Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Pitt-hopkins Syndrome

A Pitt-Hopkins Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pitt-Hopkins Syndrome. You're not alone.

    Recently I have been staying at my parents' place, partly because the return payment for my still-active student loan has increased dramatically and there are too many things I can...
    Jugemu Jugemu 31-35, M 3 hrs ago

    Your Response

    Cancel
    I started eating chalk when I was about 7 years old I've gone on and off for use mostly due to accessibility about 9 years ago I started buying it on a regular basis usually...
    Chalkgirlwa Chalkgirlwa 31-35, F 9 hrs ago

    Your Response

    Cancel
    I have klinefelters syndrome abd always desire to become wife or something! Finally i accepted my feeling and to be femboy or sissy in 40 age!
    Widehip Widehip 36-40, M 2 Responses 1 day ago

    Your Response

    Cancel
    I was diagnosed with Aspergers Syndrome around 5 years ago. since I was diagnosed I've began to understand myself better. I actually see it as a blessing because I have became very...
    waterboy99 waterboy99 16-17, M 3 Responses 2 days ago

    Your Response

    Cancel
    I've just recently accepted my year old diagnosis as being on the Autism Disorder Spectrum with what is usually called Asperger's. I've learned a lot about myself by accepting my...
    ExtrovertedAspie ExtrovertedAspie 31-35, M 3 days ago

    Your Response

    Cancel
    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 5 days ago

    Your Response

    Cancel
    I was diagnosed with Asperger's (autism) about a year ago but I didn't accept the diagnosis because I had a lot of misunderstandings about what it meant. After continuing treatment...
    ExtrovertedAspie ExtrovertedAspie 31-35, M 1 Response 5 days ago

    Your Response

    Cancel
    Recently diagnosed with horners and holmes syndrome.. after over 10 years and going to many drs about me not sweating I finally found out why.. and this added to my many other...
    baidal88 baidal88 36-40, M 1 Response 6 days ago

    Your Response

    Cancel
    There's days where I forget I am autistic. Surprising isn't it. Today was not one of those days. Too many people today. Too many emotions. Too many decisions. Too many things to...
    jacquelinejones jacquelinejones 46-50 1 Response 6 days ago

    Your Response

    Cancel
    Instead of trying to get me or my siblings back after being put in foster care my mother enjoyed her new-found independence sans children. She met and married my now deceased...
    Aries323 Aries323 18-21, M 6 days ago

    Your Response

    Cancel
    Phew!!! Major dramas in a group I help admin on Facebook. (Hostile takeover and rescue attempts for a group of 20 000 aspies) I am going to have a busy couple of days. What with...
    jacquelinejones jacquelinejones 46-50 1 Response a week ago

    Your Response

    Cancel
    Young Adonis Once, I was drop-dead gorgeous. I remember vividly visiting a woman’s magazine on business. As I walked through the editorial pool, a young Adonis unaware, a...
    anthonyseverus anthonyseverus 56-60, M Jul 24

    Your Response

    Cancel
    Young Adonis Once, I was drop-dead gorgeous. I remember vividly visiting a woman’s magazine on business. As I walked through the editorial pool, a young Adonis unaware, a...
    anthonyseverus anthonyseverus 56-60, M Jul 24

    Your Response

    Cancel
    I do. However, I constantly talk to myself, act out scenes and think negative. It's ruining my life and it's decreasing my time to practice drawing.
    FoxFan64 FoxFan64 13-15, M 2 Responses Jul 24

    Your Response

    Cancel
    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 8 Responses Jul 23

    Your Response

    Cancel
    my boss had a good point this label and every other label that people are diagnosed with is stupid some idiot decided back in the 1930s that whatever human being back then till...
    aaronpayne aaronpayne 22-25, M Jul 23

    Your Response

    Cancel
    I have autism but my question is how does autism come about is it vaccinattions or is it because of use of drugs idk but id like to see in the future a cure or maybe our government...
    aaronpayne aaronpayne 22-25, M 1 Response Jul 22

    Your Response

    Cancel
    She just vanished.... She and I had had a relationship for about a month and a week, when she suddenly started being more and more distant. She stopped communicating on days that...
    GeorgeRashnikov GeorgeRashnikov 18-21, M Jul 21

    Your Response

    Cancel
    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 22-25, F Jul 21

    Your Response

    Cancel
    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

    Your Response

    Cancel
    My best friend just got diagnosed with Aspergers. It's been really hard for her. Is there anything anyone can suggest that might help her cope with the news? Also does anyone have...
    ThinspirationNation ThinspirationNation 18-21, F 6 Responses Jul 18

