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I Have Peyronie's Disease

Peyronie's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peyronie's Disease. You're not alone. 19 People

    Recently Diagnosed With Peyronie's Disease

    I was officially diagnosed with Peyronie's Disease about a week ago. The symptoms started with pain during erection. After a few weeks, my penis was bent about 20 degrees to the right when erect. I was horrified! I called a respected Urology practice in my area, and had to go...
    BrightDragon BrightDragon 46-50, M 2 Responses Aug 29, 2011

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    Written In Hopes Of Helping Others

    Ok so I came across this group and I see it hasn't any posts. I guess I will finally post something here. I was diagnosed with peyronies about 2 years ago. I was so devistated. My perfect 8 14 inch c*** became bent and twisted so much I could barely get it up. I also lost about 3...
    livinglargetoo livinglargetoo 56-60, M 17 Responses Dec 23, 2010

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    Lived With Peyronie's For Almost A Decade. At The Breaking Point (no Pun Intended). Looking For Real Help

    I was with a woman who didn't want to have sex. We sublimated the tension by doing things with our clothes on. It began to irritate my penis. After two years I noticed a curvature and t felt uncomfortable. Finally we made the leap. Within the first few times I sustained an...
    TheAmazingBreakableBoy TheAmazingBreakableBoy 26-30, M 2 Responses Apr 29, 2012

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    Related Experiences

    I was told I had keinbock's about 12 yrs. ago had surgery to shorten bone in my right arm. That helped with pain for about two yrs. so I stayed working but since then pain has...
    icequeen029 icequeen029 31-35, F Aug 11

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    Yesterday, something happened to me that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with...
    scottdavidsmith scottdavidsmith 46-50, M 1 Response 5 days ago

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    I have polycystic kidney disease. The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with...
    aneetasree aneetasree 31-35, F 5 days ago

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    I actually don't know for sure if I have Sjogren's; my second appt with the rheumy isn't until the 19th. I've had horrible dry mouth, throat, eyes, etc., for a while now (3+yrs). I...
    Notasouthernbelle Notasouthernbelle 36-40, F 3 Responses Aug 6

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    I had this patch of tanned skin on my stomach and my arm-pits in large blobs across my body for over a year. It was very confidence ruining, and I was scared of it spreading on to...
    xSundip xSundip 18-21, M Aug 6

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    I have had raynauds since at least 4 years old, but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it...
    allisondela allisondela 18-21, F Aug 14

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    I've had depression and anxiety pretty much my whole life, leading to two hospital stays in my late teens. At that stage it was suspected to be some sort of psychosis, or...
    BJH72 BJH72 41-45, M 1 Response Jul 28

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    It had been a whirlwind weekend - I flew from Georgia to Pennsylvania at o' dark early to surprise my aunt for her 60th birthday - it was a blast! Woke up the next morning, Sunday...
    kemeki kemeki 26-30, F 1 day ago

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    And it's depressing and so tiring :(
    MarvelBabe MarvelBabe 13-15, F 1 Response Aug 2

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    I was at this 12½ year wedding day anniversary today. Way to many people. Couldn't focus on anything. Too much noise. And my phone died after the first 4 hours, but I was there...
    leejoonnieoppa leejoonnieoppa 18-21, F 6 Responses Aug 2

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    I have a 7 yr old adopted daughter that I'm very concerned about. She and her twin sister were abandoned at the hospital, born 3 mos. premature, and positive for methamphetamine...
    mama27kidz mama27kidz 56-60, F Aug 5

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    I am 16 years old and got my first job in May of 2014. I'm a Server and Cashier at a restaurant. Some days when I work, I feel slow with knowing what's going on. I never had a...
    short98 short98 16-17, F Aug 15

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    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response Aug 16

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

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    I was just diagnosed with hashimoto's my TPO is 3300 and my Tg was <5, does anyone else have these levels? I can never get warm and have a lot of joint pain. I don't do well in...
    Jung007 Jung007 31-35, M 6 days ago

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    I am making a prognosis as a patient and I want to be tested for the AACh antibodies. Thymoma is abnormal growth of the thymus and is strongly correlated with MFC in the recent...
    RiderVictori RiderVictori 31-35, T Aug 9

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    I have been diagnosed with Asperger syndrome. Sometimes it just seems like it doesn't fit at all except the unsocial part as most of my routines has fallen apart well I guess this...
    Joiss Joiss 18-21, M 1 Response Aug 10

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    https://www.kickstarter.com/projects/2084036675/artistic-autistic-awareness?ref=email My Kickstarter application is finally live. I have autism and I find the preconceptions...
    TheNakedPoet TheNakedPoet 41-45, M Aug 18

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    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 1 Response a week ago

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    I am always looking for ways to meet up with other people who have aspergers in public sessions but here in Cheshire the only options are specialist social events such as the...
    gc12091985 gc12091985 26-30, M 2 Responses 1 day ago

