Post

I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 42 People

    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

    Your Response

    Cancel

    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

    Your Response

    Cancel

    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

    Your Response

    Cancel

    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

    Your Response

    Cancel

    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 22-25, F 1 Response Mar 25, 2013

    Your Response

    Cancel

    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

    Your Response

    Cancel

    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

    Your Response

    Cancel

    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

    Your Response

    Cancel

    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29

    Your Response

    Cancel

    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

    Your Response

    Cancel

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

    Your Response

    Cancel

    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

    Your Response

    Cancel

    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

    Your Response

    Cancel

    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

    Your Response

    Cancel

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

    Your Response

    Cancel

    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

    Your Response

    Cancel

    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

    Your Response

    Cancel

    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

    Your Response

    Cancel

    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

    Your Response

    Cancel

    Related Experiences

    So I've been having this bed bug problem in my room for a while. Since the beginning of June to be exact. My dad hasn't put out ANY effort to fix the problem the past month and a...
    TheMasterMan1 TheMasterMan1 16-17, M 8 hrs ago

    Your Response

    Cancel
    I have one year left at my community college and I don't even know what I want to major in after I continue. I'm currently majoring in Liberal Arts and Sciences/General Studies...
    jahein137 jahein137 18-21, F 7 hrs ago

    Your Response

    Cancel
    I am obsessed with curly hair. I make it a point to try to compliment almost everyone that I see with great curly hair! People really appreciate it, too! I have naturally curly...
    NYX78 NYX78 36-40, F 1 Response 5 hrs ago

    Your Response

    Cancel
    When I was a kid, i used to have a ton of friends, then i moved.... Everyone i knew was gone. After that i never really had any friends. I would always just get through school...
    Snsndmdmam Snsndmdmam 26-30, F 1 Response 9 hrs ago

    Your Response

    Cancel
    Look at the girls in the group and what Each individual lady might be most inclined to accomplish. Once you understand your pals’ Choices and budgets, you have to be...
    Wendolynce106 Wendolynce106 31-35, M 1 Response 1 hr ago

    Your Response

    Cancel
    I'm 55 and a 22-year survivor of ovarian cancer. I'm also a 55-year survivor of a passive-aggressive mother. My mom had a pretty tough childhood, and I am sad to know the awful...
    Katsez01 Katsez01 51-55, F 46 mins ago

    Your Response

    Cancel
    ( will have google translate to help me to) I don't know why, I have been using someone's laptop and the internet has been messing up so if it keeps messing up a lot he told me...
    Blazingdragon Blazingdragon 13-15, M 9 hrs ago

    Your Response

    Cancel
    After thinking hard about past events in my life, i came across the many times i have gotten the mail nude. Only until recently have i felt some sort of remorse for the many men...
    AnonR AnonR 70+, T 1 Response 9 hrs ago

    Your Response

    Cancel
    I have been very busy this last few weeks. i work a lot as it is! These last few weeks have taken me to some pretty strange hours of the day. I have been getting up at 2AM and...
    johnlament19 johnlament19 18-21, M 6 hrs ago

    Your Response

    Cancel
    for the first time ever i got a beauty salon to agree to put makeup on me as i have always wanted the whole girly experience of sitting down and a female makeup artist doing my...
    andrew1987 andrew1987 26-30, M 1 hr ago

    Your Response

    Cancel
    Money or No Money Having been sitting down for over 2 hours, I decided to hide myself in the conference room. For once, it was all silence. The only sound I could hear was the...
    cedicoin cedicoin 26-30, M 1 Response 1 hr ago

    Your Response

    Cancel
    I've probably had it for as long as I can remember, but I didn't discover it until my middle school/early high school years; I randomly started looking up pregnant women on the...
    therapeuticmindfuckery therapeuticmindfuckery 22-25, M 9 hrs ago

    Your Response

    Cancel
    I wake up. Can't breathe. Feel like I'm going to die. Why does this happen to me? Despite some horrible things that have happened in my past, my life is great right now. I have...
    beautifullybrokengirl beautifullybrokengirl 18-21, F 3 Responses 9 hrs ago

