I Have Ovarian Remnant Syndrome

A Ovarian Remnant Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ovarian Remnant Syndrome. You're not alone. 83 People

    ORS Is Frustrating!!

    I have had problems with endometriosis since I was 14. To make a long journey and story short I ended up have a complete hysterectomy in 2009. Over the past year I have been experiencing pelvis pain, bloating, abnormal test results, and the list could go o forever of weird...
    Roxxy7 Roxxy7
    26-30, F
    4 Responses Feb 18, 2013


    I have had 4 ovaries removed, and too many surgeries to count to remove endometriosis and scar tissue. The last surgery was almost 6 weeks ago and they were extremely agressive. They even shaved the outside membrane of my intestine and stitched it back together to ensure they...
    callmation2 callmation2
    3 Responses May 23, 2011

    After 3 freaking severe hard yrs I just came

    across this site(s)!!!! I too thought I was amongst the only one severely suffering from this BULL (BLANK)!!!! I too had and still have an Ovarian Remnant cysts, and I too have also been lied to several times from my Drs!!!! If anyone reads this my down fall all started for me...
    cmywag cmywag
    41-45, F
    1 Response May 4, 2014

    I'm seeking advice from others

    who have experienced ORS and/or are still addressing this issue personally. In 2005 I had my right ovary removed and 2 months later I had a full hysterectomy. Everything was removed except for my left ovary. Because the PCOS was so serious, in 2008 I had my left ovary removed. I...
    Lilybird76 Lilybird76
    1 Response Nov 10, 2015

    Don't Understand!!!

    I was just told that I have ORS and I really don't understand. I'm looking at surgery next month to remove a mass due to this. So confused about this.
    Belovette Belovette
    41-45, F
    2 Responses Dec 16, 2012

    Oh Me Too!

    So I'm now in the midst of the ORS nightmare. Ovarian cysts & endometriosis for years. Emergency appy w/rupture in 1998 (old Dr. blamed large amount of adhered remnants on this). Pain in rt. side 2006, gyno did pelvic, palpated all, said "everything in your head." Rt. ovary...
    kwa3 kwa3
    36-40, F
    2 Responses Oct 15, 2012

    I Think I Have Ovarian Remnant Syndrome !!

    On Dec.28 2007 i had a total  abdominal hysterectomy . Six months later i started having pain on left side . First i thought it was kidneystones ( i had them before ) i had a cat scan done they said i had a 3cm cyst on left ovary . (not so funny since i have no...
    featherlee33 featherlee33
    31-35, F
    6 Responses Jan 30, 2010

    Ovarian Remnant - I Have It Too!

    I ignored my pain for a couple months thinking it just couldn't be.  But the pain got worse, and so I went in.  I had an ultrasound first.  The nurse called and said that I had two cysts on my right ovary.  I told her that was impossible because I do not...
    Zeebakaka Zeebakaka
    41-45, F
    5 Responses Dec 11, 2009

    Ovarian Remnant After Full Hystorectomy

    I am 39 and had a full hystorectomy 3 years ago. I recently found out I have an ovarian remnant that was left behind, I have started ovulating again and will have to have surgury to remove it. If you have a simular story please share. This is relatively rare and most information...
    Scarletomy Scarletomy
    36-40, F
    4 Responses Dec 25, 2009

    Looking For Options

    I was diagnosed with ovarian remnent syndrome complicated by a large growth on the right ovary. I am told surgery will kill me if they attempt it but live in constant pain that effects my job and home life. I am looking for a surgeon in Alabama who can help me. If anyone can help...
    sun15369 sun15369
    1 Response Sep 5, 2008

    "i Have What??????? If I Have An Ovary...i Own This Hospital!!!!!"

    These are the words I said after being in a car wreck at the hospital, when the radiologist said he saw 2 large cysts on my left ovary, 5 weeks post-op. I was in disbelief, and when I went to the OBGYN to get an ultra sound, the tech, said.."Yep..There it is! I said "Theres...
    lesajadeshelley lesajadeshelley
    3 Responses Apr 14, 2011

    What Do I Do?

