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I Have Notalgia Paresthetica

A Notalgia Paresthetica anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Notalgia Paresthetica. You're not alone. 117 People

    25 Years Of Itching

    I have had this itch for 25 years. I am 75 years old. I have it everyday and I call it a curse! I have tried everything. Haven't found much that helps. I have a roll-on pain therapy pain relief. (Biofreeze). It gives the best temporary relief so far. The area is on my left...
    alicat12345 alicat12345 66-70 2 Responses Oct 29, 2012

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    45 Year Old

    Hello all fellow sufferers. I just found this site and I will be coming here for support. I just recently found out that I have NP. I can relate to a lot of the stories already. The only thing I do right now is put lotion on the area. I had no idea how complicated this...
    mpurcell mpurcell 41-45, M Feb 4, 2013

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    Help!!!

    About 10 years ago I noticed a small dark spot on my back that itched. Now the spot covers almost my whole back and I have two more spots on my upper back. The pigment on my back is black where it itches. I have been to doctors and a dermatologist, no one can tell me what I have...
    debanne318 debanne318 61-65, F 1 Response Mar 9, 2013

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    I'Ve Had It For Years!

    Many years ago (around 13 years) my husband noticed I had a small dark patch of skin on my back. It itched on and off and I scratched it whenever I could. It got slightly larger. Then i noticed there were two more and now I have like six of these patches spread around my back...
    yanat yanat 51-55, F Apr 20, 2013

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    Just Diagnosed By Dermatologist

    I went to see a new dermatologist after mine retired two years ago. I told her about the incessant itching and discoloration on the left side of my back near my scapular. She knew imeediately what it was  when she looked at it and told me not to worry. She said to...
    mimifromhaile mimifromhaile 61-65, F 3 Responses Jan 21, 2010

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    I Am Not Alone In This Itchy Back World

      I am happy to see a forum like this on Notalgia Paresthetica........it really is itch on the back. I have this for almost 12 years by now n I am so despirate to find a solution for this problem. I really do understand how bad n frustating to have this itch at the back...
    sonata8 sonata8 36-40 Mar 25, 2013

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    Five Years of Itch

    I have Notalgia Paresthetica.   I received my diagnosis this morning after 5 years of an unidentified itch between my spine and right shoulder blade.  The "itch" escalated this summer when a soft knot developed below the itch.  Then 3 weeks ago I had...
    LMW123 LMW123 66-70, F 1 Response Sep 22, 2009

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    Finally Found Out What I Have

    I have has this for about 6 years and have been to six doctors. No one could tell me what I had on my back and why I had the itching. I have tried alot of different creams and nothing has helped. I think I have Notalgia P, but have not had a doctor tell me. I am just going by...
    Debanne Debanne 56-60 3 Responses Nov 15, 2009

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    Is your hyperpigmentation on the same side of

    your body as your writing hand? Mine is, and as I only get itchy when working on the computer with a bad posture, I'm curious to know if these aspects are related.
    tcauli tcauli 26-30, M Sep 11, 2014

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    Question From A Newbie

    I've had this condition for several years but never knew what it was until I ran across it on the Internet. Eureka! I thought it was just a very dry patch of skin but the periodic nature and intensity of the itch always made me wonder. I have a question for you fellow sufferers...
    Gemineye55 Gemineye55 56-60 1 Response Apr 10, 2013

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    Forever Sunburn

    About 2 months ago, I felt like I had a sunburn on my right shoulder blade. It hasn't gone away. In addition to the pain, I also had little needle points that itched like crazy. I finally found the right combination of keywords to do a google search, and here I am. I have...
    bajatexan bajatexan 56-60 Mar 11, 2013

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    Relief....

    Relief…. An obnoxious itch that is unreachable! No amount of scratching satisfies it! I can't remember how long I have had this insatiable itch...maybe 8 years. Yesterday, my 82 year old Mom was over visiting, when I asked her to scratch my back. I said "scratch in the same...
    2bRelieved 2bRelieved 51-55 May 2, 2012

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    I Have Np Also...

    I noticed a dark patch on my upper left back about 8 years ago. At first I did not notice any sensations, but then I started to get a weird tingle feeling around the dark spot. It would just come and go randomly, this tickly tingly feeling. Then the itching came. Now, I don't get...
    debbiec55 debbiec55 51-55 Aug 13, 2011

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    Hey everybody!i have had np

    for like 7 years.i really didnt know what it was until i researched and found the name of it.so i had it on ma arm,shoulder and forehead.it used to drive me crazy so i started scratching all the time,so it got bigger and more itchy everytime i strached.but after going to doctors...
    tommy433 tommy433 22-25, M Apr 1, 2014

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    I have NP or at least the symptoms.

