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I Have Piriformis Syndrome

A Piriformis Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Piriformis Syndrome. You're not alone. 65 People

    SI Pain Journey

    I had horrible SI damage to my right side from athletics and a sports injury. Symptoms were lower back but definitely butt pain too. Laid in bed for 6 months researching condition, found a doctor in GA that did SI fixation and took the plunge. They put 3 screws through my SI...
    Sifixated Sifixated 31-35, M 1 Response Mar 9, 2013

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    Remember The Jokes About Being A Pain In The Butt?

    Who'd have known that we could really suffer from such a malady! For about two years I've suffered from mild to moderate pain deep in the right buttock area, and only occasional numbness. Upon retrospect I've recently realized that it probably started after a hard fall while...
    czygyny czygyny 56-60, F 6 Responses Sep 29, 2011

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    I urge you all with recurrent PS

    and other health problems to at least consider this. I was diagnosed with piriformis syndrome many years ago. I've had MRI and ultrasound which never produced any results. I was in despair, very occasionally suicidal because of the constant pain. I was prescribed gabapentin...
    piripiri1111 piripiri1111 56-60 Mar 10

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    An Equal Opportunty Pain In The A**

    I've been wrestling with a persistent pain in the butt for 15 months following a lumbo-pelvic manipulation course for me and my fellow PT colleagues. Over, the year the nagging hip and buttock pain became worse and paresthesias and burning pain spread down my leg to my heel and...
    PTpete PTpete 41-45 3 Responses Mar 24, 2013

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    Some Antibiotics Can Cause This

    Can you remember if you took Ciprofloxin or Levoquin before your onset? If so, a magnesium supplement can help. Force yourself to go to yoga.
    GretchemA GretchemA 56-60, F May 15, 2013

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    Piriformis Syndrome

    3 years now since the debilitating pain started. Luckily I have a primary care doctor who actually CARES about me and wants to help me. After being sent by my HMO to an assembly line type orthopedist office (spine guy, hip guy, back guy, etc.) and getting multiple MRIs and X-rays...
    linanah linanah 26-30 2 Responses Feb 25, 2013

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    Piriformis Syndrome- Finally Resolved- Cured

    I will keep it short. If you are reading this, you are probably desperate with pain. I have found that there are unlimited posts on the Internet with postings from desperate people, but rarely does someone post to say they have resolved their pain. That's not because piriformis...
    dstark70 dstark70 41-45, M 12 Responses Jan 21, 2012

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    Piriformis "pain In Butts" Syndrome......

    I will just put some pointers; 1. Remember Doctors are there to Hide the symptoms....They dont know the cure. 2. You are better off having all sorts of pain killers to avoid going to emergency room or any Doctors.....One hydrocordone will stop the pain and life will go on its...
    qamaruddin qamaruddin 56-60, M 1 Response Apr 9, 2012

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    Relief At The Institute For Nerve Medicine

    Dr. Filler took me on as a patient in August of 2011. Over two years prior I had sustained a fall on concrete which left me with a displaced SI joint and with severe Piriformus syndrome. I had my SI joint fused in March. That successful surgery relieved my back pain but not my...
    piercealison piercealison 26-30 1 Response Dec 2, 2011

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    It's such a relief to see

    so many posts that describe my symptoms perfectly! It's nice to know that I'm not alone in this nightmare. I have suffered with severe buttock and sciatic pain since falling down some steps in June 2013. After many diagnostic procedures and 3 specialists later I was diagnosed...
    rb2403 rb2403 26-30, F May 1

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    The Sorrow Which Has No Vent In Tears May Make Other Organs Weep

    I am writing this story to give hope to those suffering from sciatica and piriformis syndrome. After I found a story where these symptoms are actually diagnostic as Tension Myositis Sindrome (TMS), I searched for diagnostic and treatment of TMS. When I listened some youtube...
    Ibitsciatica Ibitsciatica 41-45 3 Responses Jun 21, 2013

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    Need Help With Piriformis Syndrome?

