I Have Phenylketonuria

A Phenylketonuria anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Phenylketonuria. You're not alone. 6 People

    I am so glad to find this website I have

    Classical PKU and wish to get over the jealousy of what level of protein regular people consume. I heard that some PKUers get cured by taking kuvan to maintain their phe level also starting to consume regular food. there has been times when I see some PKUers get cured with kuvan...
    ErbiumbInTheEr ErbiumbInTheEr
    16-17, F
    May 15, 2015

    I Have Classical Pku...

    glad i found this group..would love to chat with anyone..especially adults with this disease...about the challenges..other ppls attitudes towards it..thats my biggest stress obstacle right now...
    tarotstar tarotstar
    46-50, F
    1 Response Nov 16, 2010
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