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I Have Or Know Someone With Parkinson's

Personal Stories, Advice, and Support 94 People

    I Was Diagnosed In April 2010

    I am a stay at home Mom of 2 girls.ages 11 and 14..and in april neurologist said I ahve pd..early onset..My only symptoms right now ...are tremors in left hand and forearm...and NO sense of smell..Would like to talk to other ppl and share stories, support... 
    tarotstar tarotstar 46-50, F 4 Responses Jun 8, 2010

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    I was diagnosed with early onset Parkinson's

    several years ago, I will turn 50 later this year. Medication has helped me tremendously but I realize the effects of the medicine will decline over time, I am beginning to notice that the medicine is beginning to wear off quicker. Since my diagnosis I try to live each day to...
    rss4764 rss4764 46-50, M Apr 5

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    What A Way To Start The New Year! Part 2

    Sorry about that little break since my last story, "Part 1". But i had a pretty good excuse.I was trying to get my mom out of the effing Hospital!!!Oh and by the way, it was my birthday on New Year's Eve.  Normally i would have gone to see The Grateful Dead in San Francisco, but...
    johnnybliss johnnybliss 41-45, M Jan 14, 2012

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    ONE In My Father's Collection of Illnesses

    My dad was diagnosed with Parkinson's following his second heart attack.   It's a life sentence,   Right about that time, the Pope died.  Tje Pope had Parkinson's.    He became obsessed with the Pope and everything about him. He would...
    TacheyGirl TacheyGirl 26-30 5 Responses Sep 6, 2008

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    My MJ Fox Story

    My dad has PD. He was diagnosed in 1997 after a stream of misdiagnosises. He has always liked Michael J Fox. I grew up watching reruns of Family Ties and knowing little facts about M J Fox that most people don't know. I guess my dad feels that he can relate to Fox and although...
    meldew meldew 22-25, F Jul 13, 2013

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    My Dad Won't Admit He Has Parkinson's

    When I was 6 my father quit his job. At the time, my mother just said that work was making him sick and that was why he quit. Due to some strange blip in childhood curiosity I didn't question this at all and instead welcomed the fact that he was...
    deleted deleted 26-30 1 Response Sep 1, 2009

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    What A Way To Start The New Year! Part 1

    Okay!  On New Year's Eve, my, er.. uh, birthday, my mom was getting pretty bad after a rough couple of weeks, what with Christmas and all.  We were doing pretty good with her meds, which is a feat in itself.  But she had been real bad about getting enough sleep, had been...
    johnnybliss johnnybliss 41-45, M Jan 9, 2012

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    Dorothy

    I've known her all my life, since she would take me on after dinner "fat" walks around the block, her same light blue tennis shoes setting the brisk pace. I'd occasionally run to catch up only to have her smile back at me and tell me, "boy, you're gonna have to keep up if you...
    Inman Inman 31-35, M 2 Responses Jan 7, 2008

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    Someone Please Help Me...

    I remember when I was a little kid, my grandmother, Omi (grandma in german), used to be able to run after me up the stairs and around the house, play games with me, and even sit around and just be there. I used to run to her when I was crying; when I thought the world was insane...
    Ve6Mi7 Ve6Mi7 18-21, F 2 Responses Apr 8, 2011

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    I Hate Parkinson's Disease With A Firery Passion!!

    My grandfather had parkinsons disease--- i took care of him every day-- i watched my hero and bestfriend decay -- he died this may--- I hate Parkinson's disease---- the end.
    jmillsmmc2012 jmillsmmc2012 22-25, F Dec 7, 2011

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    I See the Signs

    I see the signs of Parkinsons.  I love this person.  How do I ask him/ tell him I know. 
    tinkerbelly tinkerbelly 41-45, F 1 Response Nov 18, 2007

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    A 3 Year Old Mind In A 85 Year Old Body!

    I'm shaking. I'm tired. I don't have the energy to think. I'm truly a gifted writer; because, this is all I have the energy to do. My life is slipping away. I don't even have the time or energy to go get my hair professionally cut. I do that about once a year. I can't cut the...
    4vrUnique 4vrUnique 46-50 11 Responses Apr 6, 2010

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    I Have Pd.

    I found out that I have Parkinson's 2 days before Christmas a year ago. It has been a struggle finding medications that will work for me. I am doing pretty good right now. My medicines are working pretty good. I have changed my diet. I try to exercise every day and I try to laugh...
    Karisse Karisse 56-60, F 2 Responses Dec 26, 2009

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    My Mom Has Parkinson's(PD).

