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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    Related Experiences

    Ok, y'all ready for another rant? Here we go in 3...2...1...NOW! I have a classmate named Sylvia. She is SO. FŬCKING. ANNOYING (there's gonna be a lot of letters with weird...
    BlueMetalChick BlueMetalChick 18-21, F 7 Responses 11 hrs ago

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    Grommit has what she needs more or less and is happy. A couple sliding last night. They catch me so I catch them. Haul them up the slope. This morning further chats and then a...
    grommit3 grommit3 36-40, F 1 Response 8 hrs ago

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    I'm shy and don't have much friends to socialize with. I don't go out much. I don't get invited to lunch, coffee or parties. I never travel. Been in the same city for more then 10...
    kekehuang kekehuang 36-40, F 1 Response 8 hrs ago

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    I knew this life was going to be short every life is shorter than we think. I realize that I don't have everything figured out yet I am still trying. I have come to realize that...
    kayegela kayegela 31-35, F 4 hrs ago

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    Anxiety runs my life. I have what I like to call situational anxiety not sure if that's a thing...but any event/party/gathering/errand I have to do causes me anxiety to an extent...
    Slackergirl Slackergirl 31-35, F 1 Response 1 hr ago

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    My name Douglas dashy from England, Oxford,UK ...HIV has been ongoing in my family for long..I lost both parents to HIV and it is so much pain have not been able to get over.As we...
    Kenned Kenned 18-21, M 9 hrs ago

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    I have Demons everywhere inside of me and I like that I am working on summoning more demons inside of me. I even have Satan inside of me my body is filled with darkness I have a...
    PrinceofEvil666 PrinceofEvil666 26-30, M 5 hrs ago

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    Well.... I'm Chinese (but I was born in and still live in Indonesia lol) and I've always wanted to have a western boyfriend.... My friend told me that western people tend to be...
    salmon140301 salmon140301 13-15, F 3 hrs ago

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    I was diagnosed with PCOS around a year ago and have struggled with my weight all my life. I'm currently 98kgs (216lbs). I've been on Weight Watchers for the last 9 weeks and have...
    ylime93 ylime93 18-21, F 1 Response 10 hrs ago

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    there have been paranormal activities in my house which every one has witnesses. one person might be overly superstitious and feel spirits around them but when each and every...
    marianova marianova 13-15, F 1 Response 10 hrs ago

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    I have 2. They're both 12 or so years older than me. One I haven't seen in 7 years and the other is in the army but I haven't seen him in 2 years. I miss them and I'm hoping that...
    Lackoflogic Lackoflogic 13-15, F 5 hrs ago

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    To start from the beginning, I'm 17 years old who moved to the U.S last year with my brother and no family, no relatives. I stopped talking to every person I knew before I moved to...
    iabem97 iabem97 16-17, M 1 Response 3 hrs ago

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    i honestly am gonna stop thinking about my needs and wants in this life anymore. im done with it because when we have high expectations of ourselves and when we dont meet them or...
    heavenlytouch heavenlytouch 22-25, F 3 hrs ago

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    I'm still kinda new to this app. And my story's sort of long so I'll try to make it as precise as possible when I was 14 I met a guy on my summer vacation in chicago, he is my...
    mysteryhistory08 mysteryhistory08 18-21, F 1 Response 43 mins ago

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    Every morning I fight my demons, I win every afternoon I see life around me and wish I had the one I want , I wish I could be half the man I really am but ADHD will never allow it...
    Ragidoll Ragidoll 41-45, M 11 hrs ago

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    Let's see... Klonopin, xanax, oxycodone, vicodin, percocet, hydrocodone, morphine, codeine, DMT, methamphetamine (once was enough for that. I have no idea how people get addicted...
    dontyouunderstand dontyouunderstand 18-21 1 Response 10 hrs ago

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    When I was 15, I tried overdosing. Right after taking 2 handfuls of pills, my sisters came in my room & saw the empty pill bottle. They called Poison Control and my parents rushed...
    untamedx3heart untamedx3heart 22-25, F 2 Responses 7 hrs ago

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    I have copd just been told I have 34% of my air flow from my lungs working , Would like prayers from everyone to help me stop smoking before it kills me .
    Wildman43055 Wildman43055 46-50, M 2 Responses 2 hrs ago

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    The Runner returns...again... More than one month without seeing each other, yesterday he told me that he loves me too much that he doesn't want to make me suffer anymore. Het...
    Missberry73 Missberry73 41-45, F 13 hrs ago

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    He respects that I have "Free Bird" ways... :-) He knows I would never 'step out' on him, but... I do like to flirt...who doesn't?? Keeps you ALIVE right?? ;-)
    pixelita pixelita 41-45, F 6 Responses 13 hrs ago

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    My god I can't stand their hounding and their heckling. Every night I have to hear them back me into a corner about how I'll end up in hell. I feel like my brain is just constantly...
    PinkMellow PinkMellow 18-21, F 1 Response 12 hrs ago

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    So I got a call about a month or so ago from him. He was going to be in Sydney again and wanted to see me. So we decided to meet at a bar again and have some drinks. I was wet...
    Nelson1984 Nelson1984 26-30, M 1 Response 12 hrs ago

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    I haven't done "hard" drugs (heroin, crack etc.)...but drugs are drugs. I've abused Soma (muscle relaxer), Vicodin, Xanax, Klonopin...I'm not proud to say that I still once in a...
    beautifulblessedchild beautifulblessedchild 18-21, F 1 Response 11 hrs ago

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    Many Japanese restaurants offer a raw egg as an option. It costs 50 yen or 50 cents. I have made it my routine to take the egg to lavatory and wash the shell's surface thoroughly...
    katsuobushi katsuobushi 36-40, M 9 hrs ago

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