Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 41 People

    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

    Your Response

    Cancel

    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

    Your Response

    Cancel

    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

    Your Response

    Cancel

    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

    Your Response

    Cancel

    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

    Your Response

    Cancel

    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

    Your Response

    Cancel

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

    Your Response

    Cancel

    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

    Your Response

    Cancel

    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

    Your Response

    Cancel

    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

    Your Response

    Cancel

    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29, 2014

    Your Response

    Cancel

    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

    Your Response

    Cancel

    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

    Your Response

    Cancel

    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

    Your Response

    Cancel

    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

    Your Response

    Cancel

    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 18-21, F 2 Responses Mar 25, 2013

    Your Response

    Cancel

    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

    Your Response

    Cancel

    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

    Your Response

    Cancel

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

    Your Response

    Cancel

    Related Experiences

    My two cents on animals through an essay I wrote for class: Title: The Duty of Life It is generally accepted that killing another human being is worse than killing a...
    BSAeagle60 BSAeagle60 18-21, M 1 hr ago

    Your Response

    Cancel
    For fours years, I've been on the pill. Everything was great. I had no side effects, I never forgot to take it. In June 2014, a good friend of mine shared her experience about...
    Troianne Troianne 22-25, F 18 hrs ago

    Your Response

    Cancel
    I have become so afraid of insects. I dream about them and wake up screaming, thinking they've crawled in my ears. When I'm awake I have to go and look in my ears, clean them until...
    StEaMa StEaMa 22-25, F 15 hrs ago

    Your Response

    Cancel
    I was diagnosed with it three years ago. I slowly started to realize that my level of pain probably wasn’t in the average range when it increased with each day. I sometimes...
    mishale80 mishale80 31-35, F 1 Response 9 hrs ago

    Your Response

    Cancel
    Today was a bad day for me. I am 29 years old I went back to school after I had my second son when I was 27. I thought next semester would be my last before my student teaching...
    kayroxyoursox kayroxyoursox 26-30, F 1 Response 7 hrs ago

    Your Response

    Cancel
    So I had a couple of more dreams about my Twin Flame that I remember vividly. The first one I came to the office to see her. She was acting all nervous and distracted from the...
    simonsays78 simonsays78 36-40 6 hrs ago

    Your Response

    Cancel
    So I had a couple of more dreams about my Twin Flame that I remember vividly. The first one I came to the office to see her. She was acting all nervous and distracted from the...
    simonsays78 simonsays78 36-40 6 hrs ago

    Your Response

    Cancel
    So I had a couple of more dreams about my Twin Flame that I remember vividly. The first one I came to the office to see her. She was acting all nervous and distracted from the...
    simonsays78 simonsays78 36-40 6 hrs ago

    Your Response

    Cancel
    I need a lot of advice. So my boyfriend cheated on me like two months into our relationship with a girl who I was friends with but not like best friends with. It was at a party...
    corkcem corkcem 18-21, F 4 hrs ago

    Your Response

    Cancel
    I was told I have PTSD around August 2014, along with depression and anxiety... The doctor/counselor actually told me it's a pretty severe case of all 3. It stems from my...
    Firefighter2893 Firefighter2893 18-21, M 5 Responses 21 hrs ago

    Your Response

    Cancel
    the biggest impact. I believe that everyone, sooner or later, has this thing happening in their lives which will change them forever. It’s not comparable. For the one’s who...
    ninaaaxx ninaaaxx 13-15, F 9 hrs ago

    Your Response

    Cancel
    It makes me sad when I tell people I have BPD and they say "lol you can't have borderline, you'd not be able to function the way you do if you did." Just because I can control my...
    embelir embelir 22-25, F 8 hrs ago

    Your Response

    Cancel
    I got a lying smile I never put out for you Cause I guess I never felt like I really needed to And they say little girls have big dreams And nothing in the world was gonna come...
    CallmeHopelessNotRomantic CallmeHopelessNotRomantic 36-40, F 3 hrs ago

    Your Response

    Cancel
    I would not label myself and alcoholic or as having an addiction to alcohol but I feel that my relationship with it could very easily spin out of control were I to allow it. I...
    ginaramone ginaramone 18-21, F 1 Response 20 hrs ago

    Your Response

    Cancel
    Ive had it for a year now, and a lot has happened during that time, my weight has been at its lowest as well as its highest, my stomach has stopped digesting food and ive lost so...
    confusednormalness confusednormalness 18-21, F 16 hrs ago

    Your Response

    Cancel
    So there was one coworker I had a thing for. He is married. I told him I wanted to have sex with him. He wanted to also. Time passed haven't seen him because his shift change. In...
    OneStonedGirl OneStonedGirl 31-35, F 13 hrs ago

    Your Response

    Cancel
    Hi everyone. It's comforting to hear others dealing with this diagnosis. I was diagnosed a year ago. I was an avid runner, ran a half marathon two years prior, and was training...
    Mariannac Mariannac 26-30 8 hrs ago

    Your Response

    Cancel
    My OCD comes and goes - it seems to stay longer as I get older. Am fat and sort of out of condition but I have a mad desire to do some boxing or sparring with another guy. 16-22...
    Bilbeaux Bilbeaux 61-65, M 7 hrs ago

    Your Response

    Cancel
    I have seen a lot of post here dealing with relationships and finding the perfect mate and so forth. I think that is the problem most people have, the seek perfection. If you want...
    lasergraph lasergraph 61-65, M 10 Responses 6 hrs ago

    Your Response

    Cancel
    Okay Im pretty much done with my friends. Like seriously I am really upset. I have always been the one to text my friends first so I decided it was their turn. It's been two weeks...
    LoveisBeautiful5013 LoveisBeautiful5013 18-21, F 3 hrs ago

    Your Response

    Cancel
    Yes! It finally happened!I had a dream about my favorite game : P ! Before you go and judge me wrongly for having a dream about a videogame, I have you know this is one of the...
    Vicvoss Vicvoss 13-15, M 3 hrs ago

    Your Response

    Cancel
    I am curvy and after having my son I have some extra cushioning.... I have been told that I am pretty or whatever, I just have a very hard time believing that....
    Ivy26 Ivy26 22-25, F 3 Responses 45 mins ago

    Your Response

    Cancel
    I have herpes for 2yrs, n I'm crying almost everynight, I hate herps, I was fed up with  discrimination n I thought it the end of my dating life n I will never have a baby...
    harryyang1990 harryyang1990 22-25, M 21 hrs ago

    Your Response

    Cancel
    Dear Future, I dont love casually. When I love, its fierce. Its my soul ripped wide open and raw. It is my whole heart on display, giving you full access to ALL of me Its all I...
    MzPhoenix MzPhoenix 31-35, F 4 Responses 20 hrs ago

    Your Response

    Cancel