I Have Pemphigus Vulgaris, Familial

A Pemphigus Vulgaris, Familial anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pemphigus Vulgaris, Familial. You're not alone. 6 People

    Pemphigus Vulgaris

    I was recently diagnosed with Pemphigus Vulgaris. I have been dealing with symptoms for 3 years. I only recently was diagnosed with the disease. Specialists in my home town could not diagnose it. It took me flying 1000 miles to a doctor who could diagnose it. I'm only now...
    sutterhome8225 sutterhome8225
    3 Responses Oct 1, 2011

    I was recently diagnosed with this disease.

    It is so frustrating to see doctors not having knowledge and more than that their unwillingness to help.It all started last yr in July when I went to my dentist .I had silver fillings and my dentist suggested to get them converted to white fillings .And then said that I would...
    me317 me317
    36-40, F
    Apr 15, 2015


    Hello, I was recently diagnosed and am looking for support and help!  My dermatologist says it is a light case and all I can say is it's been bad enough and I would hate to see it worse.  Exploring sites has only increased my fears!!  What in the world is this disease?  I...
    brdartist brdartist
    2 Responses Feb 13, 2012

    New To PV

    I, too, was recently diagnosed with PV. I went through 3 doctor's and fortunately, my last one quickly diagnosed it. I am current on 40 mg Prednisone and just started cellcept (1000 mg per day). Has anyone had success with Prednisone and cellcept working together? Thanks.
    chrisuc chrisuc
    46-50, M
    2 Responses May 22, 2013
More Stories