    In 2005 i had a hysterectomy but they left my right ovary so i would have some hormones. The reason why I had it was because I would get cyst that hurt and i had very bad pain with sex. I did fine for a while then i started getting cyst on my left ovary. So in 2009 they...
    april59706 april59706
    4 Responses Oct 20, 2010

    ORS: Yes It's Real and Yes It's Painful!

    I am 46 and have had 3 different surgeries in the past 15 years to remove my uterus, my right ovary, and my left ovary. The last being my left ovary 10 years ago. I had to have an incision for this surgery because it was so adheared. I've had some pain over the past 10 years but...
    nanakroll nanakroll
    46-50, F
    4 Responses Sep 18, 2009

    Not Sure Yet

    I am here because I think I may have ovarian remnant syndrome as well. I had my first baby in Jan. of 2008 at age 32. I had a partial hysterectomy for uterine fibroids in Apr. of 2008 also age 32. Last year they took my ovaries as well because I spent so much time in the ER for...
    nikciwilson75 nikciwilson75
    Jan 13, 2012

    The Curse Is Back.

    This is a very short version of my story.. Everyone's story and comments that I have read, could have been my very own.. Except that for 6 years while I was having surgeries every 4-6 weeks, same ole Mam you have a cyst on your left ovary, no sir I do not I dont have ovaries...
    marlo3 marlo3
    41-45, F
    Jan 24, 2012

    Ovarian Remnant Also

    Hello, I'm 41 years old and I had surgery in 2008 to remove my Right ovary because of a 4cm cyst.     I have had 2 c-sections, Left Ovary/Uterus removed prior to this surgery.    In the process of removing adhesions and my ovary, my Dr. cut my lower intestine, which had to be...
    KUfan KUfan
    41-45, F
    7 Responses Feb 18, 2011

    Ovarian Remnant Syndrome What Are My Treatment Options

    I am 36 years old and  recently diagnosed by my gynecologist with having Ovarian Remnant Syndrome.  I had both ovaries removed in Septmeber of 2008  by abdominal laporotomy and had some bowel complications due to abdominal adhesions related to other laparaotmies...
    shelle36 shelle36
    36-40, F
    14 Responses Jan 11, 2010

    I Have Ovarian Remnant Syndrome

    My name is Colleen and I am 35, I have ovarian Remnant syndrome, I had a complete hywto, because of serious endomitriosis, and since then I have had 4 surgeries to remove the ovarian tissue that has "grown" back, I dont have normal hormones and now im about 99% sure its back...
    colleen74 colleen74
    31-35, F
    5 Responses Jun 3, 2010

    Just Diagnosed With This Too Help

    Hi, I cant believe this i thought for sure I was the only one with this. I had partial hysterectomy in 2007 and at time ovaries left because they said when they went in they looked ok well i continued to have cyst on both ovaries and alot of pain so in 2010 i went for removal...
    ptracey13 ptracey13
    3 Responses Mar 19, 2011

    Very Frustrating

    I have been dealing with Endometriosis since I was 14 years old. Had a complete Hysto when I was 31. Now I am 38years old and have been dealing with Ovarian Remnant Syndrome since then. I have had 4 surgeries since the Ovarian Remnant Syndrome has been present and each time they...
    LadyD25 LadyD25
    36-40, F
    17 Responses Sep 17, 2012

    Search Open in App2 I Have Ovarian Remnant

    Syndrome I'm seeking advice from others who have experienced ORS and/or are still addressing this issue personally. In 2005 I had my right ovary removed and 2 months later I had a full hysterectomy. Everything was removed except for my left ovary. Because the PCOS was so serious...
    brittneybrown56 brittneybrown56
    31-35, F
    Nov 11, 2015

    Living In Hell With Ovary Remnant!!!

