I Have Pituitary Tumors, Adult

A Pituitary Tumors, Adult anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pituitary Tumors, Adult. You're not alone. 47 People

    My Experience Is Happening Now.

    I was diagnosed with a pituitary tumor officially on July 20th, 2010 and I am 18 years old. I was given pills a month before I was diagnosed to have a period which I haven't had due to high prolactin, and the medicine made me extremely sick for a few months. I was planning on...
    Collegegirl14 Collegegirl14
    18-21, F
    4 Responses Nov 3, 2010

    Quite The Journey... 8 Years And Running....

    It has taken me a while to even get to this point... i am 26 now.  But back when i was 18, i told my ob/gyn that i had been experiencing lactation.  She dismissed it, and told me i was probably making it more serious that it needed to be, and that everyone discharges sometime...
    nikanicole nikanicole
    2 Responses Nov 18, 2011

    Pituitary Tumor Due To High Prolactin

    I am 31 years old and from Hammonton NJ. In Nov 2011, I was diagnosed with a Pituitary Tumor due to High Prolactin hormone after having a MRI. I have had symptoms since Fall 2010. I have had a milky leakage from both of my breasts. So far my doctor doesn't want to put me on...
    lieslemarie lieslemarie
    Apr 26, 2012

    Long Time For Diagnosis

    IT took two neurologist before someone decided to do an MIR of my brain. You see...I have headaches everyday for 30 years. Finally.. I was diagnosed just last week with a benign pituitary mass. Well HELLO.........headaches, elevated prolactin level and other breast symptoms...
    jcs421 jcs421
    46-50, F
    2 Responses Jan 6, 2013

    Been There...

    My name is Randy Thompson. I had my first pituitary tumor surgery in late 1982. It was a prolactin secreting tumor so you can imagine the fun I had there. The doctor never followed up on things so for three years I went without any replacement hormones and completely lost...
    RandyThompson RandyThompson
    2 Responses Sep 2, 2012

    Barrow Neurosurgical Associates In Phoenix Az...the Best In The West To Take Out Pituitary Tumors

    I had a pituitary tumor removed in Oct 2002, and it grew back 9 years later.  My first surgery was in Farmington NM, a small town in the Four Corners Area. My  endocrinologist in ABQ NM recommended I go to Barrow to have my second tumor removed, "The best in the West" he said...
    1955mt 1955mt
    Oct 18, 2011

    Well Here It Goes..Chrissys Story..

    Christina DeBiase-Chabarek- Age 32,West Freehold NJ.. My story below I grew up being very thin,(weight) but not feeling right. I suffered from headaches when i was about 15 years of age and got worse as I got older. Right around the time I was having headaches I would get severe...
    chrissy4044 chrissy4044
    31-35, F
    Oct 11, 2012

    My Diagnosis

    In 2008 my doctor discovered a mass on my left kidney which they were all but positive was cancerous due to about 95% of them are. They recommended removing the kidney being the tumor was connected to the inside wall of the kidney.Surgery was successful, and pathology determined...
    Maxwell59 Maxwell59
    Jan 7, 2013

    Benign Pituitary Tumor Surgery With Dr. Jeffrey Bruce At NY-presbyterian - March 2013

    I was diagnosed by chance. I went to a Neurologist (Dr. Ronald Silverman), in Metro New York because I am a 51 yo woman whose deceased father had Alzheimer's as well as my alive 86yo mother. I thought maybe he could do something to help me avoid it. My memory is starting to...
    britt1000 britt1000
    51-55, F
    2 Responses Apr 3, 2013

    I Have Pituitary Tumor

    Hi l found out thru a cat scan that I had a mass.. I then had a MRI and they discovered a pituitary tumor, I have no symptoms I had all the blood work done and everything came back normal.. Now the endo want me to see a neurosurgeons am scared and confused its like 2mm I don't...
    Foxybrown2018 Foxybrown2018
    46-50, F
    May 22, 2013

