A Oto-Palatal-digital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Oto-Palatal-digital Syndrome. You're not alone.
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These snippets show some of the most common themes mentioned in this experience's stories:
- "I am not sure I want to add all the details on here just yet but if you also have this and are a little wary of telling everyone please let me know..."
- "Apparently to date I am the only one in the UK with this particular strain of the disorder and am on the worst end of the scale where most female carriers of Type II O..."
- "she has it also and was diagnosed at UC Davis medical center in Sacramento, CA..."
100% of people who have this experience are in their thirties. 100% of people who have this experience are women.
Other experience groups that have been combined into this group include: None yet.
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