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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 42 People

    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 2 Responses Aug 21, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 36-40, F 1 Response May 29, 2014

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 26-30, F Apr 25, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 3 Responses Mar 25, 2013

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    Related Experiences

    I live in a house with my three siblings, two of them have been diagnosed with high-functioning autism and the other is in the process. I have noticed, more so during the last few...
    shamelesslynameless shamelesslynameless 13-15, F 2 hrs ago

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    i am determined not to cave in on this one. We are working on my separation anxiety that i have as a result of His predecessor (he would give me longer term instructions and...
    LoneSouls LoneSouls 31-35, F 1 Response 2 hrs ago

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    I think I may have dermatillomania (skin picking disorder). I have already been diagnosed with eczema, back when I was a kid, but I pick scabs constantly, as a habitual form of...
    skeletoncliquetop skeletoncliquetop 13-15, F 1 Response 3 hrs ago

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    hello...i don't know where to post this exactly, sorry if it ends up in the wrong category/group. i have a situation that i cannot discuss with anyone, but i need some feedback...
    mommajllc mommajllc 36-40, F 12 Responses 3 hrs ago

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    hello...i don't know where to post this exactly, sorry if it ends up in the wrong category/group. i have a situation that i cannot discuss with anyone, but i need some feedback...
    mommajllc mommajllc 36-40, F 3 hrs ago

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    He tells me he will call and doesn't? I try to text I tried to call I tried to email he doesn't answer then eventually he'll answer me and tell me when he's on call and he does...
    WVgirldiane WVgirldiane 56-60, F 1 Response 3 hrs ago

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    I've always thought my eyes were super interesting, but only recently discovered that I have central heterochromia. My eyes are blue, with brown around the pupils, that radiates...
    cobalt997 cobalt997 18-21, M 4 hrs ago

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    oh yes, i have ridden horse, camel and elephant.....it's just that they had two feet instead of four.
    deejaygirl deejaygirl 26-30, F 4 hrs ago

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    Phil saw no shadow. We might have an early spring. See comment: I have got a link.
    mother1983 mother1983 31-35, F 1 Response 4 hrs ago

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    Sometimes I feel like I've lived many different lives. I just know I have.
    TatlerAmbition TatlerAmbition 70+ 4 hrs ago

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    I have a confession. I have an unhealthy relationship with pornograpghy. I don't know if I've passed the line of addiction but I mas********* whenever I feel bored, helpless or...
    TatlerAmbition TatlerAmbition 70+ 3 Responses 4 hrs ago

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    But I need to buy coffee and sugar for the energy to make foodstuff. But I don't have the energy to get out of bed to put on pants and go to the store. Looks like I'm going to have...
    DropdeadDreamer DropdeadDreamer 18-21, F 4 hrs ago

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    My father was a pretty heavy smoker since the time he was a teen. A few years ago, he died from lung cancer. It was a slow painful death that i wouldn't wish on my worst enemy. I...
    ben243 ben243 22-25, M 1 Response 4 hrs ago

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    I have broken my right arm twice! The first time I was playing with a friend who lived down the street, and tripped on the uneven sidewalk. The second time I broke it, I was...
    ben243 ben243 22-25, M 4 hrs ago

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    Just realised that all the men I have ever had feelings for, had something to do with art, graphic design, something in that direction.. What a freakish coincidence, is it a...
    MissGaga MissGaga 22-25, F 3 Responses 5 hrs ago

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    I've been an athlete ever since my early teens. Having severe anxiety affects my performance tremendously. Every time it is my turn to perform, I am sick to my stomach. I am scared...
    Kiki1201 Kiki1201 22-25, F 5 hrs ago

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    Like today. It's like the universe is conspiring against me. So I want to go walking, then it starts to rain. When I come back in it stops. When I plan to go out again, I lose my...
    DiabolusInMusica DiabolusInMusica 31-35, F 5 hrs ago

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    People tell me i look like a 11 yr old!! It gets very annoying! Its not my fault i have a baby face! Look at thomas sangster!😍
    fangirl4lifeandever fangirl4lifeandever 13-15, F 2 Responses 6 hrs ago

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    I have tried to post these thoughts before, but they mysteriously disappeared in a few hours, so let me try again. I get fed up with conservative politicians hi-jacking the Bible...
    carlton52 carlton52 61-65, M 6 hrs ago

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    I'm headin home at 4! But I'm gonna have an I.V at home.
    CreepypastaFan2016 CreepypastaFan2016 16-17, F 1 Response 6 hrs ago

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    A few days ago, I felt some twitching in my face. I've dealt with twitching for a while now, so I wasn't too surprised by it. But this time it lasted for about an hour. My twitches...
    hiddenkitty hiddenkitty 18-21, F 7 hrs ago

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    My girlfriemd live right next to this lady. She is a very nice person and she loves kids.she is probably 50. She has been a friend of my girlfriends family since forever. My...
    itsallaboutfootball itsallaboutfootball 26-30 1 Response 7 hrs ago

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    I thought my fiancé and I were as safe as could be, I'm on birth control, he used a condom. The condom broke so we went out and bought plan b. I started cramping and bleeding and...
    fresh16 fresh16 18-21, F 7 hrs ago

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