          I just got back from running across town (20 -30 min. depending on traffic) to assist my Mom in getting to bed.  Nothing new. For roughly three years or so, I've been her primary go to person when she needs help.  Sometimes, its BAD. ...
    johnnybliss johnnybliss 41-45, M 2 Responses Sep 8, 2009

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    My Dad Went Crazy And Left Home

    I still remember the night he left. He and Mom had been fighting, and I learned to stay in my room when this happened. But I was curious, so I sat at the top of the stairs and listened. They screamed at each other for a few more minutes, and then the door slammed. The house was...
    superkitty17 superkitty17 31-35, F Sep 9, 2012

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    A Tribute to my Grandfather

    A few days ago, I lost my grandfather after a two month long illness. A very independent self-made man, he had completely lost mobility (especially in his legs) during his last illness. It was a huge emotional blow to him to have other people perform even the most basic and...
    cameronr cameronr 18-21, F 6 Responses Oct 1, 2011

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    Evidence Suggests Usefulness Of Curcumin Against Parkinson's

    http://www.lef.org/whatshot/2012_03.htm#prostaglandin Curcumin shows promise for Parkinson's Curcumin shows promise for Parkinson'sMarch 21, 2012. Research conducted at Michigan State University discovered that curcumin, a compound found in turmeric, helps prevent clumping of...
    conceptualclarity conceptualclarity 51-55, M 1 Response May 2, 2012

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    Dropped Mom Off In A Special Care Home

    [This post was originally posted in my notes section on Facebook. I shared my experiences and thought on tangential political and Christian issues. I tried to edit it for here, but I only inserted comments. So bear in mind that some of the stuff doesn't apply here.] It's been a...
    eugenetswong eugenetswong 36-40, M Dec 4, 2013

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    This Goes Out To You Dopamine Girl!

    A dear friend of mine, who watched a friend of Hers slip into the madness of Parkinson's medication, said it best: "You take a perfectly sane person with a mobility disorder and turn them into a person who can move and function, but is slowly going crazy." Here's my Mom's pill...
    johnnybliss johnnybliss 41-45, M 4 Responses Aug 22, 2010

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    Vitamin E Can Treat And Prevent Parkinson's

    http://undergroundhealthreporter.com/natural-vitamin-e-proven-parkinsons-treatment Excerpted from "Natural Vitamin E Proven Parkinson’s Treatment" by Danica Collins "...According to WebMD, “experts have suggested that 800 IU to 1,200 IU per day of vitamin E can help alleviate...
    conceptualclarity conceptualclarity 51-55, M Dec 26, 2011

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    Mom Has Pd And I'm Completely Torn...

    My mom was recently diagnosed with Parkinson's but has been an alcoholic for the last 18 years. Needless to say, the alcoholism has alienated her from alot of our family but I'll only speak for myself. I moved from the US to Ireland 4 years ago with no intention of going back. I...
    cscallender cscallender 26-30 1 Response Oct 7, 2010

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    Maybe A Trip To The Hospital Is Just What She/we Needed

    Yeah, she'll be fine.  It's nothing we were too surprised about. i had noticed a change in her diet, and her overall energy level. She had a Urinary Tract Infection that we pretty much knew about, but she had been reluctant to get it checked out. The fact that she was anemic...
    johnnybliss johnnybliss 41-45, M 3 Responses Jan 28, 2011

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    It's Hard, Watching Him Wither Away...

    My dad used to be this vibrant energetic loving person and now he's this zombie that barely gets around, never smiles and seems to have no short term memory. I really don't know how to handle this. He has no concept of personal hygiene or consideration for anyone else's needs...
    4vrUnique 4vrUnique 46-50 4 Responses Jul 21, 2009

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    A Bit Of A Rennaisance

    I won't be so bold to say that mom is "better", by any stretch of the imagination. But there have been signs that she is willing to get back in the ring and swing some more punches against that bastard known as PD. I can't help but feel like i've been part of the reason for...
    johnnybliss johnnybliss 41-45, M 1 Response Dec 2, 2010

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    Its The End

    a few days ago my mom told me that the nurse that comes to our house to take care of my dad, said that he's pretty much going downhill from here and that taking him to the hospital is pointless because there is nothing they can do for him anymore. then she told me i need to be...
    paris1213 paris1213 16-17, F 2 Responses Mar 23, 2013

