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I Have Otosclerosis

Hearing loss problems... 128 People

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    I was diagnosed with Otosclerosis in 2002. In Sept. of that year I had a stapedectomy at U of WA. I got some hearing with horrible dizziness for 3 weeks and then it failed. 30 days from the first surgery I had it redone. I got some hearing and the dizziness went away. In 2004 I...
    rubyslippers74 rubyslippers74 51-55, F 2 Responses Jun 24, 2007

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    Living With Otosclerosis

    I was diagnosed with otosclerosis in mid twenties in both ears. It was worse in my right ear. In the beginning i actually thought i would go deaf in a couple of years. At least that is what the doctors were saying could happen. I went for an operation in stapedectomy but it did...
    prrshht prrshht 36-40, M 1 Response Oct 6, 2007

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    Okay, until an hour and a half ago,

    I had never heard of this condition. So this is my story. First of all my health care system is that of a military retiree, so I was given the runaround. Back in January 2012, I worked on the far north coast of Alaska called the North Slope in extreme conditions of windy and 50...
    jondstewart jondstewart 46-50, M Jan 22

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    Humans Come In All Kinds

    people come in all kinds of colors ,kind selfish ,listener,talkers ,there is one things we all have in common we are all born innocent babies ,we count on the nourching of our parents to guide us in the right direction ,I think for most of us we are never happy thats just human...
    dolly99 dolly99 41-45, F Apr 25, 2012

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    Second Operation... Yay Or Nay

    hi so i was 21, when i had my first stapedectomy, obiously the realisation that i was lipreading , more than i was actually hearing, came as a great shock. hearing ( no pun intended) the words, you need surgery, because you are going deaf, is not something you expect at such...
    goldensound goldensound 22-25, F 1 Response Mar 3, 2010

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    Had A Otosclerosis Surgery...

    Hi all I had my stapedectomy last 4th of March. It went good in the first 5 days... and then, in the night of the 5th day, already at home, i wake-up whit a very hard noise in my ear. I though that it was a normal symptom of the surgery, took a pill for the tinnitus and...
    Jophur Jophur 36-40 1 Response Aug 28, 2010

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    Coping With Otosclerosis

    I was dianosed with the condition a few weeks back.  Never thought I would have such a condition.  I first noticed my hearing was decreasing when my work mates started to point out that my hearing was bad and make a joke out of it.  I blamed putting my ipod on loud and thoguht...
    slimnims slimnims 26-30 3 Responses Jun 3, 2011

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    How Can I Live With It?

    Actually I'm seeing the doctor who will tell me more about my hearing in two days but I feel I have otosclerosis. Since November I can hear ringing in my left ear and the audiology shown I have hearing loss in my right ear (it is not very big yet, just under the norm). I've...
    maga2206 maga2206 21-25, F 2 Responses Mar 18, 2008

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    My Hearing

    I have had hearing problems ever since I was a kid... infections and things like that. When I got to my 20s I discovered I was really losing hearing and I ended up getting hearing aids. Ever since then my hearing has been steadily declining until I've gotten to the point where I...
    chancefate chancefate 31-35, M 1 Response Sep 5, 2013

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    No Worries, There's Hope

    All in all, I have seen 5 ENT doctors. The first 3 did not diagnose me with otosclerosis because I told them I got this condition overnight. It was like one day I woke up and noticed I could not hear that well anymore. They kept asking if I had fell and injured my head, and I...
    Katherine43 Katherine43 41-45, F 3 Responses May 4, 2012

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    Will I Loose Hearing All Together If I Dont Have Operation?

    I am a bit worried as i have only just found out i have otosclerosis.I am partly deaf in both ears.I have to go back to have hearing aids fitted and have to go to Vestibular rehabilitation therapy to help me with nausea and dizziness.I was told as well i could have an operation...
    MICKOLAY MICKOLAY 46-50, M 1 Response Jul 7, 2012

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    4 Years After Surgery

    I had my stapendectomy 4 years ago. I only had my right ear done at the time and that was all I needed. The past 4 years has been bliss. No more explaining to people that I am deaf not stupid (LOL). Anyway, a few days ago I noticed my ear feeling almost plugged. Then today...
    moco2619 moco2619 26-30 1 Response Jun 7, 2010

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    Frustrated

    hi..am 23...my aunt,grandmother,brother have hearing defects....so my hearing defect was taken for granted....it so frustrating when i have to ask my friends to repeat 3-4 times the jokes they say...i am not responding wen someone calls me or tell me to do something when am at...
    Brillyshree Brillyshree 22-25, F Aug 11, 2013

