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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 26-30, F Apr 25, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    Related Experiences

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    come to think of it.... Oh sorry. Yeah no it's difficult to be lonely when your family is moving and you're in the passenger traveling between states or just on a business trip...
    ManifestoOfThePhoenix ManifestoOfThePhoenix 26-30, M 1 hr ago

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    I'm 90% sure this is not a diagnosis. There is schizoaffective disorder and there is bipolar disorder. It's not one thing, you can have both diagnosis but "schizoaffective bipolar...
    Volatile13 Volatile13 18-21, F 1 hr ago

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    I have a Xbox with live and headset
    Paulmarley909 Paulmarley909 13-15, M 2 hrs ago

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    But I'm getting tired of all the Foodies so i'm going to say I love some foods Like Bacon and pancakes and i love the Sausage at mcdonalds and yeah I eat meat. I love brownies...
    ManifestoOfThePhoenix ManifestoOfThePhoenix 26-30, M 2 hrs ago

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    For as long as I can remember—even as a kid—I have had violent fantasies (and even dreams and have been able to manipulate my dreams, but another story for a different...
    JadeKnight JadeKnight 26-30, T 2 hrs ago

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    I would constantly wonder what my life would have been like if I had cut certain people off sooner, gathered the courage to say hello to others, been brave enough to do or say...
    ThatOneGemini ThatOneGemini 16-17, F 2 hrs ago

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    HELP. i look so terrible now. I have been having insomnia and depression. I skip school and isolate myself. I stopped doing the things i've liked. My self-esteem has dropped a lot...
    TJLK TJLK 18-21, F 2 hrs ago

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    I have drawn multiple nsfw pictures
    gamer505 gamer505 18-21, F 3 hrs ago

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    I have a 1/4 socket extension about 6" long fully insert erred looking for like minded
    lonelydaddy469 lonelydaddy469 66-70, M 3 hrs ago

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    I have had dreams about being ****** by two video game characters
    gamer505 gamer505 18-21, F 1 Response 3 hrs ago

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    i loved this girl kelly for 7 years..and now for the 1st X we r gonna be in seperate rooms where i wont know if my nemisis will make a move on u when the teacher isnt looking...
    Jonathan12234 Jonathan12234 16-17, M 4 hrs ago

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    This planet harbors life. Humans eventually evolved, so here I am. When we're born, we don't get our instructions from a higher power, and a "get going" smack on the ***. We all...
    ProfessorPhoton ProfessorPhoton 26-30, M 1 Response 4 hrs ago

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    I was diagnosed with Aspergers Syndrome around 5 years ago. since I was diagnosed I've began to understand myself better. I actually see it as a blessing because I have became very...
    waterboy99 waterboy99 16-17, M 4 hrs ago

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    I am a guy and I have a boyfriend. Our story is a very long and tedious one. We met online and I asked him to be my boyfriend, but only because I was trying to get over someone. I...
    asllapiscu asllapiscu 18-21, M 1 Response 4 hrs ago

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    It's a problem for me that I don't know if I'll explain right but I'll try. My dad was physically and verbally abusive to me and would beat the he'll out of me and intimidate me...
    YOULOOKLOSTLIKEDOROTHY YOULOOKLOSTLIKEDOROTHY 36-40 2 Responses 4 hrs ago

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    Her name was Angelina. She met me when I was broadcasting on twitch tv. She came in and watched me play dead space with my buddy, she commented and left cute little emojis. I didn...
    EvoKinevil EvoKinevil 26-30, M 1 Response 5 hrs ago

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    I have them and i hate wearing them. But lately i need them.
    badgirlbee badgirlbee 22-25, F 2 Responses 5 hrs ago

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    Like... Did Adam and eve have belly buttons? Why my pillow poked me... What it's like to live on the other side of the world... How hot my shower water gets... Why men say...
    badgirlbee badgirlbee 22-25, F 1 Response 5 hrs ago

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    what is love?.... 1.a (1) : strong affection for another arising out of kinship or personal ties (2) : attraction based on sexual desire : affection and tenderness felt by...
    waitformesenpai waitformesenpai 18-21, F 2 Responses 5 hrs ago

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    Any girls want to have a holding contest on Skype or something.
    imaguynotgirl imaguynotgirl 18-21, M 1 Response Jul 1

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    I adore redheaded women. I love the color of their skin. they're so beautiful. I love the fact that they can switch from red to blonde and have it look so natural...but natural red...
    deleted deleted 26-30 Jul 1

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    Colors of the Wind You think I'm just an ignorant savage And you've been so many places; I guess it must be so But still I cannot see, if the savage one is me How can there be so...
    FindmeHoldmeLoveme FindmeHoldmeLoveme 18-21 Jul 1

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    Redeemed my Coke Reward points for a brand new Keurig single-cup coffee maker for my husband. See? Good things happen for other people when I have my Diet coke.
    SubSided SubSided 46-50, F 3 Responses Jul 1

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