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    What A Way To Start The New Year! Part 3

         Now i want to begin this last (hopefully) story about my first 12 days of the new year and the bummer situation i had to deal with by saying this:PARKINSON'S SUUUUUUUUUUUUUUXXXXXXXXXXXXXXXXXXSSSSSSSSSSAnd i also want to state that i don't really hold a grudge against any...
    johnnybliss johnnybliss 41-45, M 1 Response Jan 15, 2012

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    Just Putting This Up For Discussion

    Hey check this out! An old buddy of mine came down from Washington, showing up on my doorstep... to visit with my mom!  See, he is in his 50's with PD.  He swims every day, plays some racquetball or frisbee golf and even sticks to learning how to play fiddle.  But even with...
    johnnybliss johnnybliss 41-45, M 1 Response Oct 6, 2011

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    Anyone With A Similar History To Me And My Family Please Get In Touch

    Please tell me if you have a history showing a pattern of the following in you or your family: rheumatoid arthritis, psychosis/anxiety/obsessiveness/insomnia followed by Parkinson's with dementia, numbness/pins and needles possibly in feet or elsewhere, double jointedness, hernia...
    ornithine ornithine 41-45, M 1 Response Aug 23, 2013

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    A Stroll Into The Store

    This is one of those good stories about living with someone with PD.If a picture paints a thousand words, well this video speaks volumes about how happy i was to video this. It's been a hard road. My mom let PD really get to her the past 10 years. After a couple of trips to the...
    johnnybliss johnnybliss 41-45, M 1 Response Jun 5, 2012

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    Picked Mom Up From A Special Care Home This Past Week

    [This was also posted on my notes section of Facebook.] I'm pleased to say that the home did a great job of taking care of her. She ate more, she gained 10 pounds in 2 weeks [which was almost impossible here], and she gained strength and flexibility. She is also much more...
    eugenetswong eugenetswong 36-40, M Dec 4, 2013

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    My Mom Has Parkinson's

    It breaks my heart to see the lonely journey that she has ahead. There seems to be nothing that we can do. Even when we spend time with her during an episode, she does not seem to understand what is going on around her, so she can feel alone and unloved. When she is feeling...
    eugenetswong eugenetswong 36-40, M Jul 3, 2013

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    My Daddy

    He was diagnosed when I was 8. Im 16 years old now and anyone who knows what this disease is knows that 8 years later its pretty bad. He can't move he lays in a hospital bed pretty much all the time. occasionally we get him up in his wheel chair but he's going to be gone soon...
    paris1213 paris1213 16-17, F Feb 9, 2013

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    Know What? Mom Still Has Parkinson's!

               I mean after all those pills, the attempts at physical therapy, trips to different neurologists... not too mention all the comforting i've done (Oh yeah and all the help i get HA!), all the hours spent by her side...
    johnnybliss johnnybliss 41-45, M 3 Responses Jun 2, 2010

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    My Dad Has Parkinsons, Left Home And Know Has A Gambling Addiction Due To His Meds

    I'm 23 and my father was diagnosed with PD three years ago. He hid it for some time I found out. He hasn't been the same ever since. He left home 6 months ago because he wanted a divorce from my mom just as i got back from college wanting more than anything to see him. I didnt...
    pennylanes pennylanes 22-25, F 1 Response Jul 20, 2012

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    Crazy Driver

    A couple of days ago I had to leave work early to renew my passport. On my way to the place I had to use a GPS because had never been there. The traffic was very light 4 congested chicago traffic. All of a sudden the machine says take the right to go into the express way and...
    penguindate penguindate 36-40 2 Responses Jan 22, 2011

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    Pat

    Pat, was a brilliant scholar. A professor at a New Jersey college, Pat was retired. Pat was a cross dresser. A delightful, energetic, loving life kind of person. Pat was slight of build and of average height. Pat loved to be Patricia. And Patricia loved to cook and...
    jml2000 jml2000 56-60, M Jul 5, 2013

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    Just Another Story

    My mother was diagnosed PD last year in the fall. It's been over a year now and she has started treatment months ago. She is 59 years old and I am 22. This has been quite a ride ever since we've known, and I still can't say that things have settled down or ever will. I have so...
    Priskitteh Priskitteh 22-25, F 3 Responses Jan 25, 2013

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    My Aunt Jerry....

