I Have Parkinson's Disease

Personal Stories, Advice, and Support 31 People

    Every once in a while there is a breakthrough

    in Parkinson's research that gets me hopeful that there will be a cure, or at least a really significant improvement in treatment. I'm sure I am slowly killing my liver with all the medication I am taking. Fortunately I don't drink so my liver only has to process Azilect...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    Nov 7, 2014

    Parkinson's Diagnosed In 2000.

    I was diagnosed in the year 2000. I belong to a very large PD support group. One thing that I noticed was that I seemed to be progressing wirh PD a lot slower than everyone else. The only difference in meds was that I refused to use any L-Dopa type drug. While I might just be...
    BurdAce BurdAce
    66-70, M
    Sep 26, 2013

    I had my first Parkinson's related fall the

    other day. The only thing that saved me from hitting the ground was the kitchen counter, had that not been there I would have gone all the way down for sure. The best way I can describe it is I feel like my brain is telling my feet to move but they aren't listening. The...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    2 Responses Jan 25, 2016

    i am wondering if anyone has these features

    with their pd. 1. when i get freezing and i cant lift my feet to walk across a room i can still walk up stairs. 2. when i freeze and then unfreeze i can start to walk again pretty normal. 3.if i freeze and fall down it seems to clear a blockage and i can walk right...
    whatchimecallit whatchimecallit
    56-60, F
    Mar 29, 2015

    Gentle Giant

    i am 6'7" hence the giant in my title. been diagnosed w/parkinson's disease 3 yrs. have fibromyalgia & am bipolar also, but with meds hangin in therei take levadopa carbadopa and other various meds. i've had symptoms for about 10 yrs. fallen about 20 times, broke ribs, tailbone...
    landlell landlell
    1 Response Feb 8, 2011

    Oct 2012, Dr told me I have PD.

    Take medicine, but have good days and bad days. PD mostly affects my legs. When meds ware off, my legs hurt. Can not sleep, have to walk to relieve pain. Have hard time, since things will only get worse.
    rjk01 rjk01
    70+, M
    2 Responses Jul 7, 2014

    I go through phases with Parkinson's disease.

    At times I feel lucky that I have this and not something that will outright kill me. Then there are other times, like now, where I feel completely drained by it. I'm embarrassed by it frequently. Sometimes I can't carry a plate of food through the cafeteria at work without...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    Oct 18, 2014

    Vitamin D Deficiency Rampant And Implicated In Parkinson's And Cognitive Decline

    Http://www.vitacost.com/Can-Low-Levels-of-Key-Vitamins-Lead-to-Cognitive-Decline?csrc=EM-FYH20100729:main For Your Health: Can Low Levels of Key Vitamins Lead to Cognitive Decline? By David N. Ilfeld, M.D. Board Certified Internal Medicine, Rheumatology, Allergy & Immunology 7...
    conceptualclarity conceptualclarity
    51-55, M
    Jul 29, 2010

    I Was Diagnosed In 2011

    but think I've had recognizable symptoms since about 2004? I'm sure my story will have many similarities to others so I'll skip some details for now. I do want to share that at 50, my wife and I have 2 under 10. (I'm 50, not my wife. She is a lovely 41 yr old), i was misdiag...
    Myusernametoo Myusernametoo
    56-60, M
    Apr 1, 2012

    Everyone who gets Parkinson's Disease at some

    point wonders "Why me?". For some people there is a family history, but for a lot of people there is no clear reason for it. A while back I did some searching, mostly to give myself a better piece of mind that I'm not going to pass this disease on to my kids. I have my own...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    1 Response Jan 7, 2016

    Living With Parkinson's

    I'm 73 and was diagnosed with Parkinson's in June.  It's pretty well controlled with medication (Mirapex) 3 times a day.  What bothers me is the unknown.  What is next; will I have serious dementia, how long can I drive, how will I care for my husband who is...
    spacekadet spacekadet
    70+, F
    2 Responses Dec 7, 2009

    I do not have Parkinson's disease

    but I added this experience because I plan to become a neurologist specializing in Parkinson's disease and I love reading what you have to say here. Anybody can read about symptoms or medication in a textbook, but like many of you have said, the disease is different for everyone...
    emily39 emily39
    22-25, F
    Mar 24, 2014

    When you are a child you can't conceive of the

    concepts of disease or the fact that something might kill you. You understand danger and that you can get hurt but you are so full of life that those thoughts are easily overcome. People live for a long time with Parkinson's, so it's hard to claim it as a disease that will kill...
    TheMadKingGeorge TheMadKingGeorge
    51-55, M
    1 Response Feb 18, 2016

    This never fails! I am always happily shocked

    by the generosity of people when it comes to donating to a charitable cause! I am participating in my local APDA Optimism Walk for Parkinson's research. I sent out my emails this morning asking for simple five, ten, it twenty dollar donations. In a matter of hours I am up to...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    Mar 30, 2016

    A cure for Parkinson's Disease?

