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I Have Piriformis Syndrome

A Piriformis Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Piriformis Syndrome. You're not alone. 64 People

    Piriformis Syndrome

    3 years now since the debilitating pain started. Luckily I have a primary care doctor who actually CARES about me and wants to help me. After being sent by my HMO to an assembly line type orthopedist office (spine guy, hip guy, back guy, etc.) and getting multiple MRIs and X-rays...
    linanah linanah 26-30 2 Responses Feb 25, 2013

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    The Sorrow Which Has No Vent In Tears May Make Other Organs Weep

    I am writing this story to give hope to those suffering from sciatica and piriformis syndrome. After I found a story where these symptoms are actually diagnostic as Tension Myositis Sindrome (TMS), I searched for diagnostic and treatment of TMS. When I listened some youtube...
    Ibitsciatica Ibitsciatica 41-45 3 Responses Jun 21, 2013

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    I Think I Have Piriformis Syndrome And It's Ruining My Life.

    I'm a 39 year old male. I was very active prior to the chronic pain. I'm at my wits end. My anxiety and depression are at their worst. I'm now in psychotherapy, but I don't think one hour a week of talking about how my pain is degrading my mental capacity is helping me. I'm not...
    msabona msabona 36-40, M 39 Responses Jan 21, 2012

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    Need Help In The Bay Area

    Hi Everyone, I live in San Jose, CA and was wondering if anyone knew of any good medical doctors that deal with Pirformis Syndrome? I'm tired of Chiropractors and Physical Therapy as I have dealt with this now for 15 years and nothing including steroid injections have worked. I...
    xantodog xantodog 46-50, F 8 Responses Jul 3, 2012

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    Long Search For An Answer And Relief

    For over a year I have been experiencing pain & burning feeling on the right side of my buttock.  This pain sometimes refers to my right femur area.  I have tried many treatment modalities from accupuncture, massage, physical therapy, cranial-sacral, chiropractor care...
    teamvic28 teamvic28 51-55 4 Responses Sep 4, 2011

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    Piriformis "pain In Butts" Syndrome......

    I will just put some pointers; 1. Remember Doctors are there to Hide the symptoms....They dont know the cure. 2. You are better off having all sorts of pain killers to avoid going to emergency room or any Doctors.....One hydrocordone will stop the pain and life will go on its...
    qamaruddin qamaruddin 56-60, M 1 Response Apr 9, 2012

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    Can'T Give Up

    I'm 26 & have had piriformis syndrome for almost 5 years. It has been a frustrating journey and has truly made its mark on my life. I was a vibrant, dancing 22 year old when out of the blue this small 'twinge' I felt deep in my buttock one day (I initially thought it was from not...
    iWannaRecover iWannaRecover 26-30, F Apr 27, 2013

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    Pain Getting Worse Nothing Works

    I've had sciatica in my left leg and hip for over a year now. It started after a badly taught zumba fitness class and has got worse and worse. The pain is excruciating burning pain down to my calf. I've always been an active person now my dogs are lucky to get one decent walk a...
    pinkellie pinkellie 31-35 5 Responses Jan 1, 2012

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    It's such a relief to see

    so many posts that describe my symptoms perfectly! It's nice to know that I'm not alone in this nightmare. I have suffered with severe buttock and sciatic pain since falling down some steps in June 2013. After many diagnostic procedures and 3 specialists later I was diagnosed...
    rb2403 rb2403 26-30, F May 1

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    Piriformis Syndrome- Finally Resolved- Cured

    I will keep it short. If you are reading this, you are probably desperate with pain. I have found that there are unlimited posts on the Internet with postings from desperate people, but rarely does someone post to say they have resolved their pain. That's not because piriformis...
    dstark70 dstark70 41-45, M 12 Responses Jan 21, 2012

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    Need Help With Piriformis Syndrome?

    I'm 25 years old I've had ps for 6 years and at the moment I have the inflammation under control. i used to be in pain everyday. i hated the little things in life, like sitting or tying my shoes. i tried every pain killer there is nothing works. i go to the chiro every week. i...
    jcri jcri 26-30, M Apr 24, 2013

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    An Equal Opportunty Pain In The A**

    I've been wrestling with a persistent pain in the butt for 15 months following a lumbo-pelvic manipulation course for me and my fellow PT colleagues. Over, the year the nagging hip and buttock pain became worse and paresthesias and burning pain spread down my leg to my heel and...
    PTpete PTpete 41-45 3 Responses Mar 24, 2013

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    Remember The Jokes About Being A Pain In The Butt?