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    Should I Have The Operation?

    was just wondering how many of you have had both ears done?  and how you experianced the second operation. please give me your comments and advice..... freaking out
    goldensound goldensound 22-25, F 1 Response Mar 7, 2010

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    EDIT ; 2014/09/07 : I showed it to another

    doctor and he said I don't have this, thanks gosh. I have it too sadly :( I was checked a couple of days ago by an ENT specialist and he said ,I have it but luckily I have no hearing loss or anything related to hearing only the constant ringing in my ear, I used to have...
    deleted deleted 26-30 1 Response Sep 5

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    Frustrated

    I had my first hearing test about 2 years ago. I worked as a nurse then and realized I wasn't hearing the call bells or the phone ringing at the desk. It showed what the tester said looked like otosclerosis. My mom also has otosclerosis and is stone deaf without her two...
    deedi1224 deedi1224 36-40, F Jul 23, 2012

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    36 and Hearing Loss Becoming More Annoying Every Day

    Hi, First time I noticed something was wrong was 8 years ago during a flu, when all loud sounds like clapping got totally garbled. This lasted for a month or so so I went to a hearing exam. Mild hearing loss in the other ear, nothing out of the ordinary. I was relieved...
    2ndbass 2ndbass 36-40 6 Responses May 13, 2009

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    I Have Otosclerosis

    After an ENT and Audiologist visit I come to aware that I have diagnosis of otosclerosis. And I want to be treated in Bangkok since there is no health center that could make the surgery within my country. Can anyone tell me of an address of a health center which do the surgery in...
    eyaye eyaye 31-35, F Jul 24, 2013

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    Almost Two Months After Surgery..

    So it's almost been two months since I had surgery to correct my hearing lost in my right ear due to Otosclerosis. I can notice a huge change in my hearing. I love it! It's almost better than my left ear, which I will need surgery on later as well. I no longer have tunnel hearing...
    Lbeavers Lbeavers 22-25, F 3 Responses Jul 31, 2012

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    Yowza!

    I was just diagnosed with this condition yesterday, needless to say I am freaking out and trying to figure out where my gene pool went wrong... How gradual was everyones hearing loss? How long until you waited to get the surgery?
    Deavan Deavan 26-30, F 4 Responses Apr 13, 2007

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    Diagnosed With Otosclerosis And Want More Information!

    I'm scared. I am 33 and after being on antibotics for 4 of the last 6 months for sinus infection/ear infection, I finally asked to see an ENT. Yesterday, I had a CT scan of my head which came back completely normal. There was no fluid in my ears or sinuses. I mentioned the stuffy...
    kjanzd kjanzd 31-35 5 Responses May 12, 2012

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    Professional Musician Diagnosed With Otosclerosis

    Greetings, I am a 51 year old professional cellist. I began noticing some problems with my hearing about a month ago, the main symptom being a strange distortion of sound from my right ear. It's a little like listening through a broken speaker. The worst part is that with some...
    1 Response Jan 17, 2013

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    I Have Had Sugery 3 Weeks Ago To Correct Otosclerosis

    i was diagnosed with  Otosclerosis about 8yrs ago in both ears, i was told at the time by the consultant that i had this condition and that i would need hearing aids from now on, he also said that there was an operation but it wasnt that successful, i was very upset at the time...
    mixter7w mixter7w 41-45 5 Responses Oct 26, 2011

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    Looking For Answers.

    I have suffered from a pulsating roaring &,pressure in my right ear for many months with progressive low tone hearing loss. The pulsating roaring increases with any position changes any activity. My ear canal is normal upon assessment. My ENT has diagnosed with me with...
    99registerednurse 99registerednurse 46-50, F 2 Responses Nov 9, 2010

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    Help Understanding Otosclerosis Diagnosis!

    I recently went to an ear specialist and he thinks I have otosclerosis. The symptoms I have been having for about a month and a half to 2 months are full feeling in the ears, blocked, pressure, crackeling sound when i yawn or swallow. They just feel so uncomfortable and I wish I...
    fisherc fisherc 26-30, F 10 Responses May 19, 2007

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    Where To Go From Here....

    So I got in to see my Audiologist today. The compared my tests from when I was 12, 17, and 23. Then they did one more test today. It looks like Otosclerosis. I am so nervous about this and surgery. I have this in my left ear, which has always been my better hearing ear. I have...
    TiffanyDunham TiffanyDunham 22-25 2 Responses Aug 15, 2012

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    Thank You.

