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I Have Peyronie's Disease

Peyronie's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peyronie's Disease. You're not alone. 19 People

    Recently Diagnosed With Peyronie's Disease

    I was officially diagnosed with Peyronie's Disease about a week ago. The symptoms started with pain during erection. After a few weeks, my penis was bent about 20 degrees to the right when erect. I was horrified! I called a respected Urology practice in my area, and had to go...
    BrightDragon BrightDragon 46-50, M 2 Responses Aug 29, 2011

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    Written In Hopes Of Helping Others

    Ok so I came across this group and I see it hasn't any posts. I guess I will finally post something here. I was diagnosed with peyronies about 2 years ago. I was so devistated. My perfect 8 14 inch c*** became bent and twisted so much I could barely get it up. I also lost about 3...
    livinglargetoo livinglargetoo 56-60, M 17 Responses Dec 23, 2010

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    Lived With Peyronie's For Almost A Decade. At The Breaking Point (no Pun Intended). Looking For Real Help

    I was with a woman who didn't want to have sex. We sublimated the tension by doing things with our clothes on. It began to irritate my penis. After two years I noticed a curvature and t felt uncomfortable. Finally we made the leap. Within the first few times I sustained an...
    TheAmazingBreakableBoy TheAmazingBreakableBoy 26-30, M 2 Responses Apr 29, 2012

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    I have random tremors that occur especially when I talk to my friends or hang out with them I have mini tremors that feel like they're inside my abdomen. I feel like my speech is...
    SammiSakura SammiSakura 13-15, F 11 hrs ago

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    I was diagnosed with Meniere's Disease in April 2014. What I experienced was feeling dizzy, tired (very tired), could not get up to go to work and some ringing in one ear. I...
    michaelchs michaelchs 26-30, M 6 days ago

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    And she tries to make me feel bad about the fact that I haven't made an effort to talk to her in four years (I had an awful childhood because of her). She has apparently been...
    haroni haroni 22-25, F 1 Response Oct 2

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    Today I stopped by an saw my mother who has Alzheimer's disease and my father has dementia. I have been trying to find them an assisted living center that they can move into...
    ColumbiaTiger ColumbiaTiger 41-45, M 4 Responses Oct 17

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    I have Asperger's syndrome and so I'm quite socially awkward. People just never take me seriously or think I'm a freak. I'm almost 17 now and I'm really worried that I will never...
    vivi9298 vivi9298 16-17, F 7 Responses Oct 6

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    I was diagnosed 2 weeks before my 18th birthday through an ultrasound taken after contracting a very nasty kidney infection. At my age I have no real noticeable changes, just...
    theinevitablechange theinevitablechange 18-21, F Oct 11

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    polycystic kidney disease runs through my dads side of the family. I was diagnosed 4 months ago when my menstrual cycle was not right I had a ultra sound and they found cysts not...
    chlo3ann3 chlo3ann3 13-15, F Oct 4

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    Well, since the cost of my mother's care will go up quite a bit I have resorted to begging for money via GoFundMe. Lol It't can't hurt...but I don't high hopes of it helping. Long...
    Myzery Myzery 31-35, F 2 Responses Oct 16

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    Last night I moved a bunch of furniture around in order to make it easier for my mother to get through her room/bathroom using a walker or a wheel chair. Today I am getting...
    Myzery Myzery 31-35, F 1 Response Oct 14

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    The guilt is getting to me. Perhaps because I have never really felt guilty before. lol On Sunday I started paying for 24/7 care at home for my mother. On Sunday, I was so...
    Myzery Myzery 31-35, F 1 Response Oct 22

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    Ugh. If I cannot get a doctor to do an anterior hip replacement on mom, I don't know what I'll do. There's only so much morphine you can give a person, and she is in pain and angry...
    Myzery Myzery 31-35, F a week ago

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    It's going to be a long night... I get home from shopping at several stores...I detest shopping. DETEST it! Only to find my mother in the family room pumped up on morphine and...
    Myzery Myzery 31-35, F 11 hrs ago

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    Im new to this site...i have a son with HD and GDD, he is 3yrs old now, his been through a lot with 6x surgery 6x episodes of enterocolitis, his last hospitalization was january...
    jamilavictoria jamilavictoria 31-35, F Oct 5

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    I have a grandma with stage seven dementia and she can be far out there but when I ever I go visit her she remembers everything. But when she is out there she is having a good time...
    ValhallaAwaits ValhallaAwaits 18-21, M 1 Response Oct 17

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    Today is the second day that we have basically kept my mother in a "medicine induced coma" to keep her from being in pain. When I expressed my guilt, the Hospice nurse told me to...
    Myzery Myzery 31-35, F 1 Response 1 day ago

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    I have this too. I was not diagnosed with it until 2014 but have been experiencing these symptoms since October 2008. The doctors all told me it was eczema. I have used every over...
    Rosalindjts Rosalindjts 26-30, F Oct 7

