I Have Pectus Excavatum

Pectus Excavatum anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pectus Excavatum. You're not alone. 226 People

    I Have Pectus Excavatum, And Thats Just Fine With Me. :)

    Hi Everyone! I was born with numerous medical problems that include a golf ball sized cyst on my lung, and Poisons in my blood that required a total blood transfusion. I swelled up from 6 pounds to 9 pounds over night, which is equivalent to an adult gaining 45 pounds in a three...
    Hawkinstaylor51 Hawkinstaylor51
    16-17
    2 Responses Oct 9, 2010

    So I've had PE all my life

    and tried the nuss procedure at least 5 years ago but sadly, my sternum sunk back down. I think it's even gotten further. I'm not tooooo self conscious of it but I do have a personal question for others with PE. I've read that it can cause fatigue and I believe I'm victim to...
    NicoliP NicoliP
    18-21, M
    Oct 27, 2015

    I have two teenage boys with Pectus Excavatum.

    Both are cosmetic. My younger son is o.k. with the deformity and is 6'2" and 14 yrs old. Very confident and outgoing. My oldest son15, has it more obvious inthat the lower ribs stick out more which make the hole look deeper and worse. This son has had self confidence issues from...
    sotellme sotellme
    41-45, F
    2 Responses Oct 20, 2014

    Almost 18 With Pe...

    Hey everyone, My story is a lot like yours (if your reading this and have PE as well) where you grew up feeling insecure and scared about your strange condition. But I'd like to hopefully shed some hope for the rest of you and share my positive story. First of all, I had my...
    QuartzCrystal QuartzCrystal
    16-17
    Dec 11, 2008

    I am 22 and i have had pectus excavatum my

    whole life. My family told me stories about when i was younger how they brought me into the doctors when i was 5 and the doctors said it would go away by the time i was 12. Well when turned 12 i still had it i went back in and they said it should be gone by the time i turn 16...
    Nykein Nykein
    22-25, F
    1 Response Dec 13, 2013

    How bad is my pectus excavatum?

    Look at the picture and tell me. I just wanna know how everyone else thinks it looks. Thanks!
    cjwaldrontfb cjwaldrontfb
    18-21, M
    5 Responses Jul 13, 2014

    P.E

    Hiya. I am a 22 year old with p.e. I'm sorry so many people seem to feel so negatively about the appearence of p.e. I am having ravitch procedure next yeart to correct mine. Not from a cosmetic point of view but a health point of view. Apparently this is 'symptomatic' p.e. I have...
    fuerza23 fuerza23
    22-25, F
    4 Responses Oct 31, 2013

    I've had a "backwards" rib cage

    since I was really little, my breastbone is sunken and the bottom edges of my ribs stick out. I thought I was just different. I'm really tall and pretty skinny so you can tell that it's not normal. I have a small chest and I've been teased about the shape my body has. I find it...
    JaiJai3 JaiJai3
    16-17, F
    1 Response May 20, 2015
    MiddleSister45 MiddleSister45
    46-50, F
    Nov 17, 2014

    Hi everyone! I'm here to share my experience of

    having pectus excavatum. There aren't really any other sites that allow you to post your experiences, only sites giving you information. If you are wanting to get your PE fixed or you are going to and want information I can help you/ ease your mind. I am a female and I just...
    haleyx3 haleyx3
    22-25, F
    1 Response Sep 10, 2015

    Pectus Excavatum In Your 30's

    I have had a severe pectus excavatum all my life and recently had the Ravitch procedure performed. It has been about 2 months since my surgery and things have progressed well and wanted to tell people my story in case they are experiencing the same problems and have questions...
    Fc2sheffield Fc2sheffield
    31-35
    1 Response Feb 25, 2011
    IronManHole IronManHole
    16-17, M
    1 Response Nov 15, 2014

    A new less painful and quicker magnetic

    treatment for Pectus Excavatum is almost available and we need your help to bring it to market! Please follow the below indiegogo link to learn more and help us commercialize the Magnetic Mini Mover Procedure.
    Pectusmedical Pectusmedical
    26-30, F
    1 Response Oct 28, 2014

    Sometimes it hurts (especially

    after running) or feels like my chest is too tight (pressure, heavy breathing after exertion). Most of the time I don't notice it. In the summer, I go without a t-shirt, not thinking anything of it. I get a question once in awhile, but it's usually from a curious kid. I have...
    deleted deleted
    26-30
    1 Response Apr 15, 2015

