I Have Pilonidal Sinus

Pilonidal Sinus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pilonidal Sinus. You're not alone. 25 People

    I Have Pilonidal Sinus

    My name is Brad, I'm from Wellington, New Zealand. I have Pilondial Sinus. I haven't got to the surgery part yet, but in the next couple of months i should be getting it. I've had this for about a year now, at first it was simply weeping puss stuff, then about 6 months ago it...
    Brad007 Brad007
    3 Responses Feb 1, 2009

    My Story..

    Hi Everyone. My name is Carrie, I am 19 years old and I am from Vancouver Island in BC Canada. I have been searching for a very long time to find forums about Pilonidal Sinus Disease. I am hoping if I share my story, that no one will get upset with me making it such a long post...
    CanadianGirl89 CanadianGirl89
    6 Responses Jan 25, 2009

    One Of The Worst Things

    Possibly the worst part of a pilo, is not being able to sleep nude. I miss that alot.
    dissapointinglife dissapointinglife
    31-35, M
    Apr 18, 2012

    My Pilonidal Sinus Experience.

    hi people. Almost no surgery will give you 100% guarantee of permanent healing. i have gone through this ugly experience and i am cured 100% now. my original movements are back. i am so happy. i had pilonidal sinus in july 2011 and operated for the same in pune city͵india. But...
    mygily mygily
    1 Response Apr 6, 2013

    Where To Go Now?

    i have it for the second time now. the first time (about 4 months ago) was similar to this but it has come back. My doctor told me it was just "superficial" and nothing to worry about. This time when it came back i have had it for about a week, the yesterday when i woke...
    belala belala
    18-21, F
    2 Responses Nov 22, 2009


    It is really hurting today :(
    dissapointinglife dissapointinglife
    31-35, M
    1 Response Oct 21, 2011

    Pilo Nidus Sinus ...

    So I've had pilo nidus sinus for about a year now and I've only just gone to see the doctor and he has put me on antibiotics because it was infected but all healed now but it's still there ... I have to see a specialist but from what I've been seeing everywhere I've looked up ill...
    Corey1822 Corey1822
    18-21, M
    Sep 5, 2013

    I have sufferers since May 2015 with pilonidal

    disease and it has been a really rocky road 😔 I would love to speak to anyone who has been going through the same/similar things! Please message me so we can chat!! 😀 I'd love to hear everyone's story 😊
    Kdnt Kdnt
    22-25, F
    Aug 26, 2015

    A True Pain In The Arse (another Pilonidal Story)

    Apparently, pilonidal cysts are far more common than I realized. I have had my pilonidal cyst since probably middle school (2002). Initially, I ignored it, and it went away. It was not too bothersome unless I sat a certain way or unless I hurt my tailbone somehow. It came and...
    narEarth narEarth
    22-25, F
    1 Response Jun 12, 2012

    Sinus For 9 Years With Few Infections Is Surgery Still The Best Option?

    Hey guys! Any advice would be much appreciated! So I noticed I have had this sinus about 9 years ago. I am 31 now and It never started getting infected until I moved to Asia to be a teacher. I think a combination of the humidity and cleanliness of water, as I am a surfer...
    Jamessurfer Jamessurfer
    31-35, M
    Nov 7, 2013

    It's almost embarrassing to admit to be honest.

    It started a few months ago, but I never really recognized that something was wrong until I left to go compete in skills USA. It was extremely painful throughout my tailbone area. It got to the point where I could not sit, lay on my back, or walk without sharp excruciating pain...
    PrincessKayleigh PrincessKayleigh
    18-21, F
    3 Responses May 26, 2014

    Hi there, I had a pilonidal disease too.

    Two years ago I went all the way from UK to Rome (Italy) to see Dr. Luigi Basso, who performs a minimally invasive procedure (Bascom-Gips Israeli procedure). He sorted me out in a few days, no pain, healed within one week. No scars, back to work in a few days. Excellent English...
    LordLucan15 LordLucan15
    46-50, M
    Mar 10, 2016

    My Story.. of My Pilonidal Sinus

    So, I believe but am not certain that this story begins a couple years ago. 3 and half years ago I was experiencing pain on my tailbone. I thought maybe it was my new job. I had a job where i sat all day and I had never had a job like that before so i thought maybe my...
    Brunette0508 Brunette0508
    22-25, F
    11 Responses Sep 12, 2009

    I had pain in my tailbone area almost a year

    ago. But i ignored it. It raised , i ignored. I was so lazy to see a doctor. and i rushed to him when the area got swollen up. Doctor said, you have this thing and needs to be operated. And they operated. Everything was fine. I just hated the time when a nurse had to come and...
    deleted deleted
    Aug 7, 2014

    My Pilonidal Sinus

    Hi, my name is Krista and I am 21 years old. I live in Ontario, Canada and I have a Pilonidal Sinus. My story is long, so this is a fair warning. I want people to understand the lengthiness of this disease, and my personal battle with it thus far. I found out that I had a...
    KissaCanadian KissaCanadian
    18-21, F
    13 Responses Sep 8, 2009
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