eliminate stuff before he diagnosis me with cfs. he recently did a mono test and drug test (which was my psychiatrist idea). I wonder what he'll try next...
    kareenmarie kareenmarie 36-40, F 1 Response May 4

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    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
    teeteebaby teeteebaby 31-35, F May 12

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    I started with pain in right shoulder blade on April 2, 2015 and diagnosed on May 15, 2015 with PTS. The pain is severe on the right arm, elbow, forearm, hand and fingers...
    hankvankat hankvankat 56-60, M 1 Response May 18

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    I'm a bit hesitant to add this to my experiences as I don't know for sure if I suffer from it, but due to my habit of checking the internet whenever something is not right...
    RealLifePerson RealLifePerson 26-30, M 1 Response a week ago

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    Hi, I've had CFS for many years. I go out when I'm feeling ok but on the whole I'd prefer to be able to speak to people online. I'm happy and upbeat. CFS doesn't mean all we...
    LizardW13 LizardW13 46-50, F 2 days ago

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    Cure to PTS Go to GNC and buy viamin b, fish oil, lecithin, and arginine supplements. Get the tablets. Take a dose of two tablets of each every morning and every night. Once the...
    ljade18 ljade18 26-30, M 1 day ago

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    It's more of a tourette's of the mind for me. If I'm around certain people, all these unwanted thoughts come to my mind but I never actually vocalize them.
    zarpanzur zarpanzur 26-30, M 12 hrs ago

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    I constantly have dreams that I have wings on my back and I fly all over the place. When I wake up I feep like I have phantom limb syndrome because I can still feel them even...
    QuanMarquis QuanMarquis 22-25, M 1 Response May 17

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    I'm being such a **** baby right now.. Wahh everything is annoying life is hard wahhh Ah but I should probably get this checked out before school starts. The whole point of waiting...
    junedew junedew 18-21, F 10 hrs ago

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    Ok so I read my palms for fun but basically I have really weird palms ...because if u can see my head and heart lines are connected...I just have one line instead of 2... I looked...
    ERMAHGERD1 ERMAHGERD1 22-25, F 1 Response May 10

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    I suck at sleeping because all I do is stress about big things like a holiday coming up or money or alitlle thing like stopping to bite my nails or what that person said to me...
    ALW1992 ALW1992 22-25, F 12 mins ago

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    I am so glad I stumbled on this category of posts, because reading of other people's similar experiences is somehow helpful to me, although I'm sorry for all of your troubles. I...
    2323Anonymous 2323Anonymous 51-55, F May 11

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    (I actually don't "have" it anymore, as I'd be well-over dead.) I had serotonin syndrome from 2011-2013. I confused it with mania, and I had never had a seizure before, so I didn...
    grindhound grindhound 22-25, T May 12

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    My girlfriend likes to paint her nails and I'll admit that I love the colors she chooses. One day we were watching tv and she put her hand over my hand to pretend that her nails...
    Badalala Badalala 18-21, M 5 days ago

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    i love my long strong nails now i did shorten them but im giving them a little break and then letting them grow again, but one thing that does get to me is that i cant have colored...
    minecraft400 minecraft400 26-30, F May 17

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    I'm 13 and have known that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are...
    Incorrect13 Incorrect13 13-15, F 1 Response May 19

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    I invite you all to come over to my Poland Syndrome Suppport (USA) Facebook page, this is a closed group and we are very open and willing to lend advise.
    Gene47 Gene47 46-50, M May 1