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I Have Pachydermoperiostosis

A Pachydermoperiostosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pachydermoperiostosis. You're not alone.

    Hello everyone, I'm Heiry (pronounced Haiti) like the country but spelled differently. I know some ppl have a difficult time understanding my name and that's okay! But anyway..so I...
    heirytoni heirytoni 31-35, F 21 mins ago

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    3 weeks ago I was diagnosed with osteosarcoma of the femur with mets in my liver. I had surgery to remove the mets in my liver 3 of the 4 were removed but the 4th could not be...
    0maddi0 0maddi0 16-17, F 26 mins ago

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    It was on July 27th when I had it done, I was in the city with a friend whom I knew for years wanted hers done so badly and I wanted mine done a while ago. She saw that Envy was...
    4NeonFun 4NeonFun 18-21, F 34 mins ago

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    There is so much I want to get off my chest but I literally feel like I have no one. At least not verbally. It seems like at times I almost want to give up on the world all...
    justluvme4evr justluvme4evr 22-25, F 34 mins ago

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    I feel people need to accept themselves more so I want everyone who feels like it to comment your flaws to show those not brave enough to reveal themselves that we all have them...
    NightWriter216 NightWriter216 18-21, M 1 Response 39 mins ago

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    okay so let me just rant really quick: to the guys and gals that want to know if you're attractive: you don't need to be asking these questions. honestly, it makes you look like...
    saraxc saraxc 13-15, F 50 mins ago

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    It comes down to all the men that have lied to me, all my life. My dad, every single boyfriend has been a liar or cheater or often both. I have lied myself and am not perfect, but...
    GamerDustBunny GamerDustBunny 26-30, F 1 Response 51 mins ago

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    This started when I was 13 years old, I am turning 16 this month. It all started on this virtual computer game world called IMVU, I went from chat room to chat room looking for...
    CbeautyP80 CbeautyP80 16-17, F 2 Responses Jul 4

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    It's when your going through the endless loop that you fear the good times won't happen again. It's when things are going good you fear getting caught in the loop again. Ocd can be...
    tormentedinternally tormentedinternally 26-30, M 1 Response Jul 4

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    Once, I engaged in a conversation with a supernatural being. I, in society however, proclaim that I believe not in such things. Under the influence of nothing, surrounding by...
    deleted deleted 26-30 1 Response Jul 4

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    What meds have you used to help you get pregnant? My doctor has told me a few but I'm scared of what will happen(side effcts), i don't use birth control or anything for almost a...
    Mlamtn Mlamtn 26-30, F 1 Response Jul 4

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    "Well I guess I'm going to let you go. But you get to take a little piece of my soul" Conrad Sewell "start again" Do yourself a favour and listen to this one, especially if you...
    Bythelight0fthemoon Bythelight0fthemoon 36-40, F 1 Response Jul 4

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    this guy, that used to be my really good friend, used me to get over this girl he was totally in love with and he dumped me over text, and he pressured me and treated me like...
    kathyysav kathyysav 13-15, F 1 Response Jul 4

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    I've done my share of despicable things in my past ,but one particular experience has haunted me my entire life. It was not one experience either. When i was younger, about 5-7, i...
    PanicattheDicso PanicattheDicso 13-15, F 9 Responses Jul 4

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    i get bullied or i must say i still get bulling?? And it is all about my sexuality!! I mean why shoud i getting bullie cuz i am gay?? ok , i understand that the church says that...
    potterhead1111 potterhead1111 13-15, M 5 Responses Jul 4

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    I have 3 and am thinking about a couple more...
    RocknRollCowboy71 RocknRollCowboy71 41-45, M 3 Responses Jul 4

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    This is the first time I'm saying this out loud since it started 17 years ago when I was 15 years old and I really hope no one tells me I'm crazy. I'm tired of being told I'm crazy...
    LewisCollins LewisCollins 31-35 4 Responses Jul 4

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    my baby is 3 months and she had an metabolic crises and had to have two blood transfusions and to hart surgeries in one has anyone been through this if so how long was the recovery...
    littlemissfosha littlemissfosha 26-30 Jul 4

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    To begin with, when I was a kid, I was always rejected by the group, I always felt like I'm special, and that I'm different than my classmates, so I felt a big distance between me...
    simotaqi simotaqi 26-30 Jul 4

