Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

    Your Response

    Cancel

    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

    Your Response

    Cancel

    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

    Your Response

    Cancel

    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

    Your Response

    Cancel

    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

    Your Response

    Cancel

    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29

    Your Response

    Cancel

    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

    Your Response

    Cancel

    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

    Your Response

    Cancel

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

    Your Response

    Cancel

    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

    Your Response

    Cancel

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

    Your Response

    Cancel

    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

    Your Response

    Cancel

    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

    Your Response

    Cancel

    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

    Your Response

    Cancel

    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 22-25, F 1 Response Mar 25, 2013

    Your Response

    Cancel

    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

    Your Response

    Cancel

    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

    Your Response

    Cancel

    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

    Your Response

    Cancel

    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

    Your Response

    Cancel

    Related Experiences

    Sorry I haven't been on everyone I've been trying to deal with the fact that I have cancer and about a month, if even that, to live
    rainbowgirl42069 rainbowgirl42069 13-15, F 1 hr ago

    Your Response

    Cancel
    I have a gay crush on my sister's boyfriend. They live with me. He has been living with us for a while. I love hugging him so much. We do the one arm back pat. I do attempt to do a...
    big1guy87 big1guy87 26-30, M 34 mins ago

    Your Response

    Cancel
    So today is a holiday, the only two friends I have aren't talking to me. I hold them so dearly and I feel like they're dead... I don't know why this happens. I'm close to just...
    DarkHappiness DarkHappiness 13-15, F 2 Responses 1 hr ago

    Your Response

    Cancel
    Stuffed myself at a restaurant... had some stuff from a sampler plate, fajita entree, and chicken queso fundido appetizer too with a large coke and chips and salsa.... i think my...
    skinnybloatingirl skinnybloatingirl 18-21, F 1 hr ago

    Your Response

    Cancel
    My mpd, at least the one that i register most with, is named Savannah Mae Carter. On my profile that's what it says, so people i know personally can't find me online. Anyway her...
    iamaphrodite iamaphrodite 18-21, F 1 hr ago

    Your Response

    Cancel
    Stuffed myself at a restaurant... had some stuff from a sampler plate, fajita entree, and chicken queso fundido appetizer too with a large coke and chips and salsa.... i think my...
    skinnybloatingirl skinnybloatingirl 18-21, F 1 hr ago

    Your Response

    Cancel
    yeah, I have a few - one on my arm from when a friend scratched me - one on my hip from the removal of an abscess - a small one on my cheek from where some kid scratched me...
    emjagrace emjagrace 13-15, F 58 mins ago

    Your Response

    Cancel
    I'm not too religious but I do believe strongly in what I believe. Some time ago at my church things didn't go so well between me and my pastors daughter. the pastor constantly...
    Mystique91 Mystique91 22-25, F 50 mins ago

    Your Response

    Cancel
    Why must I feel deeply? Pain lingering, thoughts play on and on like a Musical that never ends. Awaiting for it and hearing the voices, singing with feeling and Heart reminding me...
    Xenasdreams Xenasdreams 22-25, F Nov 25

    Your Response

    Cancel
    I use to have you, I use be glowing with hope for everything and I use to feel refresh having able to talk to u but now everything seems impossible because u will not turn back and...
    minniekoala minniekoala 22-25, F Nov 25

    Your Response

    Cancel
    When will I ever sleep again? Thinking about taking pills but have bad side effects. I don't know what to do and how to cope up with this.
    MaryJay712 MaryJay712 16-17, F 2 Responses Nov 25

    Your Response

    Cancel
    Fattybumbitch You're a fraud. Blocked just because I asked for a 'now' pic. After you sent an old (probably fake) pic. What a waste of my time...hopefully others won't be as dumb...
    blackinc blackinc 36-40, M 1 Response Nov 25

    Your Response

    Cancel
    Those adventures which I have to sort out when I awaken are either the most exhilarating or the most terrifying dreams. Sometimes I'll wonder about a dream character's well-being...
    DiaLuz DiaLuz 22-25, F 1 Response Nov 25

    Your Response

    Cancel
    I have a sun on my upper back. I designed it and got it done when I graduated nursing school. I'd like to get another to honor my dads memory. A Luna Moth. It would look perfect on...
    sunnygrlamy sunnygrlamy 36-40, F Nov 25

    Your Response

    Cancel
    Many times and for many reasons. Most I don't know. It hurts my feelings and I know it shouldn't. I can understand my exes blocking me. They simply don't want me in their lives...
    DarkwingGoslyn DarkwingGoslyn 31-35 2 Responses Nov 25

    Your Response

    Cancel
    I seriously don't know why I bother with people. It just seems every time I help someone it backfires to make me feel like crap. About 15 minutes ago I saw a paraplegic man in a...
    Gemz2411 Gemz2411 18-21, F 3 Responses Nov 25

    Your Response

    Cancel
    Where in the human rights book does it state u have to talk to strangers?
    LikeAPrayer LikeAPrayer 18-21, F 4 Responses Nov 25

    Your Response

    Cancel
    My future's so bright I have to wear shades
    throwawaychild throwawaychild 46-50, M 3 Responses Nov 25

    Your Response

    Cancel
    I want to make a youtube channel and just have fun and be able to talk to people. walk around and blog, or talk about the korean foods i love or talk bout clothes or juts be fun...
    emiri77 emiri77 18-21, F 1 Response Nov 25

    Your Response

    Cancel
    Mostly my cousins and friends have seen me
    skinny15m skinny15m 13-15, M 4 Responses Nov 25

    Your Response

    Cancel
    I am alone at a crossroads I'm not at home in my own home And I've tried and tried To say what's on my mind You should have known Now I'm done believing you You don't know what I'm...
    Becky18 Becky18 18-21, F Nov 25

    Your Response

    Cancel
    I'm married, 2 gorgeous and very little children. Last year I had an affair which ended 2 months ago after 14 months. We got very close and started to plan a life together, but...
    michaelsotherwoman michaelsotherwoman 36-40, F 8 Responses Nov 25

    Your Response

    Cancel
    She is in another office. We are both married with children but we had this weird sexual connection. Never acted on it and have considered avoiding her at company functions...
    sunujing sunujing 36-40, M Nov 25

    Your Response

    Cancel
    Mostly pretty dumb ones haha Like today I was daydreaming in class, and my mind started to wonder, and I was thinking about the future. Like how different society will be in 60...
    Bcdknfib Bcdknfib 16-17, F 2 Responses Nov 25

    Your Response

    Cancel
    It's actually hard to make other female female friends I'm guessing it's cause of my insecurities.. But I have trouble making friends in general
    kanashimi93 kanashimi93 13-15, F Nov 25

    Your Response

    Cancel
    I think I might have a crush on a guy friend..I'm not really sure but it kinda scares me.. I feel like I bother him tho recently texting him..
    kanashimi93 kanashimi93 13-15, F 1 Response Nov 25

    Your Response

    Cancel
    I have a new video all about ipsy! 
    Destinilovelaughter Destinilovelaughter 18-21, F Nov 25

    Your Response

    Cancel
    okay so i have a boyfriend & it doesn't feel like he's my boyfriend. 1 he broke my heart after a year & a half of us being together & i took him back, he didn't cheat on me i just...
    Davonnaaa Davonnaaa 18-21, F 1 Response Nov 25

    Your Response

    Cancel
    After busting my head open I think a broken arm or leg wouldn't hurt XD I decided to build a swing on a tree then where the tree was is a big drop and so I decided to jump of and...