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    I was diagnosed at 27 due to tadpole pupil episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new...
    telltalelemon telltalelemon 31-35, F Jul 29

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    Do any of you keep like dairy/journal
    shadowfluffy6 shadowfluffy6 18-21, F 2 Responses Aug 16

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    Had it since fifth grade (10 years old). I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While...
    ninjadentistinspace ninjadentistinspace 16-17, F a week ago

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 18-21, F 3 days ago

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    I have had the disease since I was little, it didn't bother me much as a child. My favorite thing to do as a kid was swim. All my birthday parties were at the pool ( I didn't have...
    Iaquinto Iaquinto 22-25, M 1 Response Aug 3

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    March, 2013 I was told I had polymyositis. My Doctor said I was using 20% of my muscle. I lost my job and living on SSD. My treatments are IVIG and predisone. When I first...
    Numberplay Numberplay 46-50, F Aug 17

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    I'm 16 old and just got the results that I was given herpes by my last sexual partner, age 24. I'm only 16 and will never be able to run from this. I feel like everyone knows. I...
    ofwkatie ofwkatie 16-17, F 4 Responses Aug 13

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    I have extreme anxiety about my health. Every time I see something off about my skin or have pain anywhere I freak out and think I have a serious disease. I don't know what to do...
    kico4 kico4 13-15, F 2 Responses 7 hrs ago

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    You Look Yummy :) This dream absolutely terrified me as a kid. Just thinking about this godforsaken nightmare sends huge amounts of fear crawling down my spine. I say this with...
    NFDenmark NFDenmark 16-17, M 2 Responses Jul 31

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    *Tiana Jade* This girl needs no introduction. lol Seriously, she's the most amazing person i've known here. Pure hearted, a one of a kind friend that you'll surely love to have...
    DarkSoul07 DarkSoul07 22-25, F 2 Responses Aug 2

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    But I don't have a feminine side ;A; But there's a side I have. It's called a awesome side c:< :D And sir if you think if I would ever think I would have a feminine side I don...
    DysfunctionalPiano DysfunctionalPiano 13-15, F Jul 28

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    I have Hashimoto's and hypothyroidism. Nothing new, was diagnosed over a year ago. However, my symptoms have become out of control. I need my medication adjusted. While I'm waiting...
    justb33 justb33 36-40, F 1 Response Aug 13

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    YOU ARE THE MOST BEAUTIFUL PERSON SOMEONE COULD EVER WANT, YOU HAVE ALLWAY'S BEEN PERFECT JUST THE WAY YOU ARE!, LIFE OWE'S YOU EVERYTHING, JUST ASK!
    JEM404 JEM404 41-45, M Aug 16

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    I can't really help myself... I have medication but it isn't really for the ADHD I have. It's kinda like a a little of each type but more of the temper one out of all other than...
    DreadlockJesus DreadlockJesus 31-35, M 1 Response Aug 5

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    I'm quite shy and have Asperger's syndrome, and I desperately want to find someone who loves me for who I am. I doubt it'll be easy, but I hope I find them someday.
    Juri17 Juri17 16-17, F 1 Response Aug 5

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    I'm weird but i call it original (: I'm doing me n happy with myself n the way I am. I'm a ******* weirdo but a good weirdo aha . I'm the bestiest n funniest friend you'll ever...
    youngadult14 youngadult14 13-15, F 1 Response Aug 19

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    you can go thru life second guessing and wondering this or that. The problem with that is, you'll never be truly happy with what you've already done or have. It's good to strive...
    Rc831 Rc831 51-55, M Aug 19

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    Let me get something straight. Just Bc I post in here talking about my struggles with bigger boobs does NOT mean I am going to show you my boobs or even show you my bras. Wtf. I...
    ForeverYoung09 ForeverYoung09 18-21, F 7 Responses 6 days ago

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    My boyfriend ever since I met him has a really bad memory. I believe because he use to smoke pot when he was in high school. Which honestly I can't say whether he is going to ever...
    jellyrolls34 jellyrolls34 18-21, F 16 hrs ago

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    I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results...
    Ilovetosing626 Ilovetosing626 26-30, F 5 days ago

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    Hello everyone, I have had to find a place to vent my frustrations and hope that putting my experience into words will help me on my current journey. The lack of support from...
    linrob14 linrob14 46-50, F Aug 4

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    Hello everyone, I have had to find a place to vent my frustrations and hope that putting my experience into words will help me on my current journey. The lack of support from...
    linrob14 linrob14 46-50, F Aug 4

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    At 12 I started to notice a mood and personality change and have chalked up my sadness, mood swings, lack of interest, and inconsistent insomnia to near comatose states to being a...
    Bobbyckat Bobbyckat 18-21, F 1 Response Aug 15

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    My mom told me once that her disease made her feel like an octopus. I said what do you mean? She said her arms and legs feel like they are out of control. She wants me to take her...
    WildHydrangeas WildHydrangeas 26-30, F 1 day ago

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