I Have Parsonage Turner Syndrome


A Parsonage Turner Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Parsonage Turner Syndrome. You're not alone.

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35 Stories

Experiences With Pts

I have just been diagnosed with PTS as of today after I finally got the answers back on the MRI.   Happened back in june the 26th, when...

I Actually Have Recurring Parsonage-turner Syndrome

    A few months ago I read with acute interest the account by ResonantBlueHand entitled "The Struggle, the Pain, and...

Hereditary Neuralgic Amyotrophy

I have both shoulders affected and my bladder. I have been discharged by my neurologist as there is no treatment. However i feel totally...

Out of the Blue

  I awoke one morning 5 yrs ago with terrible pain in my right shoulder/back and assumed I'd slept horribly wrong since I'd had no...

Pts Pain Over Time?

For all of you out there who have also been diagnosed with PTS, I have a question. What does the pain do over time? I was diagnosed about 5...

Diagnosed In May...

I woke up in the middle of the night May 15 with excruciating pain in the middle of my back and shooting down my right arm. I went to...

I Just Got Diagnosed

I just got diagnosed with PTS Yesterday and I am having a hard time with it. I am on Pain Meds to mask the pain but I don't always want to...
Members Sharing the Experience "I Have Parsonage Turner Syndrome"
62 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • "I've had epidurals, steroids, nerve meds, accupuncture, and physical therapy..."
  • "It took 6 months of MRIs, CT scans, nerve conduction tests, and several other diagnostic procedures before I was finally diagnosed..."
  • "After arranging an emergency appointment with my Doctor the following day due to the pain being that painful he diagnosed a possible ulnar nerve entrapment and to come back the following week, this was on the Friday..."
And the Story Awards Go to...
Statistics:

29% of people who have this experience are in their fifties, 29% are in their forties, and 17% are in their twenties. 52% of people who have this experience are men.

You may cite any I Have Parsonage Turner Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Parsonage Turner Syndrome guide, where people with this experience share their tips and hints.

Here are a few tips...
  • Three months after onset of pain.. I am sytill searching for answers about PTS..The pain is constant but refuse to take drugs ..they dont stop the pain just screw up my thought process.. My thoughts and prayers for all that have to suffer through this..
Members said this page is also related to: Do You Have Parsonage Turner Syndrome? , What is it like to Have Parsonage Turner Syndrome? ,Have Parsonage Turner Syndrome personal stories, Have Parsonage Turner Syndrome personal experiences

Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Parsonage Turner Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you. It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to recommend interesting people to you that share many of your personal experiences.

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