I Have Osteochondritis Dissecans

A Osteochondritis Dissecans anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Osteochondritis Dissecans. You're not alone. 67 People

    Just to update my last post,

    I had the surgery yesterday's. Knee is very sore but surgeon said it was a success. He used tree titanium fixation screws to attach the lesion and said I got in just in time. I'm 3 months without impact then reevaluate from there. One thing I'm concerned about is one screw head...
    AliVessali AliVessali
    Apr 24, 2015

    Ocd In Knee, Possibily Returning - Help Ideas.

    I was diagnosed with OCD in my left knee in October 2011. I am an 18 year old girl and play hockey for my country, school and club, it is a huge part of my life. I had knee pain from around april of 2011 but I struggled through as I wanted to play in the european championships...
    curtains123 curtains123
    2 Responses Jan 2, 2013

    I Have Ocd :(

    My story starts in july 2010. I started feeling pain in my left knee i just thought maybe it was from pushing a double stroller all day. A couple days went by and my knee was still sore. So i went to my home doctor to let him know that my knee flet werid thats something was wrong...
    audalean audalean
    22-25, F
    1 Response Sep 17, 2012

    I thought I should update

    since I'm getting alot of messages! It's been over 6 months since my 2nd surgery. I had a cadaver placed in my right knee. Now with a huge scar running vertically across my kneecap I'm so grateful for modern surgical techniques. The first few months were EXTREMELY difficult. I...
    kgdean6 kgdean6
    18-21, F
    Dec 14, 2014

    I'm 30 With Ocd

    I have OCD like everyone else. I was 23, in college and working when one day at work my friend pointed out to me that my leg was highly swollen. I went to the emergency room right then and was told it looked like an old fracture. About 3 weeks later I got a certified letter in...
    Gidgin Gidgin
    26-30, F
    2 Responses Aug 12, 2012

    Just Found Out I Need Another Ocd Operation

    I had my first in 1993 (I was 13). Now 31, I just found out I have to get another... The same Dr. that did Joe Montana's elbow, did my OCD surgery in 1993...that had me pretty confident in a good recovery. It bothered me off and on for a couple years after that, but after good...
    zachczirr zachczirr
    Oct 4, 2011

    I was told my 5 year old daughter has

    Osteochondritis Dissecans and that it is very rare for a child her age to get. her left leg is worse then her right. my question is what can I do to help her or has anyone else gone though this with a child her age? Im at a lose on what to do. I have look on the net for ours and...
    jeans9009 jeans9009
    26-30, F
    1 Response Mar 12, 2014

    I Have Osteochondritis Dissecans

    I was born with a miniscus fiscus, a problem with the cartlage being too big for my knee joint. This was discovered when I was 5 years old. At aged 6, I had surgery to fix this problem. Unfortunately, the issues with my leg didn't go away and by the time I reached 7 years old...
    justjojo2011 justjojo2011
    1 Response Mar 10, 2013

    Stage 4 Ocd

    I have been diagnosed with OCD in my right knee.  My left knee was x-rayed and appears to be completely intact.  My diagnosis was about 4 months ago.  I had a large loose body broken off from my medial femoral condyle.  My surgeon repaired my lesion using bioabsorbable screws...
    christbenimm christbenimm
    18-21, M
    3 Responses Mar 2, 2011

    Hi there, I'm 28 and I recently had a CT scan

    for something completely unrelated and they found a lesion in my knee that might be OCD... I can feel the lesion but it's not painful. Iv decided to get it screwed in to save it coming loose eventually. whats the surgery like and has anyone out there got success stories for a...
    AliVessali AliVessali
    Apr 1, 2015

    Doctor #1, #2, #3, and #4

    I was 7 or 8 the first time I developed Osteochondritis Dissecans.  The pain was, in my dramatic opinion, unbearable and torturous. My doctor didn't diagnose me, though he knew what it was, and I left the hospital with an unsatisfying 'you have a hole in your...
    alivan10 alivan10
    Feb 17, 2010

    Talar Ocd-need Allograft

    I've had OCD in the talus since I was 14. I've had two prior micro fracture surgeries and am now considering a Talar dome allograft surgery. I'm just looking to be able to work and walk without daily pain. I haven't been able to jog/run since I was first diagnosed. I would love...
    Kellyp23 Kellyp23
    26-30, F
    1 Response Oct 19, 2012

    The Day My Life Starting Changing

    My story starts during the week of June 18th. I'm the captain of the JV cheer squad at my school and I'm a flyer. We went to cheer camp on that day and it was 4 days long. On the second day of cheer camp, my left knee started to really bother me. My coach made me ice it for a...
    mayykayy mayykayy
    16-17, F
    5 Responses Aug 3, 2012

    My 19 year old son has OCD.

    He was just diagnosed with it a few weeks ago. I have spent tons of time researching all of our options. It sounds like you defiantly need to have the right Doctor. I know that there are quite a few Doctors that are able to treat it, but how do you know its the right...
    mindypratt mindypratt
    1 Response Nov 18, 2014

    Jack Dx Today Age 10

    My son Jack who is 10 was found to have osteochondritis dissecans today. We went I because he hurt his left knee in a collision in his lacrose game last night. I was not even going to take him but wanted to make surest was ok to play on Sunday. The ortho did both knees to...
    Spols7 Spols7
    1 Response Sep 21, 2012

    I just got done reading some stories people had

    written about there osteochondritis dissecans experiences so I thought I should share mine I find my story unique, just as I'm sure everyone else fines theirs. My story is kind of long but worth reading. I was diagnosed with OCD as a sophomore in high school. I was a 3 sport...
    ethan452 ethan452
    22-25, M
    2 Responses Aug 12, 2014