    I'm 25 years old I've had ps for 6 years and at the moment I have the inflammation under control. i used to be in pain everyday. i hated the little things in life, like sitting or tying my shoes. i tried every pain killer there is nothing works. i go to the chiro every week. i...
    jcri jcri 26-30, M Apr 24, 2013

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    Sometimes I feel like I am going to lose my

    mind. Last year around Easter I was experiencing pain in my lower back. 20 years old this was a little unusual. I was physically active and loved to play sports, do cartwheels and handstands, anything that required movement. It was the Saturday before Easter Sunday and I had...
    Aerialk Aerialk 22-25, F Mar 5

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    Please Help, SI Joint Dysfunction W/ Secondary Piriformis Syndrome

    I have been recently diagnosed with SI Joint Dysfunction with secondary Piriformis Syndrome. I never thought at this point in my life I would be here seeking advice. I am only 20 years old and really at a loss. Back in 2011 I was rear-ended and it has taken forever to get a...
    rmrediker rmrediker 22-25, F 1 Response Mar 4, 2013

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    Piriformis Syndrome Misery

    Hi everyone , i too have piriformis syndrone at the moment and i can tell you it is sheer HELL ! .. I havnt slept in my bed for god knows how many months because the pain increases when i lay down . during the day sometimes i get a tolerable pain level enough to do what needs to...
    tanyaknowles tanyaknowles 31-35, F 3 Responses Jun 25, 2012

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    Bad Dreams Provide Clues Into Your Emotional Pain

    A few days ago I was watching Dr. OZ and the show was about interpreting dream. I learnt that it is possible to remember your dream if no muscle is moved after waking up from a dream. I also learnt that it is possible to re-write the end of a dream. I gave a trial to this...
    Ibitsciatica Ibitsciatica 41-45 Jul 19, 2013

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    Finally Found Relief

      I understand your pain all too well I have had this for 4 yrs and was at my wits end too I have researched it all had acupuncture, physical therapy and injections and countless pain pills I have finally found Dr James J. Yue, MD He works out of Yale Univ and is a God...
    bodyshade2 bodyshade2 46-50, F 5 Responses Sep 19, 2012

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    10$ Saved My Life And Cured My Piriformis Syndrome

    Hello, I am a 34 yr old male that has suffered with piriformis syndrome for 6yrs. I feel for each an everyone one here. It was the worst thing I've ever had to deal with in my life. I was completely depressed over this pain and came close to ending it on my own. I've been...
    504tim 504tim 31-35, M 1 Response Jan 24, 2013

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    Help Please

    Does anyone know a surgeon in the Phoenix, AZ area that does piriformis release? Thanks!!!!!
    cld123 cld123 31-35 1 Response Feb 13, 2013

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    Piriformis Syndrome Affects Your Life! Big Time.

    Hi, I got injured at work 4 months ago, I work in Long Term Care. one of my patient's who weighs 300 lbs. I weigh 128 lbs. we were in the bathroom, he has the use of one hand & arm, so he is able to hang onto the rail beside the toilet to pull himself up out of his wheelchair to...
    pinkangel2011 pinkangel2011 46-50 3 Responses Jun 23, 2011

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    Sciatica After A Sudden Car Brake

    I'm having a sciatica for more than year My story starts back in June 2012. I was driving in the car (like 10mph), when I didn't notice that the car in front of me stopped (due to red flashlight), and my response was to hit the brake very fast and hard, which probably resulted...
    kralor kralor 26-30, M 1 Response Nov 9, 2013

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    There Is Hope! Sciatic Pain Free!

    First off, if you reading this you are likely in severe pain and that can drive a person mad! It almost did me! Here is the background: I went to a VERY reputable sports ortho practice in the area (CA Bay Area), I was a marathon runner, mid 30's and mother of 2 kids delivered...
    Ndjhoward Ndjhoward 36-40 2 Responses Nov 15, 2013

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    Long Search For An Answer And Relief

    For over a year I have been experiencing pain & burning feeling on the right side of my buttock.  This pain sometimes refers to my right femur area.  I have tried many treatment modalities from accupuncture, massage, physical therapy, cranial-sacral, chiropractor care...
    teamvic28 teamvic28 51-55 4 Responses Sep 4, 2011

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    Pain Getting Worse Nothing Works

    I've had sciatica in my left leg and hip for over a year now. It started after a badly taught zumba fitness class and has got worse and worse. The pain is excruciating burning pain down to my calf. I've always been an active person now my dogs are lucky to get one decent walk a...
    pinkellie pinkellie 31-35 5 Responses Jan 1, 2012

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    Need Help In The Bay Area

    Hi Everyone, I live in San Jose, CA and was wondering if anyone knew of any good medical doctors that deal with Pirformis Syndrome? I'm tired of Chiropractors and Physical Therapy as I have dealt with this now for 15 years and nothing including steroid injections have worked. I...
    xantodog xantodog 46-50, F 8 Responses Jul 3, 2012

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    Can'T Give Up

    I'm 26 & have had piriformis syndrome for almost 5 years. It has been a frustrating journey and has truly made its mark on my life. I was a vibrant, dancing 22 year old when out of the blue this small 'twinge' I felt deep in my buttock one day (I initially thought it was from not...
    iWannaRecover iWannaRecover 26-30, F Apr 27, 2013

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    I Think I Have Piriformis Syndrome And It's Ruining My Life.

