I Have Pituitary Tumors, Adult

A Pituitary Tumors, Adult anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pituitary Tumors, Adult. You're not alone. 47 People

    Quite The Journey... 8 Years And Running....

    It has taken me a while to even get to this point... i am 26 now.  But back when i was 18, i told my ob/gyn that i had been experiencing lactation.  She dismissed it, and told me i was probably making it more serious that it needed to be, and that everyone discharges sometime...
    nikanicole nikanicole
    26-30
    2 Responses Nov 18, 2011

    Well Here It Goes..Chrissys Story..

    Christina DeBiase-Chabarek- Age 32,West Freehold NJ.. My story below I grew up being very thin,(weight) but not feeling right. I suffered from headaches when i was about 15 years of age and got worse as I got older. Right around the time I was having headaches I would get severe...
    chrissy4044 chrissy4044
    31-35, F
    Oct 11, 2012

    My Diagnosis

    In 2008 my doctor discovered a mass on my left kidney which they were all but positive was cancerous due to about 95% of them are. They recommended removing the kidney being the tumor was connected to the inside wall of the kidney.Surgery was successful, and pathology determined...
    Maxwell59 Maxwell59
    56-60
    Jan 7, 2013

    Going Down Hill

    I was diagnosed with a pituitary adenoma 4 years ago. Since then I now have Hashimoto thyroidis, polyarthrylgia, adrenal insuffiecency, and fibromyalgia . Things have gone down hill. Does anyone know how you can tell the difference between a pituitary adenoma and a...
    Stelagtite Stelagtite
    56-60
    Apr 24, 2013

    Been There...

    My name is Randy Thompson. I had my first pituitary tumor surgery in late 1982. It was a prolactin secreting tumor so you can imagine the fun I had there. The doctor never followed up on things so for three years I went without any replacement hormones and completely lost...
    RandyThompson RandyThompson
    46-50
    2 Responses Sep 2, 2012

    Barrow Neurosurgical Associates In Phoenix Az...the Best In The West To Take Out Pituitary Tumors

    I had a pituitary tumor removed in Oct 2002, and it grew back 9 years later.  My first surgery was in Farmington NM, a small town in the Four Corners Area. My  endocrinologist in ABQ NM recommended I go to Barrow to have my second tumor removed, "The best in the West" he said...
    1955mt 1955mt
    56-60
    Oct 18, 2011

    Benign Pituitary Tumor Surgery With Dr. Jeffrey Bruce At NY-presbyterian - March 2013

    I was diagnosed by chance. I went to a Neurologist (Dr. Ronald Silverman), in Metro New York because I am a 51 yo woman whose deceased father had Alzheimer's as well as my alive 86yo mother. I thought maybe he could do something to help me avoid it. My memory is starting to...
    britt1000 britt1000
    56-60, F
    2 Responses Apr 3, 2013

    My Life With Pituitary Tumour

    i was diagnosed in 2004 with my ptuitary tumour it was removed well not all of it ws removed they leave a little apparantly,they said i would need MRI again the following year it hadnt grown back but in 2006 it had so i had surgery again since then ive had MRI,s an things seemed...
    debbiec3 debbiec3
    46-50
    Oct 21, 2011

    My Mri Images Are In

    The MRI Images are in and consultation and interpretation is to come...
    ChrisBhmAL ChrisBhmAL
    26-30, M
    Nov 15, 2011

    My Experience Is Happening Now.