    22 Years Old W/ P.E.

    So I've been reading these stories and first off, It's nice to hear stories similar to mine. These experiences aren't always the best but sharing and relating always helps. So I started getting taller, while keeping the same weight, in middle school. That's when it started to...
    Compian Compian
    22-25, M
    Apr 26, 2011

    When the awkward middle school growth spurts

    began to take effect, my body developed differently than those around me. I had pectus excavatum, more commonly known as sunken chest, a genetic disorder causing a severe dip in the sternum, making the rib cage look sunken. And, like any 12 to 13 year old kid does, I couldn’t...
    austinbaird austinbaird
    18-21, M
    1 Response Nov 17, 2014

    Hello everyone, I hope you are all doing well

    and thank you for taking the time to read my post.I'm a 21 year old university student living in Montreal, Quebec, Canada and I have a relatively moderate case of Pectus Excavatum. However, I've been feeling symptoms such as shortness of breath and occasional chest pain...
    deleted deleted
    26-30
    1 Response Mar 23

    I am a 17 year old boy

    and have pectus excavatum. Just recently have i seriously started thinking about it and how it could affect me. So I've don't a lot of research on it and everyone says that if you are going to get it done, get it done young because it could seriously affect you when your older...
    tymccullough tymccullough
    18-21, M
    2 Responses Mar 30, 2015

    5-13 My Story

    Hi, First I need to say how good it feels to share my story. Like I'm accepting part of my identity, even if the only people who know are my parents, sis and doctor. Hey now you do too. Anyway I've had the indent forever. I remember be little on the bath and filling it with water...
    Eva99 Eva99
    13-15, F
    1 Response Mar 12, 2013

    I Am Who I Am

    I am a 19 year old girl, and I have PE. (doesnt everyone here? lol)I have always known i was a little different when it came to my chest, but i didnt notice it until around grade 7. At that point in my life i would never wear any shirt that wouldnt cover it. I didnt like going...
    liferox liferox
    18-21
    1 Response Mar 31, 2011

    Im a 22 year old woman with Marfan Syndrome,

    which pe is symptom of. it never bothered me as a child so i never did anything about it, but now in my 20s i have been noticing shortness of breath and chest pain from time to time. it has been something that has also bothered me cosmetically for awhile now. i am nervous about...
    lauren1738 lauren1738
    22-25
    Jul 6, 2015

    My Severe Pectus Excavatum Story And How To Live With It

    I'm 29 and have had a severe case of pectus excavatum my whole life. In third grade I have an operation called the ravitch technique done to corrected my deformity. Long story short the bar placed in my chest broke a few months after the surgery when my ***** sister push me...
    Flappa Flappa
    31-35
    Aug 5, 2013

    I have had this obviously my entire life.

    I have managed to overcome the challenges presented by PE and have been a police officer for the last 25 years. I will say that not a day goes by that I am not affected by my PE. I have found that physical exercise has been my escape to fight PE. I recently started crossfit...
    ChuckBeefsteak ChuckBeefsteak
    46-50, M
    3 Responses Sep 24, 2014

    I am a 26 year old female with what my cardiac

    doctor has labeled to moderate to severe pectus excatum. Over time it has gotten much worse and I have developed mitral valve prolapse. My insurance has never covered it because they deemed it as comestic. Anybody else who has had a similar problem. Also as a photographer I...
    ojh232 ojh232
    26-30, F
    2 Responses Apr 13, 2015

    13 Years Old And I Have Pe.my Experiences So Far...

    My pectus excavatum deformity didn't really show until I started puberty, around 10 years old, around 4th grade. It didn't really other me because it's not that severe. I took my shirt off at the beach not knowing any information about the deformity. I thought it was kind of...
    chodesofwood chodesofwood
    13-15
    1 Response Jan 29, 2012

    I have this pectus issue

    and I recently had surgery twice and look for someone to talk to that has had the same experience as I have.
    emmabutler12 emmabutler12
    16-17, F
    Jul 1, 2015

    Though I was born with PE,

    I only found out I had it when I was 22 years old. Apparently, mine wasn't defined enough for my doctors to really take notice of it. I enjoyed playing sports up until junior high. At that point, I began really struggling to run and catch my breath. I could no longer participate...
    JButlerFan JButlerFan
    22-25, F
    1 Response Jan 30, 2015

    Hello, I am a 34 year old female

    who just found out 2 weeks ago that I have a moderate PE. About 7 weeks ago I experienced a crushing pain in my chest and thought it was a heart attack. It wasn't, but it did reveal some actelectasis in my right lung. Since that day I have not been able to regain normal...
    zitorobin zitorobin
    31-35, F
    Apr 12

    I came across this site hoping

    for some relief, but I'm afraid the result has been the opposite. I'm in my early 30s and have PE, as does my father, and I've been told his father had it as well, though I never noticed. But mine is much more pronounced than theirs. Other than them, I've never met another...
    cohaagen cohaagen
    36-40, M
    7 Responses Jun 9, 2014

    Ihave had PE my whole life.

