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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    Related Experiences

    Hey guys, I'm new here, so I'm not exactly sure how this goes.. But I figured I'd give it a shot. Here's a little bit about me: My name is Sara, I'm 19 years old, I live with my...
    darling1925 darling1925 18-21, F 1 Response 18 mins ago

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    People have said I have an attractive smile before. I don't think so though. I've been told I "light up" with my smile. Which makes me want to gag. My teeth are very crooked. I...
    1lonelydaisy 1lonelydaisy 41-45 1 Response 10 hrs ago

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    I've begged for forgiveness asked you to punish me hit me beat me run me over with your car 🚗 but just let it go already. You keep making up stories that are solely in your...
    tommcam tommcam 41-45, M 1 Response 10 hrs ago

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    I don't trust men. I am afraid of them. I have never never been sexually abused. But I have had a psychologically abusive relationship with my dad for most of my life. I can't...
    mgkatie mgkatie 18-21, F 4 Responses 8 hrs ago

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    I want to share them all on here, but I don't have them organized in my head or anything like that.. And I'll have to work up to sharing bigger ones just because they're kind of...
    jessicadozen jessicadozen 18-21, F 2 Responses 6 hrs ago

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    I had my first tattoo done when I was 18 on my 18th birthday altho I don't "regret" it I wish I had out more thought into it! I walked in and said yeah that one right there the one...
    Fullofsunshine Fullofsunshine 26-30, F 1 Response 1 hr ago

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    The things I generally think about while driving. Because driving is Thinking Time. This morning on my way to the barn I was thinking about how meaning and words have no actual...
    disastercupcake disastercupcake 26-30, F 2 Responses 59 mins ago

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    Okay, this dream was a normal dream but what we talked about was very interesting and I thought, huh. I don't remember where in the dream this was, I think it was before I used a...
    LoveUnite LoveUnite 26-30, F 5 hrs ago

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    I used to think that I wanted to be a fashion model because I loved the glitter and glamour that the fashion world has to offer. Now I've realized, all I ever wanted to be is a...
    abcdefghisabelmnopqrst abcdefghisabelmnopqrst 26-30, F 1 hr ago

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    -Father. Sociopathic. Physically and mentally abusive to both my mother and myself. I lived with him for thirteen years. My current household: -Mother. I live with her now. Was...
    SilencesLullaby SilencesLullaby 16-17, F 12 hrs ago

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    I know I shouldn't, but I have a major crush on my boss. We talk all the time at work, and have started talking online till late most nights too. I know nothing will happen - he's...
    Toni47 Toni47 18-21, F 1 Response 11 hrs ago

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    I have made a big mistake , I wrongly used a word that was not at all appropriate . It may have caused hurt , if it did I am truly sorry. I hope you can forgive my poor choice of...
    heavenlyflower123 heavenlyflower123 36-40, F 10 hrs ago

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    My Best Friend was murdered on December 26, 2014... They still haven't convicted his killed.. He was the greatest person in my life... I still sleep in his shirt and have his...
    KatieBugg795 KatieBugg795 18-21, F 7 Responses 10 hrs ago

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    hey, X) been a while,, planning on deleting the account, maybe ditching it idk. i don't really realize what happened a while ago so don't ask. ..... :( ,,, enlightened one...
    iamnoor iamnoor 13-15, F 7 hrs ago

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    I am not only sexy, above average looking, and have a great looking hot body. I am super intelligent and use my brains accordingly. When in college I was a member of MENSA. I...
    momlovesoutdoors momlovesoutdoors 36-40, F 2 Responses 5 hrs ago

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    Hi, I'm a 21 year old medical student living abroad, I was diagnosed with bipolar nearly 3 years ago, and before that I struggled a lot. I let it get quite far before my family...
    lily449 lily449 18-21, F 1 Response 3 hrs ago

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    Hi, I'm a 21 year old medical student living abroad, I was diagnosed with bipolar nearly 3 years ago, and before that I struggled a lot. I let it get quite far before my family...
    lily449 lily449 18-21, F 3 hrs ago

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    Hi, I'm a 21 year old medical student living abroad, I was diagnosed with bipolar nearly 3 years ago, and before that I struggled a lot. I let it get quite far before my family...
    lily449 lily449 18-21, F 3 hrs ago

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    Hi, I'm a 21 year old medical student living abroad, I was diagnosed with bipolar nearly 3 years ago, and before that I struggled a lot. I let it get quite far before my family...
    lily449 lily449 18-21, F 3 hrs ago

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    What happens with me is that I have to reread the page or a paragraph in order to acquire something like 80 % of information retained and processed in my brain. I don't know what...
    somniatorlupus somniatorlupus 18-21, M 59 mins ago

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    She got her nail, went to my right leg and dug out something. You can see she dug too much and looks like she went into a layer of skin she shouldn't have. I said about it and she...
    1lonelydaisy 1lonelydaisy 41-45 2 Responses 12 hrs ago

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    I've had 0 friends for a couple years now, it's starting to just get to me and I want to go places but I don't know where to go. Also my family is having money issues which means...
    m4riiam m4riiam 16-17, F 1 Response 12 hrs ago

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    I think everyone has in there life. Because I know I have and still there. I want to feel like it but it has been hard for me to come out of it
    mislopez83 mislopez83 31-35, F 12 hrs ago

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    I have a big butt and I'll show you if you send me a pic of a girl's butt.
    harden69 harden69 18-21, M 11 hrs ago

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