    Mine started about a week ago. I've had a couple occasions in the past that was a mild itch but now it's a soreness and pain. Very sensitive to touch even my shirt touching it is very painful. Just below my left shoulder blade and toward my spine. I've been trying a TENS unit...
    eddiegrey eddiegrey 31-35, M Jun 4, 2014

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    The Search Continues...

    I have been experimenting in search of relief...not a lot of long lasting relief so far. But I have found some temporary relief. Lots of stretching and strengthening neck exercises. A simple lifting of the head engaging all the muscles that support the neck. Please seek out a...
    2bRelieved 2bRelieved 51-55 May 28, 2012

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    police1 police1 61-65, F Jan 18, 2014

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    Well it has been about 17 years

    for me and the agony of this is sometimes just too much. I have resisted any medication but now I take as needed 2 mg daily (usually .5 - 1mg at a time) of Xanax and the relief is often amazing. Yes, not for anxiety but for NP. Maybe it relaxes the muscles, don't know but there...
    njfeds njfeds 51-55 Jun 28, 2014

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    I Have Notalgia Paresthetica

    I was just diagnose with NP, after visiting 2 doctors which thought it was just me scratching. I feel the tinggling sensation mainly when I do dishes or I have some stress. I do however work all day on a pc, but also workout every morning. I have had this condition for about 2...
    chano33 chano33 36-40 Sep 14, 2013

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    Physiotherapist, Diagnosed Today, Have Some Insight, ?Treatment Guidelines

    Interesting, thought I had a skin condition for years and saw the dermatologist today who diagnosed NP. Physiotherapists treating adult orthopaedic conditions requiring joint mobilizations often get thoracic pain. Well over ten years ago I had a colleague look at one of my ribs...
    MVE1 MVE1 56-60 4 Responses Apr 1, 2013

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    I'm New Here

    I WAS JUST TOLD THIS PASSED WEEK THAT I HAVE N.P.   AND I WAS SEARCHING ON THE INTENET AND FOUND THIS WEB SITE.   THE ONLYT THING IS THAT I DON'T HAVE THE ICHING.  I HAVE A BURNING SENSATION ON THE LEFT SIDE. AND AT TIMES IT'S SO BAD I CAN'T STAND IT TO WEAR CLOTHING.  TRY...
    TWIN2BY7 TWIN2BY7 36-40 3 Responses May 13, 2011

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    in desperate need of divorce

    My story begins like this. I've been married to notalgia for over a decade since my sophmore year of college (12 years to be exact). It's been with me during surf trips to costa rica, for all 3 years of law school, while getting admitted to the bar, while sitting at my desk at...
    CrayzeeTrain CrayzeeTrain 26-30 1 Response May 24, 2011

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    I'm Curious If There Is Dietary Relief?

    I've had Notalgia Paresthetica for 3 years now and nothing seems to provide relief. I have found that the days and times I've eaten less of the foods that promote inflammation I find a small amount of relief. Has anyone else had experience with treating NP with eliminating...
    shag021 shag021 31-35, F Nov 17, 2013

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    Going Crazy With Np

    Np has changed my life im stuck with this itch that drives me nuts. I have my girlfriend nail me which is she drives her nail right at the spot of the itch untill i fall to the ground in pain, However it takes the itch away for a very short period of time hurts so good sort of...
    sterosie sterosie 56-60 2 Responses Aug 13, 2011

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    smitabipin smitabipin 66-70 Dec 14, 2013

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    Diagnostic Nerve Block Used To Investigate Cause For Np (notalgia P.)

     Have had the CONSTANT itch (bottom right shoulder blade) for about 5 years until I learned it had a name...NP for short.    Did not know of the possible connection to thoracic spinal nerve impingement until just last week, but meanwhile over the years have had...
    Nivel Nivel 61-65, M 9 Responses Oct 16, 2009

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    Found Tempory Relief

    oraryI’ve had a severely itchy back for almost 17 years and at times it is so bad that I can’t imagine living like this anymore.  I have seen many doctors who all send me to dermotologists who treated it like a skin problem and nothing brought any relief.  Over the years, I...
    deuxchat deuxchat 66-70 4 Responses Mar 2, 2011

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    I have had this problem

    for several years. I, too, have at least one back scratcher in every room in my home, as well as in car and purse. A dermotologist told me to use Sarna Lotion on it. Sarna Lotion is available over the counter in most drug stores, including Walgreens and Walmart. It does not...
    missann44 missann44 70+, F Jul 23, 2015

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    Itchy Back

      I have what looks like a large bruise on my back and it itches occasionally. It is right on my bra line and for years I thought my bras were just itching me. Then my husband asked me how I bruised my back and I saw the dark patch for the first time. I noticed that my dad...
    Sonyag Sonyag 41-45, F Jun 24, 2013

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    Notalgia P. A Real Help!!