    Going Down Hill

    I was diagnosed with a pituitary adenoma 4 years ago. Since then I now have Hashimoto thyroidis, polyarthrylgia, adrenal insuffiecency, and fibromyalgia . Things have gone down hill. Does anyone know how you can tell the difference between a pituitary adenoma and a...
    Stelagtite Stelagtite
    Apr 24, 2013

    I Want To Prove My Theory To Help People Diagnose Pituitary Tumors Earlier

    I have a theory about pituitary tumors and wish to prove it. If I find a correlation between certain specific points in an astrological chart I believe that people could know if they have a statistically higher chance to have this condition.  I wish for this study to be...
    pamxanavii pamxanavii
    Mar 18, 2010

    The Concluion Is...

    I don't have a pituitary tumor!!! What a relief. Relief is only short lived now they have to figure out what is wrong with me.
    ChrisBhmAL ChrisBhmAL
    26-30, M
    Nov 16, 2011


    On Friday i was diagnosed with a pituitary tumor. I go for final confirmation this week. My Dr. is so certain she has consulted with the neurosurgeon. I hope my DR. is right and wrong. I hope she is right so that I can be well but wrong because it sounds scary...
    ChrisBhmAL ChrisBhmAL
    26-30, M
    3 Responses Nov 12, 2011

    My Life With Pituitary Tumour

    i was diagnosed in 2004 with my ptuitary tumour it was removed well not all of it ws removed they leave a little apparantly,they said i would need MRI again the following year it hadnt grown back but in 2006 it had so i had surgery again since then ive had MRI,s an things seemed...
    debbiec3 debbiec3
    Oct 21, 2011

    I Am A Twenty Year Old Female With A Pituitary Tumor

    Hello My name is Jessica Kannady. I live in Cincinnati Ohio. when i was 15 years old i found out that i had a pituitary tumor  witch also caused me to have a desiease called acromegaly. I have had 2 brain surgeries, and also a thirty day radiation treatment. i am now 20...
    jessi513 jessi513
    18-21, F
    5 Responses Feb 10, 2010

    My Mri Images Are In

    The MRI Images are in and consultation and interpretation is to come...
    ChrisBhmAL ChrisBhmAL
    26-30, M
    Nov 15, 2011

    Well I found out that I had pituitary tumor

    last year through a cat scan and now I have take medicine for the rest of my life
    lmt1828 lmt1828
    26-30, M
    1 Response Mar 5, 2015

    I Need Some Imput Please

    I've had severe migraine's since I was 17 years old. Always the same location, behind my left eye. I am now 50years old and still have them. Since June 2012 I have been in a cycle of headache's I anable to break. I asked my Doctor for an MRI, to which he agreed. The MRI showed a...
    ccjordan80 ccjordan80
    2 Responses Sep 4, 2012

    I Need To Find A Cure

    I was having headaches which they attributed to migraines when I was 17, when I started at university at 18 I got a new doctor in the same town as the university. She did some tests and found out it was a pituitary tumor. I was passing out, my blood pressure was really low, my...
    AlbertaJan AlbertaJan
    1 Response Oct 7, 2012

    The Long Road...

    When I was 16 years old, I found out I have a pituitary tumor. At first, the doctors put off my symptoms as medicine I was taking, and it took 3 MRI's, two endocrinologists and two neurosurgeons later to find that I have the tumor. It was soo frustrating for awhile because they...
    stayinstrong2015 stayinstrong2015
    2 Responses Jun 10, 2011

    Ouch Don T Know Where To Start

    i m 18 an in late august 2013 started not to want to eat an evrythin i did eat including water i sicked back my mum took me to our gp , who prescribed migraleve , cos i was avin headaches too , an then ibuprofen this went on for about 3 weeks , by then i had stopped eatin...
    keiranhalliday1 keiranhalliday1
    18-21, M
    Nov 17, 2013
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