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    I don't but my boyfriend does. It's hard on him :(
    LustlyVareDe LustlyVareDe 18-21, F 1 Response 8 hrs ago

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    Asperger’s Syndrome From another planet to earth, I look around at all the people that pile on earth’s grounds. Questioning their social norms, studying their eye contact...
    kelseytoby1337 kelseytoby1337 16-17 4 Responses Oct 11

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    I'm on day 11 and I still have lots of questions and realizations. It was 2 Fridays ago when I got hit it with this condition and I never knew what hit me, literally and...
    tma7 tma7 31-35, F 1 Response Oct 13

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    Every doctors and psychologist says it even my teacher but I know it's bullshit cuz I go out like every week and I always talk to random people. I can sit on the train station and...
    breastmilklover99 breastmilklover99 70+, M 1 Response Oct 16

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    I'm writing this now because I need to get it out. I'm having trouble deciding what to do. School's been out for a few months and since then I've tried a 30 day free trial period...
    ftmFreddy ftmFreddy 18-21, T 1 Response 6 days ago

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    And thanks to screw up all around, I've been without my medicine for the last several days, and have no idea when my refill will arrive. So, I'm feeling really antisocial right...
    OggggO OggggO 26-30, M 2 Responses Oct 6

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    I was diagnosed one year ago in November and have been taking my meds ever since. Feeling psyched as I finally managed to lose some weight, which had been impossible before. I lost...
    yellowtrees yellowtrees 26-30, F Oct 16

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    will someone please read this and actually give me answers? I am 19 years old with Sprengles in my left arm. I have back pain, severe right hip pain and pops out and cracks, right...
    Ashlee65 Ashlee65 16-17 1 Response Oct 21

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    although they say I have lots of defects with language and speaking, i have been told its because of asperger's syndrome i am really good in maths physics and other subjects that...
    daniel147 daniel147 13-15, M 1 Response Oct 22

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    I havnt been diagnosed with it but I have all the symptoms im very bad in social situations to the point where I blush and cover my face not being able to look at people in the...
    SillySpill SillySpill 18-21, F 2 Responses 1 day ago

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    I wish I could read minds. Selectively of course. That way when my mom is having one of her bad days where she was responding to internal stimuli and not making any damn sense when...
    Myzery Myzery 31-35, F 1 Response Oct 3

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    Hospice is coming in for an evaluation tomorrow morning! *Fingers crossed!*
    Myzery Myzery 31-35, F Oct 17

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    I REALLY hope Hospice comes on board tomorrow. I can't get mom to eat or drink and I am losing my mind.
    Myzery Myzery 31-35, F 1 Response Oct 17

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    Mom woke up from her medicine coma a short while ago...for being an extremely drugged up woman in severe pain, she sure does move fast! Behold! The power of loads of narcotics! I...
    Myzery Myzery 31-35, F 1 Response 1 day ago

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    We've had a bad experience with icy hot when I put it on his shoulders...I thought he was going to cry. He said that it wasn't the worst pain he felt but definitely close. I forget...
    LustlyVareDe LustlyVareDe 18-21, F 8 hrs ago

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    It is a burden, I was picked on frequently at school and I found it difficult to make friends(besides those who also suffer from disabilities). I find this a barrier to finding...
    T3chmupp3t T3chmupp3t 18-21, M 1 Response Oct 15

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    My medicine finally arrived today. About damn time, I was a wreck…
    OggggO OggggO 26-30, M 1 Response Oct 21

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    The thing that bothers me the most is that I get so obsessed with one topic or one person that it is impossible for me to talk about anything else. My friends say they are fine...
    vivi9298 vivi9298 16-17, F 2 Responses Oct 22

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    I hate how doctors make u feel like a guinea pig
    noelaine noelaine 41-45, F 2 days ago

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    Hey ! I have had this disease since I was 9 years old. I am 22 now. I was sick for a large amount of my childhood. I been in remission for 7 years. I have been experiencing this...
    evermoreme evermoreme 22-25, F Oct 21

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    I was diagnosed with mild carpal tunnel 5 years ago. I've been able to cope fairly well with braces and pain medicines up until the last few months. I changed departments and I'm...
    sewingmojo sewingmojo 41-45, F Oct 16

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    I've been taking care of my mother who has Alzheimer's Disease for a little over a year. On Sunday I started paying for 24/7 care for her. I felt I needed a breather so I didn't...
    Myzery Myzery 31-35, F 1 Response Oct 21

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    I have sickle cell disease and it is very annoying
    Alisha4690 Alisha4690 13-15, F 2 Responses Oct 13

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    My little brother, who is 7, has aspergers, a form on autism. Though I love him dearly, I find that having an autistic brother can at times make me lonely. Some background, I'm...
    tremberlene tremberlene 18-21, F Oct 6

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    Does evil exist? The university professor challenged his students with this question. Did God create everything that exists? A student bravely replied, "Yes, he did!" "God...
    Latinloverguy Latinloverguy 31-35, M 2 Responses Oct 9

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