Post
This experience may contain mature content, as flagged by the community. Please click away if you do not want to see this content, or if you are not of age. To report inappropriate content, please email us.

I Have Peyronie's Disease

Peyronie's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peyronie's Disease. You're not alone. 19 People

    Recently Diagnosed With Peyronie's Disease

    I was officially diagnosed with Peyronie's Disease about a week ago. The symptoms started with pain during erection. After a few weeks, my penis was bent about 20 degrees to the right when erect. I was horrified! I called a respected Urology practice in my area, and had to go...
    BrightDragon BrightDragon 46-50, M 2 Responses Aug 29, 2011

    Your Response

    Cancel

    Written In Hopes Of Helping Others

    Ok so I came across this group and I see it hasn't any posts. I guess I will finally post something here. I was diagnosed with peyronies about 2 years ago. I was so devistated. My perfect 8 14 inch c*** became bent and twisted so much I could barely get it up. I also lost about 3...
    livinglargetoo livinglargetoo 56-60, M 17 Responses Dec 23, 2010

    Your Response

    Cancel

    Lived With Peyronie's For Almost A Decade. At The Breaking Point (no Pun Intended). Looking For Real Help

    I was with a woman who didn't want to have sex. We sublimated the tension by doing things with our clothes on. It began to irritate my penis. After two years I noticed a curvature and t felt uncomfortable. Finally we made the leap. Within the first few times I sustained an...
    TheAmazingBreakableBoy TheAmazingBreakableBoy 26-30, M 2 Responses Apr 29, 2012

    Your Response

    Cancel

    Related Experiences

    Well I find out tommarow at what stage my disease😁doctor said stage 2 but after seeing other xrays I believe it's stage 3 nervous about surgery and want them to skip the four...
    jeffbelcher jeffbelcher 41-45, M Jun 30

    Your Response

    Cancel
    My son who is 15 has been diagnosed with kienbochs disease - they have put ha wrist in a cars and are hoping that the blod flow to the bones will return normally - we are in New...
    raegem raegem 46-50, F 6 days ago

    Your Response

    Cancel
    In 5th grade I started to notice that my back was begging to look like a hump like shape. My mom said it was cause of the way I stood and I needed to stand up straighter and not...
    InsecureEcho InsecureEcho 13-15, F 1 Response Jul 6

    Your Response

    Cancel
    Hello. I was diagnosed with A.D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I...
    jenyeaz jenyeaz 22-25, F 5 days ago

    Your Response

    Cancel
    Oct 2012, Dr told me I have PD. Take medicine, but have good days and bad days. PD mostly affects my legs. When meds ware off, my legs hurt. Can not sleep, have to walk to...
    rjk01 rjk01 66-70, M 3 Responses Jul 7

    Your Response

    Cancel
    i remember how happy I was when I had my first real poop after being diagnosed with crohns.
    helreb helreb 18-21, F 1 Response Jul 9

    Your Response

    Cancel
    Anybody else agree with this? 😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now...
    sarahglass sarahglass 18-21, F 1 Response 4 days ago

    Your Response

    Cancel
    Looking for people who have server Menieres Disease and has had the shunt surgery on my left ear but now I'm getting in my right ear
    gborron gborron 46-50, F 2 Responses 5 days ago

    Your Response

    Cancel
    I have neurological Lyme disease and everyday is a struggle. My memory is so bad I forget where I and people, I also get really bad brain fog and have asperges since being...
    BrainnahGrace BrainnahGrace 13-15, F 2 Responses 14 hrs ago

    Your Response

    Cancel
    I learned only a few years ago that I have Asperger's Syndrome and am clumsy as well as frequently speak very wierdly sometimes, and am socially awkward. I am also narrow minded in...
    Fenrirfenn Fenrirfenn 18-21, M 5 Responses Jul 3

    Your Response

    Cancel
    I think I have Asperger's. I have been diagnosed with many disorders over the years, depression, anxiety, ocd, ptsd, and we have touched on Asperger's, but never has it been a...
    13thgen 13thgen 36-40, M 2 Responses Jul 16

    Your Response

    Cancel
    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response 1 day ago

    Your Response

    Cancel
    I have stage 4 chronic kidney disease since last nov. Of 2013,right before Thanksgiving. And I do have couple donors to help me but I guess the hospital is still gonna take awhile...
    letsbestrong letsbestrong 31-35, F 6 days ago

    Your Response

    Cancel
    I have had this Menieres Disease for 20 years I had the surgery in my left ear 3 years ago where they put a shunt in worse thing I ever did my balance is a bigger problem now I...
    gborron gborron 46-50, F 1 Response 5 days ago

    Your Response

    Cancel
    Can doing drugs cause this disease? I got a blood test that shows there's an underlying health condition that's causing it., My rheumatoid count is off. Anyone have information?
    Rosaalie Rosaalie 18-21, F 2 Responses Jul 9

    Your Response

    Cancel
    Sometimes I wonder what my family thinks with me having Asperger's or how long they've been keeping it from me. When I found out in February, my mom confessed to knowing I had it...
    kelseytoby kelseytoby 16-17 3 Responses Jul 8

    Your Response

    Cancel
    My Morton's neuroma is now gone... When I went on a ski trip with my family about eight years ago, I ended up in the ski shop because my foot hurt too much to ski. I thought that...
    mark7722 mark7722 46-50, M Jul 10

    Your Response

    Cancel
    I was diagnosed with Asperger's when I was 16, because the school nurse recommended that I get tested for AS. My teachers thought I was [pause] different. When somebody says you...
    RazorKenny RazorKenny 26-30, M 2 Responses Jul 13