    Osteochondritis Of Both Knees At Birth

    I have struggled with this my whole life. I have always run funny even as a child. I have been to a bunch of doctors, and had anthroscopic surgery. I want to become a police officer. Running has held me back. I have always been an active person, however if it rains my knees are...
    nferrara nferrara
    26-30, F
    Jul 30, 2013

    Two Young Sons.... Have Ocd In Both Knees

    Son #1 -   March of 2009 my son was diagnosed with OCD. He was 13 years old.  He had a loose body floating around so they had to do surgery to remove it.  While in surgery they decided to drill holes in his right knee only.  He was on crutches for eight weeks.  Four MRI's...
    ThankGodforXbox ThankGodforXbox
    6 Responses Jan 16, 2011

    I Have Osteochondritis Dessecans

    I am a 26-year-old woman, and was just officially diagnosed with this today. I'll have to have surgery on both knees to correct the issue, am walking with a cane due to extreme pain when any bit of weight is placed on the worse of my two knees, and will unfortunately have to plan...
    1 Response Feb 5, 2013

    My Experience With OCD

    It all started when I was about 11 years old. I started to feel a minor pain in my left ankle. I was a very active swimmer back then, I used to do a lot of competition in swimming or triatlon. Strange thing was, that I often sprained my right ankle - yet, I had problems with my...
    OSDboy OSDboy
    1 Response Jun 29, 2013

    I am 18 years old and I tore my ACL in February

    of 2013. 6 months in post surgery I found out i had OCD in my other knee. I had surgery on it 3 months later and am now 6 months out since that surgery. I just went to the doctor for my knee checkup and they informed me I would have to have another invasive procedure involving...
    kgdean6 kgdean6
    18-21, F
    1 Response Apr 14, 2014

    I Still Have Osteochondritis Dissecans And I'm 16

    When I was younger I was told that I had JRA- which is Junior Rheumatoid Arthritis. I wasn't sure what that was, but all i could remember is seeing my parent's faces. They looked so ashamed, they just hugged me and told me it would be okay. I said okay and life went on. Instead...
    MissBails MissBails
    16-17, F
    4 Responses Apr 15, 2012

    My son is 15 he had surgery in Oct 2014

    which was lateral release and tightening of his own inner ligament. He was casted for 4 weeks then immobilized for 6 weeks. Now surgery did not work we knew it was a bandaid surgery hoping to get him through growing. Now he knee is so bad that in a sitting position the knee goes...
    Dbaird73 Dbaird73
    41-45, F
    Apr 17

    Osteochondritis Dissecans X 3

    I was 12 when I was first diagnosed with Osteochondritis. Before that, my pediatrician had told me the pain I felt when running was a side-effect of "growing too fast." and that all I had to do was run more and it would get better. It was my gym teacher who suggested...
    bakanekofan bakanekofan
    18-21, F
    16 Responses Nov 29, 2009

    Just Had Surgery Number 10

    I was diagnosed at 15. Since that time I've had 10 surgeries. I've had all of the major sports team doctors in ATL operate (usually experimentally) on my left knee.
    reganlester reganlester
    31-35, F
    3 Responses Sep 20, 2010

    Not sure if anyones read my story

    or feels concerned about their own experience with this condition. I seem to have made a full recovery. Doctor has given me the green light to partake in sports as I did before but warned that there is a greater chance of knee issues because of the surgery (as with any...
    AliVessali AliVessali
    1 Response Jan 29

    I just got done reading some stories people had

    written about there osteochondritis dissecans experiences so I thought I should share mine I find my story unique, just as I'm sure everyone else fines theirs. My story is kind of long but worth reading. I was diagnosed with OCD as a sophomore in high school. I was a 3 sport...
    ethan452 ethan452
    22-25, M
    Aug 24, 2014

    Osteochondritis Dissecans

    Hi I am lucky I don't have this but recently my husband has been diagnosed with this and there is not alot of information out there or any support groups He woke up 1 day in july 2005 and couldn't straighten his left arm. We went to the local hospital to be told nothing...
    sharonban sharonban
    36-40, F
    1 Response Feb 12, 2010

    7 Long Years With Ocd

    I'm apologizing in advance for the length. I need to get my story out. I am so glad to have stumbled on this group. Its really hard not to have others in your life understand what you are going through. Thanks for reading :) It all started halfway through my junior year...
    joyousbelle joyousbelle
    26-30, F
    4 Responses Nov 1, 2012

    My Experience With OCD In Right Knee

    I guess I will start from the beginning.. I started gymnastics at age 7 and soon joined the competitive team. Being on team, I practiced 20 or so hours a week. I must have been around 10 yeard old when my knee started hurting along the lateral side. I went to the doctor a couple...
    clsjaff clsjaff
    18-21, F
    1 Response Aug 23, 2013

    So just to update I got a call 3 weeks ago

    Friday for a cadaver. 2 weeks ago Friday I had surgery. They opened me up and said the hole in my knee was 3/4ths of an inch deep and was much larger than they had expected. I had arthroscopic with an open surgery to insert the bone piece. 6 weeks non-weight bearing is rough but...
    kgdean6 kgdean6
    18-21, F
    1 Response Jun 17, 2014

    Osteochondritis Dissecans

    In July of 2010 I was shampooing my rug, my dog barked and I turned to see who entered my home. When I turned, my right knee "popped", and swelled. I did the typical RICE method. After a week of pain I finally made appointment with ortopedic. He drained 90cc of fluid off the knee...
    debieq518 debieq518
    5 Responses Mar 6, 2012

    Osteochrondritis Dissecans Causing Back Pain

    I feel that my Osteochrondritis Dissecans is getting worse, but on top of that it is causing my lower back to hurt. Any suggestions?
    abetterworld101 abetterworld101
    18-21, F
    Jun 17, 2012
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