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I Have Peyronie's Disease

Peyronie's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peyronie's Disease. You're not alone. 19 People

    Recently Diagnosed With Peyronie's Disease

    I was officially diagnosed with Peyronie's Disease about a week ago. The symptoms started with pain during erection. After a few weeks, my penis was bent about 20 degrees to the right when erect. I was horrified! I called a respected Urology practice in my area, and had to go...
    BrightDragon BrightDragon 46-50, M 2 Responses Aug 29, 2011

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    Written In Hopes Of Helping Others

    Ok so I came across this group and I see it hasn't any posts. I guess I will finally post something here. I was diagnosed with peyronies about 2 years ago. I was so devistated. My perfect 8 14 inch c*** became bent and twisted so much I could barely get it up. I also lost about 3...
    livinglargetoo livinglargetoo 56-60, M 17 Responses Dec 23, 2010

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    Lived With Peyronie's For Almost A Decade. At The Breaking Point (no Pun Intended). Looking For Real Help

    I was with a woman who didn't want to have sex. We sublimated the tension by doing things with our clothes on. It began to irritate my penis. After two years I noticed a curvature and t felt uncomfortable. Finally we made the leap. Within the first few times I sustained an...
    TheAmazingBreakableBoy TheAmazingBreakableBoy 26-30, M 2 Responses Apr 29, 2012

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    Related Experiences

    I was diagnosed with PD in 2000.The neurologist said " you have Parkinson's DIsease". I smiled and said thank you and after a while I got up ,shook hands,"thank you " I returned...
    Gordane Gordane 51-55, M 4 hrs ago

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    Today was the APDA Parkinson's Walk in Seattle. It was a pretty good turn out. In total the walk raised almost $26,000 for Parkinson's research. Personally I was able to raise...
    LifeinWoodinville LifeinWoodinville 41-45, M 3 Responses a week ago

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    I had Grover's on my back and chest. Real itchy. My dermatologist prescribed Triamcinopone Acetonide. Expensive and it didn't seem to help much. I had an old bottle of Calamine...
    mrbob8 mrbob8 70+ 5 days ago

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    I first developed a rash on both of my arms in 2008. Since then I have seen 9 doctors and the 9th doctor was the first one who could identify the rash. He told me there is no...
    Anstead Anstead 70+, F 5 days ago

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    Yesterday, something happened to me that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with...
    scottdavidsmith scottdavidsmith 46-50, M 1 Response Aug 22

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    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

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    I have polycystic kidney disease. The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with...
    aneetasree aneetasree 31-35, F Aug 22

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    I have this horrible disease and I totally understand the symptoms very well. my question is, and this may sound morbid but how does a person die from this? I'm in great...
    jamieannilyn jamieannilyn 36-40 Sep 9

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    So I went to my gynecologist, and ended up being tested for my irregular menstrual cycle. They found some issues with my thyroid, and told me to get it checked out with my primary...
    rollingdoro rollingdoro 22-25, F 2 days ago

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    People judge me a lot when they find out that I have Asperger's.
    AveryWeinstein AveryWeinstein 16-17, F 16 hrs ago

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    Laser eye surgery in under a month l have no option but to try this l have a severe case of this disease and have to be taken off all of my steroids due to health risk/problems...
    Tspklondon Tspklondon 26-30, F Sep 6

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    I'm pretty sure I have Lyme Disease... And after reading everyone's experiences, I am almost positive. I pulled a tick off of me about three years ago and developed the signature...
    Efmatthe9 Efmatthe9 22-25, F Sep 13

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    My family has known for a while that our mother has the early onset on Alzheimer's and we have watched her quickly go down hill. Early yesterday she called us and told us that my...
    ColumbiaTiger ColumbiaTiger 41-45, M 1 Response Sep 12

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    It had been a whirlwind weekend - I flew from Georgia to Pennsylvania at o' dark early to surprise my aunt for her 60th birthday - it was a blast! Woke up the next morning, Sunday...
    kemeki kemeki 26-30, F Aug 26

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    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses Sep 14

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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

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    One of my more persistent tics is groping. If i notice, feel(like in a hug or brushing against me), or remember what they feel like, i have to grab a woman's breasts. I don't think...
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response Sep 11

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    Asperger's Syndrome has caused me many problems regarding social behavior (what i should, and shouldn't do). I screwed up today, and am really upset about it. Hopefully you guys...
    TyphlosionWolf TyphlosionWolf 18-21, M 1 day ago

