Post

I Have Notalgia Paresthetica

A Notalgia Paresthetica anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Notalgia Paresthetica. You're not alone. 107 People

    My Notalgia Paresthetica Saga

    It's Hurricane Sandy here in NY so I have some time to write in and contribute my story. I'm a 48-year-old man and I've had Notalgia Paresthetica (NP) for the last 5 years or so. I don't know how in god's name I got it and I don't know how to get rid of it. As most people...
    Everett6 Everett6 46-50 4 Responses Oct 29, 2012

    Your Response

    Cancel

    Five Years of Itch

    I have Notalgia Paresthetica.   I received my diagnosis this morning after 5 years of an unidentified itch between my spine and right shoulder blade.  The "itch" escalated this summer when a soft knot developed below the itch.  Then 3 weeks ago I had...
    LMW123 LMW123 66-70, F 1 Response Sep 22, 2009

    Your Response

    Cancel

    Notalgia Paresthetica

    I have been diagnosed Notalgia Paresthetica. The doctor put me on Lyrica, it does not seem to help, with the nerve pain. I am currently taking 150mg, twice a day. Anyone have a similar experience with Lyrica
    rinauro rinauro 66-70 Nov 19, 2011

    Your Response

    Cancel

    I Am Not Alone In This Itchy Back World

      I am happy to see a forum like this on Notalgia Paresthetica........it really is itch on the back. I have this for almost 12 years by now n I am so despirate to find a solution for this problem. I really do understand how bad n frustating to have this itch at the back...
    sonata8 sonata8 36-40 Mar 25, 2013

    Your Response

    Cancel

    Is My Np Story Different?

    I am a 48-year old female who was diagnosed w/ Notalgia Paresthetica a few years ago. It began in my back probably a good 15 years ago (I didn't know what it was, assumed it was a pinched nerve). A few years ago, I visted my daughter's dermatologist when I had a severe itch (w...
    yjmorton yjmorton 46-50, F 3 Responses Aug 28, 2012

    Your Response

    Cancel

    Just Diagnosed By Dermatologist

    I went to see a new dermatologist after mine retired two years ago. I told her about the incessant itching and discoloration on the left side of my back near my scapular. She knew imeediately what it was  when she looked at it and told me not to worry. She said to...
    mimifromhaile mimifromhaile 61-65, F 3 Responses Jan 21, 2010

    Your Response

    Cancel

    in desperate need of divorce

    My story begins like this. I've been married to notalgia for over a decade since my sophmore year of college (12 years to be exact). It's been with me during surf trips to costa rica, for all 3 years of law school, while getting admitted to the bar, while sitting at my desk at...
    CrayzeeTrain CrayzeeTrain 26-30 May 24, 2011

    Your Response

    Cancel
    police1 police1 56-60, F Jan 18

    Your Response

    Cancel

    I'm New Here

    I WAS JUST TOLD THIS PASSED WEEK THAT I HAVE N.P.   AND I WAS SEARCHING ON THE INTENET AND FOUND THIS WEB SITE.   THE ONLYT THING IS THAT I DON'T HAVE THE ICHING.  I HAVE A BURNING SENSATION ON THE LEFT SIDE. AND AT TIMES IT'S SO BAD I CAN'T STAND IT TO WEAR CLOTHING.  TRY...
    TWIN2BY7 TWIN2BY7 36-40 3 Responses May 13, 2011

    Your Response

    Cancel

    I have NP or at least the symptoms.

    Mine started about a week ago. I've had a couple occasions in the past that was a mild itch but now it's a soreness and pain. Very sensitive to touch even my shirt touching it is very painful. Just below my left shoulder blade and toward my spine. I've been trying a TENS unit...
    eddiegrey eddiegrey 31-35, M Jun 4

    Your Response

    Cancel

    Going Crazy With Np

    Np has changed my life im stuck with this itch that drives me nuts. I have my girlfriend nail me which is she drives her nail right at the spot of the itch untill i fall to the ground in pain, However it takes the itch away for a very short period of time hurts so good sort of...
    sterosie sterosie 56-60 2 Responses Aug 13, 2011

    Your Response

    Cancel

    Hey everybody!i have had np

    for like 7 years.i really didnt know what it was until i researched and found the name of it.so i had it on ma arm,shoulder and forehead.it used to drive me crazy so i started scratching all the time,so it got bigger and more itchy everytime i strached.but after going to doctors...
    tommy433 tommy433 18-21, M Apr 1

    Your Response

    Cancel

    43 Year Old Woman With Np...

     I have been dealing with NP for the past 6 years. My doctor told me to use capsaicin creme  but I had severe pain and burning upon applying. I did mix it with regular lotion to reduce the concentration. It did seem to help somewhat but it is a big pain to use as I wear...
    kyc1215 kyc1215 41-45, F 1 Response Nov 14, 2009

    Your Response

    Cancel

    Notalgia "Pathetica" Sounds More Appropriate

    I've put up with this thing for over 30 years now, and I am the "proud" owner of about 8 or 9 back scratchers; one in each car, one in almost every room in the house, one even in the gym bag. Oh, well!
    Bitto69 Bitto69 61-65, M Aug 18, 2013

    Your Response

    Cancel
    smitabipin smitabipin 61-65 Dec 14, 2013

    Your Response

    Cancel

    Finally I Have A Name For It!

