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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 42 People

    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 22-25, F 1 Response Mar 25, 2013

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    I'm 20 years old and I have borderline personality disorder. I haven't told any of my friends because I know they won't understand it. I'm terrified of being alone, but because of...
    Brynn8 Brynn8 18-21, F 5 Responses 45 mins ago

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    I still checking my Ex facebook. And I know if meet him I will disappointed . He was 8 years old young and he wasn't even good kisser and I don't know. We almost had a sex and I...
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    I have a pretty weak bladder. So if I don't make sure to go before bed, sometimes it just happens. And anytime I laugh I have to keep it in check or my bladder will decide it's...
    rubyf rubyf 18-21, F 3 Responses 22 hrs ago

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    I don't get how people can be able to have hundreds of friends... Most of the people I know are somewhere between acquaintances and friends. And there is a smaller group that I...
    Roccondil Roccondil 22-25, M 1 Response 17 hrs ago

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    but I'm okay with that. I have 1 friend married 25 1 son she's a christian that lives and breaths for God. Been friends with her almost 9 yrs. Then I have another friend 32 2 boys...
    jbnj12 jbnj12 26-30, F 16 hrs ago

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    I recently had a call from a highschool friend informing me about our friend having cancer. Naturally, I am shocked. At our age, at this point in time, I feel like we shouldnt have...
    BloviatingBuffoon BloviatingBuffoon 70+, F 2 Responses 9 hrs ago

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    I had a dream last night that he had to get his leg amputated. I was telling my best friend how I felt so bad for this guy and she had no empathy at all and almost laughed. Then I...
    ThePinkP0werRanger ThePinkP0werRanger 26-30, F 8 hrs ago

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    Being numb. I know hat most people say that we don't know what we've got, till its gone . An. Believe that But for people like me would give it all away just to be free and run...
    Killerinstict Killerinstict 13-15, F 6 hrs ago

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    The thoughts are constant, they come much more often, the feelings of worthlessness, hopelessness, anger, fear, depression! I don't know what to do anymore! I coped for a while by...
    sm1ttay sm1ttay 16-17, M 1 Response 6 hrs ago

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    So I completely screwed up again. I got a text from a friend telling me he has been distant for the past two weeks because of something I said to his girlfriend. I never knew he...
    nickrif nickrif 31-35, M 1 Response 5 hrs ago

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    What is love? We search for definition, and meaning behind an emotion so highly regarded and used. Love, has such a variable meaning, and each has their own definition. I have...
    malicethedevil malicethedevil 31-35, M 4 hrs ago

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    So when i say i have a fat life i mean my life has been with most fat people, my mom is fat both my grandpas my grandma my three aunts and uncles all my cousins and my teacher. My...
    cookie2468888 cookie2468888 18-21 3 hrs ago

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    When I was younger, I loved older women. However, as I have gotten older I have begun to like younger women. I am 25 and usually don't like to date women older than 20. I think it...
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    A member of my family stole from me. I'm usually not a push over although I'm generous. I haven't spoken to him since he did it. I love him. I'm angry. I'm disappointed in him for...
    Back2Sue Back2Sue 46-50, F 19 hrs ago

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    My Time With "Hermey" .........I had the pleasure of meeting former EPer Hermey, who stayed at my home for two days. From the first hug as he walked up the driveway, to our goodbye...
    Kathieredart Kathieredart 56-60, F 7 Responses 15 hrs ago

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    Either people get my humor or they think I'm really weird :D well nothing wrong with that... Different is good I think. Besides I've always been the weird girl so it all makes...
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    I am a product of the 60s. Meaning I guess I was in high school in the 60s and entered college in the fall of 1969. We were going to change the world. If we did, it may need to be...
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    I have never believed I could change the world. I have always known I can change my world!
    GJOFJ3 GJOFJ3 56-60, M 12 hrs ago

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    My boyfriend tells me he doesn't like northern blacks, because of the sterotype that they all in gangs, they don't get married, and have no respect. And the list goes on. I have...
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    I seriously have no real friends and i hate it. I had the same 'friends' from about age 6 till 14 but they always would hurt me, and i never had the chance to make other friends...
    thekittykat thekittykat 13-15, F 10 hrs ago

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    I don't know what the hell happened to me and I feel SO stupid about it now but I called my crush (read my previous story, I know it's long though) because I don't know, I wanted...
    Wildyoungfree Wildyoungfree 22-25, F 1 Response 10 hrs ago

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    I don't know what the hell happened to me and I feel SO stupid about it now but I called my crush (read my previous story, I know it's long though) because I don't know, I wanted...
    Wildyoungfree Wildyoungfree 22-25, F 10 hrs ago

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    Ok so for the past couple of weeks I've started to have feelings for my friend. Yeah it's the usual situation about a girl liking her friend but what shock me the most is how he...
    Brogann Brogann 16-17, F 7 hrs ago

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