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I Have Nail Patella Syndrome

A Nail Patella Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Patella Syndrome. You're not alone. 15 People

    I Have Nail-Patella Too

    I have a really bad back, and my knees are always bothering me. Every one of my nails are misshapen except for my left pinky nail, and I have pretty much no thumb nails :(
    ekaye ekaye 16-17 May 20, 2013

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    I Have Nail Patella Syndrome And So Do My Kids

    I was also born with club feet - both of them actually and the doctor told my mom I would never walk.  She was devastated!  I, however, was treated by an orthopedist shortly after birth who not only fixed my feet, but did so without surgery which was unheard of...
    cmdietrich cmdietrich 36-40 1 Response May 22, 2010

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    When I Was Ten (and Before That)

    I was born with two club feet - which for some odd reason wasn't as uncommon as some might think. It occured frequently in the early nineteenth century, so it was considered a throwback to those days. My mother paid to have special boots made for my feet that had to come all...
    noctame noctame 18-21 2 Responses Jun 4, 2009

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    My Son And I Have Nail Patella Syndrome.

    When I was very young and did not understand, I blamed my mother whom I inherited NPS from.  Now my son as it and when he gets angry at me for his ugly nails and funky elbows, I wince, remembering.  Now that I am in my 40s the pain has set in with a vengence.  Doctors who...
    nitrosgal nitrosgal 46-50 1 Response Jan 4, 2011

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    Ultra-sensitive Scalp

    Does anyone who has nail patella suffer from a really sensitive scalp?  I always have but it's got worse recently since pregnancy and going to the hairdressers is now just a nightmare....just wondered is this a symptom?
    KateyMcPhee KateyMcPhee 31-35 May 16, 2011

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    Related Experiences

    Wtfvgggggggggggff v v v v. gv
    MangoMochi MangoMochi 18-21, F 2 hrs ago

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    These are my nails, ready for PRIDE. Nailsinc "Notting Hill Gate"
    prudance prudance 51-55, T 10 hrs ago

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    Would like to hear from anyone who would be willing to share serotonin syndrome experiences.
    monser monser 56-60, M 2 Responses 13 hrs ago

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    Soooo i have an older bro with aspergers syndrome..... He's a little different though coz unlike most aspergers he is very loud and ttries to b sociable. It took me a long time to...
    Avreich Avreich 22-25, M 14 hrs ago

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    well of course, it draws attention to my nails, which is what I'm most proud of, blue to purple, green to gold, even pinks and reds, if I like the color I'll wear it
    Zurea Zurea 26-30, T 15 hrs ago

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    I feel like theirs something wrong with me i bite my nails because im nervous around people i get cold sweats on the train my hands start to shake if i feel someone looking at me i...
    TheLastOfMe TheLastOfMe 22-25, M 1 Response 15 hrs ago

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    Lost 6lbs in one year. With a severe growth hormone deficiency that's dangerous. I'm losing a lot of hair and I can't eat as much as I used to, every time I try to eat a lot I get...
    Jurnee16 Jurnee16 18-21, F 1 day ago

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    I have to say, that this has been an extremely long road. My husband has Asperger's. We didn't know, we had a pretty normal life for the first two years or so. After we had a...
    DeeDoo1 DeeDoo1 41-45, F 1 day ago

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    I was diagnosed with Basal Cell Nevus Syndrome in July 2015. Basal Cell Nevus Syndrome is a rare genetic disorder that affects 1 out of 100,000 people. I have a 50% chance of...
    Damocles19 Damocles19 13-15, M 1 Response 2 days ago

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    I had stroke when I was 29 years old. I am 35 years now, I was using contraception Nuvaring when the stroke occurred. I suffer CPS now. CPS took my life, I am not the same person...
    carolguate2004 carolguate2004 31-35, F 2 days ago

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    I do not have ATS but my 13 y/o daughter does. She was originally diagnosed w/ a heart condition known as Polymyphoric Preventricular Tachycardia at that time she was in softball...
    mindy918 mindy918 36-40, F 3 days ago

