I Have Pendred Syndrome

A Pendred Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pendred Syndrome. You're not alone. 5 People

    I have a child that may have Pendred's syndrome.

    This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear since birth. We never knew this until she was in school! About age 6, the school does hearing and vision tests. She failed her hearing test twice in...
    deleted deleted
    Jul 18, 2015

    My Daughtes Have Pendreds

    I hope this helps someone out there. I have two daughters a 14 year old and an 8 year old, they have both been diagnosed with Pendreds by a geneticist. My eldest daughter was born with hearing loss in one ear the left, she was really sick at birth and in ICU due to the cord...
    diana2 diana2
    26-30, F
    4 Responses Jul 16, 2012
More Stories