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

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    I was 12 years old and I didn't have any protection. For the longest, I regretted not going through with it, but I saved myself for my high school sweetheart that I met when I was...
    iamokaynow iamokaynow 31-35, M 1 Response Sep 2

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    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response Sep 11

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    Bells Palsy day #656. Facial paralysis is still about 90% however I still have numbness on the entire left side of my face. I went the entire summer without experiencing headaches...
    jrosskc jrosskc 46-50 3 days ago

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    Got it from my dad. I'm not as bad as he is cause I fight to make it not define who I am. Though at first I felt bad but then I felt happy cause I'm gonna get money from the...
    YLIhououin YLIhououin 18-21, M 3 Responses Sep 1

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    Uncoordinated Somehow, I'm reluctant to get hit with a ball, bat, shoe, kid, or some out of the blue object when I walk into a school gym. Now every time I walk anywhere near...
    kelseytoby1337 kelseytoby1337 16-17 2 Responses Sep 2

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    Its really annoying with the stupid spasms and twitches, and sometimes i can say bad stuff and it gets me in a lot of trouble :(
    RazorToMySkin RazorToMySkin 16-17, M 1 Response 4 days ago

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    The most frustrating thing is knowing that you know others don't. Followed by knowing they understand what you don't. Somedays I tire of faking emotion to be kind. I just wish...
    silkyavi silkyavi 31-35, M 1 Response 10 hrs ago

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 22-25, F Aug 24

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    I have a heart disease known as Tetralogy of Fallot, and I've had since before birth. This is a defect that causes a hole in ones heart, and I had surgery after I was born. This...
    StarShineGirl StarShineGirl 16-17, F 2 Responses Sep 6

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    I have extreme anxiety about my health. Every time I see something off about my skin or have pain anywhere I freak out and think I have a serious disease. I don't know what to do...
    kico4 kico4 13-15, F 3 Responses Aug 27

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    My husband has just been diagnosed with Ocular cicatricial pemphigoid. Hoping to connect with others who also have this rare disease
    jroush jroush 51-55, F 18 hrs ago

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    Please think twice about ECT. It changed my life forever. I submitted to treatment 2 years ago for depression and am now being treated for PTSD and severe depression because of...
    Nomoreforme1 Nomoreforme1 51-55, F 2 Responses Aug 30

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    Making Friends at Payless... Don't be afraid guys..."TRY THEM ON" Those are the three magical words my favorite sales associate, Maribel told me in 2010, and they still ring true...
    esthr009 esthr009 46-50, M 5 Responses 6 days ago

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    Not only are they hyperealistic, but I'm lucid in them. If i die in one, I don't wake up, i either continue as a spirit, zombie, whatever happened to me and continue the dream...
    thetalkingmushroom thetalkingmushroom 18-21, M Sep 11

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    Or at least I used to be. It's hard being in love with someone you know you can never have. It's even worse when you have to force yourself to let go and move on. And being "just...
    Iyaniaya Iyaniaya 22-25, F 2 Responses 4 days ago

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    My boyfriend ever since I met him has a really bad memory. I believe because he use to smoke pot when he was in high school. Which honestly I can't say whether he is going to ever...
    jellyrolls34 jellyrolls34 18-21, F Aug 27

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    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

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    Thank GOD I don't do drugs, or my dreams would be even weirder D: I don't even know where to begin on explaining what goes on in my head, so I won't even bother... acid trippy...
    YuriXWolfram86 YuriXWolfram86 18-21, F 4 Responses Sep 4

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    When I was a small boy I used to stop at my grandparents. After breakfast my young uncle, who still lived there, would perform his shaving ablutions with his dentures out, leaving...
    SLdale SLdale 51-55, M Sep 5

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    Okay, not really a random thought but I need some help! Fashion help! At my job I am required to wear button down blouses...this is a problem for me as I have let's say a larger...
    LoudMouse LoudMouse 31-35, F 1 day ago

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    Okay, not really a random thought but I need some help! Fashion help! At my job I am required to wear button down blouses...this is a problem for me as I have let's say a larger...
    LoudMouse LoudMouse 31-35, F 2 Responses 1 day ago

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    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

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    I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results...
    Ilovetosing626 Ilovetosing626 26-30, F Aug 22

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    With Sept being thyroid awareness month, I wanted to share my experience w/ thyroid disease. Within a yr of separating from the Air Force in 2005, I started experiencing strange...
    afdragon afdragon 36-40, F Sep 8

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    I have seen a lot of people on EP and in real life throwing this word around like a hot potato. The two most inappropriately used words in this generation, in my personal opinion...
    AlexandriaDark AlexandriaDark 18-21, F Aug 30

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