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I Have Pcos

Personal Stories, Advice, and Support 1,188 People

    Hi everyone, it's nice to be able to vent

    and talk about this ongoing struggle that I gave everyday with PCOS. I was diagnosed when I was 15 years old, I am now 20. During the past 5 years I was taking birth control pills which I thought was the miracle drug, but soon I decided I no longer wanted to be on medicine. If...
    vnicole vnicole 18-21, F Jan 6

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    I have PCOS. There's not a lot of awareness

    for it and I've noticed that PCOS is different for every girl/woman who suffers from it. I feel like a lot of women are embarrassed to talk about it and don't want to face that they have it. I highly recommend going on Facebook if you have one and liking the page PCOS Diva. It's...
    Bird488 Bird488 26-30, F Aug 1, 2014

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    I was diagnosed with PCOS years ago,

    though I don't have any cysts I have basically every other symptom. I'm on all the pills for it, but I'm struggling to lose weight. It has been fluctuating a lot due to depression, I got myself from 243 down to 223, and now I'm around 227. My short term goal is to get under 200...
    HardlyAlice HardlyAlice 18-21, F 1 Response Jun 18

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    I was diagnosed with pcos five years ago.

    My doctors are not familiar with this condition so I only started treatment last month. I gathered information on the internet and I am now on metformin and the pill. Unfortunately, the prolonged periods are still bothering me. Has anyone gone through this?
    youngeastafriangirl youngeastafriangirl 22-25, F 3 Responses May 27

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    Since 15

    I was diagnosed with pcos/pcod since i was 15 years old. I thought there was something wrong with me because I had hirsutism. I thought i might be a guy on the inside and a girl on the outside. My mother entertained me on this thought ( I had already reached puberty, and she...
    darktippedrose darktippedrose 31-35, F 20 Responses Dec 10, 2011

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    Pcos makes me look like a man

    and prevents me to be a woman :'(
    faye08 faye08 18-21, F Sep 10, 2014

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    Hi all! I've been on Inositol by itself (no

    folic acid) for about a week. Not senses anything really different. I've been taking 1tsp per day. But in the yesterday I bumped it up to 2tsp per day. I had a friend who said that after two days of taking it she got her period. Should I be taking folic acid for it? Not trying...
    danadanes danadanes 18-21, F 1 Response 6 days ago

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    I've been having some weight problems

    for quite a while now. Several years after my twins, I gained weight (thank you Mirena IUD). I got up to 250 pounds. I'm now at around 238. Well I went to a Dietitian today and shes going to work with me on my weight loss. One thing is I wait too long to eat after waking up...
    darktippedrose darktippedrose 31-35, F 4 Responses Apr 17

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    I was diagnosed a little over a week.

    I have heard of pcos before. Never thought i could have it or actually had it. I moved and wanted to get a check up with my new insurance. My dr told my that i have hirsutism. He asked about my weight told him i try going to the gym everyday. He then asked about my period which...
    hpfan769 hpfan769 22-25, F May 4

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    No One Knows Or Understands Pcos

    Only victims of PCOS understand the struggles associated with this disease. If I I complain about a period or a cramp, other women may think I'm wining and over exaggerating, little do they know how truly painful it is and how emotionally draining it is to deal with the every day...
    ShyOne85 ShyOne85 26-30, F 7 Responses Nov 29, 2012

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    I have polycystic ovary syndrome.

    It mean my ovaries produce little and irregular eggs. This also means I miscarry, a lot. I’ve lost 7 babies and I am 21. You want to know why I don’t take birth control? PCOS is caused by hormone imbalance. And in my particular case, birth control would worsen this. Someone...
    dakota4oneday dakota4oneday 18-21, F 6 Responses Mar 22

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    Great Success Treating Pcos Naturally!!!!!!

    for the last 3 months I have been treating the symptoms of pcos a natural way with herbs diet & exercise & the results are amazing!! I didn't know I had pcos until I stopped taking birth control at 19 that's when I started to get all the symptoms but didn't treat it for almost 6...
    fractalpterodactyl fractalpterodactyl 26-30, F 10 Responses May 26, 2013

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    I Consider It a Curse.

       Where do I begin with this. As young as I was to say 8 or 9. I remember waking up in my sleep and hurting so bad I would cry. Momma said "OH its growin pain" I would be walking in the groc. store or out playing and I would double over with pain.Still being told (even by...
    mommatrish mommatrish 41-45, F 8 Responses Mar 22, 2008

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    A Natural Way To Treat Pcos?? Really??

