I Have Osteopoikilosis

A Osteopoikilosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Osteopoikilosis. You're not alone. 6 People

    I Have Osteopoikilosis

    It's bad enough that only 1 in 50,000 people get this disease, but not only do I have it, I'm part of the 20% that have terrible pain. I fought doctors for 15 years before I had to research the evidence on my computer from MRIs, bone scans, etc... I had to look it up on the...
    PainAllOver PainAllOver
    51-55
    1 Response Nov 6, 2012

    One In A Million (Or 50,000 Anyway.)

    At nineteen years of age, I have the displeasure of being one of the few to have this rare disease. From a young age, I've had joint pain, numerous X-Rays and when I was eighteen, I woke up to pain that hasn't gone away since.Upon a visit to my primary doctor, I was given an...
    FreeThinker93 FreeThinker93
    22-25, F
    1 Response Jun 24, 2013
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