I Have Neurofibromatosis

From the age of 18 I have loved change.  Would want to move about every six months.  I thought with change came happiness.  When I was single and there was such a thing as being able to rent a furnished apartment I loved moving...

We threw a blanket over the Neurofibromatosis, and avoided it as much as possible, but my brother however could not do that. He was diagnosed with an Optic Glioma at the age of 5, and in 1975, doctors didn't know much about this...

I was diagnosed with it when I was really young, I don't exactly remember the age. I have NF-1 which mean I have cafe-au-lait spots on my body, huge ones in fact. I have one that takes up half of my back. Also, along with the many spots...

HI, i am writing because my brother has neurofibromatosis, he didn't get lumps till he was about 19. they say it is inherited but i dont believe it, no one has EVER had it in our families history. when my mom was married to my first dad...

Its been a long  walk for me with NF1.My dream was becoming a teacher but all this was shuttered because of  NF1 .I was rejected on registration because my facial nodules and deformed leg,i do always...

hi every1 im so glad i found this page. Could really do with some guidance.

my daughter who is now nearly 13 months is currently waiting for an appointment with a geneticist. It all started when my daughter was 4 weeks old when we...

Ok so here it goes....I am 30 years old and since I can remember I have had Nf. my mother does too. I have a wonderful husband and 3 daughters, one may have it too. My husband says he doesn't care but it worries me. Right now I just...

On 3rd March 2009  Red Cross and National Social Security  Fund  organised  blood donation week  for the blood bank  where there was a general shortage of blood  in  our area and the country at...

I was diagnosed with NF when i was 3 years old. I have a learning disability because of the medical condition. I guess it could be worse, i could have the other physical issues that tend to go along with NF.  I am happily married...

I was diagnosed with NF type 1 at age 3 when at first my parents thought I had a lazy eye, the doctor at first just told my parents "oh she has tumors dont worry about it" then told us it was NF type 1. i have tumors all through my body...

Today sunday19th the sermon in my church was to be gratefull in every situation we find ourselves,about  amonth ago when i started searching the net on neurofibromatosis  i was horrified by the photos of those who are greatly...

Im 33 and I never knew I had NF till after I gave birth to my son. Not only have NF1, I also have scoliosis. The doctors I've seen and even the dermatologist said it was nothing. I had this all my life. Now that the doctor told me that...

So i have nf2 and i got to the point were i dont like being touched becuse it eratates my nerves and so i mostly stay at home and play xbox360 becuse i dont like the way i look becuse my teeth are decaed and the fibromas i any one wants...

I was the first in my family to have NF.  Everyone else is among "the beautiful people."  This past weekend my nephew was here from Oklahoma City and everyone said how handsome he was.  I wish just once someone would give me a...

I grew up knowing about Neurofibromatosis.  I knew it affected my older brother.  I also knew that my mother was affected, but we were never to ask about it.  The bumps on my mothers abdomen, were just her...

My name is Rebecca, and i was diagnosed with neurofibromatosis type 1 when i was about 5 years old. I am currently 15, and i have had 3 plexiform nueros surgically removed do to my disorder. 2 in the past 6 months and one when i was 6...

I have NF1. I didn't found out until I was 15. It is very hard for me to find friends. I fell alone and useless.

Hi my name is Ryan; I have had NF2 since I was born. As a result I was left with tumors on the optic nerves of my eyes, which in turn cause severe pain and constant bruising around the exterior of them. My whole life I have had problems...

I  was born 45years ago with neurofibromatosis which the Doctors didnt know at time
i went through many surgery trying to remove the nodules  but more will emerge until
in 1976 when i was refered to Nairobi Hospital...

iv allways hated having nf it makes me feel sick hearing people go on about loosing weight i think all you need to do is stop scoffing your fat face,id give anything to be just fat and not full of scars,lumps and brown marks,just to...