    Has anyone tried treating it naturally with herbs?? So after I found out I had PCOS & was officially diagnosed with it of course my doctor wants me to go on birth control well I'm refusing!! So I've been doing research on ways to treat it naturally with herbs. Well of course...
    fractalpterodactyl fractalpterodactyl 26-30, F 3 Responses Feb 20, 2013

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    I have just been diagnosed with PCOS a week ago,

    I'm terrified!! I am in constant pain all the time, feel sick after eating and wish to stay in bed all day!! I don't have acne or hair growth. I have noticed mood swings, I'm not obese a little over weight but I'm trying to manage that. My GP didn't give me any pills, referrals...
    deleted deleted 26-30 1 Response May 3

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    I am 25 & I was just recently diagnosed with

    pcos. I've struggled with irregular periods since I was 20. I have really long and heavy periods. Last week I had to do another biopsy to make sure I haven't developed any cancer cells. I'm so scared to go in for the results. My doctor put me on birth control last month. The...
    winter9 winter9 26-30, F 3 Responses Jan 20

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    Searching For Hope

    I was recently diagnosed with pcos. I went in for a regular check up and mentioned that my husband and I had been trying to get pregnant for about a year without success. She immediately drew some blood and ran some tests. About a week later I got a phone call saying that my...
    lostinthenoise lostinthenoise 22-25, F 1 Response Sep 6, 2013

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    I Don't Know If I Have Pcos

    I find out on Friday if I have PCOS. I'm seeing a natural doctor and have high hopes for a solution. My symptoms  have ranged from skin tags, weight gain, hot surges, moodiness, facial hair, ovarian cysts, unable to sleep but being so fatigued that all I want to do is sleep...
    Soultryst Soultryst 26-30, F 2 Responses Feb 3, 2010

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    I was diagnost with PCOS recently.

    Im only 16. I rearely got my period and always had access hair. I knew something was always wrong. I had gotten pylonital cysts and my surgeon wanted my thyriod doctors to do tests so they did. I was then diagnost. Its been rough. Ive been missing a lot of school and im trying...
    PCOSstrength PCOSstrength 16-17, F 6 Responses Nov 27, 2014

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    I have give up hope of ever having another baby.

    I feel it's never going to happen for us. It's not fair.
    deleted deleted 26-30 2 Responses Apr 12

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    My doctor decided I have pcos.

    I have some of the symptoms but not all. I took Metformin for about a month and half or two months and didn't notice any changes. Did I not give it long enough? I was put on a weight plan by the dietician at the same time and had absolutely no change in weight. Like many...
    koiress koiress 26-30, F 4 Responses Apr 3

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    Hey y'all!Some uplifting news to my fellow pcos

    sufferers..I have pcos BUT I am now pregnant!Yes you heard or rather read correctly.:) Metformin and progesterone helped a ton.I moved 5 months ago so getting pregnant was the last thing on my mind.But mid November I took a hpt and to my surprise it was positive!:)So despite...
    SnowVixen SnowVixen 22-25, F 4 Responses Jan 5, 2014

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    I am 17 and was diagnosed around August 2014.

    My doctor was almost positive I didn't have PCOS because I didn't fit the stereotype: I was thin, muscular from years of competitive soccer, I had next to no acne, and wasn't visibility hairy. Still, as another couple appointments went by, she wasn't sure what was causing my...
    brittj10 brittj10 16-17, F 2 Responses Jan 8

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    PCOS: The Bane Of My Life.

    June 27th I went to the ER after suffering horrible pain in my lower left abdomen. The pain spread to my groin, up into my rib cage, and wrapped around my back. Nothing I did made it feel better. Standing up and walking made it unbearable. After work I decided something was...
    angreen9913 angreen9913 26-30, F Oct 10, 2013

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    I Am Cured, And It May Work For You

    Hi, I have been suffering with this for more than 20+ years. I hate the disease and all the symptoms that come with it. I have tried every treatment and diet (vegan 2 yr, low carb 2 yr, gluten free 4 yr, zone, paleo, med, etc..), and exercise program known to women. I have tried...
    asmith13431 asmith13431 31-35, F 1 Response Nov 7, 2013

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    Pregnant After Pcos Diagnosis

    I am now 35 and was told since I was 19 that I had PCOS (thin people type PCOS). I didn't start my period until 17 or 18, and they have always been irregular unless on birth control pills and I had a hard time getting pregnant because of the absent periods. I was always told by...
    RealSurprise RealSurprise 31-35 2 Responses Oct 14, 2012

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    Pcos And I Am Now 5 Weeks Am I Dreaming?

    I had knknow i have PCOS since I was about 15years. I was 1sst told i wouldnt be able to have kids because of the. Then when I about 20-21years my doc tells me u can it is just harder.. i had my daughter when i was 22years. I was very happy bc all i every want is a my own...
    missjdragon20 missjdragon20 26-30, F 1 Response May 13, 2013

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    I was diagnosed with PCOS a month ago I am not

    that overweight we lost one Jan. 2014 to Turners now been trying again however I went to a fertility specialist and cried all day yesterday because she tried to tell me I have diminished egg resserve yet she did not AMH test only FSH which was 17 a month ago on day 5 and 15 now...
    ss9968 ss9968 31-35, F 1 Response Feb 14

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    It can be hard if you're working with a

    nutritionist to manage your PCOS. All this stuff you shouldn't eat. I just ate a whole pizza and it was great for me! 1) Flatbread made with milled, unbleached flour 2) Handmade tomato sauce without sugar and only sea salt to taste 3) Fresh mozzarella 4) Basil leaves 5) Fresh...
    N0VERA N0VERA 22-25, F 1 day ago