    Your Response

    Cancel
    I admit there were times I didn't want to be this. I admit there were days in which all I did was cry, asking God or whatever kind of diety is up there watching why did I have to...
    elsasaunt elsasaunt 16-17, F 2 Responses Jul 18

    Your Response

    Cancel
    You know. If there's one thing I would change about my life it would be the years of 'trying to be normal' that I am now trying to dismantle. I am seeing so many parts of myself...
    jacquelinejones jacquelinejones 46-50 3 Responses Jul 18

    Your Response

    Cancel
    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

    Your Response

    Cancel
    hey i just got told i have this and i have no idea what it means can someone please help me?
    deleted deleted 26-30 1 Response Jul 18

    Your Response

    Cancel
    what helps me a lot is to have everything in its place. If I misplace it, God forbid. If you are not my twin, and you move it, it's really bad. Anyone else feel like this?
    PJBelle PJBelle 46-50, F 2 Responses Jul 15

    Your Response

    Cancel
    Why I can't do **** right?! Sometimes I do things I don't realize I'm doing. Like if I'm very slow and whatever, someone pushes me very hard or even get pissed off at me for being...
    BigGirlWithLove BigGirlWithLove 22-25, F 9 Responses Jul 15

    Your Response

    Cancel
    Hi, I'm 13 and I have grown up knowing fully that I have Marfan syndrome, my mum and my brother also the syndrome and I inherited it, my whole life my mum has been open to talk...
    KitKatAngel KitKatAngel 18-21, F Jul 14

    Your Response

    Cancel
    I am 31 and im a plumber I was just diagnosed last week been suffering for about 6 years people always made me feel like I was crazy for saying how I feel all the time my fiance of...
    johnhazzy johnhazzy 31-35, M Jul 13

    Your Response

    Cancel
    Do my pets actually like me or do they just suffer from Stockholm syndrome?
    ZER0RPHEUS ZER0RPHEUS 18-21, F 2 Responses Jul 13

    Your Response

    Cancel
    One week I was Lindy Hopping and the next I couldn't bend my knees. I thought I had Lyme Disease. My inflammatory markers—CRP & Sed--were up. I had mild pain in the soft tissue...
    RatherBeDancing RatherBeDancing 66-70, F Jul 13

    Your Response

    Cancel
    I am addicted to chewing on cardboard. My favorite type is the subscription inserts in magazines, but when I get boxes in the mail from online shopping, I'll rip those apart and...
    dixiedaisy77 dixiedaisy77 31-35, F Jul 13

    Your Response

    Cancel
    Hello, I am not a parent but I am leaving for college in a different country next year. My brother is also leaving and my sister is getting married, so my parents are suddenly left...
    nattee nattee 18-21, F Jul 12

    Your Response

    Cancel
    I battle CRPS...Complex Regional Pain Syndrome. Most of my friends here know that I battle it often. But tonight, it's a new symptom of electrical shock sensation. Perfect...
    TheCunylinguist TheCunylinguist 41-45, F 3 Responses Jul 12

    Your Response

    Cancel
    I was diagnosed with slight autism at age 5 and tbh its still very difficult to be able to deal with social interaction. I feel like sometimes like why did I have to be given this...
    aaronpayne aaronpayne 22-25, M 1 Response Jul 12

    Your Response

    Cancel
    Hey, all my life I thought I was the only one. I am really exited to meet other people with ASD. Even if it's only online!
    madzo13 madzo13 31-35 Jul 12

    Your Response

    Cancel
    If someone would have told me that I'd feel this way (when my children left home) I don't know if I would have chosen to be a mother again. I am the mother of 3 boys-19, 12, & 8. I...
    melanies923 melanies923 36-40, F Jul 12

    Your Response

    Cancel
    Hello everyone :) I have two sons, 21 years old, and (almost) 23 years old! My youngest son has asperger's syndrome :) he also has a full time job and drives.. and lives at home...
    mudflap73 mudflap73 41-45, F 1 Response Jul 12

    Your Response

    Cancel
    Mine sucked! It was good until I lost all of my friends because of my rude and awful act. The people that I thought were my friends ditched me and I was constantly left out and...
    BigGirlWithLove BigGirlWithLove 22-25, F 4 Responses Jul 11

    Your Response

    Cancel
    I admit sometimes I do get violent, I told it's quite an erroneous thing to do unless I have been physically harmed by the person I have struck. Sometimes I don't know what to do...
    thedimone thedimone 13-15, F Jul 11

    Your Response

    Cancel
    In 1989 I was a home designer-builder. After working in home construction for over twenty years I woke one morning and something went wrong. When I got out of bed and stood up my...
    boldtimer boldtimer 66-70, M 1 Response Jul 11