    I was diagnosed with a pituitary tumor officially on July 20th, 2010 and I am 18 years old. I was given pills a month before I was diagnosed to have a period which I haven't had due to high prolactin, and the medicine made me extremely sick for a few months. I was planning on...
    Collegegirl14 Collegegirl14
    18-21, F
    4 Responses Nov 3, 2010

    Well I found out that I had pituitary tumor

    last year through a cat scan and now I have take medicine for the rest of my life
    lmt1828 lmt1828
    26-30, M
    1 Response Mar 5, 2015

    Ouch Don T Know Where To Start

    i m 18 an in late august 2013 started not to want to eat an evrythin i did eat including water i sicked back my mum took me to our gp , who prescribed migraleve , cos i was avin headaches too , an then ibuprofen this went on for about 3 weeks , by then i had stopped eatin...
    keiranhalliday1 keiranhalliday1
    22-25, M
    Nov 17, 2013

    I Am A Twenty Year Old Female With A Pituitary Tumor

    Hello My name is Jessica Kannady. I live in Cincinnati Ohio. when i was 15 years old i found out that i had a pituitary tumor  witch also caused me to have a desiease called acromegaly. I have had 2 brain surgeries, and also a thirty day radiation treatment. i am now 20...
    jessi513 jessi513
    18-21, F
    5 Responses Feb 10, 2010

    I Need Some Imput Please

    I've had severe migraine's since I was 17 years old. Always the same location, behind my left eye. I am now 50years old and still have them. Since June 2012 I have been in a cycle of headache's I anable to break. I asked my Doctor for an MRI, to which he agreed. The MRI showed a...
    ccjordan80 ccjordan80
    46-50
    2 Responses Sep 4, 2012

    I Want To Prove My Theory To Help People Diagnose Pituitary Tumors Earlier

    I have a theory about pituitary tumors and wish to prove it. If I find a correlation between certain specific points in an astrological chart I believe that people could know if they have a statistically higher chance to have this condition.  I wish for this study to be...
    pamxanavii pamxanavii
    36-40
    Mar 18, 2010

    I Need To Find A Cure

    I was having headaches which they attributed to migraines when I was 17, when I started at university at 18 I got a new doctor in the same town as the university. She did some tests and found out it was a pituitary tumor. I was passing out, my blood pressure was really low, my...
    AlbertaJan AlbertaJan
    41-45
    1 Response Oct 7, 2012

    The Concluion Is...

    I don't have a pituitary tumor!!! What a relief. Relief is only short lived now they have to figure out what is wrong with me.
    ChrisBhmAL ChrisBhmAL
    26-30, M
    Nov 16, 2011

    I Have Pituitary Tumor

    Hi l found out thru a cat scan that I had a mass.. I then had a MRI and they discovered a pituitary tumor, I have no symptoms I had all the blood work done and everything came back normal.. Now the endo want me to see a neurosurgeons am scared and confused its like 2mm I don't...
    Foxybrown2018 Foxybrown2018
    46-50, F
    May 22, 2013

    Long Time For Diagnosis

    IT took two neurologist before someone decided to do an MIR of my brain. You see...I have headaches everyday for 30 years. Finally.. I was diagnosed just last week with a benign pituitary mass. Well HELLO.........headaches, elevated prolactin level and other breast symptoms...
    jcs421 jcs421
    46-50, F
    2 Responses Jan 6, 2013

    The Long Road...

    When I was 16 years old, I found out I have a pituitary tumor. At first, the doctors put off my symptoms as medicine I was taking, and it took 3 MRI's, two endocrinologists and two neurosurgeons later to find that I have the tumor. It was soo frustrating for awhile because they...
    stayinstrong2015 stayinstrong2015
    18-21
    2 Responses Jun 10, 2011

    Diagnosed

    On Friday i was diagnosed with a pituitary tumor. I go for final confirmation this week. My Dr. is so certain she has consulted with the neurosurgeon. I hope my DR. is right and wrong. I hope she is right so that I can be well but wrong because it sounds scary...
    ChrisBhmAL ChrisBhmAL
    26-30, M
    3 Responses Nov 12, 2011

    Pituitary Tumor Due To High Prolactin

    I am 31 years old and from Hammonton NJ. In Nov 2011, I was diagnosed with a Pituitary Tumor due to High Prolactin hormone after having a MRI. I have had symptoms since Fall 2010. I have had a milky leakage from both of my breasts. So far my doctor doesn't want to put me on...
    lieslemarie lieslemarie
    31-35
    Apr 26, 2012
More Stories