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I Have Panhypopituitarism

A Panhypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panhypopituitarism. You're not alone. 42 People

    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 1 Response Aug 21, 2013

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    Panhypopittuitarism caused by tumor resection

    I was diagnosed with Panhypopituitarism, 6 months ago  and have an endocrine but was looking for support/answers from people who have had this condition for a long time . Everything i find is child related, nobody really covers the adults.  I still have a few questions on life...
    juliejo1 juliejo1 46-50 2 Responses Apr 9, 2013

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    I Have Pan Hypo Pituitarism

    Hello. My name is Kim. I was diagnosed with Panhypopituitarism when i was 16. But lets start from the beginning. When i was a few months old my biological father tried to kill me. My mother and father were in the navy and we were stationed in Florida at the time. I was crying and...
    LilEvilRubberDuckie LilEvilRubberDuckie 22-25, F Apr 25, 2013

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    Panhypopituitarism Before Birth

    Hi all I'm a Londoner (UK). I was born with Panhypopituitarism. My childhood and adolescence was a complete nightmare, as a result of huge, uncontrolled mood swings. When mother took me to the doctor, he would always say, "she's just a late developer". As a result, I was only...
    jeanette2 jeanette2 56-60, F 4 Responses Apr 18, 2013

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    Confused/Angry & Relieved! Is That Possible?

      I have just been diagnosed with PHP and am very thrown out by it. I had a tumour removed from my optic nerve as a child (4 and a half years old) and back then kind of took it in my stride, blissfully unaware of what I was going through. I had follow up radiotherapy...
    dayatesuk dayatesuk 31-35 Sep 5, 2013

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    No Pituitary But I Am All Here

    Posted May 9th, 2011 at 10:28PM When I was a kid, I got sick a lot. I knew what it was like to get teased for being the smallest kid in my class, for missing tons of school. I also remember the headaches. They were so bad, my mother would stay up all night with me, doing...
    maykerr maykerr 66-70 May 9, 2011

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    I Guess I Am Not Alone

    As a child, I had severe headaches and got sick to my stomach allot. I went to the doctor and I was diagnosed as having a pituitary tumor. I had it surgically removed and it was benign. However, it wiped out a portion of my optic nerve and that caused blindness in one eye. A few...
    damagedg00ds damagedg00ds 46-50 Sep 10, 2012

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    My Story

    it started when i was five years old and i was the same size as my two year old brother and my parents thought it was odd and took me to our family doctor he didnt know so he sent us to endocrinologist he ran some test and told my parents i will have to take shots til i die thats...
    melmelcouture melmelcouture 22-25, F 1 Response Feb 25, 2013

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    Struggling With Pan Hypo

    At 19 I was told that I had a cyst on my pituitary gland and that I needed immediate brain surgery. I didn't like the doctor but was told I didn't have time to get a second opinion. The doctor not only did the surgery wrong, but severed my pituitary stem leaving me with...
    Missnikki76 Missnikki76 31-35 Jun 16, 2013

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    I Have Pan Hypo Pit

    Hi everyone,I became sick with this when I was almost 6 years old.  After a year, nwith doctors telling my parents that I was "faking" and several brushes with death, I got an MRI and the doctors discovered a tumor on my pituitary stalk, which they removed.  I took many...
    jezn55 jezn55 31-35, F 2 Responses May 13, 2012

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    ...there Have Been Very Bizarre Dreams

    i am now on hrt and i have had very bizarre dreams.
    damagedg00ds damagedg00ds 46-50 Aug 18, 2012

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    No Pituitary Doesn't Slow Me Down!

    I am a seventeen year old girl with panhypopituitarism. I was actually born without a pituitary gland. I was diagnosed when I was four and a half years old. I was the size of a two year old. I was put on synthroid, hydrocortisone, and growth hormone. When I was about 10 or 11 I...
    dolphin95 dolphin95 16-17, F 3 Responses May 28, 2012

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    Like A Walk In A Park!

    I was diagnosed with a brain tumor when I was nine.  During the operation my tumor was removed but so was the pituitary gland.  It was a tough adjustment at first but once the medicine gets worked out it is no problem at all.  I was 4 foot 4 when they diagnosed...
    kingtut204 kingtut204 31-35 Jun 18, 2012

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    God Has Blessed Me In So Many Ways

    I am a 13 year old girl who was born without a pituitary gland. I was born and still live in Helena, MT. 30 hours after I was born I had a seizure that almost killed me. I was life lifted to Great Falls, MT where doctors did a MRI which showed that I did not have a pituitary...
    Balletfreak1999 Balletfreak1999 13-15, F 2 Responses Jul 2, 2012

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    No Pituitary Gland Here Either, But I'm Pretty Okay So Far?