    Every once in a while I get excited about some research that is being done as it relates to Parkinson's Disease. I'm not stupid, I know how these things go, these things take a lot of time, testing, and money, and even after all that there is no guarantee that they will work...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    5 Responses Jan 5, 2015

    A cure for Parkinson's Disease?

    We all hear about it but this is the first story I've read in a long time that gives me some kind of hope: http://www.healthline.com/health-news/cancer-drug-offers-new-hope-for-parkinsons-and-alzheimers-diseases-101715#1
    LifeinWoodinville LifeinWoodinville
    41-45, M
    2 Responses Oct 30, 2015

    Yesterday went to a near by university

    and met some college students, their major is Physical Therapy for people with Parkinson's. I enjoyed meeting these young students. They were very interest with when I was diagnosed, and how the disease effected my life. Then they would each would take me to do tasks that...
    rjk01 rjk01
    70+, M
    May 21, 2015

    I am 27 and have YOPD

    and its ridiculous! I just have some questions for some of you: 1: Do any of you have extreme chronic pain in your whole right side? 2: Are your tremors at times worse and then lessen for a little bit and then worsen? 3: Is this an early death sentence? there's no cure...and I...
    XoSleepingBeautyXo XoSleepingBeautyXo
    26-30, M
    2 Responses Oct 24, 2015

    PAN (Patient Access Network) Foundation

    Launches Financial Assistance for Patients Living with Parkinson’s Disease: http://www.panfoundation.org/news-article-list/365-pan-foundation-launches-financial-assistance-for-patients-living-with-parkinsons-disease Patients who qualify for PAN’s Parkinson’s disease...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    Feb 23, 2015

    Today was the APDA Parkinson's Walk in Seattle.

    It was a pretty good turn out. In total the walk raised almost $26,000 for Parkinson's research. Personally I was able to raise $2,100, it was good to feel like I'm doing something to cure my disease.
    LifeinWoodinville LifeinWoodinville
    41-45, M
    2 Responses Sep 15, 2014

    I Have YOPD.

    I'm 41 years old and I have Young Onset Parkinson's Disease. I was diagnosed about 7 years ago after seeing my doctor because my left thumb was twitching. Currently my physical symptoms are: left arm tremor, my left arm not longer swings when I walk, shuffling, muscle rigidity...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    1 Response Aug 16, 2013

    Well I thought, for some silly reason,

    that I was the only person with Parkinson's Disease that had the horrible morning toes problem. Turns out it's more common then I thought! So, basically when I wake up in the morning and I have no meds in me, I can only walk short (less than 100 feet) distances before the...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    1 Response Feb 6, 2015

    After meeting with the college students,

    went back home. Last night I took the wrong pills for night time. I have pill containers labeled by time of day. Still managed to get messed up. Had a very long and difficult night. In fact still up at 5:30 AM. Took the right pills at 3 AM, feel better, but can not...
    rjk01 rjk01
    70+, M
    1 Response May 21, 2015

    A Long Story On My Parkinson's Diagnosis, Or How It All Began.

    I started back in 1998-1999 with odd things like really bad cramps in my feet. The pain would be so bad that I would feel like I was going to pass out. They'd also hit my hands too, and I had awful headaches and a stiff neck. The spasms would sometimes hit me while I was driving...
    JCPP7622 JCPP7622
    3 Responses Dec 9, 2012

    Improved Walking

    written by Dan Crace Husband/Caregiver  Northwest Alabama, U.S.A.       It was 15 Years ago when our family Doctor told us that my wife Jeanne was showing signs and could possibly have Parkinsonism .We were preparing that week to take Jeanne...
    dancrace dancrace
    70+, M
    May 5, 2010

    I wonder whether the disease is really

    well-understood by the medical profession. On the Internet, I've seen several articles describing the various stages of Parkinson's Disease. The earliest stage is listed as a tremor in one limb. When I was officially diagnosed with Parkinson's early this year, I had already had...
    sambrowne sambrowne
    66-70, M
    1 Response Sep 19, 2015

    5 Years Now

    it is something i live with...and take lots of medicne
    jakerob jakerob
    Nov 15, 2008

    Parkinson's At 53 Yrs Old

    It was about 5 years ago when I was diagnosed. I was very active so the loss of fine motors skills affected me first. My friends would kid me about not being able to toss up a tennis ball on a service motion. I'm now heavily medicated and can play tennis again. I still snow ski...
    carlystraith carlystraith
    56-60, T
    2 Responses Apr 16, 2012

    Diagnosed With Parkinson Disease In 2005

    The tremors and the shakes were really bad then, tehy are still around but the medication helps a- lot, but the thief also steals or tries to steal your joy through depression. But again medication and therapy help in this area as well, but still don't walk to fast or you will...
    tiploc tiploc
    51-55, M
    1 Response Oct 1, 2012
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