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I Have Pitt-hopkins Syndrome

A Pitt-Hopkins Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pitt-Hopkins Syndrome. You're not alone.

    I'm currently in the process of analyzing some videos for my psychology class. The videos are the videos of dysfunctional families with young children that keep screaming for...
    RichardAndon RichardAndon 22-25, M 1 Response Apr 11

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    So, I went to see my doctor today and he suggested that I might have Asperger's syndrome. I don't really know much about it, so was hoping someone on here could enlighten me...
    Ambernonymous Ambernonymous 18-21, F 1 Response Apr 17

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    I found this image about this anime "Parasite" or "Parasyte", I think it's called both ways, I just end watching the anime and I remember thinking about the parasites like Asperger...
    SusAssasins SusAssasins 16-17, F Apr 26

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    Yes, another malady. Actually I've had it since age 20 when I injured my elbow pitching. I loved to pitch and was asked to walk on to the UW Madison team back in 1975. I'll...
    steverick steverick 56-60, M Apr 7

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    I am starting to branch out. To be honest, it doesn't have to be over night, but very gradual. I used to think remaining silent and unnoticed would be better for me, but then you...
    LeaderOfThePack LeaderOfThePack 13-15, M 2 Responses Apr 13

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    I have this but I have periods of denial which mess me up mentally because admitting to having such a disabling disease is so difficult. I go to college because my parents forced...
    fallenstar23 fallenstar23 22-25, F 1 Response Apr 16

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    Ever since I have been diagnosed with Aspergers my parents have always said no i dont. However, they really dont know the half of it. I know i have it mild but i still have it and...
    internationalkoala internationalkoala 18-21, F 7 Responses Apr 17

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    I had a stroke March 2nd. I was in the hospital from March 2-March 25. Then I was in a rehab facility till April 19th. I started feeling this burning ,stabbing pain in my right...
    moonstar312 moonstar312 36-40, F 1 Response Apr 26

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    In the past 64 years since I contracted polio, nothing has been discovered to cure the later effects of polio, but Gabapentin for nerve pain (300 mg.) really helps me sleep at...
    julesgarden julesgarden 61-65 6 days ago

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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F 6 days ago

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response 5 days ago

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M 2 days ago

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 1 Response 18 hrs ago

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    my life has always been hard since the day i was born.
    dacosta4949 dacosta4949 22-25, M 3 Responses Apr 13

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    Well, I'm actually diagnosed....
    SAffRONisGODxSATAN SAffRONisGODxSATAN 13-15, F Apr 27

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F 4 days ago

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    When I was a kid I never felt the same as any of my peers. They were always too loud, too rude, or too confusing for me to want to interact with. Most would bully me for my...
    Wandering2 Wandering2 18-21, F 1 Response 2 days ago

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    my Dr is trying to eliminate stuff before he diagnosis me with cfs. he recently did a mono test and drug test (which was my psychiatrist idea). I wonder what he'll try next...
    kareenmarie kareenmarie 36-40, F 1 Response 2 days ago

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    If the world was perfect, everyone would have Aromatase Excess Syndrome. It is a genetic disorder that feminizes all men and it is always passed onto the child. However, there are...
    ResidentGoddessAstraea ResidentGoddessAstraea 18-21 1 Response 26 mins ago

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    I think I have reached my breaking point. I have tried everything to save my marriage and it never gets any better. I need to get out, but I'm terrified. He's told me that he will...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses 2 hrs ago

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    I'm only 24 and I'm having severe back pain. Has anyone with Larsen Syndrome had back pain that was diagnosed and treated? What can I do? From what I can tell my problem might...
    Coiraingeal Coiraingeal 22-25, F Apr 16

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    Hi I'm Chelsea. I was diagnosed with Duane Syndrome (Type 1) at a very early age as the first few weeks I was born were scary for my mom because she's told me about my left eye...
    lovelymoon11 lovelymoon11 18-21, F Apr 18

