I Have Phocomelia Syndrome

A Phocomelia Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Phocomelia Syndrome. You're not alone. 4 People

    Actually I don't have phocomelia syndrome.

    My daughter is affected by phocomelia of both arms and unsure if it's the syndrome. She is delayed in a lot. Standing and walking is to be expected. She has yet to speak a word with purpose outside of mama. She is also small for her age. Pretty much 6 months behind which is a...
    ViBattle ViBattle
    Mar 9, 2014
More Stories