Neurofibromatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Neurofibromatosis. You're not alone.
2 posts. Updated a while ago |
Members Sharing the Experience "I Have Neurofibromatosis"
31 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- " to HUMAN RESOURSE MANAGEMENT since my interest was working with people teaching I i felt my dream re - awake, and full of life it was like being born again because from day one i never liked accounting but continued serving because i had no choice After graduating with Bcom Human Resource Management I was transfered from Finance Departement to Human Resource Departement and promoted to A..."
- " one thing i have failed to control is always to check any new born niece or nephew since the doctors say its genetic but fornutely am the only one with the deformity in the family and i have no child because somehow i think it affected my sexuality Today sunday19th the sermon in my church was to be gratefull in every situation we find ourselves, about amonth ago when i started searching the net..."
- "It just did not really dawn on me that something was wrong but finally went to the huge medical university where in a matter of a few hours found out so much and then my wife at that time turned against me..."
And the Story Awards Go to...
Top Rated: My Life With Nf
Most Popular: My Life With Nf
Most Recent: I Have Nf1
Most Commented: My Nf Story.
Most Entertaining: Thriving With Nf
Saddest: I Live With Neurofibromatosis
Happiest: Thriving With Nf
Statistics:
30% of people who have this experience are in their thirties, 24% are in their forties, and 21% are in their twenties. 86% of people who have this experience are women.
You may cite any I Have Neurofibromatosis statistics, provided you link back to this page
Check out this group's What Is It Like To Have Neurofibromatosis guide, where people with this experience share their tips and hints.
Here are a few tips...
- Having nf for me is a little difficult, I have pain every day, I am very emotional all the time, have people not understand me n nf, they always treat me different. I think with having nf makes the person can't understand some things. The tummers I have.
- Having nf for me is a little difficult, I have pain every day, I am very emotional all the time, have people not understand me n nf, they always treat me different. I think with having nf makes the person can't understand some things. The tummers I have.
- Having nf for me is a little difficult, I have pain every day, I am very emotional all the time, have people not understand me n nf, they always treat me different. I think with having nf makes the person can't understand some things. The tummers I have.
Members said this page is also related to:
Do You Have Neurofibromatosis? , What is it like to Have Neurofibromatosis? ,Have Neurofibromatosis personal stories, Have Neurofibromatosis personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Neurofibromatosis. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to
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