    Your Response

    Cancel
    my computer's running really ******* slow and it's throwing off the entire mood of writing. Even as I'm typing now, it's lagging hardcore and i'm sick of it. I'm writing a story...
    hornewrecked hornewrecked 16-17, F 1 Response 3 days ago

    Your Response

    Cancel
    Like build cubicles or office furniture, or fence, or sheds . Then the money they make would help run the prison. And when the inmates finished their time they could become part...
    jarret1234 jarret1234 51-55, M 1 Response Jun 26

    Your Response

    Cancel
    **** I get when I tell someone I have aspergers "But you’re nothing like ____!"
Sometimes I’ll tell someone I have aspergers and they’ll just happen to have a friend or...
    nikkianni nikkianni 13-15, F 4 Responses Jun 29

    Your Response

    Cancel
    Anyone have any advice for coping with the hot summer weather? I tolerate cold pretty well, but after being out in the sun for a little over 2 hours yesterday I had a horrible...
    dolceharajuku dolceharajuku 26-30, F Jul 6

    Your Response

    Cancel
    It's the reason 95% of everyone I have ever known has eventually pushed me away. I'm not trying to sound like a pity party but that's been my real world experience. I'm lonely...
    KusanagiShiro KusanagiShiro 26-30, M 4 Responses Jul 10

    Your Response

    Cancel
    I was diagnosed with thygeson's SPK when I was 11. I''m 36 now and was accustomed to daily painful blinding flare-ups when using steroid drops. My eye glands do not produce...
    captainbrendo captainbrendo 36-40, M Jul 13

    Your Response

    Cancel
    It's hard to deal with sometimes. I just wanna stay home and cry when it's real bad. It hurts and my face droops badly.
    QuiltedBathwater QuiltedBathwater 18-21, M 1 Response 6 days ago

    Your Response

    Cancel
    My doctor advised me to eat gluten-free, and I have been. I'm just wondering what type of symptoms other people get when they actually eat something with gluten. Thanks!
    deleted deleted 26-30 1 Response Jul 10

    Your Response

    Cancel
    Anyone else hashimotos symptomatic but normal thyroid levels? If so what symptoms? I have brain fog, confusion, memory issues, tingling head, some sleeping issues, what seems like...
    CoachDanny CoachDanny 41-45, M Jul 16

    Your Response

    Cancel
    Five different specialists have now told me I should start taking my medication now. Actually it could be six or seven but I don't want to. It isn't going to cure me.
    Teab Teab 41-45, M 2 Responses 3 days ago

    Your Response

    Cancel
    Something I am having increasing difficulty with at the moment is that nobody knows exactly how difficult things are for me. This includes myself. I don't know how easy...
    Teab Teab 41-45, M 1 Response Jun 29

    Your Response

    Cancel
    My autism ruined most of my life. I wish I could relive as an autistic anthro fox
    Miserablechildhood Miserablechildhood 13-15, M 4 Responses Jun 29

    Your Response

    Cancel
    I was just diagnosed this week. Now what?
    VBLOVE1106 VBLOVE1106 22-25, F 4 Responses Jul 5

    Your Response

    Cancel
    It hurts like a ***** right now . **** cold weather :( purple, red, and yellow feet.... How pretty -.-
    Rosaalie Rosaalie 18-21, F 3 Responses Jul 10

    Your Response

    Cancel
    I've been dealing with this for about six years now.. Has actually gotten me into the field of optometry, and has shown me my passion for eyes. God is good!
    CaseyLanier CaseyLanier 16-17, F a week ago

    Your Response

    Cancel
    My dad left before I was born. After I was born my mom was diagnosed with Huntington's Disease...it's a genetic disease. I was only 10. In those 10 years I watched her slowly die...
    blackbird08 blackbird08 18-21, F Jun 27

    Your Response

    Cancel
    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 5 days ago

    Your Response

    Cancel
    Two and a half years ago I was diagnosed with Ulcerative Colitis. Then a year ago it got bumped up to Crohn's Disease. It's funny I always knew something was wrong with me since I...
    Starkillera Starkillera 18-21, F 3 Responses 3 days ago

    Your Response

    Cancel
    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M Jun 29

    Your Response

    Cancel
    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M 1 Response Jun 29

    Your Response

    Cancel
    Dear Stranger, Please don’t touch my hair. Yes, I do know its so long that I can almost sit on it. Yes, I do know its shiny. (Good genes, I’m lucky) Yes, I do know its soft...
    NotBadForAYankeeGirl NotBadForAYankeeGirl 36-40, F 9 Responses Jul 10

    Your Response

    Cancel
    I miss slurpee's, they were a favorite drink in California but this part of Arizona, doesn't have them. A 7-eleven store. They have Icee's which are too sweet and only come in red...
    kathouse68 kathouse68 66-70, F 1 Response Jul 13

    Your Response

    Cancel
    I was never diagnosed with BPD but I feel I do have it. I have been reading about it and after reading many of your own testimonies I am convinced this is what I have. It's been a...
    Serenity14 Serenity14 26-30, F 2 Responses 4 days ago

    Your Response

    Cancel
    So well my brain goes to overdrive analyzing why I don't have the kinda relationship with my mother that most women have. It's always been a love hate relationship. Maybe something...
    Mysticme Mysticme 26-30, F 1 Response Jun 27

    Your Response

    Cancel
    I have BDD and I am constantly jealous of other girls... Wishing I looked like them! Wanting the opposite to everything I have!! It's painful :(
    hollieberri hollieberri 26-30, F 1 Response Jul 15

    Your Response

    Cancel
    I have never had the chicken pox. I had the mumps and the measles but not the chicken pox. And now that my daughter has chicken pox, it frightens me that I'll get infected, which I...
    thelonewood thelonewood 26-30 2 Responses 6 hrs ago

    Your Response

    Cancel