    I am sitting here reading everyones stories and it is like reliving the past 3 months... along with the thinking it was a bladder infection to thinking maybe kidney stones because I had nothing female wise to attacht the pain to so it was of course in my mind everything other...
    ANH1215 ANH1215
    3 Responses Dec 10, 2011

    There are 2 wonderful doctors

    who work with a team of other doctors and specialist at Mayo Clinic in Scottsdale and Phoenix Arizona. These doctors are amazing. They are doctors' Magtibay and D. Etzioni. They are experts in this field. If your insurance will cover you, they are worth seeking out for...
    bgrady15 bgrady15
    56-60, F
    1 Response May 29, 2015

    I Have Ovarian Remnant Syndrome

    I am 46 years old. When I was 43, I felt a pain in my right hand side. November 2008 I had a complete hysterectomy (two hour surgery, severe adhesions, endometriosis). Pain continues, tons of tests, therapy, and Dec 09, another surgery for scar tissue. More tests, sent to...
    Julie64 Julie64
    46-50, F
    1 Response Jan 16, 2011

    "You have an ovarian cyst" Really?

    I have been dealing with ovarian cysts for 17 years now. Ten years ago I had my first surgery, a complete hysterectomy. I should have known there was a problem when I never needed HRT. It still gets me every time I go in complaining of pain and the CT report says ovarian cyst...
    exesa exesa
    1 Response Jun 19, 2012

    I recently found out I have ORS

    and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original surgery took place 10 years ago. I'm still confused how this happens. I'm trying to get legal advice and I was told these cases are very...
    Deena76 Deena76
    41-45, F
    Aug 18, 2015

    Ovarian Remnant Syndrome Since 2005

    My story is a very long one as to how I got to where I am now. But, I will try to make it as short but as explanatory as I can. I had left side pain as early as 1998. I had an exploratory lap for this pain and my gyn at the time said there was nothing there that she could find...
    edawnb edawnb
    41-45, F
    1 Response May 4, 2010


    I just had my second surgery for my ORS on December 22.  Two weeks ago, I knew exactly the second that I ovulated and now have and "endometrioma" that totals 6cm in size.  It is attached to my ureter and are wanting to do radiation.  Any thoghts?  Please share.  This is...
    jenniferpitts68 jenniferpitts68
    2 Responses Feb 27, 2012

    So Disgusted !!!!

    Hi everyone....I am 45 yo. Back in 1993 I had a partial hysterectomy. In 2007 I had an oopherectomy. I have suffered from ovarian cysts since I was like 17. When I woke up from my oopherectomy the Dr. told me I had so many adhesions that it was difficult to get to the ovaries...
    gojojo gojojo
    2 Responses Feb 7, 2012

    I Think This Is My Answer...

    To make a VERY long story short:I've had 12 laparoscopies for excision of Endometriosis, 5 laparotomies for the same thing, and another 4 vaginal cyst drainage procedures, and it's almost two years since my total hysterectomy/oophorectomy. So, no ovaries, no cervix, tubes, uterus...
    sweetcheeksss sweetcheeksss
    31-35, F
    1 Response Jun 29, 2012

    Jeez What's Next ???

    My name is Cheryl, I am 40 years old. I have had 14 abdominal surgeries in the past 5 years, all stemming from a hysterectomy for endometriosis, ovarian cysts, fibroids and a uterus that was twice its normal size and pressing on a nerve in my back. I had my uterus removed on...
    chrhs5 chrhs5
    2 Responses Apr 21, 2011

    OK! I don't believe then this not more out here

    for women with Ovarian Remnant Syndrome. I was told 12 yrs ago I have ORS and have had 5 surgeries to take the remnants out. I still have them because they grow Estrodial injections have helped some but lately the injection have stopped working so I'm injecting more weekly and...
    Julieban Julieban
    51-55, F
    1 Response Jun 25, 2014
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