    My Aunt Jerry has Parkinson's. She has been living with it for about five years now. She was always the most healthy person for as long as I could remember. Always fit, dieted, exercised  and was just in the best health ever. Finding out she had Parkinson's was a HUGE shock for...
    deleted deleted 26-30 Dec 8, 2012

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    Vitamin D Deficiency Rampant And Implicated In Parkinson's And Cognitive Decline

    Http://www.vitacost.com/Can-Low-Levels-of-Key-Vitamins-Lead-to-Cognitive-Decline?csrc=EM-FYH20100729:main For Your Health: Can Low Levels of Key Vitamins Lead to Cognitive Decline? By David N. Ilfeld, M.D. Board Certified Internal Medicine, Rheumatology, Allergy & Immunology 7...
    conceptualclarity conceptualclarity 51-55, M Jul 29, 2010

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    When Life Looks Like Easy Street..

    There is danger at your door. Uncle John's Band, The Grateful Dead.        It was just a couple of months ago, that i really thought my Mom was making some headway in developing a system of living, that would ultimately enable her to at least deal with the debilitating...
    johnnybliss johnnybliss 41-45, M 1 Response Jan 22, 2011

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    My Grandmother

    has Parkinsons, she was diagnosed 2 years ago she is 93 years old. Grandma lives over the other side of the country to me so I never get to see her any more, my parents just got back from a trip over to see her after a nasty turn that put her in hospital and now she has been...
    Indigosea Indigosea 36-40, F Sep 4, 2012

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    If You've Been Diagnosed...

    My father has had MSA for (as diagnosed) 4 years. Just in the past 6 months he went from being able to drive to not being able to get himself into bed by himself. Its very difficult for me since I can't lift 175 lbs, I can do 60 lbs max. I've had to lift him off the floor with...
    4vrUnique 4vrUnique 46-50 2 Responses Apr 6, 2010

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    My Mom

    and my grandfather. My grandfather is amazingly strong. My mom was devasted when she learned, and didn't tell anyone in our family except for me. She has a tremor in her hand, so everyone knows now.
    deleted deleted 26-30 5 Responses Mar 18, 2008

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    Living With Parkinson's Is a Nightmare to Say the Least

    hi i am a 45 year old woman  who's been living and batting with Parkinson's for about 21 years and quite frankly  i have had enough of this disgusting - torcherous - brutal  - evil disease    i Hate it with a Passion !!!!!!!!!!!!   ...
    dopaminegirl dopaminegirl 41-45, F 3 Responses May 29, 2009

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    Related Experiences

    I am sadden by the fact that 2 of my relatives have been afflicted with cancer this year. It's even harder on my mom because it was her dad and older sister. I lost my grandfather...
    tessa4ever tessa4ever 31-35, F Sep 18

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    Actually I know two for certain, my grandfather has rectal cancer and my dad has cancer too although I don't know what kind of cancer he has and I don't want to ask. I.. I don't...
    udamansteel udamansteel 16-17, F Sep 5

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    my best friend is currently battling cancer and I'm the only one that knows.... it's stage 3 and developing on top of that my other best friend has an inoperable brain tumor that...
    xoxogossipgirl7 xoxogossipgirl7 13-15, F 6 days ago

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    Watching my mom happy know she will be sad and full of pain. Sucks. Cervical cancer is really bad. I wish everyone would get checked. Every day I cry. Don't want her gone. I am...
    hopeforjanice hopeforjanice 41-45, F Sep 22

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    Me, I have Tourette's. And they are my companion
    saboosa1 saboosa1 13-15, F 2 Responses Sep 5

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    Today was the APDA Parkinson's Walk in Seattle. It was a pretty good turn out. In total the walk raised almost $26,000 for Parkinson's research. Personally I was able to raise...
    LifeinWoodinville LifeinWoodinville 41-45, M 3 Responses Sep 15

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    I don't know how I did it but I somehow managed to not write any stories over the summer. It was hard to fight the urge because I'm a bit of writer and when ideas come I just want...
    Dreamer32 Dreamer32 26-30, F 1 Response Sep 2

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    I have found someone that's opened a new channel of my heart....someone that has presented me with new challenges that I'm very excited about. ...it's been so very long since words...
    toehold toehold 26-30, M 3 days ago