I Have Neurofibromatosis Type 1

I was diagnosed at birth with NF1. You all know what it is. I'm 21. And I've only been to the doctor once to have an MRI. They called for me to come in and have another one to "clear something up". I have so many of them on my body...

So it seems like t.v shows take an interest in Neurofibromatosis, this is like the second or third t.v show within the last few years that have mentioned it, I have NF 1 so I am surprised each time I see it on tv.

My father passed NF down to my brother and myself and my brother passed NF down to his son. I have one child but did not pass it down. My dad is the only one who shows signs of NF between his brothers and sisters but his real father...

I found out I had NF1 when I was 8 years old, my father also has it,my youngest son has it as well, I have had tumors removed,and multiple surgeries on the right tibia my father has so many neurofibroma's you can not set a finger...

i am 35 years old now but i was only 2 when i was diagnosed with nf1. I also have pseudoarthrosis of the right tibia.that is how my nf1 was discovered. i had a bone marrow transplant at 3 years old. i was my own donor.they took the bone...

It was known that I had Neurofibromatosis 1 since the first few weeks of my life, and I am almost 20 years old now. My mother has NF 1 as well and it is believed it started with her. Still, our two cases are quite different. My mother...

Well, this is something that I was born with and honestly, for the most part, am actually unaware of until someone else mentions it. Usually they ask about the eye, or occasionally they will stare, but for the most part, most people...

I was born with NF1. In my case it was not inherited at all. i am 23 years old and have had 14 surgeries. my right ankle is fused due to many extented uses of the illizarov. Also it caused a tumor in my left eye.

I was diagnosed with NF1 just this summer after having an odd liesion under my breast biopsied. It turns out this was a non-cancerous tumor, a neurofibroma and that along with several cafe au lait spots (which I have had since childhood...

hi there iam gareth iam 26 and iam from the uk i have nerofibromatosis type 1 in augtust of this year i had a fibroma removed from the right side of my head it the first majour one i have had removed and iam amazed with the results the...

I am the only one in my family with NF and have had it since the age of 7,over the year it has gotten worse with the pain.
If I did have Jesus in my life I don't know what I would do.
I give these cards I made up when people ask about...

I have NF type 1 NO ONE in my family has NF. my 3 kids dont even have it. Somehow I am the only one withon my family that has it, and no one knows why. I also have seizers due to my NF. It has caused many problems but nothing I cant...

I inherited this from my father. I have tumors on the inside of my body on every single nerve in my body and my spinal nerves. I had a major decompression operation in my neck. A C2-C3 fusion, C4,C5,C6,C7 laminectomy. I had mild nerve...

Iam 35 1/2 and i have nf1 and i have a 5 1/2 year old that has it also. I have many tumors in my body some are going to be removed some arnt. I get really bad headaches sometimes because i have two that are in my head.Iam coverd with...

I am in my mid thrirtys with a child that has nf1. He got it from me,no one in my family has this and i dont understand why i do. When i was a teenager i had back surgray to fix my spin. I have the spots all over me and i have two brain...

Yeah, I have it, got through my mom's side of the family. My brother has it, my daughter has it and my son has it. I hate it but I wouldn't wish it on my worst enemy. If I had known about it before I started a family I would never done...

I was diagnosed with nf1 as a child due to the number of cafe au lait spots. All my life I have been waiting for a tumor or bump to show up and so far I have been blessed only to be afflicted by the spots. I feel for those who have...