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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    Related Experiences

    I have Kleine Levin Syndrome, but I prefer calling it the sleeping beauty syndrome, it makes me more comfortable. I live in a very small town where no one knows about this...
    briannanicolex briannanicolex 18-21, F Mar 13

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    not me but my youngest son. we adopted him and his birth parents were drug and alcohol addicted. I am only just learning about this syndrome and the problems that my son will have...
    RobertaSunset RobertaSunset 36-40, F 8 hrs ago

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    All through my short life I have experienced the troubles of being an outcast, being told to simply "get involved" but that's not at all easy. Well not for me anyway. I can do...
    thedimone thedimone 13-15, F 7 hrs ago

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    I was known as the "Weirdo" during school. I have never had any real friends in my whole life until freshman year. Kids never wanted to play with me and called me "stupid" and...
    lollipopchick lollipopchick 22-25, F 7 Responses Mar 10

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    Hi my name is Edward, I was diagnosed with Russell Silver Syndrome when I was every young. I'm 18 now and about to go off to college. My whole life I have known about my...
    EdwardLayman EdwardLayman 18-21, M Mar 17

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    I don't know if because of the other medications I HAVE to take or what but I use Restasis every day twice a day like the frickin commercial says. I also take Fish Oil and...
    steverick steverick 56-60, M 1 Response Mar 3

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    Not sure what to think, 20 years old, for almost two years, I will wake up in the early hours with this intense pain, sweating, and know that I need to get to the toilet. I will...
    Ashlearyan Ashlearyan 18-21, F Mar 7

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    I'm seeing a specialist soon as they suspect i have ehlers-danlos hypermobility type. I just wondered if everyone who has it has the stretchy skin as i only have it mildly on my...
    bloodandfire91 bloodandfire91 22-25, F Mar 18

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    and I was wondering how else did? What are some tics you have and how do you manage them?
    zodiac1888 zodiac1888 18-21, M 6 days ago

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    When I was a kid I basically thought I was an alien because I felt so different the first language i learned was german but i was going to school with children whose mother...
    loafemon1 loafemon1 18-21, F 2 Responses 2 days ago

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    I first noticed this when I was sitting with my knees bent a lot and the pain was really bad. I spoke to my GP and she referred me to a physio. I didn't see her for long as she...
    LinkinParkMuse LinkinParkMuse 26-30, F 18 hrs ago

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    anyone here from the Uk who has it? finding the nhs not that helpful ty
    mysmugcat mysmugcat 41-45, F 8 hrs ago

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    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 1 Response Feb 28

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    Pues aquí estoy, me acaban de diagnosticar esto, y fue como una gran patada... llevo ya mucho tiempo con cosas: depresión, crónica, cansancio,fatiga, herpes zozter, problemas en...
    AleCogh AleCogh 51-55, F Mar 10

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    People say "oh your lucky, I wish I could stay at home and not work" and I just want to slap them. Id give anything to be able to work again. Yes I'm home but I can't even help...
    Besillybeyou Besillybeyou 26-30, F 2 Responses Mar 17

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    This is true, one thing about it is an immense obsession with limited things, I was diagnosed a LONG time ago, most likely after preschool. My obsession is mental disorders, Two...
    deanratzloff deanratzloff 13-15 2 Responses a week ago

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    I have polycystic ovary syndrome. It mean my ovaries produce little and irregular eggs. This also means I miscarry, a lot. I’ve lost 7 babies and I am 21. You want to know why I...
    dakota4oneday dakota4oneday 18-21, F 5 Responses 4 days ago

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    My cousin, who is a doctor, talked to me a few days ago about my constant tiredness. The thing is I go to bed before midnight, I don't even remember when was the last time I made...
    delusi0nal delusi0nal 18-21, F 1 day ago

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    I am having a lot of trouble managing my aspergers on my own. I just moved out of a tight and strict home. I started to get off schedule my junior year before I knew about my...
    Cosimagibbs Cosimagibbs 18-21, F 30 mins ago

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    To my opinion long nails are one of the sexiest thing a woman can have. Not too long but about half an inch beyond her finger tips. This makes her hand so delicate so graceful that...
    Danairis Danairis 46-50, T 1 Response Mar 13

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    I've been wearing nail polish on and off for many years now (not around people i know though) and its been a very long time since anyone has made a comment or anything short of a...
    JamieRG JamieRG 26-30, M Mar 5

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    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
    Life1sinteresting Life1sinteresting 18-21, M 2 Responses Feb 28

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    Don't give up; there is hope. I'm 19 and when I was 16, I got my first symptoms of rumination syndrome. Like a lot of others, I thought it was a 24 hour sick bug but it just...
    alexxblanch alexxblanch 18-21, F Mar 4

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    Nail'd It - i love painting my nails. i often paint depending on my mood. i like to try new designs and patterns. i kept it simple today because i watched a movie while painting in...
    snelletrail snelletrail 26-30, F 4 Responses Mar 11

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    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 3 Responses Feb 27

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    just wondering about others experiences with POTS syndrome. I have lost all strength in my legs and im in a nursing home. Therapist says ill be in a wheelchair for a month. was in...
    Jzimo Jzimo 22-25, M Mar 1

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    Pretty much self explanatory. Additional info for the clueless: http://www.urbandictionary.com/define.php?term=White+Knight+Syndrome
    aberrations aberrations 22-25, M Mar 1

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    i first found out i have turner syndrome when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults...
    Atale Atale 18-21, F Mar 4

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    As a 16 year old girl, it's been a struggle to be a girl with polands syndrome, but luckily have had a great support system (both family and friends). Recently I have gotten my...
    hp6688 hp6688 18-21, F 1 Response Mar 7

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    Husband has Aspergers, delusional worthlessness syndrome, anxiety, and major depression disorder. Any suggestions?
    enoughrollercoaster enoughrollercoaster 41-45, F 3 Responses Mar 10

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    I have Poland syndrome since I was born. I'm missing my right pec. I Struggled though school and when I left I sighed strait up for the army. I have found out that it is much...
    benheggarty benheggarty 16-17, M Mar 15

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    I strongly suspect that I have 47,XXY Kleinfelter Syndrome. I was diagnosed with Hypogonadism two weeks ago. I'm 38. Previously I thought my issues were solely due to varicoceles...
    mjxxy mjxxy 36-40, M Mar 15

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    I got diagnosed with Asperger Syndrome in grade 7.
    SithLordofCanada97 SithLordofCanada97 16-17, M Mar 18

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    I am 13 years old. I have been sick for around 10 months. It started as what appeared to be a stomach bug but has continued for months and months. They removed my gallbladder and...
    deleted deleted 26-30 3 days ago

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    I am 31 years old female and was diagnosed Guillain-Barré syndrome. I felt tingling weakness in my right leg and in few hours it started spreading to lower limbs and I realised...
    amishah154 amishah154 31-35, F 3 days ago

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    When I get my hair and nails done I be thinking I'm just the prettiest thing walking😍💅💁 I really be feeling myself 😂😂
    HerTrapQueen HerTrapQueen 16-17, F Mar 1

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    I paint my toe nails but I don't wear sandals. I wear flats In the summer or wear heels that have one toe out.
    lorrena19 lorrena19 18-21, F 1 Response Mar 2

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