    So three years ago I got the nuss bar put in. But my PE caused scoliosis. so one year after I got the nuss bar put in, I had to get a spinal fusion with 2 rods down my spine. And just recently I got the nuss bar taken out. The results are great! But the rods in my spine will be...
    lundell94 lundell94
    22-25, M
    1 Response May 22, 2015

    I have posted my story in here before

    but just recently I have really been struggling more than usual. Im having really bad pains in my chest, shoulder and down my left arm. I have also noticed the top left part of my chest appears to be sinking as well as the dent at my sternum. I have also been having more...
    fuerza23 fuerza23
    22-25, F
    1 Response Aug 9, 2014

    I have had the disease

    since I was little, it didn't bother me much as a child. My favorite thing to do as a kid was swim. All my birthday parties were at the pool ( I didn't have one, it was at the golf course). It didn't mean anything to me until I was in high school. Now I let no one see it. I feel...
    Iaquinto Iaquinto
    22-25, M
    1 Response Aug 3, 2014

    (continued) During September of my sophomore

    year of high school, I was put under for six hours while a team of surgeons inserted a twelve inch steel rod under my rib cage. Although the surgery was frightening, more frightening was the fact that my peers were at school, learning, while I was recovering for a month, half...
    austinbaird austinbaird
    18-21, M
    1 Response Nov 17, 2014

    My Experience With Pectus Excavatum

    Well, I am a young WOMAN with pectus excavatum, and as most women know, our breasts are part of what makes us feel feminine. Throughout my childhood I struggled with being teased with my pectus excavatum. I was small chested to begin with, so with the depression in my chest it...
    ladypectus21 ladypectus21
    18-21, F
    24 Responses Sep 21, 2011

    Suffer, Determination, Research, Progress, Recovery, 80% Improvements, The Story Continues…

    I will tell a short version of my PE experience that finally lead me to more than 80% improvements without surgery. I was not born with PE even though I was told so. In Sweden where I live there is a myth that says that PE is a birth defect ONLY. When I became a little older I...
    pexrev pexrev
    41-45, M
    4 Responses Nov 22, 2013

    I would like to join the canadian army

    but i have a PE and i wonder if they Will accepte me What do you think? (excuse my bad english i am a french guy)
    Galactique Galactique
    18-21, M
    2 Responses Dec 10, 2014

    I love my "dent" my friends

    and I always joke about it however i wish I could wear bras that fit me properly. I'm a C/D cup but I have to wear B and even then it doesn't fit right. I wish there was a procedure that filled the part that the breasts sit on but keeps the dent toward the bottom so that I can...
    Nicoleq Nicoleq
    18-21
    1 Response Dec 21, 2014

    The Little Known Secret Of Weightlifting And Why It Is Good For Your Chest.

    Since I joined this group about six months ago, I’ve noticed recurring testimony in members’ stories about having difficulty in breathing and experiencing pain when running or doing other aerobic exercises. For people with PE this is quite understandable. Let me explain...
    michaelportman michaelportman
    61-65, M
    1 Response Jun 12, 2011

    Weight Training Helped Me

      Hi, I am 63 and first noticed that I had a sunken chest when I was about 12.   It reached its worst stage when I was 16. Needless to say, it was devastating to me psychologically. No adult ever talked to me about it and I had no positive adult guidance in my life...
    michaelportman michaelportman
    61-65, M
    Jan 13, 2011

    I found out that i had PE at 12 years old

    but i had it all my life and just thought it was normal until then. I just took it as nothing as it was only very minor back then and i found out my dad had a very minor case of it so i didn't worry about it at all but i was always interested in getting it fixed. For 2 years it...
    Bennnnnnnnnn99 Bennnnnnnnnn99
    16-17, M
    Nov 2, 2015

    My Secret

    I am 27, and just recently put a name to the deformity that's left me so insecure for the last 13 years. Since middle school I knew something was wrong with my chest. I have always been small & a little underweight, but what I noticed was more than just a small chest. I have also...
    Discotec Discotec
    26-30, F
    2 Responses Apr 2, 2011