    I was diagnosed as part of a research group at St. Bartholomews hospital, London about twenty years ago when they were first testing topical creams made with strong chillies to try and relieve the condition - they didn't work however I have found something which really does but...
    cmbrooks cmbrooks 56-60, F 3 Responses Aug 1, 2013

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    I Think I Have This!

    After feeling a weird sensation under my scapula I investigated online and found this condition. I have the itching but mostly a tingling sensation. It happens more when I sit down for some reason. I am glad I am not crazy. Has anyone tried a chiropractor for this?
    Lttlebit13 Lttlebit13 36-40 1 Response Oct 3, 2012

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    Looking For Treatments That Worked

    Just recieved this diagnosis and thought it was a joke at first, but found all the symptoms on the web consistent with what I experience.  I'm interested that someone in this group finds nightshades to aggravate the itching.  Any indication other things do too like...
    VTRN VTRN 56-60 6 Responses Aug 26, 2009

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    A Long Time For A Dx

    I have severe cervical degenerative disc disease and had my neck fused in 2001.  I also have degenerative problems in my lumbar spine which causes sciatica.  I've been seeing a .pain control specialist since 2002.  Around 1995 I developed this small itchy spot under my left...
    judemonster judemonster 56-60 Jan 9, 2011

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    Battling Intense Itching For Several Years

    Hello, I'm a 50 year old female who has been dealing with notalgia parasthetica (NT) for years now--it starting as a benign brown spot right under my bra clasp around nine years ago. By 5-6 years ago the area started itching getting worse and worse. By 2009 it had spread to...
    ghsitch ghsitch 46-50, F 23 Responses Jan 26, 2010

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    Notalgia "Pathetica" Sounds More Appropriate

    I've put up with this thing for over 30 years now, and I am the "proud" owner of about 8 or 9 back scratchers; one in each car, one in almost every room in the house, one even in the gym bag. Oh, well!
    Bitto69 Bitto69 61-65, M Aug 18, 2013

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    43 Year Old Woman With Np...

     I have been dealing with NP for the past 6 years. My doctor told me to use capsaicin creme  but I had severe pain and burning upon applying. I did mix it with regular lotion to reduce the concentration. It did seem to help somewhat but it is a big pain to use as I wear...
    kyc1215 kyc1215 41-45, F 1 Response Nov 14, 2009

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    I can't believe this is an actual "thing".

    I ran into a few sites today after inputting "back injury" and "itch" after researching my thoracic injury for almost 3.5 years. My injury was a hyperextension of the thoracic spine at about T9 that damaged the vertebral articulation with the rib on the right side. Unfortunately...
    WreckedSpine WreckedSpine 46-50 1 Response Aug 28, 2014

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    No or less sugar works

    for me! For now no itch anymore! I am very happy with this result
    royalflo1973 royalflo1973 41-45, F May 7, 2015

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    To Scratch Or Not That Is The Question

    I was just diagnosed with NP by my dermatologist. Capsaicin was not helpful. If I scratch the area (left scapula) it is followed by pain and heat. Has anyone ever experienced a remission of symptoms from NP? if so for how long?
    Leftcoastlil Leftcoastlil 66-70, F May 26, 2013

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    Is My Np Story Different?

    I am a 48-year old female who was diagnosed w/ Notalgia Paresthetica a few years ago. It began in my back probably a good 15 years ago (I didn't know what it was, assumed it was a pinched nerve). A few years ago, I visted my daughter's dermatologist when I had a severe itch (w...
    yjmorton yjmorton 46-50, F 3 Responses Aug 28, 2012

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    Fascinating

    Hey all,Yep I too have had NP for quite a few years. Initially myself and my GP thought it was related to a Lipoma in the nearly exact same area - had the Lipoma removed - no itching for quite some time. Then it came back.......Oh heck, now what? Had moved cities by then. Had...
    777Drea 777Drea 41-45, F Feb 7, 2013

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    Safe Simple cure for NP - August 2015 - I am a

    62 year old female. Twelve years ago a chiropractor diagnosed me as having a degenerative (and always slipping) disk at the T3-T4 vertebrae. With the exception of good chiropractic adjustments that relieved some upper and lower lumbar pain -- there was nothing much else I...
    rose106 rose106 61-65, F 2 Responses Aug 16, 2015

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    I'm A Twenty-five Year Np Woman

    Twenty-five years ago I had a little pimple located on the left side of my spine just under my shoulder blade.  It hurt and itched at the same time. It drove me crazy for about a year.  Then I started getting other little bumps under my skin that both burned and itched...
    gussie306 gussie306 66-70 1 Response Oct 4, 2010

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    Self Diagnosis

    I have had this problem on and off for 12 years but this time it did not go away. After seeing my GP, used various creams, and seen a dermatologist I finally found Notalgia Paresthetica on the internet. I have seen my GP and he said he had heard of it but never come across it...
    cmcisme cmcisme 51-55 Feb 19, 2013

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