    Your Response

    Cancel
    I have known that this was an actual thing for a couple years now. My parents still don't believe that it's an actual form of OCD and they keep telling me to "just stop". I have...
    cyrn97 cyrn97 16-17, F 9 hrs ago

    Your Response

    Cancel
    I have this weird thing I do with my father and it starting off high 5ing each other web we said something funny or were being smart *****, and now it's like distant elbow high...
    emzeymoore emzeymoore 16-17, F 5 hrs ago

    Your Response

    Cancel
    I don't know what it is but making friends is so difficult I'm so terrible at making eye contact and have been friendless all my life and I'm in my 11th year of school and I still...
    brodeejade brodeejade 16-17, F 1 Response 4 hrs ago

    Your Response

    Cancel
    I don't even know when I'm supposed to sleep anymore. I work 7 pm-7am three to four times a week. It sucks because I miss out on so much and then when I get a day off I can't do...
    Tigerlily53 Tigerlily53 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    So..I was suddenly awaken this morning by hearing my nickname being whispered in my ear..then he said it urgently again in my ear, as if to wake me up. I jumped up and looked...
    LOOKN4NSIGHT43 LOOKN4NSIGHT43 41-45, F 3 hrs ago

    Your Response

    Cancel
    I have a very complex sense of humor. Not saying it would take a genius to understand my jokes, not at all.. Only people who I have more of a connection with seem to get my humor...
    StoneColdNipZz StoneColdNipZz 18-21, M 4 Responses 2 hrs ago

    Your Response

    Cancel
    Indeed I do have glasses and if I don't wear them I hope I have the ability to see like a bat because I'm blind...
    thatniceguy101 thatniceguy101 18-21, M 1 hr ago

    Your Response

    Cancel
    I have some but my gf thinks that they look like tulips because they shaped like tulips but I think it's natural to have those kind of boobs and they said they can see it through...
    Guywhopees Guywhopees 18-21, M 2 Responses 1 hr ago

    Your Response

    Cancel
    I need a man to get me pregnant no strings attached I'm young if you have to go to ***** bank and you live close meet me up I live in United States and it could either be jersey...
    wannabepregrers wannabepregrers 13-15, F 1 hr ago

    Your Response

    Cancel
    I have a major crush on my female boss and it's driving me so crazy!! I've been working at my job for a little over a month now, and I can't help but to think about her all day...
    Lynnie21 Lynnie21 18-21, F 1 Response 10 hrs ago

    Your Response

    Cancel
    ****! Insomnia, you ought to know better than jump out at me like that. It's a good thing I recognized you otherwise, you'd have gotten knocked the **** out.
    Handyman25 Handyman25 22-25, M 1 Response 7 hrs ago

    Your Response

    Cancel
    In about 3 years I'll be qualified to do everything I love. 8 years after that if I stick to it. I will have a higher career path but I don't know what I wanna do forever. I like...
    Alylovespuppies Alylovespuppies 16-17, F 1 Response 7 hrs ago

    Your Response

    Cancel
    So before insomnia came knocking on my brain window, I had a singularly bizarre dream, which is really saying something. It started with me getting a message on EP from a member of...
    Handyman25 Handyman25 22-25, M 1 Response 6 hrs ago

    Your Response

    Cancel
    He is completely honest with me. A lot of people assume we're dating because we're really close and playful but that is hilarious because we started our friendship thinking that...
    Alylovespuppies Alylovespuppies 16-17, F 6 hrs ago

    Your Response

    Cancel
    One day, dunno who but I hope he's out there doing his own thing right now... Absentminded n all.. And I would love to have babies with him... Deep stuff huh? Well that's if he's...
    gaeainchaos gaeainchaos 22-25, F 6 hrs ago

    Your Response

    Cancel
    After I got pregnant at 18 I told my parents and dad said he never wanted to see me again and I had ruined my life. That was fine by me. At that point I hated dad for how he...
    Renee305 Renee305 26-30, F 5 hrs ago

    Your Response

    Cancel
    I watched my mother love a drug addict and suffered because of her poor decisions. He died of an overdose of heroin and Xanax. I feel a lot of regret for screaming at him so much...
    Tigerlily53 Tigerlily53 18-21, F 1 Response 4 hrs ago