I Have Panostotic Fibrous Dysplasia

A Panostotic Fibrous Dysplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Panostotic Fibrous Dysplasia. You're not alone.

    I Got 5th Rarest Disease Ever

    My whole past was full of fight against my disease.I suffered hell A lot of fractures which caused me pain like worst ever many surgeries.My both legs (femur) skull,chest are victim of fibrous dysplasia ponostotic.So far there is no cure about this disease.it only causes to 1 in...
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    3 Responses Feb 22, 2013
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