    Who'd have known that we could really suffer from such a malady! For about two years I've suffered from mild to moderate pain deep in the right buttock area, and only occasional numbness. Upon retrospect I've recently realized that it probably started after a hard fall while...
    czygyny czygyny 56-60, F 6 Responses Sep 29, 2011

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    Finally Found Relief

      I understand your pain all too well I have had this for 4 yrs and was at my wits end too I have researched it all had acupuncture, physical therapy and injections and countless pain pills I have finally found Dr James J. Yue, MD He works out of Yale Univ and is a God...
    bodyshade2 bodyshade2 46-50, F 5 Responses Sep 19, 2012

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    10$ Saved My Life And Cured My Piriformis Syndrome

    Hello, I am a 34 yr old male that has suffered with piriformis syndrome for 6yrs. I feel for each an everyone one here. It was the worst thing I've ever had to deal with in my life. I was completely depressed over this pain and came close to ending it on my own. I've been...
    504tim 504tim 31-35, M Jan 24, 2013

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    Freak Accident

    I was at work when a trailer unhitched from a truck and struck me and 4 other people standing on sidewalk. I was air lifted to uc davis i had 5 fractures to pelvis, internal bleeding and lacerated spleen. Ive had hip surgery and anchors for tears. I was just diagnosed with...
    1 Response Feb 10, 2013

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    Sciatica After A Sudden Car Brake

    I'm having a sciatica for more than year My story starts back in June 2012. I was driving in the car (like 10mph), when I didn't notice that the car in front of me stopped (due to red flashlight), and my response was to hit the brake very fast and hard, which probably resulted...
    kralor kralor 26-30, M 1 Response Nov 9, 2013

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    Help Please

    Does anyone know a surgeon in the Phoenix, AZ area that does piriformis release? Thanks!!!!!
    cld123 cld123 31-35 1 Response Feb 13, 2013

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    Please Help, SI Joint Dysfunction W/ Secondary Piriformis Syndrome

    I have been recently diagnosed with SI Joint Dysfunction with secondary Piriformis Syndrome. I never thought at this point in my life I would be here seeking advice. I am only 20 years old and really at a loss. Back in 2011 I was rear-ended and it has taken forever to get a...
    rmrediker rmrediker 22-25, F 1 Response Mar 4, 2013

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    Piriformis Syndrome Affects Your Life! Big Time.

    Hi, I got injured at work 4 months ago, I work in Long Term Care. one of my patient's who weighs 300 lbs. I weigh 128 lbs. we were in the bathroom, he has the use of one hand & arm, so he is able to hang onto the rail beside the toilet to pull himself up out of his wheelchair to...
    pinkangel2011 pinkangel2011 46-50 3 Responses Jun 23, 2011

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    I urge you all with recurrent PS

    and other health problems to at least consider this. I was diagnosed with piriformis syndrome many years ago. I've had MRI and ultrasound which never produced any results. I was in despair, very occasionally suicidal because of the constant pain. I was prescribed gabapentin...
    piripiri1111 piripiri1111 56-60 Mar 10

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    SI Pain Journey

    I had horrible SI damage to my right side from athletics and a sports injury. Symptoms were lower back but definitely butt pain too. Laid in bed for 6 months researching condition, found a doctor in GA that did SI fixation and took the plunge. They put 3 screws through my SI...
    Sifixated Sifixated 31-35, M 1 Response Mar 9, 2013

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    Piriformis Syndrome Misery

    Hi everyone , i too have piriformis syndrone at the moment and i can tell you it is sheer HELL ! .. I havnt slept in my bed for god knows how many months because the pain increases when i lay down . during the day sometimes i get a tolerable pain level enough to do what needs to...
    tanyaknowles tanyaknowles 31-35, F 3 Responses Jun 25, 2012

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    Sometimes I feel like I am going to lose my

    mind. Last year around Easter I was experiencing pain in my lower back. 20 years old this was a little unusual. I was physically active and loved to play sports, do cartwheels and handstands, anything that required movement. It was the Saturday before Easter Sunday and I had...
    Aerialk Aerialk 22-25, F Mar 5

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    Bad Dreams Provide Clues Into Your Emotional Pain

    A few days ago I was watching Dr. OZ and the show was about interpreting dream. I learnt that it is possible to remember your dream if no muscle is moved after waking up from a dream. I also learnt that it is possible to re-write the end of a dream. I gave a trial to this...
    Ibitsciatica Ibitsciatica 41-45 Jul 19, 2013

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    Some Antibiotics Can Cause This

    Can you remember if you took Ciprofloxin or Levoquin before your onset? If so, a magnesium supplement can help. Force yourself to go to yoga.
    GretchemA GretchemA 56-60, F May 15, 2013

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    Relief At The Institute For Nerve Medicine

    Dr. Filler took me on as a patient in August of 2011. Over two years prior I had sustained a fall on concrete which left me with a displaced SI joint and with severe Piriformus syndrome. I had my SI joint fused in March. That successful surgery relieved my back pain but not my...
    piercealison piercealison 26-30 1 Response Dec 2, 2011

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    There Is Hope! Sciatic Pain Free!