    I have had this for 3 years. I am now 55. Doctors said eczema, I was sure it was Shingles. I got the Shingles Vaccine and an antiviral shot but no relief. All of the creams I was told to try didn't work. My dermatologist this morning said 'We Dermatologists must realize that...
    pwadson pwadson 51-55 Jan 30, 2013

    Your Response

    Cancel

    I Have Np And Curious About Tens

    This past year, I started experiencing the classic itch just medial to the left spine and close to the shoulder blade with a slight pigmented area. I am a 57 year old male and this occurred after suffering intense stress due to another medical condition (totally unrelated...
    bstruss bstruss 56-60, M Dec 13, 2012

    Your Response

    Cancel

    Notalgia P. A Real Help!!

    I was diagnosed as part of a research group at St. Bartholomews hospital, London about twenty years ago when they were first testing topical creams made with strong chillies to try and relieve the condition - they didn't work however I have found something which really does but...
    cmbrooks cmbrooks 56-60, F 2 Responses Aug 1, 2013

    Your Response

    Cancel

    Just Found Out I've Got Np.

    At 65 I've been through a lot of medical stuff and thought I'd heard of just about everything that could be wrong with a body, but today I discovered I have a condition I'd never heard of or read about, notalgia paresthetica. What a long latinate name for an itch! Three years...
    mbmcdavid mbmcdavid 61-65, F 1 Response May 19, 2011

    Your Response

    Cancel

    A Long Time For A Dx

    I have severe cervical degenerative disc disease and had my neck fused in 2001.  I also have degenerative problems in my lumbar spine which causes sciatica.  I've been seeing a .pain control specialist since 2002.  Around 1995 I developed this small itchy spot under my left...
    judemonster judemonster 56-60 Jan 9, 2011

    Your Response

    Cancel

    I'm Curious If There Is Dietary Relief?

    I've had Notalgia Paresthetica for 3 years now and nothing seems to provide relief. I have found that the days and times I've eaten less of the foods that promote inflammation I find a small amount of relief. Has anyone else had experience with treating NP with eliminating...
    shag021 shag021 31-35, F Nov 17, 2013

    Your Response

    Cancel

    Found Tempory Relief

    oraryI’ve had a severely itchy back for almost 17 years and at times it is so bad that I can’t imagine living like this anymore.  I have seen many doctors who all send me to dermotologists who treated it like a skin problem and nothing brought any relief.  Over the years, I...
    deuxchat deuxchat 66-70 2 Responses Mar 2, 2011

    Your Response

    Cancel

    Itchy! Must Find Cure!

    It started as a normal back itch. Some doc told me it might be a skin fungus and gave me some topical ointment, which clearly didn't work. I have my dear hubby scrub my back with an exfoliating scrub every few days, which provides very temporary relief. One thing that sometimes...
    Ichauch Ichauch 31-35, F Sep 12, 2013

    Your Response

    Cancel

    I Have Notalgia Paresthetica

    I was just diagnose with NP, after visiting 2 doctors which thought it was just me scratching. I feel the tinggling sensation mainly when I do dishes or I have some stress. I do however work all day on a pc, but also workout every morning. I have had this condition for about 2...
    chano33 chano33 36-40 Sep 14, 2013

    Your Response

    Cancel

    45 Year Old

    Hello all fellow sufferers. I just found this site and I will be coming here for support. I just recently found out that I have NP. I can relate to a lot of the stories already. The only thing I do right now is put lotion on the area. I had no idea how complicated this...
    mpurcell mpurcell 41-45, M Feb 4, 2013

    Your Response

    Cancel

    I Have Np Also...

    I noticed a dark patch on my upper left back about 8 years ago. At first I did not notice any sensations, but then I started to get a weird tingle feeling around the dark spot. It would just come and go randomly, this tickly tingly feeling. Then the itching came. Now, I don't get...
    debbiec55 debbiec55 51-55 Aug 13, 2011

    Your Response

    Cancel

    Pretty Sure I Have This, But Pain Is Worse Than The Itch

    Anyone else have severe pain ? My experience started with an annoying itch, and a sunburned feeling on the left shoulder blade, but progressed to severe deep pain, which just keeps getting worse. MRI reveals "mild"left neural foraminal narrowing between C4 and C7. I've seen a...
    jetswv jetswv 56-60 2 Responses Jul 12, 2013

    Your Response

    Cancel

    I Think I Have This!

