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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 42 People

    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 26-30, F 1 Response Feb 25, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 22-25, F 1 Response Mar 25, 2013

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 1 Response Sep 5, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    Related Experiences

    So me and my boyfriend are living together and we have argued a lot already and we have broken up. Honestly I believe it's a bunch of communication and trust issues and honestly I...
    Chipperme21 Chipperme21 22-25, M 1 Response 1 hr ago

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    I want to have sex with a female teacher in my school teaches maths,she's not attached and is only a mere 22 years old she has an a body like an hourglass,all the curves in the...
    TheGamechanger TheGamechanger 18-21, M 1 hr ago

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    I like at least three people on here. 4 including the deleted profile Austin who was close but not quite friends with Jay and Corey. However, most of them ended up taken. Some...
    xXxfakerhaterxXx xXxfakerhaterxXx 13-15, M 1 hr ago

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    Don't take it personal, but if you want to remain in my circle then act like it... I'm not just going to add people to build up a huge amount of friends, I'm not about the...
    Kirstenw23 Kirstenw23 22-25, F 2 Responses 1 hr ago

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    I have enough worries at 18 to last me a lifetime
    Xo12345 Xo12345 18-21, F 5 Responses Aug 19

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    I'm weird but i call it original (: I'm doing me n happy with myself n the way I am. I'm a ******* weirdo but a good weirdo aha . I'm the bestiest n funniest friend you'll ever...
    youngadult14 youngadult14 13-15, F 1 Response Aug 19

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    I've carried conversations with all types of people in my life, and in most cases, they aren't considerate of other types of people. I think I'm a lot of cultures in one person, so...
    Thediary Thediary 26-30 2 Responses Aug 19

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    My mom has a sixth sense. She always knows when I need her and she is always there for me. She always knows when I'm having a bad day. Today, I was in so much pain. I could barely...
    1MagicalMystery 1MagicalMystery 31-35, F Aug 19

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    Never been in a relationship and I'm 18. Maybe because I don't have the body guys don't like me or maybe because I can talk back..
    ki2su ki2su 18-21, F 2 Responses Aug 19

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    I get turned on by pregnant women so would live to have sex with one
    goonteam goonteam 16-17, M 2 Responses Aug 19

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    Long hair don't care! :) I'm lucky enough to have a close friend who is a hair stylist, she gave me an ombré which I'm loving at the moment! Love your hair, love yourself...
    awokensheepislittlebopeep awokensheepislittlebopeep 22-25, F 3 Responses Aug 19

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    I have the best mate ever! Love you Keller <3 <3 ^^
    KatoKangaroo KatoKangaroo 18-21, M 1 Response Aug 19

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    maybe i have insomnia or maybe it's just my wifi.
    queentheresa queentheresa 13-15, F 2 Responses Aug 19

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    I needed clarity and a break from a world that created a chaotic era for me. This time, one foot at a time, dipping one toe after the other. The water must be great and if it isn...
    ChaoticReason ChaoticReason 36-40, F Aug 19

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    I was fighting depression at the time of my symptoms started. First was the chomping of my tongue, then weeks later my voice changed drastically. I couldn't formulate words...
    euptlp euptlp 31-35, F Aug 19

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    Tonight, I have decided to reach out and find others like me. Others with Conversion Disorder. To this day, I still battle with the tics and tremors that made it so I quit high...
    bluestocking18 bluestocking18 18-21, F Aug 19

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    Umm I'm just not happy where I am now. but I believe thing it will get better when it comes right time. Since I have my med Zoloft for treat with anti-depression and have an...
    xoshorty21 xoshorty21 22-25, F Aug 19

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    My sweatpants have one "butt-pocket" on the right side.. Wtf? Why don't I have a pocket on the left side?!
    akaShaun akaShaun 16-17, M 4 Responses Aug 19

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    I think that doing this to myself was a symptom, not a disease. I pulled out all my eyebrow and eyelashes (and lots of hair in othe places too) when I was young and now I can see...
    dispossessed dispossessed 46-50, F 1 Response Aug 19

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    I lost my grandma who's been with me and my family all my life when I was 15. She adopted my dad and married a Filipino man who we took his last name from. I never met him...
    roselani2005 roselani2005 26-30, F 1 Response Aug 19

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    Literally almost every time I get on this site I get the urge to make a post that says "Did you know that I am secretly a goose?" I have no idea why, or where I heard it from, or...
    ZeroDigits ZeroDigits 16-17, F 3 Responses Aug 19

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    Make sure you be a part of us in providing one last cheer to all the oldsters that have shared their goals with the whole world, and also every one of the people who have labored...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response Aug 19

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    No matter how much you trust the police, always remember the police are trained to never trust you. With that being said, prayers will go out to families of anybody of any race who...
    DaQueenB92 DaQueenB92 22-25, F 1 Response Aug 19

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    I have so many siblings that I have to count. I have a mixture of step siblings and half siblings all from 5 women and two men, none of my siblings are by blood. Mandi Stephanie...
    Gonzales96 Gonzales96 18-21, F 1 Response Aug 19

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    I have an American Bulldog who loves attention if i am busy with work and not home as much as usual she gets moody with me and has to have a paw touching my leg or hand most of the...
    Brok3nSoul Brok3nSoul 22-25, F 1 Response Aug 19

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    So i am a closeted lesbian and have feelings for my boss. I have had them for close to 2 years maybe longer. We are friends and hang out with each other after work sometimes. She...
    Brok3nSoul Brok3nSoul 22-25, F Aug 19

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    I have been to Scotland, London and Denmark. I went to London alone but a 1 friend with me for the other places. I flew from Australia and met her in Scotland. The whole experience...
    Brok3nSoul Brok3nSoul 22-25, F Aug 19

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    I have a feeling that my relationship with my boyfriend is coming to an end. :( He seems very distant from me. I have not seen or really talked with him in a week. When I text...
    nicolem84 nicolem84 26-30, F 1 Response Aug 19

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    I dont think it is wierd really I think it is my mind thinking without me. I dream all night, seeing pictures of all my feelings Good puns and good allegories I have a good mind It...
    dispossessed dispossessed 46-50, F 2 Responses Aug 19

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    Yesterday was my birthday No one I know said happy birthday And my father said it once Makes ms kinda sad when I remember I have no one
    Tilou420 Tilou420 13-15, F 1 Response Aug 19

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