I Have Occipital Neuralgia

Personal Stories, Advice, and Support 19 People

    Welcome To My World...

    My name is Dawn. I am 36, mother of 3 teens and wife of Christian. Thank God he is here. In 2002 i bad a car accident that left me in a coma and on life support. I also had a closed head injury. Shortly after i went home, i went back to work as a CN. I began having the most...
    dawnspecht dawnspecht
    36-40, F
    2 Responses Apr 1, 2012

    I have been having terrible headache

    that starts at the base of the back of my head and ends behind me eyes. My PCP said, "it is probably just a pinched nerve". She said she could send me to a pain specialist if I really needed too. I went to the pain clinic and he diagnosed me in 5 minutes. He gave me an...
    schnauzermom1 schnauzermom1
    51-55, F
    2 Responses Mar 22, 2014


    I was diagnosed with Occipital Neuralgia Dec. 2010 after a long series of doctor visits and clinical studies. It took the doctors about 3 years to figure out that I had O.N. It is most likely genetic in my case, as such, I've been dealing with headaches since an early childhood...
    CodeCruncher CodeCruncher
    22-25, F
    6 Responses Jul 29, 2012

    Possible Occipital Neuralgia

    I am waiting to be officially diagnosed but I belive I have occipital Neuralgia. On Nov. 22/11 I was awaked by the worse headache |I have ever had. I do not get headaches so this was quite alarming. It was on the left side of my head and felt as if someone was hammering a nail...
    morley6 morley6
    Mar 5, 2012

    Docs Think It's O.n.

    About 3 years ago I started having really sharp pain in my head. I've been checked out by many different kinds of docs and was sent to a pain management doc, who told me it was O.N. I've had injections in the back of my head and many different pain medications but nothing is...
    rayjustine24 rayjustine24
    3 Responses Sep 11, 2012

    Did everyone get better?

    I am not seeing any new activity... Finally after 4 months of asking my Neurologist for a diagnosis note to start a possible disability claim, He wrote I suffer from Migraines and Occipital Neuralgia. The funny thing is he never mentioned ON to me before. But it makes sense...
    savana4 savana4
    1 Response Oct 9, 2015

    It Is Difficult To Endure This Pain Daily

    I began having these excruciating headaches about 2 years ago. They were unlike any headache or migraine I'd ever experienced. I would wake in the morning feeling like someone had smashed the back of my head at the base of my skull with a brick. My scalp is extremely tender and...
    Genesis922 Genesis922
    41-45, F
    3 Responses Feb 7, 2012

    Does no dr know how to treat this?

    Or can't it be treated? I had a block and had no relief. Zero. Now I'm having an epidural steroid injection to hopefully stomp out other pain but the dr said it likely won't help the ON. Apparently because I also have migraines I'm just out of luck. This is unbearable! Narcotics...
    Genesis922 Genesis922
    41-45, F
    2 Responses Aug 9, 2014

    I have noticed everyone is from last year

    or before,I have noone to talk to about ON my family and coworkers are tired of hearing about my pain,I feel I can not hardly go on anymore its been going on for about 3 years now and it is the worst it ever has been,I just started topamax and take gabepentin.Anyone out there...
    sunrise52269 sunrise52269
    46-50, F
    1 Response Dec 8, 2015

    Saw the Nurse Practitioner

    and she was more helpful than any dr has been. Setting me up for an occipital block ASAP & changed some other things about my treatment plan. Finally! I feel someone is actually doing something to help me!
    Genesis922 Genesis922
    41-45, F
    1 Response Jun 28, 2014
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