    After feeling a weird sensation under my scapula I investigated online and found this condition. I have the itching but mostly a tingling sensation. It happens more when I sit down for some reason. I am glad I am not crazy. Has anyone tried a chiropractor for this?
    Lttlebit13 Lttlebit13 36-40 1 Response Oct 3, 2012

    Your Response

    Cancel

    Looking For Treatments That Worked

    Just recieved this diagnosis and thought it was a joke at first, but found all the symptoms on the web consistent with what I experience.  I'm interested that someone in this group finds nightshades to aggravate the itching.  Any indication other things do too like...
    VTRN VTRN 56-60 6 Responses Aug 26, 2009

    Your Response

    Cancel

    Self Diagnosis

    I have had this problem on and off for 12 years but this time it did not go away. After seeing my GP, used various creams, and seen a dermatologist I finally found Notalgia Paresthetica on the internet. I have seen my GP and he said he had heard of it but never come across it...
    cmcisme cmcisme 51-55 Feb 19, 2013

    Your Response

    Cancel

    Fascinating

    Hey all,Yep I too have had NP for quite a few years. Initially myself and my GP thought it was related to a Lipoma in the nearly exact same area - had the Lipoma removed - no itching for quite some time. Then it came back.......Oh heck, now what? Had moved cities by then. Had...
    777Drea 777Drea 41-45, F Feb 7, 2013

    Your Response

    Cancel

    To Scratch Or Not That Is The Question

    I was just diagnosed with NP by my dermatologist. Capsaicin was not helpful. If I scratch the area (left scapula) it is followed by pain and heat. Has anyone ever experienced a remission of symptoms from NP? if so for how long?
    Leftcoastlil Leftcoastlil 61-65, F May 26, 2013

    Your Response

    Cancel

    Physiotherapist, Diagnosed Today, Have Some Insight, ?Treatment Guidelines

    Interesting, thought I had a skin condition for years and saw the dermatologist today who diagnosed NP. Physiotherapists treating adult orthopaedic conditions requiring joint mobilizations often get thoracic pain. Well over ten years ago I had a colleague look at one of my ribs...
    MVE1 MVE1 56-60 4 Responses Apr 1, 2013

    Your Response

    Cancel

    My Story

    I am a 27 year old female that has had a constant tingling/itchy feeling below my right shoulder blade for months. People would laugh (as I would) when they saw me rubbing against a shelf, or a corner. But now it is just annoying. Just started randomly. Thought it was due to a...
    law1985 law1985 26-30 Nov 13, 2012

    Your Response

    Cancel

    Diagnostic Nerve Block Used To Investigate Cause For Np (notalgia P.)

     Have had the CONSTANT itch (bottom right shoulder blade) for about 5 years until I learned it had a name...NP for short.    Did not know of the possible connection to thoracic spinal nerve impingement until just last week, but meanwhile over the years have had...
    Nivel Nivel 61-65, M 8 Responses Oct 16, 2009

    Your Response

    Cancel

    Finally Found Out What I Have

    I have has this for about 6 years and have been to six doctors. No one could tell me what I had on my back and why I had the itching. I have tried alot of different creams and nothing has helped. I think I have Notalgia P, but have not had a doctor tell me. I am just going by...
    Debanne Debanne 56-60 3 Responses Nov 15, 2009

    Your Response

    Cancel

    Crazy

    I've had this itch/tingling in my back below my left shoulder blade for years. For a long time I thought it was just dry skin and used to have my husband put lotion on it. I had back scratchers in every room of the house. For some reason the time it's the worst is when I am...
    doreenalice doreenalice 56-60 Dec 7, 2012

    Your Response

    Cancel

    The Search Continues...

    I have been experimenting in search of relief...not a lot of long lasting relief so far. But I have found some temporary relief. Lots of stretching and strengthening neck exercises. A simple lifting of the head engaging all the muscles that support the neck. Please seek out a...
    2bRelieved 2bRelieved 51-55 May 28, 2012

    Your Response

    Cancel

    N P Spread

    During cooler months I can tolerate Capsaicin, and get some relief from the itching, but I think I have noticed after putting Capsaicin on the spot the itching seems to start in other areas close to the normal itchy spot on my back. Has anyone else experienced this ? When warm...
    damitch damitch 61-65 Nov 8, 2012

    Your Response

    Cancel
    smitabipin smitabipin 61-65 Dec 14, 2013

    Your Response

    Cancel

    Relief....

