I Have Niemann-pick Disease, Type C1

A Niemann-Pick Disease, Type C1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Niemann-Pick Disease, Type C1. You're not alone.

    I Carry The Gene

    Almost 10 years ago my brother was diagnosed as having Niemann Pick Type C (he was aged 17 at the time). He is now almost 27 years old and his life has changed so much in that time. I was diagnosed as a carrier of the gene almost 9 years ago along with my older sister. This...
    mysticlesbian mysticlesbian
    36-40, F
    2 Responses Mar 20, 2012
More Stories