I Have Osteogenesis Imperfecta

A Osteogenesis Imperfecta anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Osteogenesis Imperfecta. You're not alone. 5 People

    As far as we know, my grandmother was the first.

    She had five kids, four with O.I, one died at age 3 with severe heart problems due to the O.I. My mother passed it on to my brother and I. My daughter was diagnosed in the womb with it. She has the lowest form, hardly even there. So thrilled with how well she's doing.
    foreverlived foreverlived
    26-30, F
    Dec 20, 2013

    I have Osteogenesis Imperfecta through a

    spontaneous genetic mutation I have type 1 and type 4
    OIGirl18 OIGirl18
    18-21, F
    Aug 5, 2015
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