I Have Narcolepsy and Cataplexy

Personal Stories, Advice, and Support 85 People

    A Mothers Worries About Her Child With Narcolospy - Excessive Daytime Sleepness Disorder

    So this continues where I left of in my last story. After my daughters first sleep study, we were told that she was being diagnosed with EDSD and Confusional Arousal. The doctors discussed her need to sleep abnormal amounts for a child her age and that we shouldn't try and...
    StrobistGirl StrobistGirl
    3 Responses Aug 5, 2012

    What Next....

    Well I have always been the type to worry and have problems with anxiety and guilt. For as long as I can remember I always worried too much. I was a slight over-achiever and I constantly seek approval from people in my life. ( parents, syblings, relatives, friends, bosses...
    stephy85 stephy85
    22-25, F
    1 Response Dec 14, 2010

    Im Not Kidding.

    I have Narcolepsy and Cataplexy. hi there my names mikey and ive been diagnosed with narcolepsy and cataplexy since 2007 at the time i never even had heard of it and thought i would get rid of it when they found out what i had.how wrong was i lol. i first started to realise there...
    mikey07 mikey07
    3 Responses Jun 14, 2009

    3rd Day Of Provigl And Not Feeling Any Different :(

    Today was my 3rd day of taking Provigl and I don't feel anymore awake. I thought it wouldn't take too long to start feeling some kind of difference and my muscles are sooo weak today I can't even lift my arms to use a spray bottle. How dumb is that? Is there something else I...
    sleepypeggy sleepypeggy
    36-40, F
    1 Response Apr 7, 2013

    Cataplexy Total Devastation 10 Yrs After Narcolepsy Set In...isolated!

    What can I say! I was diagnosed with Narcolepsy 10 years ago and now since my divorce in 2007 the catastrophe of Cataplexy set in. As it seems like everyone else, I had NEVER heard of this condition.  I was told by by Neurologist, when diagnosed in 2000, that the way I...
    36-40, F
    1 Response Dec 14, 2010

    Understanding !!

    Do other narcos find that a lot of people smirk when you tell them that you have narcolepsy/cataplexy? That horrible smirk, as if they thought you were lazy and that narc/cataplexy is a made up illness ?
    eyesshutmindopen eyesshutmindopen
    31-35, M
    6 Responses Aug 6, 2013

    I've been in bed half the day

    and I still feel exhausted 😴 There's a mountain of housework to do and I just can't find the strength to do it.
    aletheabliss1981 aletheabliss1981
    Apr 25, 2014

    Dozydelilah..... By Name and Nature...

    i have narcolepsy and cataplexy, i,v been diagnosed for nearly eight years now. I,m over the depression it can cause, when you try to contain your emotions, emotions trigger the cataplexy, which is bad but stiffling your emotions can cause a whole lot more pain and torture!!!
    dozydelilah dozydelilah
    31-35, F
    Sep 28, 2009

    I had narcolepsy in the summer of 2011

    when i was 10, now i am 13 and i dont know anybody with narcolepsy around my age so if u do or if u are around my age could u let me know please so i can talk to u on here
    cerysmorris1221 cerysmorris1221
    22-25, F
    2 Responses Mar 9, 2015

    Answers Finally!

    I have always been tired and sleepy when I was a teenager and beyond. I remember numerous times waking up and the next class was walking in and staring at me sleeping on my backpack and a lovely imprint on my cheek from the buckle. I would always do the nodding off dropping my...
    sleepypeggy sleepypeggy
    36-40, F
    Apr 7, 2013

    I have Narcolepsy with Cataplexy.

    I won't go into detail with my story. I actually wanted to post something researchers just found out about people who suffer from Narcolepsy. The histamine neuron cell count for people with Narcolepsy was higher than of those without this condition. Now, further research is being...
    sleepysnoopi sleepysnoopi
    26-30, F
    Feb 17, 2015

    I've Fallen And I Can't Move

             Hello my name is Kenny and this is my story. My troubles with narcolepsy started close to 4 years ago and like many of us it started with extreme sleepiness. I mean no matter how long I slept i would feel tired again in no time...
    skinyard skinyard
    31-35, M
    1 Response Feb 17, 2010

    I got glandular fever whilst completing my work

    experience aged 15 year 10 A student, I was staying with my dad and working for his company, I coped in the days but was struck down every evening with headaches and tiredness. When I returned home I planned to meet friends in hte park to drink cider and be merry, I couldn't...
    Elswell Elswell
    36-40, F
    Dec 16, 2015

    I had absolutely no symptoms of narcolepsy

    until I was pregnant in 2010. My doctor gave me a flu shot and weeks later, BOOM...narcolepsy and cataplexy. I read that a flu strain in Europe made many kids narcoleptic in, I believe, Ireland? Well, I'm sorry, but we have ruled out EVERYTHING and it HAD to be the flu shot that...
    missmonmon missmonmon
    46-50, F
    1 Response Jun 23, 2014

    In my hypersomnia post i posted my story on all

    the tests i had. And now i have been diagnosed with narcolepsy and cataplexy. It is all under control now because of the medicine i'm taking. And it only took 5-6 months for me to be diagnosed. (Which is pretty much nothing compared to a lot of people who were never diagnosed...
    wouldbehockeyplayer wouldbehockeyplayer
    Jul 24, 2015

    I'm Hung!

    I never really had any problems growing up, until the ripe age of my sophomore year. I used to be able to laugh so hard until my stomach hurt. That is a feeling long gone for me, as in my main years from Sophi-Junior years I would feel an urge to drop to the ground after laughing...
    HungTrinh HungTrinh
    18-21, M
    4 Responses Oct 3, 2012


    Where do I begin. It may take me several attempts to get this all down and where we are today - but for many reasons I feel like I need to be better prepared for what the road that lies ahead of us with our daughters medical condition. Our daughter is adopted from China and...
    StrobistGirl StrobistGirl
    1 Response Aug 5, 2012

    Learning To Accept My Limitations

    Hi everyone, My name is Amanda, and I am currently a senior in high school. I was diagnosed at the beginning of my junior year after experiencing one hell of a sophomore year. I live in North Carolina, and I am particularly looking for some other narcoleptics my age. Since there...
    dancingthrudreams dancingthrudreams
    18-21, F
    2 Responses Nov 23, 2012


    If I laugh too much, I lose control of my muscles.  I cannot move them at all, depending on how bad it hits me (nor breathe, though fortunately it only lasts a couple moments).  Sometimes I can resist it, and don't do it nearly as much as I did when I was...
    HumanOddity HumanOddity
    31-35, M
    1 Response Jun 22, 2009

    Cataplexy Catastrophy

              After lots of internet reading, stories of people with Cataplexy and doctors reports plus my own experiences, I think I’ve figured it out. I was diagnosed with it in 2007 but I now know I’ve had it since 2002...
    mikecpage mikecpage
    46-50, M
    5 Responses Apr 5, 2010

    The Big Change

    About 15 yrs ago or longer , I was lucky to find a nueroglist who knew what i had.treated me with medication that allows me to function ,work full time and at that time my daughter was in grade school.How did I know? I started having issues, when i got upset ,i would have...
    happy43day happy43day
    1 Response Jan 7, 2012

    Just Need Some Help And Advice Please.....

    I've been having symptoms of kinda jelly legs, like i'm going to fall over, my arms become weak. ( if i'm holding anything it's a struggle not to drop it.) My vision goes in to a tunnel and I can't speak. These have noticed these since I was 17. At first i thought it had been...
    Adzb Adzb
    2 Responses May 10, 2011
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