I Have Oto-palatal-digital Syndrome


A Oto-Palatal-digital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Oto-Palatal-digital Syndrome. You're not alone.

Share My Story

2 Stories

My Experience With Opd

I was diagnosed with OPD 3 and a half years ago, when my daughter was born....she has it also and was diagnosed at UC Davis medical center...

O.p.d And Me

Hello,  I was diagnosed with O.P.D. about 10 years ago now with Type II.  Apparently to date I am the only one in the UK...
No forum posts yet. Be a star and start a topic. The shy ones will thank you.
Members Sharing the Experience "I Have Oto-palatal-digital Syndrome"
2 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • "I am not sure I want to add all the details on here just yet but if you also have this and are a little wary of telling everyone please let me know..."
  • "Apparently to date I am the only one in the UK with this particular strain of the disorder and am on the worst end of the scale where most female carriers of Type II O..."
  • "she has it also and was diagnosed at UC Davis medical center in Sacramento, CA..."
And the Story Awards Go to...
Most Popular: O.p.d And Me
Statistics:

100% of people who have this experience are in their thirties. 100% of people who have this experience are women.

You may cite any I Have Oto-palatal-digital Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Oto-palatal-digital Syndrome guide, where people with this experience share their tips and hints.
Members said this page is also related to: Do You Have Oto-palatal-digital Syndrome? , What is it like to Have Oto-palatal-digital Syndrome? ,Have Oto-palatal-digital Syndrome personal stories, Have Oto-palatal-digital Syndrome personal experiences

Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Oto-palatal-digital Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you. It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to recommend interesting people to you that share many of your personal experiences.

Login or Register to get started in seconds.