A Pachyonychia Congenita Recessive anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pachyonychia Congenita Recessive. You're not alone.
I just found out 2 days ago that my 2 month old son has Pachyonychia Congenita. My heart fell as I read about this condition and what the future can hold for my son, Conrad. I can't stop worrying as I'm stuck in this waiting game of if it will get worse. There is no cure out...