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    i wasnt going to write a story about this.... but i will just to share y story with people and hopefully i can maybe try to help people who have it too...
    Slothislife Slothislife 18-21, M 12 Responses Apr 21

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    I have Alice In Wonderland Syndrome, I didn't know I had it until a few years ago. when I was a kid things would get big and sometimes everything just speeded up everything around...
    KValentine17 KValentine17 22-25, M 1 Response Apr 23

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    I've been diagnosed with SMA syndrome for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When...
    jfletcher jfletcher 22-25, F Apr 26

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    I am in love with the man who sexually abused me for 3 years. it started when I was 13. I got extremely close to him. I looked up to him and I could tell him anything. He was my...
    jessical95 jessical95 18-21, F a week ago

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    I invite everyone that has Poland Syndrome to visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response 5 days ago

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    Hi! I'm 17 years old, and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often...
    musiclover48 musiclover48 16-17, F 1 Response 4 days ago

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    I have been diagnosed with pots for almost 2 years now. I'm 13 and going into 8th grade next year. My school is getting super stressful, I went for half a day last week and today I...
    luluhamilton luluhamilton 13-15, F Apr 6

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    Soooo....does anyone know the female equivalent of "small **** syndrome?" I'm asking for a friend who ran out of insults. lol
    HeyyMrsCarter HeyyMrsCarter 22-25, F 2 Responses Apr 11

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    I'm Jennifer. 28 years old, from CT, USA and I was born with total Athyrosis. .. no Thyroid at all. I've yet to meet anyone with this condition and frankly, growing up, it had...
    Genesis478 Genesis478 26-30, F 1 Response Apr 12

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    I have a potential narcissist mother who I rent a property from. She convinced me to rent from her when I was working and I stupidly agreed. Things took a turn for the worse in my...
    deleted deleted 26-30 Apr 17

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    No cures. Chemical imbalances. And new syndromes. Plus deformities. But no search for causes. Causes get denied. Msg. Gmos. Hgh. All denied. Statins did...
    convertihd convertihd 46-50, M Apr 19

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    I, Caylee, had delayed 2 weeks of my life stuck in that hellish hospital, but today is my release date. So I guess Iā€™m sort of happy. Either way I actually missed Anna and Miah...
    WhiteRice14 WhiteRice14 18-21, F 2 Responses Apr 19

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    So drawing was my first love.. I flunked in kindergarten yes you heard it right. Never been the class learner. I discovered a fashion magazine in junior school and was hooked to...
    deleted deleted 26-30 Apr 20

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    I have asperges, I hate it people always Judge me because I'm so quiet :(
    wisey86 wisey86 22-25, M Apr 21

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    Our 10 y/o son was born with this, an incomplete right hand, webbed fingers, missing pec and shorter arm. We had genetic counseling when he was born and were referred to Shriner's...
    hamiltonfive hamiltonfive 36-40, F Apr 22

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    I am 16 and from Maine in the U.S., and am suffering from chronic Small Town Syndrome (i.e. I'm the only gay guy at my school.) I'm not fit by any means, but I'm currently working...
    Jacksonmarshal Jacksonmarshal 16-17, M 2 Responses Apr 24

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    āŒ‚ Home Debbie Avatar Debbie āš™ Forgive my spelling errors (was very hard to write) Also forgive how long winded this is, but fellow FM sufferers can relate to how...
    debbie913 debbie913 31-35, F 1 Response Apr 26

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    It started off with a "cold" I caught from my 14 years daughter. I had gone to the hospital and they treated it like the flu. After fainting once in the shower and laying around...
    jenniejennjen jenniejennjen 36-40, F 2 Responses Apr 28

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    I've had a dozen or so minor concussions...you know when you take a shot that makes everything fuzzy, gives you vertigo, and makes you disoriented for a couple of days...but the...
    CainMarko CainMarko 26-30, M Apr 28