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    I cannot begin to express how much I hate

    living with pcos. I've come to hate my body because of this stupid ******* disease. Not to mention the meds make me incredibly nauseous and headache-y. I can't stand it anymore uhhhghgg.
    heyscubby heyscubby 18-21, F 1 Response Jan 8

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    About two years ago I was told I might have

    ovarian cancer. I had all sorts of blood work and other tests done; and it all came back negative. While I was happy that cancer wasn't he answer, I had to continue asking questions. I'm currently 30 years old, have have 5 miscarriages since I was 22, and have not had a period...
    urfavoritgurl234 urfavoritgurl234 26-30, F Apr 3

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    Every day is a new day,

    yet still the same. I try to take it day by day but still only feel the emotional pain running through me. I know it's not the end of the world, things could be worse, but I'm having a hard time handling my situation. A lot of the reason for that is that I don't have anyone but...
    urfavoritgurl234 urfavoritgurl234 26-30, F 1 Response Apr 3

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    Should I have my ovary removed?

    I have known I have pcos for many years (10ish). I suffer from most of the side effects... hair growth in unwanted places, occasional acne, mood swings, depression, etc. The main reason I'm on this chat app is because I have suffered from extreme abdominal pain on my right side...
    AshGW84 AshGW84 31-35, F 3 Responses Jan 20

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    I was diagnosed with PCOS around a year ago

    and have struggled with my weight all my life. I'm currently 98kgs (216lbs). I've been on Weight Watchers for the last 9 weeks and have lost about 7kgs (15lbs), which is all fine and dandy but for the most part, I lost that in the first 5 weeks! The last 4 weeks has been a...
    ylime93 ylime93 18-21, F 3 Responses May 24

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    Still Hoping For The Bundle Joy

    Been 10 months lost over 30 lbs. but still no ovulation, My eating habits are better its just hard everday knowing I might never have a child..My faith is small everyday I see people with children that druggies or don't even care and it pains me that they just don't care about...
    Starshine2315 Starshine2315 22-25, F 1 Response Nov 21, 2013

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    guys.... I have pcos I'm just 17 years old.

    ... I gained a huge amount of weight... due to my weight I have even lost confidence in me.... now a days I am easily becoming emotional and I'm starting to cry... please give me some kind of confidence and suggest me some diet and daily exercises....
    tushitha tushitha 16-17, F 5 Responses Jun 13

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    Yesterday I found out I have pcos I'm 18

    and scared to death I don't no what to do
    jbreanne2015 jbreanne2015 18-21, F 1 Response Feb 11

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    I just wanted to post my experience to try to

    give you all hope that it gets better because it does. I'm 14 and was diagnosed with PCOS when I was about 12. I have been taking dianette and metformin for quite a while now and they have helped me so much that I almost feel normal. They helped me regulate my periods, to lose...
    elxx elxx 13-15, F 1 Response Mar 5

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    Hi, I'm having trouble losing my weight

    and I was wondering if anyone had any dietary advice? I was told I had pcos when I was around 15/16 and put on metformin but I haven't taken it in a while. Thanks☺️
    smithme7 smithme7 18-21, F 4 Responses Apr 7

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    I Have Pcos

    I was diagnosed with PCOS around 4-5 years ago (around 15 or 16). I thought I was having appendicitis early one morning and had my parents rush me to the hospital. When I got there and they did some tests they found at least 4 cysts on my ovaries with the biggest one causing me...
    smartandbeautiful3 smartandbeautiful3 18-21, F 2 Responses Jul 10, 2012

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    I have a lot of symptoms of this

    and one endo told me i have it,my testosterone level was kinda up and it was more up than a year ago when i had some blood work done with a different doc.He wanted to run more tests,test for adrenal issues since my cortisol was a bit high on some tests i took,I think it was a...
    simpleandpossible simpleandpossible 22-25, F May 26

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    Hey all! I'm new here.

    But I was wondering if anyone here was treating their PCOS with something other than birth control? Like herbal treatments?
    danadanes danadanes 18-21, F 3 Responses May 31

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    the smallest ive been was probably 130-140 ,

    but that was because i was stressed over the loss of my ex who Ive been over. After I moved on the weight came back, Im trying to get back down to 135-140 it would help and get my pcos in order. If anyone has any great health plans please feel free to share them with me and send...
    imstillalady imstillalady 22-25 4 Responses Apr 18

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    I found out that I had pcos about 2 months ago

    and my fertility doctor put me on metformin 2 weeks ago. I have been so nervous about how this will effect my chances in having kids. :(
    tinksc06 tinksc06 26-30, F 2 Responses Feb 25

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    it has been a long hard battle

    but I feel like I have learnt ways to manage quite a few symptoms but it is the fluctuations in my mood that I still struggle with. Some days I feel like I can achieve all I am striving towards and others I just want to get under my duvet and shut the world out. having said...
    IllusiveLittleMe IllusiveLittleMe 31-35, F 1 Response Oct 2, 2014

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    I don't know whats worse,

    feeling ugly, depressed or manly all the time. I always hear there is someone out there I just have to look hard enough but whats the point in trying if I get avoided or told "I don't want to be with you but i don't mind ******* you"?
    xboo15 xboo15 22-25, F Apr 20

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