    I am 25 and was diagnosed with Otosclerosis a few years ago. My dad also has it too. My main hearing loss is in the right ear but I slowly feel the loss in the left ear as well. I am scheduled to have surgery in one month and I'm so nervous. My dad had the surgery and got some...
    Lbeavers Lbeavers 22-25, F 1 Response May 5, 2012

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    Rough Week..

    I find it so strange. One day I have accepted my hearing loss and am learning to cope with a great attitude. I'm proud of myself for it, I know things will be okay. All of a sudden, one day I wake up and something...happens. I don't know what is going to trigger it , but I just...
    JG5345 JG5345 26-30, F 3 Responses May 17, 2013

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    Diagnosed Today - But Not Really Believing It...

    I just had a diagnosis of ostosclerosis today after an ENT and Audiologist visit.  I do have the symptoms described in this  forum (hearing loss, fullness)  but I'm sceptical as this condition came on literally overnight (I thought I had an earwax problem when I woke up with...
    bettinab bettinab 41-45 2 Responses Mar 22, 2012

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    Is This Typical?

     I had stapes surgery about 2 weeks ago on my left ear to correct a moderate severe hearing loss, I have a mild loss in my right. Since then I had a hearing test and the low tones have improved but the high frequency sounds were lost, the doctor says just temporarily. I've...
    giffy1987 giffy1987 22-25, F 2 Responses Jan 6, 2010

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    Post Stapedectomy

    Hi all,  Just had a stapedectomy for otoscleroisis 3 days ago. I think the key to deciding is to read up on the procedure, understand the risks , benefits and alternatives and gradually decide what works best for you. I was diagnosed by my ENT last year. He explained my...
    NYYank NYYank 46-50 1 Response Dec 13, 2008

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    Failed Implant-

    As a child I suffered many many ear infections.  I also did have measles.  they say there may be some link? Genetics? My father also was hard of hearing. He never really got screened properly I beleive. I was first diagnosed at 18, basically that was the...
    QzieQ QzieQ 41-45, F Sep 1, 2009

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    Surgery Is the Best Option to Consider

    I have had otosclerosis for several years now. It was first diagnosed in the early '90's and the audiograms all showed 50% hearing loss in the left ear but my right ear was perfectly fine. The specialists I saw suggested that I try and live with it if it was not too much of a...
    Mayoite Mayoite 46-50, M 7 Responses Jun 7, 2008

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    Highly Stressed

    I was diagnosed with otosclerosis about 7 months ago after pregnancy complications where I lost my son. I decided to wait to see if I could handle the hearing loss. I guess I was in denial for a while. And was dealing with grief from the loss of my son. I have now come to a point...
    clunapinto clunapinto 31-35, F 2 Responses Jun 11, 2007

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    Otosclerosis At the Worst Possible Time!!

    while I understand there is NO good time to experience hearing loss, I experienced dramatic hearing loss the summer before I entered Law School!! it was devestating to go to class and not be able to hear a word the professors were saying, and to add insult to injury, when I went...
    DeafInMadison DeafInMadison 26-30, F 2 Responses Jun 19, 2007

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    Just Been Diagnosed With Otosclerosis And Wandering About My Future Now

    Hi, I'm an Australian, living in Sweden and I finally found out that I have otosclerosis yesterday. I'm going to try to to get some hearing aids. I'm told by level is like 25 and I would need 40 to qualify for surgery. Am trying to learn all I can. Not sure if surgery would...
    sdebruyn sdebruyn 31-35 Apr 8, 2011

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    Profound Hearing Loss Diagnosed As Otosclerosis

    About a year and a half ago I complained to my family practitioner that my left ear "felt wierd", it felt full and at times it sounded like I was listening underwater and was super sensitive to different pitches.  The doctor looked at my ears and stated they looked...
    ariannah ariannah 36-40, F 2 Responses Dec 1, 2007

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    Otosclerosis In My Life...

    a few years ago i learn  that i have otosclerosis and i lost 15% hearing lost on my left ear.and me and my husband want to have a orther baby but my dr. said my hear lost will get bad over time and i have thout about it for long time and that not going to stop me to have a...
    daisynfamily daisynfamily 31-35 1 Response May 16, 2008

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    Will I Loss All Sound Someday?

