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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 26-30, F Apr 25, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    Related Experiences

    Humm... I have a date tonight i am not sure about... Don't really want to go at this point... but It's my first one in a VERY long time... I ask, but everyone i ask says no...
    nocool nocool 41-45, M 5 Responses 44 mins ago

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    I have urge incontance and used to have a few accents but i started to wear protection and now not a problim if i cant hold it
    MattB1997 MattB1997 16-17, M 59 mins ago

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    If you were to ask me one year ago how I identify I would have told you I am a pansexual, nihilistic writer/artist. But I have decided I am just sexual and where I fall on the...
    patternine patternine 70+, F 1 hr ago

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    I was wondering if there was anyone out there that could help me out. I have been going to the doctor for more than a year trying to get a diagnosis. Many doctors, many tests...
    LoveMinPins LoveMinPins 51-55, F 1 hr ago

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    When I was 7 I had imaginary friends, but they never left as I got older. They just became more real. I understood no one could see them, no one could hear them. It was only me...
    Schizotistic Schizotistic 22-25, M 1 Response 1 hr ago

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    and it's quite logical phobia if you take notice of my life. At my 25 I have achieved NOTHING or almost nothing.. I am currently unemployed, live in a god-forsaken third world...
    sweetsnake sweetsnake 22-25, F 1 hr ago

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    Long story short. I have had LS for 2 years. I have tried Clob, Protopic, low oxalate diet, honey, Crisco, with no success. What IS working for me is a low sugar, low wheat, low...
    Ann2711 Ann2711 56-60 2 hrs ago

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    This doesn't really belong here but it's the best place for it :P Being a volunteer on here I send every new member a message to welcome them :P I have finally caught up on it! I...
    Raptax231 Raptax231 18-21, M 3 Responses 3 hrs ago

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    Hear me out : http://vocaroo.com/i/s1cu9HTyYYya Can you detect an accent? It's really important, I've been working on not sounding so... foreign! Even though people usually think...
    girlinwhite girlinwhite 18-21, F 2 Responses 3 hrs ago

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    I asked myself this question for quite some time now and I realized that little would have changed. Maybe I wouldnt have gone through this guilt and healing process but I do...
    GuiltBear GuiltBear 31-35, M 3 hrs ago

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    I don't think they are thinking as profoundly about things as I am. Each to their own, I don't want to tell them to do otherwise or to claim that what I am doing is right. But...
    FittingUsername FittingUsername 22-25, M 4 hrs ago

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    I have a snapchat yes indeed! If u want to have a goooood goooooood good time with meeee, snap chat me @ lola.tina & be aware I need an extra couple bucks soooooooo be ready for me...
    MisMisMis321 MisMisMis321 18-21, F 3 Responses 4 hrs ago

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    So, my Husband tells me we have a mouse in the garage while he was on the phone with his Mom on speaker phone. My response: "Ok, we have some cheese for the trap then." He tells...
    galaxygurl galaxygurl 26-30, F 4 hrs ago

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    I just want to suck on big beautiful breasts and have the milk drop down my throat...why is that so hard to find? If anyone wants to feed me Lmk 😉
    sparxx89 sparxx89 26-30, M 4 hrs ago

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    My husband also likes it when I dress in shirt with no bra or panties we were in the same type of rut about 4 years ago. We were on a cruise the first time he shared me. We never...
    BSharing BSharing 46-50, F 4 hrs ago

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    The first time I had them it was only on my upper teeth, I think it was when I was nine or ten years old, to straighten them of course, but there was more behind it, I can't...
    YukiSohma YukiSohma 18-21, M 5 hrs ago

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    I don't wear them when at home and not always when taking a walk, but any other time I would normally have them on. (Not always though, I've had glasses since I was around ten or...
    YukiSohma YukiSohma 18-21, M 1 Response 5 hrs ago

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    For about two and a half years now, since the start of 2013 or earlier. It really deterred me from any activity on my feet when it wasn't necessary. (I use to be able to take 4...
    YukiSohma YukiSohma 18-21, M 5 hrs ago

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    I have all of that and what use to be myyearbook is now called meet me I even have Twitter and I even joined the YouTube part to try and earn money that part is not doing good I...
    jon200547 jon200547 26-30, M 5 hrs ago

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    So I had to go doctors on Monday after a call up couldn't help as I was trying to avoid going to the doctors as things are difficult at the NHS in this country but they told me i...
    LittleMilwee LittleMilwee 22-25, F 1 Response 5 hrs ago

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    I have a YouTube channel look me up jon200547
    jon200547 jon200547 26-30, M 5 hrs ago

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    Thank God I am married and don't have to worry about dating anymore. If I was single, I would definitely be a cougar lol! I will be 36 in a few months...and I am thinking the...
    yesitsme123 yesitsme123 31-35 6 hrs ago

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    in the past month I have been away from home I went from a sixe 16 to a size 11 in pants I don't feel like I lost much weight but I feel really happy
    lies18 lies18 18-21 6 hrs ago

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    I've been very stressed lately. With school and projects and those exams, I felt like I was going down. Luckily school is over. But when school was still in session I was going mad...
    OtsanaWolf3344 OtsanaWolf3344 13-15, F 6 hrs ago

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