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    I live in my pyjamas. I feel like the energy Is better spent baking peanut cookies for my toddler then getting dressed.
    joyofabluesky joyofabluesky 31-35, F 3 days ago

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    I have Asperger's syndrome and Selective mutism. I do talk but sometimes my voice cuts off and I am unable to, I can't explain this but it can be quite a hinderance. I feel that I...
    Randompi Randompi 13-15, F 1 Response 3 days ago

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    I'm a 13 year old girl. and I have Brown Syndrome. As much as I try to ignore it. it prohibits me from doing more than people would think. I can't play staring games with my...
    Jay3421 Jay3421 13-15, F 3 days ago

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    please join gitelman/bartter buddies on fb. we have a great support system
    lilmomma1411 lilmomma1411 26-30 3 days ago

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    Okay my nail polish keeps bubbling; -I don't shake it super hard -I wash my nails and dry -I use base coat What gives??
    strawberryletter22 strawberryletter22 18-21, F 2 Responses 5 days ago

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    I have autism and it feels to me like im in a whole different universe not in a good way though and everyday im always fighting myself not accepting change and just bein self...
    aaronpayne aaronpayne 22-25, M 5 days ago

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    I've always been much better than most men at multitasking, I wonder whether that is due to the Klinefelter Syndrome?
    KSPerson KSPerson 46-50, M 1 Response 6 days ago

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    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 1 Response 6 days ago

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    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Escapeyourthoughts32 Escapeyourthoughts32 18-21 2 Responses a week ago

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    I was diagnosed when I was 13. And I've gotten worse and worse. It's so exhausting even getting to the toilet. Headaches every day, noise just goes right through me. My muscles...
    deleted deleted 26-30 1 Response Aug 26

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    I start a project. When it is almost through, i think of a better project and ignore the current and the cycle continues.
    Timmoh Timmoh 16-17, M Aug 26

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M Aug 25

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    Okay, so I love biting my nails, the shorter the better. I really enjoy the satisfaction of biting and chewing my nails right down as short as they will go. It feels great and I...
    lewlog lewlog 18-21, M 1 Response Aug 25

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F Aug 24

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    Question for everyone what is the best way to get nail polish off if I don't have nail polish remover because I want to put some on but I have to get it off before my mom comes...
    submissivetogirl submissivetogirl 13-15, M 1 Response Aug 23

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    I love my claws, broke 1, but it was to prevent having it ripped off (had that done twice now) but the rest are at a quarter of an inch now and I love it! better yet, 100% natural...
    Zurea Zurea 26-30, T Aug 23

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    i painted my nails with a marker because at that time it was not possible to get a green nailpaint .. i have tried nailpaint remover and toothpaste to remove the stains but they...
    missttie missttie 18-21, F 2 Responses Aug 23

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    I love it when my nails look pretty! Usually, I keep them boring and plain, but lately I've been obsessed with getting gel manicures. (Photo) My new design done today. They're...
    TravelDreamer TravelDreamer 31-35, F 2 Responses Aug 22

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    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    alexcarlson2018 alexcarlson2018 13-15, F Aug 21

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    I have aspergers, mood disorder and depression when life is hard I feel that nobody cares I exist and I eat and write on here and play Rachel plattens fight song or look at my...
    FattyWithAttitude FattyWithAttitude 13-15, F Aug 21

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    I recently found out I have ORS and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original...
    Deena76 Deena76 36-40, F Aug 18

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    what colour nails should i wear this week? ive got silver chrome, dark blue chrome and french tips to choose from
    Curio95 Curio95 18-21, M Aug 17

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    I've always loved painting in general, but recently I've been getting into nail art... it's actually a lot of fun, & I love creating new designs. Some may think it's odd for a...
    LegStyles LegStyles 26-30, M 1 Response Aug 17

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    I might have AS. Any tips on how to manage it so as to avoid hurting people around me more (my spouse and family)?
    LolaHaze9 LolaHaze9 22-25, F Aug 17

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    I really need your help, I know you all are strangers but please... I think I have aspergers, the things I do in my daily life isn't "normal" to others. first off hi, I'm Andrew...
    deleted deleted 26-30 3 Responses Aug 16

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