    Pe

    Yeah hi people I am 20 and I have PE wow that feels good to say, as I never really told anyone before :) I really started noticing it 5 or 6 years ago when I took off my shirt in front of a mate and he laughed and said what a freak :( and ever since I have been to worried what...
    Titch92 Titch92
    18-21, M
    Jul 10, 2012

    Sorry if this is getting posted twice,

    my computer is being weird. So, I have never had surgery because my pediatrician told my parents I didn't need it. My parents never told me that I had PE, they just kind of assumed I wouldn't wonder why I had periodic x-rays of my chest and a fist-sized indention. I never...
    convexxing3 convexxing3
    26-30, F
    Feb 7

    Hello everyone. I have had two surgeries

    for corrective pe. It was pretty traumatic growing up with this for me. I have learned since I've been older that this isn't as rare as I thought. I grew up feeling like a loner and sad to say this has really carried over into my adult life. It is encouraging to see people...
    JayNTS JayNTS
    36-40, M
    Jul 22, 2015

    My Pectus

    I was born with pectus and have been suffering my whole life. as a child i never really got to enjoy life. I didnt get to jump trampoline or ride bikes as my friends all did. I have been ridiculed and teased. Public swimming pools, schools, even at home. As a child my dream was...
    Robopect Robopect
    18-21, M
    2 Responses Jan 27, 2012

    I Have It, But It Doesn't Bother Me :)

    Hi I'm Brady, a 14 year old Male, and i have a Moderate case of P.E. I actually found out I had it when i looked down one day (about a year ago) to see my chest had an odd dent in it. I looked up on google "why does my chest have a dent in it?" and found tons of articles about it...
    BradyWillis97 BradyWillis97
    18-21
    1 Response Jul 9, 2011

    I'm Not Crazy....

    Okay well obviously i have PE as well. I noticed it in 6Th grade when i discovered chest pain and trouble breathing. ( I am now almost 19) I was very athletic, i played many sports from softball to cheer leading to volleyball and in 6Th grade all the sports had to stop. I couldn...
    shelly0993 shelly0993
    18-21, F
    3 Responses Apr 9, 2012

    Hi everybody, I'm a 22-year-old guy with pectus

    excavatum and I'm looking at getting it repaired for a variety of reasons. I was just wondering if anyone has any tips on the first steps for getting it dealt with. I know I have to have a CT scan to get my Haller index but I don't even know of a good surgeon or anyone to...
    mattbirdo mattbirdo
    22-25, M
    1 Response Apr 5, 2015

    I never really payed attention to my body

    when I was a kid...but I remember one day,when I was 12 years old,my brother said "look Anderson your chest is slightly bigger on the left side" ...and my mother said "your're growing up...it'll probably fix itself then" ...but it just got worse and when I was 13 my mother took...
    deleted deleted
    26-30
    1 Response Jun 9, 2015

    hi. I'm here for my 4 month old daughter.

    hope that's okay. just hoping to learn and listen. I haven't heard or read much about women's experiences with PE.
    vroxas vroxas
    41-45, F
    Aug 22, 2015

    Hello, I First noticed

    that my chest was different about 5 year ago (when i was 10.) The surgeon is recommending that I get it fixed as I am quite insecure about it and will eventually get it done. Apparently the recovery time is long and painful so I was wondering if anyone had ever had the surgery...
    emmylou190 emmylou190
    16-17, F
    Nov 26, 2015

    Pectus And Metabolism

    Hey, I was doing some research of pectus excavatum (I have it) and some thoughts crossed my mind. I've always had an extremely fast metabolism. I'm 22 years old, 5'8, but I've been capped at 120 pounds for a very long time. I can eat anything and my body will instantly burn it...
    onchroe onchroe
    18-21, M
    6 Responses Jun 14, 2012

    I am 42 yrs old and am going to have the

    modified Ravitch procedure next month. I found this site when I went looking for personal experience stories of those who have also had the procedure. I relate with almost everything I have read. Thank you for sharing. Your openness & honesty have helped ease my fears and for...
    deleted deleted
    26-30
    Nov 16, 2015

    I am 16, I have PE, I'm thinking about getting

    it corrected. I really noticed it at 13 years old, I started first noticing that my chest was different. I had asked questions about it to my primary care doctor, but she said it was normal and nothing was wrong. I learned about it through a different specialist, and she said it...
    Isaiah898 Isaiah898
    16-17, M
    Oct 20, 2015
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