I Have Nevus Syndrome, Basal Cell (gorlin/goltz Syndrome

Nevus Syndrome, Basal Cell (Gorlin/Goltz Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nevus Syndrome, Basal Cell (Gorlin/Goltz Syndrome. You're not alone. 4 People

    My Experience So Far With This Syndrome

    I too have Gorlin-goltz syndrome and have had a lot of experience with it. From the time I was a baby until the age of ten I had seizures(the kind where you just stare off into space). I have had a lot of doctors visits and currently see a dermatologist and genetic specialist...
    serenerose84 serenerose84
    1 Response Jan 11, 2012

    I Found Out I Suffered With Gorlin Goltz Syndrome When I Was Ten

    I suffer with cysts and skin cancers and the cysts are in my hands and become very painful i have the bifid rib and the skeletal disformaties, I was diagnosed with the syndrome and sadly have passed it to my two sons, my daughters are fine nothing showing in them...
    stella51 stella51
    51-55, F
    Jan 24, 2013
More Stories