    Relief…. An obnoxious itch that is unreachable! No amount of scratching satisfies it! I can't remember how long I have had this insatiable itch...maybe 8 years. Yesterday, my 82 year old Mom was over visiting, when I asked her to scratch my back. I said "scratch in the same...
    2bRelieved 2bRelieved 51-55 May 2, 2012

    Your Response

    Cancel

    I went to the dermatologist thinking my upper

    back pain and odd hyperpigmentation was a skin problem. After he dug around in my body to get a biopsy, I am left with a "hunch" that this may be NP. After doing extensive research, this sounds exactly like what I have. The sensitive skin, constant tingling and shooting pain...
    Allibecca Allibecca 18-21, F 1 Response Jun 25

    Your Response

    Cancel

    Battling Intense Itching For Several Years

    Hello, I'm a 50 year old female who has been dealing with notalgia parasthetica (NT) for years now--it starting as a benign brown spot right under my bra clasp around nine years ago. By 5-6 years ago the area started itching getting worse and worse. By 2009 it had spread to...
    ghsitch ghsitch 46-50, F 20 Responses Jan 26, 2010

    Your Response

    Cancel

    Question From A Newbie

    I've had this condition for several years but never knew what it was until I ran across it on the Internet. Eureka! I thought it was just a very dry patch of skin but the periodic nature and intensity of the itch always made me wonder. I have a question for you fellow sufferers...
    Gemineye55 Gemineye55 56-60 1 Response Apr 10, 2013

    Your Response

    Cancel

    I can't believe this is an actual "thing".

    I ran into a few sites today after inputting "back injury" and "itch" after researching my thoracic injury for almost 3.5 years. My injury was a hyperextension of the thoracic spine at about T9 that damaged the vertebral articulation with the rib on the right side. Unfortunately...
    WreckedSpine WreckedSpine 46-50 5 days ago

    Your Response

    Cancel

    No Nostalgia For Notalgia

    i have been dealing with notalgia paresthetica for about 8 months,i had started a new job that required me to wear a lead apron and i thought this was the cause for the pain & itching i was experiencing.my spot is below my right shoulder blade.i was skepical of the...
    mcdan801 mcdan801 41-45, F 4 Responses Feb 15, 2009

    Your Response

    Cancel

    Had No Idea Other People Had This Problem.

    I had occasion to visit a dermatologist yesterday for something else and out of curiosity mentioned the itching and he knew immediately what it was. From what I can tell I have a mild case; it itches but not uncontrollably. It started with a sensation as though someone had...
    Impetua Impetua 41-45 2 Responses Apr 24, 2011

    Your Response

    Cancel

    Notalgia Paresthetica

    Just found out yesterday that I have Notalgia Paresthetica.  My dermatologist suggested I use Capsaicin which is OTC.  I applied it this morning and haven't itched all day so far.  It's been 9 hours.  Be careful!  This cream has peppers in it and, even when you wash your...
    americanhart americanhart 61-65 1 Response Dec 8, 2011

    Your Response

    Cancel

    Itchy Back

      I have what looks like a large bruise on my back and it itches occasionally. It is right on my bra line and for years I thought my bras were just itching me. Then my husband asked me how I bruised my back and I saw the dark patch for the first time. I noticed that my dad...
    Sonyag Sonyag 41-45, F Jun 24, 2013

    Your Response

    Cancel

    I'Ve Had It For Years!

    Many years ago (around 13 years) my husband noticed I had a small dark patch of skin on my back. It itched on and off and I scratched it whenever I could. It got slightly larger. Then i noticed there were two more and now I have like six of these patches spread around my back...
    yanat yanat 51-55, F Apr 20, 2013

    Your Response

    Cancel

    Help!!!

    About 10 years ago I noticed a small dark spot on my back that itched. Now the spot covers almost my whole back and I have two more spots on my upper back. The pigment on my back is black where it itches. I have been to doctors and a dermatologist, no one can tell me what I have...
    debanne318 debanne318 61-65, F 1 Response Mar 9, 2013

    Your Response

    Cancel

    Well it has been about 17 years

    for me and the agony of this is sometimes just too much. I have resisted any medication but now I take as needed 2 mg daily (usually .5 - 1mg at a time) of Xanax and the relief is often amazing. Yes, not for anxiety but for NP. Maybe it relaxes the muscles, don't know but there...
    njfeds njfeds 51-55 Jun 28

    Your Response

    Cancel

    I'm A Twenty-five Year Np Woman

    Twenty-five years ago I had a little pimple located on the left side of my spine just under my shoulder blade.  It hurt and itched at the same time. It drove me crazy for about a year.  Then I started getting other little bumps under my skin that both burned and itched...
    gussie306 gussie306 66-70 1 Response Oct 4, 2010

    Your Response

    Cancel