    I have been losing my hearing for awhile... I just didn't know it. I have had the surgery on both ears... the stapendectomy (sp)... It was great for about 3 years. I could hear things I had never remember hearing before. But now that is going and I'm back to not understanding...
    kjones557 kjones557 51-55, F 3 Responses Dec 24, 2009

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    I first started losing my hearing

    when I was 13. I suffered an abrupt and massive hearing loss literally over night when I was 13, and I had to be fitted for a hearing aid in my left ear, my right ear was too far gone to benefit from a hearing aid. I was misdiagnosed by my doctor as to what was causing the...
    Runningagainstthewind Runningagainstthewind 22-25, F Aug 29

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    How Does My Hearing Compare To Others After So Many Years?

    I was diagnosed with otosclerosis when I was 22 years old.  No ear infections when I was young. I discovered the hearing loss after the birth of my first son.  I thought I had wax in my ear and when the first doctor looked at me, he held the tuning fork on the right...
    honeybeeaz honeybeeaz 46-50, F Oct 21, 2010

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    I'm 28 and have moderate hearing loss in

    both ears. What I want to know is how fast does otosclerosis progress? Does it slow down or stop at a certain age? Will I be next-to-completely deaf by the time I'm 40 or 50?
    Scissorman1985 Scissorman1985 26-30, M Feb 11

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    I Finally Had My Ear Surgery.

    I finally had my ear surgery Monday (6/4/12) in my right ear. So far, everything is going as planned. I currently still have the packing down in my ear, it's supposed to fall out on its own. It's still pretty swelled and uncomfortable. I'm very sensitive to noise. It doesn't hurt...
    Lbeavers Lbeavers 22-25, F 5 Responses Jun 9, 2012

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    My Insurance Does Not Cover Hearing Loss...

    Does any one have any helpful information on the costs associated with the stape surgery? I have otosclerosis and it is getting worse and progressing in both ears. I am only 32 years old. It probably started developing during my pregnancy with my first child but I was not...
    Kari1133 Kari1133 31-35 Aug 11, 2011

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    I Don't Have Otosclerosis, But My Daughter Was Diagnosed At 13 With It

    My daughter who is now 23 was diagnosed with Otosclerosis at the age of 13. She was also diagnosed around the age of 14 with chronic migraines. I'm hoping if someone knows if the migraines can be related to this illness. Can anyone give any advice on this?
    tjdamrill tjdamrill 41-45 2 Responses May 9, 2012

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    Can This Happen to Me?

    You know being in my mid-20s, the last thing I suspect to be concerned with is any sign of health problems.  About a little over a year ago, I learned that I have a condition called otosclerosis, which is a condition of the middle ear that causes hearing loss and gets worse...
    nicole1355 nicole1355 26-30, F 8 Responses Sep 15, 2006

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    Will Anyone Really Want To See A Deaf Hairdresser?

    Hi! My name is Jenna... And I'm not nearly as depressing as the name of this story:) I'm 26 and I have been dealing with noticeable hearing loss for about 5-6 years now. I'm at an 80% conductive hearing loss in my left ear and 60% on my right, and as a hairdresser in a very large...
    JG5345 JG5345 26-30, F 2 Responses May 5, 2013

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    A Month And Half After Surgery..

    It's been a month and a half since I had corrective surgery for my otosclerosis. At first, I wasn't sure how things where going to turn out. I couldn't hear, I felt nauseous, dizzy, and off balanced. After a couple weeks, those symptoms went away. My hearing stayed more one sided...
    Lbeavers Lbeavers 22-25, F Jul 17, 2012

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    All Fixed!!!

    Hi everyone,I've read all your stories and now its time to add mine.I first found out I had Otoschlerosis in my left ear about twenty years ago, but I'm sure I had it well before that. It was picked up when I went for a routine medical when applying for a job. When I went to the...
    deleted deleted 26-30 3 Responses Jun 13, 2011

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    Wow

    Had stapedectomy on 10/19. Still have packing in place and swelling caused some vertigo post op but I am back on my feet. Anxious to hear in the coming week(s) . I appreciate other entries which gave me a better scope of what this disease means to patients. More later
    Acear Acear 46-50 Oct 25, 2012

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    Recently Diagnosed

    Hi guys, Just wanted to tell you all my story and say that Ive read through all your stories on here and some have given hope, others not so much but sharing with people in a similar situation is a great help. I have noticed a reduction in my hearing over the last 4 years or so...
    NiRiada NiRiada 22-25, F 3 Responses Aug 24, 2011

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