    I'm 17 years old and found this website by chance. (What do you mean a google search isn't 'by chance'?) Anyways, I was held in the hospital for a month or so after birth until they could figure out what was wrong with me. I grew up having to take hydrocortizone, synthroid, and...
    Tren54 Tren54 16-17 6 Responses Dec 10, 2011

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    My Infant Son Has Panhypopituitarism

    My son is 4 and a half months and he has been diagnosed with panhypopit since he was two days old. An MRI showed smaller than normal pituitary gland and possible missing stalk. He takes hydrocortizone 3x daily, and synthroid once daily. He has received three treatments of...
    kzam kzam 31-35 10 Responses Nov 30, 2011

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    I'm Panhypopituitary

    Hi Everybody I'm panhypopituitary due to head trauma. Doc said this is a rare disease.  I haven't found anybody in real life with the same condition and it made me feel so alone. I am so happy to have found other people like me here in EP. Thanks to internet!
    diyanne diyanne 22-25, F 1 Response Mar 25, 2013

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    Panhypopituitarism

    I was born like any normal child, however at age two I still hadn't grown from the size of an infant to a toddler. My mother became suspicious that something was wrong, and took me to a doctor. Most doctors we went to said that there was nothing wrong. That some children are just...
    MLove1331 MLove1331 22-25 Aug 21, 2013

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    I always knew something wasn't right with my

    body. I really began to notice around puberty that things weren't what they were supposed to be. I'll spare you the gory details but I struggled with menstruation. I would have one for two months straight and then nothing for four months. My mother took me in to her GYNO and...
    TiffK TiffK 31-35, F May 29

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    Related Experiences

    So an update is in order, since I have been so lax in my attendance on EP. I am home AGAIN from yet another week away with the kids. Relaxation and rest certainly does wonders...
    knittingbadsweaters knittingbadsweaters 41-45, F 2 Responses 4 hrs ago

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    I am a extremely secret person so I think I enjoy this site most of all because I have a place I can let things off my chest yet still be anonymous to some degree. Anyways; with...
    Chicgeekgal Chicgeekgal 22-25, F 5 Responses 11 hrs ago

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    I think most of my EP friends know I was gone for about a week recently, but most of you don’t know where I was. I was actually on a vacation with my family “across the pond...
    SaraBee1995 SaraBee1995 18-21, F 2 Responses 4 hrs ago

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    I know I write a lot here, but it's very therapeutic for me because these thoughts are constantly racing around in my head and getting them out is healthy. I usually wouldn't write...
    Serenity14 Serenity14 26-30, F 8 hrs ago

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    My death. It will most probably be by my own hand. The days go by in endless cycles. There is nothing to give it any semblance of a meaning. This is particularly hard for me to...
    pretender1326 pretender1326 26-30, M 1 Response 5 hrs ago

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    I have grown up with this deficiency. I am used to being the weird looking guy, and coming to grips with the fact that I fight an uphill battle trying to control my weight. If I...
    bigsully0511 bigsully0511 31-35 3 hrs ago

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    I sing but I don't feel like that well. I have had four bands. I have lead songs in four churches and for camps and missionaries. Many have said I have a nice voice. I don't agree...
    lonesojourner lonesojourner 46-50, M 1 Response 1 hr ago

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    It's hard to do this. I was diagnosed with PTSD some time ago, but have repressed the damage as much as possible. Now, it all comes back in spades & I'm at a loss. I suffer from...
    howlingfantods howlingfantods 22-25, F 2 Responses 1 hr ago

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    I don't know how I let this happen and my heart wants to be hopeful but reality just doesn't make it seem likely! We live half a world apart and every opposite in our social...
    starstuff79 starstuff79 31-35, F 3 Responses 16 hrs ago

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    I’ve rewatched every episode of Naruto & Naruto Shippuden at least twice. Some I’ve watched three to ten times and my favorites have been watched over fifty times. And...
    NarutoShippudenFanGirl NarutoShippudenFanGirl 16-17, F 8 hrs ago

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    Finally found the man who I would love to spend my life with. Gives me more happiness caring and understanding I have ever been given. He try's his best to be understanding of my...
    awmusic awmusic 22-25, F 1 Response 7 hrs ago