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    i think i have special powers too. Can someone name th special powers juss to be clear
    Chamreon26 Chamreon26 16-17, F Jul 4

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    I have so much anger bottled up right now. Most of it had to do with my mother and how she treats me. I hate the feeling of wanting to pop off but it happens so much more now...
    Eg9801 Eg9801 22-25, F Jul 4

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    As a secret crossdresser I'd like to have a secret bf to go with it lol
    itsjasette itsjasette 18-21, F 1 Response Jul 4

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    I have PPMD and it is the most irritating thing ever. Nothing works to help or make it better, except just waiting a few days. It sucks, and i believe only menopause sorts it out...
    Hisinfernalmajesty5 Hisinfernalmajesty5 26-30, F 3 Responses Jul 4

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    I love to have two guys on me at once sub bi male
    reidloose reidloose 51-55, M 1 Response Jul 4

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    I first met my step brother when I came to a new school last year of elementary school. He was in my class but I never really got to know him well. He was popular and I was a...
    morganismyname morganismyname 16-17, F 2 Responses Jul 4

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    I was diagnosed a few months ago and I had a really hard time dealing with it and I still do. I feel like no one cares that I have this disease because it's not cancer, so I won't...
    Haley145 Haley145 13-15, F 4 Responses Jul 4

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    I feel like I'm the only one in my school and in my area who doesn't do drugs/smoke/get intoxicated. I don't go to parties because I know that people just like to get stoned. A...
    emiliadsc emiliadsc 16-17, F 7 Responses Jul 4

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    I'm currently 21 from Australia I've had severe PC and scoliosis for as long as I can remember high school was a nightmare for me I remember never being able to go swimming or...
    bwalsh123 bwalsh123 18-21, M 2 Responses Jul 4

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    I truly believe we have to learn from tough, painful problems, issues and circumstances so we will be able to help people who go through the same ones after us.
    ShesSpiritual35 ShesSpiritual35 31-35, F 1 Response Jul 4

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    I used to have this one friend that was nice in grade 4 and 5. Then he changed he was a complete and udder douchebag just to fit in with his new friend. I felt useless and cheap...
    FarrelTaylor FarrelTaylor 13-15, M 2 Responses Jul 4

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    Happy 4th of July everyone. Hope you have a good one.
    deleted deleted 26-30 Jul 4

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    my dad is not a very good person and I can't really like him because he never give me a reason to love him, my dad has never liked me anyway so when he finds out that I am gay he...
    loneleyboy loneleyboy 13-15, M 2 Responses Jul 4

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    3 days ago myself and entire family lost the most influential person in our lives, my grandmother, best friend, fill in mom, most loving and accepting person I've ever known. such...
    peacefulpasser peacefulpasser 26-30, F 1 Response Jul 4

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    I havent done this in a while and i want some one to do it with.
    Livewire91 Livewire91 22-25, M 2 Responses Jul 4

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    I am American and live in the Midwest, but I have been lucky enough to travel to England twice. On my second visit I stayed for 3 months! It was amazing and I dream of moving there...
    anhonestgirl anhonestgirl 26-30, F 1 Response Jul 4

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    I just want to suck on big beautiful breasts and have the milk drop down my throat...why is that so hard to find? If anyone wants to feed me Lmk 😉
    deleted deleted 26-30 Jul 4

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    The first time I had them it was only on my upper teeth, I think it was when I was nine or ten years old, to straighten them of course, but there was more behind it, I can't...
    SheepCatTheCatSheep SheepCatTheCatSheep 18-21 Jul 4

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    I don't wear them when at home and not always when taking a walk, but any other time I would normally have them on. (Not always though, I've had glasses since I was around ten or...
    SheepCatTheCatSheep SheepCatTheCatSheep 18-21 1 Response Jul 4

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    So I had to go doctors on Monday after a call up couldn't help as I was trying to avoid going to the doctors as things are difficult at the NHS in this country but they told me i...
    LittleMilwee LittleMilwee 22-25, F 1 Response Jul 4

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    I have a YouTube channel look me up jon200547
    jon200547 jon200547 26-30, M Jul 4

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    Thank God I am married and don't have to worry about dating anymore. If I was single, I would definitely be a cougar lol! I will be 36 in a few months...and I am thinking the...
    yesitsme123 yesitsme123 31-35 1 Response Jul 4