I Have Osteomyelitis

A Osteomyelitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Osteomyelitis. You're not alone. 48 People

    Osteomyletis Is Controlling My Life

    I will be having my second surgery next week. The pain has been so intense that I have screamed out for relief. Pain pills only last for a short time and the pain seems to come back stronger. I'm so frustrated and often wonder if there will be a end to all the pain.
    amagjc amagjc
    1 Response Jul 20, 2012

    Why Me? I'M Only 16!

    I'm and avid hockey player and train 6 times a week as well being as being a competitive gymnast and training 3 times a week. Why did it this happen to me? I keep asking myself this! It sucks!! I miss sport and my normal life! Since January I have had 22 appointments that's in 6...
    Katykat1997 Katykat1997
    2 Responses Jun 11, 2013

    Living A Life With Osteomyelitis

    I have had osteomyelitis since I was born, when I court strepococus as soon as I was born from a dirty birthing tabel, that was back in 1959. I have chronic osteomyelitis in my right leg with a open sinus which I have had to dress daily since 1974. I also have osteomyelitis in...
    grace1988 grace1988
    Oct 28, 2010

    Fungal Osteomyelitis In Foot?

    I had a minor bunionectomy in 2011, it didn't heal properly and I had an open surgical wound for 4 months. Surgical debridement and culture done, this Showed a candida infection and I was put on diflucan for about 3 weeks. About three months later the pain was back and my foot...
    Amifrau Amifrau
    41-45, F
    Oct 22, 2013

    The Joys Of Motorcycles

    Hi im a 52 year old male and have had OM since having a bike accident in 1976. I developed osteo after having my femur pinned. Despite several operations it seems to be incurable. The joys of unclean NHS hospitals of the 70's. Just glad i found your group and to know im not alone...
    nigel2112 nigel2112
    51-55, M
    1 Response Nov 9, 2012

    56 Years Of Living With Osteomyelitis

      I would first like to introduce myself, I am 65 years old male and first got Osteo when I was 9 years old in 1958. I live in the UK. I woke up one morning with pain so bad there were no words to describe just how bad it was. My mother would not believe me and sent me to...
    scimiman scimiman
    61-65, M
    1 Response Mar 17, 2012

    What'S Going To Happen To Meeeeeeeee !!!!!!!!!

    I have osteomyelitis and i just found out 3 weeks ago. I'm really scared because i haven't had any surgery's in the past four years to cause this disease. I really just need people to help understand i'm really confused because i also only have the symptoms of bone pain and...
    tashalee22 tashalee22
    5 Responses Jun 12, 2013

    Osteomyelitis In Right Femur

    I have had Osteomyelitis for the past 28 years this October in my Right Femur.  My leg was crushed by a truck that pinned me up against a brick wall.  It took me two years to get it back and have been in living hell since.   I also take pain killers on a daily basis which in...
    ctheos7 ctheos7
    1 Response Aug 7, 2011

    Why Me??

    Hi my name is Jordan, (im a girl). I survived osteomylitis. I had it in the bone of my right foot. I was only 12 at the Time. Here's my story. So about 2or 3 weeks after my 12th birthday I was running outside and had a little bit of pain in my foot. I thought I just sprained or...
    Jordanismyrealname Jordanismyrealname
    18-21, F
    4 Responses Sep 28, 2013

    I Survived Osteomyelitis

    My name is Melissa and I was diagnosed with Osteomyelitis in my left Fibula when I was 9. I spent a week in one hospital and over many blood tests and surgeries I was sent to a Children's Hospital in Milwaukee. I was relieved to finally have a diagnosis. I had a central line put...
    MelissaDP14 MelissaDP14
    Dec 2, 2010

    I've had chronic osteomylitis in my femur

    since I was 13 which was wrongly diagnosed as junior arthritis until I was 16, I'm now late 30's with no signs of it going. I've had numerous operations and the osteomyelitis even fused my knee so can't bend my leg, it has me so tired and pain the majority of days. How do...
    deleted deleted
    2 Responses Feb 21, 2015

    Learn To Live With It.

    hi, im a 53yr old male uk, have chronic osteomyelitis for the last 40yrs. why is there no association, or help groups around?. had operations in 1973/1984/2001, and now again in march 2012. what ive noticed is that the technoligy has changed so much over the last 40yrs its...
    mainman999 mainman999
    51-55, M
    2 Responses Aug 13, 2012

    Hello. Anyone with chronic ostemyelitis

    who can help me answering some questions?
    gabycst gabycst
    26-30, F
    2 Responses Dec 8, 2014

    5 Years Of Osteomyelitis

    My name is Ike Im 54 years old. I got OM after surgery to fix gout in my left foot . The surgeon refused to accept that I had the disease for weeks by then it had turned chronic 10 operations and 1 recurrence later I'm still in a hell of a lot of pain but now the hospital don't...
    reb13 reb13
    1 Response Sep 4, 2012

    Recurring Osteomyelitis

    Hi, I suffered an industrial injury in jan 2011,compound fracture of the tibia,dislocated ankle and smashed all the bones in my foot. Very lucky not to have a lower leg amputation,fitted with an external fixator,2 months in hospital,various operations and then due to a lack of a...
    Shortsimon Shortsimon
    46-50, M
    May 28, 2013

    I Have What!

    In mid September of  2010 I woke up one day with a small pain in my right leg at the bottom of my shin. The pain was light and bareable at first, and I assumed it was a muscle sprain or something. However, after two weeks the pain got worse and I noticed a tiny hot spot on my...
    kelli81 kelli81
    1 Response Apr 12, 2011


    I am 49 years old, I have lost ove two hundred pounds over the last few years. I was getting healthy or so I thought. I beat my diabetes(type 2) and helped with my heart disease. I did a lot of the weight loss by walking, I am not a very good excerciser. I can walk miles a day...
    8monotreme 8monotreme
    46-50, M
    Oct 22, 2012

    20 Years Old 10 Years Of Chronic Osteomyelitis

    As stated I am 20 years old I was first diagnosed with osteomyelitis in my right hip when I was 10 years old. This was something that came from no where. I was in the sick children's hospital for 2 weeks getting MRI,CT scans and take IV antibiotics when I was later discharged...
    Dionneshade Dionneshade
    4 Responses Apr 29, 2013

    My daughter had an internal abscess

    which spread to her bones and on week two in hospital now. Another four weeks to go!!! Any advice, support or questions to ask the consultant?
    deleted deleted
    5 Responses May 19, 2014

    10wk Prem Girl - Osteomyelitis - Leg Length Discrepancy

    Hi id like to know if anyone elses child has had this and there storys. To put it in a nutshell my daughter was born 10weeks premature and stayed in intensive care for 4 months. Whilst in there she got bacterial infection - staphylococcus aureus which turned to chronic...
    scurlew scurlew
    Mar 23, 2013
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