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    I haven't always had it.. It's only been around a little less than a year. I think I know what caused it though.. Iv'e been shaving since I was twelve years old, Iv'e always used...
    Khaos69 Khaos69 16-17, F 6 hrs ago

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    That's what I've been most complimented on. I used to work at a call center and customers I'd talk to would say stuff like "you have wonderful diction and speak so clearly." Or the...
    Handyman25 Handyman25 22-25, M 6 hrs ago

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    But I don't have a feminine side ;A; But there's a side I have. It's called a awesome side c:< :D And sir if you think if I would ever think I would have a feminine side I don...
    DysfunctionalPiano DysfunctionalPiano 13-15, F 6 hrs ago

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    I have nightmares about everything that happened this past year. I dreamt that my aunt was going to do surgery on my breasts. It was a nightmare because my aunt is horrible and a...
    Acebo Acebo 18-21, F 1 Response 5 hrs ago

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    I have wanted to ask my stylist for a women's hair style now for years, but I never seem to work up the nerve. I feel that I need to develop a relationship with her first before...
    tpoh tpoh 46-50, M 1 Response 5 hrs ago

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    I have IC and PFP. Had a total historetomey in the 90's at a early age. This was due to endometriosis. In the late 90's I became . Incontinant and never ever having any bladder...
    MaryBarbie MaryBarbie 46-50, F 4 hrs ago

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    Here is ten more things about me, which makes it 30 now I've posted. 1. I have never done any kind of drugs or narcotics 2. I love southern food, BBQ ribs of any kind 3. I stand...
    jjoe01 jjoe01 41-45, M 3 hrs ago

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    We all have scars, I'm nothing special. I neither need help nor support. I don't ask for pity or advice. I understand the pain in your eyes before I see your bruises. I have been...
    JaneBloodyAusten JaneBloodyAusten 31-35, F 1 Response 2 hrs ago

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    I have had Spastic Ataxic Quadriplegic CP since my birthday at 22 weeks in 1978. I use a power chair. I have an above average IQ and a mind blowing EQ. People still refuse to talk...
    TheWomanWhoDid TheWomanWhoDid 36-40 2 hrs ago

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    I have red hair. I've been told I look like a leprechaun but that was the day after I kicked my elementary school bully's *** at Walmart... It was thru text messaging also lol...
    Mechawaffle Mechawaffle 13-15, M 1 Response 17 hrs ago

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    Projectgwyn101 is so fuking sexy please have me or I'll have you.
    hate4life hate4life 16-17, M 1 Response 14 hrs ago

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    Well, its my wifes family. They're ok , just, I have NOTHING in common with them. Whenever there is a get-together I feel SO out of place. One sis-in-law and her husband are very...
    boxersoff4u boxersoff4u 51-55, M 14 hrs ago

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    I'm part Greek and Italian, so genetically I have a god tier big nose. A lot of people, both men and women, are often embarrassed or at least self concious about their big noses...
    LisaBella88 LisaBella88 18-21, F 1 Response 14 hrs ago

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    I have a Diploma in Viticulture and Wine Production. I spent two years at TAFE college learning how to grow and process grapes to be crushed and turned into wine I have done three...
    candywhite26 candywhite26 56-60, M 1 Response 10 hrs ago

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    I lost my phone so I lost all my friends numbers. I don't really have any friends that want to hang out with me on Facebook. But still like every hour at home I go on my Facebook...
    kevin1080123 kevin1080123 18-21, M 8 hrs ago

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    I don't have any real friends at school. They're all fake and have stabbed me in the back one time or another. That's why for my junior year, I plan on avoiding them all. So I took...
    SomethingGrimm SomethingGrimm 16-17, F 6 hrs ago

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    I am in love with a Mormon. Our relationship has been full of ups and downs, from the very start. We can't be together because of his religion and his family, but I am so in love...
    wpsiatwin wpsiatwin 18-21, M 2 Responses 5 hrs ago

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    You know when you have them dreams that last about 5 seconds then BOOM you wake up and you kinda jump? Do These dreams have any meanings those anyone know? :)
    Emily97x Emily97x 16-17, F 3 Responses 5 hrs ago

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    I just found out today that i've been infected with the HSV-2. I told my best friend who is very supportive but I have yet to tell my boyfriend because he is at work and I'd like...
    erskii23 erskii23 18-21, F 2 Responses 4 hrs ago

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