    I'm a 39 year old male. I was very active prior to the chronic pain. I'm at my wits end. My anxiety and depression are at their worst. I'm now in psychotherapy, but I don't think one hour a week of talking about how my pain is degrading my mental capacity is helping me. I'm not...
    msabona msabona 36-40, M 39 Responses Jan 21, 2012

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    Related Experiences

    ** I do not have Timothy Syndrome, my baby sister does, but she's too little to share her story ** My little sister was born a year and a month ago, premature. She was tiny and...
    allydoe allydoe 18-21, F Nov 19

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    I have been self-diagnosed with rumnation syndrome and am 100% sure that I have diagnosed correctly. This syndrome is making me refuse to eat. I am disgusted with my subconscious...
    sassyanus sassyanus 18-21 Nov 3

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    Hi, I was diagnosed with Limited Crest Syndrome around twelve years ago, having asked what it was I was told, too complicated, look it up on the internet....Anyway have the usual...
    gillybee77 gillybee77 66-70, F Nov 1

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    I was only diagnosed at 16. It's been really hard for me though. I nearly failed out of high school. I can't focus. And pretty much have all the symptoms that show I have it...
    yourbrowneye yourbrowneye 18-21, M 1 Response Nov 1

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    My whole life, I've been attracted to dry, dusty things. As a child, I used to volunteer to clean erasers at school so I could inhale the dust, but I never had a craving to...
    FaceFaceFace2 FaceFaceFace2 18-21, F Nov 9

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    Does anyone have anything other than POTS?
    december789 december789 16-17, F 1 Response Nov 10

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    I started having symptoms at age twelve but I had a complete brake down my junior year of high school. I was trying to balance high school, cosmetology school, and my pots symptoms...
    alyssaanna alyssaanna 18-21, F Nov 13

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    I eat every type of soap anyone I can get my hands on sometimes my tongue is yellow and I have really bad side pains but I cant stop. I eat a bar of soap a month n it relaxes me...
    semorec semorec 18-21, F Nov 16

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    I found out when i was 13 years old and found out i cant have kids i tried Treatments gels tablets everything nothing worked so i went to anabolic steroids like dbol and it was...
    chris0478 chris0478 22-25, M Nov 18

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    Hmm lets see.. My aspergers was pretty bad back when I was younger, but I managed to learn how to simply read situations from facial changes. I still have trouble finding my own...
    oracnid oracnid 16-17, M 2 Responses Nov 19

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    I've just gotten into toothpaste. I really want to eat it, but I have to control myself. Better get some gum, lol
    NatashaRose NatashaRose 18-21, F 2 Responses Nov 19

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    I crack not just my knuckles, but my toes, ankles, wrists, etc. If I try not to, I get so frustrated I just give up. And I laugh at everything. Even if it's not that funny. Someone...
    ftmFreddy ftmFreddy 18-21, T 1 Response 2 hrs ago

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    I eat drywall. Well I did but I stopped I'm still craving for it but I don't eat it. this has been going on for about 3-4 years. I'm just curious could this effect my baby in the...
    byancax33 byancax33 18-21, F 3 Responses Nov 5

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    I'm pregnant and I loveeee to eat powder ! I tried to stop but I can't . Is there anyone like me ?
    BrokenGirl76 BrokenGirl76 18-21, F 2 Responses Nov 14

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    I'm eating ice again. Yey? hahah, just wanna get that out there. Wrong info before, it's bad for your teeth.
    gnarlyaf gnarlyaf 18-21 4 days ago

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    I have a twin brother that survived Guillain-Barré Syndrome or GBS. He was diagnosed at the age of six and it took a year for him to get treatment and get over the disorder. GBS...
    tinytornado95 tinytornado95 18-21, F 1 Response 23 hrs ago

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    In year 1992, I came down with Ramsay-Hunt Syndrome. Its been a long battle. My face first paralyzed on one side and three months later, the other. This has affected my vision...
    Gustavp Gustavp 70+, M Nov 16

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    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response Nov 19

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    yeah it's called being better than you. B.T.Y. syndrome
    NotBiasedBAM NotBiasedBAM 18-21, M Oct 29

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    Shock is obviously the first reaction but having then seen and spoke to her in a strange way I feel relief for her. This might help people who know anyone that is suffering with...
    MeSolumRelinquatis MeSolumRelinquatis 31-35, F Nov 2

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    I was diagnosed with CIDP when I was 12 (year 7) and I laughed when they told me because even though I had no idea what it was and the name was such a mouthful, I was relieved to...
    AlexPeyton AlexPeyton 18-21, F Nov 2

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