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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 26-30, F Apr 25, 2013

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    Related Experiences

    I'm 16 and I have a small bladder and I have always wet my bed and I wear diapers at night and sometimes in the day. I'm really used to it and I don't care that I do it and...
    josht111 josht111 18-21, M 1 Response 9 mins ago

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    It is dangerous, but I never had my head in clouds till yet... the least distance which ever existed betwixt my hair and the cloud's base was around 5-10 metres lol. If it had...
    ConfusedPsychopath ConfusedPsychopath 18-21, M 27 mins ago

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    I just turned 19 and I’ve never been kissed, barely flirted with a guy, and I’ve never had a guy actually show interest in me. I don’t know what’s wrong. I mean I could...
    Neasa Neasa 18-21, F 1 Response 30 mins ago

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    I don't know if I actually have social anxiety because I am too scared to mention my thoughts to my parents. I'm an insomniac and take medication for that. I'm almost positive...
    sk8rkm77 sk8rkm77 13-15, F 1 Response 46 mins ago

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    Why are you so beautiful??!! Just by looking at your stupid face, my heart felt a dull, crushing pain. What superpowers do you have to make me feel like this?
    rosswakeman rosswakeman 22-25, M 56 mins ago

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    He is so funny we have the same problems but our family doesnt get along bcz of what of his family member did. i hope my family can change their opinion bcz alex isnt the same as...
    Baee5400 Baee5400 13-15, F 1 hr ago

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    everyone must have said or want to say I LOVE U. but by saying it what do u love in that person? is it appearance, thinking money he/she is earning or the way he/she earns,or the...
    Luckydare Luckydare 22-25, M 1 hr ago

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    I had a dream last night were a kid at school ran against his locker and jammed his hockey stick threw the side of his head. Then later on i saw his brain scans and had to help him...
    WooTang710 WooTang710 26-30, F 1 hr ago

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    Sometimes there's specific people you have a thing for, for me it's worse because I know that our relationship is very one sided and that there is only a professional interest in...
    CiorstaidhNicAnToisich CiorstaidhNicAnToisich 18-21, F 1 hr ago

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    What songs can u relate to? which Lyrics? mine would be Savages by Marina and the diamonds amazing singer my gave in fact "one man could build a bomb another run a race to...
    Darkprincess24 Darkprincess24 13-15, F 1 hr ago

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    Life feels very foreign to me these days. I go through the motions, count my blessings, do the best I can (I think)...but it's like I'm on a path I have never walked before and...
    pinkstarburst pinkstarburst 41-45, F 9 Responses 1 hr ago

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    Does anyone out there have Chromesthesia? I can't seem to find anyone that has it similar to how I do... If there is a sudden loud noise that I'm not expecting, then something will...
    maisyworry maisyworry 18-21, F 2 hrs ago

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    I have ticker-tape synesthesia (visually seeing the words people say next to them, apparently it is a rare type?) along with a few other types. I have been diagnosed today by a...
    maisyworry maisyworry 18-21, F 2 hrs ago

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    I'm 21, almost 22 and have never had a boyfriend/girlfriend. And I've only ever been kissed once just after high school. Recently I've started making friends for a change and one...
    InYourArms InYourArms 18-21, F 1 Response 2 hrs ago

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    I'm interested in someone but I have a ten reasons why I should not even think of approaching him. One, I'm extremely shy. Two, he's head over heels over someone else. Three...
    sarasakun sarasakun 18-21, F 3 hrs ago

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    I had the worst experience I have ever had last night with friends cause we was sat have a laugh and I decided to go home early because I wanted to see my dad before he went to...
    ljayymale ljayymale 18-21, M 2 Responses 3 hrs ago

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    The invisible pain. No one believes the level of pain this chronic disease causes.. I hate it so much.. being in pain on and off since 20 after acute pancreatitis I spent 7months...
    stefx85 stefx85 26-30, M 3 hrs ago

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    Yeah, i just have to say this. SOME people here on EP have a stinking habit of sticking their nose in sh*t they know nothing about. Just saying that, if you don't know half of the...
    Chezsoldierr Chezsoldierr 18-21, F 8 Responses 4 hrs ago

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    I'm 60 male and married. drive a truck over the road during the week and have time. message me if you want to chat.
    volvoman60 volvoman60 56-60, M 1 Response 4 hrs ago

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    Im not well in English.. But im having a story which i cant share with anyone.! Im from a country where love is crime. No parents here accept love marriage. Only 25% parents will...
    unsaidluv unsaidluv 18-21, F 2 Responses 5 hrs ago

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    Im a 15 year old teen with a dual simian. So far what ive read basically describes me;impulsive,stubborn and lazy if doing what i do not like. recently however, things have been...
    AlixanderT AlixanderT 13-15, M 5 hrs ago

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    Anybody else have these and enjoy the feeling? Must be somebody?
    Wantingsex75 Wantingsex75 36-40 2 Responses 6 hrs ago

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    I see why the men in the Middle East smoke hookah, it's so calming I love the apple .. I go on slow night because it's really easy going , and chill the owners son comes out and...
    Prettibrowngirl Prettibrowngirl 70+, F 6 hrs ago

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