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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    Related Experiences

    I am that daughter, wife, sister, mom... I have always been the one to take care of everyone, it has always been my role. I'm the strong one in my family, I have 7 older brothers...
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    To all who understand and to all that never will. Here is a poem for all the women who live with this invisible pain. I am tired of being your rag doll. I have spread myself far...
    rescueme99 rescueme99 41-45 6 hrs ago

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    I should not say that all men have hurt me. I do not think that all men are evil or blame everyone in my life but I have been hurt by a lot of men. I don't want to be bitter and I...
    wingeyes wingeyes 31-35, F 1 Response 2 hrs ago

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    Depression and anxiety run strong in my family. I suffer from both of these, and like most, I have my good days, and I have my bad days. These past three months have been filled...
    hanban0320 hanban0320 22-25, F 4 hrs ago

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    Thinking about the universe fascinates me, because the more I start to think about it, the more I get lost and the more questions arise. I mean, science has found so much already...
    mmmfood mmmfood 22-25, M 1 Response 11 hrs ago

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    When I was younger, I was hurt really bad by an older person that drastically altered everything about myself. Because of that I have bad dreams . Idk if my nightmares can compare...
    2323keka 2323keka 16-17 4 hrs ago

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    So, I've never had a real life boyfriend before, maybe because I'm not pretty enough or smart enough idk. I've had crushes, I talk to boys, I've had guys interested in me, it's all...
    slowme97 slowme97 16-17, F 11 hrs ago

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    It has now been almost five years. I have spent my entire teenage years wondering what I am going to do to make it through tomorrow, because heaven knows I don't know how I made it...
    Jengi Jengi 18-21, F 11 hrs ago

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    When I was a high school student,my classmates don't want me because I'm too childish,over-acting.(As one of them approach me and I know of what I am) They ignore & never talk to...
    jonnvee jonnvee 16-17, F 10 hrs ago

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    When I was a high school student,my classmates don't want me because I'm too childish,over-acting.(As one of them approach me and I know of what I am) They ignore & never talk to...
    jonnvee jonnvee 16-17, F 1 Response 10 hrs ago

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    i first found out i have turner syndrome when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults...
    Atale Atale 18-21, F 8 hrs ago

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    its hard living with this condition im an eighteen year old girl living in Ireland i was a babe when my mother found out i didnt know anything about it i was in hostiple most of...
    Atale Atale 18-21, F 3 Responses 8 hrs ago

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    Continuing my career or quit and go to a university and finish my batchular degree? (I only have diploma) I need to make a decision before April, i am really stressed over this. I...
    Nobunaga88 Nobunaga88 26-30, M 2 Responses 8 hrs ago

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    So basically from the age of 2 till 4 I had a feeding tube in me, It got to the stage(inmyhead) where it was life or death situation and in that point I had what I would call a...
    1rkg 1rkg 18-21 6 hrs ago

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    There are daughters of narcissistic mothers who have barely survived psychologically. In the extreme, there are daughters who starved themselves to death by anorexia as the only...
    rescueme99 rescueme99 41-45 6 hrs ago

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    it's been a while now since I have felt like I can live by myself. Now I am carrying a broken heart and I never thought you could break me so much. I never knew, I have no idea why...
    Wewerethereinthattime Wewerethereinthattime 18-21, F 1 Response 3 hrs ago

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    I don't get why people like alcohol so much. I don't see what the big deal is. First off, I'm a heavy weight for a girl, it takes a lot to get me drunk. (Probably because I'm...
    PinkMellow PinkMellow 18-21, F 1 Response 2 hrs ago

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    why do people have to be so mean? why do they constantly have to belittle others and then act as if they're just being sensitive? i missed out on so many opportunities because i...
    Jennyyy96 Jennyyy96 18-21, F 21 mins ago

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    I've been told on more than one occasion I have a phone s3x voice.
    dirtydarkness dirtydarkness 26-30, F 19 mins ago

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    Was practicing a new coping mechanism where I blatantly insult the demons/disrespect them, whatever to prove that nothing bad will happen and that I'm safe now. (Sort of like...
    PinkMellow PinkMellow 18-21, F 12 hrs ago

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    "Oh, why'd you have to be so cute? It's impossible to ignore you. Must you make me laugh so much. It's bad enough we get along so well! Say goodnight and go." Goodnight and Go by...
    trAnSyLvanIanconcuBinE trAnSyLvanIanconcuBinE 26-30, F 12 hrs ago

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    It's hard to admit that I have an eating disorder. I never asked for this, and I'm sure no one ever asks for this. Overcoming my problem should be as easy as eating, but it's not...
    InsaneFlowerGirl InsaneFlowerGirl 22-25, F 1 Response 10 hrs ago

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    I haven't in quite some time I should again
    gc6000 gc6000 22-25, M 10 hrs ago

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    I just got a pixie haircut. As in: yesterday. It's the first time I have hair this short since I was a teeanger in the 90ties... and I feel weird. So cold on my head now, when the...
    quira00 quira00 36-40, F 10 hrs ago