    First off, if you reading this you are likely in severe pain and that can drive a person mad! It almost did me! Here is the background: I went to a VERY reputable sports ortho practice in the area (CA Bay Area), I was a marathon runner, mid 30's and mother of 2 kids delivered...
    Ndjhoward Ndjhoward 36-40 2 Responses Nov 15, 2013

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    WILL POWER. HAVING A POSITIVE ROLE, RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING...
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    How to get a adult diagnosis for ASD (Asperger's Syndrome) ... Do your homework .. It's a complex subject . Talk to those who have been diagnosed . The internet is a good place to...
    HomeJamesASD HomeJamesASD 46-50, M Oct 22

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    Has anyone changed their diet aside from salt intake and hydrating with lots of liquids? Wondering if that would help as well? Also has anyone had good experiences with pindolol...
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    When imperfect is perfect. My good friend has had POTS for years now and I never knew.... That's all I ever wanted. To meet someone with POTS
    december789 december789 16-17, F 1 Response Oct 4

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    I now really feel like the world is against me.
    december789 december789 16-17, F Oct 14

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    GUYS. Licorice root tea. Buy it. Drink it. Do it now. It helps SO FRIGGIN MUCH it's ridiculous. Also, if you're a novice tea drinker like me, add lots of honey. But seriously, I...
    Smilesaremagic Smilesaremagic 16-17, F 1 Response Oct 17

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    What triggers episodes for you?
    december789 december789 16-17, F 1 Response 5 days ago

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    I'm so scared my husband will leave me to have children. He wants children, loves them, idolises them. I think kids are cute but I'm much rather enjoying seeing, learning and...
    CorruptedAngel CorruptedAngel 22-25, F Oct 4

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    I am Janice, a 77 year old female and had GBS 25 years ago. I was at UMMC then rehab for 2 months. Over the years I felt better but had some residual stuff, but about 8 months ago...
    jlcaputi jlcaputi 70+, F 1 Response Oct 3

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    October 8 2014 was my last normal day . October 9th I started to feel tingling and numbness in my hands and feet. I felt weakness in my knees and fumbled things with my hands. So...
    aimeelou22 aimeelou22 36-40 Oct 21

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    My mother was diagnosed with Guillian Barre Syndrome this past Aug. Since then she has lost all function from the neck down, including her mouth. She has been on a ventilator and...
    anthonykoryn anthonykoryn 36-40, F Oct 1

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    ...and I like it. What a crazy thing to happen right as I'm falling asleep, and sometimes it's SO LOUD! Sometimes it's my name, of all things. If anyone reads this and doesn't know...
    incorporealist incorporealist 36-40, M Oct 9

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    Asperger’s Syndrome From another planet to earth, I look around at all the people that pile on earth’s grounds. Questioning their social norms, studying their eye contact...
    kelseytoby1337 kelseytoby1337 16-17 4 Responses Oct 11

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    I am a mother of 4 children. 2 children wit my first husband and 2 with my second husband. My 16 year old daughter had been complaining of pain and swelling in her thumb for a...
    ratgirl73 ratgirl73 41-45, F 3 Responses Oct 2

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    I have Asperger's syndrome and so I'm quite socially awkward. People just never take me seriously or think I'm a freak. I'm almost 17 now and I'm really worried that I will never...
    vivi9298 vivi9298 16-17, F 7 Responses Oct 6

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    although they say I have lots of defects with language and speaking, i have been told its because of asperger's syndrome i am really good in maths physics and other subjects that...
    daniel147 daniel147 13-15, M 1 Response Oct 22

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    To be exact, this is the story. Doctors say I have symptoms of many but the closest one they could come up with is this because of me being born with no outer ears. Big neck. I...
    BigRalphie74 BigRalphie74 36-40, M 1 Response Oct 3

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    i have never heard of this disease
    mstud17 mstud17 22-25, F 1 Response Oct 4

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    It makes me so sad to write this, but I think it's over. I can't continue in a marriage that is so one-sided and hurtful. I want so badly to keep my family together, but trying to...
    Elasticgirl Elasticgirl 36-40, F 1 Response Oct 5